#ehlers danlos things

[skull-soda]

No one:

My right eye:

[sativaasiren]

Body: what if you were allergic to stress, does that help?

Me:

[spookietrex]

[800-dick-pics]

Help Me Get New Mobility Aids!!!

Happy Disability Pride Month! I initially wasnt going to make a post to try to get new mobility aids/tools, but I really need them, so what the hell.

I am a multiply disabled Black lesbian and I have been without proper supportive mobility since the start of the pandemic. I had many of my things broken or thrown away during this time period, and I thought I could go without but its been so long and I really cant anymore.

I need smart/ergonomic forearm crutches because regular forearm crutches wreck my fragile hypermobile wrists, I need braces for both legs and ankles, a shower bench and detachable showerhead. All of this combined is a bit over $550.

I REALLY need this, esp the crutches! My mobility and bodily autonomy would be GREATLY increased If I was able to get these items. I

CA: $sleepyhen

VN: wildwotko

Dm for P@ypal

TLDR?: Disabled Black Lesbian needs new mobility aids for increased mobility and autonomy.

[extreme-dyke-syndrome]

Tumblr: "congratulations for 5 notes!"

The post: "my body hurts and i am suffering"

[stellaltumi]

shoutout to all the fellow disabled people who spread awareness and advocacy even when they have no energy to do so, I see you, I love you, and you are so deeply appreciated. your story has the potential to be someone else's survival guide.

[kitshomeforwaywardsouls]

AUTISTIC JOY!!!

A lot of the disability stuff on here can be kinda bleak so I wanted to share the pure JOY I am experiencing today. I got my first pair of noise canceling over the ear headphones in years and they’re not only comfortable but work phenomenally!!!

Anyone with their own instances of disabled joy autistic or otherwise they’d like to share please feel free to flood me with them!

[weaponizedhorse]

If you have autism, ADHD AuDHD, depression, anxiety, OCD anything that causes you executive dysfunction where you feel overwhelmed by tasks and don't know where to start I need you to stop and read this because this website is about to change your life.

It is called goblin.tools and it is completely free and I believe it is life changing.

So this magic todo taskmaker is amazing. You can give it any kind of task you need to do and it will break it up into easy to understand, manageable, and accomplishable steps, (that you can then check off the list which probably my favorite part) like cleaning your room, making coffee, etc

In this example below I put the Magic ToDo Task as "take a shower" (but it can be any task)

Here is the lowest spicy take (aka not broken down into many steps)

And here is the highest spicy level (where the tasks are broken into many easily managable step that will tell you exactly what to do)

Any parts of this you feel like didn't give you enough steps? Need more clarity? No problem! Any step you can edit or break it into even smaller steps!

Let's say you are have a foggy brain day and need more instructions for washing your hair, here you go!

Legitimately it can break down any task, making them so much more approachable and manageable.

And if this incredibly cool task helper thing wasn't enough for you, the website has five other functions

A feature that adjusts the tone of your text, allowing for a more professional or sarcastic expression, ideal for business emails.

An emotion detection tool, which helps interpret the emotional content of a text, identifying anger, frustration, or other sentiments to clarify communication misunderstandings. (I think this feature could help a lot of autistic people SO much)

A function that estimates the time required for various activities, such as making the bed, providing practical scheduling help

There is an entire *insanely* cool cooking function (I am gonna have to make a post about that)

Something called the "Compiler"? I honestly don't get it. It says "Compile my braindump into a list of tasks" (so if someone figures that out please let me know)

And since it is tax season under the cut are the steps it gives you for filing your taxes on the lowest and highest task breakdown levels! :)

[alittletouchofthetism]

having a doctor say “nuh uh” is a disabled rite of passage tbh.

[thebibliosphere]

We're two days into the new year, and I need expensive dental work done.

wELP.

[ashwolfe3450]

[dreamers-collective]

Please don’t ever feel guilty for allowing yourself rest on low energy days—especially if you’re chronic ill and/or disabled! I know that’s so much easier said than done, but you deserve rest days. If your body doesn’t have the energy to do much at all, it’s okay if you spend your whole day in bed.

You deserve to have rest days and you deserve to enjoy them (without feeling guilty for allowing yourself them in the first place).

Be kind to yourselves xx

[salt-baby]

at some point in disability you stop wanting to "get better" and this is just really hard for able bodied people to understand for some reason

[chronicsymptomsyndrome]

As a kid my family used to make fun of me for stuff that is apparently exclusively reserved for “old people” like rolling across the room in a rolly chair to grab something (instead of getting up and taking three steps) or sitting down at a table to do quick food prep like cut fruit or scramble an egg (instead of just standing at the counter for 90 seconds) TURNS OUT what they called laziness was just disability all along haha TURNS OUT I just needed a mobility aid yet here I am today still without one because they gaslit me into believing I was “just lazy” and it took me decades to finally understand that’s not true. haha who knew

[spookietrex]

I got new compression gloves and ankle sleeves and I actually slept through the night for the first time in months.

My mobility aids now include:

- a purple foldable cane

-a blue walker with a glow in the dark dinosaur basket I made (2 wheels in front)

- a blue rollator (4 wheels)

- a blue wheelchair

Hell yeah! I can leave my house. I got a disability lawyer. My PCP confirmed she understands I can't work and is willing to help me get disability.

[extreme-dyke-syndrome]

Nosy Person: "You know, doing that will make your disability worse in the long run."

What I have is degenerative!!! It is going to get worse in the long run no matter what!!! That is what degenerative means!!! Leave me alone!!!!

If you have never had to confront that you did nothing to make your body fall apart but it fell apart anyway, and that it will continue to fall apart even if you just lay in bed for the rest of your life, you need to lower your voice when you speak to me and go Google what "degenerative" means. I'd rather have my body fall apart on my terms than for no reason at all.