#it's actually painful
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on every mangled promise that your body couldn't keep//
//i hope you'll hear me in the streetlights humming, softly breathing out your name
#these songs are them#it's actually painful#brians all yearning and wistful#and Tim's like#you died#fanart#art#drawing#creepypasta#marble hornets#brian thomas#tim wright#brim#brim mh#traditional art#blue instead of b&w this time... what do we think
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I NEED to go down on someone who'll call me a good boy and play with my hair
#me and who#please#my oral fixation is acting up recently#it's actually painful#it hurts that nobody is using my mouth#i don't even need you to reciprocate#just sit or lie down and let me make you feel good#freaks please interact
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all my favorite media are about tragic queers in the apocalypse. it's hurting my sanity.
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Listening to Lucy in Re: Dracula asking Mina to pray for her happiness, knowing what's ahead for her, legit had me tearing up.
#lucy westenra#dracula daily#re: dracula#It's actually painful#I know what's going to happen#But she doesn't and she's so excited and innocent and ahhh#I wish she could have been happy
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What I mean when I do not control the hyperfixation.
#adhd#undiagnosed adhd#actually adhd#undiagnosed autism#autism#neurodivergent#hyperfixation#audhd#actually audhd#ms pain#ch33zart#chrambles
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#bpd#mental health#actually bpd#mental illness#bpd shit#actually borderline#bpd shitposting#bpd problems#bpd mood#bpd meme#autism#actually autistic#chronic pain#chronic illness
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I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.
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If you've ever told a person who's had to be bedbound for a period of time that you wish you could "just stay in bed", DO IT.
Stay in bed. For days. But don't get up if someone needs you to, or you get bored, or you get antsy. Don't do anything other than rest. Just lie in your bed, whether you need to get stuff done around the house or socialize or anything else "productive". You'll have to cancel on people, you'll disappoint them, they won't understand.
And if you're thinking, "well, i CAN'T just be in bed. There's stuff that has to be done - I have plans", maybe ask yourself why you assumed a disabled person doesn't have plans or things to do or desires.
#Disability#Bedbound#Housebound#Actually disabled#Chronic illness#Long covid#Chronic fatigue#Inspired by my boss asking what I did over the weekend and I said I couldn't get out of bed and he said that sounds nice actually#I'm literally only able to work bc I am in bed at all times I'm not at work and it's still so hard and painful#I can't get my own groceries or cook my own meals or socialize or eat at restaurants or go to movies or take care of my own pets#If I didn't have a loving generous caring spouse I'd be dead by now
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Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.
Shout out to young disabled people. We exist.
#disability#actually disabled#young disabled#wheelchair user#cane user#chronically ill#chronic illness#chronic pain#chronic fatigue#functional neurological disorder#cripplepunk
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“slut era” i whisper to myself as i rot in my bed, sick like a frail victorian child
#chronic illness#chronically ill#chronic pain#actually chronically ill#pots#pots syndrome#dysautonomia#fibromyalgia#postural orthostatic tachycardia syndrome#supraventricular tachycardia
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
#it feels like i got jumped by seven people but NO#if my body is going to make me feel like ive been stabbed five thousand times i should at least get a sword fight out of it im just saying#fibromyalgia#fibropain#fibro problems#fibro flare#fibro#chronic pain#chronic fatigue#chronic illness#hypermobility#hypermobile#hypermobility syndrome#spoonie#disabled#actually disabled#disability#c punk#cripple punk
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This is a threat
#disability pride#disability#autoimmine disease#chronic pain#chronic illness#chronically ill#mobility aid#queer#sapphic#achillean#bisexual#asexual#lesbian#gay#homosexual#pride month#lgbt#aromantic#nonbinary#transgender#transfem#transmasc#mental disability#pansexual#actually neurodivergent#neurodivergent#neurological disability#neurodiversity#actually neurodiverse#my art
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i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary
#cripple punk#cripplepunk#crip punk#cpunk#actually disabled#chronic pain#disability culture#fibromyalgia#disability rights#disability advocacy#physical disability#c punk#angry cripple#queer cripple#cfsme#chronic fatigue syndrome#chronic fatigue#arthritis#diabetes#neurodiverse#neurodiversity#neurodivergent#autism#autistic#adhd#actually autistic#hypermobile eds#hypermobilty syndrome#our writing
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Sorry I Spent all mY spoons this week already and it's fucking Tuesday. We're heading to the knives
#actually spoonie#chronic pain#fibromyalgia#actually mentally ill#chronic illness#aroace agender#spoonie#chronic fatigue#disability#actually disabled#chronic disability#spoon theory
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autism "i need my routine and the routine was already ignored yesterday" vs chronic pain/disability "good fucking luck dude. you got no bones today"
#chronic pain is a bitch#chronic pain#chronic illness#chronic fatigue#chronically ill#invisible disability#disabled#disability#physical disability#disabilties#cripple punk#cripple posting#cripplepunk#autism spectrum disorder#actually autistic#autism#neurodivergent#autistic things#audhd
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I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)
It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
#signal boost#please reblog#I'm so so glad this has gotten the traction that it has!#chronic pain#chronic illness#disability#fibromyalgia#cfs#chronic fаtiguе ѕуndrоmе#actually disabled#spoonie#me/cfs#cfs/me#long covid#important#invisible disability#ehlers danlos syndrome#lyme disease#chronically ill#cpunk#cripplepunk#it's a bummer that it's so US centric but if you're outside of the US you can look into similar programs#I hope that other countries have options like these#the US seems so behind when it comes to medical care and disability resources. and i mean it is#but it's good to know all of your rights as a disabled person or if you ever become disabled
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