#it was hsd for us
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insane-cripplepunk · 1 year ago
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Shout out to all the people who weren't told about their diagnosis until they were older or were never told by their parents at all
Your experiences are welcome here and I'm sorry your first experience with your knowledge of it was through an ableist lense.
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disjournaled-scrolls · 16 days ago
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A question for my chronic peeps!
Hello again! For a list of my conditions you can check my pinned post, but I'm not going to go over them here.
Basically, I've been having a set of weird problems that feel like they're not normal forever, and when I ask friends about them, they have no idea what I'm talking about. I have asked doctors and family about them multiple times, but they wave it off as completely normal. It's concerning and they've gotten steadily worse over the course of my life, and people don't seem to understand/relate? So here it is:
-Dizziness/Tunnel Vision when standing up
-VERY easily losing circulation in limbs
-EXTREME pain from circulation loss. Like, not being able to move any part of my entire body without crying in pain for 2-3 minutes.
-Weakness in limbs when standing
-Almost falling frequently
-Heart beating fast/Very out of breath after getting up and doing normal activities
-Hands/Feet turning purple just from being at rest, massaging them and holding them upright seems to fix it?
(For additional context, one of my parents has severe permanent blood clots and I have heart issues on both sides of the family. I have no vitamin deficiencies.)
I'm not asking anyone to diagnose me because this is the freaky website, and no one on tumblr dot com is going to actually know my medical history. I am, however, asking for what these symptoms remind you of (or if I'm wrong and they actually are normal???). I've been kind of worried about it for a while but with all my other health issues I've just swept it under the rug. I might just be crazy and this is normal tho lol.
thank you dr. tumblr (please don't try to say that I definitely 100% have a condition, or that I'm dying and need to go to the ER.)
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starful-emporium · 8 months ago
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Could I ask why you draw/headcanon fig as disabled because I’m loving it!
Yeah!
I saw some speculation a while ago about how having such rare parentage might affect her, and I loved it. It's mostly the idea of a genetic clash between elven and fiendish traits.
Also, during Fig's intro in freshman year, Emily mentioned her having some kind of "horn cream" and I kind of assumed it was like a teething situation lol
Anyway, I don't headcanon her as having a specific real-world disability, but something like a combination of fibromyalgia and rheumatoid arthritis, and maybe a skin condition like eczema to account for scales
And I chose forearm crutches because of their general versatility for dynamic disabilities and they match Fig's vibe imo
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thedrotter · 7 months ago
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not-yet-dead-person
silly comic of a conversation in-game i thought was too funny not to make something proper for instead of a doodle ww
(timelapse + wip images (thus silly process commentary in read more if you like artist commentary :3)
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i think the sketch looks silly and goofy and funny so i find it important to share with you the mere presence of the faces i drew on it. i drew it on top of the boxes without staying inside its borders because i find my proportions can get wonky if i draw them cropped in a restricted space. and I feel trapped otherwise and i will draw BAD!!! give me spaceeeee to go wild!!!!
the head circles are there for emotional support
very low res speedpaint because truth is the canvas was much bigger than the space where my comic was placed. i didnt account when exporting my timelapse in 720px that that tiny space would look so pixelated ... but it's able to be percieved, so its okay.
(i will now comment on my process and it is not brief sorry)
usually i would try to clean up my sketches and figure out what goes on top before jumping into linework, but since there are multiple panels and drawings i chose to jump into inking right away for the sake of brevity. i just went in with a brush that uses pen pressure and drew what was needed. i added extra line thickness and contrast in areas around the face because it helps direct your eyes there more easily that way.
according to her equipment rei has a chain belt but i only remembered it existed once I was going to color, and i did not like that discovery... I chose to ignore it to maintain my peace. i already have the color palettes for these characters figured out, and i didnt really want to think about a new element at the moment www I tend to overthink those things a lot so i skipped it
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the rest is rather straightforward! not that anything else wasn't, but in here i could turn my brain off and sing. linework and sketching require mumbling so i cannot turn my brain off. just block in the characters with a solid color so i can have a mask (something along those lines,) where the color can stay inside. then just color in !!!
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Base colors just had slight cell shading on the skin, and for the hair i airbrush a bit of the skincolor in low opacity near the forehead... I'm not sure what it means, but i can look at the faces easier with it somehow. i like the gentle subtlety it adds even if you cant really tell. it makes things look nice.
background was just me blocking in the color of the wall and floor, shade the wall a bit, then slap a noise and free use wood texture on top. work smarter not harder ! yet it took a bit to make it look stylistically fitting with the characters, and even now i think bottom middle panel looks odd. whatever!!!
for the middle panel i thought itd be funny if the background was a solid silly and colorful one to contrast the next panel's sketchy black one. a contrast to how the word widow is seen. on that note my handwritting is not pointy. i gaslighted my hand into thinking that it was indeed pointy in that moment so i could write "not-yet dead person" in letters that didn't seem cute. my hand did not fall for it but it complied anyway
that's basically it! I'm not sure what else i could say that doesn't feel barebones because it really is that straightforward. if you're curious I used clip studio paint for this. only special brush used was for linework (a brush named Lemon Brush), the rest used were just the default. my computer gets the least credit. it was trying to convince me a 20mb file was going to nuke it all the time and hardly let me save multiple times so i do not appreciate it
#re:kinder#fanart#sayaka re:kinder#rei re:kinder#OH I ALREADY RAMBLED IN MY POST WHATEVER SHOULD I TALK ABOUT NOW IN MY TAGS UEEEEEEE😭😭😭#oh yeah do you want to know a fun fact about this drawing#i started it yesterday. i wasnt meant to I DID NOT HAVE PERMISSION...FROM MYSELF... i was meant to be on break#i self imposed a one week break from doing any rekinder related project after the transcript to avoid accidental burn out#NOT THAT I GOT TIRED OF IT AFTER THAT TRANSCRIPT NOT AT ALL#but jumping straight into more hours of creativr work after over 30 hours of it is asking for disaster. it is asking for burn out#yesterday was the last day . 12 hours were left but i was going to die if i didnt draw anything it would have been OVER#(aka my period started recently so i got very gloomy and depressed so i needed to run to my favorite stress relief...drawing rekinder☺️)#(on that note seriously what the fuck please explain the evolutionary advantage to getting horribly depressed every month)#(like hello?!?! rant real quick— i get enough flashbacks everyday i DONT need them to last longer and have me more msierable ?!?!?)#(periods are so dangerous to my mental health for no reason can i get a restriction order on them or some shit what the fuck)#(anyway thats enough of that break of character DONEEEE :3333)#SO YEAH I DIDNT EVEN LAST 7 WHOLE DAYS i even played a new game in between those 6 days youd think itd het my mind of rekinder. WRONNNNGGG#not even another devastating rpg horror gamr could divert my attention for long i hsd to draw rekinder😊#using the newfound power of mt transcript i was decided on drawing rei because i dont draw her enough for how high she is on my fvaorites#i was initially doodling random lines but then i stumbled upon this interactkon and it doesnt really fit into my usual expression sheets#so i thought hey lets do it asife#i thumbnailrd it and from there i was like hey lets do it in comic format isntead of separated messy doodles in tint canvas#and the rest is hisotry .... aka i spent the last two days doing this instead of doing MY HOMEWORK!!!!!#on my defense when i wasnt drawing i was horribly depressed i had no other choice#(seriously fuck off periods WHAT what do you mean i need to be distracted 24/7 to not be struck by crippling meltdowns LEAVE ME ALONE?!?!?)#(they should be banned we as a society should find like a . cure to them it dont do me good to have a whole week where i cant function)#these tags have been more of a weird rant im sorry IVE BEEN FEELING PEEEVEDDD LATELY SO YOU GET. STRANGE DROTTER LORE ????
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kailoros-spam · 1 month ago
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Love a good friend cosplay, me and my friend went as dipper and mabel and it was a blast
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your-fave-is-bi · 7 months ago
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Painted n dry sets + just painted set, second coat drying
I only made the red raw meat set, the rest were made by my sister n just never got to the being inked stage lol
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homestuckdaily · 10 months ago
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T4T Thruplle? How is it a Thruplle if there's 4 of you? Ain't that a Quadruple?
there isn't 4 of us? depending on how you count there's either 3 or 200+ of us. no clue where you got 4 from!
EDIT: i just understood the joke
-breeoche
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hummingbird-games · 2 months ago
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it's amazing (read: disturbing) how much you can get accomplished when your phone is broken 😔✌🏾
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watercryptid · 1 year ago
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Anyone else with HSD use mobility aids? If so, what kind is good for general use as well as stairs? I can walk without much pain for the most part but stairs and inclines are the bane of my existence and cause really bad pain, and I was thinking a cane might be good but honestly I'm not sure that's the best option since my pain is generally in my knees, hips, and wrists. I also keep having the fun "youre not really disabled ur just lazy and cant take a little pain" brain worms so its making things even harder for me 🥲
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stressfossil · 2 years ago
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Thought I’d share the drawing I made to use as my discord banner! And two variations!
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isa-ah · 2 years ago
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uh oh! you entrusted the most fiscally valuable thing you've ever owned to a contrarion defeatist who's more likely to throw it away and shrug than try to do anything productive with it!
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pierog · 1 year ago
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any time i drive a car i'm like omg the other drivers think im so bad & cringeburger..don't be mad at me...
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catastrophic-crow · 1 year ago
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guess which most-special-ist girl has a connective tissue disorder and has to wear an arm sling bc she keeps partially dislocating her shoulder? 😌
th-sigh. this one. gods fucking dammit stop making me move heavy shit i will fall apart like a paper-mache doll
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eggsnatcheskneecaps · 2 years ago
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My hands hurt too much to knit :(
It doesn't seem like that big of a deal, but they hurt so much I can't type without a good deal of pain in my hands and up my arms. And knitting is something that brings me so much joy.
Using my wheelchair has a big effect on my hands, because I end up dislocating and shoving joints where they shouldn't go. And the amount of work it takes just ends up with pain anyway.
Any advice, especially from hypermobile/hsd/eds wheelchair users, is much appreciated!
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nomaishuttle · 2 years ago
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like pirating is so normal 2 me i forget there r ppl who r like antipiracy which btw is stupid. obviously
#LIKE. IDK ITS JUST WEIRD. WDYM YOUR PARENTS JUST.. BOUGHT MOVIES ?????? did you not eat as a child. be serious#that happens sm where ill be like haha. yeah. you guys remember the ol 'oh im not hungry' trick your dad used to pull#and everybodys like what. no and im like no you know where hed be like oh im not hungry but after everybody else ate hed grab the leftovers#it is like annoying. like i understand not everybody grew up in poverty but the way ppl will act like its likee. insane#there was this one time where we were doing wants vs needs for 4th grade#and one kid was like a need is having your own room. and i was like <- shared a room with both of my siblings at the time Thats not true#and everybody in my class looked at me like i was crazy. like ok laura sorry your basement movie theater is bigger than my apt but we cant#all live like that. thats true btw there were these twins and they had a halloween sleepover party and they hsd to invite me bc class rule#and it was so like. there house was hugeeeee we didnt even go to their rooms bc 'they were messy'#but we just hjng out in the basement where there was legit a movie theater. and an entire seperate living room from their main living room#which we also werenr allowed to go in#genuinely think its bc they were forced to invite the poor kids Lmao. so we werent allowed to go to the main house#lest we get our poverty germs everywhere or steal something#but yeah it was awesome. but i also think that was one of my huge Oh life is unfair radicalization moments#but i mention likee. even lighthearted shit from my childhood. and ppl r like O_O THAT SOUNDS SO TRAUMATIC#and its like. the traumatizing part of poverty isnt like#being close witj my siblings and having done a lot of activities outside of like. going to disneyland#or getting a new toy every week. yk...im not saying poverty isnt traumatizing bc it is but its like#annoying that you mention anything abt it and evrrybody in a 50 mile radius is like POOR THANG!!! like. no i think its funny that we always#got rly shitty junker cars that my grandpa sold to my mom. i was joking sbt the fact that my moms never had a car eith functioning brakes#i wasnt like. asking for pity#but whatevrr
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