#focal seizure

[ribbitflings]

this is going to be the most specific thing, but anyone with migraines or epilepsy experience achromatopsia or monochromacy at any point during the events?

achromatopsia is a documented phenomenon with migraines, but i believe that only pertains to grey monochrome vision and not other monochrome colors

[seasickzig]

Possible Seizures, help needed

Hey guys, I’m currently in a flare with my hypermobile disorder. I am still not diagnosed with EDS yet, even though ive seen five doctors and two physical therapists who all say I have it and that Im the worst case theyve ever seen. However, with this flare I have started to get new symptoms and I need some help. I know this is not a diagnostic tool and I dont plan on using it as such, I really just need support and to know I’m not alone.

The other day, I took a small hike while in a flare. I know I shouldn’t have, but I figured if I just pushed my body harder it would just result in more pain. But on the way back, I started feeling really weird. I felt nauseous and like i was going to pass out. My vision started blacking out and I could barely think. I felt clumsy. By the time I got to the car I could not move or speak at all. I was trying to tell my body to move but it just wouldnt happen. My arm jerked occasionally, and I was in and out of it all the way home. i felt like i couldnt see even with my eyes open, but i do get migraines like that. i barely remember the ride. my boyfriend had to carry me to bed. I was sobbing. I started having really bad muscle spasms and eventually slept it off.

Someone in an EDS discord I’m in said this sounds like a seizure, but I’m not sure. I was partially/fully conscious, and I didnt have any lip smacking or picking/fidgetting symptoms. Ive been having muscle spasms this whole flare, so I don’t think that it was a grand mal or anything. The lack of ability to speak might just be my autism, the loss of the ability to move might have been my physical health condition, it might not have been neurological at all, other than the occular migraine. It also all lasted multiple hours and Im not sure if thats standard for seizure activity, usually its just a few minutes with a lot of fog surrounding it, right?

I am going to talk to a doctor about this TODAY but who says hes even going to do anything? no one else has. idk i just need help and support. if you have EDS and/or seizures please reach out with your experiences. I’m really scared.

[meepsterhotline]

god i wish i could communicate how fucking weird focal seizures are... the full self dissociation AND like deep memory recognition... of like 10 completely unrelated things, moments, images, phrases, sounds... happening all at once... it is so bizarre and just sucks so much ass ;u; *brain sizzling noises

[yourmomwhitediamond]

This is the anon with the seizure request. Thank you for writing that. I'm not even sure sinners would be able to have seizures. But, Rosie is my main comfort character. Do you know people with epilepsy in real life? You described things incredibly well.

I added epilepsy in my will-write section because I have it (: The ones I included were a focal seizure (that's what my nurse said I have. I'm partially present during these and it's a sign that my medication is working as well as the build-up to a larger seizure) and there's tonic-clonic/grand mal (I also have these. This is what people will be most familiar with, the body jerking ones). I don't fully know what I look like during them because I don't watch the recordings, so there may have been a few grey areas.

Thank you for asking x

[cpunkwitch]

so theres a thing my body does thats been happening more and more frequently

and i started debating with myself if it could be some kind of seizure, but since im awake and aware while it happens that didnt seem right and i usually passed it off as just uncontrolable stimming however because its been more frequent and getting worse i looked into it more

i found focal aware seizures are a thing

but ive never been diagnosed with epilepsy nor has anyone in my family that i know of

so im scared and not sure what else it could be nor how else to lookfurther into this

i feel sick again, my nerves are still a wreck lke the other day when i talked about feeling horrile and had issues with my legs, im still shaking and yeah it happened again between 3:30am and 4am-ish

i was laying on my back in bed while it happened, my body jerked forward and my head went back and it happened so suddenly i cut off my own air supply and choked for a second.

very likely this is being brought on my all the stress im under but it still terifies me, i cant sleep, and i have no clue what to do

[thatsuncleharrytoyouyoungman]

and then god said you will have only the most subjective (meaning there is no or little way to actually prove it through like a blood test or smth) physical and mental conditions and symptoms

[flebus]

my gluten free ass requires papadum stat

[melon-fodder]

I really don’t talk about my hx of epilepsy often and when I do I kinda joke about it cause compared to the stuff I’ve seen I feel like I was dealt a good hand considering the syndromes I could have developed

But then there are days like today where I’ve been shitty with my medicine, forgotten to take it for like a handful of days in a row, and I just get fucked with my focal seizures over and over and I am reminded that I do in fact have a disorder and if I keep forgetting, I will sooner rather than later have a big ass tonic-clonic and have to suffer the consequences

[calicoarthropodcrafts]

A little wall art I made this morning. My gold embroidery is regretted but I think it's too late to undo.

I like basing my aesthetic off of my visual focal seizures.

[kazooie]

Important poll that might actually help me with a diagnosis, I've been having seizures and they always start with intense dejavu, like trust me you'd know if it wasn't normal dejavu, but I've never liked dejavu so I'm curious,

[ribbitflings]

does anyone notice they're more prone to seizures when there's storms around

[thecocacolacorporation]

I'm having seizures again so all I feel like I can do is roll on the couch, watch Fantasy High, eat hot chip and lie.

[thestateofardadreaming]

I've volunteered to give a lecture on my country's schooling system to an association that helps refugees integrate.

It's all ready. It's not a big deal : I don't like public speaking but the challenge is good for me and I like to help.

But I had an epiliptic fit this morning and my brain hurts. I'm used to it, I've had it for years... It's just that sometimes my mind sometimes doesn't work well on the day it happens.

I don't want to cancel because I'm OK physically.

But please, pray for me... I really want that presentation to go well. With God's help it will be ok.

[frostryn]

god my life at this point is just Try Not To Have A Seizure Challenge where everyday I wake up optimistic that maybe today will end the chronic migraine (525 days straight!)/accidental injury/shitty bad news streak & then I just get slapped in the face with something worse. how the fuck am I supposed to control being stressed when I live under capitalism & I'm disabled trying to take care of myself. my seizures are stress induced & fuck I try so hard but this world is going to fucking kill me

[the-descolada]

every now and then I remember about the time I went practically unresponsive standing up for nearly an hour at prom while remaining entirely aware. wtf was that

[thatsuncleharrytoyouyoungman]

i know there's the phenomenon of i learnt abt x medical condition n now i feel like im noticing symptoms every where but like what abt the opposite i learnt abt x realized huh wait those ar e symptoms tht i've been having n then nvr happens again lol