#and im just trying to get on fucking disability

[vesselrae]

aaaaa my drs note got rat fucked for EI so im on No funds at all again

[daftpatience]

one thing I have learned about being poor is that you cannot for a moment stop thinking about it

[thedisablednaturalist]

idk whats wrong with me.

I'm trying to exercise, eat healthier, get enough sleep. Just like the doctors say.

But I'm still, STILL, so..so tired. So unbelievably exhausted. I'm starting to think I might have ME or something. Fibro is supposed to be able to be managed with diet and exercise, according to my doctors *rolls eyes*.

I want to work hard like I used to. I want to have bright ideas and feel passion. I do, sometimes, but it's so hard to break through the fog and pain and exhaustion, and it doesn't last. I feel like I'm constantly trying to hide how stupid I am, I'm afraid my coworkers will find out how hard I'm really struggling. All the stuff they praise me for seem like they were all achievements from Before the illness, I don't feel like that person anymore.

But what am I supposed to do? I have to work, I have to make enough to stay out of my parents house. I can't go back there. So I'll keep fighting, hiding, crying, and doing my best to improve my health, even if that's only out of desperation.

[cannibology]

temperature sensitivity is such an annoying part of my disability. what do you mean i can’t go out in colder weather or warmer weather because the cold gives me allergy-like symptoms that last for days and makes my hands stop working but the heat makes me lightheaded and headachey and too exhausted to think? what do you mean i can’t be in direct sunlight or direct contact with cold without breaking out in hives? why must i have the physical constitution of a sickly victorian boy?

[beepmeowiskarkat]

Hey does anyone have any analogical fic recs where Virgil is autistic with severe sensory processing issues, suffers from OCD and / or has mobility issues? Ive seen a lot of disabled logan analogical fics but I feel like absolute shit and I need to see myself repped by my fav.

[palms-upturned]

.

[uygfiug]

thought my school was finally going to try & help me next year but it sounds like theyre just trying to get me to act normal without actually helping

[dailykugisaki]

Day 118 | id in alt

Messing around with color a little. I just enjoy that the two weirdo besties are Christmas colored(kinda💥).

[cosmohydrargyrum]

please keep in mind this was hastily written at 2am after a bad day. on a scale of 1-10 i rate my symptoms outrageous. something I notice all the flipping time is how hEDS is so prevalent in disability spaces while other EDS types are not mentioned even if the statement applies to not just hEDS? and on some level I understand that hEDS is much more common than other types and if people have hEDS they're going to talk about hEDS. but like. for example, the hEDS plushie dreadfuls' symbolism is listed for things that multiple types of EDS experience but it's listed as like "hypermobility disorder" or something. what kind of fuckassery. I haven't looked into it much myself but I've also heard the EDS society puts so much focus on hEDS and neglects other types which is. stupid to say the least. idk every time I see "hEDS awareness!" and it's stuff that applies to every/multiple type of EDS my lifespan depletes

[bunnihearted]

.

[suffercerebral]

me having gone to bed at 6 am every day for the past week and generally spiraling mentally while rotting in bed waking up this morning: a 4 mile hike in the heat is a really good idea right now, and while we're at it let's start like 3 art projects

[princesschubbi]

I'm actually getting really depressed that most people are just hiding my posts in their likes and never reblogging anymore. Am I doing something wrong? Because reblogs are what I need in order to even keep making content in the first place and now it seems like no one even likes my content enough to reblog it anymore. I haven't made more than $10 in MONTHS because advertising here isn't working anymore and idk why. I'm actually barely keeping my head above water to keep making content for you guys and I just wish someone would tell me if I'm not doing a good enough job or something 🫠 I just want to know why I get maybe two reblogs a day that aren't my own reblogs to boost my own content like where am I going wrong? I'm tired of notification after notification of likes. Especially when someone goes and serial likes all my posts without reblogging a single one. I'm TIRED

[inniave]

so fucking sick of the constant misgendering. it's exhausting. even from fellow queer people??????? who know me?????????? HELLO?????????????

[hauntedwoman]

as badly as i want to avoid my mom she is making it extremely difficult

[piplupod]

kind of considering printing off like three medical reports on how slowly increasing activity/exercise levels does not actually work for long covid chronic fatigue and just carrying them around in a duotang everywhere or something because I'm getting real tired of people telling me that I just need to slowly build up my tolerance to doing things again as if I haven't been trying that for over a year and getting nowhere and as if medical research hasn't already proven that it literally does not work like that for this type of disability 🥲

[an-assortment-of-forks]

there are doctors there are hospitals there are specialists there is medicine there are systems in place so people do not have to suffer and be tortured under their own chronic pain daily and yet. they're all fucking inaccessible to the people who need it most!!! to what I would argue is most disabled people!! I'm so fucking done with the medical system.