#so it probably has to do with the arthritis
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Ugh the squeezing chest pain is back.
#els.txt#its on the right side and i have no other symptoms besides that so im notlike#'oh shit this is a heart problem i should call a doctor' type bothered#but it really fuckin hurts#usually happens if i spend too many days sleeping on my stomach#so it probably has to do with the arthritis
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BAHGHAHA i am not an artist by Any Means but i decided to draw these two for the first time in ms paint w/ a mouse & why do they look like that. lemm is so small. quirrel is so goofy.
ALSO I DREW HIM AT FIRST WITHOUT A REFERENCE BUT IT FELT SO WEIRD. but then again he looks so cute & authentic as well, with the kris touch™️. maybe i'll draw him more like the second version but with the right horns lol
ok that's all thank you -- i found it rly enjoyable so maybe i'll do this again LMAO
#hollow knight#relic seeker lemm#quirrel#ms paint#mouse art#i'm pretty sure i have arthritis & carpal tunnel so it were rly painful doing this but SO FUN!!!#fun fact one of my oddport ocs has horns EXACTLY like how i drew on the second picture of lemm#which is probably what i thought of when drawing him#kris art
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If you're not having any kind of joint pain today, take a second to thank your body..... And do some stretching RIGHT NOW.
#my right hip has been in so much pain for about three weeks now. i was determined to not let it slow me down on vacation but now that im#home and have less distractions it is KILLING ME!!!!#im gonna talk to my physical therapist about it tomorrow and probably make a doctors appointment unless she can figure out whats up with it.#ive tried EVERYTHING too. I'm doing all the different hip stretches every day. ibuprofen like candy. alternating heat and ice. resting it as#much as possible while still getting light exercise. nothing is really helping.#i have a hunch its something to do with going from out of shape to loving running on the treadmill in a month and a half.....#sudden high joint impact exercise for several hours a week after being inactive for a while you know? maybe i overdid it#but im worrying its something else like arthritis or iliopsoas issues or something because i havent stepped onto a treadmill in like two#weeks now and its not really getting better. so i think something is up.#side note: common advice for joint pain is to elevate the joint above the heart and rest like that..... how the fuck am i supposed to#elevate my hips above my heart???? i cant find a good explanation of how to do that#without bwing upside down i guess lol
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there’s so much i wanna do this week/month/etc but i’m just too sick, i have no energy, i can’t sleep, i’m constantly nauseous and headachey and on the verge of a migraine, i’m stressed and irritable and impatient and panicky…….how tf did i survive nearly 5 years of high school untreated if i can’t even manage this when i don’t have any major obligations rn
#at least i finally got my meds so hopefully i feel a little better soon#although i’m now on 20 pills per day which is Just Great#whenever i’m in remission it’s nice to just. forget sometimes that this can happen at any time#kinda wish i had the typical kinda chronic illness that people talk about with ‘flares’#or at least triggers that i can plan around#the other times have all had an easily identifiable stressor tho tbf. idk what caused this one#the first time was whooping cough and the next few were all very major life stressors like my cat dying right after i started uni#and i think also towards the end of my honours thesis?#but this…….there’s no major stress right now. nothing wildly beyond normal#i’m a little concerned about my joints tho. they’ve been so much worse than normal the last few months#so i’m kinda worried i’m developing rheumatoid arthritis (also an autoimmune disease and it runs in the family specifically)#so if that’s happening then it could set my thyroid off? probably should get to the doctor at some point#obv i’m seeing my endo for thyroid stuff. but i should see my gp and get her to run all the autoimmune blood tests again#i’ve done that before but it’s been a few years and my ankles and knees are so painful i can’t even walk properly a lot of the time#BUT I JUST WANNA DO THINGS I ENJOY AND I CANT AND I WILL CONTINUE TO COMPLAIN ABOUT IT#‘oh you’re so lucky you don’t have as many obligations because you’re chronically ill’ ha ha ha please swap lives with me immediately#personal#but seriously. i wasn’t diagnosed until i was nearly 17 and we can trace it back to whooping cough when i was 12#so it was the last half of year 6 and then all of years 7-10 and the start of year 11 of just being. uh. ‘very lazy and complaining a lot’#and TEACHERS joking about me and my sister (who was dealing with an arguably more severe undiagnosed disease) missing so many classes#wow so funny pdhpe teacher who’s supposed to be teaching is about health#and the thing with being a mentally ill teenager is that hyperthyroidism can just look like a very severe anxiety disorder#so i didn’t go to the dr until i was too sick to go to school at all. and luckily had a good dr who did a blood test#i’m just rambling now because i can’t sleep and i don’t wanna lie here doing nothing#might go play pvz or something. that’s been keeping me entertained
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hey guys
#vent#just... gimmie a sec im gonna put it in the tags i cant find the readmore on my phone rn#im havin a straight up not good time but not the worst in the house!#the worst is my cat. whose old and dying. and i have no money to put to sleep to fuckin put us both outta this misery#typical. she cant get a heart attack and go fast like my moms dog#shes gotta wail and be ill for a month while im recovering from one surgery and trying to get ready for the next#its also an amazing time for my ocd that i learned i have from artists on hear explaining what it is to send me into spirals#over germs. but shes just 20 with teeth and respiratory issues her whole life and been struggling with constipation#so i KNOW how shes dying. shes backed up and hungry and dehydrated but feeling bloated still and not eating or drinking.#shes probably got arthritis and has been moving like a geriatric for a while but its to the point now she wont even lay down. shes just#perched on a pile of towels in the bathroom dozing and occasionally crying for me to come pet her. im so fuckin tired#and theres nothing i can do! the vet i could find a timeslot for in a reasonable time said 500$. so thats cool. im paying 1000$ for me in#a week for my stuff and its just. god all she and i are doing is crying and it sucks ass#she wants company for comfort and i dont blame her - so the fuck do i!#but i cant sit in the bathroom with her my damn legs keep going numb. and my roomate 1) cant emotionally buoy me thru this#and 2) has a long work day tomorrow and its already mad late. sigh#dont try to offer me condolences ive worked thru her dying already its just now we're botb exhausted in the form its taking#if anything i just need another distraction to keep me from spiraling over something again#edit: ARUGH AND THE OTHER CAT THROWING UP IN THE OTHER ROOM. GOD DAMN IT#the younger one has so many allergies and wont stop fucking eating things off the floor babygirl i am BEDRIDDEN you gotta stop eating shit#off the floor!!!!!!!! you have specialty food for a reason!!!!!!!!!!!!!!!!!#awesome it was right in my bed
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tierlist of whether i think some of the disabled gk characters would actually do their orientation and mobility/physical therapy exercises like theyre supposed to
#golden kamuy#DONT ask if these characters are disabled. they are. tanigaki got a whole chunk taken out of his leg remember that. shiraishi has heds i#fucking swear its 99% canon. and tsukishima would probably have to do pt after mukden but also i headcanon he has arthritis 👍#the other disabled characters probably wouldnt need to do much in the 1st place so theyre not on here#ogata has the vibes of someone who wouldnt do any but he rlly worked on his sniping so fucking much in the actual series so maybe he would#ogata is the guy who can hit a moving target at 200 meters but cant pick up a glass and drink from it 1st try#og post
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I had to take poor Lulu to the vet and I love how in part of Lulu's treatment/dispatch notes it says "Please keep Lulu quiet, rested, and inside for the next 7-10 days. There should be no running, jumping, or playing" as if I can realistically control any of these things except one (she's indoors by default) LIKE...... LULU PLEASE........... Lulu the doctor saiid you need to be on bedrest........... Lulu STOP TRYING TO CLIMB ON TAHT ‼️‼️‼️‼️ DON'T JUMP YPU ARE THE EQUIVALENT OF AN 80 YEAR OLD WOMAN WITH ARTHRITIS ‼️‼️‼️‼️‼️‼️ PLEASE
#i'm gonna have to take her again soon which is. aaaugh it's been a little rough......#i think she's okay she just has bad arthritis. which might be getting worse#she was limping and unbalanced and we had to take her to an emergency clinic#it was. so much. i'm still reeling from it a bit#afterwards i had to rearrange my room too to make it more accessible to her (something i have been meaning to do for a long time)#my bed is. so short now. i feel so small (had a loft bed)#being autistic is so fucking stupid like. ohhhh i have to make a major change to my space. i'm gonna cry#but like i DO have to just suck it up bc lulu is more important. i'll get used to it!#i am so exhausted though. i feel so exhausted.#i just hope lulu is gonna be okay. and that she can actually RELAX my god she is SO RESTLESS#but tbh she's probably experiencing this tenfold. she doesn't even know the what and why.#all she knows is she's hurty and she got put in The Box the Evil Box and got poked and prodded one million times#and that wasn't even the end of it. i had to administer oral meds too. she has been SO DEEPLY BETRAYED#she's walking better now though! she still needs more in depth checkups we just. could not do that all at once.#at very least she's had some relief though. which i'm so glad for.
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awww photos app keeps showing me pics of dothcat from a year ago and like. he actually looks so much healthier now :')
#fixing his thyroid REALLY helped#like he's back at a good weight and his fur looks better#and in the last few months he is FINALLY (knock on wood) not tearing up his face#sticking with the hypoallergenic diet has actually helped him. even if it's been harder to deal with his gi problems lol#anyway it's nice cause he's like. pretty old and crusty. so to see he's looking better makes me really happy :)#like yeah he's still got GI stuff and respiratory stuff#and he's old and i think probably getting arthritis tbh#but he eats and he grooms himself and he doesn't excoriate himself anymore#my old man is doing well!!!
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it’s december 31st which means— happy birthday to my beloved fiancé ♡ he’s sooo silly but i just love this old man so much he’s super lame but he means everything to me!!!!
#mika ♡ zhongli#hello guys are you ready to hear about just howwwww muchhhhhhh i love him?!?!#he’s so awful but his voice is so dumb and his face is so dumb and his laugh is so dumb i do not like him at all actually#i’m super super excited for his birthday art hehehe if it’s something cute i’m never ever gonna shut up about it. the diluc childe art#we got this year was really good so i am just begging begging begging for his birthday art to be good too!!!#he’s a huge comfort to me and i just! wowowow i really just love him a lots. i am the no. 1 zhongli enjoyer real and true#he’s always floating in my mind and being silly. i’m :)) he’s just very dear to me guys#more than i could ever properly express#to be honest i get like‚ insanely insecure over this weirdo (that probably has arthritis) but even so! my ship with him brings me mostly–#–comfort and happiness. i’m just glad!!! glad that he exists!!! and that he came home!!! i still remember when i won the 50/50 ugh#his burst art is so pretty and he looks especially handsome in it hehehehe#mr. zhongli has totally captured my heart and i’m looking forward to seeing him in more stuff. more events more artwork more cameos i just-#-miss him so much seriously#i love him i love him i love him GOSH i just have so much love in my silly little heart for him!!!!
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part of me is like "wow I really must be faking this mental illness for attention" when I literally live alone and do not speak about my issues to anyone ever . bitch whose attention do you want .
#“idk if i have a personality disorder” << girl who has not felt like a real person all day#and purposefully tries to “fake it” back to “normal” and cannot.#yeah im not cam actually i domt want to be cam.#i know things about jrwi and the ocean and can draw without getting super exhausted and like the taste of food .#tried 2 do. mac things. to convicne myself we are not actually a system and i am actually just mac being stupid and dramatic.#we have 3 asks abt jrwi on main. started typing something and could not remember any of the characters names.#started watching an ocean documentary. got bored as fuck and turned it off.#have had csp open ALL DAY and have not finished a sinlge drawing.#ughhhhhghhhh. im wasting our weekend by sitting on the couch not being productive. zac and mac are gonna be so mad at meeeeeeee#i havent had the . medical anxiety in a while either but every little ache and pain and whatever im like ah fuck okay we're dying#we may have . arthritis. i dont know . joints have been consistently hurting for like a week now .#i also have not eaten since . 11am which is probably why we feel like garbage rn but#i dont like food!!!! i dont like food and thinking about it makes me sick.#i dont want to be hereeeeeee. i had to be here for two whole days of work this week . its someone elses turn.#🪞#UGHGHH
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Another thing that’s happening is my ankle decided to grow a bone spur. So that’s fun
#i imagine this has been in the process for quite a while but i only noticed it wednesday night when i was sat in my pants waiting for benji#to finish doing his business so we could go back inside#i’ve been having pains in both of my ankles especially when i run basically. which.. i started running in december#so i imagine this has been in the works for that long#i think it’s only come up on my left ankle thus far because i have arthritis in my right knee so i overcompensate for it using my left leg#i was reading through the ways to prevent this from getting worse and it’s all so undescriptive i have to cry#they’re like ‘get shoe insoles’ BUT WHAT KIIIIND#do i get heel cups? orthotics? arch support? like what’s the vibe here#they also said to stop running on hard surfaces and i was like 😭#i run on pavements exclusively because the only large grassy area near me is a sports field and it’s pretty much full of football boys#most of the time. also it’s REALLY uneven. the last time i tried running there i nearly twisted my ankle#i mean you will literally step in an entire hole without expecting it. and that makes my form way worse i feel like#the other option is i literally take a bus to the next town over to run at one of the parks or the beach but that’s.. that’s such a process#i’m trying to work out if a treadmill would be considered a hard surface#i feel like honestly a better pair of running trainers are probably the answer. i could wear my current trainers as an everyday shoe#since i don’t consider them to be like.. bad or anything. they’re sketcher’s arch fit so they do have Some arch support#i feel like honestly taking my slip-ons out of rotation for anything longer than a 5 min walk could help me out#since i genuinely spend WAY too much of my life wearing this 2 year old pair of canvas slip-ons from target that have zero support#of any kind. don’t they call heel spur a ‘pump bump’? well i found the pumps in question#personal
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(Long post, sorry y'all)
A little more than two years ago now, my grandmother passed away. She and my grandpa had moved down to my home town a few years before so we could take care of them. I brought them groceries once a week, helped them write checks, fixed tvs, and found lost things. I was really close with my grandma.
In addition to her hilarious personality and dry wit, one of my favorite things about her was that she was a painter and a crafter like me! She used to crochet, and I took her to the craft store a couple of times so she could get more yarn and books on crochet. But her arthritis and the shaking in her hands kept getting worse, so she eventually had to stop.
She kept her most recent project, a granny square blanket, safely packed away in a plastic bin. She told all of us she was going to finish it one day.
Her hands never got better, and when she got sick, and we found out it was cancer, she rapidly deteriorated.
After she passed, I went to work helping my mom clean out my grandparents apartment so we could move my grandpa in with her. In our frantic cleaning, I found that bin again:
DOZENS of granny squares, dozens of half used skeins. I asked my mom what she wanted me to do with it, and she said she didn't care. I set it aside and later took it home.
Maybe a month later, that tumblr post about the Loose Ends Project was going around. It felt like a sign--I was never going to learn to crochet in order to finish my grandmother's blanket. But they might be able to help!
So I filled out the interest form. They got back to me SUPER quick. And maybe 2 weeks later, I was paired with volunteer in my state (only 2 hours away!) and the box of yarn, granny squares, and my grandmother's crochet hook were in the mail. That was at the end of January this year.
Over the next couple of months, my "finisher" emailed me regular updates on her progress, and asked me questions on my preferences for how she constructed the final blanket.
At the end of August, the blanket was done!
I had always intended the blanket to be a gift for my mother. So I cleaned it up, put it in the only bag I had big enough to fit it, and drove to my mom's. I gave the blanket to her and she was gobsmacked. I explained to her all about Loose Ends, and how someone volunteered to finish the piece for us. She was speechless. (I was quite pleased with this, because I am not the best at giving gifts, so this was a pretty exciting reaction!)
She said that it was the most thoughtful gift she had ever been given. She said "your grandma would love this". To which I replied, "yeah, I know she really wanted to finish it a couple of years ago". But that was when my mom dropped the bomb of a century on me--she told me that my grandma had started making those granny squares OVER 30 YEARS AGO. She had started the blanket when my grandpa was staying in the hospital, but that was back when my mom was younger than I am now! My grandma had packed them all away, planning on finishing it, when my grandpa was sent home from the hospital. Then it went from house to house, from condo in Chicago to their apartment in my hometown. All that time and my grandma had wanted to finish it, but couldn't. First because she was busy, then because she forgot how to do it, then because of her arthritis, and then because of the cancer. My mom said she had given up on expecting my grandma to finish it.
She said I brought a piece of her childhood with her mom out of the past.
And really, all of this is to say, if you have seen or heard about the Loose Ends Project and have an uncompleted project or piece from a loved one who has passed away--these are your people. They were so kind and treated my project with such care. That box probably would have been found by my own grandkids one day if I hadn't heard about Loose Ends.
Five stars, absolutely worth it!
(From what I understand, you can sign up to volunteer too! If you have time to share, it might be worth checking out!)
#loose ends#the loose ends project#joy knits#text#long post#knit#knitting#crochet#crocheting#craft#crafting#diy#crochetblr#yarnblr#yarn#knitblr
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okay like two out of three of my cats are like… on death’s door basically despite them being all roughly the same age and sharing the same genetics (mother aged 16, son and daughter aged 15) and while i’ve accepted that i’ll be exceptionally lucky to get even another year or two with the momma cat (bonded to me) and that her son (bonded to my mom) is not too far behind… despite being the runt 15 years ago, the daughter (also bonded to me) is still quite spry and in good health so i literally tell her sometimes like you’d better live til you’re 20. i need at least five more years with you and also some time in between you and your mom dying. please.
#having old pets is sad#however i could not imagine willfully abandoning an elderly pet#which like… seems like it goes without saying but a lot of people do just decide their pet is too old and surrender it to a shelter#and miss daughter kitty was abandoned at like 10/11 by my cousin she did actually leave our household for a while#like who does that…#i mean no complaints i wanted to keep her when she was a kitten so i was more than happy to take her back but dude after ten years?#and she’s not even old in a sad way yet. and i’ve had her for an additional 4-5 years since#i mean it had something to do with her needing more attention after her other brother died and my cousin having kids and the cat probably#was not crazy about the kids she is very much a grumpy old lady even if she’s still lowkey a crackhead like a much younger cat#she is fat as fuck rn but idk what to do about that while the other two are still alive#like if we feed her less she will just steal more of their food than she already does because theyre too busy having arthritis to go eat#but like… we can’t just feed them less because they have a reduced appetite they still need to fucking eat…#so idk she’ll be going on a diet eventually but it’s not presently feasible#before i moved back in her diet was really strict because she hated my roomie’s cat so much she literally lived exclusively in my bedroom#so like i can adequately manage her diet when she’s not being a thief… but idk how to explain theft to a cat#at least i got her off iams dude idk what is in that shit but weaning her onto better food took at least six months and a lot of vomitting#like not ideal that she’s becoming obese again but she was this fat when i got her too (bc high carb iams diet)#HOWEVER her energy levels (while they’ve dropped since she was a healthy weight) are still wayy higher than when i got her#so getting fat from her high end gluten free purina and her relatives’ prescription hypoallergenic kibble and wet food for extra protein…#every other day (which has kept her from developing any visible muscle degeneration tyvm) is evidently healthier than being iams fat
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I honestly don’t know how to write this; I have spent all week attempting to figure out what to say.
Last Monday I was informed by our factory that our merchandiser and direct point of contact with the factory passed away unexpectedly two weeks ago. She was someone who I have spent a great deal of time speaking to ever since we switched factories two years ago. She helped us realize designs for new products, sent us samples of garments extremely quickly and kept track of all our orders. She went to bat for us if something went wrong with our print shop or if I was unhappy with how a garment pattern was interpreted by their team. As their first American client and a brand that focuses on size inclusion, something that is not typical of their other clients, she handled a lot of crazy requests from us without blinking and she was dedicated to ensuring that both us and our customers were happy. We talked nearly every day, and though it was work related she was one of the kindest people I have had the pleasure interacting with daily.
She was beyond dedicated to her work and to working with us. Turkey has an 11-hour time difference from me in California, which means when she was emailing me at 2pm in the afternoon it was 1am there. You can sure bet that I extended her the same courtesy and tried my best to answer her emails at night too, even when I would rather just be sleeping.
It was also clear just how much she loved her job, and now much she loved you guys. She had been silently watching our social media since we first started working with them. She got just as excited as we did on launch days and would often email me unprompted about how she was glad people were leaving such positive comments and reviews. She read your feedback when no one ever asked her to do that or even expected it of her. She did it because she really, really cared.
Even though she was miles away and we never met in person, she was like a coworker to me and the loss of her is like losing someone on our team.
The Maya Kern team, as a whole, has been dealing with a lot lately. I personally just moved (which took far longer than we expected) and Maya and Devin are gearing up to move back to Minneapolis pretty soon. With the loss of our merchandizer, it has taken the wind out of my sails a little bit. I was trying to push through, even though I am exhausted, and carry out the photo shoot for our new products this weekend, but it has become clear that my body just can’t handle it. My arthritis has finally told me to stop moving, so unfortunately, we are going to have to reschedule the shoot for later on.
We are doing everything we can to make sure our next product drop on the 21st still happens. But as of right now, due to this sudden loss, the garments haven’t even shipped from the factory yet and I am not optimistic that they will clear customs and get checked into the fulfillment center in time for the launch. This means the drop is likely going to be pushed back to December 5th and instead of a full photo shoot, we will probably have to settle for taking quick photos of everyone at home, and likely with our phones.
We work really hard to deliver not just garments we believe in, but also pictures of said garments on bodies that our customers can relate to, and unfortunately I just do not think that is possible this time. As always, we really appreciate your patience and understanding during what has been a very difficult time for us.
Ash
Chief Operations Officer
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When The Snow Melts
Warnings: MDNI, soft sex, virginity loss, angst, and some spoilers for those who aren't familiar with Zayne's lore. A/n: Curiosity got the best of me. I wasn't playing LaDS when the Master of Fate card came out so I went to YouTube and immediately regretted it. Like can this man not catch a break? He sacrifices himself again? I couldn't leave it, so this me, correcting the wrong. A fix-it fic if you will. Because I need Zayne to win, at least once. Also, since Zayne appears according to how MC perceives him, I do believe he will have aged exactly as she has.
The night is bright, and the small cobbled lane you walk on is lit with lamps. The streets are bustling with life. The feeling of excitement, togetherness, and aromatic food graces the air as you wander closer to the town square. Another festival, similar, yet not similar, to the countless ones you’ve seen with your keen eyes.
You’d wanted to be in company, maybe see the world when you were young, and the curse that was also a blessing was granted. Your body, now wispy and weathered from the years spent wandering cannot move as quickly as you used to, the ever-reminding aches in your joints, the beginning of arthritis weighing down in your bones. Yet you still had a zest for life. Because what else could you do but seek, and take in everything that life had to offer? How could you not? Because it was the grace of the god that allowed it and the terrible price that was paid for you to experience it.
It had been decades since you had last seen the god. You had traversed as far as you could, carrying your umbrella with the everlasting snow coating it like wool on a freshly birthed lamb. The things you had witnessed! Ships with sails as tall as oak trees, strangely flavored meats and delectable sweets, festivals where people had danced, music from instruments brought in from faraway strange lands. You had eaten, traveled, danced, and sung, picking up small jobs to afford simple pleasures. You were a quick learner. Once you were a seamstress helping a small garment shop, another time a jewel polisher. You had even worked as an errand maid for an elderly couple who were profuse with their thanks and offered you a roof over your head for a short while. But staying in one place wasn’t an option. You had to keep looking after all. How else would you find him again?
As your feet carried you into the square, a burst of light and color filled your vision. It’s so lively, as the people flock to the different food carts, admiring the small handicraft booths, and singing folk songs well known to all those who grew up in this region. Children joyfully chased each other, dressed warmly in bright clothes. A hint of winter was already in the air. Based on what you had observed, this festival was celebrating the end of the harvest season, probably one of the last for this year until the harsh snowfall of winter faded. The breeze, not quite chilly enough to make you shiver, felt comforting on your face.
You supposed you could work as a midwife again. Midwifery was good work, reliable since winter did not stop the delivery of children into the world. It could also guarantee a place to stay if you played your cards right, though you hated staying in one place. The nomadic lifestyle you had adopted suited you. And the winters made you nostalgic.
It made you long for those days before you had picked up this umbrella and set off to see the world. Of amber eyes flecked with green, like the jars of whiskey at the inns when the early morning sunlight brushes against them, bringing forth colors hidden in the dark glass. Or of soft hands, covered in scars, and whispers in your ear of sleep, of priestesses calling gods down to earth to make love to them. Sometimes the memories consume you to the point of anger. How dare he leave you? With no explanation as to what his blessing was.
You vaguely recall those days, back when your fingers weren’t gnarled and wrinkled, your face unblemished by the years in the sun. All spells have limitations, he had said. But he also said he had taken care to make the spell extra strong since you were particularly clumsy. The snow had to melt sometime…didn’t it?
A drum begins to pound in the distance, and the crowd gathers around the stage that had been set up at the far end of the square. You halt at one of the carts to buy some fried chicken skewers. The vendor looks curiously at your umbrella, something you have grown accustomed to over the years. After all, snow that doesn’t melt was bound to bring questions. You had woven a different story for each city you had passed through, sometimes recycling them when you didn’t have the creativity to spin a new one. Initially hesitant to reveal how the umbrella with the everlasting snow had come into your possession, you had tried to pass it off as a novelty accessory, crafting tales of snowy mountains and how it was all the rage in those areas.
As the years passed by, your tongue had loosened. Or perhaps the indignation of him disappearing had made you reckless. Although you still hadn’t said the full story, you’d managed to finally say it was a blessing from a god, shocking the non-believers by letting them touch the snow, their gasps of awe as the cold, wet, powder clung to their fingers falling satisfyingly on your ears. Tonight, however, you were in no mood to entertain strangers. You smile politely as you hand over your coins to the vendor, take the food, and walk away towards the stage.
The sounds of a flute and an erhu accompany the drum. Elaborately dressed dancers are swirling in coordinated grace on the stage, enacting a scene from an old tale; the common man sending off the goddess of harvest, thanking her for her blessings that year, and praying to the god of winter, that he be merciful to them and allow them to live to see another spring.
You were skeptical if these rituals really worked. The first autumn after you had been gifted the umbrella when the air started to show signs of change, you had danced, danced amongst the trees that were close to shedding their vividly colored leaves of red, mustard, and yellow. You had prayed your heart out, prayed so hard, danced so long that the soles of your shoes had almost worn out. You had danced till you had collapsed with exhaustion, falling asleep on the leafy floor. You had been so sure that it would work, that he would show himself, and when you awoke, it was with a heartrending pang that you realized you were alone. It hadn’t worked. Wherever he was, the god of the snow wasn’t visible to your eyes. It was the first time you had allowed yourself to cry in all those months. Had he really believed this was the better choice? That to leave you behind without telling you what was going to happen to him would make you happier? That was the worst part; not knowing if he was alive, existing somewhere you couldn’t journey to, or if he had given all his power into making the snow that had fueled your existence, and lost himself with it.
The music becomes faster and the dancers move until the stage is a blur of color. The audience claps as their movements become sharp, with an artistic precision that only years of practice could hone. The last note quavers from the flute and rises into the night air. Cheers and whistles erupt all around you. It was a beautiful performance no doubt, but despite finding it captivating, it also left you feeling hollow. Finishing the last of your fried chicken, you begin to wander amongst the townspeople, enquiring about work that could be had for the winter.
By the time the square had cleared up, and the last of the festival-goers had returned home, you had secured a job; a bakery was in desperate need of an extra set of hands. The pay wasn’t much but the woman had offered food and board and you had accepted graciously. As you sit on the stone steps of your latest lodgings, you gaze at the moon.
You want to not blame him, to not feel this heavy weight that you’ve carried inside your chest. You know you should be grateful for his sacrifice which enabled you to see so much of the world, and at the least, you weren’t alone. The incident with the people in your village was a distant memory, replaced with so many more pleasant rememberings. Plucking apples from an orchard with trees growing as far as the eyes could see. The feeling of a newborn baby, screaming with the rage of life and the mother wiping tears of joy while offering you her thanks. The herbalist with his toothless smile as he showed you which plants were medicinal and which were poison as you plucked various flowers and leaves and dug the earth for rhizomes of turmeric and ginger.
You were a well-traveled woman, knowledgeable in all aspects, a rare luxury during this time, you knew. Yet for each memory that stayed clearly in your mind, there was a sense of loss. Everything tied back to him, and you couldn’t bring yourself to forget him, even in your old age, and even with the passage of time.
The spicy bun the baker had offered you was good. You savored its flavor on your tongue, naming the constellations visible in the sky as you did so, the short astronomy lesson from a young scholar in some past time proving useful. It must be close to midnight based on how still the night is, the whispering rustle of dead leaves as they skitter across the ground audible in the background. With a sigh, you carefully get to your feet, your joints creaking as you rise. As you reach for your umbrella, you pause, fingertips hovering over the handle.
Surely you were imagining it? It must be a trick of the moonlight. The last of the lamps were dying, the faint light casting shadows across the walls of the dwellings. Yet your aged eyes couldn’t shake off the feeling. You stare intently at the umbrella, more so, at the snow perched on its upper slope. A fine sheen of condensation coated the umbrella, surrounding the powdery snow. Had you somehow gotten the umbrella wet? You kneel, observing with fascination as some of the condensation gathers, becoming fat droplets of precipitation, and rolling off the sides.
You’re awestruck. In all your years, the snow had never melted. It had never lessened nor increased but always stayed the same. But now you can see how the powder was turning watery, steadily dripping down into the cold ground. You trace a fingertip on the trails of moisture along the sides of the umbrella, and that’s when you hear it; the unmistakable twang of a guqin.
You had never encountered a guqin again, not since the night he had played one while you danced for him. The unmistakable notes now begin to form a melody. You look out into the empty street and see nothing. But the song was filling your body like the warmth of a fireplace. Your limbs involuntarily stretch out as your eyes close, remembering the movements you had learned so long ago and sworn to never repeat after the failed attempt to call down the god. Your legs feel unsteady, your hands clumsy, a far cry from the controlled accuracy of the stage dancers. Your joints begin to sear as you move, unable to stop the actions. Oh how sweetly the instrument sang to you!
There’s a sharp pain in your heart, not from the ache of moving your tired extremities, but from the grief bottled up, adding on year after year. There’s resentment, but underneath it all, there’s a strong yearning you’re unable to put into words. How do you describe it? The loss of the only person who seemed to understand you, who helped you control your power?
You knew he did something when he placed his spell because, since that day, you hadn’t been able to harness your powers ever again. He had ensured you could live your life as a normal human being. Before knowing him you would have done anything to not have the power. But the cost that came with it was too much to bear. You weren’t alone, yet you were alone. So of all the days, why was the guqin playing now?
Tears roll down your cheeks as you dance, letting loose your sorrow to the crisp night breeze. You feel like each nerve in your body is frayed, all consumed with the bits of memories you had of him. It takes you a moment to realize you’re not dancing anymore. The guqin has stopped playing. You’re standing in a pose, your head lowered, facing the steps you had been sitting on, and the umbrella leaning against them. Shock passes through you.
The umbrella was completely devoid of snow. The only evidence it was there was the puddle of water that had gathered beneath it, muddying the grass.
“Why are you so surprised?”
Your heart skips a beat, then begins to hammer in your chest like a frantic bird trapped in a cage. The deep baritone voice tinged with a hint of sarcasm calls out to you gently. You can’t seem to be able to move.
“It can’t be.” You murmur, gripping your elbows, trying to calm yourself. “It can’t be. I’m dreaming.”
“What are dreams if not another reality?”
It takes all the effort in your body to not collapse to the ground as a sobbing mess. You turn slowly, as though giving the voice a chance to admit it was a figment of your imagination but it doesn’t happen. Your breath catches in your throat as you see him, at last.
His dark hair has tinges of gray in it, and crow’s feet are visible near the corners of his eyes, but the gentle upwards curve of his lips, the broad shoulders, and his pointed chin are all recognizably familiar.
“Zayne?” You let his name fall from your lips, sounding like a strange word, lost to your vocabulary from the years of disuse.
He nods, then stretches out a hand to you. At first, you’re at a loss about what you should do, then, with as much speed as your wizened knees allow, you run to him. He’s solid and grounding, his arms wrapping around you tightly. A brief lick of rage crosses through you, but when you open your mouth to let loose your diatribe, all that comes out is a sob. Your tears flow freely, staining his robes, and you feel his gloved hands gently combing through your hair.
“I’m so sorry,” he murmurs, his chin resting on top of your head.
“Why not tell me?” Your words are choked, your body shivering as you cry.
Zayne leads you to the steps and helps you sit before occupying the space next to you. He leans you against him, your head resting comfortably on his shoulder as he takes one of your hands between both of his. He sighs deeply and his voice, though calm, is filled with regret as he speaks.
“How could I tell you? What would I have said? How do you tell someone special to you that their life was in danger?”
You blink back tears. “Danger?”
“There was a powerful entity after you. I did what I needed to do to protect you.”
“Why was it after me?”
Zayne pauses, as though considering how to word his response. “It was convinced you would bring about a cataclysm, and the only way to prevent it was to take your life.”
“But… I don’t understand. How did your spell prevent this? Now that it’s worn off, won’t it come after me again?”
“No.” Zayne wraps his arms around you, his body bringing warmth into yours. “Even cataclysms go away if given enough time. But the harder part was figuring out how to suppress your abilities until that time passed.” He sighs deeply, gathering you close. “The spell on the umbrella was the only solution I could think of, without restricting your freedom. Regrettably, sealing your power meant taking away your ability to perceive me. I never intended to make it permanent.”
“Why not tell me?” You repeat the question. Zayne raises an eyebrow.
“If I had told you the spell would wear off, would you have left the mountain?” He brushes your cheek with his thumb as he takes in your face, his eyes softening as he looks at you. “I know you. You would have spent all these years in isolation, waiting for me. I didn’t want you to miss the opportunity to live. A normal life seemed like the best option I could give you until enough time had passed.”
You’re silent as you let his words sink into you. After a gap, you whisper, “I missed you.”
“I missed you too.” His thumb caresses each of your fingertips in turn. “But know that I watched over you every day. I saw the world through your eyes and felt your sense of wonderment in my heart. The day you danced so hard for me that you almost fainted from exhaustion-” Zayne draws in a breath and his voice quivers as he continues. “I was in tears. I wanted nothing more than to reach out and comfort you. I was there, separated by a veil, but I felt your pain.”
“That was the year the frost came early.” You recall the memory.
“Indeed. I couldn’t control my grief. I didn’t know how else to let you know I was there, except to cover the world with snow.”
You glance over at the umbrella. “Will you disappear again?”
“Not unless you want me to.” One of his large hands rests on your knee. “I understand I’ve angered you by acting without telling you everything. Is it enough that you don’t want me around?”
You shake your head no. Your momentary anger with him had faded, like the night giving way to the sunrise. “There’s nothing that could keep me from wanting you. I made many acquaintances throughout my life, but the one person’s companionship I yearned for was yours.”
“My beloved snowflake.” Zayne embraces you tenderly. “It was fate that led you to me on the mountain that day. And It was fate that finally broke the spell. We’re all bound by it, even me.”
“Are you?”
“Yes. Otherwise, do you think I would have kept you sealed for so long? Even gods must play by fate’s rules.”
Silence falls between you both, the breeze ruffling your clothes. You become acutely aware that he’s gazing at you, and when you turn to look at him, there’s such tenderness in his eyes that it makes you blush, even at this age.
“You’re beautiful,” he utters, tucking strands of stray hair behind your ears. The amber in his eyes glows as you stare back, captivated by how handsome he is. Your memory didn’t do him justice. You cup his cheek.
“Is this our happily ever after?”
“It can be if we choose it to be.”
“I do. Wholeheartedly.”
Sparks fly between you and almost as if the both of you are following a rhythm, your lips find each other in the darkness. It’s odd because, in the passing years, you hadn’t imagined what his lips would feel like against yours. You had fantasized about lying next to him, listening to his heartbeat, about taking long, leisurely strolls while holding hands, and about the possibility of letting him rest on your lap while you played with his thick locks of hair.
Now you’re glad you hadn’t tried to imagine it because the reality was sweeter than any dream you could have conjured, the warmth and softness of his mouth, the taste of his tongue as it slips past your lips, the possessiveness in his grip as he molds your body against his, as though silently claiming you. There wasn’t an inch of you that didn’t ache for him. When he pulls away, there’s desire flickering in the depths of his eyes.
Wordlessly, you take his hands and get to your feet, quietly pulling him inside your new quarters. You’re careful to not wake the baker; it was quite improper to invite a man into your room, but you didn’t care. You lock the door and allow Zayne to sweep you away.
Clothes slide to the floor, a whisper lost to the dark. There’s no shame as you reach for each other, hands relishing the feeling of skin, enjoying the contact between your bodies as he gently pulls you onto the bed. His lips leave trailing kisses on your skin, no longer supple like the young woman you once were, but worthy of being worshipped irrespective. You wonder if this moment would have felt different if you had consummated this relationship when you were younger but realized you had little choice in it. If the Master of Fate couldn’t control when things happened, then what good was it to think about what could have been?
Instead, you focus on him, on his skin flushed with vitality as you nibble his ear, shyly running your tongue down his neck. He suckles at your nipple, and pleasure, unlike anything you’ve ever experienced radiates into every part of your being. You feel his erection graze your belly as he patiently kisses you, moaning into his mouth as his fingers stroke your sex, finding the little knot of nerves that makes you close your eyes in ecstasy.
It’s all slow and unhurried, and when you finally gasp out your climax, he eases his body into yours. There’s pain, but only for the briefest moment, then as your body stretches around him, you feel a powerful sense of intimacy as he thrusts, his movements passionate and loving. He gathers you tightly against him whispering the same thing over and over as he empties himself.
“I love you. I love you I love you I love you.”
A weak ray of sunlight peeks through the window when you wake up, and you panic for a moment when you see the bed is empty.
“I’m here my love.” Zayne’s voice immediately reassures you and you see him stoking the fireplace. The small flames crackle merrily as he makes his way back to bed, pulling you against him and stroking your skin. It had snowed overnight, and the landscape was now unrecognizable, covered in a fresh coat of it.
“It appears grief isn’t the only thing that can cause the god of winter to make it snow,” you tease and Zayne good-naturedly smirks at you.
“Indeed. All thanks to you.”
You giggle, a soft sound that fills him with joy.
“I suppose we’re stuck in this village until winter ends. Makes no sense to wander for now.”
“Agreed. I suppose I can set up shop as a fortune-teller, or maybe as a herbalist.”
“We’ll decide what to do when spring comes.” You settle against his chest, finding comfort in the scent of his skin.
“The snow has to melt sometime. But we’ll survive. Together.”
“Together.” You agree, and lay your lips over his.
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I probably have hEDS, have had tense muscles since I was 8 and more and more of my joints started to be in constant pain, 10 years spine, 14 years hips, then hands at 19 and now all of them. And though I'm over 40 and don't practice any stretching, I still can contort myself in any direction.
But I don't know if it's worth the energy to fight for a diagnosis? Because it doesn't seem like there is any help, other than mild painkillers and physiotherapy, and I already get that. It is so much work to convince doctors to look into the source of joint pain, as soon as they can rule out rheumatoid arthritis they stop caring. And I don't belive I will get stronger painkillers even with a diagnosis anyway.
Do you think a diagnosis is woth the hassel?
For me, diagnosis was worth it because it meant getting the correct kind of physical therapy, which is often very different from the regular kind you usually get if the physical therapist is good at their job.
Regular PT used to damage my joints more. PT designed to target hypermobility has actually helped build joint stability, retrain my muscles, and reduce some of my pain by lessening the frequency of injuries.
It’s also good to know because hEDS affects more than just your joints.
I have a lot of problems with my internal organs due to how my connective tissue is affected, and my brother, who is undiagnosed but likely affected, suffered from spontaneous retina detachment twice. When I mentioned it to my eye doctor he said, “yeah, that happens to you zebras” and now I get my retinal health assessed every six months because fuck that.
It can also be good to know because of how it affects your care during things like surgery, ranging from which anesthesia they use to the type of sutures required.
When my mother had a mastectomy, she experienced several surgical complications, including not being able to get the wound site to close, so they kept dragging her back into surgery.
When I found out, I told my dad the surgical team needed to know my mother likely had hEDS because I did, and my mother and I are carbon copies of each other. When my dad told the surgeon, he apparently said, “Well, if I’d known that, I’d have done the whole thing differently!” and finally got my mother stitched up properly and into recovery.
In that regard, my diagnosis helped not just me but a family member, but also indicated the type of care I’ll likely need if I’m ever in the same situation.
So, yes, it's a hassle to get diagnosed and some (bad) doctors will frame it in terms of “there’s no cure so there’s no point.”
But for me, it’s not only been worth it but also vital to the management of the rest of my care. And let me be clear, there are some people for whom this is just a crappy joint disorder, and they are otherwise fine. But for many of us, we’re more than just our fucky joints. We’re an entire plethora of health problems that all cascade from our weak connective tissue, and it's important more people recognize that.
So is it worth it for you? That's a you decision. But it was very much worth it for me.
I wish you luck and fewer days of pain. This shit sucks.
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