#to keep me in remission
Explore tagged Tumblr posts
Text
.
#i had to get an iv port put in#because I’m a hard poke and my good veins are donezo#and it looks so gross#im so sorry for those who keed these longer term than me#i do chemo treatmeants for ulcerative colitis#to keep me in remission#and to do iron infusions because of blood loss from the ulcers growing in my colon#yall this is not a good time#autoimmine disease#chronic illness#chronic pain#chronic fatigue#ulcerative colitis#anemia#chemo tw#blood tw#personal post
3 notes
·
View notes
Text
art trade from toyhouse - love this funny evil guy
#my art#anthro#furry#illustration#found the coolest new band recently and then found out they broke up earlier this year - very cool#and i definitely did not feel genuine devastation over this#they reformed as a new thing and their first single is good but i'll never hear their old stuff live!!!!!! FUCK!!!#i hate and love teeny tiny bands man they're always jumping from project to project and mutating. which is great and all for keeping fresh#but now i gotta trawl through youtube for their handful of live recordings like a starving rat in a winter shortage#they're called cheap teeth....i'd be remiss if i didn't give a shoutout to a band that somehow has less followers than me#anyway. swag#weirdfur
229 notes
·
View notes
Text
Had to leave school early again because the pain was making me nauseous, and I couldn't focus, and I was struggling to stand for more than like 30 seconds. I hate this. I missed a cool assembly because of this. I missed my favorite class because of this. I'm so tired.
#and no doctors believe me#or they just blame it on my arthritis#which has been in remission for OVER 4 YEARS#like jesus fuck its not that hard to evaluate me and figure it out#my rheumatologist wont even put fibromyalgia on my chart but keeps increased BMI on there#chronic illness#chronic disability#chronicpain#chronic disease#chronically ill#disabled#other chronic illness bs#disablity#fibromyalgia#undiagnosed chronic illness#chronic disorder#chronic fatigue#chronic pain#undiagnosed chronic pain#joint pain#physical disability#invisible disability#disability#physically disabled#cpunk#cripple life#cripple problems#crip punk#cripple punk#angry cripple
43 notes
·
View notes
Text
dietitian warned me the other day i may need to go inpatient if this keeps getting worse and it hasn't left my mind ever since. partly because i don't see the reason. i am literally gaining weight. and also because a non-zero part of me wants to go back inpatient and i don't know why
#and also because self destructive impulse go brrrrrr#steadily lying more and more about being full again so that's fun#unfortuantely eating disorders are chronic and will only go into remission not go away entirely!!! so if i just die that will solve that#problem right :)#personal#tw suicide#tw ed#puddleglum hours#i don't want ot have to keep myself alive anymore!! i am so tired#i don't even have a diagnosed eating disorder lol#hilariously funny to me in a terrible way#diagnosed with Big Sad disorder (mdd) but not Can't Eat disorder which is what i originally went to get help with when i first reach out to#a doctor#you know how often i regret that? so so often#im just here like LET ME DIE when the two times in teh last two days i have been Left Alone With Knives i have Talked Myself Out of using#them#in part because im scared of trying and failing again#in part also because i don't want to scar my siblings yknow?? like a friend once said that sometimes you refrain from doing things for othe#people and not yourself and i think she was so right
18 notes
·
View notes
Text
Having to decide if I should be delusional or accept reality (which I cannot do without crying)
#save me from this hell#reading ''if lymphoma has spread to other organs and has affected the lungs the prognosis is not good'' man he really has no chance huh#like there's nothing i can do that will save him#which i think everyone but me has really accepted#i just think that if i try the chemotherapy and whatever else they decide as treatment then it will work and he'll live#but even then he really doesnt have any longer than a few years#and i have to decide if i really want to prolong his suffering and pursue treatment just for him to keep getting worse#because now that it's spread so much is it really worth it#of course there's the little itty bitty chance that he'll enter remission but he won't be fully cured#i just have to prepare to lose him#and it's either spend all this money on treatment so he'll live another 2 years at most if we're lucky.#or just make the rest of his time on earth more comfortable which just seems like the better thing to do the more i think about it#like I have to be at the hospital and listen to the vet and ask questions which i can't do#because the only time we have to take him is on a day when i have work#and by then the longer we wait the less time we have#i just don't know what to do#i don't want him to suffer#i want to be hopeful and assume the best but it's so hard when it's something so serious#i just keep looking over at him and starting to cry#he looks so peaceful even though he's in so much pain#sorry for depression-posting but i have to talk into the void to try to get this out
2 notes
·
View notes
Note
just curious...how much do you write every day?
Rest days? none.
Bad days? ~300 words
Good days? 5k+
Most days? ~2k-3k
#stt asks#please keep in mind i have a lifestyle that allows me to dedicate a LOT of time and energy into writing#this shouldn't be a point of comparison b/c frankly I'm privileged and I'd be remiss not to acknowledge that.#i am single#have no caretaking responsibilities beyond a cat#and am financially stable and have easy access to care
4 notes
·
View notes
Text
there’s so much i wanna do this week/month/etc but i’m just too sick, i have no energy, i can’t sleep, i’m constantly nauseous and headachey and on the verge of a migraine, i’m stressed and irritable and impatient and panicky…….how tf did i survive nearly 5 years of high school untreated if i can’t even manage this when i don’t have any major obligations rn
#at least i finally got my meds so hopefully i feel a little better soon#although i’m now on 20 pills per day which is Just Great#whenever i’m in remission it’s nice to just. forget sometimes that this can happen at any time#kinda wish i had the typical kinda chronic illness that people talk about with ‘flares’#or at least triggers that i can plan around#the other times have all had an easily identifiable stressor tho tbf. idk what caused this one#the first time was whooping cough and the next few were all very major life stressors like my cat dying right after i started uni#and i think also towards the end of my honours thesis?#but this…….there’s no major stress right now. nothing wildly beyond normal#i’m a little concerned about my joints tho. they’ve been so much worse than normal the last few months#so i’m kinda worried i’m developing rheumatoid arthritis (also an autoimmune disease and it runs in the family specifically)#so if that’s happening then it could set my thyroid off? probably should get to the doctor at some point#obv i’m seeing my endo for thyroid stuff. but i should see my gp and get her to run all the autoimmune blood tests again#i’ve done that before but it’s been a few years and my ankles and knees are so painful i can’t even walk properly a lot of the time#BUT I JUST WANNA DO THINGS I ENJOY AND I CANT AND I WILL CONTINUE TO COMPLAIN ABOUT IT#‘oh you’re so lucky you don’t have as many obligations because you’re chronically ill’ ha ha ha please swap lives with me immediately#personal#but seriously. i wasn’t diagnosed until i was nearly 17 and we can trace it back to whooping cough when i was 12#so it was the last half of year 6 and then all of years 7-10 and the start of year 11 of just being. uh. ‘very lazy and complaining a lot’#and TEACHERS joking about me and my sister (who was dealing with an arguably more severe undiagnosed disease) missing so many classes#wow so funny pdhpe teacher who’s supposed to be teaching is about health#and the thing with being a mentally ill teenager is that hyperthyroidism can just look like a very severe anxiety disorder#so i didn’t go to the dr until i was too sick to go to school at all. and luckily had a good dr who did a blood test#i’m just rambling now because i can’t sleep and i don’t wanna lie here doing nothing#might go play pvz or something. that’s been keeping me entertained
6 notes
·
View notes
Note
I think what bothers me most about that argument is that dean is talking down to Sam so much
Implying that he’s not mentally sound and that dena HAS to be the one to clean up, telling Sam to stop moping about it and then ending it by saying he can stop acting like a bitch now?
That’s what they view as dean standing up for himself?!??!
I really like the Amy benny Emma situations cuz it tells us so much about dean (Sam too but mostly dean) but like so little of what it tells us is positive. ESP since I personally think so much of the benny stuff is projection like immediately telling Sam not to kill benny and assuming Sam will go after him and then immediately going after amy when he finds out about her
alsjfjlfjs I barely have anything to add here, you hit the nail on the head
the whole argument just. Dean does not come out looking good there huh. Especially the jab about Sam’s hallucinations. And the earlier line, “There are certain people in this world, no matter how dangerous they are, you just can't.” There’s no way Dean is saying that without knowing how Sam is going to hear it. That Sam is the dangerous thing that Dean could never put down. The whole shifting of this situation to be on Sam is (fun for me because I love when Dean uses how well he knows Sam to hit him where it hurts) really messed up.
Him starting with telling Sam he’s got a right to be angry, but then following that up with telling him he’s been angry long enough and needs to stop… i Need to chew on him, when did he decide he was the authority on how long Sam gets to feel resentful or to grieve his friend…
Something horribly delicious about Dean appointing himself timekeeper on Sam’s feelings.
#dean winchester#ask#spn#also. also. I would be remiss not to mention that Dean poking at Sam’s hell trauma specifically IS the part of this that makes me go :/#like. :/ that’s a little ooc coming from the guy who also went to hell. claiming Sam can’t make the right ‘moral’ choice and kill Amy?#yeah that tracks with Dean. he’s judge jury and executioner babyyy.#but him going after Sam’s torture and using that to add to his argument?#I mean he is pissed off. it could just be something said from frustration. but still.#again this whole situation is very. Keep The Status quo. you know?#supernatural’s never ending tension of how badly it wants sam & Dean to learn monsters are people too#and the fact that if they ever do. the whole premise of the show collapses in on itself.#so they never can. and they keep fighting about it. and they keep hurting each other and also anything that gets in their way.#show of all time. 10/10. no notes. what the fuck were they thinking.
7 notes
·
View notes
Text
said a prayer for Jjong today.
#shinee#jonghyun#idk i don't usually yk. do things like that for people that have passed but it's been six years and it felt fitting somehow#six years ago i was what. 12 about to turn 13???? had already been to a fair bit of funerals but the only ones that had hit me before#this one were the pianist at our church who passed away suddenly from a heart attack and the regional club leader who had cancer#for like three years and passed just as the doctors thought she would go into remission#and those both happened around October/November so. going into the winter season has always been hard for me and Jjong#was no different.#it's gotten better slowly but it still hurts sometimes. some days i wake up and i can't even look at any of his pictures other days#i get up and put his albums on loop and laugh and reblog so many of his antics#it's funny bc when my aunt passed on New Year's in 2019 it was exactly two weeks after the 1st anniversary date rolled around. always has#been but i never noticed until we lost her and we had to go down for the funeral and i basically disappeared off the internet for a good#two to four months sans queue and checking in on Discord and sh*t and that year he managed to keep me sane. sounds f*cked up#but that year it was just me and Spotify and my playlists and Jjong's voice amid it all. i wish i could meet him and tell him in person#that he practically saved my life even tho the fandom was still raw af from losing him but the prayer will have to be enough#you did well Jjong. you worked so hard. you are our pride. love you to the moon and back 🌒🌙 <333
3 notes
·
View notes
Text
I know this is going to make me sound old. but I don't care. I cannot fucking listen to the radio anymore. pop stations literally only play TikTok songs and I cannot handle it.
#I am remiss to admit that my mom was correct#she told me that when I get older I would hate popular music#And she's so fucking right#Good for you teens though. keep listening to what you want to.
8 notes
·
View notes
Text
.
#life itself is fine even though for some reason I struggle with it immensely#but to focus on things to be grateful for.#last year my sister spent her 11th birthday in the hospital#and this year she's gonna be able to spend it at home#I keep getting those '1 year ago today' pics and subhanallah she's so much better now#she's not in remission yet but the worst is long over#so that's good. those pictures are so hard to look at#but then at the same time I realize she's not a baby anymore and nor is my brother and time keeps on passing#and it scares me lol idk#it's okay
0 notes
Text
What I Want You To Know About Long COVID
Well lads, I've been suffering from Long COVID for over a year now. My life is at a complete standstill. I'm 25 years old and I'm too sick to go back to school, I can't work, I had to move back in with my parents and I'm still stuck here.
Here are just a few things I wish people knew about Long COVID, including things I didn't know myself until I got it.
COVID destroys your immune system. Yes, even if you don't have Long COVID. Are you getting sick more often now? When you get sick, does it last longer? There are many studies showing that COVID causes t cell depletion, even in mild COVID cases! T cells are how your body remembers how to fight off infections you've had before so losing those cells? Bad news.
Your initial infection can be mild and you can still get Long COVID. Right from Yale Medicine, "Most people with Long COVID had mild acute COVID." (This is also a good link for a basic Long COVID overview).
There can be a gap of time between when you "get better" from the initial COVID infection to the onset of Long COVID symptoms. Some people get sick with an initial COVID infection and never get better. Some get better and then weeks or months later start developing Long COVID symptoms. Long COVID symptoms can even fluctuate over time, can go away for months and then suddenly come back.
So many people have Long COVID and don't realize it. Do you feel more tired lately but no matter how much you sleep, nothing helps? Is it harder to concentrate at work or school? Can you just not think like you used to? You could have Long COVID and not even know it. Even mild post-COVID symptoms are still Long COVID.
COVID can do anything to your body. Long COVID has over 200 recognized symptoms and can affect basically any part or system of your body. There is no one mechanism or cause of Long COVID which unfortunately also means there's no one cure either.
The effects of COVID are cumulative. Each COVID reinfection increases your chances of developing Long COVID. COVID is also affecting your body in other ways, yes, even if you're otherwise young and healthy! "Repeat COVID-19 infections increase risk of organ failure, death".
Once you have Long COVID, repeat COVID infections will make your symptoms worse. "80% [of Long COVID patients] saw their symptoms worsen [from reinfection]. In 60% of people who were in recovery or remission from Long COVID, reinfection caused a recurrence of Long COVID."
There is a lot more I want to say about Long COVID but I want to keep this post at least somewhat manageable to read. Like how when COVID is contracted during pregnancy, those COVID-exposed fetuses have a 6.3-fold increased risk of motor developmental delays, or that another study found 50% of babies exposed to COVID in utero had developmental delays.
You need to keep caring about COVID, for others around you and also for yourself even if you're "healthy". Everyone is at risk. And don't forget 40-60% of COVID infections are asymptomatic, which is why masking even if you feel fine is crucial. The only way right now to not get Long COVID is to not get COVID in the first place. It's not too late, if you've stopped masking it's never too late to start again! I know it's easy to get distracted by things in your life that seem more real than the possibility of getting sick some time in the future, and the peer pressure to not mask can be intense. But it only feels less real or less important until your entire life is having Long COVID. Trust me.
I know this is a complicated issue, many people can't afford to stay home when sick even if they want to because of their jobs, there are disgusting policies trying to ban wearing masks, but please if you can. Keep masking. Masking works, masking saves lives.
This post got a bit longer than I wanted so below the cut is a non-exhaustive list of my Long COVID symptoms and some of my experiences as one of the "healthy young people" who got "unlucky". cw brief mention of suicidal ideation.
Welcome to the Thunderdome that is my body with Long COVID. Keep in mind these are just my experiences and symptoms, Long COVID can cause any range of symptoms at varying severities.
Dysautonomia: Exercise intolerance, Post-Exertional Malaise (PEM), fatigue, and heat intolerance. What do those things mean? Here's some specific examples. Absolutely terrible circulation I am so cold all the time but also, if I get a little too warm I will pass out. Eating hot food makes my heart rate spike, I sweat, my body feels heavy. Blood pooling and pins and needles in my feet when I walk. Don't even think about exercising past walking, it's impossible. I used to work out an hour a day 4 times a week and now walking up one flight of stairs makes my heart pound and I can't breathe. Can't take even just warm showers anymore or I will pass out. Heat rashes from being in the sun for 10 minutes.
Digestive issues: Honestly too many to name but: constant bloating, extreme nausea, constipation, slow motility, lack of appetite, just so much cramping and pain. I lost 18 pounds from Long COVID, as someone who was already considered underweight their entire life, and almost had to get a shunt put into my chest to deliver nutrients because I was nearly completely unable to eat. For the first 6 months of Long COVID, if I could manage 600 calories a day, that was a good day.
Histamine intolerance: Oh boy. My worst symptoms, I don't even know where to start with it. If you know Mast Cell Activation Syndrome (MCAS) it's very similar. I can only eat 19 foods. If i eat a single bite of something not on that list, it's 48 hours of absolute hell. Coughing, migraines, itchy eyes, such extreme nausea I cannot even describe it, panic/feeling of doom, racing heart rate, derealization, rash, uncontrollable muscle tremors. I only learned about histamine intolerance 5 months into having Long COVID so before that, I was experiencing these symptoms nearly every single day. Terrifying isn't even a strong enough word to describe how it felt to experience all this and have no idea what it was, how to stop it, or if it would ever stop. Really dark times.
Neurological issues: More of that derealization. Inability to concentrate. Anxiety. OCD-like symptoms such as thoughts getting "stuck" in my head, repeating 24/7 completely unable to stop them, genuinely felt like my brain had cracked open and I had lost my mind. Constant dizziness like I'm on a boat.
Sleep issues: I sleep like garbage. I have insomnia, I wake up dozens of times every night and every single time I sleep I have intensely vivid dreams. I can't sleep longer than 7 hours total no matter how exhausted I am. It is exhausting. I'm exhausted, I'm so so tired.
And finally. Just. Really intense suicidal ideation. My body, my health, my entire life has been stolen from me because someone else decided my life was worth less to them than wearing a mask or staying home if they feel sick. Before I got Long COVID, I was preparing to go to South Korea to teach English, then on to a PhD in neurolinguistics, I was supposed to meet my long distance partner and had already booked plane tickets when I got sick. All of that has been destroyed.
Most of us with Long COVID are stuck in a cycle of being extremely sick, then if you're lucky you'll slowly get better over months, just to get reinfected and go right back where you started or worse. Honestly, I'm not scared of dying from COVID. I'm scared of living for a long time, suffering from Long COVID the entire time. This isn't living.
I don't know how to end this now. I'm still fighting, I'm trying experimental treatments, I'm not giving up yet. I hope everyone reading this stays healthy and well.
9K notes
·
View notes
Text
v much looking forward to therapy later this week because my brain has switched into SCREAM MODE (presumably because its the end of term? maybe because of the sad? who knows!) but it has officially occurred to me that i am getting real close to the "spent half my life on psych meds" benchmark
#my current therapist has already informed me that he thinks i will likely be on them for the rest of my life#he also believes if i keep working i could go into ocd remission one day so its not all bad#and to be clear im not exactly upset at this#its just#weird i guess
0 notes
Text
just like going through the members of my family and my friend groups one by one, i can't think a single damn person i know who does not have a disability. ARFID. Autism. Metal rod in the spine. Arthritis. Cancer in remission. Long-term effects of repeated concussions. Bad back. Exhaustion. Crohn's. EDS. More Autism and ADHD. Migraines. Periods that lay them out for a week. Chronic depression. Alcoholism. Bipolar. Cataracts.
I do not know a single person who is not disabled, typically in multiple ways, and we all face increased disability as a natural consequence of aging. Literally every person on the planet becomes disabled on a long enough timeline. Yet we still talk about disability and organize around it as if it isn't social, economic, and contextual. people treat disability as an innate quality that some people have and some people do not have, and as if there is some large class of intrinsically abled people who are benefiting under capitalism and are withholding the fruits of their abilities from us or something.
i saw this post on twitter months ago that was like "I need people to understand that if you are in a relationship with a disabled person you are going to have to do more than them. you're not disabled and so you're going to have to do more of the work (around the house, logisticially, etc). that is what you owe them as an abled person."
and it just baffled me. because i have only ever seen disabled people in relationships with other disabled people, caring for one another in a stitched-together, messy web of interdependence and missed deadlines and dirty dishes and acceptance and love, not because disabled people are ontologically more generous than non-disabled people but because non-disabled people don't even actually exist.
the mythological abled person who can work a full time job, keep a clean home, do all the dishes, buy all the groceries, cook all the meals, run all the errands, stay on top of all the bills, carry everything, dash up the stairs, stand on their feet for hours, and have boundless energy without any mental consequences to that does not exist. it's an ideal created to oppress us all. it is an impossible standard the reification of which disables us all.
there is no one on this planet who is not disabled under capitalism and colonialism. there are only people who lack the class consciousness to recognize that they're disabled.
it's gonna have to be us taking care of one another. it's going to be the disabled caring for the disabled. it always will be that. that is the human condition.
3K notes
·
View notes
Text
♡ Master List Link
Everyone involved in this is aged up/18+.
⋆ FEM READER ⋆
Men who live for the opportunity to fuck you from behind.
Not because they don’t want to watch your pretty features twist in pleasure, or because they don’t want to see your eyes widen in surprise.
Not because they don’t want to see the base of your skull digging into the pillow when their cocks hit it just right, or the way your tits bounce with their motions.
No, it’s because they’ve mastered fucking you in this position as if it’s a finely tuned skill. It is after all, the best way to get your head high up in the clouds. Guaranteed to make your pussy love them, to drool obscenely for them.
However, they’d be remiss not to mention it soothes the deepest, most repressed and possessive urges they have to fuck you like a dog. They want your chest and your face shoved suffocatingly into the mattress. Of course your ass is in the air, god there’s nothing like it.
Their cocks throb and twitch repeatedly while they study the way your spine curves. How your sweet fingers fist the sheets, back cramping from tensing so tightly. But even still, they hold out on cumming. There’s no way they’re gonna end it this quickly, fuck no. They want to watch their cocks disappear into you for as long as they can drag it out.
They pay attention as you snake one hand under yourself to play with your clit, rubbing fast circles until your pussy starts to flutter. Hugging their cocks in an overwhelmingly slick and silky warmth as you help yourself cum.
Right after this is when they really start to fuck you, palms pressing into your lower back, threatening to break your spine. They put their strength to use, thrusting even harder.
These men will bully your g-spot until your throat feels raw from crying out their names. Going until you’re shoving your overheated face into the sheets, a palm braced on the wall in front of you so you don’t get a fucking concussion.
They keep at it until you cry out you can’t take it, till you’re both dripping with sweat. Even then, they still force another climax out of you, despite your pleas.
Their voices are low, intimidating, and enticing all at once when they speak next. Conveniently replacing your brain with cotton.
“C’mon, give me another pretty girl. Just do what I fucking say and I’ll give your sweet little pussy a treat, promise. You want that, don’t you?”
It’s with terrifying precision that they make this last orgasm count, just to see you squirt of course.
They wait until your entire being has gone taught for a few seconds. Letting you enjoy the full intensity of your orgasm before pulling out quickly and watching you squirt onto the sheets below as they paint your ass white.
These men can play your body like a fiddle every single time, especially hitting it from behind. They leave you a panting, sweaty heap on the bed always. They fucking live for it.
EREN, levi, BAKUGOU, kirishima, GOJO, zoro, hawks, SANEMI, KUROO, benimaru + any of your faves!
#eren jaeger x reader#eren jaeger smut#levi ackerman x reader#levi smut#bakugou x reader#bakugou katsuki x reader#bakugou smut#kirishima x reader#gojo smut#gojo x reader#kirishima smut#kirishima eijirou x reader#zoro x reader#zoro smut#sanemi x reader#sanemi smut#kuroo tetsuro x reader#kuroo smut#benimaru x reader#benimaru smut#hawks x reader#hawks smut#dividers by saradika#dividers by cafekitsune
4K notes
·
View notes
Text
Every day that the meds don't quite get me to the baseline I'm used to I have a moment (or a few) of "this is it. It was nice while it lasted".
#i wish there was someone to ask#someone who could tell me what to do#but the bastards keep refusing my remissions#no reason to get my hopes up#even once i get a note from a psychiatrist they're probably gonna make up some new reason to why i cant get there#or maybe a waitinglist?#perhaps ill get there and they'll have 0 advice#i just want to give up#but i couldn't tell anyone that because then they would keep ignoring my illness and pretend i got depression instead#its fucked
0 notes