#autoimmune protocol diet

[sage-a-licious]

Okay, this is a weird thing I want to tell someone. I think since I changed my diet I have way less body odor? What was making me smell so bad before? I have a suspicion it’s bread but it could be anything. Dairy? How strange.

[saddie-to-baddie]

January 15, 2023

Before I start my little A.I.P. experiment, I need to be honest about what my starting point is, otherwise I KNOW I'm not going to think there's any progress and quit.

For anyone stumbling across this and cares for a little background info, I have Multiple Sclerosis (Dx 12.2019) and have now been off medication since 11.2022 (thanks to an insurance hiccup/moving) and I'm eager to resume treatments because things have been ROUGH.

But being off meds has reminded me that I can and still need to take steps to keep myself under control as much as I can. So I decided to try out the Anti Inflammatory Protocol elimination diet again. 😅

So here's my baseline check-in:

1. I'm absolutely tired. I'm sleeping like trash, sometimes my own fault (energy drinks, going out, scrolling on the phone) and sometimes I just wake up in the middle of the night and that's it, I'm up. Right now I've been up since 530am after going to sleep around 1am.

Fatigue: 7/10.

Quality of Sleep: 4/10.

2. Physically I don't feel as symptomatic in terms of loss of sensation and balance, but I feel SO bloated all the time, very 'crunchy' and constantly cracking and popping my back, fingers and more often than usual, my left hip. The hip is always unintentional but is loud and takes me by surprise. My skins been a dumpster fire and was breaking out all over, especially jaw/neck (most painful and persistent), back, side and shoulders and especially my hairline.

My left tonsil has been swollen and painful and producing a LOT of tonsil stones, body constantly aches, feet hurt, seems to be a permanent headache at play.

Bloating: 8/10 (Definitely look pregnant, but not very painful).

Pain: 6/10. Only occasionally using ibuprofen.

Weight: 191 lbs /pant size~16

I really am considering tracking body measurements but I feel like I'm going to lose my focus on feeling better if I don't end up losing weight so I'm going to try not to focus on these areas as much. Weightloss would be a welcome side affect of the diet since I've been struggling there, but my overall goal is to find the foods that make me feel so bad.

3. I've been trying to increase my water intake by using teas and Mio to flavor it but I have not really felt any improvement. My mouth is always dry, and I feel like no matter how much I take care of my teeth right now, my breath smells.

Hydration: 4/10

4. My mental health feels like a JOKE. There's not been a lot of time for just me, to be able to breathe. Between work, momming, struggling to square out my medical needs, and just life, I feel like I'm constantly in a state of panic and on the verge of bubbling over. I either cry or shut down completely mentally. Still have to be mom and take care of the dog, and get work done. But I don't even have the energy to stay up after the little one goes to sleep. I'm pretty confident that I'm asleep before she is lately. My patience is soooo thin.

I've been considering trying to get back on antidepressants but the idea of that scares me because I know it's a guessing game until we figure out the right dosage and med. The last time I tried antidepressants certain thoughts were at an all time high so I completely quit cold turkey.

Happiness: 4/10

Anxiety: 6/10

Depression: 7/10

Mental Clarity: 3/10

Ability to Focus/Understand: 4/10

Overall I feel like a trash bag of a person, mentally and physically. I don't feel like me, so let's see how much of that improves. 😬

[autoimmunehn]

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[mooredanxieties]

Chinese Herbal Silkie Chicken Soup

A popular immune-boosting elixir

Most often, a main ingredient of this soup is the Chinese Yam, a recommendation substitute for potatoes (a Nightshade vegetable) for those with autoimmune disorders because of its anti-inflammatory properties

Hannibal notably left out this ingredient in the soup he gave Will.

Treatments for Anti-NMDA Receptor Encephalitis:

Immunomodulatory/immunosuppressive therapies

Anti-seizure medication

Autoimmune Protocol Diet (AIP): a diet tailored to reduce inflammation, pain, and other symptoms caused by autoimmune diseases

Of the 5 ingredients Hannibal listed, 4 of them are potentially harmful for those with autoimmune disorders:

Wolf berries ("Goji Berries") - A 'Nightshade Vegetable', recommended to avoid if you have an autoimmune disorder

Red Dates ("Chinese Dates" or "Jujube") - The extract has been found to interact with some seizure medications

Ginseng ("Ginseng Root") - Studies have shown it can boost the immune system and exacerbate autoimmune diseases at the same time

Star Anise - Recommended against, according to the official AIP diet for people with autoimmune conditions

Hannibal enjoys creating situations where Will feels compelled to seek comfort (whether physical or emotional) from him, because he enjoys when Will needs him. He enjoys providing Will comfort, and he feels no guilt causing Will to need that comfort.

His actions are always multifaceted.

Giving Will a comfort food that often holds friendly/familial/romantic connotations and ALSO causes Will to be more dependent on him is a 'killing two birds with one stone' plan.

Sweet and cruel in equal measure

[chicago-geniza]

Watched a documentary on "temple food" and realized it naturally meets the criteria for both low FODMAP and modified autoimmune protocol diets. Once my GP flare calms down I will use its ingredients and principles to guide my cooking this year. And probably do a lot of grocery shopping at H-Mart

[nymphfette]

btw- I’ve been doing better with my health 💖 autoimmune issues/thyroid issues and pcos all made extremely worse by stress- ptsd and also the other way around. Just a vicious cycle I was in. Still am in but have made a lot of progress since I was first dealing with absolute daily hell that started about a year or so ago.

Oh and I was also diagnosed with agoraphobia. Ive had PTSD for a few years now but the recent health issues obviously made it worse and so I developed agoraphobia :))))) it got so bad, I would barely leave my house (my safe safe) for longer than an HOUR at time, once a day. Couldn’t be on a car ride for longer than 10 minutes without freaking out, hyperventilating, heart beating out of my chest, sweating my ass off and sometimes puking my guts out. I was terrified to get in a car and if I had to go somewhere that I knew was a long car ride (10 mins or more) id have such a hard time. And there were times were I’d be doing alright on a longer ride, like 30 mins and I’d think I was like 20 mins in and there was only 10 more minutes I had to go and I’d look at google maps and see there was 15 minutes instead of 10 minutes…..I’d genuinely lose it. Over 5 extra minutes. Genuinely freak out. It was hell. It was no way to live.

I still am struggling with it but I’ve been trying really hard to get better. Health wise- I have a lot of it under control. I barely have flare up attacks anymore. My hypothyroidism is in check. My pcos symptoms are still a bit haywire but I’m working on that, the priority was the autoimmune and thyroid and the just constant inflammation all over. Everywhere. My wbc is only about 1000 over normal right now which is Iike nothing compared to what it was and is a huge improvement. Medications and supplements I’m on have been a big help along with the autoimmune protocol diet- it’s a VERY strict diet and I did it for a few months and once it helped get things in check, I was able to slowly introduce a more “normal” diet into my life but still keeping away from gluten and added sugars, too much starch and too much dairy.

So yeah my health health has gotten a lot better and I’ll continue to work on it keep it that way. My mental health is better as well- like, now I can go out for like 3 hours a day without losing my mind and can do like 30 minute car rides before I start to have bad panic attacks and agoraphobia attacks. I know that still sounds bad but compared to what it was…… barely could do 10 mins…. 5 mins being the preferred… it’s a huge improvement. Still have bad PTSD/Agoraphobia attacks here and there and My autistic burnout and sensory issues and then like general anxiety is still very high but again, it has been improved and I’m continuing to work on it.

I’ve been given the okay to go back to work but work from home job like I’ve done before. I can’t work outside my home right now without putting all the exposure therapy and DBT and work and etc etc at risk, I’m not ready for that yet, and I agree with my dr. That will come in time.

SO, the past month I’ve been looking for remote/work from home positions and man, I’ve been having a rough time, and before had health issues and stuff and was off work and stuff a year or so ago, I had lots and lots of experience and my resume for the telehealth and benefits customer support field is great. I know I’m a great candidate, have great references and I never ever had an issue finding a job before, let alone getting an interview. I know the past few months I’ve been hearing ppl in my country Canada especially talk about how hard it is to get a job right now and man, they weren’t kidding were they?

It sucks I have a limit on what I can do right now…..and I really want to get back to work not only to help myself and get back into a normal life and routine but also bc financially, the income I receive through disability literally covers my BASE BASE BASE needs and that’s it, and I mean that’s fucking it. Of course im thankful I have that bc when I was waiting for it when I first got really sick, that was not easy. That was hell but it would be nice to have a LITTLE bit of pocket money to be able to buy a couple things for myself now and then, you know? I can’t even get my skincare products for my skincare routine I’ve had for years and years anymore :((( & they weren’t crazy expensive products lmao. All of the products in the routine probably totalled like hmm MAX $80 and I’d only need to replace them like every 3 months??? So yeah lol. & also, it’s fall now and I need a new fall coat and I can’t even go to the thrift store and get like a $30 peacoat (which is what I want lol- I love my peacoats) SO YEAH, I WANT A JOB AGAIN!!! & working in the contact center field for telehealth or benefits, was a decent job. Perfectly suited to my needs and even more so now, so yeah- I hope I’ll be hearing back from someone soon!!!

[meariluna]

I really wish I wouldn’t get told that a decision I make is wrong due to common beliefs that have not been deeply researched.

I recently went on a mostly fruit diet with no animal products because I want to heal my rosacea, which I discovered is linked to many autoimmune diseases, one of the most prevalent in my family is type 2 diabetes.

Upon doing research about skin problems and why they manifest, I came across information about the kidneys and poor filtration through the liver which leads to waste being taken out on the skin if your organs are not working together to remove the waste normally.

I did my research to understand what could work to finally heal my rosacea since it is so deeply misunderstood and judged. All my life I’ve been criticized because of it until I got older and stopped caring so much. But more than just aesthetic purposes, I want to heal my body from the inside out and it causes so much anger for me at times when I open up about these choices I’m making to better myself and I get told I’m not consuming enough protein or that I need to eat meat or eggs or whatever it may be that common media shares.

Our biology closely resembles frugivores, not carnivores. The only way we “safely” consume meat and animal products is by cooking, pasteurizing, or doing some sort of process to make it edible. That, to me, doesn’t make any sense. We get told to eat fruits and vegetables when we’re sick because they heal so wouldn’t it make sense to consume food we know to be healing most of the time?

How can we use it as medicine and then turn around and say “oh you can’t eat too much fruit because of the sugar” as if simple fruit sugar is equivalent to processed refined sugar… also, all our cells need sugar. Our body runs on glucose… which is sugar. Literally everything we consume gets transformed into glucose. Insulin gets released into the bloodstream to help transport glucose to our organs so we have energy and can function. So even foods that are low in sugar get turned into glucose… which again, is sugar. Processed sugar, like any processed food, is bad for you. It is not the same as eating raw fruit - the food the Earth created for us to consume. (Is it really that surprising that the food we can naturally consume is the most healing food for us? It’s almost as if our biology, which resembles frugivores in nature, is made for the consumptions of fruits. Amazing.)

This whole idea that protein is everything was not emphasized until the last 1000 years or so. Protein was not emphasized as the most important source of sustenance for all time. Fruits and vegetables were. There are entire cultures that thrive off of fruits and vegetables and do not struggle with the same level of disease as we do.

It’s so annoying that veganism or any sort of diet with a strong focus on fruits and vegetables gets criticized so much. I’m not pushing my choices on anyone and I wish their choices didn’t get pushed on me, especially coming from people who are currently struggling with health issues and are trying multiple protocols that are not working. It doesn’t make sense to take advice from someone else who is trying to figure it out and is not succeeding yet I’m being criticized personally for taking advice from sources who have healed themselves and others.

No one will know my body better than me. I have tried to get assistance from doctors and dermatologists. None of them have helped. Some have even made things worse by giving me medications that suppressed my symptoms for a few weeks only for them to come back stronger and then I got prescribed a more intense medication with tons of side effects. If I cannot trust in myself and intuitively listen to my body, then I will never heal. My body is my own. My choices are my own. Feel free to judge them when I am not around but keep your negativity to yourself. I’ve only being doing this for two days and I feel so much better, my digestion is better, and my rosacea is not flaring up. That cannot be a coincidence. Please stop listening to mass media and do your own research to heal your body and mind.

[thenarrativefoil]

us food production diet culture ramble ahead

being so disconnected from how our food is made is harmful to us.

it results in a lot of pseudoscience diet culture, from people trying to troubleshoot health problems to people trying to make a buck off your insecurities.

GMOs, keto, processed foods, whole foods, artificial, organic: hot button words that get people defensive and argumentive without really picking through the context.

GMOs aren't inherently harmful; but the way our food is processed and 'fortified' can be. Keto diets are just autoimmune protocol diets repackaged for the insecure individualism crowd.

Whole foods aren't inherently better, and can be even more harmful than processed foods. The way we try and talk about food is so reductive and inaccurate. I know my understanding of it is so bare bones, born of scrambling to escape pain.

The way we measure nutrition is inaccurate. The way we test for nutrient absorption is limited. For all that we understand there's a million fucking ways we don't.

I guess I'm just tired of hearing from people acting like they understand exactly how to be healthy, when it's likely they've just been lucky and haven't gotten sick yet.

The animals we raise for meat are sick; the plants we raise for food are sick; it's no wonder that we get sick from eating them. There's only so much an individual can do to try and eat foods raised in healthier environments. It's expensive. It's labor intensive. I'm probably never going to be able to go back to eating like I used to: store bought red meat and fortified grains, vegetables grown out of season.

We need government controls, we need to legislate environmental stewardship into our food production. the roll back on FDA regulations will kill us slowly and quickly. We can't work if we can't eat.

no happy upswing at the end of this one. context is I've spent the last 8 hours trying to keep my guts inside my body bc I ate the wrong thing. anyway now I'm gonna look up FDA jobs.

[severeprincesheep]

This guy's story has really stuck in my head, partly because we share so many of the same symptoms, but also because of his shocking experience with a doctor.

He suffered from an anal fistula and other colon problems like that. His doctor told him it was essentially an incurable disease, where the solution isn't really a solution as much as just swapping the problem you have for another problem that is slightly more tolerable to live with, albeit still a nightmare: you have multiple surgeries and lose your bowel function and have to wear an ostomy for the rest of your life. All of this is super expensive, too.

He thought he might as well do a carnivore diet during the weeks leading up to the surgery and all his symptoms cleared up completely. His doctor had him do an MRI that confirmed he was totally normal.

Then he received a call from his doctor's receptionist cancelling their appointment because he didn't need surgery anymore; and telling him that from now on he should just check with his GP.

Any doctor that has dedicated his life to doing the best he can for patients with this condition would be very intrigued with someone who managed to cure himself through a simple diet. He would be looking into that protocol and testing it on his patients. My conclusion is that his lack of curiosity is due to him already knowing very well that the carnivore diet heals this supposedly incurable disease, and that he doesn't want to heal his patients but rather just to exploit them.

This guy says something very much along those lines, namely that he realized at that moment that he and other patients are nothing more than cash cows for these people (doctors).

This is the reality we live in. If you want to save yourself from going through a similar experience you must eat a carnivore diet.

Bellow I wrote the transcript of this part of the interview, about 15 minutes in, where he describes how the autoimmunity that runs in his family manifested itself in his case:

Pete: For me it seems to have manifested in gut issues, which I've only really become aware of in the last year when I've looked at help from a doctor for that. (…) I do suffer from gut inflammation that leads to further side effects (…) the growth of abcesses and boils down in that area; which themselves lead to further complications that led to a pretty severe case of anal fistula.

I'm not sure if your viewers are aware of that condition, you can look it up on Google but it's a terrible condition where the body forms its own tracks to the bowel. So basically these internal tracks form around the bowel opening and they're incurable by all medical accounts. Surgery is the only answer. (…)

I got very tired of having to suffer with the pain and the flareups involved in this condition (…) I'll say that was also part of the motivation to try carnivore, because of the healing experience that I heard other people go through. (…)

The flareups got bad enough for me to see a surgeon this year who diagnosed me with pretty much the most serious condition that this can be, a complex transin teral fistula, where the track actually crosses the bowel. So there's a very slim chance of this surgery even being successful and there's a high probability of losing bowel function and (…) wearing an ostomy for the rest of my life and that was motivation enough to go 'I need to do something here' (…)

So I had this terrible diagnosis, he even said to me 'I'm sending you off for an MRI here, I normally don't send my patients off for MRIs but yours is so severe that we're going to have to get an MRI" which I dutifully did and it wasn't cheap. I got the MRI, waited a month with a lot of anxiety during that month, thinking of the worst, imagining the field surgeries. I had an appointment due with him and I got a call from his receptionist saying 'The doctor doesn't want to see you, everything is normal, just go ahead and see your GP for management from now on'.

And I almost dropped the phone, because (…) it was great news but it's like 'Hang on, I have a serious medical condition here, how can you build me up like that and then f it off in a phone call from your receptionist?

It really hit me hard. I was shocked.

Dave: That seems like a very kind of blasé way of - I mean, it's great news, but a very kind of 'Okay, go away now' kind of attitude, right?

Pete: It was shocking. This condition, anyone else that may have experienced it knows that there are usually multiple surgeries required to fix the situation. It's hard to heal in an area like the bowel for obvious reasons. It's just not a sterile place, it doesn't heal very well. I don't want to get too pessimistic or skeptical here but people with this condition are basically money printing machines to these surgeons because they know that it's going to take multiple hits under the knife to get it fixed and each surgery is upwards of 8.000 dollars. His main concern was my private health situation. He was still mid examination and he was bringing up private health status. You're a walking dollar sign to these people.

I'm sorry if I'm offending anyone in the medical field here but that's how I feel. As soon as you're not a commodity you're out the door."

[cumaeansibyl]

health and diet (not weight loss) stuff under cut. tl;dr I'm chronically ill now?

around about the time of the panini I started having a lot of fatigue and muscle soreness, and I thought to myself well, I've gotten quite sedentary and I'm stressed the hell out about everything all the time, that's probably what it is

I had a history of mild hypothyroidism but it seemed to have resolved itself around 2013, so I mentioned this to my doctor and she put thyroid testing in all my labs since then, but it was showing up as "subclinical" -- basically one number was normal and the other was high, which is not generally thought to produce symptoms

so I sought allergy testing and shots as another possibility (and learned I'm allergic to cats, lol) and I'm sure that's not not helping, like, I do feel somewhat less stuffy overall, but the fatigue persists

at my last regular blood test I finally hit the hypothyroidism threshold so they prescribed me some medication and also some more detailed followup testing after a month. which found that the medication was working but also that I have incredibly high levels of thyroid enzyme antibodies. which indicates that it's autoimmune (aka Hashimoto's) and also that, even with my thyroid producing the correct amount of things, my immune system is still attacking me. which quite neatly explains the fatigue and muscle soreness that's still persisting! (and also possibly the mild elevation in white blood cells that's been persistent in other tests)

so! Doc says she's seen this in other autoimmune thyroid patients, where the medication gives some relief to the primary symptoms, but there remains this other problem. And her first recommendation is an elimination diet to test the response to three common inflammatory foods: dairy, gluten, and refined sugar. So that's my next 3-6 months spoken for.

now if I'm honest I see a lot of that "inflammatory foods" business from the same kind of people who think the body's full of "toxins" requiring fancy expensive laxative potions to sluice out -- and also I'm sure that like, refined sugar isn't providing any health benefits, but I'm skeptical about the actual chemical differences between that and the "unrefined" stuff (yes I know there are many different sugars but how much difference does it reeeeaaaaallly make once it's in the body)

but as far as I know there's no like. antibody chelation protocols or whatever. so I have to give this a try because if it doesn't do anything then at least we know. I'm not super thrilled about having to go into "good foods vs bad foods" mode, which tends to take me into dark places pretty quickly, but I am hoping to focus more on "these are the good things I can eat lots of" instead of the alternative.

anyway this is requiring some cognitive reframing from "these are real symptoms but it's mainly stress and poor lifestyle choices" to "oh actually I'm sick and have been for some time" which, on the one hand it's incredibly affirming when your doctor says "yes, you do feel terrible and there's a reason!" but on the other hand, whew, that's a lot to take in actually.

(we won't talk about the times when i told myself "this is just how people feel and you're a whiny bastard for not handling it better" because I was mostly sure people don't just feel this bad all the time.)

anyway I only have to go dairy-free first, then take out gluten, and sugar goes last, so that shouldn't be bad -- Charles is lactose intolerant so we've already switched over to some non-dairy options. And I can sort of gradually phase out gluten-containing products as I use up the last of them. Anyone got any pasta recs? That's probably gonna be the heaviest lift for me.

[sage-a-licious]

It’s very fortuitous that I chose this time of year to start AIP because Trader Joe’s is releasing all their fall stuff and those are the veggies I can eat!

[saddie-to-baddie]

Week 1 Game Plan.

This week I'm focusing on better planning my lunches for work and cutting out a few major offenders in my diet.

My current home situation doesn't really provide me with much control over what's for dinner. I know I can always make my own on the side but I want to get there gradually and not overwhelm myself. So instead I'm babystepping into this, and I may not end up getting fully AIP compliant but I'm going to try my best to give myself the biggest chance of healing.

Here's the goals:

1. WATER 💧 : Drink at least 2 bottles of water each day this week. I'm not counting sparkling water in this but it is allowed for now while I'm cutting out soda.

2. Pack a lunch every day for work, and compliant snacks. Only 4 days this week. Today is Monday so I'll be making myself a ton of Chicken Salad. Snacks I haven't decided on but I very well may just pack extra chicken and snack on that.

3. Avoid the list below as much as possible. If I mess up I am not allowed to use "I'll start again tomorrow" as an excuse to go wild for the rest of the day.

4. Take all of my work breaks and take a walk during them.

Here's what I'm avoiding (for now):

1. Dairy 🐄

2. Coffee ☕️

3. Bread 🍞

4. Spicy Stuff 😭 This is going to be the hardest, but it's proven to be a big contributor to my aches and pains.

5. Soda/Energy Drinks 🥤

6. Alcohol. 🍷 This is probably going to be the easiest to start off, but hard to maintain.

7. Candy 🍬 I've become a major candy snacker at work recently and I really need to plan ahead for something to replace these impulse grabs.

It feels like sooo much listed out, but I’m actually feeling pretty confident about it.

[autoimmunehn]

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[winteragain]

Still talking to fitness bro about fasting and dieting. Although I don’t want him to know I’m trying to lose weight, just feels embarrassing. Ya know. I’ve only discussed certain strict protocol and five day water fasts I’ve done to heal my autoimmune disease.

Most people I know IRL outside my family are like super negative about diet & fasting talk, so convos like these are refreshing. Waiting for him to give me the deets on what his super strict days look like. I wonder if he’d be horrified if I told him what my usual diet looks like lol. I sent him a picture of this 120 cal lavash bread pizza I made and was just like “lol salad on lavash bread- most depressing pizza ever” and he agreed it was depressing. All my meals are depressing lol-

[what-marsha-eats]

Traditional Hanukkah food with a Caribbean twist.

Gluten free. Vegan friendly. AIP (Autoimmune-Protocol-diet friendly.)

[ivdripuk]

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