#i love being chronically ill
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Pros of being chronically ill: Wisdom tooth removal isn’t as bad as my average pain amount
Cons: WHAT DO YOU MEAN THE AVERAGE AMOUNT OF PAIN IS 0???
#mutt arfs#i love being chronically ill#it’s great!#trans and chronically ill#truly winning the lottery here
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i dont feel good (crazy) so i texted my aunt to come get me from school and now im writing smut in her house. sorry aunt erika i love you but i gotta get this done
#pastrii dont look#raspy rambles#raspberry writes#iflwiwstb#i love being chronically ill#im about to Knock Out i yhinj#nobody look at my docs when i die thx
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Pots is so fun because it’s like I need to shower but I have to plan my hair washing and showering in advance and lay down for 2 hours prior just because showers send me into a flare and I can already tell this is a shower that I’ll only be able to do the basics in before I need to lay down so I don’t pass out 🥰
#I love being chronically ill#like I just wanna take a shower#me and my water and salt shots against the world#me laying down and not moving and my heart rate being 107#Rambling don’t mind me
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we've hit the very fun best part of the year where my legs and hands ache constantly and will continue to do so until may. i love it here
#it's more a weather thing than a temperature thing#there's only so much warmth can do for me#i love being chronically ill
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i’ve been in a game of cat and mouse with my pharmacy, my doctor, and amazon pharmacy desperately trying to just get my fucking meds refilled. i cannot call customer support again. i cannot keep pressing one. this is actually driving me up the literal fucking wall. 😁
#vent#i loooove pcos#i love being chronically ill#i love the medical system#hhfhhhfhfthfhfhhfhfghhh#chronic illness posting#pcos posting
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maturing is realizing you don’t have reverse seasonal depression ur symptoms just get a billion times worse with the heat
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fun fact about me! I have hyperadrenergic Postural Orthostatic Tachycardia Syndrome (hPOTS). this means I am prone to fainting when I change positions or when I feel a strong surge of emotion, positive or negative. for me, laughing is my worst non-postural trigger.
this is a clip from playing lethal company with friends a few months ago. you can hear the eerie silence of presyncope at 0:19, and the sound at 0:23 is my face hitting the keyboard lmao. I played this for my mother and she literally pissed herself laughing and DEMANDED I show every single person I know (including my doctors, who thought it was funny to see and surprisingly helpful, especially for being audio only).
#lethal company#pots#postural orthostatic tachycardia syndrome#hyperadrenergic pots#FOR CONTEXT#we have this silly little goof#where whenever we pick up a flashbang of any kind we ask#hey is this bright to you#it's like playing peekaboo with a baby man it gets em every time#anyways i love being chronically ill#chronicillness#i am sickly and not meant for this earth
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another day another tummy ache
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olive oil + gigantes or butter beans (canned is easiest) + jarred basil and tomato sauce + heat a tablespoon of olive oil in saucepan + pour in tomato sauce and heat until it's simmering + drain beans and add to sauce + cover and simmer until beans are tender (about 15 minutes or so) + drizzle with olive oil and top with cheese (i used sharp cheddar but would also recommend feta) + eat with crusty bread YOU'RE WELCOME
#recipes#it's like a poorest of poor man's gigantes plakti but not baked#you could also totally do this in a dutch oven or slow cooker#anyways i'd been craving something along these lines for a few weeks but i've been so tired (love being chronically ill 🤪) and cooking has#felt daunting; this was extremely low effort and ended up being really good and filling and something i will definitely make again
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not once did younger me think we would be celebrating our 21st birthday at home with a new wheelchair and a gluten free, dairy free, sugar free cake. but here we are.
and you know what, it was pretty awesome.
#sometimes being disabled makes me want to sink into the trenches of despair#but I’m determined to love my life and my body#I loved spending the day doing simple things with the people I love#young and disabled#disability#chronic illness#chronically ill#hypermobile spectrum disorder#pots syndrome#chronic fatigue#disabilities#disabled
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i have a personal hc i never really share where mira is some manner of chronically ill. it fuels how she feels incapable of her task, how she doesnt feel like euphrasie made the right choice by blessing her. shes not strong enough, shes not good enough, how could someone like her save the world?
being chronically ill is being forced to be stagnant. and even if she loves who she is without changing, she still feels unworthy.
#in stars and time#in stars and time spoilers#isat#isat spoilers#mirabelle isat#im not sure if im articulating this well???#its like. obviously a lot of this is internalized stuff. her guilt and fear. but its also like. theres some truth?#like with how she doesnt like romance but still feels pressure to it.#theres not enough craft in the world that could change this fact about her. and it makes her feel useless and broken.#but she also... loves herself? and its been a part of her for so long that she cant imagine it not being there? as weird as that is.#i dunno!!! i just like to make characters i like chronically ill or otherwise disabled!
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born to read, forced to be so fatigued that I can’t keep my eyes open even though I really want to read
#chronically ill#reading things#reading#english major#chronic fatigue#i honestly hate this part of being chronically ill the most#actually disabled#disability shit#disability#disabled#physically disabled#i love reading#audiobooks are my saviors#audiobooks are reading
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DP x DC Prompt where Dani's condition doesn’t stay as stable as she would prefer following her second trip to Amity Park.
She's not destabilizing but she's not quite… the same. It begins with a slight weakness and ache in her legs. Dani doesn't think much of it at first, assuming she's just been pushing herself too hard, but it doesn't go away with rest.
It worsens overtime, until she starts to exhaust much easier in her ghost form. Dani plans a return trip to Amity, worried that something more serious could be going on again.
Dani finds herself making a detour to Gotham on the way, however.
The ambient ectoplasm draws her in and Dani welcomes it with a relieved sigh. She plans to rest up for a couple of days before moving on, but… Dani’s honestly not sure if she’s strong enough to safely leave the city. Her legs are still aching and walking is becoming a chore at times. She can always fly with her ghost form, but without the ectoplasm of Gotham Dani isn’t sure how well she’ll favor traveling.
She stays in an abandoned building and gets by on the streets, starting to learn the ins and outs of the city. Dani can’t help but fall into step with the vigilantes at times, finding it just as fun to annoy Batman and his birds as it is to actually help out.
They try to corner her plenty of times for questions, but there’s nothing they can do when she turns on her invisibility and intangibility to slip away.
As the weather starts to shift and the ache in Dani’s legs worsens with it, she starts to spend a lot of her free time in the library. She’s stumbling a lot more while human now, and she’s even more exhausted from spending extra time as a ghost to avoid tripping over her own two feet. It’s nice to sit in the warm library and read for a bit— sometimes the nice librarian even gives her snacks.
Babs isn’t sure what to make of Dani the first few times she sees her. She can tell that the kid isn’t necessarily well. She’s rail thin and has a strange gait with some apparent muscle weakness. Every time she sees her it seems to get worse.
Babs starts to befriend the girl, offering her snacks when she can and trying to carefully learn more about her. It couldn’t be more obvious that Dani is homeless, though Babs is finding it surprisingly difficult to find any further information on her. Hell, even when she tries to have Tim and Jason keep an eye on her, the kid somehow manages to slip out of their sights.
The way she disappears puts thoughts of the newest meta in mind, and from then on it becomes a subtle game to earn her trust and try to help her before the kid gets hurt.
Things take a turn when Dani collapses at the library one day.
Forced to acknowledge that her legs are getting weaker and she’s not equipped to handle that on her own, Dani accepts more help from Babs. It’s a bit of a mess, navigating losing the mobility in her legs and dealing with the Gotham vigilantes. Fortunately for her, Babs has experience with both.
#dpxdc#dpxdc prompts#danny phantom#dc#dani phantom#dogprompts#prompts#this is inspired by the many lovely disabled Danny aus#with Dani's condition already being relatively unstable I'm surprised I don't see more disabled or chronically ill takes with her
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I love it when a story externalizes the agony of the flesh actually. I love it when walls are made of meat and disembodied hands and eyes show up out of nowhere. I love it when the commodification of the human body is shown through the lens of butchery. I love the artistic gorey weird shit! I love rot and decay and mistreatment of the human body as a metaphor for the crushing oppressive systems.
#<3#<3 <3 <3#I’m having a normal one over here#I made an eating disorder into a metaphor for punitive justice#and a building made of meat is about capitalism#also rot and decay is about being chronically ill#I hope this post finds the freaks and weirdos. I love yall
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i should not have to learn assorted tips, tricks and helpful hints to make my begging for easier access to accessibility accommodations more effective. accessibility features should be accessible, by design, not an out of reach treat we have to be good for
#prazardous#accessibility#disability#disabled#chronic illness#chronic pain#i live my life pretending not to be furious that i have been made to feel like i am asking for too much my entire fucking life#i love life i love being alive#im totally not angry at all can you tell
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I’ve been seeing this float around on Facebook lately and it’s bugging the crud out of me:
What is with everyone’s obsession with insisting it’s bad to need to be rescued? For as long as the human race has been on the planet, people have had problems that they needed other people’s help to resolve. Needing help is not a failing nor should it be the takeaway from these princesses’ stories as if it’s a bad thing that makes them weak. Yes, they do need help. Your point?
Snow White and Aurora were both under a curse that rendered each of them effectively dead. Were they supposed to magically wake themselves up? I’d want to be rescued if I were them. Plus, breaking it down to “she needed a prince” belittles the efforts of the Seven Dwarfs and the Three Good Fairies, who did most of the legwork in the resolution of their respective movie plots out of deep platonic love for the girls under their care. Then there’s Cinderella, who lived in an abusive household. It’s not a weakness that she wasn’t able to get out of that situation on her own, and once again, giving all the credit to the prince (and credit where credit is due, he did search far and wide for her and was able to take her away from that life in the end) detracts from the aid provided by the Fairy Godmother who enabled her to get out in the first place. All of these ladies had more helpers than just their princes, and it is because of the combined love and efforts of all of these people that our heroines were able to have their happy endings. There are plenty of great stories where the heroine is able to fight for herself, but these particular stories aren’t about that because these ladies are each in terrible circumstances where they simply don’t have the ability to do so. They do what they can, but in the end they can’t save themselves alone and there’s nothing wrong with that. These are beautiful stories about having people in your life that value you enough to fight for you when you can’t fight for yourself. Wouldn’t we all want someone to come to our rescue when there’s nothing we can do about our situation? Is it not a good and comforting moral to show that there are people in your corner who will show up for you no matter what the circumstances?
The other thing that’s bugging me about this:
Leia has to be rescued. By a man, and at that, one who could technically be seen as a prince. No one bats an eye at this, because it’s understood that she’s being held prisoner on the Death Star and couldn’t possibly be expected to get out of that on her own. It’s not seen as a weakness that someone had to come for her and take her away from there. Leia is awesome and is rightfully acknowledged as a great heroine, but she also needs help sometimes, because everybody does.
So WHY do people get so hung up on these princesses who also shouldn’t be expected to get out of their own prison cells of eternal sleep or abusive family by themselves? Why the strong negative reaction to girls needing outside help in such serious scenarios? For all that people say these stories teach girls to sit and wait for a man to save them, the stories themselves absolutely never try to say that, and frankly, with the opposite trend in recent years of fictional women who have to do everything on their own and can’t be shown to need help because they have to be the Strong Female Character, I’d be far more concerned about the impact that would have on girls. Far better to say you might need help at some point in your life than to instill the idea that you’re not a strong girl or not good enough if you can’t do everything by yourself.
Anyway. Justice for the classic Disney princesses.
#this is a disney princesses defense blog#disney#snow white#cinderella#sleeping beauty#star wars#sw: originals#leia skywalker#rant#and on a personal level? i’ve been in the position of feeling like an idiot or failure if i couldn’t do everything by myself#i was terrified for a long time to ask people for help because it felt like admitting that i was what i felt i was#if the modern stories where women being strong means they don’t need help had been a thing yet when i was at that age#it would have made me feel even worse#and as someone who has since that time also had to learn to live with chronic illness#and the reality that there’s not a ton i can do for myself#the stories of women who need help and are never looked down on for it but are seen as worthy of that help because they are loved#those are the kind of stories you end up starting to need at some point#give me more maidens in towers. i don’t care.#the idea that people love you enough to find you well worth their effort is what some of us need
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