#ehlers danlos things

[skull-soda]

Apparently you’re not supposed to chug Keterolac like it’s candy. I thought it was a light pain killer, oops

[sativaasiren]

Body: what if you were allergic to stress, does that help?

Me:

[spookietrex]

[strongintherealgay]

As some of y'all might remember, I broke my leg in two spots in November. My post for my GoFundMe somehow got deleted and I was too depressed to create a new one. Well, after medication and just the realities of my financials, I have finally posted an update on the GFM and am now making a new post.

I've been staying in what's essentially a nursing home for three months as I've been unable to physically get to my apartment (and live with my cat, Martin, pictured below). I've also been unable to work during this time and am finally being let go from my job. It is amicable and mostly so I can hopefully be eligible for unemployment. However, that's not a guarantee and I'm broke due to having no income for months.

At this time I'm also on my own for relearning how to walk, which is especially difficult because I have hypermobile ehlers-danlos syndrome. Basically my joints don't work because they're connective tissue, meaning my muscles do a lot of compensating for them. The breaks just so happened to be in my knee and my ankle, and I then lost a lot of muscle. So, yeah, healing is much harder for me than it should be.

If you are able to donate anything at all I'd really appreciate it. Even if you can only spare $5, it would still add up. If you are unable to donate, I ask that you still reblog this and even share the link elsewhere if you feel inclined. Any form of support would mean a lot.

If GoFundMe isn't your thing you can send me any amount via Venmo or PayPal (please ignore the deadname in the latter <3)

Thank you! 🧡🧡🧡

$2,350/$7,500

[chronicsymptomsyndrome]

sometimes when chronically ill/disabled/neurodivergent people say “I can’t do this thing” they really mean “I can technically do this thing I guess, but not without pretty significant repercussions” and I really need more fully-abled people to understand the validity of that

[stellaltumi]

shoutout to all the fellow disabled people who spread awareness and advocacy even when they have no energy to do so, I see you, I love you, and you are so deeply appreciated. your story has the potential to be someone else's survival guide.

[kitshomeforwaywardsouls]

AUTISTIC JOY!!!

A lot of the disability stuff on here can be kinda bleak so I wanted to share the pure JOY I am experiencing today. I got my first pair of noise canceling over the ear headphones in years and they’re not only comfortable but work phenomenally!!!

Anyone with their own instances of disabled joy autistic or otherwise they’d like to share please feel free to flood me with them!

[800-dick-pics]

Help Me Get New Mobility Aids!!!

Happy Disability Pride Month! I initially wasnt going to make a post to try to get new mobility aids/tools, but I really need them, so what the hell.

I am a multiply disabled Black lesbian and I have been without proper supportive mobility since the start of the pandemic. I had many of my things broken or thrown away during this time period, and I thought I could go without but its been so long and I really cant anymore.

I need smart/ergonomic forearm crutches because regular forearm crutches wreck my fragile hypermobile wrists, I need braces for both legs and ankles, a shower bench and detachable showerhead. All of this combined is a bit over $550.

I REALLY need this, esp the crutches! My mobility and bodily autonomy would be GREATLY increased If I was able to get these items. I

CA: $sleepyhen

VN: wildwotko

Dm for P@ypal

TLDR?: Disabled Black Lesbian needs new mobility aids for increased mobility and autonomy.

[extreme-dyke-syndrome]

Tumblr: "congratulations for 5 notes!"

The post: "my body hurts and i am suffering"

[alittletouchofthetism]

having a doctor say “nuh uh” is a disabled rite of passage tbh.

[crescenthistory]

hi my darlings 🤍 sorry for disappearing on you — a lot happened at once. often i turn to writing when life gets tough, but now i’ve just needed a breather.

i’ve just been hospitalised for a while because of my chronic illness and disability, which was hard, but at least i’m getting the help i need. i’m officially back on the streets! the downside is i’m now too ill to work and am scrambling to get some sort of financial support to pay my rent lols:,)

my lovely lovely dog and companion also passed away. her name was tinka and she is one of the best things to have happened to me 🫂 look at this cutie!! i will miss her always.

i’m alright and will be back whenever i get my bearings — i just had to get off any and all social media for a while. i’m doing better and have thankfully been able to defer my exams, so i’ve only got to crank out some essays, which i can do from my bed 🙏

genuinely from the bottom of my heart, thank you to all the people who reached out! and to the people who kept interacting as if i was here<3 it truly means the world to be faced with persistent compassion like this, all my love goes out to you<33 take care of yourselves 🫶 big hugs xx

[thebibliosphere]

We're two days into the new year, and I need expensive dental work done.

wELP.

[dreamers-collective]

Please don’t ever feel guilty for allowing yourself rest on low energy days—especially if you’re chronic ill and/or disabled! I know that’s so much easier said than done, but you deserve rest days. If your body doesn’t have the energy to do much at all, it’s okay if you spend your whole day in bed.

You deserve to have rest days and you deserve to enjoy them (without feeling guilty for allowing yourself them in the first place).

Be kind to yourselves xx

[chronicsymptomsyndrome]

Sometimes invisible disability has me wanting a big tattoo across my forehead that says FUCKING DISABLED ACTUALLY or MY BODY/BRAIN DOES NOT WORK THE WAY YOURS DOES or JUST BECAUSE YOU CAN DOESN’T MEAN I CAN TOO or fucking something god I’m so tired of people assuming everyone can do everything! fuck!!!

[salt-baby]

at some point in disability you stop wanting to "get better" and this is just really hard for able bodied people to understand for some reason

[aestheticofalifetime]

my soul is tired

how am I supposed to fix that?