#chronic fatigue syndrome triggers
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Chronic fatigue syndrome (CFS): Causes, Symptoms and Treatment
Chronic fatigue syndrome (CFS) Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is a complex and debilitating condition characterized by extreme fatigue that does not improve with rest and is not caused by any underlying medical condition. The exact cause of CFS/ME is still not fully understood, and there is no specific diagnostic test for the condition. Symptoms of…
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#chronic fatigue#chronic fatigue disease#chronic fatigue syndrome#chronic fatigue syndrome accidents#chronic fatigue syndrome causes#chronic fatigue syndrome diagnosis#chronic fatigue syndrome fibromyalgia#chronic fatigue syndrome infection#chronic fatigue syndrome lesson#chronic fatigue syndrome surgeries#chronic fatigue syndrome symptoms#chronic fatigue syndrome treatment#chronic fatigue syndrome triggers#chronic fatigue syndrome viruses#metro detroit
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I need people trying to convey the seriousness of COVID to stop dismissing the flu because the flu absolutely kills people, triggers chronic illnesses, and causes brain damage.
#A family friend cannot speak because of a high fever he had as a child.#The only people who get my narcolepsy medicine in Britain are people who got a specific flu shot during the 2009 pandemic.#Vaccines are good but they do trigger your immune response and sometimes that response is a life-long chronic illness.#Research on Post-Viral Syndrome/Post-Infectious Fatigue Syndrome predate COVID.#personal
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I am 28 years old and I am 5 foot 10 and wear a size 20. I work with a personal trainer, I don't eat a lot, and I do my best to eat mindfully. I also have several recently diagnosed chronic conditions, Autoimmune, Dysautonomia, and endocrine, though the symptoms have been around most of my life. These are genetic conditions and they are not caused by my weight.
They believe if I lose weight they will go away.
Growing up my family always made comments about my weight as well as others. Most everyone in my family is over weight. I would run miles every day in high school and skip meals and still hear how i needed to lose more. I became the DSM5 definition of bulimic, made easier by other abuse going on in my life.
Now, I am a happy person and happy with myself. I'm not at the weight I want to be, but I don't discuss my weight with anyone outside of my doctor. If my family asks I tell them I am doing my best and discuss my medical condition challenges. They have offered gastric bypass and lap band surgery unsolicited. At a party someone brought up my weight to try and help me and in that I found out people have been discussing it behind my back out of concern. So I sent this text:
Hey family,
I have heard for quite some time that there have been conversations about my weight with others in the family, though not to me. Recently, this has come to my attention, again.
My doctor and I are both aware and in agreement that my weight is not our primary concern. This is due to my other medical conditions taking priority, especially as my weight did not cause these genetic conditions.
Despite this, I still consider it a priority and I've seen progress: weight loss, more muscle, less body fat, smaller measurements. This is because:
• I have met with professionals (nutritionists, doctors, therapist) to review my eating habits, avoid disordered eating, and how we can manage my conditions and side effects impact on my progress.
• I work with my personal trainer and we track my progress. Also, I'm adding more physical activity as I can.
While appreciate the love and concern from everyone, I do not want my weight to be a topic of conversation when I am not in the room. I hope you will all respect that. There is no need to respond to this message as I trust that any of my family, whom I truly love and who I know love me, will not be discussing my weight amongst each other ever again.
Thank you
In response I had two people get very upset. Saying that I should have just let it go. That people talk because they care. That's what a family is. That they are worried they will need to bury me. That my text was dismissive and uncaring. That it's not about my looks (for some) I told them these conversations are hurtful and as they don't know my weight it must be based of my looks. I was told when I really want a husband and kids I will lose weight, I won't be truly happy till l do lose weight. I told them, aside from this I am happy, I my weight isn't a requirement to happiness or marriage, and that their conversations make me feel ugly and want to go back to disordered eating. That it's hurtful when I am doing everything I can, they know I didn't eat a lot, and I'm fighting my body in other ways. It makes me feel like l'm failing. That at the very least I didn't need to hear about these conversations and I didn't need it discussed at family events.
Was my message so wrong? Does anyone else struggle with this? I love my family so much. I'm doing everything i can to keep loosing weight and it never seems enough, not just for my family but for my body. It just won't go down more.
#pots syndrome#postural orthostatic tachycardia syndrome#psoriatic arthritis#ankylosing spondylitis#autoimmune#childhood truama#truama#autoimmine disease#disability#chronic illness#chronic pain#chronic fatigue#chronically ill#migranes#pcos#insulin resistance#anxiety#depression#complex ptsd#ptsd#trigger warning weight#trigger warning eating disorder#tw food#trigger warning food#tw weight#tw eating disorder#endocrine system#autonomic nervous system#immune system#adhd
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That's my cat. He sleeps on my right side 90% of the time I'm in bed.
Caution trigger warning: needles injections shot needle bad poops
Hi
I went for my lidocaine injection, had instant relief for 2 hours of almost all my pain. But then it wears off. It is meant to focus on my trapped nerve pain and my goal was to calm that the hell down so my body could then calm the hell down.
My existence is uncomfortable. I am not in screaming pain anymore. I did have a bad poop though (loltmidontcare) but I think this is all related to swelling from the injection sites and stuff. This happened historically where I also could not feel my need to pee until I had like 30 seconds to hobble to the bathroom.
Anyways this is finally exhausting me so I'm cutting this off now and gonna try to sleep.
#finnsblog#mecfs#chronic fatigue syndrome#myalgic encephalomyelitis#cfs#chronic illness#trigger point injections#injections#pcos#endometriosis#pain management
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after five years you probs won’t see this OP but if you do please thank your husband for me
this is brilliant, and it also works with the blubber/wetsuit theory that my psych at the pain clinic uses to describe [what your husband has now irrevocably labelled in my mind as] forks. The more emotional blubber we have, the easier we’re going to cope with shit, through the sake of insulation, and the less we have, the more hostile our environment will be and the less we’ll be able to deal with both our interior and exterior struggles
I don’t know if I’m explaining this right because it’s been a very long 48 hours but…so the blubber itself or your emotional wetsuit are things that gird us emotionally and they can be really simple and transient (but still significant in a world of forks) like successfully doing a task, getting positive feed back on a task, and hugs…or a lot more complex and permanent stuff like guarenteed shelter, regular food, healthy and supportive relationships, they all help us weather out life and help us as humans be more well balanced as individual and basically more able to deal with life…and forks
so that fits Really Fucking Well with the fork theory because the thicker your wetsuit or blubber or whatever you want to call it, the less damage a fork is going to be able to do to you, unless it’s a really big or particularly pointy one
hope this makes sense!
Have I told y’all about my husband’s Fork Theory? If I did already, pretend I didn’t, I’m an old.
So the Spoon Theory is a fundamental metaphor used often in the chronic pain/chronic illness communities to explain to non-spoonies why life is harder for them. It’s super useful and we use that all the time. But it has a corollary. You know the phrase, “Stick a fork in me, I’m done,” right? Well, Fork Theory is that one has a Fork Limit, that is, you can probably cope okay with one fork stuck in you, maybe two or three, but at some point you will lose your shit if one more fork happens. A fork could range from being hungry or having to pee to getting a new bill or a new diagnosis of illness. There are lots of different sizes of forks, and volume vs. quantity means that the fork limit is not absolute. I might be able to deal with 20 tiny little escargot fork annoyances, such as a hangnail or slightly suboptimal pants, but not even one “you poked my trigger on purpose because you think it’s fun to see me melt down” pitchfork.
This is super relevant for neurodivergent folk. Like, you might be able to deal with your feet being cold or a tag, but not both. Hubby describes the situation as “It may seem weird that I just get up and leave the conversation to go to the bathroom, but you just dumped a new financial burden on me and I already had to pee, and going to the bathroom is the fork I can get rid of the fastest.”
#this all works in with the things that are coming out about comorbidities and trauma and the fact that traumatised people are more likely#to come down with centralised disorders such as chronic fatigue syndrome/me or fibromyalgia#and the more trauma you have and the more stressed/vunerable you are the more likely it is you will develop it if you happen to encounter a#situation to trigger it#which is why the massive intersections between autism transness homosexuality race and poverty with chronic illness#*well the study I was reading was speaking about autism and transness and chronic illness but I’m sure it’s all neurodivergence#we have more blubber being stripped away by so many factors so it’s like…we’re getting stuck by a lot of forks#anyway I need to stop typing#chronic illness tag#spoon theory#disability tag#neurodivergent tag#chronic pain tag
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Finding Balance: A Gentle Guide to Pacing with ME/CFS
Question: What’s the best way to pace myself with ME/CFS? Answer: Pacing with ME/CFS is all about finding balance—managing your energy levels to avoid triggering post-exertional malaise (PEM) and staying within your “energy envelope.” As you read this post, please remember that pacing applies here too. There’s a lot of information, and it’s important to honor your capacity. Consider reading a…
#adaptive tools for fatigue#alternate rest and activity#balancing rest and activity#boom-and-bust cycle#brain fog management#break tasks into smaller steps#chronic fatigue syndrome#chronic illness#chronic illness management#chronic illness recovery#compassionate pacing#energy conservation#energy envelope#energy management#energy-saving techniques#essential tasks#fatigue and recovery#health#managing fatigue#managing PEM triggers#ME/CFS#mindfulness for ME/CFS#pacing strategies#pacing tips#PEM#post-exertional malaise#prioritize energy#rest management
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Also preserved in our archive
by Lydia Wilkins
“Come back to me when you start wanting children,” my gynecologist said. I had asked about the implications on fertility, thanks to my Poly-Cystic Ovarian Syndrome (PCOS) diagnosis — and was dismissed once again. It enveloped me with such despair.
For over two years I was shunted between varying medical offices, from primary care to an STI clinic. Among many disabling symptoms, I was experiencing hair loss and excessive hair growth along my jawline since my SARS-C0V-2 infection. After developing Long COVID in March 2022, doctors considered me a “medical curiosity” and tested me endlessly, leading to wrong diagnosis after wrong diagnosis. I was prescribed medication after medication, but nothing seemed to help.
Eventually, I added another diagnosis to my chart when I was diagnosed with PCOS by a gynecologist. The hormonal condition is lifelong, presenting with symptoms such as excessive hair, hair loss, fatigue, and irregular periods. The World Health Organization recognizes PCOS as a leading cause of infertility; you are also at risk of other conditions such as diabetes. The gynecologist additionally said there was a possibility that I have endometriosis, in which tissue from the uterus grows in places where it should not be. Endometriosis is recognized for extreme levels of life-impacting pain and is also associated with infertility.
The impact of Long COVID on sexual health is still not fully known, but there are serious signs of sexual and reproductive health being impacted. To be a disabled woman who has to advocate for herself, with the research, in the face of medical indifference is beyond exhausting. At every stage, I have correctly diagnosed myself, while specialists would play “catch-up.”
Why are medical experts and public health officials not sounding the alarm, to warn the public about the impact of Long COVID on fertility?
Like COVID-19 which leaves inflammation in its wake, PCOS is also thought to be an inflammation-related condition. PCOS is primarily a hormonal condition that impacts an estimated one in ten women and may put you at higher risk of severe COVID-19, according to research. PCOS can also make it more difficult to get pregnant, or, like endometriosis, increase complications during pregnancy.
I still have so many questions, such as if there is anything I could do now to mitigate the chronic nature of PCOS. Yet, doctors continually fob off these questions, shrouding me in a patronizing expectation of “having to wait until you start having children,” as if once I am interested in children, I will gain admission to an elite secret club of better care.
The UK campaigning group Long COVID Kids has documented the wider impact of Long COVID on reproductive health — such as changes to menstruation and triggering menopause. The same post also points to a study of the negative impact on ovarian function, along with other triggered conditions such as ovarian cysts.
A Patient-Led Research Collaborative review also found that women with Long Covid had increased rates of reproductive health issues — including, but not limited to, endometriosis, infertility, ovarian cysts, and other conditions. The review also mentioned another condition I am waiting to be tested for, after two years of misdiagnosis — POTS (postural orthostatic tachycardia syndrome). Why are these conditions not considered in tandem with each other, to save time and needless testing that causes nothing but distress?
We also know that COVID-19 tends to disrupt menstruation, as well as “fertility potential.” COVID-19 impacts male fertility, too, reducing sperm counts even after mild infections and causing erectile dysfunction. Some people with Long COVID are opting out of having children altogether, because of the strain of delivery and childbearing to the body, or because of the inability to raise or financially support a child.
Before catching COVID-19, I was bouncy, energetic, and socially confident. I had never had any notable health issues; now, my hair falls out in clumps, enough that my hairdresser has adapted to hide the thinning hairline. Excessive hair growth dominates my jawline and eyebrows. There’s also acne, dark spots of skin, and tense bloating warranting “she’s pregnant!” commentary from friends, family, and colleagues. There are few resources on how to cope with such an overwhelming diagnosis and aftermath.
I have been disabled from birth — but attempting to access reproductive healthcare with Long COVID has been a rough learning experience. Thanks to a litany of traumatic experiences when seeking relief from Long COVID, I am now obliged to take a chaperone with me to all medical appointments. Medical professionals speak to my chaperone as if they are the patient — “what can I do to help?”
We are told we have to trust medical professionals — but that trust is a privilege not afforded to disabled people in healthcare settings.
I, in turn, am the “sweetheart” spoken at with “the voice.” Disabled people everywhere know it — slow and childlike, patronizing and loud. I am not afforded dignity or privacy as a result. Other professionals have asked for free disability education instead of discussing my symptoms; it’s an inappropriate presumption, as well as beyond bitterly distressing.
My care was also marked by desexualization, or being reduced to the presumed state of a child. Doctors assumed, “she’s disabled — so she won’t be interested in any of that,” as Lucy Webster documented in her book, The View From Down Here.
Disabled women learn to suppress our anger to achieve any kind of diagnostic result, never “speaking to” the weighted horror. We have dreams, too — but they are tempered by societal commentary, both inside and outside a medical setting. I used to dream of an ordinary life, maybe a life of growing old with a partner, a house, a family in some way. Now, I realize it would be a privilege to not be questioned about these wants or to not be subject to constant commentary.
Women have long been advocating for better reproductive healthcare in the Western world; PCOS has long been misunderstood, with treatment often merely consisting of being told, “just lose weight.” A lack of curiosity has written off reproductive healthcare as only “a woman’s issue” for far too long.
More research on the emerging connection between reproductive health and Long COVID is needed, as is a deliberate culture shift in any caring profession. That can only start with education aimed at ending ingrained stigma. Health is a collective concept — and if we forget that, the pandemic has taught us nothing.
#long covid#covid is airborne#mask up#covid#public health#wear a mask#pandemic#covid 19#wear a respirator#still coviding#coronavirus#sars cov 2
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these tags annoyed me to be honest
1. PCOS is a bad point of comparison because despite the name, diagnosis is not *supposed to be* done on the primary basis of finding cysts in the ovaries; these are common and not inherently of concern. instead, the more indicative biomarker is the hormone test (high levels of testosterone *throughout the menstrual period*, with corresponding disruption to the expected/typical fluctuations in estrogen/progesterone) but often diagnosis is done more on the basis of a physical exam ('exam') confirming characteristics such as hairiness or adiposity. this absolutely DOES result in PCOS overdiagnosis for some demographics; while a real biological condition, PCOS is also a load-bearing diagnostic term in the enforcement of very specific standards of (white) femininity and its use also frequently masks, for example, the frequency of hypothalamic amenorrhea (HA) secondary to chronic energy deficiency (as in anorexia), which doctors are loathe to diagnose because they view weight loss as prima facie good
2. the reason it matters that psychiatric diagnoses do not have a 'biology' is not because every disease must have a single specific biomarker; it is correct that some do not. however, the way patient complaints are sifted into categories labelled 'psychiatric' versus '(otherwise) medical' begins essentially with determining whether the distress is 'physical' or 'mental'. in other words, in the case of, say, the chronic fatigue syndrome (famously, lacking a known specific biomarker), the symptoms being investigated by the non-psychiatrist physician are still physical (PEM; mast cell dysregulation; pain; etc) whereas a diagnosis of depression may be accompanied by, but requires no, physical symptoms or presentation. the psychiatric claim that its diagnoses have biological causes and correlates is specifically a claim about the role of neurobiology in the causation of affective states; thus, the comparison to physical complaints is meaningless here
3. this person goes on to claim that depressives do in fact share, though not universally, certain biomarkers such as mitochondrial dysregulations. such claims typically come from various imaging studies plagued with systemic problems in the selection and definition of patient populations as well as the subjectivity of result interpretation and analysis. these claims are not well supported and typically rely on circular selection and definition of patient populations
4. speaking philosophically, it is in fact often correct to challenge the notion that a physical 'disease' chronically lacking a specific biomarker is indeed a disease, in any sense besides the colloquial one. that is, diseases that cannot be correlated with one cause or presentation are often better understood as 'syndromes', which is to say, as a taxonomical heuristic that is likely grouping together multiple disparate physical (anatomical, physiological, functional, &c) problems with multiple disparate causes. this is almost certainly the case for chronic fatigue syndrome, for example. this is a philosophical distinction that matters for research and understanding, and does not mean or imply anything to minimise or contradict the patient experience of the syndrome or symptoms. it matters because, for instance, CFS triggered by the epstein-barr virus may indeed turn out to have different disease mechanisms to CFS triggered by, say, covid-19, or may have different specific mechanisms when running in certain families, and so on. distinguishing these much more specific presentations, and possibly distinct diseases, from the current discursive schema of the overlying syndrome is potentially very good for patients, who likely have different needs and treatments to one another despite currently all sharing the same label in their charts
5. which goes back to an overlying point, which is that (despite frequent defensiveness to the contrary), whether or not something is a disease does not inherently tell us anything about its reality, its severity, its cause, the moral status of its sufferers, &c
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This might be old or unhelpful information to some, but along with women needing higher healthy fats in our diets (avocados, eggs, etc.) and liquid vitamins potentially being life-changing (because the body only has a 10-20% absorption rate for supplement pills), dehydration can be a huge trigger for chronic fatigue syndrome.
We can get to a dehydrated point where we won't feel thirsty (which is easy to reach), and some of us might struggle with cravings, because we are thirsty but these thirst receptors aren't perfect (also, prior to us being able to develop drier foods, most foods had water content in them so it's intuitive that our bodies do this). We live in an age where we can't unfortunately trust our water sources due to environmental pollution, and where the workplace might not accommodate healthy hydration (or frequent peeing). What I do to limit how much I pee and increase how much fluid I retain is to add those little electrolyte packets to my bottled water.
If your mind feels laggy or jumbled, if you feel too weak to get out of bed, if you're tired like all the time, if no matter how much sleep you get you still feel tired, if you have cold hands and feet, anxiety, and if you have memory issues - these are all signs of chronic fatigue and women experience it more than men. It's a complex chronic condition that is debilitating and not taken seriously at all, and there can be numerous triggers to it. I mentioned not obtaining enough healthy fats above or proper vitamin levels (especially iron and vitamin Bs), and these issues can trigger the above symptoms of chronic fatigue. Dehydration is another big trigger, and it's why we might especially experience these symptoms a few hours or a day after exercise or after drinking alcohol. Take care of yourself, pound water.
#health#women's health#chronic conditions#chronic fatigue#chronic fatigue syndrome#disabilities#nutrition#hydration
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Press release: "COVID may trigger chronic fatigue syndrome"
--- Full study can be read here: Impact of COVID-19 on #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome-like illness prevalence: A cross-sectional survey
In a large, integrated health system, 1.67% of adults had ME/CFS-like illness and 14.12% of all persons with ME/CFS-like illness developed it after COVID-19. However, COVID-19 did not substantially increase #MECFS -like illness in this cohort during the study time period.
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about 1 in 10 people who have had epstein-barr virus develop lifelong, clinically significant chronic fatigue. EBV is also known as mononucleosis or mumps, and is considered a common and harmless childhood disease. if you have ever had EBV and have serious problems with energy or sleep, you are probably living with CFS and don't realize it.
EBV isn't the only virus that can trigger CFS, and it's suspected the common root is a specific, otherwise asymptomatic retrovirus frequently or constantly reactivating immune responses to other viruses. in general, CFS involves damage to the mu opioid receptors and can sometimes be treated quite effectively with naltrexone, with a handful of typically minor side effects. it can also be treated with lifestyle changes such as consistent sleep - about 8 hours every 24, no more or less - and careful management of physical energy and fatigue triggers.
(noteworthily, there is research suggesting that in at least some cases, COVID-19 exposure can produce CFS as a long viral syndrome.)
if you have ever been diagnosed with CFS, especially before the last couple of years, it was commonplace for clinicians to prescribe frequent exercise as a treatment protocol. even at the time this was known to have marginal positive results at best and severe, inescapable effects on fatigue levels. this is another thing that helps: self-advocacy. if you find that running a mile in a day means you can't brush your teeth or get out of bed in the morning, you need to put your foot down about not doing it and get any clinician you see to take alternative lifestyle changes and treatments more seriously, or else find another clinician
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Long overdue and sorely needed, research into chronic fatigue syndrome has picked up speed since the pandemic illuminated the lasting and debilitating effects of long COVID. The possible causes of chronic fatigue syndrome, otherwise known as myalgic encephalomyelitis (ME) or ME/CFS, remain elusive despite this new research effort, although they are slowly coming into focus. Past viral infections triggering an overactive immune system and malfunctioning mitochondria depleting cells of energy are possible explanations for how chronic fatigue syndrome develops. Now a new study based on mice suggests that some drugs used to treat depression, which commonly accompanies ME/CFS, could also ignite the condition.
Continue Reading.
#Science#Immunology#Neurology#Health#Medicine#Antidepressants#Selective Serotonin Ruptake Inhibitors#SSRI's#Long Covid#Myalgic Encephalomyelitis#ME#ME/CFS#Chronic Fatigue Syndrome#CFS
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“I was held in chains but now I’m free…”
“Hey, little train! Wait for me! I once was blind but now I see. Have you left a seat for me? Is that such a stretch of the imagination?” (“O Children” by Nick Cave & The Bad Seeds)
I feel obligated to set up a trigger warning on this post, since I’m mentioning thoughts of suicidal ideation in my text. If you’re feeling uncomfortable with this topic, please feel free to ignore the following four paragraphs and skip right to my praise for the incredibly talented artist of this comic strip.
As already mentioned in some of my latest posts, I’ve commissioned some of my favourite artists here on tumblr for a special project of mine: My afterlife project.
I’m suffering from multiple autoimmune disorders, which probably have paved the way for this bitch of a disease, ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), two years ago. Sure, my life already wasn’t the easiest before, but since then, it came to a standstill. More and more, I lost my abilities, my social life, my place in the society…and surely even my participation in my own family. My days are mostly spent in bed all day and night, surrounded only by darkness and solitude.
Patients with severe ME/CFS might die earlier than expected, due to multiple organ failure and - yes, I have to admit, that this reason is, indeed, undeniably relatable (and alluring) to me - suicide. With each passing day, that I’m doomed to “live” with these confines of my personal hell… imprisoned within myself without any chance to escape… death appears to be a welcoming friend, who’s only awaiting to pull me into a tight embrace. For me, it’s like it’s written in the following poem (“Joy in Death”) of Emily Dickinson…it will be good news and maybe even a relief…not just for me.
I know, I can’t leave, yet… and that I have to stay as long as endurable - at least for my children’s sake - but… yeah, BUT… but, damn, I’m tired. My personal limits are set… my lines are drawn… my responsibilities are cleared and both of my closest friends are informed about my pathetic little wishes (please, play that goddamn song for me!). I’m prepared. But for now, I have to stay…. to fight a little longer… to be a mom, even though my kids only see me for a few minutes each day… a mere shadow of the mother, they used to know. It’s a fucking shame!
For this particular part of my afterlife project, I’ve commissioned my sweet friend @sleepybradipo, who will always be my first choice to draw my vision of the young Severus in his own uniquely tender art style, which I’m so weak for.
In my imagination, I will be able to choose, how my eternal life will look like. Finally, I’ll be with Severus! We’ll meet at the age of 11 years and eventually spend the rest of our lives side by side...growing old together. Severus and Jukes will finally get the life, they’ve always deserved to have. I’ve started to show sections of this existence by Severus’ side in some of my other posts, which belong to this project. It may sound strange and pathetic (obviously), but this is all, that I'm wishing for. I want to come home to him.
For this artwork, I asked @sleepybradipo to make the process of “renewing” visible…almost like some kind of resurrection! Jules is stripping off her old, exhausted self, only to be 11 years old again…happily running towards the 11 years old Severus, who’s waiting for her.
Ivano, at first, I felt guilty for my request for this commission. I’m constantly afraid of becoming a burden to others with my ridiculously morbid thoughts and ideas. But you, my dear friend, made me feel seen with your kindness and compassion. Your understanding of my fantasy and the way, you’ve realised it in this mesmerising piece of art, are absolutely breathtaking! I don’t know, how I could possibly show enough gratitude to express, what your art is doing to my black little heart. It’s like a bandage…a soothing balm… a comforting embrace. Thank you for everything, Ivano.
đź–¤Severus & Juliađź–¤
đź–¤Sevy & Julesđź–¤
PS: I have to apologise for my repetive use of terms in my writing this time. The lack of coherence might be caused by my current “crashing” condition and a weird cocktail of different medications. I’ll try better next time, but it was important for me, to show this heart-wrenching composition of art as soon as possible. Your work needs to be seen, Ivano!
#Severus x Julia#Sevy x Jules#Severus x OC#my afterlife art project#fuck me/cfs#I can’t wait to be free#commissioning artwork is my goddamn coping mechanism#this is my red carpet for all the artists of snape fandom#tw sui ideation#i love severus#he’s by my side for 21 years now#21 years and still counting#new start#severus snape#i can’t do this anymore#mecfs#i love snape#snape#pro snape#snape love#pro severus snape#baby snape#snape content#snapedom#severus snape art#snape art#imprisoned in myself#disability#writing is my coping mechanism#everlasting life
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POTS magic masterpost
(Postural Orthostatic Tachycardia Syndrome)
A collection of tips and suggestions from and for magic practitioners who have POTS!
*To be used in addition to proper medical care, medication and mundane efforts, not as a sole alternative.*
Salt + electrolytes:
As you take salt pills, say a spell or blessing.
Incorporate salt into general health, wellness, and energy spells.
Draw sigils on your salt shakers.
“I drink a lot of electrolytes, and Pedialyte to help with orthostatic issues, and I will cast over my drink much the same as I do for tea, coffee, water, etc. So any spellwork for drinks could easily apply to one's electrolytes or water.” (x)
Tips and tricks:
Ask for specific strength to your blood vessels and brain.
Draw sigils on your medication bottles and mobility devices.
Carry around a resilience sigil or a sigil to keep your heart rate and blood pressure at a more average level.
Do little enchantments on your compression stockings and put them on a windowsill to charge with solar energy.
“Keeping all of my ingredients in easy to reach spots has also been a big help, specifically places that are low to the ground and don't require me to do much standing or walking around.” (x)
“When using counter maneuvers for POTS, visualize yourself being grounded & connected to the earth.” (x)
“I find time in nature also tends to ground me better, which can help if stress is a trigger for POTS.” (x)
“Pray to Apollon and Artemis for help at the start and end of the day. Again, this doesn't replace medical treatment, but it can certainly offer a lot of comfort, especially in the middle of a flare-up. For me, stress is a major trigger of my POTS, and I find that praying to my deities makes me calm down much faster, thereby allowing the flare-up to be a bit shorter.” (x)
Correspondences:
“Keeping a lot of bloodstone and rose quartz around has been helpful to me.” (x)
“As far as wandwork correspondences go, I like to use my mangrove wand for POTS-related work, bc of its unique adaptations to a salty environment. (Mangrove has a lot of health correspondences for me, but POTS and menstruation related issues are the two biggest.) Aspen, bloodwood, ebony, lignum vitae, redheart, and willow also have various health-related meanings for me, so I sometimes use those too.” (x)
Sigils:
Balance my blood pressure
My blood pressure is a healthy level
My heart rate stays average
Ease my dizziness
Ease my lightheadedness
I remain conscious
People respect my diagnosis
Other posts:
Suggestions from @khaire-traveler
The post asking for contributions
Spoonie witch masterpost
Bedridden witch series
Witchcraft for the chronically fatigued
Spoonie sigils (pain + symptoms) (energy + mental illness) (healing + other)
With contributions from:
@moonshoesmoonshoes, @zazathehousewitch, @khaire-traveler, @templemarker, and @the-witch-of-wands thank you!
#spoonie witch#POTS witch#POTS magic#POTS sigil#thank you so much to the folks who contributed! there were so few posts out there that this wouldn’t have been possible w/o you!!
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I got my shot today
It's hard to type and be good at it now so you get this.
I got sushi for lunch and went owling. I only saw eagles. :/
Overall the lidocaine injection is going to help but it causes chaos on the first day and night. I have severe fatigue and brain fog and pain everywhere but the spot the lidocaine is meant to treat. Today is just bad health wise but I'm in a good mood.
Oh, there's also a wounded chicken in my shed. I can't access it and if it makes it through the night, I'll get it out of there. Used a lot of energy in that situation. Won't share the photos cause it looks rough.
This probably didn't make sense. Sorry.
I'm okay, my husband is teaching care of me but I'm truly out of it.
#finnsblog#mecfs#myalgic encephalomyelitis#chronic fatigue syndrome#cfs#chronic illness#salmon#nap#chicken#nerve entrapment#lidocaine#trigger point injections#injections
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Hey uh @ people with ME/CFS I got a question...
Everything I've read and heard about kinda seems to go hard on the idea that over-exerting yourself tends to lead to exhaustion that just never gets better at all no matter how long you rest after, and like I always assumed I didn't have it, because yeah overexerting myself tends to make me way more exhausted than is does other people and the exhaustion lasts like, a week or more sometimes, but it does eventually get better.
Like last weekend I went shopping for my birthday and also to an art gallery, and then I did a few small errands, and I conserved my energy as best I could, resting often, using mobility aids, ect, but I had to spend Mon-Fri in bed doing basically nothing aside from watching youtube, listening to music, and playing tetris because that was all I had the physical and mental energy to do. And granted that was dragged out a little because I had to go to the ER on Wednesday due to a migraine that got triggered by all this(bcs overexerting myself almost always triggers a migraine) and on Tuesday I sat in the car while we took my cat to the vet for a quick nail trim, but aside from that I just rested and even though I am feeling a bit better today I'm still just SO fucking tired and I know I'm going to have to take it easy for a few days more just to be sure I'm okay.
Which like, idk doesn't sound normal, that's for fucking sure, but I do know that with enough rest eventually I will return to my normal, which isn't everyone else's normal but is still normal enough that I can make myself easy meals and sit at my desk and talk to people and make phone calls and run errands without it killing me too badly.
But like idk my doctors seem convinced that I don't have any kind of autoimmune condition(although they haven't actually ran any tests they just keep insisting I'm not showing the signs of one and to keep up with physical therapy even when I tell them that just going clothes shopping for a few hours puts me on bedrest for the next 2-3 days) but idk again this does NOT seem normal. I legit feel SICK sometimes when I push myself too hard, like I think I'm coming down with a cold or something but it never actually turns into one, I just have that "eugh" sick feeling for a day or two and then it goes away once I've rested enough(also for clarification I never get any real cold/illness symptoms like a temperature and I mask literally everywhere and this ONLY happens after exertion so I don't think I'm actually getting sick). I also don't usually feel rested when I sleep but I always chalked that up to the insomnia more than anything?? But it does happen even when I have a good night's sleep with no tossing and turning or nightmares...
Anyway if anyone who does have Chronic Fatigue Syndrome could maybe explain to me what it's like for them I would appreciate it because idk what else could possibly be going on with me but I am so fucking tired of my doctors acting like there is nothing wrong. It might not be ME/CFS, and I have been diagnosed with fibromyalgia so maybe this is all just that? So I also wouldn't mind if someone who has fibro can tell me if this is all just fibro stuff. But idk I just want to know for sure, you know? (If it helps in addition to the fibro I also have arthritis, hEDS, orthostatic Intollerance, and occipital neuralgia.)
#actually disabled#chronic fatigue syndrome#me/cfs#fibromyalgia#I'm legit scared to go back to PT bcs they usually want me to come in twice a week and I honestly don't know#if I am physically capable of doing that in the first place
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