#ehlers danlos things

[apocalypsesplease]

No one:

My right eye:

[icy-hot-slut]

The 4 seasons (according to EDS)

Summer - System Failure

Winter - Skin Crust

Fall - True Neutral

Spring - roulette; good luck!

[sativaasiren]

Body: what if you were allergic to stress, does that help?

Me:

[spookietrex]

[800-dick-pics]

Help Me Get New Mobility Aids!!!

Happy Disability Pride Month! I initially wasnt going to make a post to try to get new mobility aids/tools, but I really need them, so what the hell.

I am a multiply disabled Black lesbian and I have been without proper supportive mobility since the start of the pandemic. I had many of my things broken or thrown away during this time period, and I thought I could go without but its been so long and I really cant anymore.

I need smart/ergonomic forearm crutches because regular forearm crutches wreck my fragile hypermobile wrists, I need braces for both legs and ankles, a shower bench and detachable showerhead. All of this combined is a bit over $550.

I REALLY need this, esp the crutches! My mobility and bodily autonomy would be GREATLY increased If I was able to get these items. I

CA: $sleepyhen

VN: wildwotko

Dm for P@ypal

TLDR?: Disabled Black Lesbian needs new mobility aids for increased mobility and autonomy.

[extreme-dyke-syndrome]

Tumblr: "congratulations for 5 notes!"

The post: "my body hurts and i am suffering"

[stellaltumi]

shoutout to all the fellow disabled people who spread awareness and advocacy even when they have no energy to do so, I see you, I love you, and you are so deeply appreciated. your story has the potential to be someone else's survival guide.

[weaponizedhorse]

If you have autism, ADHD AuDHD, depression, anxiety, OCD anything that causes you executive dysfunction where you feel overwhelmed by tasks and don't know where to start I need you to stop and read this because this website is about to change your life.

It is called goblin.tools and it is completely free and I believe it is life changing.

So this magic todo taskmaker is amazing. You can give it any kind of task you need to do and it will break it up into easy to understand, manageable, and accomplishable steps, (that you can then check off the list which probably my favorite part) like cleaning your room, making coffee, etc

In this example below I put the Magic ToDo Task as "take a shower" (but it can be any task)

Here is the lowest spicy take (aka not broken down into many steps)

And here is the highest spicy level (where the tasks are broken into many easily managable step that will tell you exactly what to do)

Any parts of this you feel like didn't give you enough steps? Need more clarity? No problem! Any step you can edit or break it into even smaller steps!

Let's say you are have a foggy brain day and need more instructions for washing your hair, here you go!

Legitimately it can break down any task, making them so much more approachable and manageable.

And if this incredibly cool task helper thing wasn't enough for you, the website has five other functions

A feature that adjusts the tone of your text, allowing for a more professional or sarcastic expression, ideal for business emails.

An emotion detection tool, which helps interpret the emotional content of a text, identifying anger, frustration, or other sentiments to clarify communication misunderstandings. (I think this feature could help a lot of autistic people SO much)

A function that estimates the time required for various activities, such as making the bed, providing practical scheduling help

There is an entire *insanely* cool cooking function (I am gonna have to make a post about that)

Something called the "Compiler"? I honestly don't get it. It says "Compile my braindump into a list of tasks" (so if someone figures that out please let me know)

And since it is tax season under the cut are the steps it gives you for filing your taxes on the lowest and highest task breakdown levels! :)

[alittletouchofthetism]

having a doctor say “nuh uh” is a disabled rite of passage tbh.

[thebibliosphere]

We're two days into the new year, and I need expensive dental work done.

wELP.

[ashwolfe3450]

[angels-of-horror]

Please don’t ever feel guilty for allowing yourself rest on low energy days—especially if you’re chronic ill and/or disabled! I know that’s so much easier said than done, but you deserve rest days. If your body doesn’t have the energy to do much at all, it’s okay if you spend your whole day in bed.

You deserve to have rest days and you deserve to enjoy them (without feeling guilty for allowing yourself them in the first place).

Be kind to yourselves xx

[icy-hot-slut]

I fucked up the tendons in one of my wrists playing Pokémon Go

What the fuck

[that-disabled-princess]

I think I just tasted what it feels like to be a straight white man.

My younger sibling forgot her lunch this morning, so I went to her school to drop it off. I was using my cane. When I got to the person behind the desk, she said, "It's nice of you to drop that off, despite slowing down a little."

And, okay. I've gotten this kind of thing enough times, and it gets both old and uncomfortable real fast. But instead of wallowing in the discomfort, I spit out the line I've practiced in the mirror a hundred times, the line I delivered in a light, conversational tone:

"That's not a very appropriate thing to comment on, now is it?"

And y'all would not believe how quickly her smile dropped. She was apologizing profusely, and I didn't say a word--just held my smile.

But. All the cards were in my hand now. It was her turn to feel uncomfortable. And oh, what a heady rush of power it was. I walked out of that school grinning like a maniac.

[chronicsymptomsyndrome]

As a kid my family used to make fun of me for stuff that is apparently exclusively reserved for “old people” like rolling across the room in a rolly chair to grab something (instead of getting up and taking three steps) or sitting down at a table to do quick food prep like cut fruit or scramble an egg (instead of just standing at the counter for 90 seconds) TURNS OUT what they called laziness was just disability all along haha TURNS OUT I just needed a mobility aid yet here I am today still without one because they gaslit me into believing I was “just lazy” and it took me decades to finally understand that’s not true. haha who knew

[spookietrex]

I got new compression gloves and ankle sleeves and I actually slept through the night for the first time in months.

My mobility aids now include:

- a purple foldable cane

-a blue walker with a glow in the dark dinosaur basket I made (2 wheels in front)

- a blue rollator (4 wheels)

- a blue wheelchair

Hell yeah! I can leave my house. I got a disability lawyer. My PCP confirmed she understands I can't work and is willing to help me get disability.