#its okay to be disabled
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no, i’m not saying i can’t go to the store because i’m lazy, i’m saying it because i can’t feel my legs because of how much pain they’re in
no, i’m not saying i don’t feel up to the mall because i don’t want to see you, i’m saying it because i’m too ashamed to tell you i can’t walk right now
no, i’m not saying i don’t want to shower because i’m “gross” or “lazy”, i’m saying it because i don’t think i’d be able to hold myself up in there or raise my arms to wash my hair
no, i’m not saying i haven’t changed clothes in a few days because i’m “being lazy” or “being nasty”, i’m saying it because i’m tired and in too much pain to change my clothes by myself right now
STOP CALLING DISABLED PEOPLE LAZY OR GROSS FOR THINGS WE CAN’T CONTROL!!!!
a little reminder that you are not gross or lazy because of any of these things, you are just struggling more than usual and you know what? thats okay. don’t listen to anyone who tells you otherwise, you can’t control how many spoons you have in a day and that’s okay too.
don’t forget to love yourself a little today <3
#disabled#chronic pain#chronic illness#chronic fatigue#its okay to not be okay#its okay to be disabled
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This isn't something I really talk about on this blog but as someone who is chronically ill/mad, a lot of y'all stop caring about autonomy and a person's right to choose how to care for themself when it's an 3@t!ng d!s0r3r. (Yes, I'm pissed that I have to censor that, and I'm really sorry to people using screen readers.)
I've had this experience for over ten years now, and while I am so for people "choosing recovery" and sustaining hope, that's also not the only option or the only one that's somehow morally correct. Some of y'all are out here acting like I have absolutely no brain cells when I say that I'm not "in recovery." You act like I'm either "crazy" and therefore unable to rationally make a decision or I just have a d3@th wish. Neither is true.
The system royally screwed me and many other folks over. I was privileged enough to be in specialized treatment as a teenager, and obligatory "this is just my experience," but it was all about refeeding. They didn't care about why I was engaging in these behaviors. They wanted to make sure I was medically stable and then they sent me back to my parents' house with strict instructions to keep an eye on me. In many ways, treatment made it worse.
(I have one specific memory of group therapy, where we were talking about body trends throughout history [presumably to illustrate that the perfect body is a myth]. The therapist said, "How about Marilyn Monroe?" I started, "Well, she was thin, but she wasn't-" and the therapist cut me off to say, "No, she wasn't!" and explain how she was curvy and beautiful and everyone loved her. This was well-intentioned. But to me, the teenager with years of obsessive urges and crippling body dysmorphia, who legitimately was fatter than Marilyn Monroe, this became a core memory. It might seem a small thing, and in the grand scheme of things, it is. But I learned a lot about what was expected of me in treatment at that moment.)
Treatment inadvertently taught me many things. It taught me that recovery needs to be fast, because it's a drain on family members if it's too slow. It taught me that people who looked like me don't need recovery the same way as others, I needed to "eat normally" and leave. It taught me that it didn't matter what I needed, what I was getting from my behaviors, because the behaviors were bad. It taught me that my experience was somehow intrinsically different than others', because maybe I really did need to lose weight. It taught me that if I wanted to be a good person, I needed to "get better."
So when I "failed" at recovery, I felt horrible about myself. When I lapsed and relapsed and struggled to stand up on my own, I felt morally inferior, because recovery is what you do. People who don't recover d!e. Good people try harder.
I've come to realize, now, that I wouldn't use these behaviors if I didn't need them. I don't enjoy them (contrary to popular belief). I've found some alternatives that work sometimes and others that never do. I've been in therapy for years now, and every therapist says the same things about needing self-confidence and healing childhood trauma. But it doesn't matter, and it never has. I have a great relationship with myself. I think I'm wonderful, and I see my weaknesses, and I'm committed to my growth. Yeah, there's some childhood stuff, but I've been working through it for years, and I'm way healthier now than I have been historically.
And I still use these coping mechanisms. And I think I might always, to some degree. Could I "get better"? Maybe. I don't know, honestly. That's a massive amount of time and resources. It's hard work that demands your focus and energy and money. It's even harder work for people who are multiply marginalized to access services. Maybe I will pick "recovery" one day.
Right now I'm committed to harm reduction. I eat when and what I can. I take care of myself when and after I use a behavior. I'm honest with the people I trust. I don't pretend this isn't happening to me and I don't pretend that it doesn't suck. And equally, I let myself have good days. I don't invalidate myself when things are going well. I don't lie to myself.
And I'm not "crazy" for choosing this. "Recovery" as a concept is inaccessible to me right now. I'm Autistic and have yet to find a provider willing to accommodate my sensory issues. I'm a student and unable to pay for better health care. I'm just not ready to recover. (They say you'll never be ready, and I disagree, but that's another post.)
This doesn't mean I'm engaging in everything all the time and spiraling constantly. I do what I can, when I can. But people consistently act like this is not a rational decision. But it's my body. It's my life. It's not the safest way to live, and I know that. But I get to pick anyway.
I know this post is chaotic and I'm not sure if I got across what I'm trying to, but the point is, even if I wasn't picking harm reduction as the current safest, healthiest, reasonably accessible path for me, it would still be my choice. If I decided to engage until I d!ed, that is still my choice. I, and other chronically mad people, should still have autonomy. I'm still a person. I'm doing this for a reason, and calling me "crazy" or "incompetent" only serves to alienate me more from the recovery I might eventually choose.
But I deserve support even if I never, ever, "get better."
#and calling something a “disorder” is another conversation#sociology student#social justice#mad liberation#madpunk#mad punk#recovery#ed recovery#mental health#mytomatoes#op is fat#body neutral#body neutrality#my body my choice#i love my fat body#body liberation#mad pride#disabled#disability#disability justice#disability politics#its okay to be disabled#disability liberation#chronic illness#chronically ill#tw ed mention
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Let 👏 disabled 👏 characters 👏 be 👏 and👏 stay 👏 disabled 👏
#sherlock speaks#ugh#i just watch venom#which ya ya i know marvel is awful#and it wasnt a great movie#but let me have this#girlie is paralyzed#i can understand not being paralyzed in symbiosis form#but why the fuck cant she be paralyzed#as a person#she was fine!#disability is okay#its okay to be disabled#its okay to have disabled characters#grrrrr
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"Anything that impairs you from functioning or completing a basic life task without accommodation is a disability. Anything that makes you spend days in bed during a flare-up is a disability!"
Always feel bad when I see someone say something like "I don't have a disability but I have [something that is a disability but society doesn't treat like one]"
Migraines. Food allergies. GERD. Vision problems. Skin problems. For people that menstruate, conditions that cause irregular and painful cycles. Those are all disabling. Anything that impairs you from functioning or completing a basic life task without accommodation is a disability. Anything that makes you spend days in bed during a flare up is a disability! Not everyone experiences your symptoms and you're not being weak or whiny.
Mental illnesses that people treat as "mainstream" these days like anxiety, depression, or ADHD are still disabilities. Overcoming a massive struggle just to get out of bed, slow down your thoughts, or focus on what you need/want to do is disabling. Starting the day with less mental energy than most people is disabling.
For the migraine people: yes, everyone gets headaches, but no not everyone gets migraines. It's a condition that can be inherited in which our nerves are literally wired differently and more sensitive than someone who doesn't get migraines.
For the food allergy and digestive disorder people: if you eat something your body can't tolerate, you become sick. Doesn't matter if it's a trip to the ER or skin irritation for a few hours, that's a negative response in your body. Going hungry at social events because you can't eat anything, that's not something you just have to grin and bear. Prohibitively expensive or hard-to-find accessible food. Most people have the privilege of not worrying about eating.
For people with abnormal menstrual cycles: you don't have to suck it up because "lots of people get periods, no one likes them, but they all deal with it." Majority of people who get periods don't spend days in bed with debilitating pain or nausea. Your heightened struggle is real. Going months between cycles can increase your risk of health conditions down the line, and it's good to speak to a gynecologist if you have access to one.
If you are feeling discomfort on a regular basis in any part of your body, or if you usually feel unwell after eating, that isn't normal and you deserve medical attention and support
#Disabled isn't a bad word#Its okay to say disabled#Its okay to BE disabled#I'm disabled#multiple disabilities
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but you can't keep holding on like this.
#you can put a disability metaphor in any legfndary draconic entity. many people dont know this#my art#comic#ouroboros#for tag filtering:#blood#its a blurry day forgive typos#for search results:#bite down or let go#here's the deal ouroboros#for qna:#yes you can get it tattooed i would appreciate a tip through ny kofi (pinned) and i would love to see if you feel comfortable sharing#yes its an original quote i do write sometimes#no its not cringe or bad if you blorbo tag or whatever. go nuts. if i didnt want people connecting w my work I wouldn't post it#yes you can quote it in your own art and I'd love to see that too#anyways i love you. we'll both get through this regardless of how it changes us okay? i love you.
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I know i complained about the stardew valley penny and George cutscene at length but the it really is fucking. bizarre the lengths people will go to defend it because "the game lets you pick to side with him" (please do literally any reading about wheelchair use and realize why it's a problem that the game rewards you for moving someone without their consent.) or variants of that sentiment but then it's like. the rest of the cutscene is also So Weird
Like. Penny moves an old man in a wheelchair without asking him. He gets upset, she asks if you saw what happened The game prompts you to select from;
"I was. You did a kind thing there, Penny." (+50 friendship with Penny)
"I was. You should've asked instead of assuming George wanted help." (-50 friendship with Penny)
"I'm just taking a walk, minding my own business." (No effect on friendship.)
And these are the REVISED options. Before 1.4, the second option wasn't"you should have asked", it was "You should've left him alone. Now he's grumpy."
So already it's kind of shit. The person she's upset - who's entire existence in the game is experiencing inaccessibility, let's be real - because he was shoved without permission just for being in a wheelchair doesn't have his friendship level affected at all.
Regardless of which answer you pick, George apologizes (Penny does not apologize in every choice! But the guy she shoved does!) and says she was kind.
Once he's gone, she talks about how hard it must be to be old. It's worth noting, for what it's worth, that George has been using a wheelchair since a mining accident caused his immobility; it's not a result of age, and you learn about this whole he struggles with a bookshelf in his own home, where presumably he has been living with a wheelchair for at least two decades (given how he talks about his grandson), which is a whole different can of worms because why is this never addressed in a fictional community with multiple craftspeople who frequently do projects for each other?
Anyways. So Penny's like, damn, sucks that he's old. And the options the game gives you - all neutral in terms of friendship points - are:
"I'd rather not think about it."
"It's just a different part of life."
"That's why we should respect our elders."
"I'd rather die young..."
Like are you kidding me? You have a cutscene that's about being disabled - it's not about aging, because his disability was not caused by aging, it is explicitly and directly about the fact that he is in a wheelchair. And the game assumes your opinions will be "Not my problem,", "That's an old people thing,", and "I'D RATHER BE DEAD"? And this is something people just... don't remark on? Even in conversations ABOUT this cutscene? Like, George's mentions of being disabled are already Constantly Miserable -able-bodied writer standard quality - but the game is just like. Yeah you can say you'd rather be dead rather than express any positive sentiment about this guy surviving a traumatic mining accident. You can't say it's great that he's able to still be a part of the community in his chair, or renovate his house to make it accessible the way you can build ENTIRE HOMES for other characters. The community center you rebuild in the Good Ending for the community is only accessible by stairs. The path out of his home is dirt. It's the little things, y'know, like... obviously he wasn't thought about as his own character. The game's writing sees him as a source of conflict for others, and down to the very tiles of the terrain, he's irrelevant.
AND THEN THE TOWN DOCTOR DOES A HIPAA VIOLATION AND GETS SAD IF YOU SAY GEORGE SHOULD HAVE AGENCY OVER HIS OWN BODY. WHAT ARE WE FUCKING DOING HERE
#stardew valley#ableism#long post#IM SORRY ITS JUST LIKE. EVERY TIME SOMEONE IS LIKE NO ITS NOT ABLEIST BECAUSE SHE WAS BEING NICE#OR BC THE GAME LETS YOU MILDLY CRITICIZE HER#ITS LIKE DO YOH HEAR YOURSELFFFFF#SPEAK TO ANY DISABLED PERSON EVER PLEASEEEE#okay normal again.#ugh.#patch me through to palaven command
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Thinking lots about disability things and realising its okay
Its okay to be unintelligent
Its okay to make lots of mistakes
Its okay to look ugly
Its okay to be weird
Its okay to act weird
Its okay, we are all humans, just trying to survive, it's okay to be weird to look weird to do weird things, when you break it down, it leads to, its okay, it is fine.
#okay as in not morraly wrong#reflects nothing bad about the person#just a person#its okay#positivey#hope core#<- think it is these things in my eyes feels very happy but maybe not in your eyes so im sorry if thats wrong tags#actually disabled#disability#humanity#and if this type of thinking has any name for it id appreciate to be told because i like this perspective on things#perspective
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so. rescuing kittens, huh.
#paper craft#help me kdfhgkghj they dont let me sleep....#its hard being a single mother of three.#we're taking them to the shelter tomorrow but we've been caring for these babies for about 3 days now and oh my stars dgkhdfgdjgkd#anyways the one climbing siffrin is named cupid he was the first we found#the one by his foot is valentine she is a sweetheart??#and then the one below cupid is arrow she is very talented#there was a fourth kitten but we couldn't capture them :( hopefully they're okay!!!#this is very difficult <3 bc of many reasons!!! gonna vent a teeny rq buuuuut#i lost my therapy cat in november. and we can't afford to get me a cat in our current situation#which is fine!!!!!#but.... taking care of these guys is really triggering my mourning and grief something fierce#and also theyre incredibly physically taxing and it's making my disability flare up pretty rough#so this has been... an exhausting few days
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T-The devil came and and she made me do terrible things and made me feel weird and and strange and maybe horny and she made me not focus on my work and gave me funny ideas and I want to draw them so bad and she’s bad right? And I had a little dooodle but I can’t attach it so uuuuuuuu
hang in there dollya !!! you can do it, you'll survive this !! i promise !!!
#also i didn't notice i had that disabled !! im so sorry#HEHEH you can send the doodle in now#BWUT UWEHHHH BHERBFHBJHERF#ITS OKAY THE DEVIL CANT HURT YOU HERE ANYMORE#THIS IS A SAFE SPACE#I HAVE MADE A RING OF SALT#WE'RE SAFE#dollya-robinprotector#dollya is so fun to draw...#shes so cute to draw crying too BHJERBFBJEF#dean answers#eri the orphan#fan art#art#mine#my fan art#my art#dol#dol related
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at some point in disability you stop wanting to "get better" and this is just really hard for able bodied people to understand for some reason
#i had an interaction with a doctor which prompted this#theyre almost certainly a quack but they promised they could find a cure for my eds#to be unequivocal no such thing exists eds is genetic and changing that is beyond the current limits of medicine in almost every case#i was there for regular blood testing and when they said this to me my response was pretty unenthusiastic#something like 'thats not really what im here for'#which was clearly completely baffling to the doctor#part of that has to do with the way doctors are really solution oriented but also#i dont really want to be 'cured'#its hard to explain but this is my body now and ive gotten used to it#what matters is my day to day quality of life not a return to 'normal'#in my eyes disability isnt a bad thing its a neutral one#the idea that im okay with being permanently disabled is intolerable to able bodied society#this doctor has a ton of pther red flags id like to separately post about but ive gone on long enough#to the person who sent me the ask about intersectionality bw transgender and disabled identity#i see you it just turns out a lot of research has been needed to answer you#a reply is coming tho#anyway#disability#salt baby talks#chronic illness#ehlers danlos syndrome#postural orthostatic tachycardia syndrome#ableism
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It’s currently 11 pm, EST. I’m sitting on a barstool in my kitchen while i make myself dinner because my legs hurt (just finished a 6 hour standing shift) and i’m lightheaded, and yknow what ? accommodating myself like this really improved my day. just thought i’d share (:
#chronic fatigue#chronic illness#chronic pain#i am in pain#in pain#its okay to be disabled#ouch#ouch ouch ouch#ouchie#disabled
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my third ‘burst out crying for a reason i am unable to put into words’ event in two days
#i don’t. know#i think it’s. i’ve been. living and its a lot#ive been waking up at 7am and working two jobs and doing good in all my classes and brushing my teeth and showering everyday and just. all#the stuff that’s so easy for everyone else. and when i can’t. when im struggling#and so im like. im disabled its okay so i. go to therapy more and i use the cane and all the stuff im supposed to do but then i burn out and#hurt my wrists from the cane and i know rest is. better. but i took a ‘rest day’ and it was the most depressed ive been in years#well not. years. but it wasn’t. good#i have learned i do not how to chill without being depressed about it
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i was an alien this weekend !!! we led a parade!!
#the body#asheton#WAHOO!#kids and dogs and some adults in costume it was fun!#theres an article abt it!#the exeter ufo fest its a fun one#okay tag spam lol#disabled#cripplepunk#wheelchair user#wheelchair#ambulatory wheelchair user#cripple#arthritis#enthesitis related arthritis#ankylosing spondylitis#rheumatoid arthritis#mobility aide#visibly disabled#POTS#genderqueer#transgender#trans#queer
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lately, i've seen more people in the online autistic community acknowledging the struggles of people with higher support needs, which is of course an important development. but for some, that seems to come with the implicit assumption that low needs autistics "have it easy" or experience no stigma at all, which is just wrong??? people with low support needs are still disabled by their autism and still face discrimination because of it. sure, they are impaired to a lesser degree than those with higher support needs, but that doesn't mean you can just erase their struggles, y'know?
#sometimes i see posts that are like 'its unfair to say that autistic people have it easy and arent really disabled...' and go yes! exactly!#but then they'll continue like '...because not all autistic people have low support needs'#and i'm like. okay nevermind you dont understand this at all#i have comparatively mild autism (was diagnosed with aspergers back when that was still a thing)#and my autism has still significantly impacted and impaired my life#i think its important to acknowledge the huge range of experiences in the autistic community#and that many others have struggled much more than me#but that doesnt mean its all easy breezy for me and other lsn autistics yknow?#(i guess i would technically be considered medium support needs or something but that's because of my chronic illness not my autism)#i wish people would just. like. listen to other peoples experiences before just assuming that they know everything about their lives#ofc a huge part of this is also some lsn autistics distancing themselves from hsn people and pretending that they're not actually disabled#but not every lsn autistic is like that. and even the ones that are are usually (consciously or unconsciously) downplaying their symptoms#autism#actually autistic#actuallyautistic#this isn't really about the post i just reblogged btw it just reminded me of it#because some of the notes on it went in that direction
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So idc what people say I am going to trust a minority of people to explain their own oppression and coin terms that works for them
This goes for several other things too btw. I will not fucking stand for community infighting being queer does not prevent you from being queerphobic and you can be just as discriminatory towards other members of our community as the people who hate us and want us gone. You don't get to speak over other queer people when talking about their unique forms of opression or experiences. You do not get to act like or imply that one group has it better. The fact is you don't know what other queer people's experiences are like even in your own identities and labels.
No more of it.
#transandrophobia is real#transmisogyny is real#exorsexism is real#aphobia is real#also while im talking about queer stuff this applies to many other opressed groups too#us white and abled folk talk over poc and disabled folk all the time its not okay#Listen to people talk about their own oppression. If you want to be an ally or help members of your community out try using whats available#to you to boost those voices. Give people the platforms they constantly get taken away.#also this post isnt exclusive to the identities I mentioned please give examples of other stuff doesnt got to be queer either
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"its beneficial for you to watch other things in order for you to expand your horizons" no !!! go away !!!! i exclusively watch children's/animated media because it is one of the ONLY types of media/tv shows/movies i can process as an autistic person. everything else is too stressful. im perfectly happy watching only kids media idgaf dont tell me what to do if its something that unnecessary
#they dont even explain to you why its so “important” either#also telling an autistic person to change their routine for you is crazy lmao obviously that isnt gonna work#at least the shows i watch are a routine for me#i cant speak for others#but also why do you care ???#im going to continue waching paw patrol and the octonauts and bluey and my little pony#regardless of if you think its okay or not#oh and trolls#i love love love trolls so much#autism#actually autistic#adhd#special interest#level 2 autism#mid support needs#special needs#pathological demand avoidance#pda#pda autism#disabled
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