#remission for chronic fatigue and pain
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Had to leave school early again because the pain was making me nauseous, and I couldn't focus, and I was struggling to stand for more than like 30 seconds. I hate this. I missed a cool assembly because of this. I missed my favorite class because of this. I'm so tired.
#and no doctors believe me#or they just blame it on my arthritis#which has been in remission for OVER 4 YEARS#like jesus fuck its not that hard to evaluate me and figure it out#my rheumatologist wont even put fibromyalgia on my chart but keeps increased BMI on there#chronic illness#chronic disability#chronicpain#chronic disease#chronically ill#disabled#other chronic illness bs#disablity#fibromyalgia#undiagnosed chronic illness#chronic disorder#chronic fatigue#chronic pain#undiagnosed chronic pain#joint pain#physical disability#invisible disability#disability#physically disabled#cpunk#cripple life#cripple problems#crip punk#cripple punk#angry cripple
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One in, one out
Hot and cold No rhyme or reason No stable core What does it feel like to have a stable centre to return to? I wouldn't know This body operates on the same policy we had at home for cuddly toys One in, one out Only so much functionality allowed Before something else breaks
#my writing#poetry#personal#creative writing#my poetry#writing#personal writing#chronically ill#chronic illness#chronic pain#chronic fatigue#chronic migraine#migraine#notebook#collection: responses to increased risk#responses to increased risk: page 41#responses to increased risk: this is me in remission?#spilled emotions#spilled feelings#spilled writing#spilled poetry#spilled words#spilled thoughts#spilled ink#responses to shannon lee barry#inspired by shannon lee barry
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Every morning my brain spins a little wheel and picks what's going up be fucked up that day. Usually it's my pain perception or energy level, sometimes it's my mood, sometimes it's my sense of balance and I could do without that, but VERY OCCASIONALLY it will Mad Lib slap together, "TODAY'S BROKEN THING: your (noun:[ability]) (verb:[to sense that]) (object:[you are disabled])," and today is one of those days. I feel fucking good? I slept well? I jogged big sections of the way to lunch because I could? My legs didn't cramp up? I'm in a super good mood?
This happens so rarely that I actually register it as a problem and go through the day thinking, oh no have I finally developed bipolar, is this mania, and it's like, no, dipshit! It's functioning. Of course it feels good and you feel good about it. There's nothing wrong with having nothing wrong with me for a moment. You really don't understand how disability changes you until you're wondering if your temporary relief is a mental illness...
But enough of that, I'm having a good day and I hope everyone else is too, and if you aren't, I hope you'll have one very soon. 💜 ✌️
#chronic illness#fibro#chronic pain#chronic fatigue#disability#mental health#honestly when you got a physical illness that impacts your entire energy level at all times#the few moments of almost remission you get DO legitimately feel manic#but you just gotta accept it and not stress too much because eh. it's not harming you in the least.#(unless it is in which case y'know talk to someone about that)#but I'm not making impulse decisions and taking risks for shits and giggles or starting 1000 projects#I'm just like. having a good day. but the difference is just so stark it FEELS alarming but really the alarming part#is how tired I usually am#but if I got alarmed about that all the time I'd be even more tired and also depressed#being disabled is a long long time of practicing letting things just be as they are
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#i had to get an iv port put in#because I’m a hard poke and my good veins are donezo#and it looks so gross#im so sorry for those who keed these longer term than me#i do chemo treatmeants for ulcerative colitis#to keep me in remission#and to do iron infusions because of blood loss from the ulcers growing in my colon#yall this is not a good time#autoimmine disease#chronic illness#chronic pain#chronic fatigue#ulcerative colitis#anemia#chemo tw#blood tw#personal post
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🌙some wildly cheap commissions!🌙
🙃 for some even wilder reasons 🙃
hey y'all. long post thingie but it's got cute pictures so please check it out
TRANSCRIPT OF POST
hey frens got something kinda somber to talk about. most of you are very aware of the existence of my beautiful fiance and co-creator of basically everything i do. zae and i are getting handfasted (marriage for pagans) in october, and have been living together for about 10 years. in 2021, zae got really fucking sick, and after a few false starts, was diagnosed with a rare for of vasculitis called granulomatosis with polyangiitis, GPA for short. it’s an autoimmune disease that causes inflammation in blood vessels and other tissues, ultimately stopping blood from getting to the parts of the body that need it, affecting many areas, but primarily the respiratory system. while the cause isn’t known, it usually presents in people in their 50’s or 60’s, but complications from a third bout of covid-19 appears to have made it emerge way earlier for our boy. at least, that’s what we think. his case is extremely aggressive, advancing faster than anyone could have expected. in zae’s case, it actually attacked his kidneys first, and then went after his lungs, causing both to threaten shutting down for good. he was extremely anemic and needed a ton of transfusions, narrowly avoiding dialysis, and we spent weeks in the hospital keeping him alive. he was placed on two different kinds of chemotherapy to combat the disorder. he lost his hair, went through even more fatigue and pain on top of what the disease had already put him through, and had to accept a plethora of changes to his life that will last forever. a lot of you out there have harrowing experiences of your own when it comes to chronic and potentially terminal conditions, too, I’m certain. “it’s not fun” is an understatement. though there were a couple of really fucking close calls, zae’s GPA went into remission. his hair grew back fuller and more luscious than it had ever been before. (i later learned these are affectionately referred to as “chemo curls.”) remission for gpa is usually expected to last at least 5 years, potentially up to 20, before any symptoms resurface. but zae’s case was particularly aggressive, so of course he’s not so lucky. he’s relapsing now. his symptoms have been slowly returning, and it’s been decided that he’s going back on chemo. it’s no surprise that this shit is expensive, even with insurance. we’re still paying off the care he received last time because ‘murca. being disabled myself, work has been… let’s call it inconsistent, yeah? yeah, that’s a nice and comfortable thing to call it. no one’s doing well financially these days, so we of course have to get creative. long story short(er), i’m doing a commission special! for the next MONTH, i am offering fast commissions at crazy-low prices to try and help us create a cushion to keep us afloat and relatively comfortable while we begin the chemo process again. there’s several options for a variety of budgets, because i really hate the idea of seeking something for nothing, and i absolutely abhor having to reach out in this way. it makes me feel vulnerable and icky and… i’m sure you all understand that, too. i can’t thank you all enough just for following me, and engaging with mine and zae’s work. it may sound trite, but that really makes a difference to us, especially when we’re dealing with something so painful. so if you can’t or don’t want to partake of the sale, please know that you are still a huge help to us, and we seriously appreciate each and every one of you. like, so fucking much. thanks y’all love, fletch
END TRANSCRIPT
Commission Options:
Flash Sketches: $5USD/character
Comics: $5USD/panel - flat color
Comics: $10USD/panel - shaded color
Screenshot Redraws - $15USD/character (complex bgs, add $20)
all of this is posted with @zaebeecee's knowledge and blessing
please DM me if you're interested in something, and thank you again
more Hungry Games, fic fanart, and Persona stuff coming soon too
#my art#art commissions#personal stuff#fanart#fanart commissions#hazbin hotel#helluva boss#kingdom hearts#stardew valley#hazbin hotel fanart#helluva boss fanart#kingdom hearts fanart#stardew valley fanart#please share
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I know this has been done before but here’s my headcanons for LU Chronic illness/Disability boys:
Legend(he/they): Hypermobile type Ehlers Danlos syndrome. Frequently dislocates joints and doesn’t see why the others make such a big deal about it, it happens all the time! Primarily suffers from widespread join pain, instability and chronic fatigue. Has as many different mobility aids as they have magical artifacts.
Time(he/him?): Early onset osteoarthritis and partially blind. All of the time travel and shifting forms was not kind to his joints, so the connective tissue was damaged and BOOM. Arthritis. The old man jokes are becoming less and less of a joke every day. Also experiences debilitating migraines.
Hyrule(they/he): Sensory Processing Disorder (often associated with autism but can be caused by other conditions). Their magic sensitivity can often cause overstimulation in their other senses, and they are very sensitive to light, sound, smell and touch. They are semi-verbal because even his own voice can overstimulate him sometimes, but they don’t know sign very well. Also has anemia.
Wild(genderfluid he/she/they): hypertrophic contractural scarring, partially deaf, semi-verbal because of vocal cord scarring. Also prosthetic arm(set after TOTK). She switches between sign and speaking, whichever is easiest for him that day. They have to perform daily stretches and apply scar lotion to be functional, but they aren’t very good at remembering to do so. Often blows out his voice because he gets excited, but can’t tell how loud he is speaking.
Four(plural they/them): Dissociative Identity Disorder(but not really because of magical reasons), damaged growth plates because of Minish magic. They have very similar symptoms to DID, but there are slight differences because it was caused magically and traumatically, not like in the real world. They sometimes struggle to walk correctly because their growth plates are damaged, causing their legs to be slightly different lengths. They wear adaptive shoes to correct this.
Sky(he/him): POTS(Postural Orthostatic Tachycardia Syndrome), chronic fatigue. He struggles to breathe the denser air on the Surface, but he struggled with it on Skyloft as well. He has a chronically higher heart rate that causes dizziness and (rarely) passing out when moving from sitting to standing, after eating, and after adrenaline rushes. This causes his stamina to be fairly low, and also causes chronic fatigue.
Twilight(he/him): RRMS(Relapse/Remission Multiple Sclerosis). This is caused magically by the Twilight curse eating away at his body’s nerves, but is kept mostly under control by his shadow crystal. Occasionally, he goes through relapses and experiences anything from tingling and numbness in a limb to temporary loss of vision in one or both eyes, balance issues, vertigo and slurred speech. These flares are almost always debilitating, but thankfully they only happen every couple of months and last from a few days to about a week.
Wind(he/him?): A little cliche, but he has a peg leg. He likes to tell outlandish stories about it getting bit off by a kraken or eaten by a cannibal, but the truth is that he got an infection, couldn’t treat it in time and had to amputate. This happened sometime after his quests had finished, and he’s still a little ashamed of the actual circumstances, so he doesn’t open up often.
(edit) I FORGOT WARRIORS
Warriors(he/him): Speaking Disfluency (Stutter). Often repeats sounds, such as “G-g-g-guys”, or extends sounds; “Llllllll-Iove you”. He grew up poor, so he was never able to get treatment for it, so he communicates using sign while Proxi translates verbally, though this isn’t as necessary with the Chain since most of them know sign.
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hooooly crap you had chemo on halloween? i take it that means you have cancer if i'm not being too rude? I am so sorry to hear that and i guess it makes sense why you haven't had as much writing on your ao3 as you used to post. wow i am just so sorry. I feel kinda dumb because it didn't really occur to me to check and see why you hadn't updated your last wip and such. I hope that you are doing okay and that your treatment is working, I know how much cancer sucks and you are so talented that it would be extra awful to have something you do so amazingly at be a burden or obligation. Sending all my thoughts for you to get better.
Nah, it's not too rude--I did mention it in public, after all! I haven't talked about it here because I never felt like people on tumblr were interested in personal things, but I do talk about it a fair bit in my dreamwidth space, mostly as a way to keep track of what's happening. It's both dramatic and incredibly boring--the type of cancer I have is technically incurable (it's called multiple myeloma, which is a blood cancer, basically bone marrow), so it's this slog to get to a remission state, where it can then be managed like a chronic condition.
Which is a big change from years past, because there were few treatments for it, but now there are a lot, though the main thing people talk about is doing an autologous stem cell transplant. I am not going that route, so mostly I do a lot of chemo, which is injections (in my stomach, bleh), pills, and some infusions to rebuild the bone loss I've had (it was discovered when I had such excruciating pain in my neck that I couldn't move much, and it turned out I had a hole in my C6 vertebra). But apparently it always comes back.
That was really when my writing started to tank. I managed somehow to do a few things here and there, like Yuletide and Into a Bar, and writing my annual birthday fic, but it's been tough. I don't feel super bad all the time, but when I do feel bad, it's really crippling for creativity, and all of my drugs have a side effect of fatigue. I used to think of fatigue as just being extra tired, but man, it's so much deeper, and just unbelievably draining.
I am really trying to find the impetus to finish the Steve/Bucky virtual reality in Wakanda wip, because I really loved the concept and don't want it to just linger like it has, even though it wasn't being read by many folks. Ideally, I could work on it this month, now that I'm on a new chemo regimen and have to go in to the infusion center less often.
I really appreciate the kind words and support, and with any luck, I can get back to the writing and won't leave folks too frustrated. I guess I'll have a hell of an author's note explaining why I dropped the wip for so long. 🤗
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just curious.... do you know of a general/unspecified chronic illness flag?
Nope so I've made some using those chronic fatigue flags.
Chronic Illness Pride Flag
PT: Chronic Illness Pride Flag /END PT
ID: a flag with six horizontal stripes. The fisrt and last stripes are smaller. Their colors are, from top to bottom, dark bluish green, light salmon pink, soft white, bluish green, light bluish green and dark bluish green. END ID
ID: a flag with a dark bluish green background. Lines, like brushstrokes, which go from top to bottom and from bottom to top, partially cross the flag. The line colors are light salmon pink, soft white, bluish green and light bluish green. END ID
I choose to make the flags main's colour bluish green because light blue is often used to represent chronic illnesses and because green is often used on chronic fatigue/pain flags.
Meanings of flag:
dark bluish green: fighting against ableism
light salmon pink: community and solidarity
soft white: remissions and relapses
bluish green: chronic fatigue and brain fog
light bluish green: all the types of chronic illnesses
#chronic illness#chronic disease#chronic fatigue#chronic pain#disability pride#mad pride#depression#depressive disorder#diabetic#cancer#cardiovascular disease#endometriosis#epilepsy#fibromyalgia#ehlers danlos syndrome#eds#migraine#original post tag#physical disability#mental disability
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List 5 facts about a favorite sim of yours, and send this to 10 simblrs whose sims you adore ♥♥♥
Thanks for the ask @honeybeenrw!
I’m going to do this for James (as an excuse to introduce him properly since we’ll be seeing more of him in the story).
James Fairchild
He's living with rheumatoid arthritis, which is a chronic illness and autoimmune disorder. Among other symptoms, he has chronic fatigue and chronic pain and inflammation in his joints, which makes it difficult for him to be as physically active as he'd like. There are times when his illness is in a clinical remission and he has very little pain, and there are times when it flares up and he can barely do anything. Even though he's capable of walking and does so as often as he can, he regularly uses a wheelchair when he goes out because too much walking is exhausting and painful. His wheelchair gives him the freedom to do more things during the day. (bonus: one of his favourite recurring jokes is the look on people's faces when they meet him for the first time and he's in his wheelchair and he abruptly stands up at some point in the conversation to stretch or to reach for something).
He’s divorced. He and his ex-wife Alicia were only married for about five years, but she left him because she said couldn’t cope with what she referred to as his “extraordinary support needs”. James does have his share of ongoing medical issues and he does need help with some things, but in reality he’s very self-reliant a majority of the time. He assumed she was making up an excuse to cover up infidelity, although he never had actual proof of that. What James and Alicia didn't realize when they separated was that she was pregnant with their first (and only) child, but when they did find out, Alicia didn't move back in and they decided to go ahead with their divorce anyway. James supported Alicia throughout the pregancy and was there when their daughter Ava was born. Ava is now ten years old, and James has always been involved in her life.
While Alicia got married again, James hasn't found anyone new since the divorce. He's gone on plenty of dates and certainly knows how to charm the ladies, but he still hasn't been able to find The One. People are naturally drawn to him, but no one seems to stick around, and he's beginning to feel very discouraged about it.
His secret talent is sewing. He learned the basics in Home Economics in high school and liked it, but never imagined he'd take it up as a hobby later in life. It began when Ava was four, and she told him that she wanted to wear a princess dress for her fifth birthday party. She described her dream princess dress to him, but they couldn't find anything like it anywhere, so impulsively James decided he was going to try to make one. To say the pattern he found online was way beyond his skill level at the time would be an understatement, and he didn't take into account how sewing might affect the joints in his hands and fingers, but he was determined. He bought a sewing machine and supplies, and did battle with it for a month, and ripped out more stitches than he could count, but finally he succeeded. It definitely wasn't perfect, but it was done before Ava's birthday, and she loved it. He's been making dresses for Ava's birthday every year since, and getting progressively better at it. He also hems his own trousers and makes random things for his house like curtains, decorative pillows, chair seat covers and aprons.
He loves the water, particularly the ocean. He'd happily live at the beach if he could. Every year, he looks forward to his mid-winter vacation when he can fly off to some exotic sun destination and soak up all the vitamin D and ocean air he wants. He's not the strongest swimmer, but that doesn't stop him from having a good time. He also enjoys sailing, fishing and zipping around on his jet-ski.
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there's this nasty little side effect to chronic pain remission, where if the pain does return you get hit in the gut with the Big Sads pretty hard
the thing about managing chronic pain is that you don't get to relax, you have to be so aware of your limits and movements, you have to stay just the right amount of active, you need expensive upkeep and preventative care, you work so hard to stay pain free and even then it's only tentative pain free
so when life throws you a curveball like flooding your neighbourhood and you have to help move and clean up large items of furniture, there's really no way to prepare for that, you can't exactly negotiate with a natural disaster
so you end up crippled and hobbling, can't even unload the fucking dishwasher, and you're hit with that feeling that you've just slid all the way back down to the bottom of the mountain and now you have to crawl back up through the mud
you were so careful, you spent so much time, money, and effort to get to where you were, and now one unexpected, unavoidable event has you back to square one
and I know the climb likely won't be anywhere near as arduous as the first time, because I've put so much effort (and MONEY) into those preventative measures, into strengthening my body so it can bounce back more easily
but it really fucks with your head, being back at the bottom of that mountain, looking up and thinking about that gruelling climb through the mud, because even if you've done a lot to prepare for this, the only previous experience you have was that first awful, terrible, painful, miserable climb, and that's all you can think about
my appetite is fucked, my adhd is rampaging because I can hardly do anything stimulating enough, and family are sympathetic for now but I know from experience that eventually the compassion fatigue sets in, and people expect you to just get on with things, even if the pain hasn't changed, even if you're still barely mobile
the crippling pain is a good enough reason to wish for this flare up to end, but honestly more than anything I don't want to go through having my mother demand household chores from me when I can barely walk, again
it's a special kind of pain, that one, when people you love go from asking if you're okay and making you dinner, to treating you like you just aren't trying hard enough to get better, acting offended that your disability is inconveniencing them now
chronic pain teaches you that sometimes compassion has a time limit
it's been long enough right? surely you're used to it by now? you can't just keep using it as an excuse, go unload the fucking dishwasher
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How did Val become a vampire
the short answer ? he didn’t.
the real answer ? it’s always been a delusion.
long post incoming lol
renfield’s syndrome isn’t a medical diagnosis, but it’s a parodied term for the symptom of an obsession with drinking blood. renfield’s syndrome can stem from various illnesses, usually associated with delusions, trauma, and paraphilias.
in val’s case, his renfield’s syndrome stems from somatic delusion. somatic delusions refer to beliefs that an individual’s body has something physically or medically wrong with it. this delusion may occur with tactile or olfactory hallucinations. val’s delusion in particular is that he needs to drink blood in order to survive, or else he’ll get very sick.
delusions can be caused by several factors, including genetic, biological, or environmental. with val, there may be some genetic causes that’ve been passed down from family, but it’s majorly environmental. according to the cleveland clinic, people who tend to be isolated, such as immigrants and those with poor sight and hearing, appear to be more vulnerable to developing delusions. val was born to immigrant parents in an isolated kansas settlement, with the entire county only having a population of roughly 1,800 at the time (1980s). val was also born legally blind due to OA type albinism.
for most people, the delusions are often chronic, though many have remission periods and can find relief with treatment. however, many people don’t seek help, as it’s very difficult for the person to recognize they’re unwell, and thus the condition can be lifelong. this is val’s case, as he wholeheartedly believes this delusion as fact.
continuing on renfield’s syndrome, in the past, some people have said renfield’s and clinical vampirism have been slightly different. clinical vampirism was associated more with an erotic obsession, while renfield’s was associated more with a form of disordered eating. even though they’re considered the same thing now, the previous distinction of renfield’s closely fits val.
psychologists have theorized the condition may start with autovampirism and progress to drinking the blood of animals, and in serious cases even people. val never had an autovampirism period, as it didn’t align with his delusion, and instead skipped to the animal period, which did.
very few cases of this behavior have been formally studied, so most information is left up to logical theorizing and analysis from known cases. the etiology is officially unknown, which leaves a lot of possibilities.
as for the effects of this behavior, vomiting is most common. if too much blood is absorbed during digestion it’s very possible for it to lead to hemochromatosis, especially when the blood isn’t accompanied by any food. with val, he might commonly have symptoms of vomiting, fatigue, lethargy, abnormal heart rhythm, memory fog, and joint pain. val’s belief that he’ll get sick without drinking blood is very real for him, as the symptoms of drinking blood are in his mind more of withdrawal symptoms. this sickly state is his typical one.
but why does val have this delusion ?
it’s because of his parents. nelu and erzsébet valentinescu are suspected to hold some degree of delusional behavior as well, which may very well be a genetic explanation for val’s condition. they were incredibly superstitious people, and used traditional superstitions and legends to justify their beliefs against val. it mainly started when he started getting old enough to show signs of his physical deformities, blind eyes, pale skin, sharp and malformed teeth (val’s ailments are likely due to the age of his parents, as they were 39 and 37 when he was born). they led themselves to believe he was some sort of strigoi, cursed by a witch in the womb.
they did care for him though, even though from an outside perspective it would be seen as very cruel, val always felt very loved. he was fed animal blood frequently, both him and his parents believing it would help him feel better (they lived on a farm and used livestock for food, that’s how he got it). val grew up believing that his parents were helping him, and his parents believed they were making the best of birthing a monster. his mom used to tell him, as a bedtime story, that he swallowed a lidérc when he was young, and it possessed him to become what he is now. a lidérc is a form of hungarian vampire, sometimes taking the form of a falling star.
#asks#val#for clarity’s sake: val was born in 1986 and his canon story takes place when he’s 26 in 2012#i can also talk more abt his parents :3#it’s a very sticky situation#val did in fact kill them but he loved them very much
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![Tumblr media](https://64.media.tumblr.com/69db4c8ce72b3cdf5031f6cf68a3ce66/7d3f8ef117a2008a-f6/s540x810/dde1abb16ce07047f173ca98031df123a7e98a47.jpg)
IBD stands for inflammatory bowel disease. There are two main types of IBD: Ulcerative Colitis and Crohn’s Disease.
Ulcerative Colitis (otherwise known as UC) affects the large bowel.
Crohn’s Disease affects the who digestive tract, from mouth to anus.
IBD is an autoimmune disease, whereby your immune system attacks your body, and where it attacks depends on which version of IBD you have.
Both conditions can affect everyone differently, and some people manage better than others, through no fault of their own of course. Some people have long periods of remission and very little medication. Some people require long term medication. Some people require surgery.
No matter how your IBD is treated, the identifying symptoms are always the same. The symptoms include, but are not limited to:
- Needing the loo a lot, diarrhoea
- Blood in poo
- Sickness and nausea
- Stomach pains
- Fatigue
Anyone who suffers with IBD knows it’s no walk in the park, and there’s currently no cure. All we can do is try our best to manage our symptoms.
If you know multiple people with IBD, don’t expect them all do be able to do the same things or cope with their illness in the same way. IBD, just like any other chronic illness, affects everyone differently.
If anyone would like to reblog with more information, if you think I’ve missed anything or just want to add things I might not be aware of, please feel free to do so!
Happy World IBD Day!
#chronic illness warrior#chronic illness#awareness#chronic illnesses#crohn’s disease#crohn’s and colitis#crohn’s colitis#crohn’s warrior#ulcerative colitis#autoimmine disease#world ibd day#ibd#inflammatory bowel disease
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Clinical features – Ulcerative colitis is characterized by recurring episodes of inflammation limited to the mucosal layer of the colon. It commonly involves the rectum and may extend in a proximal and continuous fashion to involve other parts of the colon.
Patients with ulcerative colitis usually present with diarrhea, which is frequently associated with blood. Associated symptoms include colicky abdominal pain, urgency, and tenesmus. Patients with mainly distal disease may have constipation accompanied by frequent discharge of blood and mucus.
Patients may also have fever, fatigue, and weight loss. Ulcerative colitis primarily involves the intestine but may be associated with several extraintestinal manifestations.
●When to suspect ulcerative colitis – Ulcerative colitis should be suspected in patients with chronic diarrhea for more than four weeks. The clinical presentation, including laboratory features, endoscopic appearance, and radiology findings, is not specific for ulcerative colitis, and may be seen in a number of other causes of colitis including Crohn disease, radiation colitis, ischemic colitis, infectious colitis, and colitis related to medications.
●Establishing the diagnosis – The diagnosis of ulcerative colitis is based on the presence of diarrhea for more than four weeks and evidence of chronic colitis on endoscopy and biopsy. Since these features are not specific for ulcerative colitis, establishing the diagnosis also requires the exclusion of other causes of colitis by history, laboratory studies, and by biopsies of the colon.
●Disease course – Patients with ulcerative colitis usually present with attacks of bloody diarrhea that lasts for weeks to months. The course of ulcerative colitis typically consists of intermittent exacerbations alternating with periods of complete symptomatic remission. However, a small percentage of patients have continuing symptoms and are unable to achieve remission. Overall, patients who present initially with proctitis have a more benign disease course and frequently respond to topical therapy, whereas those who present with more extensive disease require systemic therapy and have a higher risk of colectomy.
Extension of colonic disease is seen in up to 20 percent of patients within five years. Approximately 67 percent of patients have at least one relapse within 10 years following the diagnosis. The risk of relapse depends on the age at initial diagnosis. The likelihood and timing of colectomy depends on the extent of the disease and severity at presentation. Mucosal healing in response to treatment is an important predictor of long-term clinical outcomes.
●Complications – Complications associated with ulcerative colitis include severe bleeding, toxic megacolon, perforation, strictures, and the development of dysplasia and colorectal cancer. Patients with ulcerative colitis may have a slightly higher mortality as compared with the general population.
Defining disease severity and risk – Patients with mild to moderate ulcerative colitis (UC) are identified as low risk based on prognostic factors that suggest a nonaggressive form of disease: absence of deep mucosal ulcerations, no extraintestinal manifestations, and diagnosis at age >40 years. These patients usually have mild to moderate symptoms (≤6 stools daily with or without blood) and lack signs of systemic inflammation (ie, normal or minimal elevation in C-reactive protein and/or fecal calprotectin levels).
●Pretreatment evaluation – For patients with UC who present with symptoms of a disease flare (eg, diarrhea, rectal bleeding), some aspects of the initial evaluation (eg, laboratory and stool studies, lower endoscopy) are repeated to exclude other conditions as a cause for symptoms and to assess the extent and severity of disease.
●Goals of therapy – The treatment goal for patients with active UC is to achieve clinical and endoscopic remission by demonstrating complete mucosal healing. Response to therapy can be determined by assessing symptoms and laboratory testing and can be supplemented by endoscopy with biopsies as needed.
●Induction therapy for ulcerative proctitis or proctosigmoiditis – For low-risk patients with ulcerative proctitis or proctosigmoiditis, we suggest topical (rectal) mesalamine rather than oral mesalamine or observation (table 1) (Grade 2B). However, for patients who prefer to avoid the burden of daily topical treatment, it is also reasonable to use oral mesalamine or to observe and initiate treatments if disease progresses.
For patients with mild to moderate disease confined to the rectum, we typically initiate treatment with mesalamine suppository once daily (algorithm 1). For patients with mild to moderate disease extending above 18 cm from anal verge into the sigmoid colon, we treat with mesalamine enema once or twice daily.
For low-risk patients with ulcerative proctitis or proctosigmoiditis who do not have symptom improvement after four weeks of topical mesalamine therapy, subsequent options include adding a topical glucocorticoid (eg, suppository, enema), adding an oral 5-aminosalicylic acid (5-ASA) agent, and/or starting an oral glucocorticoid (eg, budesonide multimatrix). Selection of second-line therapy depends on patient preferences, product availability, clinician preferences, and prior response to therapy.
●Induction therapy for left-sided or extensive UC – For low-risk patients with left-sided or extensive mild to moderate UC, we suggest a combination of an oral 5-ASA agent plus rectal mesalamine for induction therapy rather than oral 5-ASA monotherapy (Grade 2B). We begin high-dose oral mesalamine (ie, >3 grams daily) and mesalamine enemas once daily.
●Maintenance therapy – We suggest long-term maintenance therapy for the following low-risk patients who have achieved clinical remission with medical therapy (Grade 2B):
•Patients with ulcerative proctitis and >1 disease flare per year
•Patients with ulcerative proctosigmoiditis
•Patients with UC proximal to the sigmoid colon (i.e., left-sided colitis and extensive colitis)
The choice of maintenance therapy depends on the specific agent used to induce remission, the distribution of disease, patient preferences, clinician preferences, and insurance coverage/cost. For low-risk patients with mild to moderate UC in remission, the goal of management is to prevent clinical and endoscopic relapse.
●Health maintenance – Routine health maintenance, including screening for and prevention of other diseases as well as monitoring for adverse effects of therapy, is an important aspect of the care of patients with inflammatory bowel disease.
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Ulcerative Colitis: Symptoms, Causes, and Treatment
One of the IBDs is ulcerative colitis, which is typified by inflammation and recurrent colon wall ulcers. A condition like this significantly lowers a person’s quality of life. Additionally, it is an inflammatory condition that negatively affects the human body’s colon and rectum. Therefore, it is very important for someone to be aware of its symptoms and work towards the causes and remedies. In addition to medical care, Nimba Nature Cure places a specific emphasis on the natural, organic, and holistic treatment of illnesses like ulcerative colitis.
Ulcerative Colitis: What Is It?
Inflammation and ulceration of the human large intestine caused by the immune system are hallmarks of ulcerative colitis, a highly serious illness. Although it is evident in those between the ages of 15 and 30, it can have a significant impact on persons of all ages.
Symptoms of Ulcerative Colitis
The most common symptoms of ulcerative colitis can differ from person to person based on the extent and severity of inflammation. Common symptoms include:
Abdominal Pain and Cramping
It creates discomfort in the lower abdomen of the body is a common complaint.
Diarrhea with Blood or Pus
Loose stools mixed with mucus and blood are a hallmark symptom.
Urgent Bowel Movements
It creates a sudden and frequent need to use the restroom.
Fatigue
Chronic inflammation can also create stress, fatigue and a general feeling of weakness.
Weight Loss
It also leads to constant weight loss as it leads to malabsorption of nutrients.
Fever
Low-grade fever can occur during flare-ups.
Rectal Pain or Bleeding
Bleeding and excessive Pain during bowel movements is also one of the common symptom of Ulcerative Colitis
Causes of Ulcerative Colitis
Immune System Dysfunction
The immune system attacks the healthy tissues of the colon, which leads to inflammation.
Genetics
A history of ulcerative colitis or other autoimmune diseases enhances the risk of infection in the human body.
Environmental Factors
Certain triggers—infections, diet ratio, and stress—contribute to the onset and worsening of the condition.
Lifestyle
Smoking and an unhealthy diet can exacerbate symptoms.
Ulcerative Colitis Treatment Options
The treatment for ulcerative colitis gives a core focus on minimising the inflammation and managing the symptoms, which eventually achieves long-term remission. A combination of dietary adjustments, medical treatments, and natural therapies may help in managing the condition in an effective manner.
1. Medications
Anti-inflammatory Drugs: minimise inflammation in the colon.
Immunosuppressants: Defeat the overactive response of the immune system.
Biologics: Target the major components of the human immune system to manage inflammation.
2. Dietary Changes
Preventing trigger foods such as gluten-based and dairy products may also act as a beneficial option for some individuals.
a balanced and healthy diet that is low in high-fibre and prevents spicy foods can help in alleviating symptoms at the time of flare-ups.
3. Stress Management
Stress can be considered one of the major triggers for health issues like ulcerative colitis flare-ups. Prioritising practices like meditation, yoga, and deep breathing give effective results in minimising the stress level.
4. Natural and Holistic Therapies
At Nimba Nature Cure, we provide therapies with complementary medical treatments:
Naturopathy: we use the natural approach to heal the diseases by focusing on lifestyle changes, diet and detoxification.
AHydrotherapy: A gentle method of detoxification supports a healthy digestive system.
yurveda: herbal and organic remedies and therapies that aim at balancing the body’s energies.
5. Surgery
In severe cases in which the medications and other treatments do not give expected results, surgical removal of the colon can be necessary.
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How Nimba Nature Cure Can Help
At Nimba Nature Cure, we observe that not only treating the symptoms can cure the disease but healing the root cause of conditions like ulcerative colitis is also very essential for an effective cure. Our therapies aim to reset the human balance and mind by prioritising natural healing processes. Our approach includes:
Detoxification Programs: To clean the body and observe overall health.
Personalized Treatment Plans: focus on your specific condition and requirements.
Dietary Guidance: advise and form expertise regarding diet that support gut health and reduce inflammation
Stress Management Therapies: minimise stress to prevent flare-ups.Living with Ulcerative Colitis
Conditions like ulcerative colitis can be difficult for an individual, but with the proper support and management, the patient can lead a healthy and fulfilling life. Key steps include:
Regular Monitoring: Keeping a regular track on the symptoms and considering a strict consult from a healthcare professional can prevent such diseases.
Stress Reduction: Activities like mindfulness and relaxation techniques can help an individual minimise the stress level.
Lifestyle Adjustments: indulging in healthy habits such as a balanced diet and constant exercise.
Ulcerative colitis is one of the most complex conditions, which necessarily requires a multifaceted approach for better management. With the help of highly advanced medical treatments and integrated therapies, the patient may easily get a cure from such diseases and can achieve long-term remission.
At Nimba Nature Cure, we aim to support individuals with diseases like ulcerative colitis with the help of highly personalised and holistic care. With the help of addressing the main root causes of the diseases and its inflammation and by focusing on overall wellness, we help individuals in controlling their health and living their best lives.
If you or a loved one are seeking an effective cure for ulcerative colitis, reach out to us at Nimba Nature Cure to explore our holistic solutions and start your journey toward better health.
Read More:- Ulcerative Colitis: Symptoms, Causes, and Treatment.
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"Thoracoscopic Thymectomy: A Breakthrough for Myasthenia Gravis Patients"
For patients living with myasthenia gravis, a chronic autoimmune disorder that weakens muscles, finding an effective treatment is often life-changing. Among the many advancements in medical science, thoracoscopic thymectomy has emerged as a revolutionary procedure, offering hope and long-term relief for many.
This minimally invasive surgical technique removes the thymus gland, a key player in the development of myasthenia gravis, and has proven highly effective in reducing symptoms and improving quality of life.
Understanding Myasthenia Gravis and the Role of the Thymus Gland
Myasthenia gravis occurs when the body’s immune system attacks the communication between nerves and muscles, leading to symptoms such as: Muscle weakness (especially in the eyes, face, and throat), Difficulty speaking, chewing, or swallowing, Fatigue that worsens with activity.
The thymus gland, located in the chest, plays a critical role in this condition. In some cases, it harbors tumors called thymomas, or it may simply be overactive, contributing to the production of autoantibodies that attack healthy tissues. Removing the thymus gland can significantly reduce these immune responses, leading to symptom improvement or remission.
What Is Thoracoscopic Thymectomy?
Thoracoscopic thymectomy is a minimally invasive surgical procedure that uses a small camera (thoracoscope) and specialized instruments to remove the thymus gland. Unlike traditional open surgery, which requires a large incision through the breastbone, thoracoscopic thymectomy is performed through 2–3 small incisions in the chest.
Why Is Thoracoscopic Thymectomy a Breakthrough?
Minimally Invasive Approach: Smaller incisions mean reduced pain, faster healing, and minimal scarring.
High Success Rates: Studies show that up to 80% of myasthenia gravis patients experience significant symptom relief after the procedure, with many achieving remission over time.
Faster Recovery: Most patients can return to normal activities within a few weeks.
Reduced Risk of Complications: The precision of the thoracoscopic approach minimizes trauma to surrounding tissues and lowers the risk of infections.
Who Can Benefit from Thoracoscopic Thymectomy?
Thoracoscopic thymectomy is recommended for:
Myasthenia gravis patients with generalized symptoms, especially those not responding well to medications.
Individuals with thymomas (tumors in the thymus gland).
Patients seeking a minimally invasive option for long-term symptom management.
How the Procedure Works
Preparation: The patient is placed under general anesthesia.A thoracoscope is inserted through small incisions to visualize the thymus gland.
Surgical Removal:Specialized instruments carefully remove the gland, ensuring minimal impact on surrounding tissues.
Post-Procedure:Recovery is quick, with most patients discharged within 1–3 days. Follow-up visits ensure the healing process is on track.
Why Choose Thoracoscopic Thymectomy for Myasthenia Gravis?
This procedure is a game-changer for managing myasthenia gravis. It not only alleviates debilitating symptoms but also reduces reliance on long-term medications, improving patients’ overall quality of life.
Expert Care with Dr. Shashank Shah at Laparo-Obeso Centre
If you’re considering thoracoscopic thymectomy, choosing the right surgeon is crucial. Dr. Shashank Shah, a renowned expert in minimally invasive surgery, offers world-class care at the Laparo-Obeso Centre (LOC). With years of experience and a patient-centered approach, Dr. Shah ensures the best outcomes for his patients, combining cutting-edge technology with compassionate care.
Take the first step toward a better life with Dr. Shashank Shah and the expert team at LOC. Schedule your consultation today and experience the future of advanced surgical care!
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Transcranial Magnetic Stimulation Revolutionizes Depression Treatment Aiding Mental Health
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Transcranial Magnetic Stimulation (TMS) is revolutionizing the way depression is treated worldwide. As a safe, non-invasive, FDA-approved treatment, TMS offers new hope to patients with Major Depressive Disorder (MDD) who have not responded well to standard therapies. By targeting specific areas in the brain using magnetic pulses, TMS opens the door to potential recovery and improved mental health.
What is Transcranial Magnetic Stimulation?
TMS stands out as a major breakthrough for individuals suffering from MDD that has been unresponsive to medications and psychotherapy. This technique focuses on stimulating nerve cells in the brain regions that govern mood, such as the dorsolateral prefrontal cortex. It serves as a beacon of hope, offering possibilities where traditional methods have faltered.
How Does TMS Work?
During a typical TMS session, an electromagnetic coil is delicately placed against the patient's scalp. This coil delivers magnetic pulses that create tiny electric currents in the brain, altering neuron firing patterns and aiming to correct dysfunctional brain activity associated with depression. The precision of this treatment is achieved by individualized coil positioning, ensuring effective targeting of the brain. Clinical Outcomes and Effectiveness TMS has shown notable results in combating depression that doesn't respond to other treatments. Traditional protocols involve six weeks of daily sessions, with about 50% of patients reporting significant improvement and a third achieving remission. Recent innovations, including Stanford’s accelerated neuromodulation therapy (SAINT), have pushed these figures even higher, demonstrating remission in nearly 80% of cases in mere days, with lasting benefits. Safety and Side Effects TMS is acknowledged as a safe treatment with manageable side effects. Most commonly reported are mild headaches, brief fatigue, and slight discomfort at the application site, all of which usually resolve within a day. There is a minimal risk of seizures, occurring in about one in 30,000 patients. Who Can Benefit From TMS? This treatment is tailored for adults over the age of 18 who have not benefited from traditional depression therapies. Certain individuals, such as those with epilepsy, seizure disorders, or metal implants in the skull, are typically not candidates for TMS.
New Techniques and Accelerated Treatments
Exciting advancements in TMS include accelerated treatment protocols like UCLA's "five-by-five" approach. This method compresses treatment into five daily sessions over five days, offering significant improvement for many patients within a week. Such innovations mark a pivotal shift towards more rapid and effective mental health recovery strategies.
Insurance Coverage
TMS treatments for major depression are covered by most insurance plans, though coverage might be limited for other conditions or newer protocols. It's advisable for patients to verify specific coverage details with their insurers to facilitate access to this groundbreaking therapy.
Additional Uses of TMS
Beyond treating depression, TMS shows promise in addressing other conditions such as obsessive-compulsive disorder (OCD), chronic pain, tinnitus, and post-traumatic stress disorder (PTSD). This extends the potential impact of TMS well beyond its primary application, making it a versatile tool in the mental health field. Patient Experience and Long-Term Benefits Patients frequently report improvements in mood, increased energy, and reduced anxiety following TMS treatment. The positive effects can last up to a year, with some patients benefiting from occasional booster sessions to maintain relief. In summary, TMS is an effective, non-invasive option for treating depression, particularly for those who have not found success with conventional treatments. Its ongoing innovations and personalized strategies could significantly alter the landscape of mental health treatment. Keep following FROZENLEAVES NEWS for more captivating insights and updates on breakthroughs like TMS in mental health. ``` Read the full article
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