griddlebandits

[griddlebandits]

A Winter Haiku

Damn you MichiganFrigid temps make my legs acheCome quickly spring sun

[griddlebandits]

A tinnitus haiku

When I wake, silenceAll I hear is rushing windIt’s all in my head

[griddlebandits]

Moving Forward

It’s day three of this debilitating fatigue, and I’ve been managing okay. I’m doing the bare minimum, the most essential tasks. It is strange timing, because my monthly infusion was last Friday. My energy levels should be going up, not down. There’s a little bit of hope on the horizon however. I talked to my therapist yesterday and I think we uncovered some of the factors that could be…

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Forking Fatigue

Well, you could say I really took that idea of hibernation to heart! I’ve not been sleeping 22 hours a day, but I have been resting more. I’ve still been active when I need or want to be, but when it’s time for down time, I committed to it. And when Christmas break was over and the kids were heading back to school (i.e. today), I was more than ready to get back to a routine. I woke up this…

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Hibernation

Okay, as I’m reviewing my new list of habits, I’m rethinking one, and that’s daily exercise. Let me explain. I know it’s good for me, I know it helps my energy levels. BUT – when it’s on my list to be done daily, and I don’t do it for whatever reason? I place guilt on myself, and that’s a crummy feeling. When I reviewed my habit list this morning, they all looked positive and worth doing except…

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Habit Reset

Hey! We are officially on Christmas break! That means I can sleep in a little. Sleeping in was a lot more fun when I was younger. These days I tend to still wake up fairly early, and in pain so that staying in bed is not enjoyable. So I get up, make my coffee, get my mental work done, and then, depending on how I’m feeling, go back to bed for a morning nap. I had a good morning at church today.…

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Celebrity Dreams

I’m only friends with famous people in my dreams. Seriously. I had a dream a couple years ago that I was sitting on the lawn at a Detroit Tigers game, shooting the breeze with Queen Latifah and Mos Def. We were having the best time! I was sad when I woke up from that dream, because I feel like we didn’t get enough time together. This morning I had a dream that I was riding in a car with Patrick…

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(Final) Daily Post #12 - December 16, 2025

I might still continue daily posting, but I’m no longer going to call them daily. I don’t like the pressure, ha! Today was a slow moving day, fatigue was in the background all day long but I was able to take care of the dirty dishes. Small victories. I also had a couple really great conversations and connections with friends, and that is an even bigger win, in my book. I have been blessed with…

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Daily Post #11 - December 15, 2024

Did anyone notice that my #9 daily post was incorrectly named Weekly Post? I think that was the start of my downhill trajectory with fatigue. I did not post yesterday. I had trouble in the morning, so I slept in and missed church. I had a mostly uneventful day and then I was in bed before 9. And then this morning slept until 10. So you know, fatigue has officially set in. And the timing of it was…

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Daily Post #10 - December 14, 2024

Number ten! How about that? I think at this point we’ll just see how long I can keep it up. Today is Saturday, so I was able to sleep in, which was wonderful. I did some reading and studying in the morning and then my husband and I headed out to get lunch and head to his mom’s house to help her with some technical issues. He is an only child and he does an amazing job helping both his mom and his…

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Weekly Post #9 - December 13, 2024

Tired of my daily updates yet? I am, a little, but I’m going to keep it up for awhile. Today was mostly uneventful, but we had some wins. I slept late, until 10:30, because I’m still recovering from three consecutive days of full activity. I was feeling really sore, and my legs were hurting a little from the cold weather outside, but I took a shower and that warmed me up a bit, so it relieved the…

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Daily Post #8 - December 12, 2024

Oh boy, you guys. My brain, my legs, my arms. They are all so tired today. I moved around and did things, but most of the work I did was sitting here at the desk. I tidied up my space a bit, because when I am surrounded by clutter I just can’t think straight. Too much nagging from the objects needing my attention. I had planned to work on wrapping Christmas gifts today, but the kids had a snow…

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Daily Post #7 - December 11, 2024

It’s bedtime, folks, and I almost forgot to post! My head is all squirrely today. Trying to set up new phone and learn necessary features is such fun. I mean, not really. It’s exhausting, but I’m getting there. I had some trouble last night getting it properly connected to my cochlear implants via Bluetooth, but I handed it over to my daughter and she was able to get it working. Teenagers, you…

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Daily Post #6 - December 10, 2024

As expected, I am ending the day exhausted from a productive and fun day of shopping with my sister! It started out with a quick trip to the dermatologist to follow up on my rosacea. The treatment is working well, daily ivermection applications and antibiotic treatments as needed when my skin flares up. It flared up after Thanksgiving and I’m almost positive excess sugar was the culprit, so I’ll…

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Daily Post #5 - December 9, 2024

I almost forgot my daily post! So, I’m sitting here at my desk, sans cochlear implants (so in the silence) and with my face 10 inches from the screen because I already took my contacts out. Basically, I’m going to make this quick. Today entailed some prayer in my living room with another mom from our school (we do this every other week but normally there are more than just the two of us), then a…

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Daily Post #3 - December 8, 2024

Another busy day today. I went to church in the morning. That was nice. We had our annual meeting at the start of the service, which just means the board updates the congregation on the state of the church’s finances and other administrative items. Super boring, but crucial because we are a 501(c)3 corporation. And if we were to ask the congregation to come to a meeting, they likely would not…

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Daily Post #3 - December 7, 2024

Long and crazy day. The original plan was for the whole family to go pick out and cut down this year’s Christmas tree. And that was going to be it, a nice relaxing day.We ended up doing a lot more than that. To start off, a friend texted first thing in the morning inviting me to join her at the gym. I said absolutely yes, since I had missed the day before and had been itching to go back. I got…