#it was hsd for us
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Shout out to all the people who weren't told about their diagnosis until they were older or were never told by their parents at all
Your experiences are welcome here and I'm sorry your first experience with your knowledge of it was through an ableist lense.
#Eridan - He/Him#Dave - He/Him#cripplepunk#insanepunk#madpunk#cpunk#nueropunk#hypermobile spectrum disorder#neuropunk#hsd#it was hsd for us#disability#insane rambles
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A question for my chronic peeps!
Hello again! For a list of my conditions you can check my pinned post, but I'm not going to go over them here.
Basically, I've been having a set of weird problems that feel like they're not normal forever, and when I ask friends about them, they have no idea what I'm talking about. I have asked doctors and family about them multiple times, but they wave it off as completely normal. It's concerning and they've gotten steadily worse over the course of my life, and people don't seem to understand/relate? So here it is:
-Dizziness/Tunnel Vision when standing up
-VERY easily losing circulation in limbs
-EXTREME pain from circulation loss. Like, not being able to move any part of my entire body without crying in pain for 2-3 minutes.
-Weakness in limbs when standing
-Almost falling frequently
-Heart beating fast/Very out of breath after getting up and doing normal activities
-Hands/Feet turning purple just from being at rest, massaging them and holding them upright seems to fix it?
(For additional context, one of my parents has severe permanent blood clots and I have heart issues on both sides of the family. I have no vitamin deficiencies.)
I'm not asking anyone to diagnose me because this is the freaky website, and no one on tumblr dot com is going to actually know my medical history. I am, however, asking for what these symptoms remind you of (or if I'm wrong and they actually are normal???). I've been kind of worried about it for a while but with all my other health issues I've just swept it under the rug. I might just be crazy and this is normal tho lol.
thank you dr. tumblr (please don't try to say that I definitely 100% have a condition, or that I'm dying and need to go to the ER.)
#disability#disabled#chronic illness#physically disabled#pcos#hsd#chronically ill#chronic pain#young and disabled#disabled person#questions#disability help#help#i'm over sharing also but idrc i need some outside opinions#also i'm not going to take you too seriously#i'm just using this as a basis for things to research because idk where to begin#answer#physical illness#physical health#health tips#health advice#medical stuff#medicine#chronic fatigue#chronic
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Could I ask why you draw/headcanon fig as disabled because I’m loving it!
Yeah!
I saw some speculation a while ago about how having such rare parentage might affect her, and I loved it. It's mostly the idea of a genetic clash between elven and fiendish traits.
Also, during Fig's intro in freshman year, Emily mentioned her having some kind of "horn cream" and I kind of assumed it was like a teething situation lol
Anyway, I don't headcanon her as having a specific real-world disability, but something like a combination of fibromyalgia and rheumatoid arthritis, and maybe a skin condition like eczema to account for scales
And I chose forearm crutches because of their general versatility for dynamic disabilities and they match Fig's vibe imo
#dimension 20#fantasy high#fhjy#fig faeth#disabled fig#fig faeth headcanon#side note:#i personally have EDS/HSD and sometimes use a cane
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not-yet-dead-person
silly comic of a conversation in-game i thought was too funny not to make something proper for instead of a doodle ww
(timelapse + wip images (thus silly process commentary in read more if you like artist commentary :3)
i think the sketch looks silly and goofy and funny so i find it important to share with you the mere presence of the faces i drew on it. i drew it on top of the boxes without staying inside its borders because i find my proportions can get wonky if i draw them cropped in a restricted space. and I feel trapped otherwise and i will draw BAD!!! give me spaceeeee to go wild!!!!
the head circles are there for emotional support
very low res speedpaint because truth is the canvas was much bigger than the space where my comic was placed. i didnt account when exporting my timelapse in 720px that that tiny space would look so pixelated ... but it's able to be percieved, so its okay.
(i will now comment on my process and it is not brief sorry)
usually i would try to clean up my sketches and figure out what goes on top before jumping into linework, but since there are multiple panels and drawings i chose to jump into inking right away for the sake of brevity. i just went in with a brush that uses pen pressure and drew what was needed. i added extra line thickness and contrast in areas around the face because it helps direct your eyes there more easily that way.
according to her equipment rei has a chain belt but i only remembered it existed once I was going to color, and i did not like that discovery... I chose to ignore it to maintain my peace. i already have the color palettes for these characters figured out, and i didnt really want to think about a new element at the moment www I tend to overthink those things a lot so i skipped it
the rest is rather straightforward! not that anything else wasn't, but in here i could turn my brain off and sing. linework and sketching require mumbling so i cannot turn my brain off. just block in the characters with a solid color so i can have a mask (something along those lines,) where the color can stay inside. then just color in !!!
Base colors just had slight cell shading on the skin, and for the hair i airbrush a bit of the skincolor in low opacity near the forehead... I'm not sure what it means, but i can look at the faces easier with it somehow. i like the gentle subtlety it adds even if you cant really tell. it makes things look nice.
background was just me blocking in the color of the wall and floor, shade the wall a bit, then slap a noise and free use wood texture on top. work smarter not harder ! yet it took a bit to make it look stylistically fitting with the characters, and even now i think bottom middle panel looks odd. whatever!!!
for the middle panel i thought itd be funny if the background was a solid silly and colorful one to contrast the next panel's sketchy black one. a contrast to how the word widow is seen. on that note my handwritting is not pointy. i gaslighted my hand into thinking that it was indeed pointy in that moment so i could write "not-yet dead person" in letters that didn't seem cute. my hand did not fall for it but it complied anyway
that's basically it! I'm not sure what else i could say that doesn't feel barebones because it really is that straightforward. if you're curious I used clip studio paint for this. only special brush used was for linework (a brush named Lemon Brush), the rest used were just the default. my computer gets the least credit. it was trying to convince me a 20mb file was going to nuke it all the time and hardly let me save multiple times so i do not appreciate it
#re:kinder#fanart#sayaka re:kinder#rei re:kinder#OH I ALREADY RAMBLED IN MY POST WHATEVER SHOULD I TALK ABOUT NOW IN MY TAGS UEEEEEEE😭😭😭#oh yeah do you want to know a fun fact about this drawing#i started it yesterday. i wasnt meant to I DID NOT HAVE PERMISSION...FROM MYSELF... i was meant to be on break#i self imposed a one week break from doing any rekinder related project after the transcript to avoid accidental burn out#NOT THAT I GOT TIRED OF IT AFTER THAT TRANSCRIPT NOT AT ALL#but jumping straight into more hours of creativr work after over 30 hours of it is asking for disaster. it is asking for burn out#yesterday was the last day . 12 hours were left but i was going to die if i didnt draw anything it would have been OVER#(aka my period started recently so i got very gloomy and depressed so i needed to run to my favorite stress relief...drawing rekinder☺️)#(on that note seriously what the fuck please explain the evolutionary advantage to getting horribly depressed every month)#(like hello?!?! rant real quick— i get enough flashbacks everyday i DONT need them to last longer and have me more msierable ?!?!?)#(periods are so dangerous to my mental health for no reason can i get a restriction order on them or some shit what the fuck)#(anyway thats enough of that break of character DONEEEE :3333)#SO YEAH I DIDNT EVEN LAST 7 WHOLE DAYS i even played a new game in between those 6 days youd think itd het my mind of rekinder. WRONNNNGGG#not even another devastating rpg horror gamr could divert my attention for long i hsd to draw rekinder😊#using the newfound power of mt transcript i was decided on drawing rei because i dont draw her enough for how high she is on my fvaorites#i was initially doodling random lines but then i stumbled upon this interactkon and it doesnt really fit into my usual expression sheets#so i thought hey lets do it asife#i thumbnailrd it and from there i was like hey lets do it in comic format isntead of separated messy doodles in tint canvas#and the rest is hisotry .... aka i spent the last two days doing this instead of doing MY HOMEWORK!!!!!#on my defense when i wasnt drawing i was horribly depressed i had no other choice#(seriously fuck off periods WHAT what do you mean i need to be distracted 24/7 to not be struck by crippling meltdowns LEAVE ME ALONE?!?!?)#(they should be banned we as a society should find like a . cure to them it dont do me good to have a whole week where i cant function)#these tags have been more of a weird rant im sorry IVE BEEN FEELING PEEEVEDDD LATELY SO YOU GET. STRANGE DROTTER LORE ????
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Love a good friend cosplay, me and my friend went as dipper and mabel and it was a blast
#constantly being able to go 'thanks! my friends mabel :DD' and pointing towards her and her handmade waddles as a response to compliments#also!!! we met another mabel and dipper who were rly sweet as well and thr mabel made the literal light up sweater and a handmade journal#and one of them hsd the time travel thingy??? incredible#also another pair literally sitting at a crafting station was pure art#love how the mabels all reflected their cosplayers so well incredible#also s/o to the guy who saw us like. 5 minutes after getting ready gave us a compliment quoted bill on us and left. delightful#also me and another dipper nodding at each other and him then coming up to me to talk to me#also the amlunt of artists complimenting us was rly sweet :))#anyways do recommend partner (or group i suppose) cosplaying is like double the fun than it already is alone#me and 2 other friends were already dreaming of doing witch hat atelier cosplays next year
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Painted n dry sets + just painted set, second coat drying
I only made the red raw meat set, the rest were made by my sister n just never got to the being inked stage lol
#personal tag#for the blue n gold set i tried SO MANY ones before admitting gold just looked best on it#i tried a dark silver and a light silver snd s bright light blue n none of them worked well#the dark silver looked nice but wasnt legible at all#so i settled on just. gold. and it does look nice. i doubt you could ever really go wrong with gold numbers#for the blue set thats drying i used a metallic blue paint#the first coat was. annoying. but i also did that at the crafternoon with friends#when i was taking some braintime after session 0 discussions that went way longer than i expected#so i prob also hsd frustrations from the overstimulated brain then#did a second coat here at home with my tunes n in my chair in my space with my everything n it went. much smoother#also bc i REALLY loaded the paint up on the first coat lmao#we do we learn we vibe#for the othet sets i have i wanna see if i can mix some paints to get my desired colors#there’s a real pretty smoky grey set with dark pink glitter flakes in it…v nice looking#thinking of doing that in a dark dusty pink#and there’s a sparkly green teal set with the slightest drops of dark blue here n there that I want to ink dark blue#but maybe a very bright dark blue could look fun too. hmmm
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T4T Thruplle? How is it a Thruplle if there's 4 of you? Ain't that a Quadruple?
there isn't 4 of us? depending on how you count there's either 3 or 200+ of us. no clue where you got 4 from!
EDIT: i just understood the joke
-breeoche
#HSD answers#anonymous#mod breeoche#in case it's not a joke t4t stands for 'trans for trans'#theres 3 of us and were all trans and dating each other#still leaving this up though. my answer isnt a joke were also all plural.
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it's amazing (read: disturbing) how much you can get accomplished when your phone is broken 😔✌🏾
#100% first world problems#but it's SO annoying to have to pull money aside to buy a used replacement with $$ that could have been spent on fun things....#like the commissions I wanted...#or practical things like car maintenace stuff KSFJSFJF#anyhoo I'm doing HSD stuff and listening to a streamer play DATV#at least the update is gonna look cool#gamedev rambles
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Anyone else with HSD use mobility aids? If so, what kind is good for general use as well as stairs? I can walk without much pain for the most part but stairs and inclines are the bane of my existence and cause really bad pain, and I was thinking a cane might be good but honestly I'm not sure that's the best option since my pain is generally in my knees, hips, and wrists. I also keep having the fun "youre not really disabled ur just lazy and cant take a little pain" brain worms so its making things even harder for me 🥲
#physical disability#physically disabled#hsd#hypermobile problems#hypermobility#hypermobile spectrum disorder#hypermobile eds#hypermobile joints#cpunk#cripple punk#not sure if actually cripple but using the tags for help#mobility aid#mobility aids#cane user#rollators#crutches#crutch user#pls help#wheelchair#pls reblog if you can
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Thought I’d share the drawing I made to use as my discord banner! And two variations!
#free to use#EDS#hEDS#cEDS#HSD#spoonie#connective tissue disorder#disabled#disabled memes#funny#discord banner
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uh oh! you entrusted the most fiscally valuable thing you've ever owned to a contrarion defeatist who's more likely to throw it away and shrug than try to do anything productive with it!
#were never going to get out of debt if she wont even give the van a chance!!!!#he needs a good flush and fresh fluids. thats it! and we could sell him for a couple grand like we bought him!#the things older than us and built like a battleship. it turns over no problem! its just been sitting in arizona for a few years#since we hsd to make an emergency exit#she said she was going to visit Phoenix so shed get a mechanic to get it running and sell it for us so we can get out of luke 2g debt w her#and its been weeks and the only thing shes done is find a guy whos willing yo scrap it for her#like! you didnt even google the word mechanic before you wrote it off! its a GOOD VAN and people woule go nuts for it right now#bc its an old ford van with a huge emphasis in living out of it for travel. its enormous and beautiful#and shes just gunna hand it off to a junker for no money???? hello??????? i paid thousands in cash for it
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any time i drive a car i'm like omg the other drivers think im so bad & cringeburger..don't be mad at me...
#ive hsd my license for a year and still feel like im doing something illegal#personal#i'm not a bad driver by any means i'm just baffled they let us loose on these thangs
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guess which most-special-ist girl has a connective tissue disorder and has to wear an arm sling bc she keeps partially dislocating her shoulder? 😌
th-sigh. this one. gods fucking dammit stop making me move heavy shit i will fall apart like a paper-mache doll
#at least it's my right arm instead of my left#but still#so fucking annoying#i'd take pretty much any lower body subluxation over this one#some might hurt like hell but tbh my legs aren't exactly that useful to me on a good day; so.#at least i can do stuff with my arms#sighs loudly and busts into flames and turns into dust which gets swept up by a howling wind (my shoulder still hurts; probably)#rant post#venting#irl stuff#disability#EDS#HSD#hypermobility#(fucking sucks)
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#everyone in the fam except my father has been 0 contact with the grandparents (father's parents) for a long time#they are shitty people. bigoted. abusive. among other things#he's still been going to see them at the village and on his last trip (just yesterday or two days ago)#my sibling sent him a text with a list of things they've done towards him#well. my father confronted them about the list and they denied everything and hsd a fight#so he left. and today we've been called up and asked to go out for quality time. a restaurant. a park. something#this is the most he's ever done to stand up for us... idk. it's bittersweet.#it's progress. should have been earlier. but better than never.#egg.txt#vent#???#discusses heavy topics tho
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My hands hurt too much to knit :(
It doesn't seem like that big of a deal, but they hurt so much I can't type without a good deal of pain in my hands and up my arms. And knitting is something that brings me so much joy.
Using my wheelchair has a big effect on my hands, because I end up dislocating and shoving joints where they shouldn't go. And the amount of work it takes just ends up with pain anyway.
Any advice, especially from hypermobile/hsd/eds wheelchair users, is much appreciated!
#i just want to get to leave my house and have it not hurt so much I cant do anything#its better than it used to be but still#im waiting on my own wheelchair to arrive bc it has to be imported bc ireland#and then i have to wait for power assist bc insurance#eds#hsd#heds#cripplepunk#cripple punk#wheelchair user#physically disabled
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like pirating is so normal 2 me i forget there r ppl who r like antipiracy which btw is stupid. obviously
#LIKE. IDK ITS JUST WEIRD. WDYM YOUR PARENTS JUST.. BOUGHT MOVIES ?????? did you not eat as a child. be serious#that happens sm where ill be like haha. yeah. you guys remember the ol 'oh im not hungry' trick your dad used to pull#and everybodys like what. no and im like no you know where hed be like oh im not hungry but after everybody else ate hed grab the leftovers#it is like annoying. like i understand not everybody grew up in poverty but the way ppl will act like its likee. insane#there was this one time where we were doing wants vs needs for 4th grade#and one kid was like a need is having your own room. and i was like <- shared a room with both of my siblings at the time Thats not true#and everybody in my class looked at me like i was crazy. like ok laura sorry your basement movie theater is bigger than my apt but we cant#all live like that. thats true btw there were these twins and they had a halloween sleepover party and they hsd to invite me bc class rule#and it was so like. there house was hugeeeee we didnt even go to their rooms bc 'they were messy'#but we just hjng out in the basement where there was legit a movie theater. and an entire seperate living room from their main living room#which we also werenr allowed to go in#genuinely think its bc they were forced to invite the poor kids Lmao. so we werent allowed to go to the main house#lest we get our poverty germs everywhere or steal something#but yeah it was awesome. but i also think that was one of my huge Oh life is unfair radicalization moments#but i mention likee. even lighthearted shit from my childhood. and ppl r like O_O THAT SOUNDS SO TRAUMATIC#and its like. the traumatizing part of poverty isnt like#being close witj my siblings and having done a lot of activities outside of like. going to disneyland#or getting a new toy every week. yk...im not saying poverty isnt traumatizing bc it is but its like#annoying that you mention anything abt it and evrrybody in a 50 mile radius is like POOR THANG!!! like. no i think its funny that we always#got rly shitty junker cars that my grandpa sold to my mom. i was joking sbt the fact that my moms never had a car eith functioning brakes#i wasnt like. asking for pity#but whatevrr
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