#Disabled community
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Vent??
The idea that adulthood and childhood are so seperate is insane. We are all trees. We add a layer every year to who we are.
Why would you expect 18 of your innermost layers to just disappear or transform once you’ve past them? Or for your next layers to be a completely different material?
All of you is the same but you adapt and grow to withstand the storms and to house other good things within your branches and leaves. You become capable of carrying bcs you strengthened who you are.
Adulthood isn’t the absence of childish joys and hobbies. It only exists thanks to them. Bcs you grow what you like and who you are.
I realise some people don’t get the chance figure those basics out. And if that’s you I hope you get all the peace in the world from here to figure it out. But you made it this far. You have layers and a base. I hope every added layer is filled with things you’ve always wanted. Things you love and enjoy and want to know more about.
Not every year will be full of rain and sunlight so don’t be discouraged by a thinner layer! It’s part of the story.
Adulthood is about the freedom to enjoy and be a person. To love and cherish and think. So fill your head with Nintendo games at 45!! Enjoy! No one is ever too old for joy. A tree that lets its innermost rot won’t stand long. So if you have the chance; please try. It’s never too late.
We are all just very big, layered children. 🌳🌲
#spoonie#chronic illness#chronic fatigue#chronic pain#disabled#actually disabled#disabled community#autoimmine disease#spoonie life#spoonie problems#adulthood#growing up#like trees#it’s ok.#you deserve better#childhood
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Shoutout to the doctors that push for the medications and treatments that actually help even if it’s technically not their field, and to the doctors that help you learn how to advocate for yourself
Y’all are amazing and as much as we talk about all the medical trauma from doctors who don’t listen and who ignore our issues, we need to remember to celebrate those who move heaven and earth to help us and to advocate for our needs
#doctors of tumblr#chronic illness#chronic pain#chronically ill#spoonie#thank you to my doctors#appreciate y’all so much#disability#disabled community#chronically ill community
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Happy Disability Pride Month! 🩶💚❤️🤍💛💙🩶🌈 (x)
#disability pride month#disability pride#disability#disability rights#disabled community#disabled women#wlw#wlw history#sapphic#sapphic history#sapphics#lesbian#lesbian history#black history#lgbt#lgbt history#lgbtq#lgbtqia#lgbtqia+#history#herstory#photography#vintage photography#b&w#b&w photography#bw#bwphotography#debra st. john#1990s#source: pinterest
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#yemen#jerusalem#tel aviv#current events#palestine#free palestine#gaza#free gaza#news on gaza#palestine news#news update#war news#war on gaza#disability rights#disabled community#disability justice#genocide#gaza genocide
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IM GOING TO CRY THEY MIGHT INCREASE THE SSI ASSETS LIMIT TO $10,000.
it's a bipartisan bill too! and for anyone unaware, people on SSI (which is different from SSDI), can only have $2,000 in assets (unless they have an ABLE account, which comes with its own rules). this assets limit has been in place for FORTY YEARS and is a giant part of why being on SSI keeps people incredibly impoverished.
i've also heard they might remove the marriage penalty but i don't have the spoons to read or explain it so someone else please add on!
this is huge! please spread the word and do what you can to help ensure this happens!
#softspoonie#disabled#disability#disability rights#disability advocacy#disability activism#disabled rights#disabled community#marriage equality#equality#usa#us politics#us congress#usa politics
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friendly reminder you dont need a diagnosis to be in disability spaces, as an example im in constant pain and fatigue, have migraines every week and my joints hurts to a point I can't write, but since familiar gaslighting/medical trauma and the fact that im an indigenous, brown skin fat man a diagnosis is fucking hard (but im in my way! :)) , but i still deserve a safe space to talk about my experiences and to feel valuable and supported.
never feel like youre interrupting someone's space or that you shouldn't be here cause you dont have a diagnosis, disabilities existed before diagnosis
#fatphobia#disabled pride#disabled community#actually disabled#pro self dx#pro self diagnosis#chronically ill#chronic migraine#chronic illness#chronic pain#chronic fatigue
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QUICK PSA FOR THE DISABLED COMMUNITY
If you take any daily medication, do not eat grapefruit or activated charcoal unless you know for a fact they won’t affect your medication.
Both Grapefruit and Activated Charcoal will cancel out medication.
‘Where would you ever eat activated charcoal?’ You may be asking
Well
Halloween eve is here y’all and if you want a black cocktail or cupcake, it was probably made black with activated charcoal! So please double check before consuming!!
#actually audhd#actually autistic#audhd#autism#actually neurodivergent#autistic adult#adhd#autistic things#actually adhd#disabled#disability#actually disabled#disability community#disabled community#spoons#spoonie#chronically ill#chronic illness#chronic pain#chronic fatigue#psa#meds
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in honor of disabled pride month, i want to give a shout-out to all disabled fat people who had to roll their eyes who have been told "you're not disabled, just fat" or "thats because you dont eat well/exercise"
#anti fatphobia#fat#fat acceptance#fat liberation#fatphobia#disabled#disability justice#disabled community
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I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:
Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself through if you were to “tough it out.”
If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.
If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.
If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.
You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?
Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes
It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once
You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.
Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3
#rants & reflections#chronic pain rant#chronic pain#disability advocacy#disability community#disabled community#disability rights#chronic illness vent#undiagnosed chronic illness#chronic illness community#chronic illness rant#chronic illness#chronic pain problems#undiagnosed chronic pain#fibromyalgia#dysautonomia#spoonies#physical disability#chronic fatigue#ehlers danlos syndrome#pots#postural orthostatic tachycardia syndrome#craniocervical instability#migraine#cluster headaches#tmd#heds#neck pain#back pain#chronic headaches
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New favourite thing to do is to remind people of how much they hated lockdown when they say they wish they could stay home as much as I do.
Like no you dont you were miserable when you were forced to stay home all day everyday for the good of your health. Thats my entire existence as a disabled person so pack it in.
#disabled#chronically ill#chronic fatigue#chronic pain#disability#actually disabled#chronic disability#disabled community#spoonie problems#disablity
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Why is it always up to disabled people to look after other disabled people. Why do able-bodied people feel no obligation to assist? Why do they throw the additional responsibility on disabled individuals. Why is their whole system built on isolating groups??
#spoonie#chronic illness#chronic fatigue#chronic pain#disabled#actually disabled#disabled community#spoonie life#spoonie problems#autoimmine disease
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No, you don't need to list your disabilities/illnesses in your bio or anywhere on your blog/profile.
No, you don't need to tell anybody anything when they ask you what your disabilities/illnesses are.
You have the say on what/how much you disclose about yourself. Nobody is entitled to your personal information.
#disability pride month#disabled community#disabled joy#disabled pride#cripple punk#mad punk#actually autistic
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Be nice and don't mock tumblr users that communicate differently.
Examples:
1.) Typing quirks
2.) No punctuation
3.) Random Capitalisation
4.) Long run on sentences
5.) Frequently misspelled words
6.) Missing spaces between words
7.) Repeating words and sentences
8.) Posts audios and videos instead of typing
9.) Express themselves through custom emojis
10.) Use an AAC (Augmentative and alternative communication) device
Some users have intellectual disabilities, use speech to text, struggle with grammar, have hand tremmers, have high support needs, etc.
Regardless of how they communicate and their reason why, they still deserve respect. They are trying their best.
#intellectual disability#disability#communication styles#disabled community#communication#aac user#aac device#autism awareness#disability awareness#typing quirk#disability advocacy#poor grammar#grammar nerd#actually neurodivergent#actually neurodiverse#its the neurodivergency#neurodivergent#neurodiversity#autistic#autism#disability community#neurodivergent community#judgment free zone#no judgement#adhd#adhd brain
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by the way...
PSA!
please do your best to not express disgust when a hypermobile person... exists. like, i'll bend my fingers weird, and the people around me will writhe and gag in disgust. referring to it as "body horror" is the worst part. it's not body horror. my body isn't horror. my body is a part of me.
yeah, it's a little freaky when you're not used to it, but please do your damnedest to keep it to yourself. it's incredibly humiliating to be on the receiving end of that sort of thing. it makes me feel like a monster or something less than human. be kind to those that aren't like you. that's the lesson at the end of the day, for all things.
thank you for your time 🙏
#heds#hypermobile#hypermobility#cripplepunk#cpunk#actually disabled#disabled community#hypermobile eds#hypermobile ehlers danlos#spoonie#ren.txt
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once again thinking about how fucked up it is that special ed used me and other disabled children as unpaid, coerced labor. i worked enough to be making $100 a week. i was "paid" in fake money redeemable only at the school cafeteria, which i worked at, and was forced to do things that distressed me. they gave us $1 a week, if they remembered to give it to us at all.
this was while i would sometimes go the entire day without eating because i didn't have the money to buy food and the free food was not sensory safe. we also worked outside the community - grocery stores, warehouses, shoe stores security tagging items. all under the guise of job skill development, we did $100 of labor a week without ever getting paid. and we were demeaned while we did it. and we were just teens.
so no, i don't want to hear about how special education is good. not with the way me and my peers were treated and taken advantage of. death to institutionalization, in all forms.
#softspoonie#disabled#special education#special ed#disability#disability rights#disabled community#neurodivergent#special needs#autistic#autistic spectrum#autism spectrum disorder#autism spectrum#autism#neurodivergency#ableism#sanism#systemic ableism#unpaid labor#labor rights#workers rights#anticapitalism#anticapitalist#working class#leftist#leftism
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