hyperlexichypatia
hyperlexichypatia
HyperlexicHypatia
2K posts
Mad pride, neurodiversity, disability rights, youth rights, LGBTQIA+ rights, cognitive liberty, bodily autonomy. Occasional other stuff. She/they. All ages welcome.
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hyperlexichypatia · 12 hours ago
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hyperlexichypatia · 14 hours ago
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hyperlexichypatia · 15 hours ago
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cruelty is so easy. youre not special for choosing it
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hyperlexichypatia · 1 day ago
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hyperlexichypatia · 2 days ago
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TW: animal death / injury / death For grandma, who loved pigeons, and for grandpa, who did not but wanted her to be happy. Please hear me out <3 WEBTOON
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hyperlexichypatia · 2 days ago
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nothing is more frustrating than when I’m leading a serious discussion about the importance of learning how to properly research folklore & cultural stories from reliable sources and someone pipes in like “why does it matter if it’s all made up anyway?”
yeah dude vampires are made up and the whole “vampires couldn’t see their reflections in antique mirrors because of the silver backing” is made up so you can combine those however you want for fun.
but you can’t say “the Victorians believed vampires couldn’t see themselves in mirrors because of the silver backing, which is why Dracula has no reflection,”
because the author of Dracula was a real man who never said that and the Victorians were real people of a real era and you can’t just make up things about real people because it’s important historically for us to understand what people believed about the world and why.
Making up facts about vampires is folklore & literature. Claiming random people in the past believed that, with no evidence, is just lying.
Am I making sense??
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hyperlexichypatia · 2 days ago
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hyperlexichypatia · 3 days ago
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If you have a stockpile you are an addict
Btw you have to refill on the same day you run out of medication
Btw you will have seizures and possibly die if you miss your medication
Btw the pharmacy will not order your medication in advance of the one day you are allowed to call and refill it
But you are an addict who should be criminalized if you have a few days stockpiled so you don’t have a seizure and die.
This is a normal way to treat disabled people who need medication that keeps them from dying.
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hyperlexichypatia · 3 days ago
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Since 2014, millions of Uyghurs, Kazakhs and other minorities have been locked up in China and subjected to torture and forced labour. Some of those freed talk about trying to rebuild their lives in neighbouring Kazakhstan.
Photography by Robin Tutenges
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A Chinese course book
Saliman Yesbolat used to live in Ghulja county, Xinjiang. After she refused to denounce her Uyghur neighbours to the police, she was forced to perform the raising of the Chinese flag every Monday at dawn, and to attend Chinese lessons twice a week in the basement of her building, where she would learn the Chinese language, patriotic songs and Xi Jinping's discourses by heart. This is her exercise book.
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Forced to leave China
At 65, Imam Madi Toleukhan is one of the oldest refugees in Bekbolat, Kazakhstan, where more than 100 families took shelter after fleeing the Chinese regime. 'We were richer back there. I owned a herd, but I was too afraid for my sons, my grandchildren and their future: I came to Kazakhstan to save them. I didn't want them to be the fourth generation to suffer at the hands of the Chinese government, he says.
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Remembering Uyghur culture in exile
Two members of the Dolan Ensemble, a Uyghur dance troupe based in Kazakhstan, get ready before performing a traditional dance to mark 40 days since the birth of a baby. Founded in 2016, the troupe performs at festivals or private events that bring together members of the Uyghur community, some of whom have had to leave Xinjiang.
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Torture, infertility and damaged genitalia
In Kazakhstan, medical care for camp survivors is poor. Most victims can barely afford to see a family doctor. Anara*, an endocrinologist in a Kazakh hospital who has examined about 50 camp survivors since 2020, noticed recurrent infertility problems among her patients. 'Men or women, many have damaged genitalia. Some told me they'd been given drugs, others said they'd been raped. As they didn't come to us right after being released from the camps, it's impossible to know what kind of drugs they were administered in Xinjiang, she says. *Not her real name
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The tiger chair
Ospan* spent a year in a re-education camp. He says his mind and body were crushed by the tortures he experienced in a tiger chair - a steel apparatus with handcuffs that restrains the body in painful positions. Aged about 50, this former shepherd, who took refuge with his family in eastern Kazakhstan, is no longer fit for work. Physically wrecked and prone to headaches, he mourns the loss of his memory above all. 'I used to know a lot of songs and I loved to sing; I also knew poems by heart ... Now, I can't sing any more, I can't remember the words,' he says. *Not his real name
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Broken families and imprisonment
Aikamal Rashibek saw the dreadful efficiency of the CCP's brainwashing on her husband, Kerimbek Bakytali, after he was released from a Chinese psychiatric hospital. 'He disappeared for a year. When he came back, he didn't tell me anything about what happened to him. He was highly unhinged, always nervous, and got angry whenever I asked questions. He couldn't stop repeating that he hated Kazakhstan now, and that he wanted to go back to China with the kids to give them a Chinese education, says Aikamal. They are now separated.
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Missing loved ones in China’s camps
In March 2017, Miyessar Muhedamu, left, a Uyghur woman, was arrested in Xinjiang under the pretext that she had studied Arabic in Egypt when she was young. Her husband, Sadirzhan Ayupov, right, and her three children have not seen her since. Now that Miyessar has left the camp, Sadirzhan receives a short call every few months. He suspects she might have suffered abuse, yet Miyessar can’t speak freely. ‘She told me she’d been in a re-education camp, and that she’d been released. When I ask her what she went through there, she doesn’t answer,’ says Sadirzhan.
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Life after fleeing China
Sent to a re-education camp in 2018 at the age of 64, Yerke* saw her health quickly deteriorate. Locked a tiny cell with dozens of other women, she almost lost the use of her legs due to the cold floor she had to lie on. She was in the camp when she learned of her son’s death: pressured by the Chinese authorities, he took his own life. After her release, Yerke fled to Kazakhstan with some family members, but two of her children remain in China. *Not her real name
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Forced labour and confessions
Dina Nurdybay, 32, was arrested in Nilka county, Xinjiang, because her traditional Kazakh clothing business made her a separatist, according to the Chinese authorities. She spent 11 months between two re-education camps, a CCP school and a forced-labour sewing factory. After proving she was capable of being ‘well behaved’ and having performed a self-criticism in front of the whole village, Dina was released and managed to escape when she obtained a week’s leave to visit her ailing father in Kazakhstan.
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Cultural genocide
China’s repression of ethnic minorities also involves cultural genocide. As Muslim rituals are forbidden in Xinjiang, people are trying to keep their traditions alive across borders. Here, a family is praying together in Kazakhstan after the death of one of their relatives in Xinjiang. They could not repatriate the body because the border between the two countries was closed at the time.
(continue reading)
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hyperlexichypatia · 3 days ago
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Obstructionism and malicious compliance are your friends. Do it at your job too.
“This thing is legally dubious and therefore technically unenforceable.” Is not a “useless liberal gotcha” it’s how legalism works in this country. Tying up stupidly worded EOs in court is the quickest way to keep them from being implemented. It is the definition of “doing something.” But it doesn’t usually involve much tweeting so of course a certain type of leftist feels obligated to mock it.
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hyperlexichypatia · 3 days ago
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If you offer to summarize this email one more time, I will fake my own death and nuke you from space.
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hyperlexichypatia · 3 days ago
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I'll try to find a link later, but it's something I've heard in fraud trainings -- many older people who are the victims of fraud are afraid to report it, in case their families use it to justify "putting them in a home."
Being the victim of fraud has also been used against people in competency hearings.
It's also just used as an argument all the time whenever we argue against guardianship -- "But what if they get scammed and someone takes all their money!" So to prevent people from being the victim of a crime, the (real or potential) victim has to be kept as a prisoner.
I'm not, generally speaking, a fan of punishment as a solution to social problems. Punishment is often overly harsh, ineffective as a deterrent, and doesn't solve the actual problem. The punitive mentality is more focused on making sure the "bad guys" "don't get away with it" than on actually solving the problem.
But I get a lot more worried when people talk about "alternatives to punishment", or when they support their proposed solutions because "it's not punishment."
Because what that means, in practice, is "I'm conceptualizing this form of coercive control as 'not punishment,' and therefore not subjecting it to the rigor, due process, or evidentiary standards of punishment."
The U.S. loves punishment. It's one of our favorite national pastimes. But we do have, both legally and culturally, some limitations on punishment, at least in theory. Punishment isn't supposed to be "cruel and unusual." It's not supposed to be inflicted without "due process of law." You're supposed to be convicted by a jury of your peers.
But if you call it "not punishment," none of that matters!
You can force people to register under a law that didn't exist when they committed their crimes, because it's "administrative," not punitive.
You can subject disabled people to shocks similar to a cattle prod -- which would surely be cruel and unusual punishment -- but it's okay, because it's not "punishment," it's a "treatment" called an "aversive" (that's therapist for "punishment").
You can have people locked up and forcibly drugged solely because they can't afford housing, but it's okay, because it's "help," not "punishment."
Police can kill people in cold blood -- judge, jury, and executioner -- and it's fine, because it's "self-defense," not "punishment," even if they argue after the fact that the victim "deserved it."
It's also a matter of cultural attitudes. If you said "The punishment for trespassing should be life in prison," or "The punishment for loitering should be permanent loss of the right to control one's body, money, or living space," or "The punishment for turnstile-jumping should be lifelong forced ingestion of drugs that numb basic cognitive functions," most people would think this was horrific, much too harsh a punishment for a relatively minor crime.
But if you change it to "Instead of jailing and punishing unhoused people with mental health issues, we should respond to their minor crimes by Getting Them Help, like institutionalization, conservatorship, or outpatient commitment," people now think this is completely reasonable.
Even being the victim of a crime can get someone not-punished far more severely than the perpetrators are "punished." People might serve jail time for financial fraud, but not usually a life sentence. Being the victim of financial fraud, however, can lead to a life sentence of institutionalization -- which fraud investigators have cited as a barrier to getting victims to report fraud. I personally know of multiple disabled young adults who were afraid to report being the victim of sexual assault or other kinds of assault because they knew that if they reported it, the perpetrator might or might not face some kind of punishment, but they would definitely face some type of "not-punishment" coercive control, like forced therapy, forced drugging, supervision, or having to leave school.
You want a society with less punishment? Me too. But only if you acknowledge that "punishment" includes all forms of coercive control. If you do something to someone against their will, if you restrict someone from their right to live as they choose, that's a punishment, regardless of whether you call it that.
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hyperlexichypatia · 3 days ago
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I just don't feel like this depressive stupor is enriching the narrative.
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hyperlexichypatia · 3 days ago
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If it's one thing Harriet will do, it's start a chapter by slapping you straight in the face 😭 I swear every time you think she can't do it, that surely there's not another example, there is 😭
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hyperlexichypatia · 4 days ago
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idk where it was but i remember reading an excerpt of something about how child victims of sexual assault often come up with strategies to protect themselves (mentally or physically) as well as protect one another, despite often being depicted as helpless objects that have things done to them with no reaction. & then i think about how widely accepted it was in my middle + high schools that you could not depend on the counselors for jack shit, especially if you were a mentally ill kid. its just aggravating how children are never seen as active subjects. children are seen as deserving of protection, but you are never allowed to help yourself. you must wait for an adult to decide you are worthy of help, and you only get what help they decide you need. in middle school i got in trouble for skipping math class to have panic attacks in the bathroom. no one asked why i had panic attacks, they just reprimanded me for not going to the counselor (they also did not ask why i, a child with social anxiety, felt safer alone than with an adult i did not know or trust). so often i see kids who are struggling with bullying get told "tell an adult!" with 0 acknowledgement of how the adults in their life may be completely unhelpful or actively dangerous, and how kids are often extremely aware of this dynamic. me and my friends were a mentally ill children who were abused but not in the exact ways which are acknowledged as dangerous abuse (and even if they were, many children do not want to risk being put in the system for various reasons) and we had to share knowledge of the adults in our lives to protect ourselves and each other. this is all very rambly but i just hate how children's knowledge and strategies for survival are not recognized. i hate how children have a right to safety but only if its an adult doing the saving- because if they take matters into their own hands they are punished for it. safety, whether intentionally or not, can end up being another way for adults to exert control over children's actions & deny their autonomy because children are still seen as objects to be managed by adults instead of people in their own right
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hyperlexichypatia · 4 days ago
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hi sarah. feel free to delete this if it’s too much, but do you know of any work (academic, personal essays, art, etc) about grieving someone who’s died to suicide/wishing they were alive while also grappling with how to square it with your anti-psych, anti-carceral, pro-bodily autonomy politics? for reference i’ve read Alexandre Baril’s paper on Suicidism before and may revisit it in this light, as well as aleks thom's writing on disenfranchised grief and your lovely recent poem about suicide, but i’m sort of at a loss about where to look for other work about the intersection of these specific topics. many thanks and much love in advance
thank you so much for asking! i feel strange saying "i'm sorry for your loss" because it's clichéd and trite and you've heard it a billion times before. i am sorry, though, and i am equally sorry that you carry your loss into a world that is so deeply hostile to everyone affected by suicide – loved ones, those who have attempted, those who have completed, those who are dealing with suicidal thoughts, all of us.
i think that perhaps the most useful thing to remember is a bit simpler and a lot more challenging than can be conveyed in a paper or poem. it's that peoples' bodyminds are their own, including when they treat said bodyminds in ways we on the outside don't like. this is true for people who do all manner of "unhealthy" and "self-harmful" things, and as loved ones, it's incredibly fucking hard to witness, especially when the consequences are deadly.
suicide grief, and in general, work by loved ones and caregivers to those of us who experience extreme states, is pretty tough to find in the area of Mad studies. this is partially justified, given the degree to which we've all been spoken over and around by abusive "caregivers." yet it also denies the simultaneity embedded in basically any Mad community: we are all both, because we're all together and hurting at once.
i actually have two friends who have written about their own experiences as suicidal + Mad people who have lost close people to suicide: MT Vallerta, a scholar-poet [check out In Memoriam], and poet S.G. Huerta [you should read their poetry book, Last Stop].
Sophie Lewis also wrote an intriguing piece that touches on suicidality, death doulaing, and kinship.
Emily Krebs studies suicide/bereavement from a Mad crip abolitionist perspective, and is worth checking out.
i think it's also a good idea to remember that a way to honor those who have completed suicide is to take better care of suicidal people who are still alive. it only does more harm to suicidal people to approach ideation/attempts carcerally, and indeed encourages more covert, risky, and isolated methods rather than open dialogue. here are some ways to honor - not only support, but truly honor, trust, and respect suicidal people:
candidly speak about death, self-harm, and "dark thoughts" - and what to do around them - before and outside of immediate crises. be explicit in your intentions to support those who are actively suicidal before the next crisis occurs. ask people their preferences - who should you call? is the hospital ever on the table, and if so, under what conditions? who will be there to advocate for them when interacting with carceral authorities?
be candid about how their actions affect you, without placing blame. when someone attempts suicide, everyone they love is affected. this is not the person's fault, but it is something that needs to be addressed in community. here's an example from my own life: a dear friend was forcibly hospitalized after an attempt. i had been a main support person of hers in previous crises, when we lived near each other. when we spoke about her experience months later, i admitted that i felt "guilty" and as though i had somehow caused her to be institutionalized by living in a different place now. she admitted to me that she felt "guilty" for having "let [her loved ones] down" and "letting" her health deteriorate. we were able to find comfort and commonality in our affective experiences, and have become better friends for it.
cool it with the solutions. ask for consent before doing anything, but especially giving advice. many people kill themselves, or try to, because they feel cornered - often for very logical reasons (poverty, oppression, abuse/complex trauma). the adage that a poor person probably has more financial wisdom than a rich advice-giver holds true here, so don't immediately offer tips unless they've asked for them. sometimes, suicidality isn't connected to anything concrete, either, or a person's reasoning doesn't "make sense" (duh). if someone has the courage and trust to come to you with their feelings of suicidality, what they need most is someone to listen, to take them seriously, and to afford them the same personhood that they would have otherwise.
when people disclose thoughts of suicide, they take an immense risk in terms of their safety and credibility, and they do so because it is not possible to be a person alone. but, we also need to hold simultaneously that the individuals who do their best to support a loved one, but are not equipped to do so, are also not at fault for somehow "killing" them. suicide is incredibly complex, and suicide grief perhaps even moreso than other types of grief.
i also don't have concrete answers as to what to do about this conflict between our emotions around suicide - wanting to save a person we love, wanting them to stop hurting, being willing to do anything to keep them around - and imagining a world against and beyond the institution in all its permutations. but i know we will move toward it together through open conversation and trust and collective risk. much love and respect to you for asking such a challenging question during a heartbreaking time. <3
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hyperlexichypatia · 4 days ago
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The dsm5 is so fucking unreal like histrionic personality disorder (HPD) is still a thing? Lmao. Can we throw it away. I was reading the amazing "Psychiatric Hegemon: A Marxist Theory of Mental Illness" by Cohen and happened upon this on the chapter on BPD (excellent read btw)
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And i went no waaaaay but knowing how fucking bad the dsm5 is I looked it up and lo and behold:
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We need to start killing mental health providers im barely joking. If you were in the field like me and witnessed how much resistance there is to the idea of throwing the dsm away you'd feel the same.
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