#pots*

[atley01]

Tips for all of my alternative & Chronically ill/ disabled friends!

A big thing that's helped me feel more comfortable accommodating my disability is finding accessibility tools that reflect my personality / interests.

I should put a disclaimer that making disability "aesthetic" should not be the most important thing about your health! I do this where I can to help me accept my disability.

Here are some alt accessibility tools I've found / made & utilized for myself!

1. If you're prone to nausea:

Anti-nausea meds work, but I also find that peppermints work just as well! I always have mints on me. At home, I've stored them in this coffin container!

I do keep a few of these mints in my bag, as well as ginger hard candies (they taste very strong, but are VERY efficient). I got the peppermints at Dollar tree, and they've genuinely been a life saver.

Alternatively, I've found this adorable ouija board altoids container that has mints in it!

The mints are even fun-shaped! I also saw other horror-movie themed altoid containers in-store as well. Since they're tiny, they dont work well for severe nausea, but they are still helpful!

2. If you struggle with temperature-regulation:

For me, my hands and feet are always FREEZING, but my core will be super warm. What has helped me a lot has been gloves and fuzzy socks!

I have a lot of spooky gloves like this, but I prefer the fingerless ones because I can still use my phone and be warm at the same time! I've also heard my friends who are wheelchair users say gloves can help protect your hands if you use a manual wheelchair. Another added bonus is that certain gloves can help limit mobility for those of you who struggle with hypermobility in your hands.

3. Do you have noise-canceling headphones? Decorate them!

I decorated my N/C headphones in shark stickers because sharks are my special interest!

These are Soundcore Life Q30's. I have gotten compliments on the stickers many times! You could put halloween stickers on yours or decorate your headphones in other ways! I've seen people crochet horns onto the headband portion of their headphones.

4. I would recommend any chronically ill person carry a cup around to stay hydrated:

ESPECIALLY If you need electrolytes. You can either have a drink like propel or powerade in your cup (or any drink of your choice, and you could put electrolyte packets in there).

This specific cup isn't the best at keeping my drink cold, but it holds a decent amount of liquid! And it's spooky. If you're someone who struggles to drink enough water, I've found that getting a fun cup helps me a lot!

5. Make communication bracelets!

If I'm having a difficult time voicing my needs, or I'm in a verbal shutdown, these bracelets can come in handy for me.

I'll either wear them on my wrist when needed or present them to my friends so they can read the bracelet and understand what I need. I keep them on a keychain that way I dont lose them and can transport them easily. An example of some of the phrases I've turned into bracelets is; "No spoons," "spoon debt," "verbal shutdown," and "flashbacks," (for when I'm having a PTSD episode.) You could make a bracelet with the medical condition you have as a DIY medical-alert bracelet. I added tiny spoon charms to some of my bracelets because I thought it was funny.

5. Mobility aids!

Decorate your mobility aids with things like stickers, kandi, lights, etc! Pinterest, instagram, and tiktok have a lot of good ideas. You can easily customize your mobility aids to look spooky or look however you want them to!

6. Bags!

I know that for me, I NEED to carry a bag around whenever I go out because it has important medical items that I need, but it also keeps all my important items like keys, id, ect, in one spot so that I dont forget / lose them. SOME spooky bags are expensive, but you could find a plain black bag at a thrift store or walmart and accessorize it with patches, keychains, and pins! I've seen people paint designs onto their bags before as well.

• You dont have to spend a lot of money on your accessibility tools!

Find ways to DIY them, or get them secondhand! You could even try working with household items you already have! A lot of these items, or items very similar to it, can be found at the dollar tree - even the materials needed to make the beaded bracelets! (Outside of the spoon charms)

Thats all!

If I think of more, you'll see me again! Be spooky, and be kind to yourself!

[whatshouldwecallchronicillness]

When I don't know what to do with actually having energy on a good day...

[seldarinesorcerer]

By the way: these are not "handicap spots." They're "accessible parking spaces."

[Alt Text: two accessible parking spaces next to each other. The image is taken from the back, so the ADA symbol is oriented correctly. The curb is behind the parking spaces. There is a lamp post on the left-hand side of the image, aligned with the accessible parking space on the left of the image.]

[lupusbaby]

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

[chroniclesofchronicillness]

This makes so much sense

[vtk13]

“slut era” i whisper to myself as i rot in my bed, sick like a frail victorian child

[chronicallydragons]

anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me

[mybodychoseviolence]

“surely this will not cause my chronic illness to flare up,” i say, actively doing something that has never failed to flare my chronic illness

[i-the-spoonie]

[little-pissbaby]

fun fact about me! I have hyperadrenergic Postural Orthostatic Tachycardia Syndrome (hPOTS). this means I am prone to fainting when I change positions or when I feel a strong surge of emotion, positive or negative. for me, laughing is my worst non-postural trigger.

this is a clip from playing lethal company with friends a few months ago. you can hear the eerie silence of presyncope at 0:19, and the sound at 0:23 is my face hitting the keyboard lmao. I played this for my mother and she literally pissed herself laughing and DEMANDED I show every single person I know (including my doctors, who thought it was funny to see and surprisingly helpful, especially for being audio only).

[certifiedgoofball]

i hate when i, a completely healthy person (very chronically ill), get sick (flare up) for no reason at all (i exerted myself way past my limit just cuz i didn’t wanna be “annoying”)

[spookietrex]

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[stellaltumi]

stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.

[chronicsymptomsyndrome]

I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:

Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself through if you were to “tough it out.”

If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.

If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.

If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.

You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?

Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes

It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once

You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.

Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3

[chroniclesofchronicillness]

Sometimes best isn’t always possible