#me is not just chronic fatigue
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
#it feels like i got jumped by seven people but NO#if my body is going to make me feel like ive been stabbed five thousand times i should at least get a sword fight out of it im just saying#fibromyalgia#fibropain#fibro problems#fibro flare#fibro#chronic pain#chronic fatigue#chronic illness#hypermobility#hypermobile#hypermobility syndrome#spoonie#disabled#actually disabled#disability#c punk#cripple punk
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do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?
like honestly. what do you think being disabled means?
#if one more person tells me to take a sick day i'm going to throw something at them#i just honestly cannot anymore#disabilties#disabled#actually disabled#epilepsy#ehlers danlos syndrome#physical disability#neurological disability#actually epileptic#zebra#chronically ill#chronic illness#spoonie#chronic fatigue#chronic pain#c punk#crip punk#cripple punk#fuck capitalism#anti work#disability culture#1k#5k#10k
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people with chronic pain and chronic fatigue will be like why does it hurt and why am I so tired
#i cannot stress enough how#i am people#people is me#i dont know whh i forget so often#i was just thinking this though and... its because i have chronic pain and chronic fatigue??#yeah#anyway#heds#chronic pain#chronic fatigue
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being disabled is so fun because sometimes you can just be going about your day like normal and with zero warning your body will be like you have to lay down Right Now or you will pass out
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something people just don’t think about is how often chronically ill and disabled people just don’t have access to good food. not healthy food, good food; well made, tasty meals that don’t come from a jar or a freezer. how many of us are housebound or can’t drive? delivery services only offer within certain distances, if you live outside a city they aren’t an option. many people don’t have the energy or ability to cook for themselves if they have the skill to begin with. many certainly don’t have the ability to learn how. it’s something that goes completely unnoticed, just the opportunity to have a good meal and how much that wears you down
#all i want is chinese food#the closest one to me is 40 minutes away and its a /bad/ chinese place#its my worst option and its not even an option#‘fried rice is easy to make heres a recipe!’#i cant use a stove bc the heat will give me a seizure#even if i keep myself cool something that should take 15 minutes will take upwards of an hour bc i need to take breaks#even then ill probably be too nauseous to eat it after being active for so long#all of that for a bad cooks version of fried rice#more expensive and worse than a takeaway place#but i cant get it from a takeaway place#repeat ad nauseum for the rest of my life and is it any wonder im so sick of the same food ive eaten for 10 years#the only time i get takeaway is when my parents decide to go out and bring something home#can you imagine living like that for the rest of your life?#i dont have to#and its so dumb to want to cry over rice#but its not really about the rice is it#coming out of my cage and ive been doing just fine.txt#spoonie#chronic illness#disability#pots#postural orthostatic tachycardia syndrome#ehlers danlos syndrome#fibromyalgia#chronic fatigue#chronically ill#mental illness#mental health#save post
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Being the only disabled person in a friend group is like. Argues against mental age for 30 minutes without achieving anything because they will die if they cant call developmentally disabled adults 6 year olds. Feel guilty for cancelling plans for disability reasons and making up a lie so you dont have to tell the truth. Get called a cripple after explaining your symptoms. Get told nothing is ever the doctors fault because they work soooo hard and you're just not persistent enough. Realize the only way theyd ever do even minor caregiving tasks for you is if they were paid. Spend an hour arguing against eugenics. Listen to someone talk about a group of disabled people and with every sentence it gets more obvious they never interacted with anyone from this group personally. Get compared to peoples elderly relatives. Get -
#i want to burn it all down ♡-♡ [head explodes]#actually disabled#chronic illness#chronic pain#chronic fatigue#ableism#casual ableism#abledsareweird#also whatever you do dont tell me to just get better friends im a rural mf this is the best i managed to find in this village:))#and somewhat frequent socializing is sadly required for my mental health to not go fully off the rails so pls. shut up
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Oh my god I can’t believe I have to say this but:
DISABLED PEOPLE CAN HAVE GOOD DAYS!!
Just because I had one day when the pain wasn’t there for long enough for me to enjoy it doesn’t mean I am suddenly “cured from my issue” or that I don’t need accommodations anymore.
#are you for real#i just told a classmate about going to barre#the enthusiastic response was oh my god are you over your thing#bro what THING#my disability?#because obviously fucking not#then he was like#do you have to do classes online still#im shre if you can do exercise you can come to class#my disability paralyses me with pain on the regular#we found the solution guys#all the years of suffering have come to an end#you just need to go to ONE barre class#chronic pain#chronic fatigue#disability#disabled#disability awareness
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shoutout to all the fellow disabled people who spread awareness and advocacy even when they have no energy to do so, I see you, I love you, and you are so deeply appreciated. your story has the potential to be someone else's survival guide.
#I might have gastroparesis and reading about the firsthand info online is making me feel better#this shit is terrifying#physical disability#chronic illness#spoonie#invisible disability#disabled#chronic pain#actually disabled#pots#chronically ill#cripple punk#hypermobile ehlers danlos#ehlers danlos syndrome#gastroparesis#feeding tube#ileostomy#wheelchair#cane user#mobility aid#mcas#cfs#chronic fatigue syndrome#chronic nausea#tummy ache survivor#diabetes#diabetic#brain injury#quadriplegic#just ibs things
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![Tumblr media](https://64.media.tumblr.com/46077b500d4474d944756e0850fa43bf/50c6fca4fe1ea1c0-50/s540x810/66ecd7996890019a267fb356522db825ce3c46ec.jpg)
#tiredlakes#girlblog aesthetic#girly blog#i’m just a girl#female hysteria#spilled thoughts#chronic fatigue#chronic illness#chronic pain#chronically ill#chronically hot#mecfs#me/cfs#myalgic encephalomyelitis#potsie#pots syndrome#pots#potsawareness#postural orthostatic tachycardia syndrome#chronic disability#disabled#disability#disability awareness#disabilities
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hey if you ever feel like you're faking your pain/mental illness/any symptoms, or if you feel like no one understands or believes you. i do. i believe you. i love you and i hope you do what you can to take care of yourself <3
#i spent so so much of my life in pain or sick#and being told i was faking it#or being dramatic#or just acting out for attention#and it's crushing#but being around people who genuinely care about me#and them BELIEVING me#it's such a foreign feeling#but it's life saving#i believe you#thank you for believing me#mental health#mental health awareness#chronic illness#chronic pain#chronic fatigue#chronically ill#mental health positivity#positivity#not mlm#dantes talking again
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okay as someone with chronic fatigue mitrum genuinely means the world to me. He’s exhausted and has no desire to do anything, he needs so much help to simply exist but hes around despite it!! And the people around him dedicate so much time and effort to him, they take care of him and tend to him and that means the WORLD to me. That there are people out there who care and love people like me, even at my most tired, even when i can’t do what i want to do. They are there regardless and they want me to live a happy life and will do whatever it takes to achieve that goal. I’m very thankful to mithrun for showing that disabled people live and that people do love us, that there is hope.
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#dunmeshi mithrun#mithrun#mithrun my beloved#delicious in dungeon manga#delicious in dungeon#dungeon meshi#dungeon meshi manga#chronically fatigued#chronic fatigue#actually disabled#dungeon meshi spoilers#plus he has such a bad sense of direction which actually makes me so happy because i DO TOO and the people around bi#don’t make him feel awful about it they just redirect him and everything is okay : )#he makes me so happy
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The fun thing about having both ADHD and chronic illness is you can take an Adderall and spend 4 hours cosplaying as non-disabled then around 4pm your body is like 'here's your tab' and gives you the whole day's symptoms at once.
#I have this neat trick where I start reorganizing my entire room then just fall over#ahdh#actuallyadhd#actually adhd#cfs/me#cfs#spoonie#chronic fatigue#chronic illness#halogen
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When the doctor is pleased the tests came back “normal” after I explicitly told them that wasn’t the problem in the first place.
![Tumblr media](https://64.media.tumblr.com/b4c5f093c3f717d8e68f5018af9753c2/4603fa6babd8399e-8d/s540x810/7ec36f310c2951a360329d6485df59684617450e.jpg)
#if someone would please just listen to me#chronic illness#chronic pain#disability#pots syndrome#postural orthostatic tachycardia syndrome#chronic fatigue#invisible disability#fibromyalgia#potsie#spoonie
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as a disabled person the idea of resting when i feel relatively ok/still have spoons just like. doesnt even occur to me most of the time.
like it’s so crazy that abled people rest even when they’re not about-to-pass-out-or-vomit levels of exhausted. i forget that im allowed to do that too
#idk where im going with this i just saw a post that made me think of it n was like :O#0#chronic pain#chronic fatigue#disabled#disability
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Why am I nauseous ALL THE TIME
Nauseous if I eat
Nauseous if I don’t eat
Nauseous from normally safe food
Nauseous from different food
Nauseous from drinking water
Nauseous from dry mouth 
Nauseous if stomach hurts
Stomach hurts if nauseous
Nauseous from meds
Nauseous without meds
#chronic illness#chronic pain#chronically ill#spoonie#neurodivergent#disability#fibromyalgia#chronic fatigue#disabled#fibro#nausea#gut issues#stomach issues#ibs posting#nightblogging#just let me sleep#acid reflux#hypermobility
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doctors deciding whether to blame their patients symptoms on anxiety, weight, or menstruation this time around
![Tumblr media](https://64.media.tumblr.com/530c1abf33278d03c25edc1511b944fc/1de15baac81793f1-a4/s540x810/f6d4ec10daea16d2965f7cba7dc229dc5a31486a.jpg)
#chronic illness#also they refuse to test me for things my doctor referred me to get tested for. because i haven’t had a medical emergency related to it?#like mf my legs turn backwards with no effort and i throw up every time i eat I AM NOT OK#you’d think if it was one of these things they always tell me it is that. idk. it’d be getting better by now !#and yet i just get worse and worse#i haven’t been able to draw in months from fatigue and feeling so sick all the time lol#went to the ER last night again and got hit with the “yeah your tests show signs of a UTI but you’re on your period so it’s probably that#and they sent me home feeling no better at all#i could rant about doctor stories for an eternity i cannot explain how fucked up it is#i feel like i’m fucking dying every day and no one ever has an answer for me
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