#i miss riding my bike
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Some chronic condition grumbles for the day
Goddamn. Today was just all about my body taking a highlighter and underlining pen to my medical shit and reaffirming that yes, I do have ME/CFS and Post-Exertional Malaise shit.
I had too many days of "activity" lately. At least, of the mental stimulation variety. Physical? pfft. No, not really. But all the effort I was able to put into my most recent art piece, plus the fitful, broken sleep I've had two of the past three nights, meant that today has been mostly me teetering on the edge of a fatigue crash. It's felt like after 9pm or even midnight for me since 2pm. I crashed out for a few hours after 3ish? I don't know. My best friend (whom I picked up at the airport earlier) woke me for dinner a little before 6 maybe? The brain fog takes away my ability to process time when it's bad enough. So I'm not entirely sure how things went down after we got home.
I still feel like I've been through the wringer. But at least I'm not getting the orthostatic intolerance shit? (yet). I don't have too bad of fatigue nausea either. And my skin is only a little achy today. So. There are some small victories even if I feel like trash in every other way.
God, I hate having this condition. It's a grief-inducing, life-shrinking existence.
I can only hope that I don't wake up feeling worse tomorrow. Better isn't a guarantee; it hasn't been in years. But not worse is what I hope for.
It's something.
#and maybe one day#we'll have actual therapies that help with this shit#maybe one day i'll be able to do any of the things i used to do without thinking about it#i miss going on long walks#i miss riding my bike#i miss not having to use mental energy to do calculations on if i can both cook dinner and shower in the same day#>:C#me/cfs#chronic fatigue syndrome#post-exertional malaise#they're both bitch conditions to have#haedia does life#sort of#haedia just wants to have restful sleep again#haedia just wants to have energy at all again
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DID SOMEONE SAY FILIPINO TWST (no one did it's just me 😔)
below the cut is stock photos of what is a trike/tricycle in the philippines (what they’re riding on) if you're unfamiliar!! and also some rambling about my heartshackle trio ;;;
i referenced the one on the left, there's usually supposed to be a screen where ace is popping out (and also i think deuce would prefer riding the one on the right where it's an actual motorcycle and not just a bike)
i like to think that the trio found this tricycle trashed and broken somewhere and they tried to fixed it up so they could all take a ride on it
ace and deuce kinda fought who��ll be the first to ride it and deuce only won because they all agreed deuce was the one who actually knew (for the most part) how to fix the thing
++++ some more concepts/hcs between them in this au(???) 😳
all three of them are childhood friends who grew up in the same neighborhood and went to the same elementary school. unfortunately in high school they ended up in different schools, but they all still remained close friends 🥹
grim exists but as a regular cat who “belongs” to yuuna (yuuna was just grim’s favorite out of the three). technically he’s just a neighborhood stray, yuuna can’t really keep him as a pet at home (and neither can ace/deuce) but somehow grim keeps finding the heartshackle trio whenever they’re all together. and so grim just became part of the group.
yuuna has a physical album of photos dedicated to all the times they go to jollibee. they take a photo with the jollibee statue every single time they all go there.
#ayo actual yuuna art???#anyways this is hella messy and disproportionate but i needed to get it out of my system 😭#i've just been thinking about this for months bc of those filipino ace headcanons#and tbh the culture miku trend inspired me#this was not part of the poll btw this was comepletely random 😭#[—✦-#-✧ my art#twst art#twst#twisted wonderland#ace trappola#deuce spade#twst yuu#twst yuusona#(💝) yuuna#(💝) heartshackle pie#filipinotwst🇵🇭#-✦—]#i miss riding one of these so much#the thing is either a bike or a motorcycle it's really cool#this was how i got to and from school when i was a kid#i never got to be the one riding the bike though because i was “too young/small” 😭
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a friend bought me y8 so i sped through gaiden really fast beforehand and it was....... PREDDY GOOD........!
#chipchopdraws#yakuza gaiden#yakuza like a dragon#ryu ga gotoku#kosei shishido#kihei hanawa#kazama kiryu#yakuza gaiden spoilers#blood#you never truly forget how to draw kiryu its like riding a bike i remembered all my training#i cannot believe this game made me care about him again actually shocked....#[holds head laying on the ground] hello rgg hole i missed you <3#now i gotta go play y8 for 2 weeks straight if you dont see me thats where ill be
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kinda missing the "warning!!! lemon!!! boy x boy kissing, dont like dont read" days lately
#ajo im so nostalgic lately thinking abt all my interests then and how life was#which explains why im currently spiraling back down interests from early days like dmmd n specific music artists sighh sigh#i wanna draw my ocs all day and listen to metalcore and read books within 2 days and kiss guys and eat lemon icecream and ride my bike to#the music store and get new tapes at the video store and all the other stuff i did back then#late teens-early 20s was stupid but i do miss the time around it fr#like nah i dont wanna go back to there but i do wish i could bring these sensations and experiences back so guess ill just do that#ughhhh#babbles#tbd
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yeah, still got it
#kingdom hearts#sea salt family#isa kingdom hearts#axel/lea#lea kingdom hearts#roxas#drawing these guys is like riding a bike.#hard grained into my muscles#i miss them every day <3#simple and clean is the way that ur making me feel tonight and all that#srry danganfollowers except im not#scribbles
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When I was a kid (maybe like 6-12) i was very often """misgendered""" as a girl by doctors, cashiers and general adults. Once we had a picture day at school and had photo of me sent back with girly border cause photographers thought of me as a girl lol
I guess all the signs were there I just didn't know what transgender is cause nobody told me
#my parents let me wear long hair because i just liked it that way#i had short hair for maybe like total of 3-4 years in my life#very unpleasant#always enjoyed hanging out with girls#i had this huge crush on this girl who always hanged out with all the boys#we would ride bikes together and skate#we went on like those little four wheeler bikes together a few times#fhdhd i mean nothing ever came from it we just were friends#i heard from my mytual friends that she's lesbian now#makes so much sense honestly#stories from a little rural town in poland#honestly i miss my childhood friends#some of them know im trans and theyre like wow...#so cool...#also i secretely very enjoyed the girl border on my picture#but my classmates were like looooool look at this loser#so i tried to play it tough#hehe
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my difficult errand today is to go to the local community bike shop and get a new-to-me refurbished bike, because mine has finally kicked the bucket
or so i thought. the things making this challenging are a) change is hard, and a change to a tool i use every day will involve an intimidating adjustment period
and b) i am emotionally attached to this bicycle that has been with me through all the tough times and big changes in my life over the past decade, and the thought of donating it to the shop to be stripped for parts was making me sad
so i've decided to hang onto the old bike, see if the issues with it can be repaired, and if so, do the work of overhauling it over the next few months and eventually leave it at my parents' house so it'll be available when i visit.
#i hate having to drive/get a ride when i'm there#i miss wrenching and would like the practice#and i won't have to worry about compromising my source of transportation#if i have another primary vehicle#win win win#as long as the frame is salvageable 😅#that has been the biggest concern.... since i bought it#out of some guy's garage on craigslist#and i've just been putting up with all the issues since then lmao#time to change#(*a very gentle scream*)#talk tag#bike school blogging#remember when? nostalgia.
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Having to explain to someone that when you use tires repeatedly the treads wear down and that is not always a sign of bad quality but just the reality of tires was not a conversation I imagined having with a grown adult.
#ghost posts#was discussing bicycles and how I need to get the rubber on mine replaced#bc I’ve worn it down to the tube#and I was told oh you should just throw it away then#bc if I have to keep replacing it then it must be broken#like??? what????#anyway I miss riding my bike but can’t until I get the back tire fixed#bc if I have to brake it’s gonna be more like oh we slidin#if I don’t straight up pop the tube first#but also haven’t ridden it since I got hurt so no idea if I can still ride anymore#anyway you’ll pry my 30+ year old hand me down bike from my cold dead hands
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it's been over a whole month since i had a stupid argument with my parents about driving, a skill that i legally possess but hate doing because i have a special brain illness that makes me fear death and injury, but i'm still chewing over an absurd claim that it's "equally dangerous to go on a 14 hour train ride like you just did". literally how is that more dangerous. in what way. in what world. public transport is nice and good and i like it and i don't have to enter my personal torment nexus
#goddddd it was so bad#i was trying to explain that yes i understand the importance of maintaining my skill but also i want to build my life in a way that doesn't#depend on doing a thing that stabs me directly in the mental illness#and i was basically told that im both a whiny coward that doesn't wanna do scary things AND i do scary things all the time?????#pick one!!!!!!!!! either im a stupid sheltered baby or im a brave soldier who understands the danger of being alive!!#ive always been a Good and Agreeable child but ive been grounded One time in my life#and that was when my parents were teaching me to ride a bike without training wheels and it stressed me out and made me cry so much#I WONDER IF MAYHAPS I HAVE ANXIETY#I KNOW I GOTTA DO SCARY THINGS BECAUSE EVERYTHING IS SCARY AND I DO THEM ANYWAY#but like sending an email is not putting my life at risk as like. car traffic#and for all my anxiety the only fear ive ever had about public transport has been like. missing a train or a bus#im not afraid of travelling alone or sharing a space with people???#and p much most public vehicles are safer than personal cars????#drivers of the vehicles receive more rigorous training and stuff??? and also they get a lot of experience bc they do it every day???#how is that less safe than putting a mentally ill nervous wreck in the torment nexus#is this what evangelion was about bc im not sure
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at least if she does go through with it i can just go to seymour and no-one will know. what're they gonna do about it
#xoxo.monty#trying to look on the bright side#mostly failing#i feel. miserable#teenagers famously love it when you cut off their only communication with friends both irl and online for several weeks#and force them to only talk to their family#ik im probably being dramatic and stupid its just that most of my projects etc rely on being able to look things up or use websites#i guess i could go to the library and use their computers actually#so it wouldnt be . too bad. still definitely not GOOD#but i wouldnt be completely cut off#d'accord maybe i would be fine#like its only half an hours bike ride#oh wait the library is closed for a week#okay i changed my mind again definitely would not be fine#also what if its hot#EXCEPTING those two things i could prolly ride to the library every day#which sounds stupid but im worried that if i miss another meetup(????) with my friends theyre gonna think i hate them or that im a bitch#also like. i want to see them? well. mostly#bc the first time i was invited out i had JUST had dental surgery so i. could not go.#nd the second time i was still feeling bad (from the surgery) so i didnt go but that time i lied about why#bc i thought she might not believe me#and im scared that if i dont reply to another invite#they'll just stop inviting me#hell im scared thats already happened and i just dont know#i do have more to say but i have rambled for long enough lmaoo so i'll leave it at that
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comeback!!
hey everyone! <3 i‘m not sure if anyone remembers me but i used to be quite active here a few months ago - then life got in the way (i graduated and subsequently fell into a deep hole of despair and confusion lol) and i couldn’t keep up with this blog and this community. i‘ve really missed it tho and would like to come back to y’all again, and to re-awaken my love for writing that got lost somewhere between stress and heat exhaustion. i‘m really really excited to see what you‘ve all been up to <3
#mina mumbles#ahhh its been so long#i have to get acquainted again with my blogs tagging system lol#also - during my absence i‘ve been tagged in lots of tag games and i do want to check them all out#but its been a while since i wrote anything so im not sure what i can bring to the table right now#but im excited to be back and hope i‘ll get my groove back soon#but u know what they say- tumblr blogs are like riding a bike etc etc#also pls feel very free to give me updates abour your projects !! or just come yell at me about something youre excited about!#i wanna know what i missed <3
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opened blender just to look at them
#proof of life. hello.#i need to work on kelly's birthday edit#i've been. doing a lot of leaving my house for the last two weeks.#started riding my bike more. went to the library.#found the entire box set of freaks & geeks at my local secondhand dvd store which was AWESOME#also found a pair of tripp pants for very cheap & in my size at another thrift store near me#& got a nice new pair of boots as lil bday gift to myself#i was very overdue for a new pair of shoes tbh. mine are worn down at the heel so bad#but n e way. i need to do something creative now or i will explode#so here i am#i miss my boys very much.#no idea what i am going to make but hopefully it's something#rainyrambles#kelly#dhestyn
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Kimmie you are absolutely beautiful! Don't say that! >:3
I'm just literally telling everyone inspiration 😔
Okay, nonie, I need you to know that your ask came at the perfect time because I am actively panicking over my appearance rn.
like, it’s not good
so thank you
#Idk if panic is the right word#But idk#im hoping a bike ride will fix it#I missed my chance to go on a walk with my dad#So I’m a little upset I couldn’t do both-#But I digress- Ty nonie ily <3
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there's something incredibly amusing to me about it taking multiple buses, a ferry, a plane, multiple trains and a car ride for me to get home
#text#the ferry bit will never not be wild to me i love water#i only miss a bike ride but my ass is not biking to the bus station with luggage at 7am nonono!#also it is weird to say home because its my parents house but i feel like i am legally obligated to refer to the netherlands as home#the ferry bit is also not obligatory but i kinda like staring at the water for one and a half hour
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eating peanuts with a spoon currently :) spoons are my best friend as someone who has difficulties with fine motor skills! I recommend them for everyone for everything
popcorn, peanuts, anything else in chunks? better to eat with a spoon . it . saves me spoons you could say
#i love peanuts#peanuts#if you have a nut allergy you are missing out#spoons#i dont really use spoons because its not helpful to me#cant rlly think in numbers when it comes to stuff like that#like i cant wake up and think 'hmm yes i have 10 spoons today' thats just not how it works for me#i cant really tell how many spoons something will take or has taken#i dont know how tired i am until im panting#whether thats from moving around for the day or from a 2 hour continuous bike ride#because oh boy do my energy levels vary#actually disabled#disability#physically disabled#disability pride#disabled#cripplepunk#cripple punk#ummm#spoon users would love this post tho let me tag#spoonie#disability tips#:D#fine motor skills
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#I miss my motorcycle ; A;#ff7 remake#Roche#I miss narrowly avoiding being splattered across a windshield while caramelldansen plays on loop in my helmet#I miss putting my arms out on the ride to work in the morning#when it’s still dark and the morning is a lil chill at the edges#With my retrowave playlist on in my helmet#It feels like flying#and being all alone just above the earth all at once#just me and the streetlights and the wind and the dark#GOD I SHOULD BUY A NEW BIKE#I miss being anonymous in my visored helmet#and dancing along to my music at stoplights#racing classic cars and waving when we split#Sigh
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