#life with autoimmune disease

[daddywarbats]

I love how no one explains to you the implicit anxiety that comes with medication for chronic illnesses.

You're always low key worried about access to it and affording it, the side effects and the damage some of them can incur.

It's wretched.

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[hannahcrazyhawk]

“The loneliest moment in someone’s life is when they are watching their whole world fall apart, and all they can do is stare blankly.”

— F. Scott Fitzgerald

[melodymorningdew]

Ableist language content warning:

Just a PSA: Many people believe they aren't ableist but as soon as someone's disability inconveniences them in the slightest, they're immediately up in arms about how horrible this person is for being disabled.

So tired of hearing "you have to help yourself"

"Have you tried [insert completely unhelpful tip]"

"You can't expect the world to bend to your will." (When asking for accommodations)

"You don't LOOK disabled."

"Well you did ___ yesterday why can't you do it today?"

"You need to stop making excuses."

"You complain too much."

"You can do anything if you put your mind to it."

"You just have to force yourself to work you have no choice."

"Just go home if you're going to act like that [my legs collapsing beneath me/fainting/saying I'm having a panic attack]" (same people who tell me I just need to push through)

"Oh that person is being so rude" (when they are overwhelmed and unable to carry on a normal masked conversation bc they are overwhelmed)

"ADHD isn't an excuse to be late or forget things you can set alarms and have planners"

I and many others are rightfully pissed off at being dismissed and condescended to and belittled and stomped into the dirt EVERY OTHER DAY. (Not exaggerating.)

[ladylucksrogue]

I don't write a lot if these kinds of posts but I had a bit of a health scare this past week. I'll preface and say that I'm doing better.

Maybe this will help someone recognize symptoms a bit better than I did, because it really could have gone horribly wrong.

I have several medical issues, including an autoimmune condition called SLE (systemic lupus erythematosus) which I've had for a long time and is well managed. I also used to work in the medical field, and know my body fairly well. As with many people that have lupus, I unfortunately am a bit jaded with certain symptoms because it's always, is it just your lupus or is it something you should go to the doctor for? Because honestly, I've gone to the doctor so often only to hear, yup, lupus.

That being said, my meds make me susceptible to catching every little thing that goes around.

So when I woke up with a stomach ache, I was just like great, a stomach bug. It kept getting worse. Knew it wasn't appendicitis because it was literally my stomach cramping.

It got so bad that I was like I have to go to the hospital because it was literally radiating to my back and I couldn't stand up straight.

It wasn't until I was at the hospital, where they at first assumed it was the stomach flu, that I mentioned the pain in my back too, where they took me seriously. Thought it was my gall bladder (mine was removed). And then mentioned pancreatitis.

I mean I know of it. But I've never seen a case except in a dog. Never thought about it. So blood tests, ultrasound, other tests ensued.

Of course me on google, researching. And then the 40 percent mortality rate in combination with lupus jumped out at me. It's been a rare thing where I've ever been confronted with something so serious. My labs looked too good, Ive had that happen so often in my life. My labs are good till they aren't. I was sent home, with pain meds, waiting on other labs. I finally got clearance yesterday. It's not pancreatitis. I have blood and protein in my urine, nothing new, and although a kidney infection sounds scary it's familiar territory. Still not sure why my stomach was affected. No one knows, mysteries of life.

Everyone knows certain symptoms, like if your right side hurts, could be appendicitis. Medical emergency.

No one talks about pancreatitis though, the symptoms or that it can be literally life threatening too. So consider this my little PSA. I might not have actually had this, but the scare is enough for a lifetime.

Take care out there everyone and stay healthy.

[unfilteredrealities]

Struggling with Psoriasis since I am 2 years old is a different kind of hell I do not wish upon anyone not even to my enemies.

Each goddamn year when winter season hits my body decides to go BRRR in Flare.

Each summer my body partially decides ok let’s be sort of ok and let’s heal but not completely so she can’t wear short pants in summer due to deep rooted shame.

I got bullied in school being called a “contagious Monster” due to my Autoimmune Disorder.

I have trauma still from that to the point I can’t wear short pants because I’m too ashamed and scared that people would not want to be around me anymore.

I see people stare at my legs whenever I wear flowy pants in summer that when a gust of wind blows it reveals my legs and they will stare.

Im chronic in pain and agony and fatigued due to my body constantly fighting against itself against its own skin. Its 24/7 growing too much skin as if it feels pressured to change my whole skin layer not every 7 years but faster 😭

Be kind to people who have skin issues they can’t control.

Be nicer. Don’t be an ass.

[thelupuslady]

[crimeronan]

pour one out folks. just ate 3/4ths of a moldy bagel bc i didn't unearth the visibly green parts til i'd chewed thru it.

and my autoimmune disease reacts.... So Badly.... to mold.

[yutamayo]

[spookysalem13]

My health has lead me to needing to call out from work again. I feel so guilty.

This time its my fibromyaglia and rheumatoid arthritis that's causing weakness and pain throughout my whole body. Severe swelling and agony in my joints.

My brain is so entirely fogged I can't even verbally articulate a sentence properly. I don't know why, please let me know if you're also chronically ill, especially if you deal with a lot of high inflammation levels. And if you also struggle to articulate speech as your inflammation levels rise. Because for me, it seems to be my first signal something isn't right.

So today is an under the heated blanket, in bed with my kitty kind of day.

The fatigue is so bad I anticipate sleeping a great deal. Other than sleep my intentions are to spend time in my social media communities today. It's always comforting to me.

[a-small-writer-in-a-big-world]

Random fact about me is that when I was in preschool (so 4-5ish) I got norovirus and got so sick that it tipped my immune system causing it to attack itself and then I started having kidney failure. I also got a rash on my lower half of my body and itched so much that I have scars on my leg. Now I cannot stand to have even a single inch of me being itchy or else I start to panic/get irritated

So if you’re feeling sick perhaps stay home and make sure to wash your hands to save someone from getting sick

[daddywarbats]

So, it's always fun when you hit a certain number of autoimmune and chronic pain conditions and doctors are like nah my guy we'd like a less complicated zebra please.

Oh well.

[disabled-bug]

disabled people when their disability disables them

[karlurbanism]

I had an MRI scan today and reacted to the contrast agent with severe nausea and a sensation of heat in my chest 🤢 💥

It disappeared after a while but it was a really scary experience and I need to get another MRI next year and I'm already terrified… 😩 😢

I'm going to need a lot Karl / Billy content to ease my mind 🤯 😤

[theoasiswinds]

Ohohoho! Stuck in bed with a major flare up!

Haven't had one of these bad boys in a while! Super swollen and everything hurts!

Took extra tumeric pills and as the 80's song goes, all I need is a miracle!

Don't have much strength in my hands so I can't really do line work, so gently sketching and watercoloring designs!

Because I am a stubborn and prideful mule, so I told my husband I am making a children's book on my own in 1 bloody month!

Thanks to a lot of recommendations from you lovelies I'll use Amazon for my first try! And I got my family's support, so I'll be working on mpo and a children's book series.... Because money lol

So anyhow, December I start the official story book December first.

But since I'm stuck here in pain might as well design a few characters the best I can...

Hashimoto's sucks ....

[emf6]

So Halsey's "Life of the Spider" resulted in me sobbing in a ball because while I'd healed from the abusive relationship I was in when I got my Celiac diagnosis (many years too late and the sickest I've ever been,) and I was comfy in my Time Before Diagnosis and Time After, I hadn't even realized the specific trauma of being the sickest I'd ever been alongside someone who not only didn't care but very specifically wanted me to suffer as well. That song cracked me like a walnut and allowed me to address pain I didn't even realize I was hanging onto, and I can't thank Halsey enough for it.