#Endometriosis diagnosis

[preetigandhi]

Understanding Endometriosis: Beyond Painful Periods by Dr Preeti Gandhi MD,FRCOG

emphasizes the complexity of endometriosis and the vital role of endometriosis surgeons in its management. The blog discusses how endometriosis affects physical and emotional well-being beyond menstrual pain, highlighting the importance of seeking specialized care. It underscores the significance of laparoscopic surgery performed by skilled endometriosis surgeons to excise lesions, cysts, and adhesions, providing relief and preserving fertility. The blog emphasizes the importance of postoperative care and ongoing support for improving patient outcomes and quality of life.

Dr.Preeti Gandhi MD, FRCOG serving the communities of Scunthorpe, Doncaster, Grimsby, and Hull

[surinderbhalla]

Pain to Possibilities: Understanding Endometriosis!

Endometriosis is a complex and misunderstood medical condition affecting millions of women worldwide. It’s a condition that can cause excruciating pain, disrupt daily life, and even lead to infertility. Yet, despite its prevalence and impact, endometriosis remains underdiagnosed and frequently under-discussed. In this blog post, we will be understanding endometriosis, from pain to possibilities.…

[69constellationsinatrenchcoat]

everything hurts and im sick of being sick

[safaridays]

the chronically ill/injured to interest in biology pipeline is crazy. you have to know every single detail about your inner workings to advocate for yourself better, because you learn quickly that the smallest miscommunication can add months or even years to your diagnosis

[yrfemmehusband]

I have a doctor's appointment tomorrow and I'm thinking a lot about my own role in my medical treatment and how I've definitely aided in my own prolonged diagnosis. Yes, lots of doctors gaslight, and lots of doctors are starkly rude and unhelpful. But it's hard to deny I've also played a role in not getting what I need from appointments and Drs.

My severe medical trauma makes it really difficult to explain what exactly I want to say. It makes it hard to say anything. And while that's hard to overcome when you keep getting traumatized, it's something I really need to do. Not being able to fully articulate to my doctors what's going on with me has severely negatively impacted my care.

It is also up to the patient to redirect their care if it isn't going in the direction they feel it needs to go. I have known this whole time I need to go up a neurologist but on some level I have allowed myself to be yanked from specialist to specialist to not find anything wrong. Investigating issues that might be a problem but don't fit all my symptoms, especially the most important ones. I should have emphasized which symptoms were affecting me most and I should have displayed more of my knowledge about where I think their origin could be.

All of this was hard to do for multiple reasons. These things have been more or less out of my control, it was hard to recognize what I needed to do. Part of the issue is fear of doctors and the medical system as a whole. Listing off all of my symptoms is difficult because they are so widespread. Ive had so many gaslight me that it's easier to pick a few most impactful symptoms and leave out the rest.

Another reason is because of my illness itself. Doing anything has been extremely difficult for two years now. It's hard to make art, to post, to organize my symptoms let alone keep track of them. Ive wanted to make a folder of my symptoms, diagnoses, a timeline and pictures. I want to, just feel like it's not within my grasp to do it at all. It's difficult to pick up new habits or learn new things at home and at work. Everything is difficult for me. Add medical trauma on top of this and I was nearly mute in so many of my doctors appointments. Even now it's simply hard to articulate everything and remember everything I want to say.

Honestly I don't blame myself, this isn't my fault. The medical system and doctors should put in more effort and safeguards for people who have issues articulating their issues, and a patient advocate did not help me either, it wasn't even his fault to be honest.

This time I'm setting aside time to write everything down. I already have a chart and timeline of my symptoms and diagnoses I made with my therapist and now I'm going to draft a script for my appointment tomorrow. Pls wish me luck and if anyone has any advice that is welcomed thanks if u read my rant lol

[affectionatepanda]

I recently had a diagnostic laparoscopy because my doctor and I were sure I had endometriosis. None was found (although I’m not entirely convinced it’s not the problem but I’m no expert) but what was found was just… So much scar tissue. Things were stuck to other things and I had an organ twisted out of place. The biggest thing for my long term health (I think) that was found- and this might be TMI but really is anyone going to read this?- my fallopian tubes are completely blocked. Meaning I can’t have children unless I either get that treated or use IVF. I didn’t particularly want to have children, at least not by using my body. But it’s weird knowing that it’s not even really an option for me. I’m not sure I’ve really processed this information; I just feel numb about it. Apparently blocked fallopian tubes are a fairly common cause of infertility. Infertility. Is that something I have to identify with now? Do I have to say I’m infertile? I’m really adding to my list of adjectives over here. Chronically ill, disabled, mentally ill, lesbian, nonbinary, neurodivergent… infertile? I guess I am. It’s such a strange feeling. I don’t know what to do with it. Oh, and we don’t know exactly what caused the scarring. My doctor’s best guess was some sort of infection but I don’t remember ever having any kind of infection that would cause this. I thought this would give me answers but I feel just as confused as before. But I’ve deemed “fixed” and he said I only need to be seen for routine screenings anyone my age would get. Maybe I’m supposed to be satisfied with that. Maybe I want too much out of my doctors, I don’t know. All I know is I don’t really… have anyone to talk to about this. Not anyone who knows what to say. It’s fine though, I don’t even know what I want to hear.

[cold-knees]

If you're against "self diagnosis" all that tells me is that you have 0 understanding of how you end up with a professional diagnosis. Every condition/illness I have ever gotten diagnosed with was accomplished by going to a medical professional and saying "I have these symptoms, can we look into whether I might have X condition" and then they asked more questions & maybe ran tests or refered me to a specialist, and that resulted in diagnosis. Like idk how to tell you but the vast majority of professional diagnosis comes from "self diagnosing" first

[sunkern-plus]

i forget i'm chronically ill all the time until (random bowel problem that no normal human has) (random gas problem that no normal human has) (random sensation of my ovaries being torn out through my stomach) (random extraintestinal ibs fatigue that makes me not do anything)

[virigorne]

Pay hundreds of dollars to see if my growth is becoming harmful for my body -> OBGYN says it'll be fine as long as its asymptomatic -> Tell her I'm having symptoms -> Uhhh well it SHOULD be fine so just come back in a year!

[black-rose-irl]

I love playing the period roulette.

The rules are: Will I be too sick to go to work today?

[unityrain24]

why... why am i just not good enough anymore? For the past few years, none of my art has won. For the past few years, I haven't had any friends. For the past few years, no one will actually give me an actual official diagnosis on a mental/physical problems. Is every facet of me not good enough? Am i just not good enough?

[yrfemmehusband]

Trying to get an answer for a second chronic illness after getting an answer for the first took almost a decade is like preparing as much as you possibly can for a train wreck and still not being able to do anything but get on the train and wait for the crash.

[vulvalcartographer]

I just revlogged another post about endometriosis and I remembered that I haven't seen anyone here talk about a new test that is being developed by polish scientists. I sadly couldn't find any big, English speaking news outlet talk about it but I found the news in English for all of you!

The test is supposedly very effective and can be performed by any gynecolosit after training. It takes about 10 days to give results and can be a great tool in helping to shorten the time it takes to diagnose endometriosis.

I need to check if any private offices in Poland already offer this particular test but I think it could be soon used in other countries (the article mentions UK being interested). I'll keep an eye on that because it might be that, within a year or two, it will be more widely available and thenyou could ask healthcare providers about it (or campaign for its availability).

https://polishnews.co.uk/endometriosis-test-available-from-next-week-it-was-developed-by-polish-scientists/

[perrieedwards]

i hate periods i hate them !!! two weeks a month is dedicated to this shit plus one more week for ovulation??? and there is no end in sight!!! even if u went actually fuck this and had a hysterectomy THERES MENOPAUSE !!!! this is hell

[stargirlbryce]

Today my mom apologized to me because she underestimated the amount of pain I was actually in and told me she wished she took it more seriously...God is real

[salsedine]

Look, I understand that hormones are pure anarchy and that the New Pill needs its time to adjust... But getting my period (or the fake/pill-induced period) twice in the span of 10 days should be ILLEGAL.