#really disabled

[ash-alder]

I

1) take a fuckton of meds

2) have somehow become an organized person

3) cannot see a blank surface without decorating it

So….

[doctorwyvern]

hey i hate that covid is being treated like it’s no big deal now a days. if i get covid again i’m going to be hospitalized again. don’t come around me because you have covid but ‘feel okay’. when i get covid from YOU i’m not going to feel good i’m begging for once in ur life think about people other than yourself

[demonboyhalo]

collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it

if you have even a dollar to spare, please consider donating to Alaikum's family.

they're a large family at only 10% of their goal to evacuate, and could use any help you can give!!

[inksplit]

[bee-fox]

I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.

[50stressballs]

Dude for real though your worth as a human being is not dependent on how productive or “useful” you are. You could do nothing but lay in bed all today and you’d still be worthy of respect and care. Bro you are a living breathing human being and your life has inherent value. Like straight up you don’t have to do something impossible or world changing with your time on earth in order for you to matter. We are all specks of dust in the cosmos and the fact that you exist at all means you are important. Dude you don’t have to earn the right to live bro, like I swear bro, like no cap.

[duckdotimg]

Got tired of seeing moeblob young catgirls. Give me butch and GNC catladies in their 40s and 50s (more will be drawn)

[giantkillerjack]

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

[plain-text version of this post can be found under the cut]

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

Plain-text version:

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

P.S. Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

[luckypebble42]

It's me. I'm Chronically ill bitches

[nightmaretour]

Okay now I've gotten myself angry again. Every time a medical professional is abusive/neglectful the overwhelming response is "Their job is so stressful and underpaid! They deal with so many rude and abusive patients, of course they're like that!!"

You know who else has stressful, underpaid jobs and deal with rude and abusive customers a lot? Retail workers. But if a retail worker started assaulting all of their customers you'd hear all about it, wouldn't you? The consequences would be enormous, and there would be an overwhelmingly negative response, even if it was exclusive to rude customers.

Now imagine this was the norm, and it was socially acceptable, encouraged even, in retail jobs to abuse and assault your customers whenever you feel like it, for any perceived sleight, just because they need to buy groceries and you have to serve them. It would be all over the news, it would be an international scandal with arrests all over the place, there would be exposés of the secret culture of abuse and assault in retail workplaces on every channel and news source with interviews with the victims. Everyone would know about it and everyone would care, because of course that's fucked up.

So why is it different when your victims are sick and rely on you to survive?

[decora-kai]

Ive seen posts about how disabled people should be able to have hobbies and how we should be able to do things that we like if we enjoy it and if it doesnt hurt us, and yeah I totally agree, but like unpopular opinion ig, let disabled people do things they enjoy even if it hurts them.

I, as a chronically ill person, have things I enjoy doing that arent that good for my pain levels. For example, I enjoy going on walks, just for like an hour or so around my town and in the forest. I will most likely have a flare up the day after/for a couple days after and my legs will be aching most of the way through walking but I love it, not the pain but the walking and seeing places (specifically the woods, i love the woods so much omdddd). Another example is video games, which may sound like an odd thing to flare from for some, but with fast paced video games on console or pc, my fingers get very stiff and achey from moving around so much so quickly, and it tires me to have to even use my eyes sometimes but I really like playing them.

Obviously there are way more examples that I've missed but the point still gets across. Let disabled people have hobbies, even ones that may mess up their pain levels, or make them extremely fatigued etc.

[doctorwyvern]

being disabled is so stupid yeah you’re experiencing symptoms. yeah it’s pretty scary you should go to the symptom identifier.m it costs 500 dollars and they don’t like to believe you. yeah. yeah nothing you can do about it your symptoms won’t be identified. sorry bud pay me 500 dollars

[ancient-reverie]

a moment of silence for all us disabled ones who had to watch each of their friends move on with their lives without you and get jobs, go to school, have partners come and go, get engaged and move house etc.

shout out to my fellow struggling people who are still sitting in the same bedroom they grew up in. the ones who can't get a job, can't make new friends, can't find a partner or partners, can't move house and can't go to school.

I hope one day we can all find someone to at least sit with us in our rooms. I see you and I understand... and I'm sorry we can't be that person for each other

[ratbastarddotfuck]

if you're a white person taking pleasure in the idea that Trump voters of colour are experiencing racist violence from white trumpers because "they got what's coming to them" I don't think you're anti-racist at all, I think you were just waiting for an acceptable target, and you're also fucking weird.

Bad Person Deserves Punishment For Their Sins give me a fucking break and get yourself out of the fucking catholic church. you're all prison abolitionists until you see someone you don't like.

[midnight-soulless-system]

Being disabled and a person of color is so different to being disabled and white. There's so much extra stigma and prejudice and just shit that us PoC have to go through with doctors and friends and just the world to get what we need and want.

Idk, I just don't see a lot of posts talking about what it's like being a person of color and disabled (especially when you're more dependent upon others) so, feel free to share you stories.

[giritina]

I think a lot of people who get into discourse about it/itself pronouns or other niche queer expressions of the self like neopronouns miss that these things are supposed to be subversive. They see someone saying to call them pup and think that person must not see the absurdity. They see someone going by it and think they are unaware that that sounds derogatory. Like these actions would not have meaning if they were normal and not absurd or unsettling. The person using its doesn't need you to insist that that pronoun is never derogatory in its defense... I'd be shocked if it wasn't choosing that pronoun because it sympathizes and loves and lives in the space of the derogatory. Some of us are maligned and strange and freakish. Some of us are unable to escape being identified as other. We all find our way of navigating that life, some people are not going to choose to do it in your way. When they choose those pronouns they're asking you to participate in humanizing the derided. I think that's a great thing to be invited into