#posture punk

[theanharchist]

Thanks Variety Lights 4 killing Daniel a dumb shit as fuck valedictorian Slav and making him into cover art and marking the single as 2012. I hate Daniel.

I hate his androgyny it’s so homosexual. You’re already European so you had to pick one. *screams at his skinned face hanging at a gallery in rage*

You can’t be European and homosexual it’s greedy. You can be American and just leave it there without screaming homosexual and no homo at the same time. This guy was both gay and a homophobe. I hate Daniel.

I hate closeted gays. I love gays though. Just be honest with yourselves. *kicks tin trashcan with steel toe shoes and it hits a greyhound dog and kills it in my script*

I like how they skinned his blue eyes to reveal what they actually are through their Cambridge lasik surgical .00000000000000000000098744 mm pen point.

#PunkPosture

[spoonfulofhannah]

As a chronically ill person, I’m not resting because I want to. I’m resting to avoid getting worse and because my body has given me no choice.

[justsomerandomgay]

EVERYBODY STOP WHAT YOURE DOING I HAVE THE BEST NEWS! I GOT A WHEELCHAIR!!!!!!!! I CAN LEAVE THE HOUSE ALONE AGAIN, I CAN BE SAFE AND INDEPENDENT AND HAPPY AND SEE MY FRIENDS AND HAVE A LIFE AGAIN!!!!!!

[getshitposted]

you know when you're in a lot of pain

[tired-cripple-punk]

Why are some doctors fucking useless

I was hoping that appointment would lead to something helpful, but I just got told to suck it up and go to physical therapy

I’ve had chronic lower back pain for almost 6 years, but the jackass didn’t bother to read the xray report so he didn’t see the notes

He was nice but didn’t listen to me, and dismissed my concerns

[eliana-system]

please be aware that disabled people are not "against exercising"

Some disabled people's symptoms worsen when exercising and they can't affort that while holding a job/studying/making an ssi application

some diasabled people cannot exercise unless in physical therapy, which they may not have acess to.

Some disabled people risk hurting themselves permanently by exercising

A lot of disabled people do exercise but abled people don't consider it exercise because it isn't normal enough.

Most disabled people have been told to "just exercise" or "try yoga". Most disabled people have been guilted into thinking it's their fault because they're not exercising or not enough. Most disabled people feel like shit when you bring up exercise because they'e learn it's followed up with either a lesson on how they can "cure their disability" or how they're "letting themselves go"

Some disabled people get trauma response by people telling them to exercise, or that execise is good for them even if that is true.

When someone tells me exercise is good for me i have to stop myself from sobbing on the spot. Because my dad and doctors told me i should just exercise no matter how many specialist's letters i have saying i risked permanent damage. Because my physical therapy is right there, i just can't acess it. Because all the ressources are a subway away and i'm being denied them. i'm being told to way for a year and a half while i watch my mobility and pain worsen, knowing it could be getting better. Because it reminds me how abandoned i am from people who could save me.

Because telling disabled people "exercise is good for you" or "have you tried exercising" is an insult to how much they want and are trying to get better. This is getting in the "i know better" position and getting mad when you do not know better.

[hellyeahsickaf]

You are not a burden for needing help

You are not a burden for taking space

You are not a burden for needing accommodations

You are not a burden for having visible symptoms

You are not a burden if you can't keep up with everyone else

You are not a burden if you can't always give time to others

You are not a burden for being disabled

You are not a burden for accepting your disability

You are not a burden for struggling

You are not a burden for being dependent on others in any way

You are not a burden on bad days or during flareups

You are not a burden for falling apart

You are not a burden

You are not a burden

You are not a burden motherfucker

[beranibear]

Something that I will never understand is how accessibility is always an afterthought. Wouldn’t it just be easier and cheaper to build accessible unisex toilets rather than a bunch of random gendered ones?

Gendered toilets is such a bizarre concept to me. Some people claim it’s for safety but if a creep wants to go into a toilet and creep on some people nothing is stopping them? Plus I know a lot of my guy friends wouldn’t hesitate to kick out and call out someone creeping on a woman for example.

It’s just like how TERFs don’t want transgender people in bathrooms. Hello?? Don’t you realise there is literally no law that is preventing anyone of the opposite sex from walking into the others bathroom. It’s a public toilet, a guy could walk into the woman’s bathroom if he wanted too, there is no laws or rules. God forbid “someone pretending to be a certain gender” walks in and uses the bathroom.

Plus why do I have to go walk to the other side of the shopping centre to find one that’s accessible and has a handrail, seems pretty stupid to make people who are assumably physically disabled travel to some random corner out of the way to use a bathroom.

Fucking weirdos.

Edit: I’m talking about the laws (or lack of laws) exclusive to Australia. I have not been to other countries while legally (or otherwise) identifying as Nonbinary so I can not speak on experiences elsewhere.

[bold-tachycardic-baby]

Why can’t people understand my anger at medical professionals? I logically know it’s because they’re able bodied and have likely never had a bad experience. But why can’t they use a bit of compassion to see the problems with healthcare? Let me be angry at being treated poorly. Let me be angry about the state of our healthcare system. Let me be angry.

[theanharchist]

I lost 5 more pounds this morning. At 110

Feel so much better. I can’t go back to eating meat for a second here to heal my body and it is working at the speed of light no more no less. 🧐👍 post workout yesterday, organic fruit and oats and milk, organic fresh ground coffee after or during my dinner of the organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic organic kale garbanzo soup n organic rice. But never ever a bowl full of rice. Like a spoonful. I was full as well. So that reaped a ton of weight loss and my body workout on the yoga mat was hellA. It has to be post cardio or you build or bau your fats. Not for inspo though. But yeA you gotta metabolize it sprint and then body workout to retain frame. I had 0 dairy yesterday. But I have yogurt to finish…organic yogurt. Super important for the skin. In my opinion.

But I owe it to Dr. Teals brand lavender Epson Salt. That soak allowed my skin to fold in order for weight loss to occur.

pUnK posture core or posture punk core.

Song of the day is an immaculate Panoram acoustic bass strumming break and freeze style:

I love cream cheese wontons though baby and I’m so good at making Eggrolls. Who is baby(?) I’m singing to 5’7 Portland Michael.

Ethan: Fuck Jung. *takes off muscle tee and underneath is a turtle neck with 66 pages in red italics printed center position…to avoid his whore energy*

I realize that Ethan has revolved his entire life making fun of Red in a hipster way but Republican sharks are going to fucking notice man and then you just look like a location marker wearing white shirts with red hem.

I actually hate this band it’s so stock image. At any second I’m going to binge beach house to wipe this Tycho shit out of my vessel but I did listen to them to overwrite what happened or was witnessed during my vacation in the Midwest with my parents.

How do they call this track music(?) don’t go there. If I chose ambient it would be no ambient track so I’d never choose ambient.

No it’s good but I have a slice of anger at it because my punk side just wants to rage and I could mosh to this. I will with visuals in my room projecting. Imagery of flowers blooming, moshing, to Panoram.

[curlyhaircripplegf]

my current thoughts on mobility aids I've used

Unassisted walking

Pros

Not feeling judged 

No jokes at my expense

Cons 

Ouch 

Fatigue

Cane

Pros

Reduced fatigue

Able to take weight off one problem area at a time

Cons

Hurts shoulder 

All weight on wrist

Can only assist one leg at a time

Crutches 

Pros

Able to switch gaits to take weight off problem area(s)

Very stable and balanced

Can move quickly

Significantly reduced fatigue (still affected by inclines)

Cons

Cannot hold anything

Difficulties opening doors

Difficulties going upstairs for non-fatigue reasons (you try walking upstairs and also carrying two big sticks, it's difficult)

My arms get tired (they’re getting stronger)

People love to stare

[justsomerandomgay]

can we talk about how dehumanising it is when a doctor tells a patient to crawl through their house when they ask to get a wheelchair.

[talkethtothehandeth]

Here’s a reminder that you don’t have to faint to have pots, and your pots is literally just as valid as anyone else’s, even if you never faint.

I always dealt with presyncope, never ever syncope. But my body decided to change it up this year, and now I’ve been dealing with the ✨ fainting episodes ✨ that have happened both in public at at my home.

I never ever thought I would actually faint, I always thought that it wasn’t “that bad” because I never fainted, I never went unconscious so what’s so bad about it, right?(/s)

Pots is pots, it’s not called postural orthostatic tachycardia fainting syndrome. It is what it is and whether or not you faint doesn’t determine the diagnosis! Fainting isn’t a prerequisite to getting diagnosed! Some pots patients have it bad, and some have it better. But either way, someone who faints 5 times a day, or faints occasionally (bonjour, it’s me) or never ever faints at all, we all share the same diagnosis!

Your presenting symptoms don’t equate the validity of your disorder.

[ghxst-system]

random spike of energy

"oh this is amazing! I can do all that cleaning I've been avoiding"

the looming feeling of "oh no I've overdone it and now I have no spoons for a month"

[seasonallydefective]

After years of being concerned that I was going to “end up” in a wheelchair because of my ongoing chronic health issues … I just fucking bought one.

And you know what? I actually did a shopping trip without getting dizzy and forgetting things or feeling like I was going to collapse by the time I got to the checkout. I was actually pretty speedy, too (I may need to learn not to be a total menace in the aisles … it’s just fun not to be limping along for once).

I still need to figure out this whole “where to put the grocery items” thing because my lap sure ain’t it, but it made the whole trip so much easier even with that unknown.

[a-totally-reasonable-username]

I think the most annoying thing about having exercise intolerance and POTS is that i can't enjoy music the same way anymore. I'm not even talking about anything like dancing but moving to music while sitting down and also singing? Pulse go whoo and ta da i've collapsed! So mean.