#hr1187

[iamokaynowdeb]

#ElectionDay #IVoted #GoVote I haven’t had the energy #Spoons to do much over the last month due to this #Chronic journey & I had to rely on my hubby driving me to the voting place, but it is very important to do the most significant thing impacting our health and life these days. As an advocate I do not wish to tell anyone who to vote for... yet I cannot let this moment pass with using my priceless #spoons to say #Vote our #CureGP #Gastroparesis #Motility #mitochondrialdisease #Diabetes #POTS #EDS #Barretts #Raynauds #AutoImmuneDisease #Chrons #HR1187 #IBS #FGIMD communities are deeply impacted by this day. So yes I use my #Spoons to say #Advocates please do not fallback or prey to negativity which whispers to you saying my one vote can’t make a difference... every vote makes a difference. There are 25,000 of you in the large support group. There are 100’s in the smaller support groups.. these numbers have shifted elections, changed outcomes, please #GoVote remember you are not alone #WeSeeYou #WeHearYou #WeFeelYou #WeAreYou -even when I am personally low on spoons I am lifting you all up with unconditional support and love! Day & Night! @digestivehealthmatters @aprilgqg @gimotility @mcbanecarolyn @mitoaction @umdf @bundytr5 https://www.instagram.com/p/Bp2NZPhHbQx/?utm_source=ig_tumblr_share&igshid=4dod700a2uqv

[ddst33]

Happy #TubieTPNTuesday #CureGP Gastroparesis #HR1187 💚http://goo.gl/MK8Koz YALL THE MOST AMAZING Happiness ***😀ever😀 ***one of our dear amazing #GPSister Raven Walton is in Big Brother 19 her --> hashtags #PacerPower #BB19

[iamokaynowdeb]

The Mitochondrial/Motility Journey

#MitochondrialAwarenessMonth Sept 22 our online/ offline awareness day! How do I tell you about my mito? The easiest way is to describe how your organ systems behave when you age. Yet in a mito malabsorption dx my bones were 86 yrs old but I was approximately 40 (when this began.) my hearing & eyesight declined. I had cataract implants way earlier than you would anticipate. My GI issues … at…

[iamokaynowdeb]

Pandemonium

A Red-lorded Amazon

A pandemonium of parrots…. all seeing us with their

Intent gaze…

What do they see & perceive of us?

Do we attribute our thoughts unto them?

A hand fed baby will not know itself to be a bird,

It thinks differently about its self.

If you are intent in act and deed you will see.

It isn’t so much about a transference of our thoughts to them

In the pandemonium I believe we are the…

[iamokaynowdeb]

Thank You Warriors As we wind down our month of advocacy, reflection on our chronic journey tells us about our #warriorship 24/7/365 it is magnified in our month in August, on the 4th Saturday of August each year.

[iamokaynowdeb]

Happy #ThankfulThursday #helpingothers #Cures #CureGP #CureMito #CureOurChronics #Gastroparesis #POTS #EDS #CIP #IBS #FGID #HR1187 #TakeABite4GP #Worldwide #Empathy #ReGram #incurable2curable #Raynauds #Motility #Crohns #UlcerativeColitis #AutoImmune #Diseases #Sjogrens #Lupus @mcbanecarolyn @bundytr5 @aprilgqg @gimotility @tippedmug @cecielro @melissaadamsvanhouten @melissamccarthy @aliciakeys @mitoaction @umdf @americancancersociety @american_heart @amdiabetesassn @dysautonomiasc @wegohealth @medivizorteam @walton_raven @rare @us_pain_foundation @rarediseasedayus @cnn @msnbc @foxnews @kark4news @thv_11 @orlandosentinel @memphisnews @wmcactionnews5

[iamokaynowdeb]

#ThankfulThursday #Cures #CureGP #Gastroparesis #advocacy #joy #Healing #grace #optimism @aprilgqg Thank you for always being unconditionally #supportive! With #truth & #love #light @gimotility #HR1187 @tippedmug @cecielro #IBS #FGIMD @bundytr5 @melissaadamsvanhouten @carolynmcbane @gpwarrior @guts_and_gumption @mo_2013_ @nkotbangelwingz @ohbrita @schwabboettcher @micheletillery @mindy.krystof @myrarobertson40 @cherylraudebaugh @cherylraudebaugh @mitoaction @umdf @wegohealth @medivizorteam @lupusorg @assoc.diabetes @theellenshow @renee_lynette @this.gut.feeling @dysautonomiasc @debscoolnails @cnn @katvnews @kark4news @kark4news @walton_raven @thv_11 @steventrotter @crystalephillips #peace #TakeABite4GP #Tweet_Eat #Empathy We can be #BetterTogether #GreaterThan alone #Green4GP #Green4Mito #Purple4Migraines #Invisible2Visible #Incurable2Curable #NEGU #TogetherWeFightTogetherWeWin #WeAreGreaterTogether We not I speaks #Grace y’all it us to #Be #We We cannot Hear 👂🏼 anything until our words are in the correct words.

[iamokaynowdeb]

[ddst33]

#Advocacy & #Support #HR1187 is our #MotilityDisorder bill in congress requiring support with cosponsors our Representatives from each state. The dots are various Support & advocacy groups in our community I hoping & praying they all work. ❤

[iamokaynowdeb]

#FactFriday something always comes up with #life our challenge is to live in our #now with our best journey without allowing our #joy #comfort to be stolen.. I know our #chronic journey can be extremely hard.. #difficult #challenging we can always -with enough concentration find a small #mustardSeed of joy .. nurture it, care for it, fan it, until it becomes our #EmotionalForestFire of joy.. hold on to it! It is your #now assignment! #advocacy #Comfort #strength to all today plus +++ #love #support #chronicWarriors #2By2 #Twwet_Eat #empathy for us all #TakeABite4GP #CureGP #HR1187 #FGIMD #IBS #MotilityBill #USA #Cosponsors

[iamokaynowdeb]

While we are often #Invisible literally & metaphorically due to our chronic journey we are always a breath away from #EveryHourIsANewHour while we spend time building ourselves up with #Spoons often we don’t know ourselves when our hour will be ready, but Prayer #Love #Peace #Patience #Support #Faith the unconditional #Agape blessings of other prayer warriors make the waiting hours all blessings in our stillness. Whether it is through #meditation, #Prayer #Biofeedback or any other type #ChronicWellness @aprilgqg tool We are truly all standing together whether we see each other on our platforms, behind the scenes, or spiritually (sometimes the greatest blessings of all) Thank you all Chronic Warriors I don’t want to miss any of you leading into this season of blessing toward #Cures ! Yes, I still see the journey filled with optimism and positivity for all which will be possible come January in 2019! Each new year brings the possibility of change for better treatments research and quality of life and care towards #cures for all of our #Chronic communities! #Cures is our best option, motivation, inspiration, encouragement, empowerment, strength with comfort it’s optimistic positivity for our new hour always gives us hope for change in so many ways. Yes, ‘‘tis the season for #Cures” #CureGP #Gastroparesis #Motility Bill #USA #HR1187 #IBS #FGIMD #TakeABite4GP #Empathy #Worldwide #chronicintestinalpseudoobstruction #CIP #ColoincInertia #mitochondrialdisease #Mito #POTS #Raynauds #EDS #Crohns #UlcerativeColitis #AutoImmuneDiseases Love and Prayers to all warriors https://www.instagram.com/p/Bq8DZfDnhpx/?utm_source=ig_tumblr_share&igshid=14lx91tt82ujj

[iamokaynowdeb]

#ElectionDay we must #GoVote regardless of how our affiliation to party we,as advocates, must motivate each other. We know every day and #vote matters! Even though we have few spoons to spare, often are in a spoon debit, as I am now. It is so very important for our communities #HR1187 #IBS #FGIMD our #MotilityBill requiring cosponsors is spoken of so very often. If your representatives have been responsive to our community members be a reminder in your vote how we feel about their support! If the have not been a very good representative of our needs in the chronic community.. please vote and let them know how their actions are affecting all of us! Our votes are how we send a message to congress on how we feel! We wish to live a better quality of life and care while we fight to be cured! Many of us literally are fighting to not be staved to death from our Motility issues. It is our time to be heard! We mustn’t let those negative, pessimistic comments be believed! That our vote can’t make a difference. Yes it can make a difference! There are many many many times political races have won by small margins! We have support groups with numbers in them, which can/could literally be the difference in this day of voting! Please let your friends know today is the day to be counted! #WeSeeYou #WeHearYou #WeFeelYou #WeAreYou isn’t just a collection of hashtags it is a truth! You/We are not alone! Even when you do not see me online, I am lifting each of you up day & night w/ #Unconditional #love & #Support each and every day! Thanks to my hubby driving me I was able to go to #Vote today & take a real shower for the 1st time this month. We all share this #chronic journey together I am just like you! I wait to share positive energy and news! #IVoted I pray you will be able to motivate advocacy over adversity w/ another #Warrior #GPReporter #Advocate #Spoonie to create change towards better treatments research and quality of life and care w/ love & support ❤️🙏🏼❤️🥄🥄🥄🛶🛶#PeaceBoat prayers to each of you @aprilgqg @digestivehealthmatters @gimotility @truexjr_fan4life @melissaadamsvanhouten @mcbanecarolyn @monitakespics @umdf @mitoaction @us_pain_foundation @steventrotter https://www.instagram.com/p/Bp2eM-jnPDJ/?utm_source=ig_tumblr_share&igshid=bofesqcivjkg

[iamokaynowdeb]

@reprickcrawford @rep_stevewomack @repjimsensenbrenner < — thank you for your original sponsorship dear Sir! Millions who suffer w/ layers of #chronic illnesses are requesting the empathy and change this Motility Bill represents for our communities! We seek relief from malnutrition, dehydration, nausea, vomiting, pain, constipation, diarrhea, and a multitude of other symptoms related to incurable illnesses which vary in severity and degrees. We are asking you to #cosponsor #HR1187 our bill which is also your bill impacting all Motility issues #IBS #FGIMD #Gastroparesis #CureGP you would want no less for a family, friend, acquaintance or human being suffering from a lack of nutrients due to a failing/malfunctioning/ broken digestive tract. We all want better #treatments #research #QOL #QOC & #Cures #HR1187 w/ centers of excellence creates a platform for us to begin this process! We need a #GutShot where we are all on the same page, sharing research and information to help us work towards better treatments. Creating more centers of excellence and more specialists in our communities to serve all of us. We need Doctors who understand the necessity of hydration fluids and how they are literally lifesaving for so many in our community on many levels. The accessibility to IV fluids can keep #chronic warriors out of the emergency rooms. They (IV-fluids) can stop the damage being done by chronic dehydration to our organ systems. They also help with constipation when you are unable to take in fluids by mouth due to nausea and vomiting. There are other ways to help #Chronic #warriors like #MitoCocktails #CBD oil or #medicalmarijuana all are topics which should be looked at from the viewpoint of what will help the #QOL #QOC a treatment plan for #incurable #illnesses progress w/ a particular treatment should be viewed through the patient’s eyes. #empathy helps us agree even when we disagree 🧤💚🛶🧤💚 agree w/#empathy @gimotility @digestivehealthmatters @aprilgqg @bundytr5 @mcbanecarolyn @us_pain_foundation @monitakespics @mo_2013_ @steventrotter @crystalephillips @jonesborosun @melissaadamsvanhouten @daisymariebonilla @andersoncooper @bravoandy @laurenglowss @kark4news https://www.instagram.com/p/BoMXGQdHX8K/?utm_source=ig_tumblr_share&igshid=tfpbqidg0mg1

[iamokaynowdeb]

Seeking Healing & Control While Chronic

Seeking Healing & Control While Chronic

Seeking healing, and control while striving to find answers to the why …. a body is spiraling out of control physically from an undiscovered illness.

This can be a devastating experience without support both family, medical, and spiritual of some type.

When you eventually arrive at answers/ diagnosis/es the “seeking,” if the diagnosis/es include incurable illnesses, …. the seeking, is of an even…

[iamokaynowdeb]

@digestivehealthmatters has put together an amazing advocacy opportunity for us to help us achieve a success in our goal of passing #HR1187 into a Bill please share this day of advocacy for the millions of lives living with malnutrition, dehydration, pain, debilitating fatigue, nausea, vomiting, constipation, and/ or diarrhea with or without bacterial overgrowth. You may be one of the millions or you may love or be empathetic to those who wish to eat normally and digest normally. #TakeABite4GP if you can! Will you take a moment to use your voice by requesting our representatives to #Cosponsor #HR1187 our #MotilityBill Motility is #IBS all #FGIMD #Gastroparesis #Crohns #CIP #SIBO @gimotility #CureGP Please join us by supporting our advocacy journey to #Cures better #treatments, #research and quality of life and care all are an integral part of #HR1187 #IBS #FGIMD #Gastroparesis #CureGP @aprilgqg @bundytr5 @melissaadamsvanhouten @us_pain_foundation @umdf @mitoaction @hesaonlineorg @4littlemom @monitakespics @dazzle4rare @jillsfotoluv @chronically.christina #TogetherWeFightTogerWeWin -April 🧤 #DontQuitBeforeYourMiracle - Carolyn we have #Inspirational leaders in our communities y’all are all unique & each inspire us daily, moment by moment w/ your courage, beauty, Grace, & Strength while battling #incurable diseases our future can be different w/ #HR1187 @andersoncooper @cnn @kark4news @wmcactionnews5 @katvnews @4029news @thv_11 @msnbc @foxnews @wreg3 @steventrotter @crystalephillips @walton_raven @chronicclub24 @bravoandy https://www.instagram.com/p/BnwChOvHnPQ/?utm_source=ig_tumblr_share&igshid=1r6y8p4js3306

[iamokaynowdeb]

#SpoonieSunday #Advocacy #Green4GP #CureGP #Gastroparesis #HR1187 #MotilityBill @digestivehealthmatters #FGIMD #IBS #USA requires cosponsors to move its passage #TakeABite4GP #empathetic #Worldwide advocacy requests all who can digest their food to #ReGram post, share, like, etc for those millions who cannot. Every action makes a difference! #Malnutrition #Dehydration #Fatigue #Pain #Malabsorption #Nausea #Vomiting #Diarrhea #Constipation #Diabetes #Idiopathic #AutoImmuneDisease #Mito #POTS #EDS #Sjogrens #Raynauds #Barretts #CIP #SIBO #Crohns #ColonicInertia #TogetherWeFightTogetherWeWin @aprilgqg #ButYouDontLookSick #Spoonie @csaltrelli @cherylraudebaugh @chrisstapleton @christinemiserandino @mcbanecarolyn @umdf @mitoaction @us_pain_foundation @medivizorteam @wegohealth @carrieunderwood @chikensrule @ohbrita @brittany @dazzle4rare @hesaonlineorg @nkotbangelwingz @jewelsgators28 @schwabboettcher @melissaadamsvanhouten @cherylraudebaugh @c