#Autoimmune protocol

[onwacollective]

I created this Womb Healing Masterpost a year or so ago. Since then, I’ve continued to grow this list of resources, adding more info as I learn it. Every book, interview, podcast on the list I’ve read or listened to and found useful in my own healing. But I realize all this info can be overwhelming, confusing, and time consuming to get through to create the real change needed to balance your hormones. So, I’ve created cycle syncing wallpaper habit reminders to support women and menstruating individuals in balancing their hormones HERE.

How to use:

These are specifically created for the 80% of women experiencing hormonal imbalance. I’ve designed them to make integrating the information and ancestral wisdom needed to balance hormones easily accessible. Switch each wallpaper background as you transition through each phase of your cycle. Every time you glance at your phone you get a reminder of what to focus on at a specific point in your cycle.

Each wallpaper contains:

🌟 A hormonal phase specific grocery list informed by the Autoimmune protocol (AIP) which means it excludes largely known gut irritants like nuts, seeds, beans, eggs, nightshade vegetables etc.

🌟 A list of herbal teas specific to the needs of each hormonal phase

🌟 A list of self-care practices specific to each hormonal phase

🌟 A journaling prompt

🌟 An affirmation

🌟 Basic overview of the hormonal changes occurring within the body during each phase

🌟 A list of vitamins/minerals to focus on in each phase (grocery list includes foods that contain these vitamins/minerals!)

🌟 Best care practices and tips for each phase

I have a vision of these hanging as posters in schools to teach children about the changes in each cycle. I wanted to make balancing hormones so easy that teenage me could do it. The info on the habit reminders connects to the practices and teachings described in the original tumblr post so if you ever want to dive deeper into a segment of info you can. You can find more info on how to download HERE.

If we let it, womb healing can be a beautiful initiation into feminine power. Be gentle with yourself 💗

[saddie-to-baddie]

January 15, 2023

Before I start my little A.I.P. experiment, I need to be honest about what my starting point is, otherwise I KNOW I'm not going to think there's any progress and quit.

For anyone stumbling across this and cares for a little background info, I have Multiple Sclerosis (Dx 12.2019) and have now been off medication since 11.2022 (thanks to an insurance hiccup/moving) and I'm eager to resume treatments because things have been ROUGH.

But being off meds has reminded me that I can and still need to take steps to keep myself under control as much as I can. So I decided to try out the Anti Inflammatory Protocol elimination diet again. 😅

So here's my baseline check-in:

1. I'm absolutely tired. I'm sleeping like trash, sometimes my own fault (energy drinks, going out, scrolling on the phone) and sometimes I just wake up in the middle of the night and that's it, I'm up. Right now I've been up since 530am after going to sleep around 1am.

Fatigue: 7/10.

Quality of Sleep: 4/10.

2. Physically I don't feel as symptomatic in terms of loss of sensation and balance, but I feel SO bloated all the time, very 'crunchy' and constantly cracking and popping my back, fingers and more often than usual, my left hip. The hip is always unintentional but is loud and takes me by surprise. My skins been a dumpster fire and was breaking out all over, especially jaw/neck (most painful and persistent), back, side and shoulders and especially my hairline.

My left tonsil has been swollen and painful and producing a LOT of tonsil stones, body constantly aches, feet hurt, seems to be a permanent headache at play.

Bloating: 8/10 (Definitely look pregnant, but not very painful).

Pain: 6/10. Only occasionally using ibuprofen.

Weight: 191 lbs /pant size~16

I really am considering tracking body measurements but I feel like I'm going to lose my focus on feeling better if I don't end up losing weight so I'm going to try not to focus on these areas as much. Weightloss would be a welcome side affect of the diet since I've been struggling there, but my overall goal is to find the foods that make me feel so bad.

3. I've been trying to increase my water intake by using teas and Mio to flavor it but I have not really felt any improvement. My mouth is always dry, and I feel like no matter how much I take care of my teeth right now, my breath smells.

Hydration: 4/10

4. My mental health feels like a JOKE. There's not been a lot of time for just me, to be able to breathe. Between work, momming, struggling to square out my medical needs, and just life, I feel like I'm constantly in a state of panic and on the verge of bubbling over. I either cry or shut down completely mentally. Still have to be mom and take care of the dog, and get work done. But I don't even have the energy to stay up after the little one goes to sleep. I'm pretty confident that I'm asleep before she is lately. My patience is soooo thin.

I've been considering trying to get back on antidepressants but the idea of that scares me because I know it's a guessing game until we figure out the right dosage and med. The last time I tried antidepressants certain thoughts were at an all time high so I completely quit cold turkey.

Happiness: 4/10

Anxiety: 6/10

Depression: 7/10

Mental Clarity: 3/10

Ability to Focus/Understand: 4/10

Overall I feel like a trash bag of a person, mentally and physically. I don't feel like me, so let's see how much of that improves. 😬

[autoimmunehn]

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[at-the-sign-of-the-fox-n-phoenix]

I appreciate how angry you are that people are scamming folx.  Your kind heart made my day.  AND!  You are SO RIGHT that some education is needed here! Taking your advice, I used Google and Google Scholar for this research.

WHAT I LEARNED:

1. The fucked up wellness influencers are often, though not always, neofascist girlies (of all genders) trying to get people with chronic medical problems that are UNDER INVESTIGATED & UNDER TREATED to feel appreciated as a recruitment tactic.  It’s a Problem.  And we all know a fascist Loves a GOOD GRIFT.

2.  The stuff that isn’t about vaginas and shit is actually about stuff that is UNDER INVESTIGATED & UNDER TREATED.  3.  Personal note on the subject of GETTING OUTDOORS AND TOUCH THE GRASS:  Most of the consequences of having under investigated and under treated invisible disabilities like the various types of arthritis, fibromyalgia, chronic fatigue, and many others limit how much and what kind of outside time you can do.  How much gardening you can do, for example.  I am in CONSTANT pain that varies in intensity.  My hands sometimes stop working altogether.  Me trying to prune a bush in my garden is not practical.  Me trying to weed my garden, or harvest there isn’t always something I can do.  This year, I couldn’t harvest my radishes in time due to a pain flare, so now i have the most BEAUTIFUL radish flowers!  Enjoying them, too.  So pretty!  So yeah, many of us who need some of the things on your list of scams the wellness influencers were making up really do feel very disconnected from Earth BECAUSE OF OUR INVISIBLE DISABILITIES. 

4.  NOW TO THE GOOGLE LINKS! 4a.  AIP is the AutoImmune Protocol used to identify what is making someone with an autoimmune illness unwell and here is what the CLEVELAND CLINIC (not a ‘fraudster’) says about it. https://health.clevelandclinic.org/aip-diet-autoimmune-protocol-diet/ Autoimmune diseases are horrible and most people tell people who have them that we just want ATTENTION.  No, we just don’t want to die because our body think our body is THE ENEMY.  Quite often the result is INFLAMMATION and CHRONIC PAIN which varies in intensity and location in the body.

4b.  The MAYO CLINIC’s thoughts on those annoying gluten free people (i’m one of them, alas!): https://www.mayoclinic.org/diseases-conditions/celiac-disease/symptoms-causes/syc-20352220

4c.  There is clearly some debate among medical researchers about how valid the nightshade allergy might be as an across the board thing: (apologies, that these are behind paywalls)

https://link.springer.com/article/10.1007/s10620-023-07955-9 https://link.springer.com/chapter/10.1007/978-3-030-88473-4_3 4d.  LINK TO THE TOMATO ALLERGY SEARCH I JUST DID ON GOOGLE SCHOLAR:  https://scholar.google.com/scholar?hl=en&as_sdt=0%2C48&q=tomato+allergy&btnG= apparently some people WILL die of eating a tomato, trust me I was surprised, too. 4e.  LINK TO THE DIETARY TRIGGER NIGHTSHADE VEGETABLES SEARCH I JUST DID ON GOOGLE SCHOLAR:  https://scholar.google.com/scholar?hl=en&as_sdt=0%2C48&q=dietary+trigger+nightshade+vegetables&oq=NIGHTSHADE+VEGETABLE

and nightshades seem to be causing inflammation issues all over the place which is one of the hallmarks of many autoimmune disorders.

5.  ON THE VAG NONSENSE - You’re right that stuff is a scam and it can make your body unhappy if you use them. 

6.  In case you want reliable, experiment and research based understandings of herbs as used in Germany - you can read:  https://shop.elsevier.com/books/the-complete-german-commission-e-monographs/blumenthal/978-0-9655555-0-0

which is THE COMPLETE GERMAN COMMISSION E MONOGRAPHS.  This book relates all the science done on each of 300 herbs commonly used by German herbalists.  Helpful.  Very science.  Much research.  COOL.  7.  LINK TO THE GOOGLE SCHOLAR SEARCH FOR ‘AMERICAN HERBAL MEDICINE RESEARCH’  https://scholar.google.com/scholar?as_ylo=2022&q=american+herbal+medicine+research&hl=en&as_sdt=0,48 8.  FINAL THOUGHTS Hope that helps everybody understand some of the stuff that is REAL that is still being researched and discussed and debated by actual medical experts and researchers.  

I know and deeply appreciate that you didn’t intend to throw disabled people without proper access to doctors who give a shit under the bus.  

Those of us with these oddball autoimmune diseases are overwhelmingly not taken seriously by doctors.  We are objects of intense interest to RESEARCH SCIENTISTS, so if we catch one of THAT SORT’s EYE we are guinea pigs.  

We spend a lot of time on Google Scholar finding everything to do with our WTF is wrong now experiences and then we bring that full ass note book to the doctor, who says 'oh you really want attention don’t you’ and how he knows best and won’t even talk to the authors of the study to see if your situation and the ones they’re investigating are a match.  It’s horrid and common.  ESP FOR WOMEN, and even more so for women of color.  

The wellness industry sprung up at first to serve those of us that the medical people generally don’t take seriously.  And then it morphed into a money grab by icky sorts.  Nothing more horrifying than watching people trying to heal while enduring medical neglect get coopted into weird toxic delusional shit.

i hate you alternative wellness natural chemical free vegan non-GMO herbal intuitive whole foods healing raw high vibrational plant based cleanse gluten free superfood supplement blend bullshit!!!! You're not healthier and more balanced and connected to the Earth because your smoothies are full of unidentifiable green and brown powders you got from a subscription box to ✨URTH-CRUNCH VAGINAL ENLIGHTENMENT✨!!!!!!!!!!!!!!!!!!

[sage-a-licious]

Okay, this is a weird thing I want to tell someone. I think since I changed my diet I have way less body odor? What was making me smell so bad before? I have a suspicion it’s bread but it could be anything. Dairy? How strange.

[namegoesup]

i made a dairy free gluten free garlic herb sauce the other day and it was fucking disgusting thanks

[dante-vc]

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[walterstotch]

Autoimmune Protocol Waffles Cassava Flour

[omg-erika]

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[mooredanxieties]

Chinese Herbal Silkie Chicken Soup

A popular immune-boosting elixir

Most often, a main ingredient of this soup is the Chinese Yam, a recommendation substitute for potatoes (a Nightshade vegetable) for those with autoimmune disorders because of its anti-inflammatory properties

Hannibal notably left out this ingredient in the soup he gave Will.

Treatments for Anti-NMDA Receptor Encephalitis:

Immunomodulatory/immunosuppressive therapies

Anti-seizure medication

Autoimmune Protocol Diet (AIP): a diet tailored to reduce inflammation, pain, and other symptoms caused by autoimmune diseases

Of the 5 ingredients Hannibal listed, 4 of them are potentially harmful for those with autoimmune disorders:

Wolf berries ("Goji Berries") - A 'Nightshade Vegetable', recommended to avoid if you have an autoimmune disorder

Red Dates ("Chinese Dates" or "Jujube") - The extract has been found to interact with some seizure medications

Ginseng ("Ginseng Root") - Studies have shown it can boost the immune system and exacerbate autoimmune diseases at the same time

Star Anise - Recommended against, according to the official AIP diet for people with autoimmune conditions

Hannibal enjoys creating situations where Will feels compelled to seek comfort (whether physical or emotional) from him, because he enjoys when Will needs him. He enjoys providing Will comfort, and he feels no guilt causing Will to need that comfort.

His actions are always multifaceted.

Giving Will a comfort food that often holds friendly/familial/romantic connotations and ALSO causes Will to be more dependent on him is a 'killing two birds with one stone' plan.

Sweet and cruel in equal measure

[ohtobeleah]

Sooooo I’ve been processing everything that was discussed yesterday and with tired eyes and heavy soul, I share my latest update.

Yesterday I had a Colposcopy with a biopsy on my Cervix. I wasn’t expecting that to be done, and talk about ouch 🤕 We went over my last few ultrasounds and there's definitely a pattern on large cysts that grow in relation to my cycle. Typically. When cysts form, that are a natural part of the cycle and grow and shrink without compromising the ovaries.

Unfortunately for me, there has been some significant scaring and minor blood loss to my right ovary. Hopthis can be counted with a short stint of hormonal replacements. (birth control)

With my pain, symptoms and now unusual cycle, the preliminary diagnosis of endometriosis has been reached. The only way to really confirm this will be with a laparoscopy to remove some of the tissue that is growing outside of where it should be. We’re going to wait for the results of the biopsy to return before we book in the surgery.

I’ll have to see a pelvic floor physiotherapist to helpful reverse some damage that’s been done since January from the constant cramps, so that should be fun.

All in all, a very heavy day. I’ll be stepping back from coaching and personal training in about 6-8 weeks. I recognise that changing my career is a huge step and change, but I can’t keep up with the changes my body has made over the last year.

I’ll be starting the AIP, “The Autoimmune Protocol” in about 1-2 weeks to cut out any inflammatory foods that are aggravating my symptoms. I’m 1 week off caffeine all together (including my beloved sugar free redbulls -rip) and have only noticed a decrease in energy at 5am.

[saddie-to-baddie]

Week 1 Game Plan.

This week I'm focusing on better planning my lunches for work and cutting out a few major offenders in my diet.

My current home situation doesn't really provide me with much control over what's for dinner. I know I can always make my own on the side but I want to get there gradually and not overwhelm myself. So instead I'm babystepping into this, and I may not end up getting fully AIP compliant but I'm going to try my best to give myself the biggest chance of healing.

Here's the goals:

1. WATER 💧 : Drink at least 2 bottles of water each day this week. I'm not counting sparkling water in this but it is allowed for now while I'm cutting out soda.

2. Pack a lunch every day for work, and compliant snacks. Only 4 days this week. Today is Monday so I'll be making myself a ton of Chicken Salad. Snacks I haven't decided on but I very well may just pack extra chicken and snack on that.

3. Avoid the list below as much as possible. If I mess up I am not allowed to use "I'll start again tomorrow" as an excuse to go wild for the rest of the day.

4. Take all of my work breaks and take a walk during them.

Here's what I'm avoiding (for now):

1. Dairy 🐄

2. Coffee ☕️

3. Bread 🍞

4. Spicy Stuff 😭 This is going to be the hardest, but it's proven to be a big contributor to my aches and pains.

5. Soda/Energy Drinks 🥤

6. Alcohol. 🍷 This is probably going to be the easiest to start off, but hard to maintain.

7. Candy 🍬 I've become a major candy snacker at work recently and I really need to plan ahead for something to replace these impulse grabs.

It feels like sooo much listed out, but I’m actually feeling pretty confident about it.

[autoimmunehn]

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[chicago-geniza]

Watched a documentary on "temple food" and realized it naturally meets the criteria for both low FODMAP and modified autoimmune protocol diets. Once my GP flare calms down I will use its ingredients and principles to guide my cooking this year. And probably do a lot of grocery shopping at H-Mart

[sage-a-licious]

It’s very fortuitous that I chose this time of year to start AIP because Trader Joe’s is releasing all their fall stuff and those are the veggies I can eat!

[nymphfette]

btw- I’ve been doing better with my health 💖 autoimmune issues/thyroid issues and pcos all made extremely worse by stress- ptsd and also the other way around. Just a vicious cycle I was in. Still am in but have made a lot of progress since I was first dealing with absolute daily hell that started about a year or so ago.

Oh and I was also diagnosed with agoraphobia. Ive had PTSD for a few years now but the recent health issues obviously made it worse and so I developed agoraphobia :))))) it got so bad, I would barely leave my house (my safe safe) for longer than an HOUR at time, once a day. Couldn’t be on a car ride for longer than 10 minutes without freaking out, hyperventilating, heart beating out of my chest, sweating my ass off and sometimes puking my guts out. I was terrified to get in a car and if I had to go somewhere that I knew was a long car ride (10 mins or more) id have such a hard time. And there were times were I’d be doing alright on a longer ride, like 30 mins and I’d think I was like 20 mins in and there was only 10 more minutes I had to go and I’d look at google maps and see there was 15 minutes instead of 10 minutes…..I’d genuinely lose it. Over 5 extra minutes. Genuinely freak out. It was hell. It was no way to live.

I still am struggling with it but I’ve been trying really hard to get better. Health wise- I have a lot of it under control. I barely have flare up attacks anymore. My hypothyroidism is in check. My pcos symptoms are still a bit haywire but I’m working on that, the priority was the autoimmune and thyroid and the just constant inflammation all over. Everywhere. My wbc is only about 1000 over normal right now which is Iike nothing compared to what it was and is a huge improvement. Medications and supplements I’m on have been a big help along with the autoimmune protocol diet- it’s a VERY strict diet and I did it for a few months and once it helped get things in check, I was able to slowly introduce a more “normal” diet into my life but still keeping away from gluten and added sugars, too much starch and too much dairy.

So yeah my health health has gotten a lot better and I’ll continue to work on it keep it that way. My mental health is better as well- like, now I can go out for like 3 hours a day without losing my mind and can do like 30 minute car rides before I start to have bad panic attacks and agoraphobia attacks. I know that still sounds bad but compared to what it was…… barely could do 10 mins…. 5 mins being the preferred… it’s a huge improvement. Still have bad PTSD/Agoraphobia attacks here and there and My autistic burnout and sensory issues and then like general anxiety is still very high but again, it has been improved and I’m continuing to work on it.

I’ve been given the okay to go back to work but work from home job like I’ve done before. I can’t work outside my home right now without putting all the exposure therapy and DBT and work and etc etc at risk, I’m not ready for that yet, and I agree with my dr. That will come in time.

SO, the past month I’ve been looking for remote/work from home positions and man, I’ve been having a rough time, and before had health issues and stuff and was off work and stuff a year or so ago, I had lots and lots of experience and my resume for the telehealth and benefits customer support field is great. I know I’m a great candidate, have great references and I never ever had an issue finding a job before, let alone getting an interview. I know the past few months I’ve been hearing ppl in my country Canada especially talk about how hard it is to get a job right now and man, they weren’t kidding were they?

It sucks I have a limit on what I can do right now…..and I really want to get back to work not only to help myself and get back into a normal life and routine but also bc financially, the income I receive through disability literally covers my BASE BASE BASE needs and that’s it, and I mean that’s fucking it. Of course im thankful I have that bc when I was waiting for it when I first got really sick, that was not easy. That was hell but it would be nice to have a LITTLE bit of pocket money to be able to buy a couple things for myself now and then, you know? I can’t even get my skincare products for my skincare routine I’ve had for years and years anymore :((( & they weren’t crazy expensive products lmao. All of the products in the routine probably totalled like hmm MAX $80 and I’d only need to replace them like every 3 months??? So yeah lol. & also, it’s fall now and I need a new fall coat and I can’t even go to the thrift store and get like a $30 peacoat (which is what I want lol- I love my peacoats) SO YEAH, I WANT A JOB AGAIN!!! & working in the contact center field for telehealth or benefits, was a decent job. Perfectly suited to my needs and even more so now, so yeah- I hope I’ll be hearing back from someone soon!!!