#lymphoma tw

[ultfan]

komaeda doesn’t blush often, if at all. his paleness isn’t due to lack of sunlight, but rather anemia (a common thing for people dealing with lymphoma + there’s no way he has enough iron in his diet with how he eats). it’s another health issue, so it’s not that he wouldn’t blush — he just doesn’t have enough color in his skin/red blood cells/iron in his blood to do so.

me fighting the blushy/drooly komaeda fanon one step at a time.

[drkinhome]

Hey, it's the Nagito that wanted a shufflemancy, I just wanted one with my relationship with Izuru! Sorry that I confused you

He Loves Me Not, the Flowers Told Me / Backseat Vagabond

———————————–

Sittin' on a swing set

I know it's awful childish

But there is pollen on my fingertips

And there are tears in my eyes

Sweet roses and honeysuckle

Buttercups and sunflowers

It's always the pretty ones

Who come with thorns

He loves me not

He loves me not

He loves me not

He loves me

He loves me not

He loves me not

How many petals must I pick

Till he'll love me?

———————————–

It’s possible that rather than (or in addition to) lymphoma, you suffered from Hanahaki disease due to your attachment to Izuru. You were deeply in love with him, but he didn’t reciprocate. You idolized him, but he hurt you by rejecting your advances. You were succumbing to your illness, unable to get an “I love you” from him.

[acknowledge-reigns]

So I know next to nothing about Halsey, their career or who they are as a human (other than they use they/them pronouns if I'm not mistaken and are known for singing?) but I just wanted to send love and support to their fanbase. Roman Empire has been there, we see you. We know exactly what you're feeling. How it hurts to see your hero go through something like this. Healing vibes to Halsey and strength to their friends, family, fans and loved ones durring this time.

[k1tty-b0t77]

For all of those without a father, or ones being abused, neglected, etc, I'm so fucking sorry. You don't deserve that. Take care of yourself today. Fuck what he wants today. Today is your day, I've decided. Eat something yummy, take a shower, take a walk, watch something funny or comforting. You deserve it for putting up with that shit. I love you and happy You Day.

[rin-the-cat]

I was going to edit and add this rant to my previous post but it got so long I decided to give it its own post.

I don't understand how Doctors get a way writing up their notes like they do. At the vet clinic where I work, if a doctor doesn't examine something on an animal they put in the record that they did not examine it, but this never seems to be what human doctors do. Lets use my recent visit to a Rheumatologist. I will begin by prefacing that, in this case, I did not come away from the visit feeling like he had done a poor job. He did an exam that I felt was adequate for the situation and he asked all the right questions. However, the notes that he put into my legal medical record do not reflect the exam that he actually did.

Warning: very long rant ahead.

TLDR: Doctors lie in legal medical records all the time and sometimes it can have major consequences, but apparently not for the doctor or they wouldn't keep doing it.

ENT examined for oral mucositis, moisture, thrush, nasal deformity, external ear redness, deformity.

He did not look into my mouth and I don't think he was sitting close enough to me to get a good look from me just talking.

Abdomen examined for softness, tenderness, obvious organomegaly.

He never touched my abdomen

Neurological examination done for alertness, speech, facial symmetry, tone and power in upper and lower extremities, and gait.

He never checked tone or power in my lower extremities. I'm not sure that he examined the tone or power of my upper extremities now that I think of it. The only opportunity he had to see my gait was the two steps it took for me to get to the table, and I was very obviously limping.

The joint examination is performed for swelling, tenderness, warmth, erythema, and range of motion in the following joints: DIPs, PIPs, MCPs, wrists, first CMC's, elbows, shoulders, hips, knees, ankles, feet; spine for range of motion and paraspinal muscles for tenderness.

He did feel the joints in my hands (the reason why I was there.) but he didn't check range of motion on any joints or feel anything in my lower extremities.

The salient normal / abnormal findings are appended.

I suppose this line is supposed to excuse the fact that everything above it was a copy/pasted generic normal exam findings...

She is tender in the PIPs especially ring middle and index fingers, she does not have definite synovitis in any of the palpable joints. She does not have dactylitis. There is no nail pitting or onycholysis. She does not have a rash on her face there is no sclerodactyly periungual erythema. She has minimal if any tenderness across trapezius along the paraspinal regions. She did not have any significant tenderness in the trochanteric areas

This is the exam that he actually did in its entirety. Why type this out and include the copy-pasted bit that reports normal exam findings for things you didn't examine? What if you put this in my medical record today and tomorrow I ended up in the ER with a giant abdominal tumor that you somehow missed when you supposedly palpated my abdomen. It seems like you could/should get in serious trouble if something like that happened.

And that is basically what happened to my mom. She went in for pain in her back, over her ribs. The doctor didn't touch her except to "hit" the spot that hurt (her words, not mine. I do know that the spot that was hurting was so tender that a tap could have felt like he smacked her.) He declared that she had a broken rib, sent her to x-ray then sent her home. However the exam notes he put in her record read just like the ones above. The next day the pain was so bad she ended up in the ER where it was discovered that she had stage 4 lymphoma. It would not have been possible to do the exam that his notes claimed that he did and not realize that there was something more than a broken rib going on. This is a pet scan of her upper body. For those unfamilure with looking at CT scans or PET scans. the gray area at the top is her brain, the scan goes down to her mid-waist, and her arms are held up above her head. All of those bright white blobs are enlarged, involved lymph nodes.

On a normal person, you would only feel one node on each side of the neck and one node in each armpit area There are more there, but they would normally they would be too small to really feel. You can see on this scan that if he had palpated her neck, he would have felt numerous lumps. If he had felt her armpit (which you might not normally do, but if there were a bunch of enlarged nodes in the neck, you would probably feel the armpits next), he would have felt many lumps there too. If he had done the thorough exam that his medical exam notes claimed he did, he would not have though this was a simple broken rib.

Now would it have made a difference if it had been caught 24 hours sooner? Absolutely not, but that's not the point. The point is that Doctors lie in their patients medical records every day. Lying in a legal medical records is grounds for losing your license so why is lying and saying you examined something that you did examine given a pass? Why would doctors take the risk of doing multiple times a day, every day?

I like the way our medical records software is set up at the vet clinic where I work. There is a check list of all the systems that are typically examined. If a Doctor examines a system and it's normal they check a box but don't enter any notes. If something is abnormal they check the box and put in their notes in the text box next to the chart. If they don't examine a system (say there's an aggressive dog in for a routine exam, they might skip looking in the mouth.) then they don't check the box. When they are done it auto-populates the exam findings and for any system not examined it lists it as not examined. And that's now it should be, if a doctor doesn't examine something, they shouldn't be reporting normal findings. And here's the thing, the doctors that I work with actually do do a thorough exam, nearly every time. Doesn't matter if the dog is in for a well check or because they are sick, they look in the ears, eyes, mouth. they feel all the lymph nodes. They check range of motion on all four limbs. They feel the spine and check for neurological deficits. They listen to the chest. They palpate the abdomen. And that last one is a big one because dogs tend to get these primary splenetic tumors that are totally asymptomatic until one day it ruptures and the dog bleeds out. There have been many times where these tumors were discovered at an annual well check and the spleen could be removed while the dog was healthy instead of it being an emergency surgery on a critically ill dog. And the vet does all this so quickly and with a practiced ease that you might not even notice them doing it.

I think part of the reason that this is standard practice at any (decent) vet practice is because animals can't tell us where it hurts or how they are feeling, and I suppose human doctors assume we will be able to tell them if something is wrong. But here's the thing, that's not always true. Someone might have had a problem their whole life and assume that it's a normal thing. I tend to clam up at the doctor and forget what I wanted to say (It's really annoying, take the rheumatology visit for an example. My hands have been a major problem for me lately, the pain interferes to some degree with nearly every daily task that requires dexterity, but once I'm sitting in the office I sound more like, "My fingers hurt a little I guess... I don't know, I guess when I open jars 'n stuff" and mean while the doctor is probably thinking, "wtf is she doing here?" and I know the solution to this should be to write a list but when I try to do that my mind goes blank. My mostly nonverbal autistic 7 year old certainly isn't going to be able to tell the doctor what the problem is. I can't even get him to point to where it hurts when he hurts himself, i just have to wait and see where the bruise pops up.

[baellielurk]

dreamt w my old cat who passed last october. she was sleeping on a pillow in the new house i was moving into (in the dream) and i got to pet her - i think it was a thing where i could bring her back to life for a bit each day - and she stretched and showed me her tummy even. the boys were there, too, having a nap too, and she even curled up next to the one she did know. I'd like to think this was her visiting me now that she's spent sufficient time curled up with her previous owner. im glad to have seen her again ❤️

[hansel-and-grendel]

[healingheartdogs]

Heavy content concerning cancer and euthanasia ahead.

Need to call the vet today. We made a follow up appointment for a month out the last time we went in but I'm thinking that was probably an overly optimistic time frame. When she called to give the cancer screening results she asked us about whether or not we were potentially interested in chemo and we said we needed to talk about it and she told us to take our time and that he should be okay for as long as this round of meds he's on (2 weeks). The swelling in his face, legs, and throat is already back though and he's starting to lose coordination again, although he is still up and being more active so far and walking on his own which he couldn't last week. He's also starting to not want to take his pills but only the antibiotics, he still is taking the three pain meds he's on easily enough. He is especially avoidant of the amoxicillin which I have to give him twice a day and it's becoming a struggle. I think he must have decided it's making him feel bad.

Those few good days after he got antibiotic shots at the vet last week really had me getting hopeful for a moment, but now seeing him start to get sick of his meds and deteriorating again I'm wondering how I could possibly maintain his QOL to put him through chemo. Especially because he is fear reactive, he is a bite risk, he is terrified of the vet office, and he has seizures when he gets stressed out. Our last vet visit was short and sweet and painless so it wasn't so bad for him, but I can't imagine the care required for chemo would be that way. And what would the end goal be? Just keeping him alive longer? From what I've read remission for lymphoma tends to be very temporary, and everyone I know who has lost a dog to lymphoma is telling me they regret prolonging life as long as they did for their dogs.

I keep going through this over and over in my head and talked about it with Selene and we both agree that we have doubts about our ability to keep his QOL up for something like that. Logically, I know what the choice that will cause the least suffering in the long run is. But there's such a loud voice in my head screaming furiously at me that I can't give up on him yet because he wants to live and that if I don't try everything first I'm failing him. I think no matter what choice I make here I'm going to be filled with a crushing amount of regret, either for waiting too long and prolonging suffering or because of all the what ifs of making an earlier decision and the more active role that makes me play in choosing for him to die.

[celestavamp]

round 3 of chemo this one is a different sauce but similar side effects so that’s chill PEMBRO GVD vibes for today

This cancer is trying to resist but we aren’t going to let it -.- FUCK CANCER

[ultfan]

RANDOM KOMAEDA RAMBLE #1.

komaeda has pretty abnormal eating habits. he tends to only eat certain foods, most often things high in carbs. these, of course, being pretty common symptoms of bvFTD. it's definitely a behavior that started in his late teens. however, as a side effect of his lymphoma he has a decreased appetite, often feeling full after hardly eating. it's shown both in game and in his art book that it isn't rare for him to just have a single piece of plain toast for breakfast.

i do think that's something that got worse during his time as an ultimate despair. especially when he was working as a servant for the warriors of hope— i remember reading somewhere that they didn't feed him and he messed up their food on purpose because it was the only time he'd be able to eat something. even if it was gross.

in a post-dr2 world i do imagine komaeda would be lucky enough to beat cancer with the proper treatment— which i can't imagine wouldn't be provided to him given all the effort that's gone into the rehabilitation of the remnants. after that point i feel like komaeda would start developing a habit of binge-eating, doing a bit of a 180, and probably gaining a sweet tooth that he didn't have before. that would be something that happens over the last few years of his life as his symptoms get worse. given that he's lived way past his original life expectancy, i think komaeda would probably end up at the later end of the average life expectancy. which would get him to 25-29 at the latest. so he'd have 3-7 years left after the neo world program.

this was just supposed to be about eating habits and then i started talking about his life expectancy... oops.

[churrothezanyrabbit]

i’m glad it has a high survival rate but

my friend got diagnosed

with um

hodgkin’s lymphoma, a type of cancer

she starts treatment next week but god i’m so fucking scared for her i hope she okay and she will thrive through it

im genuinely sobbing

so yeah 👍

[theodosiani]

Actually got incredible new from our vet. She’s very fragile right now but if we can get her over this hump she may well recover. It’s gonna be a test of whether she responds well to medication so we’ll know in the next week or two but that’s still a lot longer than we thought we’d get last night.

What I was supposed to be doing today: Finishing veilguard

What I am instead doing today: driving 2 1/2 hours to the emergency vet with my 12 year old cat with a 104 degree fever.

[rollinsland]

⚠ Urgent ⚠ Long story under the cut TW cancer mention

Hey guys, thanks so much for reading this!  My name is Crissy. I'm 37 years old and in need of some assistance My older sister, younger brother, and I lost our sister recently due to lymphoma. Her and our younger brother are on disability, and my older sister and I are/were their caregivers  They (SSA) have not told us yet if my younger brother will be receiving any of her disability check as survivors benefits, so we're $500 short on rent and have no way to get that money

Our parents are deceased, so it's just us  If you can send anything our way so we can keep our home it would be greatly appreciated  The landlord is always late picking up the rent, but we have to tell him by the 5th of the month that we have it ready 

Please boost this and donate anything if you can  I know times are tough for everyone right now, so if you can afford to give anything or even just a boost, we are extremely grateful.  Have a great day and be safe in this hard and crazy world ♥♥♥ PayPal

*that's the only thing I have a card for to withdraw the money to give the landlord cash Can show death certificate and last months rent receipt, if you need proof of death and cost email is partychick.ch@gmail.com if link doesn't work

[acknowledge-reigns]

TW// Mentions of cancer treatment.

If you are sharing shit like this (or any other side by side like this) and poking fun at Roman for "bags under his eyes" or "looking tired all the time" as a way of claiming he's aging fast, you are insensitive af.

Fatigue is one of many symptoms our champ experiences due to a pill he has to take every single day for the rest of his life.

In addition to these things, specific Kinase Inhibitors have different additional affects. This is quite possibly one of the reasons for his reduced schedule even. The fact that Joe Anoa'i does even a fraction of the things he does is fucking remarkable.

Below is Roman discussing the side effects he deals with daily ⬇️⬇️⬇️

And if me pointing these things out makes you feel like shit:

Making fun of people for shit that is out of their control is foul. Do better. And in conclusion:

Also, if you have it and feel so inclined please do donate to LLS where you can also find the bulk of the information I included here and more valuable information on the illness that Roman and many others fight everyday.

[catbatart]

TW: Pet Health

Hey guys, as some of you know, our cat Phoebus was diagnosed with Lymphoma at the beginning of this year. Initially it was registering as small cell and he seemed to be taking really well to his oral chemo. However, on Thursday, Phoebus' health did a rapid turn around and he spent all day hiding and barely eating.

We got him into the vet and it looks like he is no longer responding to his chemo. The Lymphoma may have graduated from small cell to the more aggressive large cell.

We are going to increase his steroid to hopefully make him feel better, but it seems we have left the 'hoping he goes into remission' phase and have entered the 'maintaining the best quality of life we can' phase. If the steroids don't work, he's got maybe a couple weeks. If they do work, we might get a couple more months out of him.

Anyway, I am going through a really rough spot right now and just wanted to update people.

He's our beautiful, cuddly little golden boy, and it feels like I'm having to brace myself to say goodbye to a member of the family. Every day is feeling like a struggle and we're just hoping that the time we have left with him is happy for him.

[quaranmine]

i did get a big jolt in this video when he says that he was at higher risk of lymphoma due to medication and having an autoimmune disease because i was like Oh. BUT WE HAVE THE SAME THING?

i can't believe just yesterday i was congratulating hank green on twitter for being in remission for ulcerative colitis and then just today i'm learning he has cancer :( universe cant give this guy a break i guess he just traded one thing for another sob😭