#(we do know- its because its a very misunderstood disorder)
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today on "that was probably ocd"
remembering a time when I was little where my parents were out to dinner and my sister and i had a babysitter and a friend with us. At some point during the night I "realized" my toenails were too long, but I didn't know where the clippers were.
I ran off and hid in a corner somewhere and called my parents 20 times with the house phone and cried when they wouldnt pick up. Because I couldnt clip my toenails. Because something??? Bad would happen if I couldn't clip them
#cw ocd#RANDOM I KNOW#how i went till 20 years old without ever learning i had it we'll never know#(we do know- its because its a very misunderstood disorder)
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What's the difference between nonverbal and nonspeaking?
I have posts about nonverbal autism, but none about the single topic "What's the difference between nonverbal and nonspeaking?" So this will be a handy linked blog entry for my pinned post.
All summed up: There is no real difference, it's a matter of preference. Please ask us what term we prefer and respect that choice. It's a sensitive topic because there has been a lot of discourse around it âđŒ
Alright. First things first: Nonverbal is a medical term not exclusively for autism. In the medical field, "nonverbal" simply means that your speech is extremely impaired or fully absent. Yes, there are many meanings of "nonverbal", but this is what doctors mean. Did you know that there's nonverbal cerebral palsy too? (External link)
But let's focus on autism. Autistics who can't speak are said to have "nonverbal autism".
Discourse #1 - the mind is intact
There are many reasons why some autistics never learn to speak. One reason can be non-acquired apraxia (i.e. not due to a stroke, TBI, Alzheimer's, etc.), which leads to limited motor control. If it affects the mouth and throat only, individuals "know what they want to say", but their mouth doesn't cooperate. They either struggle to get words out clearly/don't get anything out at all, or their mouth seems to have "a mind of its own" - they say things they didn't want to say. If apraxia affects the whole body, this goes for actions too. Either they can't make their body do what they want to do (e.g. they want to point at a ball but their arm won't move) or their body does things they didn't want to do (e.g. they want to point at the ball but instead their finger points at the floor).
As you can imagine, this situation is really unfortunate when a therapist wants to test your intelligence. You can't get words out, so they ask you to show them what a triangle is. You know what a triangle is, but your body does its own thing. You point at the circle instead of the triangle, and your therapist concludes that you don't understand simple instructions. They assume intellectual disability. You're misunderstood all your life and everyone thinks that you can't learn to communicate, that you don't understand language. You're frustrated.
Luckily, at some point some people realised that these autistics CAN learn to communicate and in fact are very capable and understand language just fine. That was when apraxic autistics talked about this misunderstanding online. They talked about how they were mistreated and underestimated, that people should always "presume competence". They coined a new term for themselves: "Nonspeaking". In their opinion, "nonverbal" doesn't describe their experience and makes it sound like they can't learn to read or write. "My mind is intact, I can make intelligent choices about my life!" (External link)
Sounds good? Well, it may be surprising to know that most of us on Tumblr who can't speak either don't mind being called "nonverbal" or actively prefer nonverbal over nonspeaking. How can that be?
Discourse #2 - the mind isn't always intact
There are other reasons why some autistics never learn how to speak. Most of the time, in contrast to "nonspeaking self-advocates", we do struggle to understand language and our mind is not "intact". We have language disorders, brain damage, slow processing speed, often ID. The latter is why most of us aren't on any social media. My ability to communicate isn't average for us, it's an exception!
When the "say nonspeaking" wave reached Tumblr, I think at first most of us who are on social media liked that idea. We spread awareness about how terminology is a preference thing, that "nonspeaking" is about overcoming years of mistreatment and about empowerment. That some of us think that "nonverbal" sounds like we can't communicate and can't understand language, when that's not true. But, as I said, most autistics who never learned how to speak aren't online and therefore can't participate in this discourse. "Nonspeaking self-advocates", on the other hand, are on social media and love to participate. But they are a minority among those who can't speak.
The result? At some point it got a little ableist. The mindset "We are intelligent and understand language" turned into "You guys with ID and language disorders make us look bad" and THAT turned into speaking over and ignoring us. Or harassing even. "You have to call yourself nonspeaking, otherwise you're a bad person!" and so on. We responded "No, you say you're intelligent and your mind is intact. Good for you, but ours isn't. You erase our existence and we don't relate to your experience. We don't identify with your word." It was worse on other platforms, at some point the term "nonspeaking supremacist" was coined similar to "aspie supremacist".
Discourse #3 - free interpretation of a term that's NOT loosely defined??!
And last year, a really strange thing happened: Speaking autistics somehow mixed up the "To me personally, nonverbal sounds like I can't learn to communicate and don't understand language at all" and incorrectly informed others "So there's a difference between nonverbal and nonspeaking. Nonspeaking means that you can't speak and nonverbal means that you also can't communicate in other ways".
They took it as a fact and informed us that we "by definition" actually are nonspeaking because we can communicate via text. đ€Šđ»ââïž
I repeat: Most of us who can't speak aren't on social media. So this misinformation again spread everywhere because we weren't enough, we weren't loud enough. We can't ever be loud enough because, exactly: Most of us aren't on social media.
Now we weren't harassed by fellow nonverbal/nonspeaking autistics, nope, NOW suddenly speaking autistics from ALL over the world tried to inform us that we shouldn't call ourselves nonverbal - NOT aware that by now "nonspeaking" got a slightly ableist connotation in the process đ”
Here's an example of how wild things were last year...
And that's not enough: Suddenly everyone assumed that autistics who can't speak due to apraxia MUST call themselves nonspeaking because that's where the movement started. No, even apraxic autistics sometimes prefer "nonverbal", and they have every right to do so!
As things are now...
So, that's why most of us on Tumblr prefer nonverbal. Oh, and by the way:
Whenever someone isn't aware of this and makes a "To me, nonverbal means..." post, all I think is "Oh, not again, please not again", and I see this war flashback meme in my mind's eye đ
Every "To me, nonverbal means..." post that ends with "And that's why I prefer nonspeaking" has the potential to get loud and start this harassment and misinformation all over.
Every new post that tries to define nonverbal and nonspeaking could start this all over again.
Because nonspeaking supremacists are very very loud. And speaking autistics are usually very very uninformed about us. And most nonverbal/nonspeaking autistics aren't on any social media.
#long post#thanks mum for helping me write SO much at once - it's been hours and I have no headache đ#...yet đ
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Heyo! So I happened to see your recent ask response regarding Zenos randomly, and, honestly, I'm kind of curious on what people miss about his character! I'm not a personal big fan of him(ngl he kind of creeped me out with his, projecting himself on the wol it felt like? Note I say that as a WHM main who plays as truly heroic WoL(s) most of the time admittedly, so most of his stuff made me go no? alot XD I don't mind people who do like him tho! They're cool!), but I'm interested in understanding him better if possible, cause I know I miss things that others don't and I don't think I've seen anyone explain his intricacies without being somewhat rude about it, but you explained what you did without coming off as that. So I'm kind of curious on that essay you almost wrote if you'd be alright writing it XD (Sorry for being on anon, I am, very shy qwq)
In case youâre not familiar with what this anon is asking about, this is in response to my answer to this ask HERE. Feel free to go read that one and come back!
So, I first want to say thank you for being brave enough to reach out to me about this, even on anon!! Iâm really glad that you didnât find my comments to be rude, as that is the very last thing that I would want! If anyone did find me too abrasive in my previous post above, then I wholeheartedly apologize for that. I would never want anyone to be afraid to reach out to me because I came off as rude at some point, so I appreciate you letting me know that you didnât think I was. đ
Alright, now letâs get to the topic at hand: Zenos, and why I truly think that he is the most misunderstood character in FFXIV.
Zenos: The Most Misunderstood Character in FFXIV
((I wrote way too much, so itâs under the cut.))
Alright, so letâs start with what I have seen as the popular take on Zenos that I see as wrong: A lot of players see Zenos as a one dimensional character that has no depth, and doesnât have a character arc in which he grows as a character. They see him as the annoying antagonist who has a battle boner for the WoL and thatâs it. They only see his bloodlust and nothing else. They donât think there is anything else to him, and thatâs where I must strongly disagree.
So, how is he not a one dimensional character? Well, thatâs because he really is a complex character, but you need to be paying close attention to what Zenos is actually saying and what his actions are throughout the story.
One can piece together Zenosâ complexity purely from watching the cutscenes, but just in case anyone is curious about going into more depth on his backstory, then I highly recommend that you go read his side story from the Chronicles of Light book entitled âThe Hunt Beginsâ. It shows how Zenos was raised, and it reinforces why he thinks the way that he does.
Without going into his backstory too much, for brevity's sake, Zenos is actually a prodigy, someone who was born with not only incredible strength, but also incredible intelligence, and you know what happens when gifted kids don't get enough of a challenge? Yup, they get easily bored. So keep that in mind as we move along. Now, mix that boredom with a good dose of Anhedonia, or the inability to experience pleasure or joy. Now we aren't sure if he was born with Anhedonia, or if he acquired it through some mental health condition, such as PTSD, depression, etc. I'm no psychologist whatsoever, so I'm not here to diagnose Zenos with any particular disorder, but it is clear that he suffers from the lack of feeling joy or pleasure in his life.
This is actually what characterizes Zenos the most when we first are introduced to him in 4.0; he is suffering from Anhedonia AND Ennui, which according to Webster's Dictionary, is not just a feeling of weariness and dissatisfaction, but its a profound sense of boredom that arises from feeling jaded with one's life.
Zenos is suffering from a lack of joy and pleasure in his life, seeing the world as meaningless and dull, and he has found only one sole pleasure in all of it: The Hunt*. But what he means by The Hunt, is that he wants to fight the most challenging foes, challenging enough that he must put his all into the battle and be pushed to the brink of death. Only this kind of challenging battle will give him any sense of joy at all. For him at this point, there has been nothing else which has brought him joy, so he seeks out this sole pleasure.
And THAT is what Zenos' motivation is. He is not mindless in his pursuit of battle. His bloodlust stems from the desire to feel some kind of happiness at all, and unlike what some might think, not any foe will do. Zenos does not fight mindlessly against anyone at any time. That is not true. If an enemy is no threat to him, unless they purposely get in his way, he will not fight them.
This is true from the first time you see Zenos on the battlefield. At Rhalgr's Reach, Zenos sought out only the strongest fighters there, and two of them (Lyse and Y'shtola) got in his way first, and he defeated them easily. When he fights the WoL, the one who he has heard so much about, and definitely the strongest opponent among them, he becomes curious and hopes that we will give him what he wants. But in that first battle with him, he swats the WoL away like a fly, and they pose no challenge to him at all, to which he calls them "Pathetic", and then he immediately leaves, ultimately disappointed.
Note that Zenos had every opportunity to kill Lyse, Yâshtola, and the WoL if he wanted to, but he doesnât. He leaves them alone after he defeats them. Thatâs not the sign of someone who is so sadistic that heâs only out for blood. The fact of the matter here is that Zenos is trying to feel something from battle, something that he has never experienced before: pure joy.
Zenos doesnât experience this joy until he fights the WoL again several times; first he gets just a hint of it, a tiny spark, when the WoL breaks a piece of his helmet off, and he feels it even more later on when Zenos fights the WoL in the Ala Mhigan throne room. This is when Zenos goes into his monologue before he releases and takes over Shinryu, and note that the joy and pleasure he is describing seems to have a sexual tone to it, which I promise I have a point to make about that in a bit.
After the battle with Zenos as Shinryu, he finally feels the joy that he has never felt in his entire life, and because he doesnât think heâll ever feel anything like it ever again, Zenos takes his own life, happy to have played a bit part in the story of his âfirst friendâ.
But as we know, Zenos doesnât stay dead. He finds himself alive once more, and he has a singular goal: to feel that pure bliss, that overwhelming joy that he felt when he fought the WoL in the Royal Menagerie in Ala Mhigo. From ShB through EW, Zenosâ goal doesnât change, but he does change in his understanding of what it means to have a âfriendâ and how he can feel happiness.
During EW, Zenos has several scenes where his understanding of his feelings seems to grow, and though that sexual tone to his descriptions of what heâs feeling towards his battle with the WoL is still there, I would argue that over time, it seems to have more and more of a romantic tone to it as well. And with this shift in his tone when describing his feelings, he also seems to question his understanding of it all.
Zenosâ character growth is the whole point of two very important scenes: the Scions and Jullus encountering Zenos in Garlemald while fighting the blasphemies, and later when Zenos goes to the Royal Menagerie alone. The first of these scenes reinforces the themes of EW with Zenosâ philosophy of life, but it is also the first time that someone says something that makes Zenos question his beliefs.
Alisaieâs words to Zenos hit him hard, and Zenos goes back to the Royal Menagerie, to the scene of where he had his one transcendent moment, his one time in his life when he felt joy, pleasure, and happiness. He realizes in this moment that, whatever you believe Zenosâ true feelings are for the WoL, which I personally argue that it is love that he feels for them, but regardless, Zenos cannot continue to be selfish and only think about his own wants and desires. He must act selflessly, and assist in the WoLâs battle against the Endsinger and stop the Final Days, in order for the WoL to give him what he wants in return. He finally realizes that itâs this give and take, this reciprocation between people, is the key to building bonds with others⊠Zenos finally learns what it is to be a âfriendâ to someone. After this moment, Zenos goes to Sharlayan to find a way to help out the WoL in their mission to save the star, and to finally be a friend to them.
And you know what that is? Thatâs growth. Thatâs having a character arc. Thatâs Zenos in all of his complexity. Which I still say that itâs perfectly fine to not like his character, but I only wish that people would not like him with a clear understanding of what he really is, and not what others think he is.
Alright, I think I have blabbed on long enough, but I hope that I have answered your question anon! If you need me to clarify anything further, please donât hesitate to ask me! Thank you so much for your ask anon, and thank you to all who have read this! đ
#asks and replies#anon asks#zenos galvus#zenos yae galvus#zenos viator galvus#I think I love this man too much#I couldâve written more but I realized how long it is already
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God how I wish there'd been articles like this years ago when people were tripping over themselves to deny any and all struggles asexual people face. The amount of times people demanded "proof" when we talked about our experiences. Well, there's certainly more research being published nowadays, if that counts as "proof". I hope they read it.
Today âasexuality is widely accepted as a sexual orientation in the literature,â Hille says, but cultural awareness remains in its infancy, especially compared with other orientations under the LGBTQIA+ umbrella. Saying you don't experience sexual attraction is still like saying you don't eat, Hille explains, and âif you don't eat, there's something wrong with you, and you're hurting yourself.â Asexual people sometimes get this message not just from family and acquaintances but from their health-care providers. Shelby Wren, a health equity researcher at the University of Minnesota, published a study in 2020 in which 30 to 50 percent of respondents who had disclosed their asexuality in a medical setting said a therapist or doctor had attributed their asexuality to a health condition. The proposed diagnoses included anxiety, depression and, in one case, a personality disorder. âYou don't know what's going to happen when you disclose your sexual orientation,â Wren says. âAnd for a lot of people, that stops them from talking about things that could be relevant to their health care.â
[...]
Refraining from disclosing one's asexuality to a mental health provider is often a âvery rational decision,â Chasin says. âIt's always much worse to be actively rejected and misunderstood.â For instance, asexual people are sometimes subjected to conversion therapy, a practice aimed at changing someone's sexuality or gender identity. It is banned for minors in 22 U.S. states because of its well-documented and extensive harms, including increased rates of suicide. A 2018 U.K. government survey of LGBTQIA+ people found that asexual respondents were the most likely to be offered conversion therapy and as likely as gay and lesbian people to receive it. A recent survey by the Trevor Project found that 4 percent of asexual youths in the U.S. were subjected to conversion therapy, on par with bisexual respondents. On the legislative level, bans on conversion therapy should explicitly reference asexuality, Benoit says. So, too, should professional associations of health-care practitioners, says Samantha Guz, a social work researcher at the University of Chicago. âAsexual people are made to be so invisible in our society that I don't think just having a broad call against conversion therapy is specific enough,â Guz says.
Even well-meaning doctors might unwittingly harm their patients. To a clinician, a patient who is worried that they should feel more sexual desireâand who does not know they are simply asexualâmight initially look similar to patients who want sexual intimacy and could benefit from treatments aimed at increasing or restoring desire. Treatments for certain types of sexual dysfunction do help some people whose level of sexual desire leaves them distressed and unsatisfied, Brotto says. For some people, though, this distress may be coming not from an intrinsic desire to want sex but from external pressures such as partners or society as a whole. âI have worked with folks where it's taken us many, many months for the person to really understand how well asexuality fits with their identity,â as opposed to having an issue that is rooted in a health problem or a situational condition, Brotto says. Most doctors, though, don't know that such a distinction exists or is necessary, she adds.
#asexual#aromanticism is not discussed much here fair warning#can't wait until research catches up with that as well#cw conversion therapy#cw medical malpractice#cw aphobia#ref
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So I saw this post going around a bit ago saying that it was endo/nondisordered systems that spread support for osddid systems and pushed for more research of traumagenic systems and idk how true that is considering back then, systems were under the MPD dx before they changed the dx in the DSM. MPD was not the same thing as an endo system, but rather most likely either a traumagenic osddid system that didnât have a proper understanding bc psychologists didnât get it yet or a person w bpd schema modes that people misunderstood as an osddid system. (Not to say that systems with bpd donât exist, weâre one such system, but the two are not the same thing). Idk. I feel like itâs in bad faith for endos to say âweâre responsible for why you have research at all btwâ. Iâm almost positive itâs just regular traumagenic systems who did not have the same knowledge and research we have now pushing for that/fighting for ourselves.
I'm not sure if I'm misreading or misunderstanding, feel free to correct me! There's a few points I'm going to touch on, though, just to cover all the bases. Settle in.
This is actually a really common myth I see from endos-- that MPD either included endogenic systems, and/or that MPD didn't require distress or trauma, and that the change to DID excluded all these systems by... requiring dysfunction? This chart is often used to showcase the differences between the disorders and how the disorders became "more restrictive", excluding systems from the diagnosis.
Which is a weird argument-- If MPD supposedly pathologized all plural experiences by not including distress or trauma in its criteria, wouldn't you hate MPD more than DID? And yet there's a HUGE community of systems that prefer the MPD diagnosis over DID for weird reasons.
However.
The truth of the matter is that MPD and DID are the exact same disorder, renamed. Even as MPD, it still required trauma and dysfunction for diagnosis (it even still talked about it being a childhood disorder), but even back then, no one read the whole goddamn entry for MPD. From the DSM III.
It's a very frustrating running theme.
The only thing that changed was the name, and it wasn't changed because they didn't believe in the diagnosis. All five were renamed to reflect a better understanding of the mechanisms behind the disorder and dissociation in general. I guess they didn't believe in any of these disorders.
What's really interesting is the changes that were made from the DSM III to the DSM III-TR (PDF). Here's a few choice changes for those on a phone.
(Most interesting to me are the changes to the amnesia criteria)
As you can see, the changes actually significantly expanded the criteria to include more presentations.
The DSM IV is where the name was changed to DID. In less than two years, the DSM IV TR would be released where all of the "cautionary" statements about overdiagnosis of DID would be removed, and we all know what the DSM 5 looks like.
SO.
What were endo/nondisordered systems doing around this time?
Why, being fucking douchebags of course.
The DSM IV was released in 1994, and in 1995, Astaeasweb was started. They were the first major group in this clusterfuck. They were the first to describe "non disordered" plurality, and soon after coined "natural multiplicity".
This was the start of the endogenic movement.
And all they did during that time was call for the boycott of MPD and DID.
"This DID boycott in particular held significance because it caused extreme harm to people with DID/OSDD. This boycott was intrinsically tied to both the anti-psych and natural multiplicity movements. Boycotters often held the belief that DID/OSDD werenât real and should be removed from diagnostic manuals. Pages on natural and empowered multiplicity tended to go hand-and-hand with boycotting the DID diagnosis as well as boycotting psychiatry or psychology. As a result, this boycott impacted both societyâs and psychologyâs perceptions of DID/OSDD, and left lasting effects on the DID/OSDD community."
Pluraldeepdive, links and archives in post, check them out, they're an amazing resource.
It was around 1998 that the divide began between "empowered multiples" and "survivor multiples". This is where the real ableism started.
The 2000s introduced the "Healthy Multiplicity" movement. "The purpose of this movement was to establish that plural experiences were not pathological. Participants in this movement often insisted that childhood trauma or abuse could not cause plurality or multiplicity." [x]
This is where we start to see the rise of what is now the endo community, built off the boycott and definitions that were continually being twisted until they lost all meaning.
It went from, "MPD isn't a disorder," to "trauma doesn't define us," to "you don't need trauma at all".
And so it goes, on and on, until today.
A lot of these groups didn't call for more research and they twisted research that was already in use. In fact, in 2003, Pavillion, one of these groups, set their sights on the DID wiki. "The Pavilion organization used a system called action alerts to keep track of various DID-related events or articles. Pavilion members would then coordinately inject controversy and natural multiplicity theories into these spaces."
So in actuality, they were actively fighting and hindering research at the time.
I don't think it matters whether they were actually DID or not-- the point remains that people in these movements had nothing to do with the research we have now, and are in no way responsible for the scientific advancements we've seen.
It's in very bad faith for them to say that.
This has gotten long! I hope I covered everything. Feel free to reach out :)
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hey abt your tags on the DID survey
I would say we were a little thrown off by them? The tone just came across as talking about systems like theyre some weird misunderstood creature that needs to be experimented on, and not you know, people with thoughts and feelings.
Being interested and having an open mind is good! I'm not saying it isn't, and I know this probably comes off as being very policing
Its just important to be careful how you talk about other people, especially when we have a history of being the "other"
We're genuinely not mad because I'm pretty sure this came from a super good place, I just thought I'd let you know!
Thank you!!
Thank you for sending me this! I did not consider how the tone of my comments could come across but I also think you are misunderstanding what an anthropology study would be but also
1. that is super understandable because anthropology is not super well understood by non anthropologists
2. anthropology has such a bad history when it comes to studying marginalized communities
3. i am so entrenched in the anthropology community so i definitely did not consider how what i said would come across to people who dont have the same set of knowledge that i do and
4.i did not like proofread my comments so i totally get that i may have written my thoughts in a way that was othering which I really didn't intend! so I am sorry for that
im including like a bunch of information about my like thought process and like a further explanation of what i mean under the cut my thoughts just ended up getting super long so i didnt want to like clog up peoples dashes
TLDR: I totally understand how the term anthropology study comes across as othering and seems as if i am reducing people with DID to some sort of oddity that needs to be studied, and I am sorry for that, I should have considered how it would be understood. What an actual anthropology study would entail (or at least a good anthropology study) is just asking people with DID questions about their lives and whatever other topics they want to talk about with the end goal of giving the people who were apart of the research as much control and say over the research questions and study itself if that makes sense.
when i say anthropology study i mean that in the sense that anthropology is the study of communities and culture. anthropology has been used in the past as a tool to oppress people of color, women, people with mental illnesses, and pretty much every other community that is not straight and white and male, but that is slowly but surely changing!
I'm currently doing a masters degree in anthropology so I have read a lot of academic anthropology literature and I have read studies on people with mental illnesses and psychiatric disorders but I haven't read anything about people with DID and so i think that is an area of research that could be expanded on
when i say it would be interesting to do an anthropology study on people with DID what I sort of have in mind is basically it would just consist of asking people with DID questions about literally whatever. anthropology is meant to be a study that at the end of the day helps the study group in whatever way they want or need, it isn't (or at least it shouldn't) be entirely motivated for academic achievements if that makes sense
if I were to do a hypothetical anthropology study on people with DID my first step to begin that research would be to reach out to people who have DID and 1. ask if they want me to do a study at all (if they don't then there's no point in me pushing for it because the end goal of my study should be to help them in whatever way they want), 2. explain to them the ways anthropology could help them if they want a study to be done at all and figure out if what they want is compatible with the discipline of anthropology
just thinking of some like research topics off the top of my head (and mind you this is just me spitballing without going through the actual research process which would be much more intensive and would involve me you know actually talking with people with DID to figure out what they want specifically so this actual research question would not be applied in an actual study but im just giving you this as a rough example of what I mean) but a research question could be how are people with DID living in the modern 21st century world? I would then ask them questions about how they live their life, what they feel about the way they live their lives, what struggles they face, what would make life easier for them, and essentially literally whatever else they want to talk about.
I literally cannot stress enough how whatever research I would hypothetically do would be entirely up to the people I'm interviewing they would literally be entirely in control of the entire thing. And also any hypothetical research would only be conducted if people with DID wanted me to, it would be entirely dependent on their wants and needs, my job as the anthropologist would just be to document what they are saying and helping them navigate the world of academia to help them achieve whatever goals they want
If you do end up reading all of this I hope this was all understandable and straightforward! If it isn't then that's on me and I will rewrite it to be easier to understand. But I really do hope this makes sense and if you have any more questions for me or really anything else to say to me about things I could have said better or with more consideration my ask box is always open and also im pretty sure my dms are open too so you can always message me there!
#bean babbles#answered asks#anonymous asks#i really hope this makes sense#i dont have to spoons to look over it because im in so much pain rn#but also if it doesnt make sense please let me know and i will do a better job explaining and also apologizing
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I'm still new to discovering I have a system (just got over that denial bridge a few weeks ago, and have been struggling mentally since (and before) then), and the system discourse online has been very... distressing? I want to lean into safe communities meant for learning about or exploring (my own) CDD, and find some sort of comraderie.
I don't understand what's happening really - I don't exactly understand endogenic systems, but I also don't understand why people would be anti-endogenic. It just seems... hateful. And purposeless.
I've seen tons of anti-endo posts (before I learned what endo meant) that made me terrified to lean too heavily into traumagen spaces (if they could say this about awful stuff about one group of people, what could they say about me? *it is very much a learned response from trauma, but it is what it is I guess*
I guess the point is to ask if you were ever anti-endo, and what has it been like since you started making pro-endo posts? I know it's silly, but I'm trying to figure all of this out and I'm terrified of receiving hate for refusing to hate someone because of how they identify
Thanks (and sorry for the book lol)
- Host
First I want to say it's not silly at all!! Being a newly discovered system is overwhelming and it's normal to want to have a community of those who understand you. It's also normal to want to avoid being harassed and fakeclaimed. I'm happy you reached out! This reply is going to be kinda long (sorry I tried to keep it short) but I did my best to address all your questions. I hope this helps! And I wish you the best on your new journey of self discovery!!
Second I would strongly recommend that you stay away from syscourse if you can. It's really draining and overwhelming even for us and we have a pretty good handle on our system. As a newly discovered system it's going to be even worse.
Unfortunately I don't have any specific recommendations for cdd focused spaces which accept endos (if anybody knows one put it in the replies!) but I will say that pro endo servers, even if they aren't focused on cdds can still be amazing for finding comradery. There will be other cdd systems there and you might find some endos who you relate to as well. Also if you want my dms are open! I'm just one person (well, not exactly) but I'd be happy to answer any questions you might have and suggest ways to help you figure out your system more!
As for why people are anti endo I think it mainly comes down to two things. First is that they think endos are saying they experience the same thing as cdd systems except without the trauma. Endos do not generally claim this*. Second is that people who've spent significant amounts of their lives under attack sometimes they start to see threats where there aren't any.
These systems have debilitating mental illnesses that are criminally misunderstood and romanticized. For them being a system is intrinsically linked with being deeply traumatized, they are not separate. So when they see a community of people claim to have systems but not trauma, they get upset. They feel like that's not possible, because it isn't possible to be a system like *theirs* without trauma. They get frustrated because they think people just want the "quirky" parts of their disorder without the painful ones. That's why they always say endos are faking did, because they can't imagine a system that doesn't have a cdd. They think endos are just people who want to feel special so they claim to have system. Once endos started becoming a part of the community, anti endos felt invaded because now there's a bunch of systems who don't have cdds in the space they thought was for them (keep in mind cdd focused spaces still exist, its just that the plural community as a whole isn't 100% focused on us anymore).
Once they feel invaded, they feel like they need to defend their community and they do that by harassing and fakeclaiming endos. Then they act like psychology is on their side (it isn't) and after that it's just increasing amounts of digging their heels in.
I think it mostly comes down to the misconception that endos claim to have did without the disorder part, and then in trying to defend themselves they turn off critical thinking and just do whatever they can to get rid of the perceived threat.
*There is a world of difference between the experiences of most endos and most cdd systems but it's not black and white. At this point the term "endo" just means anybody who is not completely traumagenic which includes mixed origin systems. Also, some endogenic systems develop cdds after being exposed to trauma, the only difference is that they were plural beforehand so they're still endogenic. There's others too. The main point is that the plural experience is incredibly personal and doesn't fit well into boxes, categorization is useful and it's important that people understand that in general there are real and big differences between endogenic plurality and cdds but there's no hard lines here.
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While reading the blackwater arc I couldnât help but notice a surprisingly clear allegory between the Venerable of Empty Words and OCD. Whether intentional or not, it was so prominent I wanted to write a (not so) little analysis about it. So letâs get right into it!
First: what is the Venerable of Empty Words? We get a fantastic concise description here:
âThe Venerable of Empty Words draws power from fear in peopleâs hearts. With power, it manipulates its victims to realize its predictions and then makes new ones; the cycle continues until the person is thoroughly broken and their mind is lost to despair. The more unsteady oneâs heart, the more disadvantageous their position; the more one has, the more one fears loss.â
To rephrase this in terms of OCD, simply replace âThe Venerable of Empty Wordsâ with âOCD.â Purposeful or not, MXTX was describing OCD very well here. If anyone reading doesnât know what OCD is, considering how misunderstood the disorder often is by people who donât have it, itâs not just a disorder where you wanna clean a lot. It is when a person may have unwanted thoughts & fears (which are ego dystonic I might add) that disturb the person with OCD. This then results in compulsions which come in different forms that the person may do in response to the obsessions in an attempt to be rid of them. For example, a person might fear they could hurt their family, so theyâre unable to handle knives. This is a pretty basic and general definition/example.
OCD is also sometimes known as a doubt disorder. It draws from the doubt/fear in peopleâs hearts. It manipulates oneâs brain into believing their intrusive thoughts. If one point of focus isnât enough it could establish multiple new types of obsessions. Just reading âthe cycle continues until the person is thoroughly broken and their mind is lost to despairâ was like⊠ok holy shit bro thatâs just what it feels like. The terror that the thing you fear most is true. Looping over until you canât take it anymore. This definition of the Venerable of Empty Words also focuses on the heart, and in many ways OCD attacks what people value. âThe more one has, the more one fears lossâ a sentiment that can be applicable to things like violent intrusive thoughts surrounding oneâs loved ones.
We also get to see a few examples of how the Venerable of Empty Words attacks people. In a general sense, itâs described as:
âIf someone was happy, in their moment of joy, it would appear to dump a bucket of cold water over their headâa killjoy in the most literal of terms.â
OCD interrupts those who have itâs happy moments in their lives. It feels as if thereâs never a moment of peace. OCD is everywhere. The very concept of the Reverend of Empty Words stalking Shi Qingxuan all her life wherever she goes, hiding in the shadows, lurking, matches the persistent fear OCD gives someone. No matter how hard you try, you can never seem to escape.
In a more specific example, the Reverend of Empty Words tells Shi Qingxuan:
âJust wait! Your closest family, your best friendâtheyâll all die a disgraceful death because of you!â
Does this not sound like a blatant intrusive thought? Thereâs no reasoning why, but now you have a new fear that your loved ones are going to die. It isnât just that her closest family will die either, but that theyâll die because of him. The person with OCD believes the fault lies with themselves. Thus the obsessions over this intense terror.
What follows are the compulsions. When Xie Lian gives an example of when he witnesses the Venerable of Empty Words attack someone he describes:
âThe wealthy merchant jumped to his feet in a rage, set on catching the one who would say such a thing, but that person ducked under the table immediately and disappeared into thin air!â
The merchant is quick to get upset at the Venerable of Empty Wordsâ words. He lashes out trying to stop him, but fails. When you get an intrusive thought you do a compulsion to try to be rid of it, in an almost instinctual way. You want to focus on the horrible thought⊠how dare my brain say/accuse me of this! Get rid of it! But it still runs free.
This is because the way to get rid of the obsessions and thoughts are the same way you get rid of the Venerable of Empty Words. Xie Lian lists three ways to deal with the Venerable of Empty Words as:
âThe first is to not let it open its mouth; cut it off before it can speak. This works in the moment but not in perpetuity, so you need to remain vigilant at all times.â
âSecond, if it should speak, donât let the subject of its curse hear. Anyone would be frightened to hear someone cursing them at the height of their joy, and that creature feeds on fear; it revels in it. The more frightened you are, the happier it becomes.â
These first two are the lesser effective ones. In the first, one can try to shut it up, but they arenât fully rid of it. Trying to block out an intrusive thought sometimes might work in the moment but theyâre bound to come back. An uncomfortable vigilant feeling remains along with it. Second, not allowing someone to hear the words is equivalent to not letting someone get intrusive thoughts, which sounds like just not having OCD to me.
The third solution is the best:
âHowever, if you pay no mind to however it tries to curse you or rain on your parade, then it canât do anything to you. So, the most effective method is the thirdâsurround yourself with happy occasions and ignore it completely. Let it choose to speak or remain silent, but forget everything it says. Make yourself stronger and continue down your path according to your own will, and not in accordance with the tragedy it predicted for you. If it can draw no despair from you, it will eventually leave on its own with its tail between its legs⊠Of course, it could still very well be lying low, waiting for its next chance to strike.â
Part of having OCD is accepting the intrusive thoughts that come to you. The Venerable of Empty Words/thoughts/fears may remain but you must learn to accept and not pay too much attention to them. To truly treat them as âempty words.â An extremely difficult task. And it doesnât ensure that they wonât come back either. But you cannot wallow in it because that only makes things worse. Thatâs quite literally the obsessive part.
Xie Lian even goes on to describe the third method as such:
âAlthough the third method was the most effective, it was also the most difficult to accomplish. After all, who in the world could truly build such a heart of stone and feel not a single ripple of fear?â
Like yes!!! Who!??!! Itâs an undeniably difficult thing to do. The reason why OCD is such a terrifying disorder is because humans do not have hearts of stone and do not live without fear. People with OCD are especially susceptible to this. Just as those who are described as âsuperstitiousâ in the novel are more vulnerable to the Venerable of Empty Words.
The Shi family tries something different from the three methods, although most similar to the second, by attempting to disguise Shi Qingxuan and be rid of the Reverend of Empty Words. Here we also have a more fantastical element where Shi Wudu can help his sibling escape the grasp of the Reverend of Empty Words by swapping her fate and getting her to the heavens. Unfortunately, people with OCD do not have this opportunity. And regardless, it doesnât work for Shi Qingxuan at all. You canât play dress up and run away from a disorder, you have to let the distressing thoughts come and die away.
As a bonus Xie Lian has a very interesting case. He manages the Venerable of Empty Words with his horrible luck.
âEither he experienced no happy occasions and [the Venerable of Empty Words] waited fruitlessly for years, or he had already grown accustomed to all the bad luck and suffered neither fear nor anxiety. His luck was so bad it defied the imagination of the Venerable of Empty Words, so Xie Lian thought nothing of its curses, and in fact treated them as well-wishes or daydreams.â
In some tragically comedic manner, Xie Lian has become OCD-proof. We can take Xie Lian as an example of someone without OCD. The Venerable of Empty Words/intrusive thought comes to him and he finds a way to defeat them by being like ok lol. sounds good to me! These thoughts can come to him and he can accept them and move on. Even though Xie Lian might be a special case where he can do this because things are naturally bad for him, his capability to move on at all is a huge feat for someone with OCD. And in turn the Venerable of Empty Words has no choice but to give up. To literally die of starvation. The intrusive thoughts leave him. He never has to obsess over them or have compulsions in response.
Shi Qingxuan also has a slightly different case considering He Xuan devours the Reverend of Empty Words as a part of his revenge plan which makes things more complex, but without a doubt she exhibits symptoms of OCD in the same ways I described before. She is a target of the Reverend and is aware of her own vulnerability towards it. Although she spends a good amount of time running away, when the blackwater arc crew set out to deal with it, she responds obsessive-compulsively upon hearing the Reverend of Empty Words speak.
Essentially, the Venerable of Empty Words is to its prey as OCD is to those suffering from it. Whether or not MXTX intended for this to be a little allegory to those with OCD Iâll probably never know, but Iâll be damned if the allegory isnât there.
#ok WOW that was longer than i thought it was gonna be. a lot of quotes lol#but ive been sitting on this post for months.. over a year maybe lol#kinda funny that the venerable of empty words is better accidental ocd rep than anything else ive seen in media#still cant decide if i hc sqx as having ocd either but like the jinx bitch itself? ocd manifested!#actually sure she has ocd too <3#if it means anything too: i told my analyst abt this and she was like wtf. they're so similar#tian guan ci fu#tgcf#shi qingxuan#xie lian#he xuan#b.txt#venerable of empty words#what else do i even tag this idk
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May 10 - A Cathedral in France
The Avignon Cathedral is a looming stone building that stood beside The Palaise de Paipes, translated in english to The Palace of Popes. Atop the cathedrals bell tower is a looming statue of the Virgin Mary. Staring down at the city, it is near impossible to hide yourself from her judgemental gaze...
I have a complicated relationship with religion. I believe in a higher power, I think, but more out of a need for comfort than any real kind of conviction. The challenge, though, wasn't in a disbelief of christianities' most basic teaching, but in the way those teaching were presented by many of its followers. I could meander here for ages, but since Jesus is not the focus of this entry, let me attempt to instead be concise. A central tenant in Christianity is the idea that Jesus died on the cross so that God would forgive our sins. The belief that anyone is capable of redemption and forgiveness is at the center of the faith. While my religion. is used by many to do the opposite of this, I've always been able to consider my christian background with pride because of this.
The cathedral we're standing now in was built in the 12th century. How many people do you suppose walked across these stone floors or knelt before the Lord in this same sanctuary and prayed for their salvation? What sort of things do you suppose they prayed for? Earlier today, I and a dozen other 20 somethings were sat by a french pub in a gorgeous public square getting absolutely plastered on wine and beer...
Those 12th century siners probably would have had a number of thoughts about that behavior. But, I digress.
I've been thinking about this moment and the idea of forgiveness a lot recently. I follow the band Lovejoy and their lead singer Will Gold, know better by his internet screen name Wilbur Soot. For those not chronically online and unaware of the controversy that's been tied to that name recently, Will Gold was accused of Domestic Abuse by his Ex Girlfriend Shelby Sulick, better know as Shelby 'Shubble' Grace. For the purposes of this entry, we will not be diving into the details of those accusations. Google it if you're curious or venture forth to Twitter if you're feeling very brave and patient.
No, the question I keep coming to and that brought me back to this century old place of worship was the question of change and growth. There's a quote for a show called Bockjack Horseman that surmizes my thoughts fairly well, "There's no such thing as 'bad guys' or 'good guys' We're all just... guys, who do good stuff sometimes and bad stuff sometimes. And all we can do is try to do less bad stuff and more good stuff, but you're never going to be good because you're not bad." I've noticed a trend in social media discourse in the last decade of people picking up 'buzzword' and using them without taking the time to research what those terms fully mean. It popped up around the same point as clickbaiting. I hate both trends equally.
Popular examples such as narcicist, gaslighting, and triggered are some of my favorite overused and misunderstood psychology terms at the moment. The example that bothers me most is the use of Narcicist and Narcicistic abuse. Narcicistic Personality Disorder is a diagnosable mental disorder that can be diagnosed and addressed with a professional Psychologist and medications. Not all people with NPD are abusers, and the use of NPD in Pop Psychology further pushes this idea that all people with NPD are dangerous individuals. This mindset also seems to push the idea that those who perpetuate abuse are incapable of change. Narcicistic Abuse is NOT a clinical diagnosis identified by the Diagnostic Statistic Manual (DSM) or the American Psychology Association (APA).
Psychology does not agree with the idea that abusers cannot improve and that 'toxic' behavior cannot be corrected. The Center for Prevention of Abuse gives a list of examples on their website explaining signs that a perpetrator is willing to improve as well as steps that you as a friend can take to help a friend with abusive tendencies. Heidi Preibe, a popular relationship youtuber open with her process of self growth, goes into detail on the steps she took herself to work toward paracticing better mindfulness and self awareness.
The central premis seems to be this: work to be aware of the behaviours you desplay that hurt others, observe the situations that trigger you to act in a harmful way, and set boundaries for yourself that push you to walk away and seek help from friends and a professional when you find yourself in those situations. If these are topics you're interested in, I would highly consider starting with Heidi's video linked below and going from there. Everyone displays toxic or narcicistic traits in their lifetime. Left unchecked, they can easily enter the realm of emotionally abusive. If you see this post and your response is 'I'm not toxic or abusive EVER. Sunshine pours out of my ass at all times.' Then you're probably the toxic pick this is directed at.
Singing in a space as old and as active as this is an experience unlike anything you will ever experience. As the sound of your voice echoes off the stone walls it will quite literally surround anyone present in that space. In choral music there is a phenomenon caused when a choir is in in perfect harmony: Overtones. These are very high echoing tones that ring in the space around you. When I imagine the sounds of angels speaking, I like to imagine they sound a bit like that. Those notes will only appear if ever singer is in tune and is completely in sink with one another. As always, communication and understanding among the vocalists is key. If your a 12th century farming begging the lordes forgiveness in a place as holy as this, I could see how a moment like that might leave an impact.
But now, it's time to turn the page to another snapshot of another moment in time. Perhaps we'll come back to this idea though. But that is for another time.
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Adendum - This post is in no way meant to suggest or imply abusive behaviour by eaither party mentioned above. All we have at this moment are statements and I will not be giving a full definitive answer om what I believe happened here until more information has come forward from both parties. This is merely a discussion on forgiveness and personal growth with links to helpful sources. It is also not meant to suggest that you should stay with an abusive partner in the hope they will change. That is a personal devision based on situation and should be discussed with friends and, if possible, a psychologist. Most sources agree that change in an abusive individual is only possible if/when the partner has left and forced them to leave.
If folks are absolutely desperate for my personal breakdown and speculations on the situation the I will address that at that time. If you go into my notes and leave disrespectul comments I will delete your comment and block you from this page.
Sources -
https://youtu.be/moynQi7qT08?si=baTzLjWTkOl4n8hI
https://www.centerforpreventionofabuse.org/i-need-help-for-someone-else/helping-abusers/
https://lundybancroft.com/
https://youtu.be/Nrx_dXx3WUQ?si=-5aSzDedf_QejWBV
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so for your poll abt abelism in fandom communities - i voted yes + reblogged but i will say i dont 1000% know im doing this right.
but for my experiences its been a lot of stigmatising of cluster b personality disorders. i have BPD which is already incredibly misunderstood/stigmatised but especially in fandom spaces where its "i headcanon x character w bpd" and immediately met with "no u cant bc ppl w bpd r evil and functionally not even ppl!!! all they do is hurt ppl they care about fuck them fuck ppl w bpd!!!" which
is incredibly harmful, as you'd imagine.
as well, i have autism and suspected schizophrenia and OCD (autism diagnosed, i am working on getting evaluated for schizophrenia and/or OCD) and fandom spaces can be incredibly rude to people with autism. whether it is schizophrenia related or not, i deal with extreme bouts of paranoia. fandom spaces also have a tendency to play into this - ie "joking" threats to be in my walls to hunt me down to kill me because i have a different fandom opinion.
its. alot. and i avoid most fandom spaces because of it.
Anon, I'm so sorry this has been your experience, because it absolutely should not be. This is the entire point of doing the poll and using the data to work on an essay - this behavior needs to be addressed and acknowledged as harmful.
I'm autistic with OCD myself, and this website is definitely bad to people with OCD. The misunderstanding of intrusive thoughts and how so many people become purity police and assume those intrusive thoughts actually mean you want to do something instead of understanding that they cause OCD folks extreme distress and anxiety is really, really harmful. And don't get me started on autism - I've been out in the real world doing self-advocacy for over a decade now, and the way a lot of people in fandom spaces treat autism is abysmal - there's even a lot of internalized ableism on that front, i.e. "I can't be ableist because I'm also disabled!" We all have internalized ableism to work through because of the world we live in.
Cluster B personality disorders and psychotic disorders get it the worst, though, with people treating those with them as "inhuman" and "evil" more often than not. No one is inherently more "evil" than anyone else. A personality disorder doesn't necessarily indicate that a person is bad. A psychotic disorder doesn't, either. BPD in particular actually makes a person very vulnerable to being abused due to the nature of how it works, but people love ignoring that part.
RE: people using your paranoia to send hateful anons, be really careful about what you share about yourself online. If you give too much information about what specifically can be used to hurt you, some people will absolutely do it. I know I may sound like an overly cautious adult to many of you (I'm 34), but when I was a teenager, we didn't put any personal information online in order to keep ourselves safe. If you aren't talking to people you really trust, don't necessarily share that information, because people are often cruel when they feel they can be so without any repercussions. Don't put all your triggers in your Carrd, don't make massive DNIs with all of the things that can hurt you in them - just use the block button and protect yourselves. Not everyone is acting in bad faith, and indeed, most humans aren't, but there are always some who will, and if they know how to hurt you or get back at you, they won't hesitate to hit where it hurts.
I'm sorry you have to remove yourself from fandom spaces just to feel safe, anon. It really isn't fair and you should be allowed to have a safe experience too.
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[Sensitive] Let's Talk RP and Mental Illness
//Hello hello, Saru-mun here to post a lil disclaimer that I felt to be due on my blog for quite some time now.
Let me preface all this by saying that yours truly has past and present long-lived experiences with mental illness, as someone affected directly by it and even indirectly when co-existing with others affected by it. Nothing in this post comes from a place of ignorance, intolerance, or even indifference to it.
I've always been a reserved person when it comes to my personal mental health. Oversharing and "trauma-dumping" have put a stigma on being overly open about these things, and I for one loathe the idea of being labeled as the person "playing the victim card". That said, I'm happy to find that this personal choice of mine does not reflect in my writing and roleplay. I like to write on these topics and explore their intricate and deep thematics like most other people here.
With THAT said as well however, I am also someone who puts a priority on realism before all else.
We live in a very lucky time for mental health awareness. Psychology studies have made leaps and bounds and uncovered, identified and explained many aspects of mental illness that I still remember being completely misunderstood and unheard of when I was a child. I think it is great and am thankful for this progress.
This however is due to the world we live in and the many advancements research has made over the years. This is a factor that I am never unaware of and that I am unwilling to cheapen by pretending it's to be given for granted.
What does it mean exactly? It means that when writing in settings that do not match our present-day progress, I will keep that in mind and have my muses match the emotional intelligence and knowledge that I would expect to be average in the world and universe they live in.
You probably should not expect Cyno the desert-dweller with a degree in elemental studies to know much about things like autism, PTSD, identity disorders or depression. The world he belongs to simply does not reflect that degree of awareness towards these conditions and as such, characters that belong in it should not be expected to understand them like we do in real life.
What should you expect? Ignorance and the mistakes born from it. Expect him to think your muse with executive dysfunction is lazy. To point out smell and filth if they are not able to keep up with their hygiene. Expect him to be confused by things like panic attacks, or to not understand one's deep-rooted anxieties.
In fact, Cyno himself has some degree of mental health problems that he is completely unaware of. And I've made him this way on purpose, because I remember the way I behaved about my own mental illness when I lived in a time where it was poorly understood. I downplayed it to personal flaws of mine that I should overcome.
You should expect this from any of my muses who live in a universe that is not as advanced as our real lifetime. My Mystic Messenger characters for example are more likely to be aware of these issues compared to, say, my Japanese feudal era demon lord character.
Why have I decided to go this route? Because I think mental health is important, and so is its history. I do not like the idea of pretending that the problems surrounding it and our understanding of mental illness never existed. These are stories that truly happened, and I want my readers to remember this, because it is by its mistakes that humankind has learned to be better. I want the ignorance of my muses to be a lesson, and a warning.
With that out of the way, I am making this post because the last thing I want is to make you uncomfortable. If you think something like a negative or indifferent reaction to your muse's mental illness might be something too insensitive for you to handle, then please, please please refrain from bringing these topics to the table with my muses.
You can talk to me OOCly if you're unsure how my muses would respond to these topics as well. I don't like breaking character (or what I perceive to be in-character for my muse anyway), but I am open to discussion and compromise on the language used in my responses if it will help you be comfortable with my portrayal more. A solution can almost always be found.
This turned stupid long already, so I'll be back to draft mountain now. You be good and stay off my soda.
Saru-mun\\
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seeing posts about what semiverbal means makes me confused still if that's me or not. I made post before and was told i'm not in replies. unless I didn't understand them right and i forget whst they said exactly. but I think they got upset I used the wrong word. I don't want to upset people. they said i'm more just intermittent speaking/speech loss or something like that because I probably talk more than semiverbals. (but do I? I don't know)
but that doesn't explain why it's so difficult for me to speak and make words and sentences and make sense and be understood. it's more than shutting down when overwhelmed. it'd hard before that.
I copy what others say. I make scripts and practice (and usually fail to follow them....đ) I use gestures to replace words. phone calls are a nightmare because no gestures and wrong words and i'm misunderstood every single time. figuring out how to ask questions is very hard so I never do and suffer when i need things. always have to think about how to say everything, even one word replies. my mouth betrays me a lot. words come out wrong. sentences have mixed up words. talking to strangers is impossible if I can even say any words to them. cant predict what they will say to make a script. they don't follow my scripts and my replies don't make sense. need other people with me to reply so I can copy and say the same things. people I know follow scripts easier because I predict them after studying them a long time. or we need to have the same conversation every time so I can reply the same or they talk and I listen and make noises to respond.
sometimes I have speech loss and can't speak at all. but it's always difficult. don't know how to tell if it's difficult as other people who are semiverbal or not as. I tried to explain this in a post before and struggled to explain. got replies telling me i'm not semiverbal but intermittent speech loss or something like that instead. because I said I can speak when I need to usually to people I know. speak easier to familiars than strangers because I can predict and script their speech. have to force myself to make phone calls when I need things and do it eventually (2+ years later.....haha...)
but I do struggle and everything is a script and needs to be practiced and am misunderstood most the time. everyone hears different words than I tried to say. i usually reply with few words instead of full sentences but I see posts saying these things are semiverbal too? but was told i'm not. so I don't know what I am.
talking hard. words hard. dumb brain can't even follow its own scripts correctly. conversations are impossible and I only listen and can't join. can't ask questions. can't get what I need. need others to speak for me so I can copy. no one follows my scripts so I don't make sense to them when i follow it.
but I don't want to step on toes and make actual semiverbal people upset by using that like i did that one time accidentally and was told im not. I rather have one word to describe it because ao it's easier. speech loss doesn't cover the struggle before the actual loss? but if I can't use semiverbal then i guess I have to say i am "difficulty talking and needs more time to say words but can still talk when needed (sometimes) and struggle to form sentences and need to follow script and copy people but tries their best to make sense so people don't get mad for not speaking, but too much struggle will also make brain shut down and cant talk at all then" many words but there doesn't seem to be one word to describe my struggle yet.
also what is stance on "selective mutism" I remember seeing autistic people say it's bad and don't use that. I was called that growing up (not by doctors but random people and I used it for a while) some say it's only used for official disorder/diagnosis so don't use it for casual. autistics on twitter told me not to and it means I select when I talk and to use shutdown instead. but maybe i can just say i'm selective mutism when trying to describe why i'm struggling to say words? instead of trying to use MORE words to describe my struggles đ
am I even making sense???? I feel like this post doesn't make sense
#i wonder if not thinking in words but i think in abstract feelings makes words and senteces harder for me.....#autistic#autism#actually autistic#too tired to think of more tags#lee rambles#juat tapping suggested tags that pop up#this post probably makes no sense because words hard and am tired after attending wedding and being photographer all day#sorry if words are jumbled or dont make sense. tired.
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here's some autism traits of mine that aren't symptoms, but they're things that are autism and im choosing to unmask n share this with you all.
biting. just i want bite fingers. i crave to put them in my mouth. i want to bite in general. i know its not socially acceptable to bite people, but i want to. i am a creacher and i cannote change that.
when i was like 14 i was really obsessed with random xd humor. I would say "ekop" instead of "poke", because its poke backwards. And I had this one friend I'd constantly do this with. like "rawr" and "cupcakez!1!1!". We were truly scene.
Speaking incredibly eloquently, as one alter put it, "Human language does not account for all the nuances that I wish to share, so I am using the language to its full extent, detailing every complicated sentence that I can muster. I wish to share my full thoughts and experiences, but it unfortunately does not do what I want to convey in justice. So I must settle for the english language for now." Some of our alters can't really speak because of that, and its difficult for them to communicate outside of visuals and vague feelings. It's really either hyperverbal or no verbality for us.
every fucking alter being some brand of autism. Tsuki is ace and hates to put a label on things, the only concrete feeling she has is anger. Rai can barely speak/communicate, they are very observant and quiet, and they feel the most disconnected from others being the host. Kaori is literally the most autistic creature you could ever come across, they are just literally what you think of, they love all the "cringe" culture type stuff and adore being nonbinary. etc etc. Like, how did I not realize when all of us are some brand of autism?
Feeling like an outsider my entire fucking life. Even when I related to others, I always felt separate from the rest of society, and I must sacrifice everything in order to be loved. This has been connected to spiritual beliefs of mine.
Another thing connected to spiritual beliefs of mine, feeling like I truly cannot see the world, as if I have a film over my eyes. The reason for my self entrapment is a "curse" that a "film" over my eyes exists and I never fully can break free from. I realize that the "film" is masking and my truly unique way of seeing the world is my autism, and I've had to move through the world not letting myself "see" truly.
alice in wonderland, coraline, fran bow, all characters I relate to are young and unique girls that move through a world that is crazy and full of madness. Something I find myself deeply relating to.
feeling misunderstood all the fucking time. even if i try to explain my feelings or thoughts, I'm constantly put on a high standard that I have not been able to achieve. I don't know how to change people's minds as I speak with genuine intent besides rather obvious displays of frustration, anger or sarcasm. I was also the person who thought others were always genuine, and rarely questioned one's intention behind what they said. This trait of mine has led me to become gaslit by a few harmful people in my life.
my disorders all linked together, makes for a bad time. this isnt an autism specific trait. i just. if i feel like an outsider (asd), and have trauma with being treated like an outsider (did), and get really upset with other people saying nasty things about me in regards to not being normal (adhd + rsd), im going to have a hard time and constantly blame myself for being an outsider (ocd) and im gonna hate myself (depression). so its just like. hey i found a piece to the puzzle, but i already know most of it. and thats just the egodystonic experience for me.
but hey, lets talk about more lighthearted stuff!! i love kandi!!!!! it jingle jingle and it has super pretty colours!! im afraid to stim but this is the shit for me. this is amazing.
i'd love to use word quirks and kaomojis a lot more!!! but unfortunately thats not the blog for this bc its not plaintext. but in my heart, thats what i want to do and who i want to be.
oh i remember the last one!! I read this somewhere, but apparently since a lot of autistic people struggle to communicate their needs, they'll do things that meet their needs somewhat, even if they don't know why they do it. For example, wearing hoodies and heavy clothes because they're touch starved and want to be hugged! And I really related to that!! I wear hoodies and lots of layers all the time, or like just wearing my day clothes, even if they're uncomfortable. So, I do that, not just because I'm cold, but I need the weight compressing me, and i've always been doing that since I was young. So I felt.
Not really being able to read big books until middle school. I know there's people who havent really talked until they were older, I remember not being able to comprehend big swaths of text until I was a teenager. maybe thats the audhd, but i feel like thats always been my sort of "i think this was my developmental milestones that i hit late". And yes, I was able to read quite a lot for my age, but it always felt like something that I hit late.
share your autism traits that aren't necessarily symptoms, or you can talk about the ones you relate to and I wrote. Sorry if this post is hard to read, I just wanted to talk about it. :0 so ya
#babey posts#autism#actually autistic#i also realize ive been having meltdowns and shutdowns since i was young#but i didnt know thats what i was experiencing#i would just get really tired or hungry and just would fucking sob and scream#i thought that was just sort of normal and everyone felt that way#that i was just really bad at hiding it#ive been experiencing it into adulthood too.....#id shutdown after friend stuff bc i felt too drained to interact anymore
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the anon who doesnt have aspd and taught myself empathy again here! i've never talked to a psych (self diagnosed autism) and as a teen i was p sure i had aspd (i Knew shit was strange w me and really wanted an explanation and once i figured out my mix of trauma and autism things made sense) coz lack of remorse and shit but i never actually really matched the rest of it -- i dont have substance abuse issues and never have, im p easily entertained, i've had the same three friends basically my entire life. i do though describe myself as the worlds most boring hedonist coz like yeah i sometimes have a hard time controlling my impulses and im motivated by fun but for me thats usually p simple -- easily entertained. read a book, video games, jump around to music. i AM frequently bored though?? like its my most frequent emotion and ive spent a Long time learning to cultivate my joy and really feel it properly. but im also the most easily excitable person i know. i dunno, i have v large emotions that appear then disappear quite quickly. a favourire hobby of mine since i was a kid has been to start arguments between the ppl i care abt and see how large i could make them in a single session then solve the argument w/o the ppl realising i'd manufactured and egged on the argument. which typing that out now seems uh. an interesting hobby. but late last year i told my younger brother and he laughed coz its a v me thing to do and was like "yo thats fucked. pls stop doing it to me" so since then ive mainly tried to just like playfully tease ppl in a normal way coz cognitively i understand its a fucked thing to do and im trynna be like, a decent person who doesnt go outta my way to play w ppl for funsies. which yeah that uh... maybe i Should look into aspd more again, i did a fairly shallow look into it as a teen and relating to azula as much as i did as a kid (and izaya as an older teen/young adult) was deff a sign of smth
i've followed you on this blog for a while (i think you'd only had it for a couple weeks when i first followed u?) so yeah i did know the story abt u and ur fiance! v cute
i feel like maybe we need a different identifier than "the anon who doesnt have aspd" because that might not be, uh. accurate! i have o clue why a lot of people with aspd seem to congregate around my account but i guess this is an aspd helpline now??????? whuh????
like im not complaining its just. how did i get here
also i think ive deadass used the "worlds most boring hedonist" descriptor for myself before and i deal w chronic boredom the same way you do- i have a LOT of hobbies and i plan elaborate projects and that entertains me but only temporarily
and thats the thing about aspd! it- like every other disorder- is a spectrum. you might not have substance abuse issues, and i do. you did.... your interesting hobby, and i find it morally fucked!* i have no idea your relationship with criminality, and i got fired for stealing
*i have done something similar but i have a moral policy of like, only fucking with people who Deserve It. who deserves what varies case by case and what exactly i do... i need to explain weird spiritual stuff to go in depth andyeah im not really itchin to be called crazy on tumblr dot cum
aspd in general is very misunderstood and no literature really focuses on what its like to have the disorder, only the perceived damage being around someone with the disorder will bring- which is why i initially self diagnosed thru tumblr posts from ppl talking about their symptoms in a serious educative way
sometimes i think like, maybe i don't have aspd, maybe i'm just autistic and i'm spreading misinformation- but i never really felt "at home" with other autistic people. its like- yeah i click better with other autistic people, but i'm still masking, i'm still faking, and even in this situation i can drop the mask partially but not fully. growing up with a personality disorder and trauma in communities largely filled with autistic people with trauma, very quickly teaches you that there's something different about you. it's an isolating, traumatizing feeling- my experience with this was mainly symptoms of npd, but like.... knowing you have a problem, wanting it fixed, and knowing nobody around you knows how deep the problem runs, and might even find its existence laughable or dangerous... it's isolating! and its shitty!!
generally i tend to Know if things i'm doing are bad or not, i just tend to not care in the moment, because it's better than being bored! entertainment wins out over everything. it's actually kind of terrible; i'll do stuff just to see a reaction out of people- it's like izaya, honestly, what happens when people are pushed to their breaking points?
thats kind of how i got so much into angst and psychological horror. not only did i want to break the characters, i wanted to break my audience. i'd tell my friends detailed stories about torture partly because i was interested in my story, mostly because i wanted to see their horrified reactions. i wanted to see how far was "too far," and i keep that stuff in my current narratives- i keep the pov extremely tight and do silly little tricks with narrative and formatting to make the audience feel like they're Really There
so yeah look into aspd. do it boy listen to me im the ps5 im speaking to you inside your brain. do it boy do it
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2023-2024 was the hardest, I almost didnt make it out because for the first time, I didnt bother to look around for hands or any reciprocations of help or guidance. Iâve been caring and relying on others for the first thirty years of my life, so I decided, that part of me needed to die. It had to. I did not know who I really was, what I felt, what to do with what I felt, is there a right or wrong? And itâs been two years, two lonely years, but I spent it all with no other than the person I definitely needed to, myself. No one when I was age 30 and earlier knows who I am, but I do. And as much as pain and suffering and even flashbacks of sobbing seeing nothing but pitch blackness surrounding me, especially when the person who gave you a chance to exist, ends up being the one to make you feel like its better off to not. Just writing this is .. honestly hard for me to do as memories and experiences of the past two years keep flooding my mind. I wish I was properly diagnosed with ADHD type: combined earlier in my life, because it explains a lot about me, and that specific type of ADHD is closely related to anxiety/depression disorder. In a sense, I was halfway diagnosed. I also had a feeling but dont want to get into it. I didnât forcefully burn bridges with everyone, and in actuality, I hope that if I return to some bridges, some of those would still be there, but wont beat myself up if they were no where in sight anymore. Balance. Sacrifice. I cared for others so much up until 30 years old, even if it may seemed as if it were for selfish desires, it wasnt. I just really did not know how to express myself in a way for someone to understand me. Its been 2 years. 2 years. 2 years of being alone, not having someone to eat with, not having someone to talk to about an episode or movie I found amazing, which was the total complete opposite of what I was experiencing beforehand for the first time. I had never spent time with someone every single day of my life with someone so it was very raw and new to me, but Im sure on the other hand, it was an experience she was used to. We never really took time to try and understand each other, and sometimes I question if I really loved that person. And the simple answer to that was yes, deeply. Itâs been two years, and the old me wouldve tried to go out and date or get my mind off things, but i realized id just be repeating the never ending cycle i always have been and would ultimately get me nowhere. Theres many things I wish I could say but I know many people would look at me the same despite not knowing where Ive been the last two years and it shows whenever someone reaches out (âYouâre alive?! What the heck where have you been? âyes i am, barely made it but yes. Ive been.. i dont know and really hope you dont ever go there, but its nice to hear back from you too take careâ) Iâve been writing in a journal, it helps me self reflect a lot and the main reason im not the same person I was two years ago, and despite whatever others may think, I feel like I am finally me, and although we live in the loneliest generation ever, I do hope one day someone or even someone I already know, sees me for who I have turned into, and if they are genuinely curious as to my past two years, I will simply hand them my journals and tell them I trust them enough to not feel any remorse for what I was going through, but moreso happiness and pride that I was able to, because in those journals, I sometimes even feel like Im reading a fictional book. My English teacher in highschool was right, I cant speak what I feel and want to, but if someones takes the time to read and listen to what I have to say, not how I say it, but the words and meanings of what I said, then theyâll be able to be one of the firsts to not see me as misunderstood. Iâll never forget when someone randomly went up to me, smelling like liquor, and told me âYou know youâre just really misunderstood, but dont worry so much!â And he went off to the dance floor and acted like the fool he happily was.
Theres so many things I want to say, but I have to just move forward, it hurt when thinking my dream as a kid is most likely not going to happen at this point, but i take full accountability for where i am today, and where I end up after this.
Love,
JS
i been pulling myself out of dark places alone since i was a child. iâm built for anything
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The Chakra Approach to Health
Below are the various chakras beginning with the root chakra at the base of your spine and working up toward the top of your head. Energy flows in a vortex from the ground up through your spine and so spiritual growth can be described as the energy flows. Blockages in the energy through any of the chakras will have problematic symptoms.
Root Chakra Colors: Red and Black Affirmation: I am
Also known as the base chakra, it is the foundation to start building, and aligning the rest of your chakra's. This is the chakra of being and is tied to the earth. Â It represents your safety and physical presence. It is your identity.Â
Chakra Aligned: Signs of this chakra being stable is a peaceful home, physical security, and food and shelter.
Physical symptoms: As the foundation chakra, any and all symptoms can occur as a result of this being out of balance. Â More specifically since this chakra refers to your physical safety the symptoms you will experience will be more direct. Â Starvation, dehydration, battle wounds, breaks, and bruises are all symptomatic of this chakra being threatened or attacked.
Keep in mind when thinking of the root chakra that it is a foundation. If your physical safety is under threat you are not very concerned about the other chakras for the time being. Â Reading, talking, making love, thinking, and meditation are all wasted time when you should be eating, getting out of the way of a train, or drowning. Chakras are always fluid and change all the time. Â A perfectly balanced soul is always fluctuating and changing. Â Either become more balanced or chaotic.
Once your Root Chakra is in alignment we usually feel the freedom to feel. We naturally start to apply the Sacral Chakra
Sacral Chakra Color: Orange Affirmation: I feel
Sometimes this is not understood well. Since this chakra resides where sexual energy resides, it is very powerful and prone to perversion. Perversion is often related to paths related to spending far too much time playing with this Chakra. Â Signs this chakra being aligned would be quality connections with other relationships in your life. Â Understanding how you feel about them and setting appropriate boundaries.
Physical symptoms of misalignment: This chakra represents the area of our sexuality. It would not be a surprise that by meddling around with this chakra over time will eventually lead to disease and over-use, or under-use of this region. Â STDs and pregnancy complications can occur when this chakra is not aligned.
Once you have balanced your Sacral Chakra you understand how you feel. You know your connections and boundaries with others. Â We are motivated by how we feel, and when we feel good we are more productive. Â This is the point you will step into the next Chakra
Solar Plexus ChakraÂ
Color: Yellow
Affirmation: I do
This is an action Chakra. Â It is pulled by the heart chakra as you find things you love, and find the actions to support them. Â Signs this chakra is in effect would be life changes and actions that can direct your life. Â It is the powerhouse of your soul.
Physical symptoms of misalignment: When you are overworked, or not feeling the benefit of what you do this can manifest in very real symptoms. Â Ulcers and digestive disorders are often symptoms of what we have over done, or not done a lot of. Â We may experience warning signs with heartburn, gas, and stomach aches.
Your solar plexus chakra does not act on its own. Â It can only grow when it is pulled by the heart chakra and supported firmly on the sacral chakra.
Heart Chakra
Color: Pink or Green (intimate or platonic)
Affirmation: I love
Another chakra that is often misunderstood. Â People will sometimes feel they do not feel love when this chakra is less charged than others. Just as every action we ever take is supported because we love something it is firmly rooted over the solar plexus chakra. If you analyze everything everyone does at any point in time you will find love responsible. Â Love for family, love for self, love for money, or love for knowledge everyone is motivated by love. Â When this chakra is charged the power can be indescribable.
Physical symptoms of misalignment: Heartbreak. Â That swelling and tightness we feel in our chest. Â Our heart beats more when we feel love and hurts when we lose it. Emptiness in the chest. Â Food is tasteless, and deeds are unappreciated.
Throat Chakra
Color: Blue
Affirmation: I speak
This chakra is where you communicate. Â You express ideas and feelings through speaking, art, poetry, and music. Â You express from the heart chakra. Â You will find skill where you find what you love. Articulation is the art of saying what our heart wants us to. This is also the chakra of truth. Â We speak what we feel is, or should be true.
Physical symptoms of misalignment: You can't speak, you have a frog in your throat. Â You want to say something, but cannot. Stress is a buildup of communication that cannot be released. Â This is also your creative chakra. Â Art and music manifest here, however, if this chakra is unbalanced creativity falls silent. Feeling oppressed. This chakra is backed by truth. Â Seeking truth uncovers lies, apathy, and foolishness causing stress. Â Stress usually always manifests first in the neck and shoulders.
Third Eye Chakra
Color: Purple
Affirmation: I see
This would be the equivalent of what we think of as our brain. Â It sorts out what is real and what is an illusion through logic, intuition, and experiences. Â It is the command post of our ideas and the window we see the world through. Â It is where we develop the tools that give meaning to what we do. Â It justifies our actions and is constantly attempting to keep on course while syncing with the other chakras.
Physical symptoms of misalignment: Your mind is blown, something you always have thought was suddenly unveiled as an illusion. You feel disoriented, crazy, or desperate. You cannot see things clearly. Confusion and despair may follow. Â Can lead to suicide.
Crown Chakra
Color: Clear, white, and opalescentÂ
Affirmation: I know
This is your connection to the divine. Â Through this channel, you listen to God and the spirits of others. Â It is often intuitive and a culmination of exposure to the rest of the chakras. Praying, meditating, and other spiritual practices will exercise this chakra. This is the chakra that gives us life, hope, and faith. It is the connection to the Divine or God.
Physical symptoms of misalignment: You feel God is not listening, and you feel like everything you have done has been done in waste. You don't feel a connection to other spirits and are alone in despair. Â The chakras, although described as a linear path actually leads back to itself. Â This chakra must be in alignment as much as the foundation or we completely lose our charge on all levels.
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