#pddnos

[mrlogicforeve]

Account moving and will deleted soon

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So please follow my discord account and join my server.

Goodbye Tumblr

Have a nice day.

Please join my discord and follow my discord please.

[beequestionsthings]

Shoutout to nonverbal people, semiverbal people, and people with IDs and high support needs. Hi

[sadautis96]

TW SUI IDEATION

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We all die in the end ,so why wait for the inevitable ? I hate myself so much ,feel so sad n empty ,i just want to die ,im tired and exhausted. Tired of this life. Every time i look in the mirror i see someone ugly. I wish things couldve turned out differently ,but 26 years of my life is a bit much. Why do i keep living when my mind just wants to die ? I know what i must do ,but im in constant doubts at this moment.. should i ,shouldn't i ? Im scared of death but ,at the same time ,i just want this all to end ,no matter how much i try.. you may think im giving up or a coward ,but so what ? Call me selfish ,idgaf anymore ,im too sad ,depressed ,and yet ,i walk outside pretending that everythings fine when in actuality ,theyre not. I dont always understand everything. Who cares. Whatever. It's like i feel completely indifferent while writing all of this... i know im sad.. but idk ,kinda feels like im not even here.. all i can think of is seeing my blood.. seeing myself in hospital ,dying.. im not right at all.. who i am i anyways ,pathetic ,maybe she's right after all :(

[sadautis96]

I relate so much to this !!

“My life is made up of ‘I���m sorry’. I feel like I have to apologize to people, to things, to life itself. It’s like, ‘I’m sorry to be here’. I don’t want to disturb anyone.”

— Yohji Yamamoto

[starriibunniies]

Changes ><

Hiiii! It's been a bit, hope everyone is doing well! I need to rant, if you're not interested, then you may continue on with your day^^

Now then, does anyone else find changes to things so difficult?? It's the absolute worse!

So today, I had finally processed that routine for yesterday's plans were thrown WAY off and it made me really upset. Trying to stim to self soothe, helped a bit though. But yeah! It just made me feel so frustrated. Ugh!

[narcissisticpdcultureis]

pddnos/npd questioning culture is ironically empathizing with other people's experiences with low/applied empathy.

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[mrlogicforeve]

My discord https://discord.gg/zC54aafwFD and it’s Therfren

Made this for someone on a friend's discord server I’m in.

Here’s my oc Douglas LoveFace in the style of Jellybox (i believe?)

[autismaccount]

Autistic Experiences with Moderate-High or High Support Needs

This post is to summarize some of the preliminary results from an informal survey about autism-related support needs on Tumblr. I gave versions of this survey separately to both Reddit and Tumblr users. Now that the Tumblr survey has surpassed 500 responses, I'm giving an overview of what Tumblr users mean when they claim different support needs labels. For example, what does it mean to be low support needs versus high support needs?

I used the following groups: (very) low support needs; low-moderate support needs; moderate/medium support needs; moderate-high support needs; (very) high support needs. This post is summarizing the Tumblr group that self-identified as having moderate-high or (very) high support needs. (These groups were combined due to small sample sizes.)

The next step will be to analyze both datasets to see what factors predict each support needs label in the Tumblr dataset, Reddit dataset, and overall. I'll also use graphs/figures to highlight major findings.

The survey can be found here:

Out of 532 people on Tumblr, 26 people identified as having moderate-high (62%) or high (38%) support needs autism.

Demographics:

Ages varied but skewed young. 23% of respondents were between ages 13 and 18, 35% were between 19 and 21, 31% were between 22 and 25, and 12% were between 26 and 30. None were over 30.

Most participants were AFAB nonbinary (46%) or transgender men (27%). A notable minority reported being intersex (15%). Small minorities endorsed being cisgender women, cisgender men, or transgender women (all 4%). None endorsed being AMAB nonbinary.

35% of participants were racial/ethnic minorities. Of these, the most common were Asian (19%), Jewish (15%), or Black, Native/Indigenous, or Hispanic (all 12%).

77% were diagnosed with autism after a full assessment. 8% were informally diagnosed by their therapists. 12% were seeking a diagnosis, and 4% were undiagnosed and not seeking a diagnosis.

Current Diagnoses:

At the time of the survey, 30% of those with diagnoses were diagnosed with ASD without a level, 30% were diagnosed with level 2 ASD, and 25% were diagnosed with level 3 ASD. 5% had a split level 2/1 diagnosis, and 5% had a split level 2/3 diagnosis. 10% were diagnosed with "moderate" autism and 20% "severe" autism.

Historical Diagnoses:

15% of those with diagnoses were at one point diagnosed with moderate autism and 30% with severe autism. 15% were diagnosed with classic autism, 10% were diagnosed with Asperger's, and 5% were diagnosed with PDDNOS.

Age of Diagnosis:

Those with diagnoses were most often diagnosed between ages 13 to 15 (25%) or 16 to 18 (25%).

30% were diagnosed before age 8, 5% were diagnosed between ages 9 and 12, 10% were diagnosed between 19 to 21, and 5% were diagnosed between 22 to 25.

Most considered their diagnosis somewhere in-between early and late (33%), late (29%), or very late (5%). 14% considered it early. 24% were unsure.

Understanding of Support Needs Labels:

The most common reasons they identified as having moderate-high or high support needs were the intensity and types of support they needed (77%) or the frequency of support they needed (69%). Other common responses were their intellectual or language functioning (46%), professional opinion (31%). or their DSM-5 level specification (23%). 19% said it's because of their diagnosis (e.g., "high functioning autism"). 8% said it's the community they fit best.

In general, people thought support needs labels should be based on the intensity and types of support needed (92%) or the frequency of support needed (88%). 54% said it should be about intellectual and language functioning. 38% said it should be about professional opinion, and 23% said it should be from level diagnoses. 12% said it should be about type of autism diagnosis. Only 8% said it should be about what community fits best. 4% weren't sure.

Frequency of Help Needed:

A minority would benefit from support daily (19%). Most needed daily support (54%). 8% needed supervision every hour they were awake, and 19% needed 24/7 supervision.

Type of Help Needed:

Most almost always needed substantial help for basic life tasks. Most could independently manage or needed some help sometimes for toileting (27% independent, 50% some help) and eating (12% independent, 54% some help). Many needed major help for planning (62%), communicating with professionals (62%), maintaining hygiene (62%), cleaning (58%), and shopping (50%). Most couldn't access their offline community alone (54%), and many couldn't manage money (42%), manage their health (38%), or cook (38%).

Intensity of Help Needed:

On a scale of 0-3 (needing no help to cannot do at all), they averaged 1.8 (standard deviation: 0.91), indicating a need for major help across many domains.

Severity of Autism Symptoms:

On a scale of 0-3 (not having a symptom to it being severe), they averaged 2.32 (standard deviation: 0.68), indicating moderate to severe autism symptoms.

Overall social-communication (2.27) and restricted-repetitive behaviors (2.27) were equivalent.

The highest rated symptoms overall were sensory processing (2.54) and special interests (2.50), and the lowest were relationships (2.15), nonverbal communication (2.23), and need for rituals and routine (2.23).

Intellectual Disability or Language Impairment:

9% had borderline intellectual disability, 14% mild, and 5% moderate.

9% had mild, 23% moderate, and 9% severe receptive language impairment. 9% had mild, 32% moderate, and 14% severe expressive language impairment.

23% were fully verbal, 38% semiverbal or semispeaking, and 32% nonverbal or nonspeaking. 38% were part-time AAC users and 27% full-time AAC users.

Masking:

The majority can't mask well or for long (35%), want to mask but can't (23%), or don't understand masking (31%). 4% can mask well for brief periods of time, and 8% come across as "off" instead of autistic.

Autism Symptoms:

The most commonly endorsed symptoms were shutdowns (100%), meltdowns (96%), difficulties generalizing information (88%), alexithymia (85%), difficulties with interoception (85%), poor gross motor skills (77%), echolalia (73%), low empathy (69%), difficulty with autobiographical memory (69%), ARFID or food selectivity (65%), catatonia (65%), poor fine motor skills (65%), poor muscle tone (62%), autistic mutism (62%), psychosis (58%), and poor theory of mind (54%),

They also tended to be logical compared to emotional thinkers (58%), have synesthesia (58%), and have splinter skills in science, technology, engineering, math, music, or visual arts fields (54%).

The only symptoms or experiences endorsed less than 50% of the time were pathological demand avoidance (46%), thinking in images (38%), selective mutism (31%), hyper-empathy (31%), having a splinter skill in language or writing (23%), and aphantasia (lack of mental imagery; 23%).

Symptoms Worsened:

58% had experienced their autism symptoms getting worse. This was most often due to regression (54%), trauma (46%), puberty (31%), or burnout (23%).

15% hadn't experienced their autism getting worse, but their symptoms were more obvious or difficult when there was more demands on them. 4% had temporarily been worse during burnout.

28% claimed this changed their autism levels from 1 to 2, 12% from levels 2 to 3, and 12% from levels 1 to 3. 4% had been re-diagnosed to match this.

Symptoms Improved:

27% had experienced their autism symptoms getting better. This was most often due to gaining access to AAC (15%), intervention (12%), their environment improving (12%), medication (8%), naturally with age (4%), or learning to mask (4%).

4% said their symptoms were temporarily better in a more supportive environment.

None said this changed their levels, but 4% said their diagnosis changed to match under a different diagnostic system.

Views on Self-diagnosis:

Half thought that autism can be carefully self-diagnosed (50%). Half also thought that autism is always (35%) or almost always (15%) okay to self-diagnose. 27% thought it's okay to self-diagnose if an assessment is impossible to obtain, and 15% thought that it's okay to suspect autism but not self-diagnose it.

Most thought that it's okay to suspect autism levels but not self-diagnose it (42%) or that autism levels can be carefully self-diagnosed (31%). 15% thought it's okay to self-diagnose if an assessment is impossible to obtain, and 23% thought it's never okay. Only 15% thought it's always fine.

Almost half thought that autism support needs can be carefully self-diagnosed (46%). 27% thought it's fine if an assessment is impossible to obtain, 27% thought it's almost always fine, and 19% thought it's always fine. 15% thought that it's okay to suspect autism support needs but not self-diagnose it, and 8% thought it's never okay.

Preferred Labels:

Most preferred to be called autistic people (88%). Person with autism was also somewhat popular (50%). This group preferred to refer to their autism and ADHD separately (35%) compared to use the term AuDHD (27%).

Disability:

96% considered themselves disabled from autism, and 4% from another condition but not autism.

Mental Health Comorbidities:

The most common mental health comorbidities were anxiety (81%), dissociative disorders (73%), depression (69%), ADHD (69%), PTSD (58%), and eating disorders (54%).

Sleep disorders (46%), personality disorders (46%), learning disorders (38%), OCD (38%), schizophrenia spectrum disorders (35%), and tic disorders (27%) were also notably elevated.

The least common mental health comorbidities were substance misuse disorders (15%) and bipolar disorders (12%).

None had no mental health comorbidities.

Physical Health Comorbidities:

The most common physical health comorbidities were gastrointestinal issues (54%), neurological disorders (50%), musculoskeletal disorders or injuries (46%), hearing or vision loss (42%), connective tissue disorders (38%), lung or respiratory disorders or injuries (25%), autoimmune disorders (25%), cardiovascular disorders (21%), severe allergies (21%), immunodeficiency (17%), skin disorders (17%), and spine/nerve disorders or injuries (17%).

All other conditions were below 15%.

None had no physical health comorbidities.

Overall Support Needs:

Considering comorbid conditions, 15% somehow moved down to medium/moderate support needs. The rest still had moderate-high support needs (38%), high support needs (31%), or very high support needs (15%).

[sadautis96]

I hate myself. Nothings ever good enough. I wish i was dead already :(

[system-of-a-feather]

Small update cause I never posted on it but regarding PDs we did stop actively investigating it with our therapist cause we got what Chunn needed without it and it was unreliable as our DID just had us flagged in many extremes in many ways with the only consistent things being narcissism, detatchment and antagonism being high and submissivity being basically 0 - but that was also excluding a lot of our more docile parts by design so even thats questionable

So PID wise we have a lot of statistically significant symptoms but none that form to signify any specific PD other than possibly PDDNOS

DSM wise we meet the criteria for SzPD and are on the fence (as in depending on how you count our symptoms would put us above or below diagnostic criteria) NPD

That said, for SzPD - at the time of discussion - we are too prone to attention seeking behavior (its episodic and a trauma defense thing) and for NPD we are far too unaffected by criticism or praise - both aspects being considered pretty large aspects of the concept of SzPD and NPD so while we technically match DSM standards we are kinda "ehhh" on it. I forgot what the talk on ASPD went but tendencies absolutely, but similar thing of "but not quite"

We got some insight though to us and hpw we are and so we decided it wasnt worth the time, effort and mental sweat to try to continue investigating it beyond tendencies and traits - especially when we honestly needed to look more at untangling the complex autism web

That said though, what with sitting in Fei more often, I am really thinking NPD is less likely and if we do have a PD itd probably be SzPD as like... most of our disordered narcissism goes way down as Fei as well as a lot of our antagonism leaving really just our lack of raw social drive and detatched nature but THAT even then is probably better explained by Autism so 🤷‍♂️

Its a saga we dont care for at the moment. Maybe in a year or two or three itll be a topic of interest but for now, eh.

[autisticpride]

Something that a lot of people miss is that in diagnostic manuals, everything, in order to be diagnosed, must cause problems. That's what makes it a disorder.

This is usually phrased, in the DSM, as "Symptoms cause clinically significant [distress or] impairment in social, occupational, or other important areas of [current] functioning." with very little variation, and seems more varied in the ICD, but is still present.

This is a requirement for diagnosis. You can have all the symptoms/traits of something, but if it doesn't cause problems, it isn't a disorder, and can't be diagnosed.

The pressures of society have been increasing, and the ability to take time for yourself has been decreasing (see: the expectation that everyone is available all the time), as has privacy.

That is why "more people" are neurodivergent now. Because more people are hitting their threshold.

Someone in an autism facebook group I'm in just asked "How am I supposed to earn enough to make a living without burning out?"

Someone replied: "You're not. Even neurotypicals can't right now in the system designed for them. We're the canaries in the coalmine. When we start failing, they know something is wrong."

[bunnybluez]

WOAH, you're also level 2??? i'm not professionally diagnosed with a level myself (i was diagnosed at 11 at around 2007, way before levels were established, with autism, pddnos, and "asperger's disorder" at various times), and i believe my level of social and repetitive behavior disability would qualify as level 2 (with my verbal and communicative sharing qualifying potentially for level 3 in an extroverted version because as you can see i literally do not understand what are proper boundaries to share with strangers aside from the obvious stuff like sexual things most of the time, and with everything except for schedules and sensory sensitivities being level 2, with schedules being level 3 and sensory sensitivities being level 1 because 1.) therapy helped me tolerate loud noises better and i don't scream as often as frequently at loud noises anymore, i can tolerate more textures though i still struggle, and i am in fact heavily sensory seeking --- i like touching different types of textures from tables to walls to fuzzy things to goo, and i like listening to music with weird amounts of textures which is why uk bass, hyperpop, glitch pop, glitchcore, and other music like that is VERY sensorily satisfying to our system) but i can't get a re-evaluation for my autism levels specifically because it'd be a burden on my mom's finances. all i know is that because i'm probably level 2 middle support needs, i can't attend in person classes because of my extent of my disability even part time, have to attend classes even with subjects i'm good at part time because more than one assignment at once stresses me out so bad i regress to a level 2.5 or 3 but hyperverbal type state, and i am...not trusted with most household appliances or even food (both because i'll gorge myself on anything tasty and edible, and because i have a tendency to either make a mess at the lightest or almost cause a house fire at the worst)

so yeah! i'm glad someone actually diagnosed level 2 can relate because...it makes me feel like i'm on the right direction with my diagnosis

im not offically diagnosed with level 2 actually my country has no where that uses levels so im not able to be assessed even if i wanted to, im just diagnosed with autism spectrum disorder.

my level also self assessed but ive had input from my gp, mama (carer) and therapist who agree i fall under level 2 because ive never had any idea how social interactions work, im an extrovert and would talk to strangers the same way i would with friends (tho i never had many in the first place, apparently other kids were scared of me) i make better friends online because irl its so stressful to try be aware of others, i used to be able to mask but i burntout and now im back at having very little awareness of others social cues like body language, facial expressions, tone or even like implied meaning to words idk how that works i never have. even when i masked my autism was extremely obvious but since im (hyper)verbal with a high iq (top 19%) i wasnt noticed as autistic until i was 12 then diagnosed at 16.

i cant go to school either, i can do online schooling okay since its all done in my pace and its subjects i really enjoy (psychology is my special interest and what im studying but i also wanna study biology or medicine, also spIns) i cant clean or cook, i do have chronic illness that stops me but even if i didnt that stuff would be extremely overwhelming, i could cook maybe once every few days and i can make basic stuff like instant noodles n cup snacks. my mama has to pick my clothes out and tie my shoes because idk whats appropriate or not to wear, id wear pyjamas everywhere and change clothes like once a week if i wasnt told to.

[infestedguest]

“Appropriate play,” “unwanted behaviors,” I AM STRANGLING U WITH MY MIND RN.

Autistic people are significantly more likely to develop depression and anxiety, but noooo, the real issue that I, a medical professional, need to be treating is that this kid is “playing wrong”.

Treating any kind of neurodivergence in a manner where the goal is to make the patient more palatable to neurotypicals and not to, you know, actually fucking help the person who actually has the condition deal with issues relating to it has got to be some kind of violation of the hippocratic oath (or really just common sense in general).

Like imagine if you had whooping cough and you went to the doctor and instead of actually treating your whooping cough they were like “well all your hacking and wheezing is probably making it harder for your roommates to get to sleep at night, so how about you just stop breathing?”

[narcissisticpdcultureis]

pddnos/npd questioning culture is wondering why other roleplayers that like you and your partners threads don't follow you if they like them so much. Then you realize they most likely like your other partner's responses better than yours and you're caught between thinking 'fuck yeah my rp partner/fp is the best!' but 'why am i not good enough for you to follow and rp with me too?'

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[mrlogicforeve]

Join my discord server

I’m not on tumblr but only sharing

For more of my work

And my discord is TherFren