#new wheelchair

[noah-liketheboat]

I’ve recently begun using a wheelchair. Here’s the scoop.

I also started using forearm crutches even more recently but we’ll get to that in a second post bc this one got too long

I got my chair for $325 on OfferUp. It’s a motion composites Helio A6, and it has some fancy cushions on it. All in all I got it like 88% off of original price and it’s in pristine condition. Well, it was, until I brought it home and within 24 hours my cat scratched the (pink!!) paint job and put holes in the cushions. Thanks Misty. It now lives in the back of the car for its protection.

I put a clip-on cup holder on it and purple/white spoke covers. It’s pretty sick.

I use my wheelchair instead of walking/standing probably 30-40% of the time.

Personally

Oh my god it’s helped so much. I have so much more energy. I don’t flinch when I stand or walk. I can wait in line for food. I’m not dizzy, embarrassingly sweaty, and spacey just from standing in line anymore.

Because the previous owner spent literally $1,000 on special cushions (seat and back), I have the comfiest seat in any room 96% of the time. 10/10 would recommend. It helps with the back pain too obvi but first and foremost it’s so comfy.

I can go to the zoo. I get into the zoo for free because college but I can’t ever go because I can’t tolerate walking and standing for so long. But now I can go to the zoo!

I have more energy at the end of the day to participate in household chores and life. Before this, all my time was spent either in school or trying to recover enough to go to school again. Even doing my homework was difficult because of the fatigue, let alone date nights, hobbies, cooking dinner, sweeping the floors… it caused a lot of tension between me and my partner as well as my general being miserable.

Very steep learning curve. Very steep strength curve.

The ramp to my math class isn’t a steep grade but it’s long. When I started using it, I had to wheel up backwards. I got out of breath very easily and my shoulders were always aching something awful after going between classes. Now that hill is quite manageable and I only have sore shoulders if I’m going really fast or really far.

Wheelies. An unexpected but important skill. One that I am not good at. It took me weeks to get my wheels off the ground at all, but once I did I had a huge improvement and quickly was able to get my wheels ~6 or 8 inches off the ground. I still can’t sustain it though. I use them to go over bumps and get started up awkward ramps sometimes.

It’s been an amazing improvement to my life. I’m more independent, in less pain, happier, and more energetic. I should’ve done it earlier.

Observations:

People are weird. They talk to me more. Like, strangers ask me how my day is going in the elevator, people make small talk when they hold the door. This isn’t necessarily negative, but it is weird.

Kids stare. Adults also stare but they try to hide it. I don’t mind when kids stare though. They’re just curious and unaware.

I’m always a little nervous to ever stand up or walk out in public in case someone either thinks it’s a miracle and starts praising the lord or like hate-crimes me for “faking.”

When I wheeled in to all my classes after spring break, my teachers and seat mates were all instantly “oh my god what happened are you ok???” It’s a little awkward to explain that it’s just nerve damage that’s been getting worse.

People usually say “I’m so sorry” or “I hope you get/feel better soon!” And it’s like. I know their intentions are good, of course, but I don’t want people to be sorry! This has been an amazing life change for me! Also I’m not getting better, certainly not any time soon, and conversation gets awkward after that.

I think when I tell people it’s not really a “get better” thing, I think they at least subconsciously think it’s terminal or something?? Like. I’m not dying of nerve damage. I had nerve damage before spring break too. It’s just I finally decided to do something besides suck it up and hope I can make it through the day.

My campus is not as accessible as I once thought. The main culprit? UNLEVEL SIDEWALKS. They are the bane of my existence. My right arm will be pumping like my life depends on it and my left will be almost doing nothing. And then later when I’m doing the other way it’ll be the opposite.

There’s no ramp on the other side of one of the buildings I walk through to get to class. That was awkward.

There’s also a lot of cobblestone-type walking areas. Not only are they hella bumpy to wheel on, but they’re old and not well maintained. The cracks between slabs and the potholes can and will eject me from my chair if I’m not careful.

Funny story #1:

I rolled into the disability center on campus to take a test, as per usual (extended time and testing environment accommodations) and they had me wait while they got everyone else seated, which was weird, and then the testing coordinator came over to me and sat down next to me and was like “heyy how are you?” And I was like “I’m good, I’m good! Ah, well—*gestures to chair* yknow.” And she goes “Yeahh of course… so is this… new?”

Is it new??? Ma’am you see me every three weeks on the dot for tests, and every time for the past two years I’ve walked in on my own two feet, and today I come rolling in as I’ve transgendered into a vehicle. Yeah it’s new!!

Don’t worry I didn’t say that. I said “yeah, well, kind of. The chair is new, but the reasons aren’t. It’s just helping me a lot and my life is easier with it.” or smthn like that and she was like “oh ok good cool great”

Anyways, she just needed to tell me essentially that she would have me take my test at a height-adjustable table. Same room, same everything. Just instead of sitting in a test cubby I’d be at what’s essentially one of those standing desks. I was all nervous just for her to sit me at a table I can crank up and down like an old car window.

Funny Story #2

I’m rolling across the courtyard(??) in front of the library where they were having one of those random college of business things with tents everywhere. You’re aware. Just trying to get to class.

I hear “Hey! Excuse me, hey!” from behind me and I turn my head to see a girl frantically waving me down running across the grass. Naturally I’m intrigued.

She gets to me, a little out of breath, and then goes “Would you be interested in playing tennis?”

I look down at my chair. I look back up at her. “Ah… no…”

She was talking about adaptive tennis. Which I could’ve guessed probably but I was caught so off-guard and I was real confused.

She invited me to join the adaptive sports program/club thing, which is headed by a disabled professor but run entirely by able-bodied students (who get a class credit for volunteering with the organization, essentially). I told her I was really new so probably not, but I was willing to look into it. She gave me the professor’s email and I sent him an email like “hey one of your students flagged me down to talk abt adaptive sports but I’m shit at wheelchairing so probably not but I’d love to meet up and chat and get to know more about the program and stuff.”

It’s been a month. I haven’t gotten a reply or acknowledgement or anything.

All the stuff I can find about the program is obviously directed towards able-bodied students wanting them to volunteer or take the class. The Instagram has a post with each student in the class getting a slide with their lil intro and stuff. The professor only appears in group shots. At any rate I’m not that invested.

Personal Relations

Abled ppl when I told them I’m getting a wheelchair: oh no!! I’m so sorry!! What’s wrong!! That’s awful!! :((((

Disabled ppl when I told them I’m getting a wheelchair: omg that’s amazing I’m so happy for u :)

One exception to the able bodied trope: my youth group Bible study, surprisingly. I was sharing that I was really feeling a lot of turmoil about my decision and all that jazz and they were like “just do it. you already know it’s the right choice, and ur strong enough to do it” and they all “oohed” and “ahhed” when I rolled up with it next week. 10/10 queens.

My wheelchair has caused so many personal relationship issues in my life. So many.

Suddenly everyone’s a medical expert in me specifically. Everyone besides me knows what’s best, and what’s best is not a wheelchair. People who used to ask me what was wrong with them when they had a tickle in their throat or fell on their foot funny have apparently become scholars on complex hashimotos, nerve damage, neuropathy, and any and all suspected other conditions I may have. I wonder when they had time to do that, since they still don’t know how to care for a simple kitchen injury.

When I point out that the alternative to the wheelchair is constant+worsening pain and ask them if that’s what they think is best, these overnight medical experts get all huffy and don’t have an answer.

I have done extensive research about all my diagnosed conditions and possible ones over the course of many years. I’ve been in and out (mostly out) of at least a dozen doctor’s offices and done several rounds of different types of PT. I also live in my body 24/7. One of my earliest memories is of waking up my aunt at night during a sleepover because my nerve pain wouldn’t let me sleep. I wasn’t any older than 4. Back then the only words I had were leg cramps and growing pains.

I didn’t know my pain was abnormal for a long time. I’m good at hiding it. I’m good at “pushing through.” I experienced severe medical neglect, to the point of it being life-threatening, for nearly 2 years in the TTI and I was punished any time I tried to advocate for myself and my needs or really even talked about how I wasn’t physically well.

Basically I gave up trying to truly tell people how bad my quality of life was when I was about 16 because I wasn’t believed and I was often punished and/or had it used against me.

Nevertheless, everyone (read: my partner, my parents, and my partner’s parents) in my life thinks that I’m terrible awful wrong bad lying etc. for using the chair.

I’ve been using it for ~2 months and this is the first week my partner hasn’t argued with me about it or made an unnecessary comment. #1 worst thing they’ve said is that I’m “neglecting half of my body” by not walking 24/7. Oooh that made me mad. I do my PT almost every day, I stretch every day, I know exactly what almost every ache and pain originates from, I check in with my body constantly throughout the day. But I’m “neglecting it.” Not to mention that after my second appointment my Doctor specifically said he wants me using the chair until at least June.

My partner was originally very supportive, but then they talked to their mom and suddenly everything changed and they are borderline vindictive about my chair. Their mother is a Doctor, true, but most of her career she was a PICU nurse and also knows exactly nothing about my medical history except that I’m allergic to pecans and walnuts. Oh, and their dad has a friend who cured hashimotos by going gluten free, so obviously I’m just not trying hard enough or smthn. ((I’ve been almost gluten free before. No change.))

I cried every week about their attitude towards/comments about my chair except for this one. Every time I felt confident about it I would remember everything they said and my shoulders would physically slump. But no matter how many times I brought up how hurt and uncared for I was feeling, it ended up with me crying and them being either the same or more solid in their beliefs.

My therapist is a saint.

On the brightish side, my family and partner have finally begun taking my health and chronic issues seriously. I went to the Doctor two weeks after I got the chair and got started on a new medicine (a loop diuretic if anyone’s curious).

My mom keeps asking if I’m “better yet” and it’s really hurtful for some reason? She wants to know all my improvements, but when I start to say how my chair has helped so much, she cuts me off and says “no I mean the medicine.”

I am on the lowest dose they make, and I only take it every other day. I haven’t lost any weight since starting it (loop diuretics work by flushing excess water out of your body via peeing every twelve seconds, and this leads to weight loss. It’s estimated I’m carrying ~30lbs in water weight). Again, it’s been nearly two months. I’m the pissmaster 9000 every other day.

My mom at some point said she just “can’t accept that I’m in a wheelchair at 20.” My brother in Christ, what does that even mean? I’m not even using it full-time, or even the majority of the time.

I’ve had a follow up with my Doctor since I started but he kept me on the same dose even though I told him I haven’t lost any weight. Cest la vie.

He did tell me he wants me using the chair until at least June, and if all goes well he’ll start me in (another round of) PT, and it sounded like he wanted me doing decently intensive PT because he asked if I was in school in June and said it was good I wasn’t. If I go to PT, the chair usage advice will be passed on to them.

This post got far too long. I’ll split my crutches experience into a separate post and link it here once it’s up.

The chair herself. Yeah it’s in a bathroom don’t worry about it.

[calcone]

Hello disability tumblr, may I present my gorgeous new wheelchair! A Tilite TR, I’m so so thankful for her ⭐️ I’m thinking of naming her Aylin (after the BG3 character) or maybe Arwen (been on a LoTR kick recently).

My old chair was 18” wide, ancient, and not fit to me at all. This one is 14” wide and fits like a glove. I have never felt so supported sitting upright! I have never felt so nimble! I also got a Triride power assist for the front, which is much needed for commuting across uni campus! This has been a long time coming and I’m so thrilled to be able to leave the house independently for longer distances.

My friends have been just as excited for my new chair as I am, which has been so healing to my soul.

Also, the Jansport bag is so awesome! It fits perfectly and carries all my wheelchair essentials (toolkit, hand pump etc) with plenty of room left over. Highly, highly recommend it.

[ID: Slightly grainy photo. The front view of an active manual wheelchair with a silver titanium frame and push rims. Everything else on the wheelchair is black. A light blue JanSport adaptive crossbody bag is attached to the frame underneath the seat.]

[chronically-chaotic-cryptid]

Turns out I have to get either a specialist or ot report in order to bring my wheelchair into school. I don't know why, the department of education just said. I'd like to point out to then that when a girl got whacked by a car last year (she was fine dw and she's grand now) she got to come in using a chair no bother.

Thanks DOE. Really looking forward to more pain bc ye couldn't believe ME about needing my wheelchair and it being safe. Thanks.

Edit: turns out the SENO lied and told her something completely different to what she told me. I'm coming for her toes at this point

[radiotransmissionaac]

Picked up my wheelchair today!!!

(did have to psych myself up to go drive to the store (long way, already exhausted) but the staff were really kind and helpful and assembled it for me.)

There’s a super cute tea shop I’ve wanted to go to for weeks but haven’t been able to because I’ve just been too fatigued. It’ll be my first stop once everything’s opened after New Years.

Also I’m still processing that it’s mine. Like, I get to keep it? I can put stickers on it? It lives with me and no one is going to take it away? I’ve got a lot of thoughts and feelings to work through but most of them are joy and relief.

I went to the grocery store afterward and it was just, easy. I didn’t feel pressured by time, I could move around more freely, I wasn’t having to stop and rest. I wasn’t unbalanced and dizzy. It was (literally and metaphorically) painless.

[giveupyourlunchanddie]

Watching Ironside for the first time

So I fully broke my old wheelchair at my first ritual last year due to the less than ideal handicap accessibility at the venue. It took over a year, but I finally found a new one! I have a tradition of naming my chairs after epic disabled characters, my last chair was named after Logan Cale from Dark Angel for example. So now I have this brand new nameless chair. My mom let me know about a show from the 60s, I'm a sucker for shows from that period because they remind me of Bonanza which is a MAJOR comfort thing for me. Ironside. So I'm giving it a shot.

I have my doubts and reservations, but the actor is the same guy as Perry Mason and that show is a guilty pleasure of mine. So here's hoping! Plus I'm kinda looking forward to seeing how far we've come since the 60s when it comes to accessibility.

[reasonsforhope]

"For [Tanner] Green, the chief engineer at Not a Wheelchair, this is one of the thousand complications standing between his team and a rather lofty goal: upending the manual wheelchair marketplace.

If you’ve heard of Not a Wheelchair, it’s likely because of its owners, Zack Nelson, the star of the 8.8-million-subscriber YouTube channel JerryRigEverything, and his wife Cambry, a para and manual wheelchair user. The Nelsons got into the mobility equipment business a few years ago when they released The Rig, an electric, adaptive off-road device with a simple yet robust and functional design priced significantly lower than anything else on the market. Now, they’re bringing that same ethos to manual wheelchairs.

Not a Wheelchair aims to offer a base-model, custom manual wheelchair at a similar or better quality than most of the insurance-approved wheelchairs in the U.S. for $999.

Yes, that’s just under $1,000 for everything — wheels, handrims, tires, side guards and rigid, angle-adjustable backrest included. And the company plans to have a turnaround time of weeks, rather than the monthslong slog that it typically takes from order to delivery.

When I first heard about this, it sounded awesome and a bit far-fetched. It’s hard to find a pair of quality wheelchair wheels for less than $500. Same with a rigid backrest. How were they going to offer both, plus a custom wheelchair frame without compromising on quality? I drove to their headquarters in Utah to find out...

So how does Not a Wheelchair’s base model chair stack up to other options on the market? I hate to sound like a preacher, but … it’s totally reasonable! It hits the mark of being at least as good, if not better, than the majority of insurance-approved wheelchairs in the U.S.

Touring the factory, I saw other prototypes scattered all around the facility. There’s a beefier, four-wheel drive version of The Rig that the company just launched. There’s a track wheelchair that’s still in development. It’s clear that Not a Wheelchair doesn’t intend to stop at a simple, manual wheelchair. Inexpensive components, more advanced electric off-road devices, power assist, it’s all on the table. “We’re just really excited to see where this leads,” says Green."

-Article and video via New Mobility, October 1, 2024

[foldingfittedsheets]

My dad was looking to rehome his old electric bike and I stopped by to try it out. It’s pretty tall but I think that’s what you’re supposed to get for good pedaling.

But spoiler alert. Electric bikes are just. Fun.

My chronic fatigue has meant a lot less outside time overall and a limit on fun activities that are too vigorous. But I’m genuinely like. This is so accessible and makes outdoor stuff more achievable and it was just so exciting to be riding that I fully giggled aloud.

[dandelionsresilience]

Dandelion News - September 8-14

Like these weekly compilations? Tip me at $kaybarr1735 or check out my new(ly repurposed) Patreon!

1. Pair of rare Amur tiger cubs debuting at Minnesota Zoo are raising hopes for the endangered species

“[The Minnesota Zoo’s] Amur tigers have produced 57 cubs, [… 21 of which] have gone on to produce litters of their own, amounting to another 86 cubs. […] “They’re showing a lot of resiliency, which is something that we work hard for in human care. We want these animals to have a lot of confidence and be able to adapt to new environments just as they’re doing today.””

2. Powered by renewable energy, microbes turn CO₂ into protein and vitamins

“The team designed a two-stage bioreactor system that produces yeast rich in protein and vitamin B9. [… The protein] levels in their yeast exceed those of beef, pork, fish, and lentils. […] Running on clean energy and CO2, the system reduces carbon emissions in food production. It uncouples land use from farming, freeing up space for conservation[… and] will help farmers concentrate on producing vegetables and crops sustainably.”

3. JCPenney Launches Apparel Collection Aimed At Wheelchair Users

“A major department store is rolling out a new line of clothing specifically tailored to meet the needs of women who use wheelchairs featuring options for both everyday wear and special occasions. [… The clothing have] modifications like zippers located for easy access, pocket positioning and extended back rises optimized for the seated position and shorter sleeves to limit interference with wheels.”

4. Snails bred in Edinburgh Zoo sent to re-populate species in French Polynesia

“Thousands of rare partula snails bred at Edinburgh Zoo are to be released in French Polynesia to restore the wild population of the species.The last surviving few of the species were rescued in the early 1990s[….] 15 species and sub-species [are being bred in zoos for repopulation], the majority of which are classed as extinct in the wild.”

5. [NH Joins 19 Other States] to Provide Essential Behavioral Health Services Through Mobile Crisis Intervention Teams

“[CMS] approved New Hampshire’s Medicaid State Plan Amendment for community-based mobile crisis intervention teams to provide services for people experiencing a mental health or substance use disorder crisis. […] The multidisciplinary team provides screening and assessment; stabilization and de-escalation; and coordination with and referrals to health, social, and other services, as needed.”

6. Recovery plan for Missouri population of eastern hellbender

“It is expected that recovery efforts for the Missouri DPS of the eastern hellbender will reduce sedimentation and improve water quality in the aforementioned watersheds, which will also improve drinking water, as well as benefit multiple federally listed mussels, sport fish and other aquatic species.”

7. How $7.3B will help rural co-ops build clean power—and close coal plants

“[The funds are] serving about 5 million households across 23 states [… to] build wind and solar power, which is now cheaper than coal-fired power across most of the country. […] Some of it will be used to pay down the cost of closing coal plants[….] federal funding could help co-ops secure enough wind, solar, and battery resources to retire their entire coal capacity by 2032, cutting carbon emissions by 80 to 90 percent and reducing wholesale electricity costs by 10 to 20 percent[….]”

8. Native-led suicide prevention program focuses on building community strengths

“[Indigenous researchers have] designed programs that aim to build up a community’s endemic strengths, rather than solely treating the risks facing individuals within that community. By providing support and resources that enable access to Alaska Native cultural activities, they hope to strengthen social bonds that build resilience. […] “In a Yup’ik worldview, suicide is not a mental health disorder, and it’s not an individual affliction, it’s a disruption of the collective.””

9. Another rare Javan rhino calf spotted at Indonesia park

“A new Javan rhino calf has been spotted in an Indonesian national park, the facility's head said Friday, further boosting hopes for one of the world's most endangered mammals after two other […] calves were spotted earlier this year at the park, which is the only habitat left for the critically endangered animal.”

10. Transparent solar cells can directly supply energy from glass surfaces

“[Researchers have] unveiled a method of supplying energy directly from glass of buildings, cars, and mobile devices through transparent solar cells. […] It has also succeeded in charging a smartphone using natural sunlight. It also proved the possibility that a screen of a small mobile device can be used as an energy source.”

September 1-7 news here | (all credit for images and written material can be found at the source linked; I don’t claim credit for anything but curating.)

[maxpawb]

used a wheelchair for the first time and now im a changed man (I WENT ON A LONG OUTING WITHOUT EXCRUCIATING PAIN)

now i want to save up and get my own if possible

[joshuamj]

A continuation of my last post cuz I just had to draw the red life version, its also just so good.

[mast3r-rainb0w]

[C] 'SWAPPED' Styles: Joe Swanson + Kronk by Mast3r-Rainb0w

Joe Swanson is made in the “The Emperor's New Groove” artstyle, while Kronk is made in the “Family Guy” artstyle. As you can tell, their native artstyles are SWAPPED with each other, making this interesting combination you see here. This was a commission I made via Deviantart. Enjoy the fanart!

[chronically-chaotic-cryptid]

My wheelchair is coming on Friday!!!!!!! I'm so excited for this!!! I'm gonna have fatigue free and pain reduced mobility!! I'm gonna get to leave my house!!! It's gonna be GREEN

[fatuismooches]

Weird thing I always imagine. Idk if they’ve been invented in teyvat but let’s say they have so….rollie chair Dottore. Specifically if he’s taking care of fragile reader in his office, just cleaned their arm in preparation for needle, but wait that needle is over on his desk, that’s okay he’ll just wheelie over !! Idk just imagining him rolling from desk to desk to grab some papers and whatnot is so scientist/doctor coded

The only reason Dottore owns one of these rolling chairs is because you were the one who bought it in the first place (very much persuaded by Pantalone's luxurious one.) The Doctor prefers a regular ordinary chair, as that's what he's worked with his whole life and sees no reason to change, but that's also probably because he could care less as long as it doesn't break. You, however, are of the opinion that spinning chairs = fun. You replace his main chair with the rolling one. Dottore still doesn't care. He's much more in the habit of simply getting up whenever he needs something. You sit in his lap and try to push him to get it to roll but you're not strong enough for that of course. The mission is mostly unsuccessful. Mostly. He does sometimes unintentionally roll when the distance is short, and then just continues since he's already doing it. You find it very entertaining, and he does admit to the convenience. (Foxttore loves the chair the most. Lil shit refuses to get off it sometimes.)

[zebulontheplanet]

I want people to understand, as a new wheelchair user, I need patience. I need help. I need people to be there for me. Being a new wheelchair user is hard. Using a mobility aid is hard. Being new to using it, figuring out how to use it, dealing with the public, dealing with accessibility issues, all of that is hard. I need support.

My mom has been my support. She encourages me to use my wheelchair, she helps me get my wheelchair in and out of the car, she pushes me if i need it, she tells me to tell her if I need help. I appreciate that, and it’s the support I need. Me needing the support of others isn’t failure. Needing support isn’t failure. It’s thriving.

[reasonsforhope]

"This week, the Department of Transportation (DOT) announced a new rule requiring airlines to make bathrooms more accessible for disabled people. All new single-aisle aircraft will be fitted with fully-accessible lavatories.

Most flights inside the United States are single-aisle and as technology has improved, they are used more frequently for long flights, including coast-to-coast trips that can last as long as six hours. Double-aisle plans are already subject to the regulation but are primarily used for international flights.

Out Secretary of Transportation Pete Buttigieg announced the new regulations, saying, “Traveling can be stressful enough without worrying about being able to access a restroom; yet today, millions of wheelchair users are forced to choose between dehydrating themselves before boarding a plane or avoiding air travel altogether.” ...

The secretary has made it a priority to improve service on airlines during his tenure. In 2022, six airlines were forced to pay millions of dollars in refunds to hundreds of thousands of customers and were also fined millions for causing the issues. The department’s firm stance on the side of customers has continued through this year after multiple companies have had meltdowns, stranding thousands of travelers.

All planes delivered to airlines starting in 2026 must include several upgrades. Planes already in service will not need to be retrofitted unless the plane is renovated.

“These aircraft must have at least one lavatory of sufficient size to permit a passenger with a disability (with the help of an assistant, if necessary) to approach, enter, and maneuver within the aircraft lavatory, to use all lavatory facilities, and leave by means of the aircraft’s onboard wheelchair if necessary,” the DOT said in a statement.

Accessible faucets and controls, grab bars, accessible call buttons and door locks, minimum obstruction to the passage of an onboard wheelchair, and an available visual barrier for privacy are also required upgrades."

-via LGBTQ Nation, July 28, 2023

Wayyyyyyy fucking overdue but I'll take it!! Also, very nice curb cut effect: We all get to be less miserable on airplanes, and older people don't have to worry as much about airplane bathroom fall risks.

[foldingfittedsheets]

I’m getting a good grade in my job! Something that is normal to want and possible to achieve!