#idk I've got a lot of shit going on
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Can confirm that people are fucking morons sometimes.
Like, if yoga was a cure-all, we would all be doing it; but it's not, and some of us can't anyways.
Changing my diet also is never going to fix my faulty collagen, my busted thyroid, my overactive mast cells, or the part of my brain that doesn't work.
People don't like hearing that someone can get sick permanently, especially at such a young age. I first got really sick as a teenager. People don't want to see that.
I still hear "You're too young to be this [tired/sick/achy]" all the time. Usually from older men who I don't know and didn't fucking ask for commentary from. They're usually the same ones that try to pet my service dog without asking.
"You think YOU'RE tired/sore? Just wait till you get to be my age, kid." Gee, thanks for reminding me it's likely downhill from here. My joints are degrading faster than yours, asshole. I'm just hoping I'll still be able to get around okay on my own when I hit 40.
I didn't do anything to cause all of this, it's just something that happened to me. [People who become disabled from their life choices having unfortunate consequences still deserve compassion and basic decency! Shit happens. Disability is not a punishment for "bad" decisions.]
I have a friend with Lupus whose brother legit thinks her illness is punishment for something she did in a past life... What a dickwad. My brother has said some insensitive shit, but nothing THAT bad.
I'm grateful I have some supportive, lifelong friends who have stuck with me through all of this. I don't know what I'd do without them. ❤️
Whenever I get a particularly nasty message, I always check to see if they're following me first. Nine times out of ten, they're not. But they're also, unfortunately, the same people who feel entitled to send me multiple messages in a row, most of them heavily steeped in the language of moralization and purity.
Like whenever I talk about painkillers or pain management, I always get a handful of well-meaning people who are maybe new to my blog or are just young, asking me if I've tried diet/exercise/meditation, etc.
Sometimes I'll respond to them. Other times I'll just ignore them because I get those kinds of messages so often it's like white noise, and maybe part of me hopes if they stick around on my blog, they'll learn it through exposure via my incessant bitching.
When you see me responding to someone offering that kind of advice, it's either because I'm at my fucking limit or because I'm hoping it's a teachable moment and an otherwise seemingly nice person might unlearn some harmful biases.
The people who don't follow me are not interested in any kind of conversation on the subject. They do, however, feel the most qualified to tell me, someone they didn't know existed until one of my posts crossed their dash, how to manage my life, everything I'm doing wrong, and why I'm a bad person.
And for them, my disability is proof that I am a bad person because they view health as a moral issue.
If you're sick, it's because you don't exercise enough, don't eat the right foods, don't pray enough, don't do enough. They genuinely believe that if they say and do all the right things, like a Good Person, they'll never get sick.
It's their security blanket against the harsh reality that anyone is one bad day away from disability. One faulty gene, one bad infection, one bad accident away from a life-long diagnosis. And if they do get sick, it's a test. A challenge to be overcome with Willpower as they learn the True Meaning of Life.
It can never just be a simple fact of life that sickness happens. That disability exists without a moral reason.
And it's suffocating.
Day in, day out. Folks who don't know me from fucking Eve telling me I'm being punished. Not always as outright as that. They don't always use that word. But sometimes I appreciate it when they do because at least then they're being honest. They're not couching it in the softer language of leftist circles. Not hiding it behind concern.
Because the truth is, there are just as many folks who think they're liberal and enlightened who'd be happy if disabled people just stopped existing. They don't like thinking about us because it makes them think about themselves. About their own fragility and mortality, and they hate that. They hate that there's something they can't control with their thoughts and actions. That they can't moralize their way out of.
Honestly, it's a relief when people are just cunts about it because I can hit the block button, safe in the knowledge that they were never the kind of person who would see me as a person. But when it's some 20yo kid with their pronouns, orientation, and "ACAB" in their profile spouting the same kind of moralization, sometimes even with the language of eugenics, it feels like such a betrayal. Like a loss.
And perhaps if I wasn't multiply disabled, I'd have the energy to pull them back. To tell them why they're wrong and hope like hell they realize what they're doing is harmful. But then, if I wasn't disabled, they wouldn't be messaging me, so I wouldn't be dealing with it.
I wouldn't be expected to use my existence as a teachable moment to spoon-feed them compassion. But I am, and I do. When I can. Not always with the grace that's warranted. Not always with the thought and compassion I ought to. (And I don't; I acknowledge that. I'm prone to anger and off-the-cuff remarks that are hurtful too. Though I try to keep most of it to myself or save it for therapy.)
Basically, if you've made it this far through the TED talk, don't be fucking cunts to disabled people. Don't tell chronically ill people to try yoga. Don't moralize pain relief. Suffering is not noble.
You need to kill the cop and the priest in your head telling you otherwise.
And also if you're the nice people sending me nice messages. Thank you. It helps cushion all of *gestures* this.
#chronic illness#chronic pain#idiopathic hypersomnia#hypermobile ehlers danlos#hashimoto's thyroiditis#mast cell activation syndrome#dysautonomia#idk I've got a lot of shit going on#and im still a person who is just trying to live my life
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Huzzah! It's birthday time! I'm slowly accumulating more and more things I like (latest additions this vest I made and a travel typewriter! Still need to fix the latter one though)
Sure has been a year.
#terri#niart#got my wisdom toofies out#well 2 out of 4#still got stitches#idk if this removal lowkey fixed my fear of the dentist?#it was so easy and painless#also finally i'm on anxiety meds jkahsdjash#i also got depression meds but i haven't tested them yet#I'm going to see the love of my life soon again!!!#only 2 more months to go....#i've also finally found awesome friends who don't make me feel like i'm insane for wanting to be cared for#the difference is like night and day#old friends saying hey let's surprise another friend of ours oh also i think it's your birthday on that day#new friends reminding me to pick a brunch place for us to go on my special day#i am sobbing#the right people are out there#don't lose hope#i've never felt this platonically loved honestly#also yes i'm working on the next dragon's lair aksjdhasjkd#just#a lot of things happening and i'm sooo burnt out#this piece was such a strain and i just#don't have patience for art rn#this is photobashed btw there's an actual photo of my typewriter under all those layers#i'm not about to spend 300 hours just to draw a typewriter from this angle kajshdjkasdh#ALSO ONE MORE THING CAN I JUST GUSH ABOUT THE ANASTASIA BROADWAY OKAY?!?!?!#I didn't realise until now that they made it way more historically inspired and i mean bruh BRUH#i have been having a recording of it playing on the background nonstop for like 3 days now#Vladimir Popov I want to inject you straight into my veins holy shit he is a perfect man
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BNHA Ch. 429
So, I guess Toga is dead, and people are losing it.
I get why people liked her--she was actually queer, being pan/bisexual. She was representation for them and that's rare in shonen manga. But here's the thing--she was bad representation at best and insulting at worst. Nor do I think she was made queer because Hori really wanted to represent a queer girl. Himiko was always the author's poorly hidden fetish--she just was. She liked girls as much as boys because Hori wanted to draw a girl touching sexually on another girl. You can see this in how he draws her and Ochako in solo pics together.
I mean, people seem to understand this when it comes to Momo and her outfit being overly sexual or that both Himiko and Hagakure's Quirks either leave them naked or they have to be naked to use them. These are excuses to draw girls in a sexual manner. Himiko being into other girls is the same thing and that's the kindest interpretation.
Given how Himiko acts and her Quirk being heavily coded sexual desire, and therefore her use of it against someone unwilling being sexual assault, it could just being playing into harmful stereotypes of predatory gays.
As a queer person myself I just found Toga insulting. She was designed to be overly sexual and give the male author a female character that he could draw being suggestive with his other female characters. When he did flesh out her character, her backstory was eventually the trope/fear of straight people, that gay people will be so overcome with their lust that they end up sexually assaulting them.
In the end Ochako accepts this part of Toga and says she'll giver her blood forever, but as much as a lot of readers took that that as some deep lesbian confession, for me it really fell flat. Hori never really gave any of the main kids time to actually learn about their villain or show how that changed their minds toward them. Shoto only works because Touya is his brother (even though he admits he barely remembers him). But Ochako goes from not thinking of Toga at all pre-first war, to one thought about her during her speech, to suddenly caring about her so much she--given how Toga's quirk is coded, is willing to essentially fulfill Toga's kink for the rest of their lives.
It's weird and it comes out of nowhere. It's made even stranger because Toga doesn't actually change or show remorse for anything she did, which included personally hunting and murdering people before she joined the LOV. None of the death and destruction she is also partially responsible for is brought up either, something that Ochako was rightfully upset about during the first war when less people and property had been destroyed. Ochako just accepts everything about her suddenly and her past serious crimes are forgotten so they can cuddle and cry.
Am I shocked Toga died--a little. I didn't think Hori would have the guts to kill off a young girl character, especially one that he clearly got a lot of joy drawing in sexy poses. But at the same time, once he killed off Shigaraki and ended Touya's story with his slow death, I'm not surprised he went the same route with Toga.
This isn't Naruto--Hori isn't really kind to characters that do something wrong, especially if they don't try and change. Enji, Bakugo, Hawks, and Aoyama all sort of got punished for what they did. Enji is the worst off, being permanently crippled, missing an arm and burned everywhere. Bakugo's hand is damaged, his heart weaker, plus he feels bad that Izuku lost his Quirk so they can't compete the same way he wanted them to. Aoyama, despite doing way less wrong and even helping his class during the forest raid, still leaves school because he doesn't feel he earned being there yet. Hawks lost his Quirk and even though him running the HPSC could be seen as good for him, Hawks always wanted a break, but now he has one of the most time consuming and stressful jobs out there.
So, if this is what characters who actively did good things and even changed and fought to be better get, what would characters who never changed and never did anything positive for anyone but their friends/themselves get?
Before the last Arc started, when so many people said the LoV were 100% going to be redeemed I had doubts and always thought it wouldn't make sense with how the story presented redemption or treated other non-LoV villains in the past. That if the main LoV did get some happy ending where they were bffs with the main cast it would clash with how other characters had been treated.
That doesn't mean that I think how Shigaraki, Toga, and Touya ended up in the manga was well done. I think their endings fit far better then a last minute redemption would have, but at the same time you can feel how rushed everything has been since the end of the first war arc. Hori was done with this story months if not years ago, yet he was contractually obligated to finish it. Because of that I think he left out as much as possible. As much as I think he's written some pretty obsessive stuff, particularly towards women, I can't really fully blame him cutting corners or the story being shit at the end.
We know Manga authors, particularly those that work with Jump are treated like shit. That they suffer incredibly long hours at times not even getting to go home for days. We've gotten messages for Hori saying he's sick quite a few times. On top of that, weekly story telling is not a great way to tell a cohesive narrative. Ideas probably change week to week or at least month to month and you can't go back and change the last chapter no matter how much you need or want to. Then you remember he also gave a lot of ideas to the people who made the movies, which would also change his plans for how he wanted the main story to go.
The story is bad--it has been for a while, but I think a lot of people put their hopes on their favorite characters getting a happy ending, even when there were signs that probably wasn't going to be the case. I know how much it sucks when a character you love gets a shitty ending (Stain was my fav, but he got an absolute dogshit ending) but at least, knowing what I know about the industry I can't really blame Hori the way I see some other people doing. Criticize it, sure, but saying Hori hates his readers or is horrible writer isn't true. BNHA was popular for a reason--he's great with characters and the beginning of the story had some great pacing. We'll never know, but I wouldn't be surprised if BNHA could have been amazing if Hori had been treated better and the story hadn't needed a chapter every week.
If anything BNHA has taught me how much a story suffers when authors/artists are treated like crap and forced to work past burnout.
#bnha 429#bnha spoilers#bnha critical#bnha#idk i just feel bad for the guy#i think he's sexist as shit#but no one deserves to work under such bad conditions#and frankly idk how any weekly story turns out any good#especially when its gone on for so many years#like when you think about it the chapters aren't even real full chapters#they're like half or even a quarter of a chapter that you'd find in a book or monthly manga#of course you're your going to have an incoherent story when you write like that#I mean the only other thing written like that are some fanfictions#and those authors can and often do go back and edit things#heck I've seen some that go on hiatus with the specific purpose of overhauling the entire backlog of chapters to make it a better overall#and I think part of why BNHA is perhaps worse then other weekly shonen is because he had a lot he wanted to say#on top of trying to find things that kept him invested in a story he clearly was tired of writing#I mean Lady Nagnat is great example#he watched a movie and thought the female assassin character was cool and it got him excited to draw/write#so he shoehorned in this character that was really only there because she made the story more fun for him to write and draw for a while#like American comics aren't great either when it comes to consistency or coherent plots sometimes#but I do wonder if BNHA might have been better if Hori could have left a story bible and basic outlines of what his plans were#and then someone else could have worked on it instead#because he really didn't seem very into by the end of the first war arc#like I think he wished that had been the end#but it wasn't and he was really tired and burned out#and probably already working on fumes
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Seriously, bro's a professional yapper lmfao
Tbf it's not completely unprovoked and he does just want to at least try explaining some things, if in a roundabout way, to make people more at ease (if not in the moment then overall) but, well-
sometimes it has the opposite effect lmao 😂
Also like, it's absolutely hilarious how I thought
'oh but this is just, like three scenes - how long could this be'
but all the freaking talking and stuff that everyone's doing is making Part 8 the second longest in the series 😂😂😂💀😂
(I fear for my poor brain, man - we've only just barely almost covered the Detention Center Arc
(and a little bit of the VS Mahito Arc Mahito Gets Curse PTSD Arc but I do wanna fill in some of the gaps between those)
and it's already gonna be over 40k words???
Why am I being so ambitious for my first ever proper writing project frrr *perishes a bit*
but I do hope to get it to the end - and beyond because there's no way I wouldn't constantly add to the post-main-plot shenanigans lol - however long that takes heh (just try to be patient with me pls I try my best here 😂) 👍)
#On another note I'm closer to finishing Part 8 than anything so yAY WOO YEA- *perishes*#I don't wanna promise anything because I tend to underestimate this kinda stuff but idk it mAy be out tomorrow or overmorrow maybe even#Depending on how well the last few things go being written and the little edits and Notes and Tagging and stuff#mAn do I hate how long this has been taking lol where tf did that brain that could pump out Parts in like a week go 😂#(tbf 1) I've been just busy with Life (smh who invented that) and 2) this needed a LOT of THINKIN™ considering the characters and situation#; it's pretty darn complex and considering the fact that Satoru especially is there; well - he's both a little shit and a smart cookie lol)#Anyway yeah just a little shitpost for the hehes#Also I got inspired by something and will probably post a small Visuals thing in a bit (idk if it counts as a meme redraw but ye) 👍#(it involves Yuji as a smol little bean baby tiger cub so prepare thine cuteness receptors verily (hope I'll do the vision justice lol) 🫱)#Thinkings™#SIkuna#(deliberate misspell)#Syuuya#ryomen sukuna#jjk sukuna#jjk#jujutsu kaisen#jjk fic#jjk fix it#jjk fix it fic
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the glorious feeling of the audiobook you wanted being immediately available from the library
#i am whopping and cheering#i shit you not everything else i've been trying to grab has been like. an 18 week wait at the earliest#like man idk if i'm going to want to read it in 18 weeks that's a lot of weeks#i could be a whole different person by then!#anyway i got an audiobook and it's nice
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again and again i find myself lamenting that audio roleplay isn't taken more seriously by some people. like yeah, they often have a romantic element, and by nature they usually directly involve/address the listener- and i totally get that those things aren't to everyone's taste. no art or entertainment is universally appealing, and that's okay! but.. it still makes me a lil sad that the "cringe" reputation of asmr/audio rp precedes it. there's a whole lot of talent and creativity being poured into these audios by so many people that i feel goes unrecognized and/or disrespected simply due to the medium that the stories are being told through.
#this post brought to you by: me bingeing Sam & Darlin's entire storyline over the past few days and having a Lot of feelings abt it#asmr#audio roleplay#rp audio stuff#redacted audio#anyways i don't have a conclusion to this post. and i'm not Mad or Upset or anything i'm just thinkin' out loud#and i mean it's not like it doesn't get plenty of praise within its respective audience bc it does. at least for the more popular creators#but i feel it'll still always have the shadow of its cringe reputation looming over it#which makes it hard for some ppl to openly appreciate or share with others that aren't already fans of the medium#like do u know how many comments i've seen along the lines of 'this is great but i'd die if anyone knew i liked this kinda stuff' ?? :(#idk maybe i feel strongly about it bc i'm a self-insert fanfic writer. and i feel like the two have a lot in common. including a bad rep.#like. not every audio will be well-written or produced and neither will every fanfic. but that doesn't mean it's a less legitimate artform#and i'm lucky to have never (yet) received negative comments on my work. but that doesn't mean that it doesn't make me sigh when people-#-say shit like 'this reads like fanfiction' as a way of calling something bad. or other similar sentiments that make the same implication#and i wouldn't be surprised if audio creators feel the same way when they encounter certain comments or statements#like. those YT videos where ppl will 'try bf asmr for the first time' or whatever and it's just 20 mins of cringing and over-reacting? eugh#tbf i haven't watched many bc why do that to myself. so Maybe there's some that are respectful but still. imagine getting roasted like that#and yes yes i know that by posting stuff online you're inadvertently sighing up to be criticized by Anyone but still. man. i dunno#i'm going on a tangent but my point is. i'm grateful for the creators that still make their art in spite of the public's perception of it#bc some of the most impactful emotional experiences i've ever gained from fiction took place in audio rp and i'm so serious abt that.#anyways. this post almost feels like i'm 'making up a person to be mad at' but i promise it's not that serious i'm just yapping. mostly.#certainly not trying to start any kind of debate or anything either i just have a lot of fixation-induced energy and nowhere to put it#this is Eric's fault (/lh) for cooking Sam up in a lab catered exactly to my taste and making Darlin' waaaaay too painfully relatable#but it's also My fault for bingeing the Inversion /and/ the Quinn arc /and/ the Summit all within a couple days. but i can't help myself#feels like i've run an emotional marathon. triathlon. The Emotional Olympics if u will. i'm feeling Everything#who knew that beating the shit out of ur fictional abuser could feel so goddamn cathartic! it's a nice replacement when u can't do it irl#anyways i'm off on a tangent again. thanks for coming to my TED Talk i'm gonna crawl back in my hole now#actually i'm gonna go relisten to a few audios. as Research for my Sam & Darlin' playlist as well as a post i'll be making about it soon#u Know i've got it bad when i not only make a playlist but start Posting on here about the songs that remind me of them. i'm cooked guys.
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I love it when I'm not actually as invested in something as others are yet I'll still spend. 10+ hours just watching content about it cuz I still have to know about it like I might not have brain rot or anything but I gotta have that info in my brain
#I mean in general it takes a lot to really catch my attention#like I like lots and lots of media#constantly looking around for new stuff to invest my time in#and when I find smth I will go over it a lot if it's cool enough#but like to ACTUALLY hook me with literal brain worms it has to be SOO specific#in a way idk how to even really explain#like the list of things that'll hook me almost INSTANTLY if I start looking @ them again is like#WoY. NoN. i.i. and uhhh Dano :] if u read this far that mod is in my pinned ^^#I really like the mod a LOT and got them brain rotting worms in my head for em#atm I'm trying to branch out and keep up with new media. catch up or rewatch old media etc etc#so it's distracting me from any specific brain rot atm cuz I'm so all over the place but yeah!#Indigo Park is cool :] I do really like Rambley a lot but I'll have to see more if him and more of the game in the future#before it really makes anything in my brain I think#OH Secret Squirrel is a new one that's really got me but I'm staying away from that FREAK bcuz I'm not normal abt him#plus there's only like 13 episodes but tbf I'VE WORKED WITH LESS#I'm like the master of getting invested in the most obscure shit possible man
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50,000 likes!
#50000 likes#tumblr milestone#so i finally got one of these#and like it's such a tumblr experience#of their total disconnect from how things should work#they send them in an email?#not a notification#and they have a button to click to post it#i'm on mobile#so i clicked the button#took me to chrome and not the app#because reasons?#i'm not logged in on chrome#asks me to log in#i log in#gives me error#i go to desktop so i can post this ramble in the tags#there's an email that i successfully logged in and they hope it was me#ha!#and it posts fine from desktop#but like#all that for this#and this is the first achievement i've ever gotten#idk when they implemented them#but i kind of thought people were making them themselves somehow?#from an outside site like ones that do your stats#anyway!#I've liked a lot of shit apparently#and tumblr still doesn't know how to send links#into their app instead of the browser
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ugghhh wintertime sucks!! I'm sad and tired and sad all the time.. I need a nap.. and f/o cuddles.. and another nap..
#ash rambles 💚#negative#part of it is definitely the weather#it's so dark and dreary and i never wanna leave my bed#but also just. my mood akdjajs I'm kinda down in the dumps today#im recovering from being sick which always fucks me up#and i just cant shake this feeling of anxiety..? and i feel kinda a lot like my f/os wouldnt like me or would fall out of love or never see#me as more than a friend and other stuff like that#i.. actually got broken up with yesterday irl!#it wasnt messy. he said that this isnt what he wanted and it was fine and we're back to being pals. i wasnt sad at all in the moment and#i dont think i am now..? it's weird. we were laughing like always literal minutes after having the chat. when we got together we said that#if things domt work out we wanna keep being friends. and we're doing just that. honestly i saw it coming and idek if i LOVE him anymore#what even does love feel like..? regardless I'm not upset or sad at my breakup since i saw it coming and I'm honestly happy he just. Talked#to me about it. we communicated and then three minutes later went back to talking about x.enoblade LMAAOO it was fun!#but it is ridiculous for me to expect to feel NOTHING at no longer being in a relationship. i cant just feel nothing. i dont feel sad per s#just... in my thoughts i guess? I don't think the feeling of my f/os not liking me stems from me being dumped though. i think thats just me#being me sjdjaksj I'm very insecure a lot of the time. i dont think being dumped helpd very much though LMAAAOO#I'm doing okay i promise. and I'll be alright. theres just both a lot and nothing going on at the same time and i feel... idk what i feel.#i hope my f/os love me 😭 i hope that a lot#and honestly i know this community is ass and I'm more than happy in my own corner with my couple of followers but. ngl I've really felt as#though I'm not valued here and all that junk as of late. yeah just.. i think everything is happening at the same time and I'm tired and#i feel like I'm a confused kiddo who doesnt know anything anymore BAHAHAHA#holy shit it just sounds like i need a shower and a nap huh- I'll be alright I'm just. dealing with stuff akdjsks but i also hate to always#bring the mood down like this! i always try my best to be haha silly and all that shit. I'm just gonna try to daydream about f/o cuddles#(and try to convince myself they dont hate me ofc)#oh and. i know i mentioned this but. i hate the weather. so much. I'm sad all the time. November is actually my least favorite month too 😭#I've gotta study a lot today and I'll try to sneak in some k.urohyou and hopefully start watching monster too but yeah i apolgize if#I'm acting off these days ajdjajs I'm very stuck in my own mind these days. not exactly the most fun place to be 😭#delete later#i mean akdjajs i literally started crying the other day because my friend said that my husband (k.yohei) loves me ajdkahdb come on ash..
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Waiting for Permission to Be Sick - Input Requested!
So, I got officially diagnosed with two chronic conditions last week. And the doctor explained to me the details of how these conditions affect my body, and what kinds of symptoms to look out for, and what I can expect life to look like going forward. And I got prescribed meds, and given detailed instructions for when to take them and any side effects I might experience and what to do to help myself feel better if I'm not feeling well, and all of that.
And I just. Haven't done it. I've started taking some of the meds, but not all of them, and like. There's no real reason for me not to? I'm just. Not doing it. Like I've looked up some products on Etsy to have like. Emergency medical info with me so that if I randomly black out or faint again in public, someone could see me and have info know what to do. And I've been looking at pins that say "I have an invisible disability" and aaaaaaaall sorts of stuff. Basically just window shopping for my chronic illness starter kit. But it's been over a week now and I haven't bought anything, and I seem to have convinced myself that I can't start taking my meds until I have all of my Items sorted out and prepared. And like -- there are some actual reasons for this, such as my schedule has been all over the place and my meds need to be taken at multiple times a day at certain intervals, and some with food and some without food, so I need to be able to have that stuff ready to go even when I'm out and about.
But I'm not. Actually doing the work to get everything sorted out and ready? I'm just window shopping. And today, I have been very tired all day because of the rain and because I did too much yesterday, and my head has been hurting because I'm still not over my concussion and I also probably did too much today, even though honestly all I did was go to one class and observe the whole time, and read a couple of emails. And I thought to myself, "well I guess I should take tylenol for my head, and I guess I can give myself permission to do that since my boyfriend is busy and can't tell me to take care of myself --- oh."
I have been waiting for someone to give me permission to identify as chronically ill! Even today I was like "I feel like I've managed to convince myself that I feel worse than I actually do, and I'm actually fine." Even though there would be no real reason for me to be doing that. And like. My head actually hurts! I really did and still do feel tired! And I've seen my test results, and I know that I have a chronic condition. It's been medically confirmed by a bunch of different tests, and multiple medical professionals have been like "yep you've got something wrong with you" (though using more professional and kind words, of course). All of this to say -- I have been waiting for someone to tell me that I am ill and it is chronic and that it is okay to spend money on taking care of myself and things that will make me feel better, even if it is only temporary like the excitement of buying a new pouch that says "This Bag Is Full of Drugs" specifically to keep my medical supplies in, or something to help keep me safe going forward like a medical alert key chain. The only question now is -- what do I do about this? How do I give myself permission to need help or extra accommodations or even just some medication when I never want to admit that I need or want help? I'm so used to being self-sufficient and doing everything by myself that I don't know how to be okay with more problems.
Has anyone else experienced something like this? What do you do? How do you learn to be okay with the fact that your body is not going to go back to the way it was before? I am only 22 and it's hard to accept that my life is not going to look the way I pictured it when I was 18.
#this post got a lot longer than i meant it to but it sort of turned into journaling halfway through#hopefully people still read it?#hopefully it was not too long to be worth reading?#it's just hard because like. i Already have dealt with a lot of problems in my life#and the whole reason i've been trying so hard to avoid getting covid and getting sick in general#among other reasons#is that i already have Ailments and i don't want more meds to worry about and things that have to be on my radar#and now with this diagnosis it's like yeah i have confirmation so at least the waiting to know is off my radar#but now i have more meds to worry about and more Scheduling that has to be done#plus i've already been pill shamed in the past by my older sister just for taking adhd meds#i don't want to get more shit from her for this#idk dude#just a lot on my plate and now there's more and it makes everything more complicated and harder#at least my boyfriend has been amazing though#he has been so supportive through everything and like he still wants to marry me and everything and it just feels really good#to have his support like that#i know people make jokes about someone talking about their partner and it's just their boyfriend matt#but my boyfriend matt really is my partner in everything and i love him#go matt#everyone applaud for matt#if you read this far into the tags i think you should get a cookie#and i hope you had/have a good day today#also though matt was like 'maybe you should get a cane for times when you have to stand up for a long time' and#idk if i'm ready for that#or if it's even necessary#idk#lots of things#too many things even#i'm tired of there being things#ALSO if anyone read this far and has any product recommendations that made their life easier please lmk
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#y'all my anxiety has me spiraling as of late because it just feels like my whole life is falling apart at this point#i got fired from my job a couple of months ago and i've been scrambling to try and find a new one#i work part time at a store i really love but it pays shit#and i've had all of these interviews and no one wants to hire me and i just feel unhireable at this point and it's hard not to despair#and on top of that i'm struggling with my self esteem again#i know i'm not ugly per se but i'm struggling with feeling confident in the way i look as a big girl#and all of my old insecurities are rearing their ugly heads and i want to cry just thinking about it#and i feel like such a failure right now even though i know that life has its ups and downs but my stupid brain just won't chill#and i don't really have any friends in the area because they all either moved away or didn't live here to begin with#and i'm tired of living at home because of my stupid student loans and not being able to afford to live on my own#i have one person i hang out with and we just met and i don't want to scare them off because they're a great friend and person#and i just feel like i'm never going to meet anybody who's going to love me the way i want to be loved because of my looks#also because it's me. and i feel like i'm so flawed as a person that no one will ever fall in love with me#and i've just been feeling really alone lately and i'm trying to do things to make me feel better but it's just so HARD right now#and i love writing because it gives me a chance to explore some of my feelings and it's something i genuinely love to do#and i'm sitting here waiting for the day things start to get better. and i know we all joke and i'm gonna sounds so dumb for saying this#but i feel like i was meant to be famous? or do something great idk and it's something everyone has always told me#and idk if my feelings of inadequacy are because of that or what but i'm scared that my life is going to mean nothing in the end#anyway this was a lot and you can pretend like you didn't read it. i just wanted to write some of my feelings down
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dc is doing a little mini relaunch after the current crossover finishes and honestly thank god because literally only two of their current ongoings interest me but there's a bunch of fun looking stuff happening in november that i might actually look at. and also it's starting series for several guys who should have had ongoings this whole time like the fucking JUSTICE LEAGUE
#i.e. black lightning JSA question batgirl. and i'll keep up with justice league now that they actually HAVE an ongoing#insane that it just wasn't happening for so long. why did they do that.#now i might actually take an interest in the mainline crossovers if there's a series that they're actually building from#then again. if it's crap i probably won't stick with it#but like marvel has three avengers books running concurrently CONSTANTLY. and yet dc hardly ever has justice league stuff going on#a team book is just. the obvious place to do all that stuff. cos i'm not reading batman i do not CARE about batman#but the new justice league has flash and black lightning and martian manhunter and other guys who i think are cool outside the Trinity guys#also i'm thinking i'll have a look at the 'absolute' universe. yes we are pointing and laughing at the batman design but it seems like an#interesting concept. and also extremely funny that they're going oh fuck marvel relaunched ultimates we have to do something like that too#but actually looking at the ACTUAL premise of the thing. it's more about making an extremely stripped back version of each character#designed to be at their lowest with no support systems in place#idk how it'll turn out. might be too edgy and angst filled for my tastes.#but it looks worth a look#for the record the two series i'm actually readign currently are poison ivy and the flash.#flash i'm actually collecting (i got in when it started and am yet to be disappointed)#lily dot tee ex tee#my pull list is getting so long. and my actual pull list of comics i'm buying is getting a bit much too#but i do not regret impulse subscribing to The Power Fantasy having just read issue 1. it's INCREDIBLE.#i've stopped getting ultimate x men tho. was good but i don't think really worth the money of getting it physically. i'll just pirate.#and tbh the current dr who run is eh. and also only a 4 issue limited series. but it's dr who comics of course i'm collecting it anyway.#immortal thor is a thousand times worth the money tho holy SHIT that book is SO GOOD and i'm SO GLAD i'm reading it physically#sorry i don't comicspost often but i had. a lot of thoughts.
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i love being an age regressor ૮ᴖﻌᴖა ♡ tonight it feels very affirming and comforting. I've kind of always had to look out for myself and be my biggest supporter, and there are a lot of strange ways this feels like a second chilhood at times.
like i regress to being younger, but I'm also a girl now in a completely different place with completely different circumstances/social circles etc. yk?
but when i feel rly small and my reality feels so big, it makes me happy that older me is there for me to make the important decisions and guide us there :3 it's like i am holding my hand through this, i haven't had an adult rly look out for me like this and it's so nice to have one now!!
i don't have to be scared of big changes, I'm doing good and I'm here for me and i can take it easy. i have someone who is helping me ♡ i have someone who is keeping me safe. they work hard so i can be little ^.^ thanks big sis hehe ✌🏾
ouggghh im not little anymore but (。ノω\。) ♡ yeah. when i am little i can still like.. function as an adult n talk to ppl n stuff. but it's also like, well like i said before ig 0:
like im smaller but different‚ subtly. still me‚ but someone else since I'm like.. a teen?? that i never was. my childhood was nothing like my adulthood so this rly is a whole new thing little me has needed to learn 2 navigate emotionally/mentally.
but as i become more aware of when I'm in a little headspace and not, the difference in perception stands out to me a lot more. i can't articulate it very well... oughh. this is giving me very specific questions, but on that note — i am happy to feel so safe and looked out for when I'm little 😌💕 i used to feel scared and helpless but it's different now. we're doing this together 👩🏽🤝👩🏾 i got ya lil sis
#sometimes I'm a teen sometimes I'm like 6ish??#the latter is rare but hm ૮ – ﻌ–ა when I'm little older me is still aware and can handle talking to ppl and getting the sentiment across n#whatnot. i don't know off the top of my head how different teen me and younger me are from each other 0: or how similar we all are#but bc older me is always aware like we all have my memories and experiences yk? and my littles r just Here and they come n go randomly#i am curious about these headspaces..#oh ? i went into the younger headspace rn (❁´◡`❁) ♡ it is pretty different.#very docile (。ノω\。) not a lot of thoughts just like. vague feelings. she laid on my big plushie n got comfies and drifted away though#idk...... i like.. invited other parts of myself 2 come say hey 2 me and make their presence known#(。・ω・。)ノ so i can take better care of n be more responsible for us since it's not just me yk?#and like teen me is kinda bratty and angsty lol but also such a hoe 💀 i love her akskaka girl..#she's such a daddy's girl low-key?? I've never had a dad or wanted one before lol.. she a lil boycrazy 🙈💕#i mean.. so am i but she's taking it to new heights lol!! 😭 it's interesting what wires get crossed n new connections I'm making these days#but like. they're both p different from me at both their respective ages and just compared to when I'm not regressed.#the teen one's been harder to pin down just bc i kinda go in n out of that one a lot but it's been going on a lot longer than i realize#so like.. i just naturally made space for me to be that way without knowing?? but now when i regress I'm like hey what up ✌🏾😏#ms ma'am's here to vibe for a bit. maybe look at some cute boys‚ maybe talk some shit‚ flirt a little who knows 💀#she's kind of a hoodrat like i was ill give her that lmao 😹 she's fun#she's also a lovergirl who rly cares about our friends just like me ʕ ꈍᴥꈍʔ ♡ i think on a surface lvl u wouldn't know the difference#between us unless u hung out around me a lot‚ but it's cute to think about ^.^#u are hanging out with us 👩🏽🤝👩🏾💕 we r having fun and appreciate u
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sorry to ffxivlovepost always anyway Man the way the devs & game did so good in making an mc that is Basically a blank-slate for the players, and there's so many opportunities to make your oc However you like but. the game itself adds so much story and character to that blank-slate guy. amazing
#⋯ ꒰ა starry thoughts ໒꒱ *·˚#⋯ ꒰ა ffxiv ໒꒱ *·˚#i think abt this a lot. and also a lot of other ffxiv stuff LMFAO#it's amazing ..... drk is a huge example of this i think#bcs it plays into the guilt and whatnot the wol feels and all that. spectacular#endwalker !!!!! shadowbringers!!! the way the game uses the concept of hope is just always so beautiful and fascinating to me#and yeah bunch of games may have like. mc you create & design but not always can you like. ehvejfhsjf idk how to explain LOL#it is 4 pm i woke up 2 hours ago but priorly woke at 7 am after havingn a rlly. weird sleep.#to which my twin told me 'i wont tell u what time it is' as we went to sleep so it def was Really late#bcs we were going thru re2 and she was also playing games on steam i've been telling her to play#(to which i got her fav characters right and knew fr how'd she'd like the game LMFAO. twins amiright.)#actually that is also smth so fascinating to me bcs. i always have had someone w me in my life. i am literally never alone.#to which what i'm getting at here is Wow... it's like having a sleepover every single day. and i was a kid always sad never to have#sleepovers bcs my parents were strict (they r cool tho!) but i was a kid who wanted to experience all the kid things#but i didn't rlly but that's fine :P i am a grateful person LOL anyway back on track back on black#ffxiv... the game that u are.....#it's the 1st game that rlly actually made me invested in the ocs of others and also make a fully fledged oc that wasn't just originally mine#but for a fandom or something. and also it got me back into writing and Into making poetry and prose so. yeah.#it's amazing how much. oc x canon ???? yeah. ffxiv is so Wow#like eveyrhhting w themis or graha and how u can AAGGGHHH shit w your oc . so many possibilities#and that character. those possibilities. are already in game but also expanded by the player and the fanbade and#idk it's so beautiful to me WHAGHSGDJDH. and yes me saying themis or graha up there is self-indukgent bcs#both of them are so Insane it's so. insane!!!!! i will never forget what happened in abyssos in particular that Broke me#and anabaseios... :)) i cried so much it is almost embarrassing. and wow. asphodelos. wverything w themis just. yeah#anyway graha... self-explanatory if u know..... idk he's the character of all time to me. simply said. but themis is crazy bcs going thru ab#yssos made me think for a bit 'hey themis might be my fav character in ffxiv now' but No but also Wow. wow#kinda cute bcs me and my twin have a thing where she has a certain type of chara she likes and me too#so sometimes. most times. all times. we have our own characters we like anyway but sometimes they overlap but either the case we kinda#lowkey 'segregate???' idk if that is a good word but we do that w our fav characters. so like emet is her fav elidibus is mine.#and that was all the way in arrr alr and we barely knew spoilers so that's kinda crazy! anyway
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had a few really good days, now everything sucks. awesome. 🙃
#did stuff today. but I overdid it so now my hand hurts a lot & it'll most likely be worse tomorrow and I regret it.#really really tired.#and then I found out that I hurt my friend's feelings because I misunderstood the tone of their message so my reply came across totally#different from what I thought.#and intended#when I read their response it felt like. when you're going downstairs and you miss the last step#I feel like I'm a piece of shit. tried to explain that that wasn't how I meant it at all but idk if it'll be enough#they were really mad at me I think#I was just trying to be supportive and positive but apparently it came across like the opposite of that#and I hate myself now#I guess I'll just. go to bed. I feel too bed to do anything and I've got a horrible headache#I'm too fucking sensitive and also bad at reading people's tone and also everything else really#I shouldn't talk to anyone ever bc somehow everyone always ends up thinking I'm an asshole when I'm just trying to make everyone feel better#😭😭😭#personal
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not even posting frequently anymore and still having to fight the urge to remake purely bc im tired of feeling like so many ppl follow me for l u reasons meanwhile i'm having a growing disdain for it [ moreso the fandom and thus wanting literally nothing to do with it ]
#man. idk. as soon as i got over 50 followers i've been having a lot less fun#i feel like people are expecting shit im not going to give#i just want to write my silly aus and fan comic for one niche fandom#i didnt know so many ppl were still into this old manga and i have to wonder how many of them Are and are many are just. l u fans that don#actually know anything about the manga beyond what they've read from other people#also im not use to having more than like 5 people caring about what i do its kind of scary
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