#tysabri

[sexy-monster-fucker]

Infusion dayyyyyy

[saddie-to-baddie]

1.17.23 Review.

So, yesterday did NOT go as planned food wise.

There really is something about restricting anything that makes me go off the rails. BUT I thought this might happen. Today I'm bringing some more salad and more chicken for lunch. And some fruit for snacking. I'll pre-slice some apples and maybe take a banana or two.

My sweet tooth got the best of me yesterday, and when I got home I went overboard with some French bread that was out. I'm not getting too strict about following AIP for dinner yet, but I went completely off the rails.

My hips and back hurt a lot this morning, my legs are feeling weak and I did notice a lot more jabbing pains around my torso and chest last night. Strictly diet related? Probably not, but I don't think it helped. Leg wise I think I may have gone a little hard with my work walks, I walked a lot farther during my lunch break than I usually do. I don't want to throw myself into a flare right now so I might dial it back just a bit until I get back on medication.

That symptom alone really scares me because that's pretty much when I got so bad that I was hospitalized and ultimately diagnosed with MS 3ish years ago. My legs felt wierd, then slowly I was losing my balance, couldn't stand, couldn't feel my feet, until I was falling over and couldn't drive or trust myself to hold my baby daughter anymore. Everytime I experience a flare, I am terrified that I might not fully recover. So I really need to take this more seriously.

[u2hearts]

Do We Continue MS Disease Therapy Drugs?

I’m faced with a major decision coming up soon. Do I continue taking Rituxan? Not only Rituxan but any disease modifying therapies. I’ve been plagued with infections. I do believe that all of these infections have not only been difficult for me mentally but have played a significant part in the worsening of my symptoms. It’s the age old question, is the MS medication doing anything for me? Are…

[ivebeenmade]

Final countdown! She was really nervous but everything went perfect.

[shirowm]

I'm not questioning my multiplicity. But there are days (like today) where I feel like I'm a singlet. Like, where did everyone go? It's kinda frustrating... Head empty, no thoughts...

[griddlebandits]

Week 11 Marathon Training 2.0

Week 11! Right? I feel like I’m losing track. I am keeping notes, however, so you’re getting that at least. This week was not a lot of running. Looking at the calendar, I realized next week is my Tysabri infusion, so the fatigue was not unexpected. Not welcome either, but this week I seemed to be better emotionally about accepting it as a part of my life. I did a lot more walking than running,…

[rocksaltandroll]

So this is treatment #27! I don’t usually post my Tysabri infusions up on tumblr but I said yesterday that I was feeling bleh because I was due my treatment, so here it is.

I need this every 4 weeks to keep my MS from getting worse. It wears off quite fast with me. I’m supposed to get it every 6 weeks, but after 3 I start feeling the fatigue again & the pins and needles get worse, and then come the spasms and the aches. I’m practically catatonic by week 6, so they put me back to 4.

I’m going to feel like my limbs weigh a ton once this infusion is done but in a couple of days it’ll be like I drank a magic potion! Huzzah for modern medicine!

[magdalunatica]

Tysabri pronto nos veremos de nuevo🦋

[marcioaugustoantoniassi]

Anvisa alerta sobre falsificação dos medicamentos Tysabri® e Ozempic®

[portalg37]

Anvisa alerta sobre lotes falsificados de dois medicamentos

Tysabri é indicado para esclerose e Ozempic, para diabetes tipo 2 A Agência Nacional de Vigilância Sanitária (Anvisa) publicou, nesta sexta-feira (3), em seu site, um alerta aos profissionais de saúde e à população sobre lotes falsificados de dois medicamentos: Tysabri® (que contém a substância ativa natalizumabe), indicado para tratamento de formas mais ativas de esclerose múltipla, e…

[ocombatenterondonia]

Anvisa alerta sobre lotes falsificados de dois medicamentos

A Agência Nacional de Vigilância Sanitária (Anvisa) publicou, nesta sexta-feira (3), em seu site, um alerta aos profissionais de saúde e à população sobre lotes falsificados de dois medicamentos: Tysabri® (que contém a substância ativa natalizumabe), indicado para tratamento de formas mais ativas de esclerose múltipla, e Ozempic® (o princípio ativo semaglutida), para tratar, em conjunto com dieta…

[u2hearts]

My age 51 my body is much older

My age 51 my body is much older

It’s my birthday tomorrow. 51!!! I’m middle age. I think my body has been middle age since I was 43. That was when multiple sclerosis hit me with the last relapse that started my path of true disability. It’s been 8 years since that last relapse. It was when I was switching from Tysabri to Rituxan. I made the mistake of stopping Tysabri because I actually had the thought of switching to an…

[ivebeenmade]

My girlfriend is on her first round of infusion treatment for MS right now. So proud of what a tough person she is and I hope this one works better than the others.

[puravibenamastes-blog]

Anvisa emite alerta sobre medicamentos Tysabri e Ozempic falsificados; veja os lotes

A Anvisa (Agência Nacional de Vigilância Sanitária) emitiu um alerta nesta sexta (3) a respeito da circulação de lotes falsificados do Tysabri (natalizumabe), para tratamento de esclerose múltipla, e Ozempic (semaglutida), indicado a adultos com diabetes tipo 2 -este último noticiado pela Folha em 25 de outubro. Leia mais (11/03/2023 – 16h33) Artigo Folha de S.Paulo – Equilíbrio e Saúde –…

[griddlebandits]

High Fatigue Days

Hi there, folks. I’m still here. Working behind the scenes. Doing lots of resting. I get infusions every 4 weeks of a disease modifying drug called Tysabri. I figured out a long time ago that my energy slowly declines throughout those 4 weeks, and by that fourth week I’m often fatiguing pretty hard. I won’t tell you how many years it took me to come to that realization, but let’s just say my…