#insurance is a mess
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So for anyone who believes the medical system is relatively simple to navigate, here is how my afternoon has gone so far:
Called my insurance for help answering 5 questions. The first question took about maybe 50ish minutes to only sort of get an answer? And that was after the agent repeated back to me, several times, saying "As I previously explained" followed by an explanation that did not answer my current question. So that took a while. Then I went on to my next questions. Two of them apparently did not make sense to the agent either (in addition to me), based on the claims, and so they had to go talk to another department while also transferring me to another different department. They also were confused by another one of my previously appealed claims, and so they had to do their own digging as to what was going on. This entire call lasted just over 1 hour 40 minutes.
THEN I got to call ANOTHER number for a different hospital service because my account online wasn't showing a balance, but the letters I have received said I do have a balance. The agent who answered the phone for this call also didn't know why my balance was not showing online. This question got squared away pretty quickly, running just over 11 minutes in call time.
So now think of this: I am a (reasonably) well-educated person, with a PsyD in Clinical Psychology, and have been closely intertwined with the medical system since 2017 when I finally got one of my diagnoses. I have, in recent years, been even more intertwined with the medical system, with applying for Medicaid at one point, managing which doctors I see due to them actually being in-network with my various insurance providers through the years (not sure any of you notice, but finding an in-network provider, ESPECIALLY when on Medicaid, is extremely difficult), managing various prescription costs, talking to insurance as to why certain medications are suddenly no longer covered, advocating for myself when meeting with different providers (which they absolutely do not like but it 100% is necessary), calling insurance when something doesn't make sense on a claim (e.g., why a service, that was not specified, is suddenly not covered under an in-network provider), finding the right department to contact for insurance, trying to send messages with insurance and getting answers that pretty much say nothing with regard to answering my actual question (which then results in having to call insurance, which is not really all that fun), and there's probably more that I'm missing.
I'm also a relatively privileged individual, with a (mostly) stable wi-fi connection, a phone that can be easily charged and is currently connected, and a way to jot down notes both before and after calls (before: what questions I have; after: what the agent(s) said regarding my questions).
Now think about those in poverty. Do I have the most money? No, but I have a stable place to live, food, and water, and I have support from others (including you all!) who have helped me tremendously through financial support. But do those in poverty often have those things? Not always. Then put on top of trying to fend for basic survival necessities (which should probably be a pretty high priority) the medical system. This includes insurance (or lack thereof) and, if someone has it, paying consistently for it. This includes paying out-of-pocket costs with probably minimal money. This includes somehow getting to appointments on time with methods of transportation that may not be the most reliable, or they may cost a lot of money. This includes picking up and paying for prescriptions on time. This includes (if at all possible) communicating with one's insurance regarding claims that may not make sense. THEN we add on possible kids and have all the same barriers previously mentioned. THEN we have the possibility of someone having a job (if they're lucky enough to hold one), while managing medical things for both themselves, and if they have them, their kids. If they don't have a job, then we're looking at figuring out how to get on disability or SSI (both of which are TREMENDOUSLY difficult and tedious to get on and takes months to years to actually successfully do it). Now we're looking at if this person even has an advocate or case worker to help them. If they don't, or don't know how to get set up with one (because actually knowing what services you're entitled to, especially with different insurances, is exceedingly confusing), then they're on their own trying to navigate this vast landscape of things to manage. Oh, and we also have to consider that if someone IS on Medicaid or disability, they can only work a certain amount and take in a certain amount or else they lose their coverage. I'm not entirely sure the number of hours one is allowed to work on disability, but I want to say maybe around 15/week? (If someone actually knows this number please reach out to me and let me know!)
So we have all this mess. And think, I spent just under 2 hours on the phone with various insurance and medical providers today, but someone who is super struggling and under-privileged likely doesn't have the 2 hours needed to whatever questions they may have. Which can unfortunately result in frustration, hang-ups, and not getting an answer that can be understood in layman's terms which can result in more frustration and potentially just giving up on advocating for oneself.
It's a mess, and there are so many layers that are not discussed or even thought about by so many different people. I feel as though this needs to be said and at least somewhat recognized by others, potentially to help provide compassion to those so closely intertwined in the medical system.
#larjb3#cripple punk#disability#medical system#medical system troubles#insurance#insurance is a mess#poverty#privilege#disabled#chronically ill#chronic illness#chronic pain#fibromyalgia#cancer#ewings sarcoma#ssi#ssdi#social security#universal healthcare is so needed#an american vents#hopefully social justice?#in some capacity?#the medical system just makes me frustrated and angry
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✨Late Night Flight🌙
#kirby#metaknight#king dedede#bandana waddle dee#metadede#putting the babs to sweep#comic#LMAO I MADE THIS LIKE TWO YEARS AGO#still love it tho#the dads#its not formatted suuuper right but hey I drew this all on one sheet of paper hsjshsj#Metaknight will insure the kiddos get proper sleep in a safe place ❤️❤️#Dedede knows this means he secretly just brings them to his castle lmaooo#So he likes to mess with meta haha#they totes have some snacks and hang right after#and they collect a bunch of cute bab photos to embarrass them in the morning too lmaooooo#my art
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Hm. Okay. So I didn't read a lot this last month. I've been fighting chronic illness and the brain fog that comes with it so really it's a miracle I read what I did. Didn't do any drawing challenge this year, but I DID knit a half dozen cool little things I can't yet share but am very excited about! I also had fun with the Tricking Treats this year. Yall really came through for that game this year, thanks! Acquired a nice new monitor for computer and it's been wonderful. Next step is speakers so I can watch things!
I feel like I made a pretty decent dent in my yearly reading list and while I don't think I'll finish it (waitlist for Jasmine Throne audio is still about sixteen weeks long), I'm happy with where I am. Three (3!!) books I read this month were from the list and I think that's very cool and executive functioning of me.
In Other Lands by Sarah Rees Brennan ⭐⭐⭐½ - A friend has been trying to get me to read this since it came out and I've always put it off because our tastes are SO different, but I didn't hate this! I mostly enjoyed it! It missed a few marks for me and I wouldn't really want to read it again, but I'm glad I experienced it. Love a good gremlin of a main character.
Red Sister by Mark Lawrence ⭐ - Yawn. Snore. Boring. Read for book club, but I wasn't exactly not interested in it on my own. IT just. Didn't hit right. Mark Lawrence needs to stop being afraid of aging up his characters because there is no way a nine year old is doing all that. Was this scifi? Where those space ships?? Is the moon haunted??? Who knows. Who cares. Not I.
Strange the Dreamer by Laini Taylor ⭐⭐⭐⭐ - I am forever a Daughter of Smoke and Bone girlie (gender neutral) so I've been avoiding this because what if I don't like it?? Spoiler! I did like it! It somehow scratched the hole left in my heart after DoSaB, but still felt distinct and unique. Did not like the insta love going on, yall have known each other for like twelve hours what do you mean you're In Love. Visuals were great and world building stunning as always. I wish Laini Taylor published more books, I love the worlds she creates.
Once & Future by AR Capetta and Cory McCarthy ⭐ - I'm never reading another book with Jimmy Pees name on it ever again. I meant to do a full review on this one, but time slipped away. I think this could be SO GOOD if it was reworked to two books where book one stopped at the time skip and book two took more time to overthrow the Evil Capitalist. It was too on the nose. It felt like middle grade, it dealt with older young adult topics. Merlin fucking sucked. I find it icky that everyone was paired off except for the ace character who EVERYONE HATED. Sure they came around to her, but ONLY AFTER IT WAS MADE CLEAR SHE WASN'T INTO GWEN. Ick. Full of potential, and yet.
Not a great reading month. Maybe November will be kinder. I'm slowly getting through Sunbringer, and am enjoying what I'm read so far so things are looking up. Going to see Nerd Squad soon. Still making knitted things I can't share until after the holidays. Tricking Treats also made me excited to do art again and because there were so many I ended up learning a lot about how CSP works which is fun! So hey! November is looking good! November is looking fun! I WILL MAKE IT FUN!
#bookbird babbles#reading wrap up#monthly wrap up#october wrap up#books#booklr#my health has Not Been Good yall lmaaoooo#i hate insurance its such a scam#just give me my meds!!!!!!!!!!!! the dr prescribed them for a reason!!!!!!! who are you to say its unnecessary!#also disability took away 100$ every month because 'my income changed' but the only income i have is their payments so like.#lol. lmao even.#idk its a mess over here but i refuse to die about it
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so, for anyone who saw my previous post tonight one of our pipes burst which has caused a great deal of damage to a lot of our house. we're doing all we can to try and clean up on our own but if anyone can help by donating that would be immensely appreciated. i spent the last few hours alternating between wanting to cry and scooping water into our bath to try and minimalize the damage.
i'll add the link here and some photos under the cut so people can see what has happened.
#we have argued with our landlord for the last hour#he told us he doesnt have insurance and#its basically up to us to sort it out#and do damage control#i would never ask for help under any other circumstance#this post is ok to share#ill add the video of misha in it so you can see my cat#being a lil guy as well#i wish i could do literally anything#i have literally ten dollars to my name#and it's just a mess i dont know how to deal with#ooc.#we've lost all of our toiletries and tobias lost all of his testosterone gel its just been a whole nightmare#we're staying up all night tonight to try and dry as much as we can
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My face when the mom who just backed into my car with her mini van said that her back sensors didn’t tell her I was there and she doesn’t know what happened: 😐
#what happened#is you didn’t look#I’m fine#my far is fine just crunched a little#the bumper was already messed up so hopefully I can get insurance to fix the whole thing now at least#hopefully…
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Actual photo of a raccoon taken on my back porch that got made into a meme (I want to say it was @stealingyourbones who made it? Edit: my apologizes, it was @gilbirda )
@spite-sapphic-starlight asked me about it, and I guess I never told the story behind it to people.
I have an extreme dislike of raccoons after one got into my crawl space and did a lot of damage. The bastard also liked chewing on electrical wires above where I slept.
So, one summer, I was trying to catch some stray kittens so the cat food was too much for them to ignore. Was in the process of scaring this one off the porch from the storm door when it stood up. And I opened my back door so I could punt it. Yes, my hatred runs that deep.
Thankfully, for the both of us, it realized I was serious and ran off before mistakes were made. But yes, I was going to fist fight a raccoon
#memes#raccoon#Goshi’s thoughts#I really really hate raccoons#you like them until you have to dish out money to fix their mess#thankfully home insurance will sometimes cover it
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Life is hard! Consider buying my stuff!
My life isn't quite falling apart, but things have gotten really tricky lately. One housemate (and their super destructive, permanent houseguest) is refusing to pay their share of rent or utilities for the next three months, and another is refusing to pay their full share of rent for that same amount of time and is making us cover around $75 every month, and I'm having to double-up my hours at work while still being a full-time student (and also one of my professors, who we're 99% sure is using ChatGPT to generate her citations because none of them exist and we pointed this out, hates my guts and has been grading me really harshly and forcing me to go full-sail on every assignment to ridiculous degrees in order to pass this required class).
My spouse is working on getting full-time at their job, but it looks like they won't be able to until December, and we also have no idea how much rent is going to increase this year-- my guess is it's going to go up another $500, same as last year, to a total of $3,000, so things are gonna get really fucking bumpy until around January, probably.
So basically, if you like the work I've done, consider throwing me a tip on Ko-Fi or buying my stuff on Itch.io:
(Also I promise we have more stuff lined up that we want to polish and publish, life has just been super-duper fucking busy! There is so much more going on right now than what I've mentioned here, especially in terms of surprise medical bills and other horrible surprises. And we haven't forgotten about Inky Paws issue 2, either, which we're still hoping to have done by December and which will STILL always be entirely 100% free to download, no matter what our living or money situation looks like. That will never ever change, so please don't worry!)
#personal#yells#one of the surprise medical bills was MY TOOTH FUCKIN BROKE#I need to get a whole ass crown!!! wtf I'm anti-monarchy this should be illegal to happen to me#there are other surprise medical bills too but that's the one I'm most like are you FUCKIN srs rn#I love dentists and I think they're the coolest so it's like not scary or anything it's just. it's SO EXPENSIVE.#All the other bills should be at around $600 or below but this definitely won't even with insurance and I'm like whyyyyyyy#I should have gotten the crown like a week or two ago but I literally just cannot afford it rn so I'm trying to just be careful#with the patch the dentist put on it a month or so ago....#sorry I'm just using the tags to SCREAM at this point like oh my god guys#you would not believe some of the bullshit that is going on rn#My housemate's permanent guest? it's their partner with assault charges#Who kidnapped a cat#Burned their last place of residency down#Bite and shanked their mother at 5am while she was asleep in her bedroom#And got my housemate arrested on false charges last year for funsies#And jumped off my roof#And brings stray animals in the house#And makes the hugest messes in the kitchen and living room without cleaning them up#(And I think she's a local drug dealer but that's more just a DO IT IN YOUR OWN FUCKING HOUSE AND NOT MINE thing)#So the whooooole polycule is on high alert that this person is gonna go off the rails and hurt people/pets at any time#I'm so unbelievably stressed out and worried about my cat especially#And like. I have PTSD dudes! This is so unimaginably fucking awful for my mental health!#If it weren't for my support system I would be in PIECES right now. I am so lucky to have partners and friends who care.#Also if some of that list sounds Weirdly Familiar to you it's because I wrote a fictional AITA post for NaNoWriMo '21 based on some of it#Yeah THAT is how long this stuff has been going on and what I've listed here is only Tip Of The Iceberg#Those two people will be gone by the end of November but oh my god I'm so stressed about retaliation and shit#The housemate in question tried to deflect by being like-- oh well she was just off her antipsychotics!#Like dude I don't know how to break this to you but. 1) that's a reason but not a justification for her behavior#2) She's an awful and horrible person both on and off her meds so obviously it is not the sole fault of her psychosis
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I'm going to throw myself off a bridge
#FUCK YOU HEALTHCARE FUCK YOU FUCK YOU FUCK YOU FUCK YO-#love how im unable to view my healthcare account so im not sure what i have after my fathers retirement#furthermore love how my already shitty doctor doesn't take whatever their database says i have (which is not what im suppose to have)#and to make it better they don't accept my secondary healthcare provider either!#and now the doc has rejected my request for my anxiety meds to be refilled!#so not only do i have a blood test that came back “strange” without them telling me what was wrong#nor can i make an appointment with them to figure it out until my insurance is cleared up (IF it is and the accept it in the first place)#but now i am not allowed to have my daily dose of sanity through this whole mess#can't wait to be on hold for 3+ hours while i wait to figure out my insurance and possibly have to find a new doctor#like seriously? This is already stressful enough and now your refusing to refil my Buspirone? A medication Ive been on for almost two years?#ugh
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all are started, not sure when each will be complete but i'm updating my works in this order
• bee 11
• necessities 5
• glass heart 2 tied in with an anon request
• another request lol
see hash tags for unhinged explanations cus i've literally been so inactive i miss yall
#i know i've been MIA but i have a lot going on lol#totaled my car & this is not the first time so my insurance is like 800 a month now plus my 500 car payment plus rent but my brothers#is picking up like all the other bills lately and still paying his half of the rent#bless his heart fr#i'm such a mess and i'm managing money horribly im a shopaholic weedaholic alcoholic#lmfaoo so ive been working more with less time to write#bare with me i love you all don't get bored and leave me HAHAHA#chipping away day by day
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My landlord broke the news to me that he might have a potential buyer on the property I, and my neighbors, live in and that I have a YEAR to find a new place or my rent is gonna increase dramatically (again)…
#personal#Happy Monday to me!#My one neighbor is elderly/lives on Section 8/is poor and I know is gonna try and encourage him to not do so. She’s gonna be devastated.#My landlord hasn’t even dropped the news to her yet because even he knows she will be.#Worse comes to worse I’m gonna have to move back in with my mom and her boyfriend. That’s absolute worse case scenario.#<- And I might have to because rent prices are outrageous even here.#Now would be a good time to jump ship and move somewhere else like a different city.#However I would have to find a new job as mine is local and I’d lose my insurance and it would be a mess. I DONT want that.
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Screaming nauseously into the void
So, for the past ten months I've had a Mystery Problem Syndrome (MPS) -- unpredictable hours to months of nausea, headaches, dizziness, brain fog, weird muscle things, a dangerous amount of weight loss, all that fun stuff. The working hypothesis from my GI is that it's an autoimmune thing triggered by a viral infection in my intestines that may or may not be temporary on the scale of a year or two, but we haven't been able to totally confirm that's what it is or whether it's going to be a year-long thing or a many-years thing or a forever thing. It's not always clear what's triggering the big flare-ups, but stress is a contributing factor. This is a problem firstly because I'm a PhD student who has always run a little anxious in the way that some ovens run a little hot and secondly because my body cannot tell the difference between stress and excitement.
In practical terms, this means that I've zombied my way through work for about five total months since January, have barely left my town all year even for just little day trips, paused a lot of my big plans like getting more intensive therapy to deal with my driving anxiety, and have had lots of little "fun" moments like barely being able to present my work at a big conference, running out of my roommate's big opera performance to throw up in a trash can in the hall, and spending about two months being unable to even take consistent notes during D&D and not really being able to enjoy it or any of my other hobbies. This was all no good, obviously, but to really add insult to injury, I might have triggered a full-on flare-up by... (drumroll, please)...
Buying groceries for my Halloween party!
Not even throwing the party. Not even drinking too much or eating forbidden foods at the party.
Buying groceries for the party. At the same grocery store I always buy groceries at.
I got too excited while passively noodling about desserts and decorations and how I wanted to arrange the cheeseboard and whether blackberries would be good in sangria.
And have been unable to keep food down since.
I hope I'm miraculously cured by the party itself because I'm going to have a hard time convincing anyone to eat my food (I'm definitely not contagious anymore! I cleared the actual infection in January!) if I'm this noticeably sick during it.
Also I was looking forward to it a lot and a good dozen of my friends are gonna be there and :(
Apparently, I can't look forward to things anymore! I should just sit in a quiet room and contemplate the grass as it grows, careful to maintain complete emotional neutrality.
#screaming at the sky#I really hoped after the worst of the summer flare-up subsided#that it would be fully in the annoying-but-largely-ignorable territory#apparently twas not to be#my best friend/cohost and I have been planning this party for months#also I'm going to be introducing my newish boyfriend to a bunch of my friends who haven't met him yet#which is always a little nerve-wracking though I think they'll all like each other#man#I really miss having fun#I miss BEING fun#one of the hardest parts about being sick is how it messes with your perception of yourself#especially with so many tests turning up blindingly normal#I feel like such a fainting Victorian lady who can't get my shit together#like#who knows#maybe I'm just being dramatic#and it's all in my head!#(weird blood test results and weight loss and other externally-observable symptoms suggest otherwise)#(and my doctor is condescending AF and can only see me every four months but is at least taking me seriously)#(thank god I have good health insurance and a sympathetic advisor and stable housing and good friends)
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Girl (Tyler Robert Joseph) if I don't get this job this week AND the Paladin MV still isn't out, I'm gonna **** **** * ******* ****** *** * **** ***** ****** ****
#i need one. job is the vastly preferred option but the paladin mv will console me if i dont get it#i barely slept im so stressed about this 🥲 there's a couple co workers im really convinced will get it over me#and if they do ill be happy for them but like. i need. a job that pays enough that i can pay for health insurance.#or a job that comes with health insurance benefits already but that's less feasible rn for a lot of reasons#i have a bit more time before im kicked off my parents and it becomes actually urgent but augh#isnt it so cool that the us healthcare system wholly depends on your income / job to even access services you#require in order to Not Die or at the very least to maintain the aforementioned job you need to afford access. ha ha.#i know there's medicaid and stuff but im pretty sure that would not cover enough of the medication and blood panels i need#like i need private health insurance. unfortunately#this is too real for the silly ohio band blog sorry but im uhhhh a mess ive been anticipating this position for months#and i want it very very very badly :').
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woke up at 4am feeling the weight of my life crushing me, so I’ve been sitting out in my car for the last couple of hours because I just need. to. be. somewhere else.
#tumblr ate something like this but I think I deserve to shout uselessly into the void#shits rough dawg#I know it’s rough for everyone. I feel shitty even talking about myself. still… compelled to vent… big butts#haven’t really been on here much since it hasn’t really scratched that itch lately & just makes me feel lonelier#it’s cold#saw the Jazzercise studio open across the street. 5am for Jazzercise? wow. early.#and then everyone left an hour and a half later. lights out. everybody gone. weird schedule. I am perplexed.#went down the road and got a soda and I’ve been sitting in my driveway contemplating for the last 2.5 hours#guy at the gas station tried to talk to me but I just half assed a smile and nod and left#even though I know I’d love to just… talk to someone. I suppose it has to be ‘on my terms’ whatever those are#I miss having a therapist. or even just when my little brothers would talk to me. when anyone would. blegh#my insurance is still a mess and I’m about to run out of one of my blood pressure meds this week#maybe I’ll have a stroke. scary to think about. I think about dying a lot but that potential feels too real. just… pop! and I’m done.#I’ll try today to finally push to straighten it out but everything feels daunting#woke up with so much anxiety. about my health. my hearing. no money. my life. had to get out of the house even if it’s just right outside#hate to say it but I need(want) thc. haven’t wanted to spend money on it but I could have really used it this morning#can’t be sad if you can’t feel anything (jokingly but also not. whichever is less sad sounding)#actually treated myself to Dune 2 last week and it was so so good. wish I could go again. but it’s drugs food or movie right now. so…#I know. dumb priority but BIG SCREEN. maybe it’ll hit theaters again for the next awards season hopefully. just a real nice loud experience#anyway… I should go inside. almost 7am. need to take my brothers to school then drive my mom to her daily appointments#I’ve felt so hollow and angry and sad for so long it feels like. I feels so weak and sad and I’m tired of it. I’m so tired.#I’ve been eating about 1 meal a day and sleeping a lot. this is the worst my body has ever been. I feel like I’m just waiting to die.#is this relatable?#just have to look past it. it is nothing. this body is nothing. just enjoy your soda.#gonna look at pictures of butts now#ok gotta go I love you goodbye forever#you can ignore this#text
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they should make it so my brain does not function how it does
#txt#Current brain pathing: I have to clean my room so I can move in my desk so I can set up my laptop so I can mess around with unity so I can#<- etc etc#And all of that is drowned by oh god I don't have enough money for rent and auto insurance and groceries. So erm#vent
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i picked up too many local spoofed spam calls due to fear of missing a callback or a call from someone's personal, now i'm dealing with 15 calls at the least per day, and i'm going fucking insane. while i'm looking into setting up a filter, if i'm pissed off enough i've started picking up the phone and just lying. if it's not a robot i tell them i'm NOT who they're calling after, i'm tired of getting phone calls and want off their list, my mother just died, and i need to plan her funeral, all in a pathetic ass tearful voice. i then hang up while they're awkwardly apologizing. it's not nice but it is satisfying
#i have no desire to scam scammers but i CANNOT deal with 20 daily calls about health insurance rn!!!!#people just do not know how to handle the overwhelming grief of strangers so it's a good example of a social faux pas that makes the other#party feel like the one who's messing up#len speaks#got another fucking call just before i hit post i'm gonna fucking SNAP dude
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help someone please make me be an adult cus i really just don't want to.
#hghhhhhhhhhh i really need to actually go get a fucking car. but. im scarsd <3#i want to call my dad and see if he'd be willing to talk to me about it cus im. a mess.#and 1. my mom is currently dealing with shit of her own and i dont wanna bother her and#2. she would be hard to talk to about this anyway bc shes still against me doing financing. though at least she explained her reasoning.#but i want to talk to my dad cus hes done shit like this before ;;; at least on SOME level ;;;;;#i don't actually know how many cars he's bought from like. a dealership. but still.#he HAS bought cars before#and he understands jargon and shit better than me and im anxious#and i just want to get this one thing done so i can stop worrying about my car giving up the ghost on me at any point in time#ough#i meant to call my insurance company earlier to see if i could get a ballpark number for full coverage but didnt#bc the Anxiety. you understand. s#shh ac
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