#me is not just chronic fatigue
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stars-and-branches · 5 months ago
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
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a-sassy-bench · 1 year ago
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do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?
like honestly. what do you think being disabled means?
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sillyfroggremlin · 1 year ago
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people with chronic pain and chronic fatigue will be like why does it hurt and why am I so tired
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chronicpaingirlie · 11 months ago
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being disabled is so fun because sometimes you can just be going about your day like normal and with zero warning your body will be like you have to lay down Right Now or you will pass out
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s0fter-sin · 4 months ago
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something people just don’t think about is how often chronically ill and disabled people just don’t have access to good food. not healthy food, good food; well made, tasty meals that don’t come from a jar or a freezer. how many of us are housebound or can’t drive? delivery services only offer within certain distances, if you live outside a city they aren’t an option. many people don’t have the energy or ability to cook for themselves if they have the skill to begin with. many certainly don’t have the ability to learn how. it’s something that goes completely unnoticed, just the opportunity to have a good meal and how much that wears you down
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painfordays · 1 year ago
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Being the only disabled person in a friend group is like. Argues against mental age for 30 minutes without achieving anything because they will die if they cant call developmentally disabled adults 6 year olds. Feel guilty for cancelling plans for disability reasons and making up a lie so you dont have to tell the truth. Get called a cripple after explaining your symptoms. Get told nothing is ever the doctors fault because they work soooo hard and you're just not persistent enough. Realize the only way theyd ever do even minor caregiving tasks for you is if they were paid. Spend an hour arguing against eugenics. Listen to someone talk about a group of disabled people and with every sentence it gets more obvious they never interacted with anyone from this group personally. Get compared to peoples elderly relatives. Get -
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poeticnotpretentious · 8 months ago
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Oh my god I can’t believe I have to say this but:
DISABLED PEOPLE CAN HAVE GOOD DAYS!!
Just because I had one day when the pain wasn’t there for long enough for me to enjoy it doesn’t mean I am suddenly “cured from my issue” or that I don’t need accommodations anymore.
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stellaltumi · 6 months ago
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shoutout to all the fellow disabled people who spread awareness and advocacy even when they have no energy to do so, I see you, I love you, and you are so deeply appreciated. your story has the potential to be someone else's survival guide.
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tiredlakes · 1 month ago
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fella-lovin-fella · 11 months ago
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hey if you ever feel like you're faking your pain/mental illness/any symptoms, or if you feel like no one understands or believes you. i do. i believe you. i love you and i hope you do what you can to take care of yourself <3
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whim513 · 6 months ago
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okay as someone with chronic fatigue mitrum genuinely means the world to me. He’s exhausted and has no desire to do anything, he needs so much help to simply exist but hes around despite it!! And the people around him dedicate so much time and effort to him, they take care of him and tend to him and that means the WORLD to me. That there are people out there who care and love people like me, even at my most tired, even when i can’t do what i want to do. They are there regardless and they want me to live a happy life and will do whatever it takes to achieve that goal. I’m very thankful to mithrun for showing that disabled people live and that people do love us, that there is hope.
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kestrel-tree · 1 year ago
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The fun thing about having both ADHD and chronic illness is you can take an Adderall and spend 4 hours cosplaying as non-disabled then around 4pm your body is like 'here's your tab' and gives you the whole day's symptoms at once.
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potsiepumpkin · 2 years ago
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When the doctor is pleased the tests came back “normal” after I explicitly told them that wasn’t the problem in the first place.
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chronicpaingirlie · 8 months ago
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as a disabled person the idea of resting when i feel relatively ok/still have spoons just like. doesnt even occur to me most of the time.
like it’s so crazy that abled people rest even when they’re not about-to-pass-out-or-vomit levels of exhausted. i forget that im allowed to do that too
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incognito-liger · 13 days ago
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Why am I nauseous ALL THE TIME
Nauseous if I eat
Nauseous if I don’t eat
Nauseous from normally safe food
Nauseous from different food
Nauseous from drinking water
Nauseous from dry mouth 
Nauseous if stomach hurts
Stomach hurts if nauseous
Nauseous from meds
Nauseous without meds
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h0oty · 2 months ago
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doctors deciding whether to blame their patients symptoms on anxiety, weight, or menstruation this time around
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