#ActuallyDisabled

[frecklenog]

i want you all to understand this.

insulin pens are very often used by diabetic children (or their parents, but they were very easy to use during the short time i was prescribed them when i was a child myself). they’re less cumbersome, produce less waste, and are far easier than pulling insulin from a vial with a single use syringe, as syringes are much more susceptible to air bubbles, which result in the diabetic not getting enough medication. i’m explaining this part because i know that some diabetic adults do also use them, and i’m sure that that’s true of diabetic adults in palestine with such scarce resources. when it’s life or death, you can’t really be picky.

the israeli occupation is now banning insulin pens from entering gaza.

lack of insulin results in diabetic ketoacidosis — essentially a very, very dangerous version of the effects of the keto diet. insulin is a key for the sugar from one’s food (both slow and fast acting, since all food has some carbohydrates, from nuts to potatoes to table sugar) to get from their bloodstream into their cells. without insulin, the body resorts to eating through its own fat stores rather than the sugar it cannot access and tries to flush the excess glucose that is in the blood through the urine. this results in weight loss, headaches, nausea, dehydration, blurred vision, abdominal pain, impaired mental faculties, and, if left untreated, will result in a coma, and eventually death within a matter of weeks. not “can.” it will kill you if not treated, and was largely considered a lethal diagnosis until insulin was discovered in the early 1900s and made readily available in 1922.

i’ve been in dka. admittedly, i was very young and have blocked much of it out. but i do remember that it fucking sucked. i couldn’t focus on anything, i was ravenous no matter how much i ate, and the room spinning to the point i felt like i was going to throw up became an increasingly regular occurrence. i was seven years old and wasting away like i was starved. i was dying. a few more days, and i likely would’ve gone into a coma and might not be here now.

to inflict that, willingly and knowingly, on innocent people, is nothing short of a crime against humanity, and violates the geneva conventions (item 2.a.ii. torture or inhumane treatment, including biological experiments and item 2.a.iii. willfully causing great suffering or serious injury to body or health). not that the israeli occupation cares, of course, as south african prosecutors have already extensively detailed their crimes in the icj, and this one in particular has already been committed near-countless times.

this entire occupation is a genocide, and this is only one more nail in that coffin. but, as a diabetic — as a human being who has been in that state and was lucky enough to have the resources to live almost another fifteen years (with the anniversary of my own diagnosis about halfway through next month), i can’t find the words to express my disgust and rage anymore. maybe it’s selfish to be so deeply impacted by this particular blow. i don’t know. but these people have done nothing wrong but be disabled in gaza, and as someone with the same disability, i know that no one deserves this, even if they have committed a crime (which, again, these civilians, largely children, have not). i will not fucking stand for it.

we need a ceasefire. we need an end to the occupation. we need a free palestine. now.

here’s a masterpost of how you can help.

EDIT: here’s a post on how to help diabetics in gaza specifically

[chronicbitchsyndrome]

there's currently misinformation going around tumblr about what the SSI marriage penalty is, so this is my attempt to explain it in plain language.

when you marry someone who is not on SSI, and you are on SSI, their income is counted as your income. your SSI will be docked according to their income from then on. if their income outstrips your SSI (maximum SSI is $914 a month as of 2023), you will be ineligible for SSI from then on.

if two people on SSI get married, their maximum SSI benefits are reduced by 25%. they no longer get SSI as individuals, they get SSI as a couple, which is 25% less money than individuals are eligible for.

collectively, these two processes are known as the marriage penalty.

some news outlets are currently (September 2023) incorrectly reporting a bill as removing the marriage penalty. this is false. the bill is changing the savings cap for married couples on SSI. the savings cap is the amount of money you are allowed to save in your personal account before being kicked off SSI. this is different from the marriage penalty, and outlets referring to them as the same are conflating two different laws that apply to SSI recipients. please do not assume based on mis-worded news articles that you can get married without losing your income and health care if this bill passes. you may be putting yourself in danger by doing so.

[crippleculture]

me: yeah i have about 8 or so disorders or conditions

someone who doesn't know what the word "comorbidity" means: wrow.... what are the chances of that....

[ethanthealien]

Things That Hurt When You Have Fibromyalgia That Should Not Hurt:

Blood pressure cuffs when doctors take your blood pressure.

A simple poke from someone else, especially on the tender points

Tripping over something - only mildly, not a bad trip. I trip over things and it hurts like a Bitch.

If I accidentally graze my arm or my body against a wall a bit or something, it also hurts like a Bitch. Again, I'm not talking about badly, I'm not being pushed into a wall or something.

Standing. Just for a few seconds. I actually don't know for sure if this is really a part of my fibromyalgia or actually normal for everyone. But it really fucking hurts to stand for even a few seconds.

Walking for even just an hour hurts. And the longer I walk, the worse it hurts.

The simple act of. Cooking. It hurts to hold the pots/pans, especially with one hand. I can't really lift pans/pots because I'm weak, but also it just Hurts. It hurts to mix things in the pots/pans.

(Others can feel free to add on).

Common Descriptions Of Pain When You Have Fibromyalgia:

Feeling like your whole body is bruised, or some parts of your body.

"Feels like I was in a car crash"

Stiffness, throbbing, aching, soreness, tenderness, fatigue. Your body feels exhausted, and not even necessarily that YOU feel tired, but your body feels tired.

"Feels like being stabbed with a knife"

"Like someone has taken a hammer and hammered all over my body"

"Like I'm hungover"

"Like I ran a marathon"

"Like perpetually having the flu", "Like you have a fever constantly"

“It feels like I’ve been carrying two huge buckets of water that I can’t put down.”

"Like I did a full body workout"

(Amongst many other descriptions)

Common Habits I've Developed Throughout My Life As A Result Of Having Fibromyalgia:

Constantly leaning against walls and frequently switching which foot I'm leaning on more.

Asking people if they wanted to sit down, or if they wanted a chair to sit down somewhere, because I thought they were in pain too. Them declining and me thinking "but doesn't it hurt to stand?? You've been standing for like 15 minutes, aren't you in pain??" They are not.

Constantly sitting down, and/or wanting to sit down, wishing I had a place to sit down.

Not really a habit, but I always end up freaking out a bit when I worry that I've hurt someone. I realized that I would constantly apologize to my girlfriend because I thought I hurt her accidentally (very mild things I mean, I'm not saying I fucking punch him or some shit lmfao), only for her to be confused and say that it didn't hurt. It takes conscious effort to remember that what hurts me does not hurt most other people without fibromyalgia or a different chronic pain condition.

I've had fibromyalgia for pretty much my entire life.

I believed that these things were normal for everyone.

I would look at people and watch how they'd do things like simply lifting up a box or the ways people talk about walking for hours just for fun and just not understand why they were doing it because that hurts?

Growing up, when my brother would ""lightly"" punch me, or my dad would poke me, etc., it always hurt really bad, and my brother shamed me (my brother was severely abusive in many ways, yes) and would go "oh my God, please, you're being dramatic, I didn't even punch you/poke you hard at all." I truly don't think he WAS punching me that hard, I just had fibromyalgia so it hurt like twenty times worse (I'm not excusing his behavior, by the way, I'm just explaining that things that would hurt somebody with fibromyalgia wouldn't hurt most other people without it).

I grew up constantly wishing that I could float so that I didn't have to walk or stand.

I was always aware that I had certain spots around my body that felt much more painful than other parts of my body, such as the sides of my arms, my hips, etc. I also just figured this was how it is for everyone.

If you relate to anything this post, I definitely suggest seeing a rheumatologist or a neurologist (I was diagnosed by a rheumatologist) and finding out the cause of your pain.

None of these things are "normal."

[letmeliedown]

⚠️URGENT⚠️ please help me and my cat stay housed

june 12 - i need to find accessible housing by the end of june. i've been trying for a full year to get help from government agencies, social workers, nonprofits, etc with no luck. i've been promised help multiple times that has fallen through. i can't access rent subsidies until i have a new lease. if i somehow manage to find a place i will need a deposit ready to go immediately. i am chronically ill from being homeless multiple times and i won't survive another.

goal: $1500 for my half of a deposit, asap

p*yp*l: thelandofyesterday @ gmail dot com. anything helps 🩵

if you're in western canada and think you can help with my housing search, please message me.

my cat Toast is 13 and chronically ill on multiple meds. i really want to keep her with me.

[norahjakobs]

Help a homeless family get to the end of Winter

Howdy folks, so after dealing with two different vehicle breakdowns which forced us to stay in a motel so my family wouldn't freeze to death, we've managed to get back up and running and deal with most of our bills. That said though, we're not out of the cold weather yet and we are incredibly low on funds for gas and food.

Anything helps us move forward towards warmer weather and better opportunities to get us a home after two years on the road. Thank you very much

0/400

Ko-fi here.

[rainbowchihuahuabunny]

Every day I am brutally reminded in one way or another that this society isn't built with disabled people in mind

[forevermore-lost-in-space]

Feeling better after using an aid/accomodation/treatment does NOT mean you're better and should stop using it. That is the DEVIL talking.

[xautisticsunitex]

For adults on the Autistic spectrum

- it’s okay to still have meltdowns/sensory overloads

- it’s okay to still watch cartoons

- it’s okay if you can’t cope with a full time job

- it’s if you have learning difficulties and do things at slower pace

- it’s okay to be in your 30’s and still live with your mom and dad or one parent

- it’s okay to not have many friends or none at all

- it’s okay to live a life Neurotypicals don’t appreciate

[ryanthedemiboy]

If you ever have trouble cutting pills:

There are scissors for pill cutting.

Pill cutters (the boxes with the blade in the top) were just crumbling my pills.

With the scissors, I cut all of my little 7mm / ��inch pills in half, and half of those in half again.

In under ten minutes.

That includes the learning curve, getting the light angles right, and putting them back in the bottle.

Mine are Auvon brand, for those interested.

[sewer-swan]

please help my disabled friend and its cat avoid homelessness

my friend is severely disabled, has been homeless multiple times and won't survive it again.

its circumstances have changed: the ONLY apartment available now that even comes close to meeting its access needs is incredibly expensive. there are NO other options; it can't stay in hotels or couchsurf due to life-threatening allergies and other support needs.

it can only apply for rent assistance AFTER getting a lease. its roommate should also be helping out but is looking for work and struggling to leave an abusive situation.

it needs $900 for a security deposit, $1800 for first month's rent, and ~$600 to rent an ozone generator and buy unscented cleaning supplies to make sure the space doesn't trigger severe illness. the last donation post raised $436. please help my friend get stable housing and keep its cat. they need to move NOW.

p*yp*l: thelandofyesterday at gmail dot com

436/3300

please donate or reblog if you can. thank you for reading

[chronicbitchsyndrome]

seeing a lot of discussion of upcoming food safety deregulation that doesn't provide any options beyond "don't eat pre-prepared food and buy from local farms."

therefore, i want this thread to be for tips, advice, resources, etc, for disabled people specifically to get through the upcoming food safety deregulation in the USA. please reblog and add on advice for minimizing upcoming risk when you can only eat pre-prepared and frozen meals, rely solely on SNAP/EBT for groceries, etc.

(i'll admit this is a bit selfish; i don't have any advice to start us off because i am a disabled person who relies almost exclusively on pre-prepared meals to survive and can't buy groceries if they're not SNAP eligible, so i would really, really personally benefit from tips and advice.)

stay safe and take care of each other!

[crippleculture]

Saying AI art is good cause it means disabled people can make art is an insult to disabled people, disabled people who can't hold a pencil can make art in so many different ways including mouth styluses and eye-tracking and theres alternative art forms and youre saying that's not as good or as valid as using a machine to steal other people's work and chop and screw it? Art is so much more than just making pretty drawings and disabled people of all types have been making art since the beginning of humanity.

[dilfgmancoolatta]

I bring a certain “disabled children are allowed to be angry at their parents for passing down genetic disabilities to them and forcing them to have to live with it their whole lives” vibe to the function that the “disability is a good thing” crowd really doesn’t like

[letmeliedown]

urgent - please help me and my cat not get evicted

my roommate has disappeared and blocked me on everything and hasn't paid rent. my landlord has very punitive late fees so there are already $50 of fees on top of the $675 for his half of the rent. i paid my half on time but i'm still responsible for it if he doesn't. he didn't give me any time to find a new roommate and i currently have $58 in my bank account for the month bc i just had to pay $339 for x-rays for my cat. i have to refill her meds tomorrow, november 4th (~$200).

p@yp@l is disasterlux at gmail dot com, please help

[norahjakobs]

Hello! Me and my family have been homeless living in our truck in Canada for nearly two years now. Winter is coming and our truck will not make it through it. However we have an opportunity to get ourselves a basement suite, which would mean we would be able to look into employment and finishing me and my twins education, and that this two year long nightmare would be over. We've got a couple hurdles to clear, such as

First months rent & deposit

Moving expenses

Food & Gas while we wait to get into the place

Phone & storage bill, which is about 500$

I am so thankful to everyone who has been able to help us in the past, and I am so thankful to those who can help now. A boost, or even 1$, really helps build the momentum that we need to make this push.

PayPal: DM

E-transfer (Canada only): DM

Ko-fi: Here

684.85/2300$