#mad rights

[chronicallycouchbound]

Guide to interacting with people with psychosis spectrum disorders and psychotic symptoms

If someone who has psychotic symptoms is talking to you about their hallucinations or delusions, do not suggest:

That they are inherently violent or dangerous Why: Statistically, people with psychosis are more likely to be victims of violence, not perpetrators. They are more likely to be killed by police than people without mental illnesses.

That their hallucinations are actually reality and everyone else can’t experience it Why: this can cause further dissonance between reality for the person, especially if they’re actively experiencing symptoms. It can lead to derealization and depersonalization, and exasperate or trigger hallucinations and/or delusions.

That they are a prophet, god, all powerful, etc. Why: along with the above reason of causing further separation from reality, many people with psychotic spectrum disorders experience delusions, one common type of delusion is called delusions of grandeur, which is a specific delusion around perceiving oneself or one’s accomplishments as greatness or of higher status than others. This specific delusion can be dangerous because it can lead to the person believing that they are immune to consequences, including physical harm to oneself. By affirming beliefs of the person being god-like, it can trigger or exasperate this delusion. This is especially common with people who have Bipolar type 1 with psychotic features and they are in manic states.

That they should just meditate Why: Meditation often isn’t safe for people with psychosis! Studies show that unguided meditation is especially risky, because without focusing on reality, people with psychotic symptoms are more likely to have hallucinations, or have depersonalization/derealization.

That you can see/hear it too, when you can’t/lying to agree with their hallucinations Why: This will absolutely exasperate symptoms, also it’s lying and is wrong and a genuinely horrible thing to do. This one should be obvious.

That they should just use cannabis or other psychoactive drugs Why: THC and other psychoactive compounds, can trigger psychotic episodes in people who have or are predisposed to psychosis, and trigger anxiety and hallucinations, which can exasperate symptoms. That being said, individual experiences may differ greatly, and they may be able to use psychoactive substances with no issues, but to suggest it as a cure-all or without a proper understanding of its possible negative side effects can be dangerous. Also, many antipsychotics and other psychiatric medications interact with many psychoactive drugs, so it’s important to know if it’s physically safe for them to use both at once.

Things you can say/do instead!

When actively experiencing symptoms/episodes:

Maintain a calm and steady tone of voice, don’t yell.

Explain what you’re doing before you do it, and try to avoid sudden movements which can scare or jump someone

If they have an action plan, follow it. I also urge you to remember that they’re scared right now. They likely don’t want to hurt anyone, but they’re terrified. Find ways to be safe, preferably that don’t involve police (there are lots of statistics around why this is unhelpful and can be dangerous)

“I understand that you feel scared right now, let’s find ways to be safe through this.” Be supportive! Psychotic symptoms are similar to symptoms of any other mental illnesses, when someone is depressed or anxious, we often reach out with kindness, remember that people with psychosis also need that compassion and consideration.

“We are at [location], I am [name] we are [relationship to person], we are safe” Talking about reality can be really helpful, most people with symptoms need some guidance around basic understandings of reality, affirming what is real can help them distinguish what is and isn’t. An important note, reality checks can sometimes be more harmful than helpful. Usually, a person who needs a reality check will just ask the questions: “Who are you?”, “Where are we?”, Etc.

Sometimes, doing reasonable things to help them feel safer is necessary to help them calm down enough that they stop having severe symptoms. For example, someone who is afraid that people are watching them might want to cover windows and lock doors, help them create a safe space for them mentally by doing that. Some requests might be a bit odd, but harmless, like putting salt in the doorways so demons can’t get in, you can do that, or find alternatives to help them feel safe. It’s important to try to create this safe space while also affirming reality.

Try not to focus on the specific hallucination, but rather on their feelings, for example instead of talking about the demons or details about the demons, talk about their feelings about the demons, and how you can make them feel safer. It can help them feel secure to have someone in reality helping them stay safe while they cope with these scary symptoms.

Ask permission before touching, consent is particularly important for people with psychosis, we are often stripped of our right to consent while in episodes.

Offer snacks, stuffed animals, or other comfort items

When talking about their experiences, diagnosis, or when not in episodes:

Ask how you can be supportive, both in and outside of episodes, some people need help with remembering medications, or someone to call when they’re scared and having symptoms. Sometimes it just helps to be able to explain what they’re going through and have someone just listen. They know their needs best.

Help them come up with a crisis/safety plan for when they have episodes, it can literally save their life, or at least make it more manageable and sometimes less scary.

Check on them if they seem off, have life changes, or are isolating.

Learn their warning signs and help them stay safe before they have episodes, and hopefully prevent them from happening or being more unmanageable.

Offer to do reality checks if that's something that helps them

Offer to do medication reminders ( if you're able to)

I was diagnosed with Bipolar 1 with Psychosis when I was 18. I have many psychotic symptoms including hallucinations, delusions, derealization, and depersonalization. This was written from my own experiences, research, and recommendations from providers. I highly recommend seeking out more information and experiences about psychosis to gain a more comprehensive understanding of it. No guide is one-size-fits-all, and this is definitely incomplete in many ways, but hopefully, this provides some insight or education for you.

[theartistrans]

[salamanderinspace]

I wanted to save these comments from a youtube video called "Is CBT Harmful for autistic adults?" The video itself is great - you can search it out and watch it - but I REALLY loved all the personal testimony in the commentary, some of which is very descriptive.

I've never officially been through CBT but I get the sense that a lot of people I talk to socially HAVE been through it, and they try to … charitably, share their training and restructuring as a tool that they think might help me. People can tell I'm weird. They often jump straight to "ok, this person has trauma," and to approaching that in the way they've been taught is helpful: with distrust. With an absolute refusal to take what I'm saying seriously.

Anyway. Take a look:

and this one, I especially liked:

[ilona-mushroom]

Not socialist in a “I won’t have to work” type of way but socialist in a “I’ll still be working but I won’t be worried I won’t make the rent” type of way. In a “billions won’t be hoarded by one person” type of way. In a “janitors, fast-food workers, child care workers, preschool teachers, hotel clerks, personal care and home health aides, and grocery store cashiers, will live comfortably” type of way. In a “the sick and elderly will be cared for” type of way. In a “no child should work” type of way.

[whereserpentswalk]

The nazis that you see in movies are as much a historical fantasy as vikings with horned helmets and samurai cutting people in half.

The nazis were not some vague evil that wanted to hurt people for the sake of hurting them. They had specific goals which furthered a far right agenda, and they wanted to do harm to very specific groups, (largely slavs, jews, Romani, queer people, communists/leftists, and disabled people.)

The nazis didn't use soldiers in creepy gas masks as their main imagery that they sold to the german people, they used blond haired blue eyed families. Nor did they stand up on podiums saying that would wage an endless and brutal war, they gave speeches about protecting white Christian society from degenerates just like how conservatives do today.

Nazis weren't atheists or pagans. They were deeply Christian and Christianity was part of their ideology just like it is for modern conservatives. They spoke at lengths about defending their Christian nation from godless leftism. The ones who hated the catholic church hated it for protestant reasons. Nazi occultism was fringe within the party and never expected to become mainstream, and those occultists were still Christian, none of them ever claimed to be Satanists or Asatru.

Nazis were also not queer or disabled. They killed those groups, before they had a chance to kill almost anyone else actually. Despite the amount of disabled nazis or queer/queer coded nazis you'll see in movies and on TV, in reality they were very cishet and very able bodied. There was one high ranking nazi early on who was gay and the other nazis killed him for that. Saying the nazis were gay or disabled makes about as much sense as saying they were Jewish.

The nazis weren't mentally ill. As previously mentioned they hated disabled people, and this unquestionably included anyone neurodivergent. When the surviving nazi war criminals were given psychological tests after the war, they were shown to be some of the most neurotypical people out there.

The nazis weren't socialists. Full stop. They hated socialists. They got elected on hating socialists. They killed socialists. Hating all forms of lefitsm was a big part of their ideology, and especially a big part of how they sold themselves.

The nazis were not the supervillians you see on screen, not because they didn't do horrible things in real life, they most certainly did, but because they weren't that vague apolitical evil that exists for white American action heros to fight. They did horrible things because they had a right wing authoritarian political ideology, an ideology that is fundamentally the same as what most of the modern right wing believes.

[c-is-for-circinate]

Came back wrong? How about came back right, except that the world you came back to is wrong. Came back just like waking up from a long nap only to find that the people who love you broke themselves into shards and bloody bargains to get you back.

There are new stains that nobody will explain, hidden beneath the rug in the upstairs hallway. Your mother's left eye is clouded and strange. The cat no longer goes near your brother. There's a sharp-edged shadow now, under your lover's smile.

Everybody says you must be remembering wrong, but your sense of smell is just as good as ever. The closet that used to smell like cedar and cinnamon smells like sulfur, now, and nobody will tell you why.

[rosesforwildwitches]

The first therapist I ever saw was a counselor at my college's mental health center in my freshman year. I told them I had issues with suicidal ideation and self harm, as well as significant problems with my family. The counselor asked if I was going to kill myself in the next three days, and when I said no she printed out a list of google results for "therapists in my area" (half of which I knew didn't take my insurance). She then told me that the counseling center didn't do long term therapy sessions and referred anyone who needed more than 2-3 sessions for an issue to outside places (which blatantly contradicted the services offered on the university's counseling center page). After that I was left alone with the only actionable help or direction being that printed google page of irrelevant search results.

The second therapist I ever saw was professional but very distant, and only ever gave me workbook items and worksheets to deal with the symptoms of anxiety as they came up. While I will say those tips and coping skills were helpful, she was also a bad fit for me personally, as I barely made any actual mental health progress with her beyond maybe not panicking as badly during anxious moments, and I frequently had issues addressing family or friendship things in my session that were absolutely affecting my mental health and should have been a part of my sessions. While she did do her job well and was professional, she and I weren't a good therapist-client fit, but I wound up having to stay with her if I wanted any therapeutic help whatsoever because my insurance was screwey at the time and she was one of only 3 therapists in my state who I knew I could reliably get insurance coverage for at the time.

My third therapist actively prevented me from getting my tubes tied when the actual gynecological surgeon had a 1 hour in person interview with me and said I was well prepared and good to go on it 2 months before the surgery date. The therapist (who I had listed as "other healthcare provider" in some paperwork asking if I had a primary care doctor or anyone else I saw regularly) was then called by the hospital without my permission (unless something in the ream of forms addressed it but I don't recall a release of information being in there), and she then blocked me from getting sterilized and told the hospital I wasn't component enough due to my mental health diagnosis of moderate depression and anxiety, despite the fact that from a legal and medical viewpoint my ability to manage myself has never been a problem.

I didn't go to a therapist again for three years after that despite having active self harm problems and significant relationship and mental health issues. It took me literally staying in my room for six weeks eating only one meal of junk food binging a day, nearly flunking out of my classes in the last semester of college, and seeking out pro-suicide online sites and forums before I went back into any therapy because I had no other options other than killing myself.

i do think therapy recommenders on here wildly irresponsibly downplay its potential risks lmao starting obviously w/ the threat of psych and criminal institutionalisation which is structurally inherent to the patient-physician relationship but also the maybe more mundane risk of simply receiving treatment that is bad for you and counterproductive. i do not know where the idea came from that therapy is 'at worst useless'. at worst it fucks you up majorstyle

[kneptoon]

Shoutout to leftists who are too poor/disabled to give back to their community.

Shoutout to leftists who are too poor/disabled to shop at local/small businesses.

Shoutout to leftists who are poor/disabled and have to buy things from Amazon and other megacorps because it’s the most cheap or convenient.

Shoutout to leftists who are too poor/disabled to reduce their environmental footprint because they need the single-use plastics.

Shoutout to leftists who can’t go vegan because of dietary needs, disordered eating, or neurodivergence.

Shoutout to leftists who can’t volunteer or go to community events/protests/noise demonstrations because of inaccessibility.

Shoutout to leftists who can only be politically active online because they’re housebound.

Shoutout to leftists who are disabled and are rarely politically active because they simply don’t have the energy.

Shoutout to leftists who can’t be politically active because they’re under the care of a guardian or are trapped in an abusive situation, and they don’t have control over their finances/belongings.

Shoutout to leftists who can’t read theory, or who have trouble reading theory, but still do their best to learn.

Shoutout to leftists who can’t understand theory at all because of cognitive/intellectual disability.

Shoutout to leftists who want to be more active in their community but can’t because they struggle with anxiety, socializing, or maintaining relationships.

Shoutout to leftists with personality disorders, complex trauma disorders, conduct disorders, OCD, psychosis, and any other leftist whose personality or thoughts often unwillingly go against their beliefs due to a trauma response or chemical imbalance.

Shoutout to leftists who don’t have any “practical” skills that would be needed in a commune (i.e farming, building, sewing)

Shoutout to leftists who are too busy simply trying to survive to even think about being politically active.

Shoutout to leftists who have to always ask for mutual aid but can never give back.

Shoutout to all the leftists who can’t do this and can’t do that and can’t do the things that leftists are “supposed” to do. No one person is perfect.

You aren’t a fake leftist for not being able to do these things. All that matters is that you put in the effort, in whatever way that you can.

It’s not about your abilities as an individual. It’s about our power as a collective.

[rocktheholygrail]

Hannibal (2013-2015)

[hyperlexichypatia]

As I keep shouting into the void, pathologizers love shifting discussion about material conditions into discussion about emotional states.

I rant approximately once a week about how the brain maturity myth transmuted “Young adults are too poor to move out of their parents’ homes or have children of their own” into “Young adults are too emotionally and neurologically immature to move out of their parents’ homes or have children of their own.”

I’ve also talked about the misuse of “enabling” and “trauma” and “dopamine” .

And this is a pattern – people coin terms and concepts to describe material problems, and pathologization culture shifts them to be about problems in the brain or psyche of the person experiencing them. Now we’re talking about neurochemicals, frontal lobes, and self-esteem instead of talking about wages, wealth distribution, and civil rights. Now we can say that poor, oppressed, and exploited people are suffering from a neurological/emotional defect that makes them not know what’s best for themselves, so they don’t need or deserve rights or money.

Here are some terms that have been so horribly misused by mental health culture that we’ve almost entirely forgotten that they were originally materialist critiques.

Codependency What it originally referred to: A non-addicted person being overly “helpful” to an addicted partner or relative, often out of financial desperation. For example: Making sure your alcoholic husband gets to work in the morning (even though he’s an adult who should be responsible for himself) because if he loses his job, you’ll lose your home. https://www.nytimes.com/2022/07/08/opinion/codependency-addiction-recovery.html What it’s been distorted into: Being “clingy,” being “too emotionally needy,” wanting things like affection and quality time from a partner. A way of pathologizing people, especially young women, for wanting things like love and commitment in a romantic relationship.

Compulsory Heterosexuality What it originally referred to: In the 1980 in essay "Compulsory Heterosexuality and Lesbian Existence," https://www.journals.uchicago.edu/doi/abs/10.1086/493756 Adrienne Rich described compulsory heterosexuality as a set of social conditions that coerce women into heterosexual relationships and prioritize those relationships over relationships between women (both romantic and platonic). She also defines “lesbian” much more broadly than current discourse does, encompassing a wide variety of romantic and platonic relationships between women. While she does suggest that women who identify as heterosexual might be doing so out of unquestioned social norms, this is not the primary point she’s making. What it’s been distorted into: The patronizing, biphobic idea that lesbians somehow falsely believe themselves to be attracted to men. Part of the overall “Women don’t really know what they want or what’s good for them” theme of contemporary discourse.

Emotional Labor What it originally referred to: The implicit or explicit requirement that workers (especially women workers, especially workers in female-dominated “pink collar” jobs, especially tipped workers) perform emotional intimacy with customers, coworkers, and bosses above and beyond the actual job being done. Having to smile, be “friendly,” flirt, give the impression of genuine caring, politely accept harassment, etc. https://weld.la.psu.edu/what-is-emotional-labor/ What it’s been distorted into: Everything under the sun. Everything from housework (which we already had a term for), to tolerating the existence of disabled people, to just caring about friends the way friends do. The original intent of the concept was “It’s unreasonable to expect your waitress to care about your problems, because she’s not really your friend,” not “It’s unreasonable to expect your actual friends to care about your problems unless you pay them, because that’s emotional labor,” and certainly not “Disabled people shouldn’t be allowed to be visibly disabled in public, because witnessing a disabled person is emotional labor.” Anything that causes a person emotional distress, even if that emotional distress is rooted in the distress-haver’s bigotry (Many nominally progressive people who would rightfully reject the bigoted logic of “Seeing gay or interracial couples upsets me, which is emotional labor, so they shouldn’t be allowed to exist in public” fully accept the bigoted logic of “Seeing disabled or poor people upsets me, which is emotional labor, so they shouldn’t be allowed to exist in public”).

Battered Wife Syndrome What it originally referred to: The all-encompassing trauma and fear of escalating violence experienced by people suffering ongoing domestic abuse, sometimes resulting in the abuse victim using necessary violence in self-defense. Because domestic abuse often escalates, often to murder, this fear is entirely rational and justified. This is the reasonable, justified belief that someone who beats you, stalks you, and threatens to kill you may actually kill you.

What it’s been distorted into: Like so many of these other items, the idea that women (in this case, women who are victims of domestic violence) don’t know what’s best for themselves. I debated including this one, because “syndrome” was a wrongful framing from the beginning – a justified and rational fear of escalating violence in a situation in which escalating violence is occurring is not a “syndrome.” But the original meaning at least partially acknowledged the material conditions of escalating violence.

I’m not saying the original meanings of these terms are ones I necessarily agree with – as a cognitive liberty absolutist, I’m unsurprisingly not that enamored of either second-wave feminism or 1970s addiction discourse. And as much as I dislike what “emotional labor” has become, I accept that “Women are unfairly expected to care about other people’s feelings more than men are” is a true statement.

What I am saying is that all of these terms originally, at least partly, took material conditions into account in their usage. Subsequent usage has entirely stripped the materialist critique and fully replaced it with emotional pathologization, specifically of women. Acknowledgement that women have their choices constrained by poverty, violence, and oppression has been replaced with the idea that women don’t know what’s best for themselves and need to be coercively “helped” for their own good. Acknowledgement that working-class women experience a gender-and-class-specific form of economic exploitation has been rebranded as yet another variation of “Disabled people are burdensome for wanting to exist.”

Over and over, materialist critiques are reframed as emotional or cognitive defects of marginalized people. The next time you hear a superficially sympathetic (but actually pathologizing) argument for “Marginalized people make bad choices because…” consider stopping and asking: “Wait, who are we to assume that this person’s choices are ‘bad’? And if they are, is there something about their material conditions that constrains their options or makes the ‘bad’ choice the best available option?”

[salamanderinspace]

Much Madness is divinest Sense -

To a discerning Eye -

Much Sense - the starkest Madness -

’Tis the Majority

In this, as all, prevail -

Assent - and you are sane -

Demur - you’re straightway dangerous -

And handled with a Chain -

(Emily Dickinson)

[zillychu]

i have entirely too many people enabling me to stop at this point

[isabellascarlett1]

There’s nothing inherently “scary” about someone talking to themself in public.

There’s nothing “scary” about someone rocking back and forth in public.

There’s nothing “scary” about someone pacing back and forth in public.

Some of y’all are just ableist.

[gothicwill]

Mads mikkelsen decided that incurring a back injury by bridal carrying a grown ass man instead of the scripted fireman carry, just for the dramatic flair of it all, was worth it. what would we do without him.

[detentiontrack]

i think the people criticizing chappell roan right now don't understand how bipolar disorder works. chappell roan is diagnosed with bipolar 2. do you know how hard it is to keep it together with major life changes when you are constantly going through phases of hypomania/mania and depression? big life changes can trigger a catastrophic episode. i was hospitalized after moving or almost moving TWICE. you know what is a really big change? suddenly becoming as famous as she is in such a short period of time. bipolar can also cause paranoia and difficulty trusting people. you know what can trigger that? being constantly approached in public by people asking for hugs and pictures and literally FOLLOWING HER WHEREVER SHE GOES. SOME of yall are like "mental health matters <3" but as soon as someone puts down reasonable boundaries or prioritizes their mental health, y'all go after them. i feel that some of you guys just expect musicians and other artists to be emotionless content machines and call them selfish when they actually experience emotions and need boundaries in place. chappell roan is a human being before she is a musician. she does NOT owe you ANYTHING!! at this point the people whining just sound selfish and unsympathetic.

[transsexualfiend]

Cripplepunk, madpunk, and neuropunk aren't just "I'm disabled and also left-leaning". It's a specific realm of activism rooted in dismantling the systems that put disabled, mad, sick, etc folks at a disadvantage in society. This mean not only being against the very systems that harm us but also understanding their colonial origins and continued racist legacies. (Anti-ableism, anti-sanism, anti-psych, etc). This means not only just identifying and finding pride in your disability but also building and constantly evolving your understanding of disability and diversity and learning how you can change your worldview to accurately highlight the struggles of disabled people. (EVEN if it sometimes means you will be uncomfortable or unsure of unlearning some kinds of hate.)