#that’s not the way the world works
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clanoffelidae · 11 months ago
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I’m always scared of jinxing myself by opening my mouth and saying I’m ‘not physically disabled anymore’ or that ‘my cyclic vomiting is gone’; because there’s no cure and we don’t know why it sometimes just… stops. There’s not even really any medication to manage it you just kind of… try to work through it and manage symptoms and side effects as best you can. Namely, the dehydration due to excessive vomiting being the main concern. (Have had abdominal spasms due to becoming dehydrated from it before. Took me 5-6 minutes to army crawl six feet to the shower, wiggle out of my clothes, and stretch up to turn on the hot water to try and soothe the muscles I was in so much pain. It was also like 4am and I was at a homestay in another country so fuck me I guess lol. Fortunately my homestay actually spoke English; which worked out because I speak Spanish decently well so I was making an active effort to converse with her and practice before I got sick, she was extremely helpful because I mainly needed help with specific vocabulary/phrases and she could help me translate them, and then when I got sick and was so exhausted I could barely communicate in English anymore I was able to drop the Spanish and still be understood and given help. That’s a tangent tho lol sorry)
And that’s true of a lot of physical disabilities, sadly, so I’m sure many of you can understand why I’m scared of it. Because I’m one of the lucky ones, even when my condition was at it’s worst I had more good days than bad. One of the defining characteristics of CVS is that in between episodes you would never know something is wrong with us.
And sometimes people just… ‘grow out of it’, so to speak. It most commonly affects children, even being thought of as a pediatric disease, and then just goes away when they get older. I was a weird case, I had two sporadic episodes in high school and then it hit me hard basically as soon as I got to college; it only ever happened when I was an adolescent/adult.
During the worst of it I would have episodes as little as 3 weeks apart; I’d be in severe agony and vomiting profusely for around 24 hours, take several days for the pain to go away (the episode was over but I was sore after the vomiting), and about a week for the brain fog and lethargy to clear up. I knew my stomach was empty, I knew I had nothing in it, but it felt so swollen and I was convinced it was about to tear open like an overfilled balloon. The condition is believed to be related to migraine headaches and I believe it - my severe migraines are the throbbing kind where it feels like my head is about to explode, and that is the exact same kind of pain I was feeling in my stomach. Those same, unique qualities that differentiate the pain of a migraine from another headache were exactly what I felt in my abdomen. I was also light and sound sensitive, seeking darkness and solitude; although it didn’t cause literal pain to be exposed to light and sound like with a migraine headache, it stressed me out for ‘seemingly no reason’, overwhelming me and increasing my pain as a result of the stress and desire for the stimulus to go away.
My last episode was in 2019. I only even had frequent episodes for a little over 2 years.
And I’m still deathly afraid of every new medication I try because I don’t know why it stopped. Nothing about my lifestyle changed, nothing about my habits. I was never able to identify any triggers like with my headaches, it just sort of ‘happened’ as far as I could tell.
I have no idea why it started and no idea why it stopped.
And I’m constantly fucking terrified that I’ll fuck something up and it’ll come back, that this time of peace and ‘health’ is temporary. I’m so fucking scared because it hurts so fucking much and I don’t want to be in pain again.
I don’t want to be in pain again.
And I don’t know why I’m bringing this up or what I’m trying to say really. I guess I just want to get my fears written down because they’re circling in my head again.
And I guess I also want to say that I’m sorry. I’m sorry to everyone who suffers with a ‘hidden’ condition that no one believes you about, I’m sorry for everyone who is barely dragging themselves through it day by day; in pain, exhausted, and with the people around them burnt out on offering help because ‘why can’t you just get better already’.
I’m lucky, I’m so very, very lucky that for whatever reason my episodes just… stopped. They just stopped. And even still I live aware of the sword dangling over my head, never believing that the dragon is actually dead and is only just sleeping, still there to be reawakened if I mess up (when I don’t have the slightest idea what or where that invisible line I must never cross is), and I never dare to say that I’m ‘cured’ because I don’t believe in miracles like that. It’s a miracle that they stopped, and I’m grateful for it, but I will never dare to believe that they couldn’t come roaring right back any day.
Disability can happen to anyone, and I’m vividly aware that my old pain could be stumbled into at any minute, along with any number of other things, and I’m so sorry to everyone who still lives with their pain that is a constant companion. Mine is sleeping, but I remember it well for how it burned like the sun, to the point that I was able to identify sporadic episodes years after the fact that I had thought only stomach bugs because they were so horrible.
Pain is good, but not like this.
Pain is meant to be a teacher, a protector. A warning system of ‘hey! Don’t do that! We could get hurt!’ Your body’s way of keeping you safe and alive; don’t touch the fire because it hurts, don’t touch the fire because it could kill you. Pain is life’s way of steering you away from death, of keeping you safe and alive; letting you know there’s damage so you know to keep that part safe while it heals and use it less. Because when you’re about to walk into the flames your body doesn’t have the time to sit down and explain it to you gently, it has to alert you ‘NOW. PULL BACK NOW!’
Pain is meant to be a good thing; it’s meant to keep you alive and to protect you, to teach you about danger so you know how to be safe, and go let you know when you’ve been damaged so that you can make sure to give the damage time to heal.
But it’s not meant to be there all the time; it’s not meant to be constantly flashing the alarms when there’s nothing to be done, your body trying to help and let you know that something’s wrong when there’s nothing you can do. It’s not meant to linger until it breaks you, to weigh on your shoulders until you struggle to see the good past it. But just like with any good thing, so often does it become ill.
Pain is a constant companion for too many of us, and I’m so, so sorry for that.
You shouldn’t have to be strong.
I’m sorry.
I just wanted to let you all know that.
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fandomsandfeminism · 2 years ago
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Yall wanna hear a kinda funny, kinda sad story about my grandmother and hetero-normativity?
Ok, so... when my grandmother was in her 50s (I was an infant), she met a woman at the Unitarian Church. And, as can happen when you meet your soul mate, this event made it impossible for her to deny parts of herself that she had fiercely hidden her whole life.
All the drama- their affair being found out, the divorce with my grandfather, the court battle over who got the house, happened while I was a baby. Even in my earliest memories, it's just Mama Jo and Oma, and my grandfather lived elsewhere (first his own apartment, then a nursing home, then with us.)
But here's the thing- no one ever explained any of this to me. No one ever sat down and was like "hey, Rosie, so do you know what a lesbian is?" It was the 90s. It was Texas. I think my mom was still kinda processing all this, and just assumed that like... I was gonna figure it out. Don't mention it, let it just be normal. Like I think my mom thought that if she explained the situation, she would be making it weird? I dunno.
But like. In the 90s, in all the movies I had seen and books I had read, do you know how many same sex couples I had seen? Like. 0. Do you know how many "platonic best friend/roommates" I had seen? A lot. I had no context, is what I'm saying.
I literally thought this was a Golden Girls, roommates, besties situation until I was like...I dunno, 11? 12?
It was actually their parrot, an African Grey named Spike, imitating my grandmothers voice saying "Johanna, honey, it's getting late", that triggered the MIND BLOWN moment as I realized that *there's only one master bedroom and it only has 1 waterbed* when all the pieces finally clicked.
Anyway. I think it's a real important thing for kids to know queer people exist, for a lot of reasons, but also because kids can be clueless and it's embarrassing to have your grandmother be outted by a parrot because everyone just thought you'd figure it out on your own.
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Anyway, here is my grandma and her wife, my Oma, after they moved to Albuquerque to be artsy gay cowboys and live their best life. They helped run a "Lesbian Dude Ranch" out there (basically just with funding and financial support. As Oma has explained "traditionally, most lesbians don't have a lot of money" so they wrote the checks and let the younger ladies actually run the ranch.)
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extravapalooza · 10 months ago
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scans from a minizine from late last year! risograph with collage. part of a bigger project on trans relationships to the body thru cyborgs but i got distracted making pinups
more scans
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starcurtain · 2 months ago
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Teyvat's "Most Down Bad" Award Goes to Alhaitham for a Second Year Running
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Seeing everyone making fun of Alhaitham for his "stalkerish" tendencies in this event is funny, because I feel like a lot of people missed that "Be literally everywhere Kaveh is" has been Alhaitham's MO from the day Kaveh appeared in the game.
From only grabbing his house keys after Kaveh returned from the desert (he couldn't have had both sets of keys at the end of the Archon Quest unless he went home and got Kaveh's copy) to ditching conversations to get back to his house only after Kaveh came home, to showing up without any warning or explanation in Kaveh's hangout with some ridiculous excuse about hearing his voice through noise-cancelling headphones... Refusing to offer any help in the Temple of Silence story quest other than staying in the library with Kaveh...
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Since when does Alhaitham willingly cover anyone else's duties?
But this trend of "Be everywhere Kaveh is" didn't start when they were adults. It was already in place when they were still Akademiya students--and it's a trend that didn't end even when they had their fight.
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Even when they weren't speaking, Alhaitham dogged Kaveh's every step through published responses to Kaveh's research articles in academic journals. He insisted on keeping a line of communication between himself and Kaveh open, even if the only way to do that was through very public ideological clashes. Pulling Kaveh's pigtails to get his attention lolol. It's implied that, for at least the few years between their fight and Kaveh moving in, this was the only communication between them--Alhaitham's refusal to allow their connection to entirely fade away. (And the fact that this is revealed in Kaveh's character stories--through his precious journal that records the moments of his life that had the most impact on him--shows just how deeply he values the fact that Alhaitham didn't give up.)
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Another relevant side note: Alhaitham never asked Kaveh to give up his half of their house. Knowing half of it belonged to Kaveh, knowing that Kaveh may one day want to reclaim his part of it, knowing that it was listed as theirs, Alhaitham moved into the house and made zero effort to change its ownership. He was completely fine with living in "his and Kaveh's house." The stories suggest it was only months later (or even longer) that Kaveh even noticed he had the house, and he transferred away ownership of his portion without Alhaitham ever asking him (or even seemingly wanting him) to do so.
Please, let that sink in. Alhaitham actively left his grandmother's (presumably comfortable) house to move into "his and Kaveh's house," with no apparent explanation for why, and after doing so, he made no attempt to change that "his and Kaveh's" label. He moved into the house with no promise that Kaveh wouldn't show up on the doorstep the very next day and move in too. It almost feels like another deliberate provocation--I've moved into our house, are you going to come stop me? LBR, if Alhaitham had had his way, Kaveh would have been living there with him from Day 1...
There's also the fact that Kaveh literally can't write on a single message board anywhere in the entire nation of Sumeru without Alhaitham hunting his messages down and responding to them (which absolutely no one else does, by the way).
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"NUH-UH!" "UH-HUH." "NUH-UH!"
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Alhaitham's own character stories tell us explicitly that one of Alhaitham's defining character traits is "He is never where you need him to be," yet somehow...
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Shot, and chaser:
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Any time Kaveh is in the slightest bit of need or danger or just wants Alhaitham near, Alhaitham is "coincidentally" exactly where Kaveh needs him to be, whenever Kaveh needs him to be there.
Alhaitham didn't just "happen" to run into Kaveh in Port Ormos, an entirely different city from where he was supposed to be working. He didn't just "happen" to read the same terrible book as Kaveh when we know he otherwise would not waste a moment of his time on poorly-written literature...
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He didn't just "happen" to appear when Kaveh was upset and needed a distraction in the House of Daena during Kaveh's hangout. He didn't just "happen" to be sitting around waiting when Kaveh needed answers after the Archon Quest. He didn't just "happen" to find Kaveh's academic publications and every single message board posting and respond to them at length and in public.
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Which is exactly what Kaveh's mother told Kaveh he needed.
What level of down bad is "Abusing your powers as an Akademiya employee to keep tabs on your crush's library loans"? Just asking for a friend.
The only person for whom Alhaitham just "happens" to be available is Kaveh, over and over and over again--because he is very deliberately making himself a constant presence in Kaveh's life.
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(Like, out of all things, I think people really underestimate the devs deliberately paralleling the romantic relationship between Kaveh's mother and father with Kaveh and Alhaitham's relationship. If you want to point to one thing that says "These two characters are intentionally queer-coded," it doesn't get any more obvious than this.)
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Alhaitham, are you not embarrassed to be this transparent??? 🫣
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idontmindifuforgetme · 1 year ago
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friend wanted to see my tumblr, and when i told him i can’t show it to him bc it’s basically my personal diary he went “oh so I can’t see it but a bunch of strangers on tumblr can??” he literally does not get me. no one will get me like the people in my phone get me
#It’s just so different#even though it’s public it still feels secret and safe. i feel comfy sharing a lot more on here than I do in my actual day to day life lol#in my head I’m also just speaking to myself 90% of the time which helps#if a friend off tumblr saw my thoughts I’d feel so weird ab it#esp bc they might get the vagueposting about certain situations and tell mutual friends#no thank u. this is for me. I’m not about to start censoring my thoughts bc someone I know knows my tumblr#u guys literally saw me have LIVE BREAKDOWNS#meanwhile I’ll have the worst fucking day in history and tell no one about it. I’m already cripplingly private but way more so in real life#this is basically a low stress journaling outlet for me. it’s so important for me to maintain the separation#like this is actually my diary & has been so handy for letting out emotions / articulating thoughts / staying on track !!#& I’ve met so many kind people on here who actually get me. which is so hard to find irl bc I’m surrounded by pre-med gunners/overachievers#who are by standard not very good w emotion & can be competitive/judgmental. or at least it’s hard for me to be vulnerable in front of them#and I’m part of that crowd so I reserve my emotions only to a handful of very close friends#it’s nice to hop on here and express negative emotions!! or positive emotions!! just whatever I want and it’s low stress and people get me#I don’t have to worry about judgment or competitiveness etc etc#like everyone on here is so kind & nice & understanding. & just a breath of fresh air from the types I run w. it’s just nice to have this#so idk that’s why I think I’ll always be strict about keeping the worlds separate. it just works#p
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reasonsforhope · 2 months ago
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100% have been perusing your climate change masterpost, and understand you're probably swamped so feel free to delete of course. But if you can find the time, is there any kind of hope to give in fighting climate change now? Can we save ourselves against the oncoming steamroll?
You hang in there too. Thanks for finding the hope among everything else. It feels so bad rn but I have to believe it can change. I hope it can.
Yeah actually I do think there is hope.
Things are going to get rough. Things are going to get worse before they get better, both for the climate and for people living in the US (and for people living in lots and lots of other countries that will be affected by the US election results/the ways the climate will worsen as aa result).
I haven't posted about this yet because I didn't want it to come to this, but now that it has, here's something that people have been quietly saying/research has been showing for months:
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-via Reuters, November 6, 2024
Renewables, especially solar, are just too powerful to be stopped. They just too much cheaper and too much better, and that's only going to become more true, not less.
Also, I think (and hope) it's actually inevitable that at some point, we'll get to net negative carbon emissions. I think it's like solar: the technology, cost, and planet all make it feel like an inevitable technological trajectory, the same way solar tech is on an exponential trajectory. (IF WE WORK FOR IT, OBVIOUSLY, but also so, so many people ARE working for it, have dedicated their lives to working for it)
I sure fucking hope that's the case, anyway.
(You can find my masterpost on going net negative on what that actually means here)
It is gonna happen more slowly and shittily than I hoped, but I do think it's going to happen.
And if we can get to net negative emissions in time to save ourselves (which I think we will, the rates of advancement in many of these areas are very impressive), then we'll be able to slowly start to undo and heal lot of the damage.
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ffcrazy15 · 11 months ago
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Someone needs to do an analysis on the way the Kung Fu Panda movies use old-fashioned vs. modern language ("Panda we meet at last"/"Hey how's it going") and old-fashioned vs. modern settings (forbidden-city-esque palaces/modern-ish Chinese restaurant) to indicate class differences in their characters, and how those class differences create underlying tensions and misunderstandings.
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aethersea · 4 months ago
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I do think Blazing Saddles handled its one depiction of native americans very poorly, and the full extent of its representation of chinese workers on the railroad is they were literally just there. not even one single speaking line. unclear if this is worse or better than the redface.
it's fucking phenomenal at lampooning antiblack racism though. extremely blatant, extremely funny satire, which is constantly and loudly saying "racism is the philosophy of the terminally stupid at best and morally depraved at worst, and we should all be pointing and laughing at them 24/7"
plus the main character is a heroic black man who has to navigate a whole lot of bullshit but is constantly smirking at the extraordinarily stupid racists and inviting the audience into the joke. the one heroic white character is a guy who was suicidally depressed until he met the protagonist and they just instantly became buds, and he's firmly in a supporting role the whole time and happy to be there. the protagonist saves the day with the help of his black friends from the railroad, and uses the position of power he was given to uplift not only those friends, but all the railroad workers of other minorities too, in an explicit show of solidarity.
anyone saying "Blazing Saddles is racist" had better be talking about its treatment of non-black minorities. it had better not be such superficial takes as "oh but they say the n-word all the time" or "they have nazis and the kkk in there!" because goddamn if that's the full extent of your critique I very seriously suggest you read up on media analysis. there is too much going over your head, you need to learn to recognize satire.
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urfavoritemistake · 5 months ago
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i'm not seeing any posts about it here yet, but they solved the silas birchtree riddle on reddit and there's some pretty juicy lore! first, entering "paranoid" backwards nets this conspiracy board:
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then, from the black letters in the corners of some of the pages people pieced together the code "connect the dots", backwards again, gets a whopping 12 page chapter about the ciphertology cult! it's...something.
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so in summary, bill puppeted a guy's corpse, became a cult leader, seemingly married over a hundred people, mass-possessed his followers, tried to get them to build his portal. his lone dissenter was a spinster who made anti-bill chick tracts and started a fire. a waco-style shootout ensued, killing silas' already-rotting corpse a second time in a disturbingly detailed manner. at some point he made some of his followers drink the kool-aid too.
entering the lady's name, emmaline butternubbins, into the computer finally gets you the reward for solving all the riddles: hd wallpapers of various graphics from the book of bill. but frankly this is more interesting and fucked up to me.
(alt text under cut, wip)
[Image 1: A cluttered conspiracy board centered on Bill Cipher. Red string and pins connect various newspaper clippings, photos, drawings and pamphlets.]
[Image 2: A history-book style chapter page. Header "LESSER KNOWN AMERICAN CULTS."
"Have you ever heard of Orchard Lake, Kansas? Chances are you haven't. It was erased from every map, book, and historical record, and the US Government's official position on it is "stop calling us or we'll send a drone to your house." (I learned this the hard way.) But if you drive to the exact latitude and longitude of you'll see bullet casings, faded billboards, and bow ties strewn across the desert sands.
That's because Orchard Lake had another name before it was wiped off the record: BillVille.
CHAPTER 3: BillVille
The First Cult In History That Was Right
FIG A: A tumbillweced
As a historian of esoteric religions, I thought I'd discovered the strangest sects America had yct to offer (see "Chapter 3: Kevin's Gate") but that all changed when I found the following items tucked away in an old trunk in an estate sale on the out- skirts of Bootstrap, Missouri."]
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hypewinter · 9 months ago
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During a press conference for the newest Justice League member, Phantom, a reporter asks him "Do you have anything to say to all the children who aspire to be like you?"
Phantom looked at the reporter puzzled before saying, "Children wanna be like me? Why? I'm a bad influence."
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vivvy-of-the-lake · 6 months ago
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polyamory can never make sense in the eyes of monogamous people who have ultimate faith and belief in the idea of jealousy being universal. When my two girlfriends hang out with each other and kiss I am filled with immense happiness for them, and even without my involvement i am beyond happy that they get to share this experience with each other. It's the same with my friends and celebrating all the successes in their lives, romantically or otherwise. polyamory will always be seen as a doomed structure to mono people if they never stop to question their belief in jealousy being applicable to everyone, and any time a poly relationship does break apart It's ALWAYS indicative of that inherent doomed nature of polyamory.
mono people please learn what compersion is so i can maybe legally marry my girlfriends in my lifetime 🙏
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hxney-lemcn · 3 months ago
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imagine getting really homesick and Malleus lets you talk his ear off about your home world. He doesn't mind if he doesn't fully understand what your talking about, he just wishes he could find a way to mend your longing heart. Find a way to bring a piece of your world back to you so you won't be so home sick, and find some time to enjoy this world as well. You had only offhandedly mentioned that you miss your phone, and if that if you had that you would be content. You didn't expect Malleus to spend hours researching complicated magic. Reading about spells that can bring an object to you, to different teleportation spells and all the calculations one needs for it. Then he tried to find anything about different dimensions...but sadly his effort was fruitless. But he had hope, and he needed your help. He invited you to join him, and you almost freaked out when he brought you to a summoning circle, afraid he was going to summon a demon and you be its sacrifice (you knew Malleus would never do such a thing, but you had a grand imagination).
Sitting on opposite sides of the circle, Malleus took your hands in his own, asking you to focus on the object you've been wishing for, and to continue imagining it until he told you to stop. Confused, but trusting the dragon fae, you did as he asked, trying to ignore his chanting, the sudden change in temperature, the electricity that seemed to crackle around you. Suddenly, your phone appeared in a poof of smoke, and no, not the cheap one Crowley gave you. Your old phone from your home world.
You nearly dropped to your knees and proposed to Malleus right then and there. Instead, holding onto what little restraint you had, you instead leaped onto the fae and hugged him so hard no human would survive. Thanking him endlessly, you pulled away, quickly scrambling to turn on your phone, excitedly showing him images you saved that you had always wanted to show him. Your phone may not 100% work, as you had no data, and it wasn't made for this world...you couldn't be more grateful towards Malleus, and he couldn't be happier as you smiled so brightly at him.
(You go to Idia eventually to see if he can work his technological magic and fix your phone)
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vynnyal · 10 months ago
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Some comics
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kagoutiss · 9 months ago
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pelican town, ‘72
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cubbihue · 4 months ago
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so pixies regularly try to take over fairyworld is timmy on the pixie side?
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At first, Timmy was adamantly against the Pixies. He'd tell Jorgen every time he got a notice of their plans to take over Fairyworld, and work to stop it! But it gets a bit harder to resist against your own court the longer you hang out with them.
In the present time, Timmy schedules to be out of FairyWorld during their takeovers. He doesn't try to stop them, but also refuses to be anywhere near when it happens.
He... doesn't like how he's slowly starting to cheer for them. Or how their arguments are becoming more convincing. Or how he's struggling to recall why he was so against them to begin with.
There will come a point where he becomes an active participant. Timmy worries that it's coming sooner than he'd like.
Bitties Series: [Start] > [Previous] > [Next]
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iknowicanbutwhy · 25 days ago
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"and the universe said the darkness you fight is within you and the universe said the light you seek is within you and the universe said you are not alone and the universe said you are not separate from every other thing and the universe said you are the universe tasting itself, talking to itself, reading its own code and the universe said I love you because you are love." - End poem, Julian Gough
ho lds. g ently ,,,
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