ribbitflings

[ribbitflings]

not me waking up and needing to battle it out first thing over an MRI

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[ribbitflings]

wtf is this new propaganda against having ac and staying cool during the summer? some of us literally will die if we overheat and it's just not a good look to be having people suffering from overheating issues anyway, and people are trying to regulate and discourage and even outright ban air conditioning? and you know the very people saying these things are sitting on their asses in the comfort of ice cold ac

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[ribbitflings]

me owing $25k bc insurance dropped me right before my first EMU stay and ive been so poor that i haven't been able to properly grocery shop for a solid year now

being charged thousands of dollars because i had seizures 😍 out of my control but i'm in debt anyway 🥰

[ribbitflings]

This is going to be hard for a lot of people to hear but if you want to make your spaces safer for disabled people, then you need to stop assuming malice from every poorly worded post.

A lot of neurodivergencies and disabilities cause people to ramble, lose their train of thought very easily, go on tangents, have disordered thinking, etc. We can get words and names mixed up very easily, lose words entirely, struggle to put our thoughts into actual words that make sense to people, and lose track of conversations. Whether it's from ADHD, psychosis, brain fog, brain damage, or any other condition, thinking and verbalizing ourselves can be really fucking hard.

This isn't malicious. We aren't doing it on purpose to hurt or upset people, and we aren't ignorant about the topic just because we get mixed up. We deserve to have voices, even if we don't always make sense to other people.

[ribbitflings]

just realized (again) that ive never heard of an actual old person with epilepsy? middle aged yes, but never an actual old person. does it really pick people off before they reach old age like that?

[ribbitflings]

Vivipary in Tomatoes

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okay i actually need to call neurology tomorrow and see wtf is going on with the next round of imaging scheduling bc things are actually getting worse and i cant go through "routine" imaging again

not me starting to have pretty decent motor issues (and bad headaches) to some degree every single day

[ribbitflings]

not me starting to have pretty decent motor issues (and bad headaches) to some degree every single day

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[ribbitflings]

i prefer oil paint when i do, but in high school, i had a years long feud with my art teacher because i did graphite and he wanted me to paint so bad

Cripplepunk realization: paint markers exist

If you struggle with painting due to sensory issues, mobility issues, or some other cause, these markers can make creating art so much easier

Fabric paint markers also exist, which can make patch making and other customization easier

Go forth, paint and create!

[ribbitflings]

is anyone on aptiom (eslicarbazepine or even oxcarbazepine or carbamazepine)

i have questions, including for afab people

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"happy father's day!"

"👍"

kms too i guess

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Holy fuck

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im really susceptible to deficits after really bad seizures or clusters or status and i never know each time if its permanent or not. ive had Todd's paralysis a lot and i know that one is self resolving, but last time i had status, they never did an MRI and never let me walk on my owm, so i didnt know that one side of my body was halfway dead and it took weeks to clear up. I'll probably end up getting the SMA syndrome side effect if i get a resection since i already have had speed runs of it but i guess it probably clears up well because that area has to be plastic because its movement we're talking about with the topographic organisation

but every time i have to deal with any kind of motor or mobility issues after bad seizures, i always wonder if its permanent, especially when im well aware that they grossly mishandled the status at the hospital—and theyre a level 3 epilepsy center according to the website (they claim theyre level 4 if you ask but the website says theyre level 3)

me realizing that the surgery i really need is at minimum a whole year away because the wait times between the scheduled things that need to happen before surgeries is months

[ribbitflings]

me realizing that the surgery i really need is at minimum a whole year away because the wait times between the scheduled things that need to happen before surgeries is months