#Spoonies

[headpainmigraine]

Signal boost!

I did the digitising temperatures when they advertised it during covid, and it's easy and helpful.

Might not be suitable if you struggle with things like eye strain and detail work, and if you have low concentration, but it's still worth a look as there are a lot of different ones.

If you're feeling anxious or depressed about the climate and want to do something to help right now, from your bed, for free...

Start helping with citizen science projects

What's a citizen science project? Basically, it's crowdsourced science. In this case, crowdsourced climate science, that you can help with!

You don't need qualifications or any training besides the slideshow at the start of a project. There are a lot of things that humans can do way better than machines can, even with only minimal training, that are vital to science - especially digitizing records and building searchable databases

Like labeling trees in aerial photos so that scientists have better datasets to use for restoration.

Or counting cells in fossilized plants to track the impacts of climate change.

Or digitizing old atmospheric data to help scientists track the warming effects of El Niño.

Or counting penguins to help scientists better protect them.

Those are all on one of the most prominent citizen science platforms, called Zooniverse, but there are a ton of others, too.

Oh, and btw, you don't have to worry about messing up, because several people see each image. Studies show that if you pool the opinions of however many regular people (different by field), it matches the accuracy rate of a trained scientist in the field.

--

I spent a lot of time doing this when I was really badly injured and housebound, and it was so good for me to be able to HELP and DO SOMETHING, even when I was in too much pain to leave my bed. So if you are chronically ill/disabled/for whatever reason can't participate or volunteer for things in person, I highly highly recommend.

Next time you wish you could do something - anything - to help

Remember that actually, you can. And help with some science.

[spacedocmom]

21/01/2025 Doctor Beverly Crusher @SpaceDocMom Incoming Transmission…

Your mental well being is as important to protect as your physical well being. You have block buttons on all social media. I recommend applying them as needed on a daily basis against anyone throwing garbage at you, even if it's only in text form. emojis: black heart, blue heart, masked, spoon

[certifiedgoofball]

i hate when i, a completely healthy person (very chronically ill), get sick (flare up) for no reason at all (i exerted myself way past my limit just cuz i didn’t wanna be “annoying”)

[myalgicencephalomyelitiscfstom]

[disasterchorale]

reblog to find again.

what an amazing piece / person / community. Thank you.

I luckily haven't had to deal with much chronic pain or hand pain yet, especially with regards to baking (crochet is another story). That said, these look like some pretty solid tips! There's also some in the comments section.

[spookietrex]

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[chronicsymptomsyndrome]

I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:

Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself through if you were to “tough it out.”

If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.

If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.

If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.

You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?

Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes

It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once

You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.

Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3

[fanon-and-canon]

"you always have something wrong with you"

well yea, no shit. its like im chronically ill or something

[the-jesus-pill]

You’ve got to forgive yourself for being traumatized and needing to learn how to function again. 

Recovery isn’t always nightmares and depression, it’s forgetting to eat, being scared of what others might see as completely normal things, it’s getting random panic attacks, not knowing how to take care of yourself, not knowing how to live like an adult, even if you’re twenty, thirty, forty, fifty, of feeling like you’re failing to function in a world where everyone seems to have their shit together. 

If you need help, ask for it. Go to forums and ask for advice. Take advantage of community resources. Buy pre-sliced veggies and fruits, eat instant meals if you can’t cook for yourself today. Hire someone. Ask a neighbor for a favor. Buy any item you think might make life easier, even if you feel like you aren’t ‘disabled’ enough to have it. 

Some of the depression posts (ie open your windows, take a shower, go outside, call a friend) are really helpful but they’re not always enough. I’ve found advice for spoonies, people with chronic pain or other disabilities have the best tips because they know what it’s like to be bedridden, out of energy, stuck in a brain fog. 

You may never return back to the energy you had when you were younger and you might always need to use crutches to help you through life. It’s the same with medication. 

Trauma is a real thing that happens to you, it physically alters your brain and it’s alright to have lasting scars. 

You’re not broken, your life is not over and you can still be happy. 

It’s not your fault.

[disabledfrogs]

Disabled people don't owe you a diagnosis. Don't ask "what's wrong" there's nothing wrong with me I'm just disabled. You're a stranger, why would I tell you something that should only be between me and my doctor?

[lifewithchronicpain]

If you don't need a cane, but you get one to signal disability because sometimes you get faint and need to sit, or whatever, as a cane user for years, go ahead. Please, if it makes claiming accomodations easier for you, even if you don't need it to walk, I don't care. This is your permission if you needed it.

Can I suggest that you can get a foldable one at CVS (they're great) so it's there when you need it? Shits fucked up, do what you need to do. Just beware there are assholes that won't care about the cane. But overall, it does make things easier and is easily purchased. Go for it.

[spoonie-on-wheels86]

[chronicillnesshumor]

[cripp-tid]

if you can't have kids for medical reasons, i love you. a lot of people emphasize the joy of children, talk about how they changed their life, etc., and that's just not possible for some of us.

so. shoutout to:

• people who can "technically" have children but can't risk the financial stress due to being already disabled/chronically ill

• people who can't get off their medication long enough to conceive

• people with uteruses who have endometriosis or PCOS

• people who can get pregnant, but have a connective tissue disorder which makes them unable to handle the progesterone during pregnancy since it causes flares (hi, it's me)

• intersex conditions that makes you infertile

• anyone who has a terminal illness

• people who've had medically necessary surgeries which caused infertility

• people with genetic conditions they don't want to pass on (me again)

• those who require IVF that's just not in the cards for whatever reason

• and many, many others

• feel free to add on

you're not broken, you have a reason for being like this. i know it's hard. i love you. it's going to be ok. 💙