#Chronic Illness Blog

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[thesecretlifeofmecfs]

ChronicVerse

[arthritis-exe]

I hurt so bad that I wanna go home but I’m trying to stick it out because leaving early looks bad and I really want the holiday pay

[desultory-suggestions]

Sending love to everyone who has health issues or chronic pain in parts of your body that aren’t usually socially acceptable to talk about. It’s frustrating to feel like you can never explain your pain to someone because it’s TMI and to feel like you have to hide it. Your pain is nothing to be ashamed of. I see you, and I’m sending you support and strength.

[jasperxkuromi]

Play ideas for chronically ill, disabled, or otherwise bed bound/low energy littles

Hi all! I am chronically ill. I am not comfortable sharing my specific diagnosis, but I am more than okay with talking about disability in general. Everything below is based on my own personal experiences and activities I like to do while stuck in bed. Everyone's body and experiences are different. I may list some things that just aren't an option for you, and that's okay. You are more than welcome to add on to this post with activities you do too!

🐛 Open the curtains and cloud watch! I like to look for clouds that remind me of animals or characters and day dream a story about them. If the weather is nice, consider opening your window a little bit and letting some fresh air into your room.

🐦 Bird watch! I have a bird feeder outside my window that I painted myself from a kid's kit. There are also bird feeders that have suction cups that can be stuck right on your window. You can also make your own seed ornaments. You could pick yourself up a kids book or two on learning to identify birds.

🌷 Get a window planter. You may need someone's help to set one up, but once they are in place they are fairly easy to care for. I like pansies and marigolds because they remind me of childhood, and they are low maintenance and do well in containers.

📖 Audiobooks are great for middles who want to read chapter books. If you have a library card you can borrow tons of audiobook, ebooks, and comics through hoopla and Libby for free. There are some audiobooks for younger kiddo books, but honestly I think YouTube is better for that.

🖼️ Scrapbooks and journals! Being penpals with another little is also an option, but I do recommend using basic internet safety and common sense. (I don't think you should do this if you are under 18). You could always scan/take pictures of your letter and send it digitally to your penpal instead.

🛏️ If you spend a lot of time in bed, and have the money to do so, I really recommend getting items to make your time in bed more comfortable. Extra pillows, or even a reading pillow can be helpful. Lap desks or bed tables can give you space to color or set up play scenes with small toys.

🌟 You can also decorate the area around your bed to make it more child like! Fairy lights, glow in the dark stars, bed canopies, posters, and the like.

🪑 I have a floor chair I use for times I am playing outside of my bed. Being close to the floor helps me feel small, but not having back support hurts after a short while. I have an adjustable one that I can lay flat on the floor as a sleeping mat. Very helpful for the times when I need a quick nap after playtime.

🎨 Check the seasonal and kids sections at dollar stores and Five Below. I usually find fun craft kits that can keep me occupied for a bit for really cheap.

🧶 Do your own crafts! I like the knit and crochet. Some people can do them in bed, but I find it difficult to find a comfortable way to do that. However making friendship bracelets in bed works out pretty well. They make great gifts, even for non little friends. Or you could make matching ones for you and your CG or favorite plushie!

🪀 Make your own sensory bin! You can find tons of tutorials and ideas online. Bonus is you can get most of the items you would use at the dollar store. There are tons of other DIY sensory toys you can make as well if you look around. Glitter/shaker bottles are pretty popular too.

🐇 Cuddle with your stuffed animals. Tell them stories. Play pretend. Read to them. They will appreciate all of it.

🎮 If you have an old 3DS stuffed away in a drawer somewhere, pull it back out. 3DS are fairly easy to install homebrew and there are toooons of kiddo friendly games you could get (check 3ds.hacks.guide for this, do not follow tutorials on YouTube or random websites as they very well could be outdated)

💊 Decorate your medicine organizers with stickers. If you use mobility aids you can decorate them as well! Fake flowers are great for decorating mobility aids and there are tons of ideas you can find online.

🍼 I have stomach problems that makes it hard for me to eat enough. I often drink Ensure to make sure I am getting enough calories/nutrients. I get the strawberry flavor and sometimes put it in my sippy cup and pretend it is strawberry milk 😋

😴 If you need rest, rest! You deserve to get as much sleep as your body needs. Babies and toddlers take naps all the time! Trying to just exist with chronic health issues is difficult enough. You don't need to push yourself.

[puffyrice]

Gearing up for September already 😫

I have a dosage calc exam before school starts, and I can’t go to clinical if I don’t pass it (we can only get 1 question wrong). I got this book from Level Up RN to practice. Also learning some basic pharmacology to give me a head start for that.

Side note: I’m more active on Instagram now! I’m making content about chronic illness and being a disabled student. @thelupusnurse

[flutterpieprincess]

shoutout to the regressors dealing with chronic illness, pain and fatigue. shoutout to the immunocompromised regressors. shoutout to the regressors with long covid. shoutout to the regressors with an unknown disability. shoutout to the regressors who use mobility aids. shoutout to the regressors who use dips for medical reasons. shoutout to the regressors who are always tired. shoutout to the disabled regressors, especially those with stigmatized/hidden disabilities.

tbh just existing is tough, ur doing great. I’m proud of you 💗

[tiny-divine]

you can be sick and still be tiny !!

chronically ill & disabled regressors i love you !!! <3

[simder-talia-blog]

[disabled-bug]

Hi! I’m Aris

All useful/applicable posts, like links to accommodative materials, I put under #disabledbugreblogs so it’s easy to find!

All my love to those of you also struggling ❤️

[thesecretlifeofmecfs]

Disabled is NOT a dirty word.

[partycityistotallyofficailguy]

I hate being disabled and chronically ill but. The lore. My lore it’s sick. My lore guys.

[salti-thelatediagnosedautist]

part of being autistic is slowly realising that you actually live in chronic pain and all your random little physical blips and errors might actually be caused by a chronic illness???

No, but seriously, no one told me that it doesn't hurt their elbows when they shake sauce bottles... it doesn't hurt their wrists and hands to write.... it doesn't hurt their feet to drive.... they don't randomly "lose grip" on objects or find keyboards or controllers difficult to hold... I was under the assumption this was all relatively normal?

Part of the reason I didn't realise this is because I don't always realise I'm in pain. My autism already makes me hyposensitive to pain, but because my "neutral" is to always be in like a 3/10 pain state, I don't always know that I'm in pain...

[study-core-101]

time managment is so complicated when you are chronicly ill. some days its like it isnt there, others i feel dead, but i cant predict that. "oh, ill do it on thursday, i have the time then" wrong! its thursday and i feel like shit, cant do it.

[mosscaller]

[bpdarlingx]

I’m lost.