#medicaltrauma

[drbarbaralouw]

Supporting a loved one who is ill is a new and precious part of your relationship. As you embark on a road trip to wholeness, you will grow with that person. Read more: https://www.barbaralouw.com/index.php/blogs/in-my-rose-garden/180-supporting-a-loved-one-who-is-ill

If you feel helpless or stuck I invite you to contact me and make an online or in-person appointment today!

[hannahcrazyhawk]

Sometimes, you have to feel the panic attack completely instead of forcing it away. Either way is pain. 💔 #CPTSD #PTSD #panicattacks #Pain #disability #HidradenitisSuppurativa #DisabledInSTEM #NEISvoid #MedicalTrauma #Chemotherapy #autoimmune #DomesticViolence #spoonies #TBI #hospitalssuck #emergency #Lonely #POTS #blackandwhiteart #Crohnsdisease #sicknotugly #dysautonomia (at Portland, Oregon) https://www.instagram.com/p/CoEsO0IO6AC/?igshid=NGJjMDIxMWI=

[stimpunks]

Disability Inclusion Fund Grant Proposal

We recently applied for the “Disability Inclusion Fund Grant” and thought we’d share our answers to their questions. Table of ContentsQuestionsGuiding Values1. How has your organization’s programming and strategies used an anti-ableist framework?2. In what ways have your organization’s programming and activities built collective power to address ableism?3. What are some of the key program plans…

[sunnymegatron]

Pssstt! Jimanekia just released an expanded workbook! 😍 ****** Reposted from @jimanekia HAPPY EXPANSION DAY! What is your word of the year? My word is Expansion, and I want to support you in expanding. What once was three workbooks has become 1. Years ago, I released my first workbook. And today, I released an expanded version of that. This workbook is for anyone that has experienced body trauma: Sexual Assault, Medical Trauma, and Domestic violence. This workbook is for anyone that is seeking some direction and support. This workbook is for anyone trying to find the words to share what happened or is happening. This workbook is for anyone that wants some new tools in their toolbox.This workbook may be for you :). There are over 4o pages of information and activities for you in this workbook. You can print it out, or download it and fill it in digitally(pdf). This is not meant to GIVE you all the answers or HEAL you. But it is intended to support you and give you some direction. You can grab the workbook on my bio, or https://traumaqueen.love/digital-products #trauma #healing #sexualassault #sa #domesticviolence #dv #medicaltrauma #mt #body #bodies #bodytrauma #workbook #navigation https://www.instagram.com/p/CnD6F21L5gr/?igshid=NGJjMDIxMWI=

[autimulti]

(via Medical trauma AI Art - ND UK)

[thealmosttherapistwholosthermind]

MEDICAL TRAUMA

I am not a complainer by nature.

When the surgeon asks, "How are you doing?"

and I say, "I would like to revise my other side.”

I know I look calm and poised.

I know I suggest it in a pleasant manner.

But that DOES NOT mean I want to have brain surgery for funsies.

Hell NO!

Brain surgery sucks. No offense meant.

But recovery wrecks my life for months.

I can't be the mom I long to be.

The wife I used to be.

Or the therapist I need to be.

I am choosing this Hell a forth time

because I am currently living in it anyway.

Every time the dishwasher runs.

Every time my 9 year old is himself -- a loud rambunctious little boy.

Each time my husband runs his table saw and constructs something magnificent. I can't walk steadily for the rest of the day.

What am I supposed to do? Ask them to stop? Earplugs only help so much.

Nah, bro.

I am asking for you to cut my head open

so I can give them THEIR lives back.

So they don't have to dance around me anymore.

It's such a chore to be the one everyone works around.

Can you imagine what it’s like for them?

It's not about me. It's not about your numbers.

I just want my world to stop swaying with every clangor.

I want my world to stand still for THEM.

Even the air conditioner sets me back. But you didn't ask me that.

I could see it in your face.

I know the look by now,

I've had plenty of medical trauma

before reaching your virtual office space.

You could hardly wait to shut the metaphorical door in my face.

Wondering when my soul sucking need for surgery is going to end.

Well let me tell you, my friend,

I am also waiting to see how this story ends.

Like on it our lives depend.

#medicaltrauma #superiorcanal #scds #chronicillness #chronicillnesswarrior #brainsurgery #brainsurgerysurvivor #brainsurgeryrecovery #mypoetry #mypoeticjourneytohealing #originalpoem #poem

[mirletaliz]

Do you know what today is?!

It's my #bariversary!

(In my best Tony! Toni! Tone! voice.)

I have always struggled with my #weight. My entire life.

However, the effects of my MVAC chemo cocktail completely jacked up my metabolism, and despite my efforts, prescription medications, and physician supervision, my weight skyrocketed to an all-time high. Not only did it continue to climb, but it was affecting my health and triggered new diagnoses that will follow me for life.

I was uncomfortable in my own body. I had been resisting the surgical route due to the #MedicalTrauma and #PTSD from my #BladderCancer experience, but I knew that without intervention, it would not have mattered if I beat cancer or not.

I waved the proverbial white flag, got referred to a local bariatric team and started the long process.

It has now been 2 years since I had #GastricSleeve surgery.

My life looks different now. Progress has been slower than me or my medical team would like, but there has been progress nonetheless.

I am proud of the strides I've made even though I still have a way to go to reach my goal weight. I've continued to work despite life challenges and lots of physical plateaus.

Getting #bariatric surgery is not an "easy way out." It is not a quick fix. It is a tool in a long list of possible lifestyle changes that one could make.

Even if you have surgery, you still have to change how you think and how you move through the world. Most of all, you have to continuously DO. THE. WORK!

Highest Weight 380

Surgery Weight 336

Lowest since surgery 275

Current Weight 286

Goal Weight 180

Down 105 lbs, 17.1 BMI points, 18.34% body fat, and nearly 29 total inches...and still going!

[teacupsandtolstoy]

stream of consciousness/ thoughts from the in-between; the disabled hermit girl in denial & falling far behind the others out there living in the real world; trying to keep pace with a life no longer meant for her. approx 2021-2022.

Deadline/Completion Date: I’m not a complete fkn idiot. I’m not going to put a time limitation on something as important as this. Doing exactly shit like that - trying to fit my disabilities/chronic illnesses (Read: limited existence) & ADHD-hardwired way of thinking/navigating this world into a life that never quite fit right, that I could never really make work, and of course it was at a pace that I could never keep up with, leaving me behind and feeling defeated and very alone each and every time I tried my little heart out to make it work. My isolation at Balwyn Cottage and very limited social interactions outside of home or at all had this awful way of making me feel like I somehow had started existing outside of time that ticked by out there, watching people pass by my windows, faces almost distorted as if I were viewing them on a sped-up VHS tape.

The people. Busy & full with their intricate and interwoven lives. The million and one faces of humanity floating by the cottage window, every one blissfully unaware of the sickly hermit girl, hidden within the cottage, unseen for closed doors & shut garden gates - and how she ached with missing the daily ordinary of their lives. How they made moving through the world look as if they were dancing across days – their lives an artform – one that her neurodiversity could just never make sense of. She never ceases to gape in awe at the ease, the grace of movement - The people outside seem to be so inherently gifted with; the way they move effortlessly through the hours – stepping & spinning in and out of social circles, passions, learning; with the must-dos, need-to-dos, want-to-dos - beautifully burdened & blessed by the obligations & expectations bestowed.

And yet, the sick hermit girl is still to see any one of the many-faced outsiders stumble on the beautiful paths each of them cut through the day. Not one has ever missed a step.

Not yesterday. Or the day before yesterday. Nor last week. Not six months ago.

The sickly hermit girl has counted years made from the numbered days spent at the cottage window in silent wonderment at the beauty of the lives dancing across her view; at the artwork in their fluent motion, weaving through the world, navigating their paths through this life with such natural ease.

She cannot remember if everyone outside always were so teeming with rhythm & joie de vie - or perhaps everyone is a lowkey professional ballroom dancer in their spare time.

The sickly hermit girl didnt know. Even when she lived in that world, she never quite could figure out how.

Oh yes. She is envious.

#disabled #disabledisolation #chronicillness #immunocompromised #healthmandatedisolation #adhd #neurodiverseworld #disabledlife #sickly #hermit #hermitlife #streamofconsciousness #musings #forgotten #leftbehind #fullysick #disabledat31 #disabledyouth #sick #PEG #PEGfeeds #enteralfeeds #chronicmalnutrition #chronicmicronutrientdeficient #neuropathy #nervedamage #cognitivedamage #connectivetissuedegredation #geneticcondition #nailpatellasyndrome #botchedsurgery #endocrineconditions #PCOS #pituitaryadenoma #chroniccholecystitis #hyperactivegutnervoussystem #adhesions #abdominalcavityscartissue #gutdysfunction #stomachdysfunction #enteralfeeds #nasalgastrictube #stoma #medicaltrauma #medicalPTSD #medicalgaslighting #socialisolation #disabilityisolated #chronicmalnourishment #broketummy #alwayssick #leftbehind #PTSD #cPTSD #EMDRtherapy #diagnosed #TPD #totallyandpermanentlydisabled #fulltimecarer #unemployed #disabilitybenefits #healthindecline

(youtube channel collecting all the silly, weird, informative & sometimes very sad videos/clips ive been unconsciously making since becoming disabled in 2018)

(the only song ive ever heard about sickness & death that has ever knocked the wind outta me. its so fkn real that i completely fall to bits whenever i hear it.)

(pawninsuburbia secondhand & handmade. independent, disabled owned & run creative studio space. what i choose to do with the little functional hours that i am gifted. make beautiful things in spite of this place. skillshare tutorials free of charge for others facing isolation and poor mental health due to chronic health & disability/neurodivergence in the local community. how i use the two or so occasions per year i can get it together & put on a market stall/s to make new friends/enjoy my rare time out in the world & this small part i have in it. custom & collaborative orders, fully subsidised craft tutorials, online store channels, crafting how-to guide & item care instruction library downloads. upcoming events. depop store link. all enquiries & studio contact details. handmade gallery and previous works portfolio.)

[provokingdrama]

I started drawing this out the other day but hadn't posted it because I didn't want it to be misinterpreted as ecstasy or something. This sketch is about the adverse/allergic reactions I've had to certain antipsychotics (and various medications - opiates and things with codeine, and some anti-emetics) called Acute Dystonic Reactions or Extrapyramidal Symptoms. Uncontrollable seizure-like movements. This sketch is of the worst reaction I had in late April 2010 after being re-prescribed Zyprexa after having been off it for a while. My psychiatrist wasn't very good. Anyway it was a full-body reaction that I literally expected to die from. Every muscle group was affected and contracting. My face and tongue included- I was worried I my tongue would suffocate me (it was blocking my throat) or that the most important muscle would be affected- my heart. I was hyperventilating because my diaphragm was involved, and if it affected my lungs I thought it would get my heart too. Anyway, there was a lot of back arching involved at the ER. I don't remember anything more bc I was given Cogentin (Parkinson's drug) after my 2nd trip to the ER that day. Anyway, thought I'd share even unfinished. If I can finish it I'll paint it, it's a traumatic event I'd like to process artistically. It helps. Thanks for reading. #art #dystonia #convulsions #trauma #darkart #graphite #pencil #sketchbook #sketchart #badmedicine #processingtrauma #medicaltrauma #horror #horrible #lifeasart #graphiteonpaper #graphitedrawing #thanksforlistening https://www.instagram.com/p/CiEy4LnP9Wp/?igshid=NGJjMDIxMWI=

[drbarbaralouw]

Supporting A Loved One 101

Sometimes silence is welcome.

The trauma of an adverse medical diagnosis such as cancer brings an awkward wordlessness because it feels like there are no words to describe what happened. There are not enough words to describe what is on in one’s mind, emotions or body. In a single moment, life changes forever.

[chronicallydeemedmemed]

[silkense]

[the-mrs-k]

So exhausted from the changing seasons induced pain flare, still trying to catch up on housework from when I was restricted after surgery (all of July & August), working out the logistics of not dying of hunger or caffeine withdrawal during kitchen remodel (3 weeks from now), juggling PT/dr appts/imaging appts around taxiing teen to/from school daily, and all the other dreck like grocery acquisition/cooking/showering. Have I exhausted y’all yet? Thankfully, tomorrow is a school half day which means I don’t have to play taxi (parent/teacher agreement we’re excused from 1/2 days)! But, no sleeping in for me because… PT at 9a, so I’ll get an extra 90 minutes to sleep (maybe?) & then hit the ground running! #fibromyalgia #hypermobility #ehlersdanlossyndrome #arthritis #enthesitis #bipolar #panicdisorder #adhd #ptsd #medicaltrauma #vitiligo #ocd #crpsawareness https://www.instagram.com/p/CV3Xh2evusB/?utm_medium=tumblr

[bbspersonification]

Life.

Can I just rant for a moment? I am Highly Emotional (due to a few Hormonal Imbalances and Mental Health issues) and considered by medical standards Obese. 

Now that this is established, why is it so difficult for doctors to understand that I am aware of what body I am living in, and I am not coming to them for an evaluation of weight loss or emotional stability. When I go into a OBGYN office and I request to be seen for dangerous and concerning issues they write me off as either mentally unstable, "Crazy" or just "fat"? 

I have developed over the years an eating disorder, emotional trauma, and an avoidance for getting medical treatment due to the constant theme of being told I'm crazy or just fat. While I am aware that being "obese" and "overweight" comes with it's own set of medical problems, is it not a doctor's responsibility and job to care for a patient without this lack of regard? I also am unable to see a therapist for my mental instability due to the lack of coverage from my medical and inability to pay out of pocket, so this makes it difficult to care for myself in this way as well.

I am at the point where I am so fearful of ever talking to a doctor, especially a specialist, about my health because of this constant brush off. I have been looking and recommended for weight loss surgery for my health, but due to my medical I currently have I am not considered Obese enough to have weight loss surgery or even start the process. I also can not afford to pay for the process out of pocket. I've lost a lot of respect and trust in doctors, especially doctors in Skagit County, WA as a whole. I am extremely tired emotionally, mentally, and physically. I am just done...

-Rant over

[itdoesart]

Alright, there's a story about this. A few months ago I told my husband about having to say "peeboobs" to a customer service rep because they needed to log in to my account to fix it and that was my password. I was MORTIFIED that I had to say it. Jeremy thought this was hilarious. So, in late August, he collapsed in our bathroom and had to be rushed to the trauma ER at Duke in Durham. He was in a lot of pain and in really bad shape (broke 3 ribs and caused a lot of internal damage which ended with him being put on a ventilator). Anyway, he needed to come up with a password that someone would have to say to the medical team in order to get information about him. What he chose? Fucking PEEBOOBS. So, Everytime I, or anyone else, called to check on him, we had to say Peeboobs to medical professionals. In his delirium and pain, that is what he chose for his password. Since our bills are high, my friend Lisa made these patches and is selling them for $10 to help cover expenses. . . . #teampeeboobs #peeboobs #motorcyclepatch #handmade #funny #surgery #dukeuniversityhospital #durhamnc #durham #raleighnc #raleigh #emergencyroom #medicaltrauma #medical #password #secretcode #nolongerapassword #motorcycle #patch #patches (at Raleigh, North Carolina) https://www.instagram.com/p/CU79aioL1iX/?utm_medium=tumblr