#punk problems
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youāre having a bad hair day? iām holding my headphones upside down beneath my chin because i have a mohawk.
#punk#alternative#alt#headphones#music#punk hair#mohawk#hair problems#bad hair day#punk problems#shitposting#shitpost
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Trying to manifest more paint into the bottle so I donāt run out mid DIY-ing
#diy punk#punk fashion#punk problems#diy or die#diy#shirt making#painting#no fr someone help Iām running out of red paint
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
#it feels like i got jumped by seven people but NO#if my body is going to make me feel like ive been stabbed five thousand times i should at least get a sword fight out of it im just saying#fibromyalgia#fibropain#fibro problems#fibro flare#fibro#chronic pain#chronic fatigue#chronic illness#hypermobility#hypermobile#hypermobility syndrome#spoonie#disabled#actually disabled#disability#c punk#cripple punk
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i was recently denied life-saving gallbladder removal surgery by my GI specialist due to being "too fat" (i'm 300 lbs and very muscular) and "needing to lose 10 -15 pounds and waiting 2 - 3 months in order to get the surgery". i was then signed up for bariatric weight loss surgery before i could get the gallbladder removal despite the gallstone stuck in the neck of the organ as well as the other stones inside of it causing me to be incapable of keeping down food
i ended up getting the surgery done by a local hospital with far better doctors, but the initial denial had me so defeated. if you are fat and have ever been denied important surgeries, life saving or otherwise, because of your weight, i am so sorry and you should never have to face that. most surgeries are not impacted by weight in the slightest. this is usually an issue with the surgeon's skill as a surgeon.
i was told by every other surgeon i met that weight has no bearing on a laparoscopic gallbladder removal surgery. at the other hospital i was also told that anesthesia wouldn't work on me or that i wouldn't survive it. yet again i was told by other surgeons that was also not the case. most surgeons worth their paygrade can do these surgeries after just... trying and learning how to work with fat bodies.
i was told by the surgeons and nurses in the ER that it's ridiculous for the other hospital to behave as though fat people will never need surgery of any kind ever throughout their lives, for one reason or another. it's unrealistic. most people will encounter a potential surgery in their life times, no matter their weight and it's unprofessional to just give up when someone above a certain weight threshold needs help.
my heart goes out to you especially if you're trans, intersex, gnc, and queer and have been denied top surgery or other gender affirming care surgeries because of your weight. this is also medically unethical and done for no reason other than fatphobic transphobic bias. you do not need to lose weight to get top or bottom surgery.
take care of yourself. my heart goes out to you and you don't deserve this treatment at all
#cripple punk#crip punk#cripplepunk#cpunk#disabled#disability culture#chronic pain#actually disabled#chronically chill#disabled culture#cripple posting#cripple problems#punk#punx#trans punx#queer punx#disabled punx
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sure thereās a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?
accessibility to wheelchairs is more than just a ramp.
#disability#disabled#wheelchair#wheelchair user#wheelchair problems#accessibility#wheelchair accessible#cripplepunk#cripple punk#cpunk#disabled life#disabled struggles#disabled problems#disability life#disability struggles
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POV: you are physically disabled
#cripple punk#cripplepunk#cripple#cpunk#c punk#cpunk blog#c punk blog#angry cripple#queer cripple#disability#disabled#cripple posting#cripple problems#physically disabled#physical disability#chronic pain
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I want to release a line of concerning disability pride merch, starting with my patented āyou say bedridden, I say pillow-princessā sticker and ending with a ālost a limb, gained a clubā mug
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Do you know how many times a day I want to scream at people "THIS ISN'T FOR YOU!" ?
Just yesterday, I was ten minutes late to my tutorial class because for whatever reason, almost every single person in my lecture decided to use the elevator instead of going down one flight of stairs while me and my classmates -- the ones who didn't have that choice -- were stuck waiting for the next elevator.
I constantly have to navigate around people walking up the ramps -- or, worse, standing in the middle of them -- because they couldn't get off their phones for two seconds to use the stairs instead.
At least twice a week I end up in far more pain than usual because people who don't need them take up the accessible seats on the bus and I either have to stand there and wait for somebody to get up (Which is already hard on my body) or just wrap my arm around the pole and try to suffer through a few stops until somebody gets off (Which has already caused several dislocations). As much as people like to brag about how they'd "always give up their seat for a poor handicapped person", they're far more likely to stay right where they are and ignore you in favour of watching Instagram reels on their phone.
And I've tried asking people to move. Directly. Making eye contact and everything. They'll just look down at their phone and ignore me until the bus driver or somebody else says something. And only then can they magically notice me and get up.
Before I get a bunch of people leaping to yell about people with invisible disabilities: I know. I know there are people with invisible disabilities, I spent most of my life with only invisible disabilities. I can guarentee that not every single person in my lecture of 60 people has an invisible disability. This is not the problem.
The problem is that able bodied people see these resources and supports made specifically for physically disabled people and assume they're entitled to them. Most of them see it as something that's put in place just to comply with certain rules or laws or regulations as a 'just in case' thing. Nobody thinks that disabled people are actually out and about. We're an afterthought to them.
And I get it. I do. We all have our blind spots.
But seriously, this is getting ridiculous.
#disability#disabled#ableism#accessibility#accessibility awareness#inaccessibility#cripple shit#cripple problems#cripple punk#crippled#cripple#c punk#physically disabled
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SAY IT WITH ME: MEDICAL GASLIGHTING IS MALPRACTICE
#chronic illness#disabled#chronic disability#chronically ill#chronic disease#other chronic illness bs#disablity#undiagnosed chronic illness#chronic pain#chronic fatigue#nerve pain#joint pain#disabilities#disability#actually disabled#disability rights#disability advocacy#invisible disability#physically disabled#doctors suck#medical stuff#medical gaslighting#medical malpractice#cripple life#cripple problems#cripple punk#angry cripple#cripplepunk
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People take the word ambulatory wheelchair user, and say it means exclusively part time wheelchair users and run with it.
Iām an ambulatory wheelchair user. But Iām not a part time wheelchair user. I use my wheelchair EVERY SINGLE day. That means that Iām not a part time wheelchair user, because I use it more than part time. A lot more than part time.
There seems to be this new rhetoric, that ambulatory = part time. And for most, this isnāt the case. Ambulatory does not mean part time, it simply means that you can walk.
I can walk around my room unassisted by any mobility aids. I cannot walk to the lunch room which is literally up the hall without a mobility aid. Iām almost a full time crutch user, and Iām an ambulatory wheelchair user.
I am not a part time mobility aid user, and I hate that people have come to the āagreementā that ambulatory means part time, when that is quite literally, not true.
#zebrambles#physically disabled#cripplepunk#crippled#cripple punk#hypermobile#joint issues#autism mobility problems#ambulatory wheelchair user#ambulatory mobility aid user#ambulatory crutch user#ambulatory#part time mobility aid user
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something that isnāt talked about enough with chronic illness is knowing that going to your appointments and doing your exercises and all that will help but being in too much pain or too fatigued to go, so your just stuck in this constant cycle of knowing what you need to do to get better but not being able to do it because your sick
#chronic illness#chronically ill#chronic pain#cripple posting#cripple punk#cripplepunk#crip punk#cripple shit#functional neurological disorder#queer cripple#fibro problems#fibromyalgia#crippunk#cripple life#cripple problems
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they should invent walking that doesn't make you feel like you're going to keel over and die
#disability#disabled#physically disabled#me/cfs#myalgic encephalomyelitis#joint pain#joint problems#cripple punk#physical disability#mobility aid#cane user#mobility aid user#ow my joints#chronic fatigue#chronic pain#chronic illness#chronically ill#chronic migraine#long covid
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i hate that bad backs aren't viewed as a disability. i hate that "Every back is a bad back" mentality. i hate minimizing back pain by encouraging people to "just take a tylenol". i hate that people who throw out their backs regularly are told to "just sleep it off" or even worse "just exercise, it loosens things up." i hate when people say "my mom has a bad back and she just powers through it."
let people with bad backs be disabled and talk about how much pain we are in, and how much of a disability living with a weak, broken, eroded, degenerative, or paralyzed spine is. let us talk about the horrors and dangers of spinal surgeries. listen to us when we talk about the limited options for pain management and how it is an absolute nightmare to get treated for back pain and receive medication that actually works.
having a bad back is a disability. being in back pain all the time is not trivial. having back pain so bad you can't sit or stand is serious. feeling shooting pain into your legs is a big deal. feeling like no matter how much you stretch or take medicine your back never seems to feel better is a genuine medical issue. listen to disabled people and stop dismissing our pain.
#cripple punk#disabled rights#disability advocacy#back problems#bad back#crip punk#cpunk#disabled#disabled issues#disability problems#disability rights#our writing
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So sick of people seeing "silly" gadgets in videos and claiming whoever uses them are lazy.
Disabled people exist.
Most of those "silly" gadgets are for us.
Just because you don't have use for it doesn't mean it's not important for someone. You may find it stupid but it may give someone freedom in a way they haven't had for who knows how long.
"Why don't you just (task that's hard for disabled people to do)!" Why don't you shut the fuck up.
Stop making fun of gadgets that are for disabled people.
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Sometimes u just need to sob and scream and cry and bitch about ur disability
I think a lot of people feel like they need to be at completely at peace with their disability
And you donāt!
Be mad be sad be pissed off!
#disabled#disabled problems#disability#ehlers danlos syndrome#immunocompromised#rheumarthritis#chronic illness#autoimmine disease#angry cripple#this post is about physically disabled people#autoimmune#rheumatoid arthritis#cripple punk
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#chronic pain#chronic illness#disability#cfs#actually disabled#chronic fŠ°tiguŠµ ŃŃndrŠ¾mŠµ#fibromyalgia#spoonie#me/cfs#cfs/me#cpunk#cripplepunk#cripple punk#long covid#made this out of curiosity really. get curious about the community#i know it can be gray it is for me but whatever age you would consider yourself disabled?#like i developed fibro around age 13-14 but before that I had health problems#just idk if I'd say i had a disability before that?
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