not to be annoying but my entire brain is on a 30 minute timer and throughout that 30 minutes, I slowly descend into madness, paranoia, insert other insane fucking attribute here, but whenever I listen to a youtube video, play a match of splatoon, or get attention, it resets and I’m saved for a whole 30 minutes
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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Thinking about the Dawnfather. A god of light, a god of harvest, a god of the sun itself. Good but not nice, kind but not soft. Life-giving but also scorching. Protective, warm, and kind, but also stern, harsh, and abrasive. His light can foster growth, can protect and guide, but it can also scorch and burn. The sun is warm and nurturing but don’t stare at it too long, child, it’ll blind you.
Was he always so hard? Did he always hide his face with the harsh light of the sun? Or was there a time when he smiled and laughed, let others see him as he truly was?
Thinking about the Schism. Was the Dawnfather close to the Betrayer Gods before they turned? He must have been, Asmodeus wouldn’t be so hung up on him if he wasn’t. Speaking of Asmodeus, he was once a being of light, like the Dawnfather and the Everlight are now. Were they closer than the others? When the Gods came to Exandria, did they come from the same place or were they scattered, a ragtag group of survivors fleeing from predators seeking to devour them? And if the latter is true, did these three beings of light come from the same place? Siblings, born from the same stuff, forever tied to one another?
If this was the case, then, what was their relationship before the Schism? Did they call each other “Brother” and “Sister”? Did they hold each other when they were scared, dry each other’s tears, laugh and joke and tease and fight and make up because they were siblings and they’d always be together, and they loved each other with every fiber of their being and they only had each other. When Predathos came, when it devoured two of their newfound siblings, did the Dawnfather hold them both and promise them that everything was going to be okay because he was their brother and he was going to protect them, all of them. The gods, mortals, the world itself, they would not be devoured, they would not be destroyed, because he was there and would fight until his very last breath to keep them safe.
Wondering then, was that the moment when Asmodeus truly grew to hate their creations? Seeing his brother and sister and siblings risk their lives just to protect some mewling mortal wretches when they could just leave it all behind and start somewhere new. Was that the moment when he realized that mortals had done something to them, changed them when they were not supposed to change. Why else would they risk being devoured by Predathos, why else would they suffer through war with the Primordials? Why else would they choose them over him!? Was this the moment when he decided to conspire with the Primordials and the other Betrayer Gods? To destroy this world and the mortals on it so they could finally leave. And they would leave, of course, because the Dawnfather was his brother and the Everlight was his sister and the Gods were a family, and at the end of the day, they would always be together, and once the corrupting influence of those mortals was gone, they would surely all see reason.
And when the Dawnfather discovered this betrayal, when all the Prime Deities did, he must have been furious. How could they!? His kin, his brother, who had always been by his side through everything, how could they turn around and destroy their creations, their children. And so he and the other Primes took up arms and fought against their own family to protect this world they had created, and their children who inhabited it. Those battles must have been brutal, bonds of comradery broken, kin clashing against kin, screaming curses as they tore each other apart.
During those final battles of the Schism, when the Dawnfather clashed against Asmodeus, did they scream at each other in rage? A twisted reflection of previous squabbles, different because this time it was real, this time there is no forgiveness, no making up. When the Dawnfather knocked Asmodeus down, crushed his throat under his foot and banished him to the Hells, was he yelling when he disowned him? Or was he quiet when he did it, his voice going into a low growl, deadly calm as he told him that he was not his brother anymore. And moments previously, when the Dawnfather could have easily killed him, did he look into Asmodeus’s eyes and see his brother? Scared and hurt by his hands, hands that once held him and swore to protect him. In that moment, did the Dawnfather realize he couldn’t kill him? Because that was his brother and despite everything, he still loved him, and hurting him brought him more grief and pain than he could ever imagine. So instead, he banished him, locked him and all the other Betrayers away because he and the other Primes couldn’t bring themselves to kill their family, but they also couldn’t let them free.
Was this when the Dawnfather obscured his face? Hardened his heart because otherwise he would break, and he cannot break, because the other gods need him to be strong, because Exandria needs him to be strong. And so he stayed strong, despite the grief, despite the guilt, despite the pain of heartbreak, of hurting the ones he loved to protect the ones he loved. And this hardening must have continued, running himself ragged during Calamity, beating back Tharizdun, protecting Ioun after she almost died, sheltering the Everlight after Asmodeus once again betrayed her, stabbed her in the back and left her broken and weak when all she wanted was to do was get her brother back, to save him from his own wrath. Failure after failure after failure to protect those he cared about, to protect his siblings and mortals and Exandria itself. The guilt of his failures must be overwhelming, and these are his failures: Predathos devoured his siblings under his watch, his siblings betrayed them under his watch, Calamity ravaged Exandria under his watch, and even now, the threat of Predathos has once again returned under his watch.
No wonder he is so harsh now, so controlling now: because every time he has failed in his vigilance the world has suffered for it. He can’t fail again; he can’t lose any more siblings. And so, he continues hardening his heart, continues fighting, because the sun must always rise again in the morning, no matter what.
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