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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
[plain-text version of this post can be found under the cut]
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
Plain-text version:
Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
P.S. Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
#hlep#original#mental health#my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need.#the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it#i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support#and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist.#the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28!#a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents.#they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of#huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the#longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong.#and those people are NOT great allies to the chronically sick folks in their lives.#you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead?#or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of.#no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow.#i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel#i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong.#just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop
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everything will be fine
#ace attorney#satsuhart#dual destinies#spirit of justice#trucy wright#apollo justice#nahyuta sahdmadhi#rayfa padma khura'in#me: man today sucked (draws something depressing)#for someone who likes trucy a lot i haven't drawn a lot of her yet... i've been so khura'inpilled#anyway i guess ill end up doing ask game stuff later its so late... i need to get up early... fml
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Today's gentle reminder💕
#illustration#artists on tumblr#cute#artoftheday#wholesome#A gentle reminder#today's reminder#love#gouache illustration#gouache art#gouache#painting#sweet art#relatable art#you got this#positive quotes#art#artist#artist on tumblr#nature art#sweet#beautiful colors#everything will be okay#you will be okay#better days are coming#things will get better#relatable#tag someone who need to hear this#artwork#gouache painting
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I'm on chpt20 and I want to study SQQ like a bug. My man is flushed, hair down, robes literally falling off his shoulders, LBH on his lap playing with his hair and kissing him... and he finally cottons on to the fact that maybe this isn't how you have a platonic and important discussion. Enforces it for all of five seconds at which point LBH starts massaging his waist and SQQ is back to being like "yeah this is fine and normal". Amazing. Can't believe he insults the IQ of SQH's characters.
#Shen 'the pot' Qingqiu meet Shang 'the kettle' Qinghua - fucking morons#svsss#shen qingqiu#luo binghe#bingqiu#sqq#lbh#honestly thought i'd be finishing bk3 today i was so ready to devour the last hundred pages after work today#and then i slammed face first into this mental image and was completely derailed#mxtx you can't keep being the funniest mfer out there it makes it so hard to read without needing to stop and draw#i seriously cannot BELIEVE this#this would not be a slowburn for anyone OTHER than sqq i'm so angry#i read the bit where lbh is so overwhelmed he buries his face into sqq's lapels and had a moment of#''gee that's so cute i may need to stop and draw this... NO BE STRONG KEEP READING this is cute but the conversation is#too interesting to stop now!!'' i said with all the naivety of someone who doesn't realize how ridiculous sqq is about to become#Bene Finish This Book Tomorrow Without Being Derailed Challenge#my art#i know in my picture lbh is not massaging his waist but the visual shorthand didn't translate quite as easily as a shoulder massage#for silly cartoony pictures like this broad strokes tend to work better than strict accuracy... hence the paraphrasing :P
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“Is doctor who a good or bad person” theyre the kind of person to fly in a little blue box and go weeeeee
#some ppl took the driving question of capaldi being am a good man and went oh so there’s a right answer#like whyyyy does it matter whyyy do we always need to define fictional characters like this#12 was right. not a good or bad man. just an idiot. peace and love on doctor who#idek where this all came from bc I feel like previously everyone just kinda understood that the doctor is a complex character#and then earlier today I saw someone talking abt who the ‘villain’ of midsommar was..bro.#does everything have to be a morality play to you people#warlock wartalks
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pro tip: you can always put the bugs in little outfits :thumbsup:
#rain world#five pebbles#lttm#looks to the moon#no im not procratsinating what im actully drawing to put the bugs in fun outfits what are you talking about#anyhow uh yeah man been a lil since i uploaded anything huh. that will not be changing. stay tuned for as scarce art as always. we stay thr#anyhow! you know i have done similar scehctehs alot and i always do the undershirt longshirt for them cause i feel like moon would like it#nd pebbles got it from her even if hed hate to adit it. sometimes your older sister figure has good taste (subjective) and you will never r#each her high#anyhow also i like desiging tshirt prints even if its always a pain when i need to do it#ough#anyhow i have suns also if anyone wanna see that i suppose?#otherwise hmmmm well if anyones reading this who has an opinion i wokring on a comic and concidering if i should wait with posting and do t#e whole thing once i anage to struggle through adding the text#or if i will be weak and post my fave parts beforehand for funnsies hmmmm many choises someone tell me what to do i hate making choises#uh for anyone not intrestied in my long tag rabling music rec for today is cop car by mitski!!!! and not at all because ive been watching a#disco elysium aniatic with that song on loop on youtube for days#thats not soemthing id do#anyhow anyhow!!!!#my art#see i can remmeber that tag sometimes :)#oh also an its nice to go back to drawing these guys after weeks of my own rw ocs. strange experince man#^-^
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mmmmm danny with sensory issues both in and out of his ghost forms, but on the opposite ends of the spectrum. Ghosts can't experience sensations the same way humans can when they're in the mortal realm. They're naturally intangible, and it takes energy to be physical. When they're physical, all touch feels the same barring the texture. They feel no heat, no chill. Sunlight passes through them, and so does wind and rain.
You know when your foot falls asleep/goes completely numb, and you go to touch it with your hand and it causes a strange jumble of sensations? You can feel the skin there, your palm is pressing against an object and there's resistance, pressure, but you can't feel the heat? It's kinda something like that. Like he's feeling everything through a set of gloves.
As a ghost, when it rains, he can feel the raindrops hitting him, and he can feel his hair getting wet, but he can't feel the chill of the water and he can't feel the wetness. His suit is soaked but there's no weight like there should be. During the winter snowflakes don't melt when they land on him, and he can't feel the chill of the snow when he gets buried under it.
Sunlight passes through him, a nice breeze ruffles his hair but there's no relief in the sensation. All pressure, no sensation. It's like a strange form of sensory deprivation. And of course, the internal things. It's even worse when he's intangible, when he's not putting energy into being physical. He doesn't feel real.
As human, things become too much. Especially when he's been a ghost for hours. He can feel the weight of his ribs pressing against his ribs, he becomes hyperaware of the expanding of his lungs when he breathes, the feeling of his heart pulsing in his chest.
He curls his fingers in and out slowly and becomes fascinated by the feeling of the joints moving. He turns and grabs Tucker's hand, and soaks in the warmth of his body heat -- he can't feel it as a ghost. He runs his fingers through his hair, and he can feel the individual strands.
There's a weight when he walks. A small drag when he bends his knee and lifts his leg and takes a step, and when he's been a ghost for too long he stumbles over himself, drags his feet along the floor and stomps when he doesn't mean to because he forgot to weigh his steps. Sometimes when it rains he goes out and sits on the front steps of the house just so he can come back in shivering and soaked through to the bone. Runs his fingers obsessively over the goosebumps up along his arms and legs because he can't get them as a ghost even if he's cold.
Because there are certain things, even when he's in the ghost zone, that are exclusive to the living. The little internal things you don't notice and take for granted. Things like breathing and goosebumps and exhaustion exclusive to running that makes your heart pound against your ribcage and your chest hurt with the need for air. Sore muscles from working out and sweating. Thirst and dry mouths, chapped lips and hands, blinking and dry eye, the feeling of the sun soaking into your skin on a nice summer's day.
As a ghost, Danny faces sensory issues in the form of not enough. When he can't feel the hair behind his ears or the weight in his limbs where there should be muscle, tissue, and bone. He can't feel the sun or the wind, everything is in a permeable state of 'just fine', and its maddening. He can breathe if he wants, but there's no point to it. He has no lungs, he can't feel them expand, and there's no relief behind it. He's going through the motions without any of the reward.
On those days, the idea of going ghost again makes him feel ill. Paranoid. He can't stand the thought. He needs to feel. He needs to feel the soft texture of the rug beneath his feet and the grooves in his knuckles, he needs to feel dirt crumble beneath his fingers and get stuck under his nails, he needs to feel the heat of his sister's hand and the feeling of body warmth passing from her to him. He lays on the carpet room and stretches out, and focuses on the feeling of his heart beating and the weight of his bones and muscles and tissue pinning him to the floor.
As a human, Danny faces sensory issues of too much. When all the things he's starving for suddenly make him sick. He feels trapped in his own skin. His ribs become a cage and breathing becomes a dumbbell that he can't put down. He can feel the hair along his arms and it rashes him. He's too cold, he's too hot. He feels like a ghost puppeteering its own corpse and he needs out.
On those days, Danny dips away when he can and goes ghost, and Sam and Tucker don't see him for the rest of the day. He's gone invisible, intangible, and he does nothing but exist.
Just, him experiencing sensory issues as both ghost and human, but in opposite directions from each other. And the idea that ghosts experience the mortal realm differently, and that there are certain things that are just exclusive sensations for the living that Danny doesn't realize until he's a halfa.
#danny fenton is not the ghost king#danny fenton#danny phantom#dp ghost headcanons#dp headcanons#dpxdc#danny phantom headcanon#<- bc i originally thought of this for the blood blossom au except its generic enough of a headcanon that it also works as a standalone#but also i think dpxdc folks would get a kick out of this#but yeah danny realizing that there's SO much that the living have and experience that ghosts don't even in the infinite realms.#i imagine that when he overshadows someone he can re-experience a handful of those sensations like if he were living and suddenly#he understands really well why there are some ghosts who come thru the portal that almost exclusively overshadow people. Or try to.#The mock feeling of being alive again must be *addicting* to some of them. Because he knows it is for him when being a ghost is too much#not a lot of extra tags today folks i got everything i needed to say out into the post :]
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re last reblog I do see fanfic culture pushing/replicating a certain model of "what trauma looks like," "how trauma works"
this is a problem across all areas of society obviously, but transformative works are, well, transformative. they're about crafting and modifying narratives where the fan-creator sees a flaw or a lack -- often for the better! don't get me wrong, I've done my fair share of "I take a hammer and I fix the canon," it's the main thing that gets my creative gears spinning -- but what happens when that "flaw" is simply a narrative not conforming to popular expectations?
some people just don't get PTSD from events that sound obviously traumatic. they're not masking, and they're not coping; they just straight-up didn't get the permanently-locked stress-response that defines PTSD. they walk away from a horrible experience going "well, that sucked, but it's over now." some people do get PTSD from events most people wouldn't find traumatic. we don't really know why some people get PTSD and others don't. but fandom has an idea of events that must be traumatizing, of a "correct" way to portray trauma. you see the problems with this lack of understanding in e.g. fans pressuring the devs of Baldur's Gate 3 to add dialogue where the player character badgers Halsin about his own feelings on his abuse -- because he must be traumatized, and his trauma must fit a certain mold and presentation of sexual trauma, under the mistaken impression that anything outside that narrow window is somehow "wrong" and disrespectful or even harmful to survivors.
take, for another example, the very common trope of a traumatized character who hates touch or sex "learning" to like touch or sex as a part of their healing process. certainly that can be healing for some people; other people will never like, or want, touch or sex, because of trauma or because they just don't. the assumption that someone who doesn't want sex or doesn't like to be touched must be traumatized, must be suffering from this perceived lack, is seriously harmful -- to asexual people, to people with sensory issues around touch, and to people for whom healing from trauma means freedom to refuse sex or touch.
and there's a secondary trope, one that's slightly more thoughtful but ultimately repeats the problem -- that once someone has learned that their boundaries will be respected, they'll feel it's safe to soften those boundaries. once they feel safe refusing touch or sex, they'll feel comfortable allowing it on their own terms. but many people don't, and many people won't! many people will simply never want to be touched, and never want sex, and they are not suffering or broken or lacking because of it. the idea that proving you'll respect someone's boundaries entitles you to test those boundaries -- the paradox is obvious, and yet this is something i've seen hurt (re-traumatize) people i care for.
people are imperfect victims. people don't heal in the ways you expect. many people have positive memories of their abuse, of their abusers. many people hurt others in the course of their trauma, in ways that can't easily be unpacked in a 5k oneshot. very few narratives of trauma and recovery actually fit the ones put forward by popular children's media and romance novels -- which are the ones I most see replicated in fandom spaces, because they provide the clearest narrative and easiest catharsis, and so they're easy and soothing to reach for.
that's not necessarily a bad thing! i am not immune to goopy romance tropes. i am not immune to teary catharsis. not every fic has to grapple with ugly realities. but there's a problem when these narratives become predominant, when people think they're accurate and realistic depictions of trauma, when the truth of trauma is unpleasant and uncomfortable, and doesn't fit any single narrative, let alone one of comforting catharsis
#bird original#see also: the murderbot diaries#murderbot does not like to be touched. murderbot does not like touching other people#physical contact is an unpleasant necessity in emergencies or to feign being human (something murderbot also hates)#at one point murderbot uncomfortably offers a hug to someone it cares for because she's upset and needs one --#and she refuses. because she knows it doesn't really want to; she won't ask it to do something it hates for her benefit#& yet murderbot fic often has it learning that touch ~isn't so bad~ and maybe there are a COUPLE people it likes to cuddle with.#the differences between vash in the original trigun anime and trigun stampede --#tristamp!vash is your woobie who hides his sad and traumatized heart under goofy behavior;#who copes and avoids through silly indulgences#2011!vash ... is not that#2011!vash isn't coping or masking. he feels immense grief yes; he also feels immense joy; the two are inseparable#he pursues joy moment to moment because he knows how fleeting each moment is#he loves people so intensely because he knows that he'll lose them -- so he has no time to waste with them#his grief is real and profound; so is his joy#i find that much more compelling and i feel like that's not a character i'd see in today's media environment#anyway#fandom#trauma#fanfic#throwing a golden apple into the tags with this but fuck it we ball
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bro do u know who's an idol that i wanna gatekeep soooo bad? dokyeom. like this is a man who's so crazy talented that he's lead vocal of a hugeee group, belts high notes Just For Fun, is moodmaker, energizer, sunshine of the group, cute and funny and adorable and sexy buff all at once and is ALSO the leader of the incredibly successful bss on the side?? he's been in a musical, TWICE (bc he was so good that they called him in to reprise the show), and no matter how much he struggles he literally never fails to have the hugest smile on his face. he's caring and gentle and loud and bubbly and he's so fucking GORGEOUS. like it's actually insane how beautiful he is. people don't appreciate him enough and i think that this is a sign that we start gatekeeping him bc if lee dokyeom is gonna be treated with anything other than kindness and love, then others don't deserve to know about him at all.
#yena talks#ramble post#dokyeom.svt#came home with many deekay feels today bc i saw is wv post and it made me flip#im so serious when i say that he needs to be gatekept because hes literally so precious#he's someone who deserves to be only loved because of the sheer akount of love he gives out to the rest of ghe world no matter what#and if you cant treat him with that same care and respect then you dont deserve to fucking know him#dk#dokyeom#svt#seventeen
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Found some old-ish unpublished Metadede doodles in various stages of completion for anyone who wants to see :)
#needed some positivity today… hope this reaches someone who needs it too-!#sometimes I just need two strong hardworking souls with the burden of responsibility on their shoulders to find comfort in each other :’)#metadede#art#king dedede#meta knight#kirby series
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i think it is fascinating that the first time we see mulder have sex (in 3) and the first time we see scully have sex (in never again), both of them approach it fundamentally as an act of self-harm.
mulder, wracked with the grief of losing his partner, trying to save this woman he just met as an act of penance, while scully's necklace dangles around his neck.
scully, processing that she does not have much longer to live, feeling terrified and frustrated, once again trying to force herself into doing what society expects of her, as if that will bring the happiness she has been denied.
i just think it's neat.
#i could write a dissertation on how this reflects their characters but... not today#someone who is on the ace spectrum watching anything: getting some serious ace vibes here#this may be swinging a bat at a hornet's nest but i need to speak my truth#but before anyone takes this and makes it into a discourse piece: I HAVE ONLY SEEN UP TO 5x08 OKAY? pls no spoilers#much love <3#txf#the x files#dana scully#fox mulder#<- not using the msr tag here because it feels wrong
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Does anyone remember when I would draw Glenn being a lil shit to his dad? Anyone?
#fe three houses#rodrigue achille fraldarius#felix hugo fraldarius#glenn fraldarius#glenn govan fraldarius#bc that loser got a middle name in thropes so here we go payin respects to that#fraldarius family#anyway i loved drawing silly lil stupid meme type situations with these three a while ago and#for some reason remembered YOU KICK MIETTE? today and had to do this#as someone who needs a wheel to spin to tell me what to draw most days the fact i knew without a doubt i had to draw this today?#balling thank you brain for suddenly hyperfixating on this stupid idea#here you go fe fans i hope you appreciate it
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god okay so i love Gortash's outfit as it is BUT BUT BUT I AM A BIG FAN OF THAT ONE CONCEPT ART OUTFIT WITH THE BEAR CLAWS
Im choosing to believe he still has this outfit somewhere in his wardrobe he just uses it in the winter cus i love it too much
#the thigh high boots you're JOKING i need him so bad#bg3#my art#enver gortash#every day i wake up and im like oh yeah i'll draw someone else today who isnt gortash#i black out and i wake up all bloodied and a sketch of gortash appears before me#the true urge tbh
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Appreciate the little things
🌹🌸🌻💐
#illustration#artists on tumblr#cute#artoftheday#gouache illustration#gouache#colored pencil#flowers#flowers art#gentle reminder#love#take time to appreciate the little things#little things#a gentle reminder#today's reminder#tag your person#tag someone who needs to hear this#sweet art#beautiful colors#art#artist on tumblr#artist of tumblr#relatable#relatable art#flowers illustration#take your time#artist#wholesome#wholesome illustration
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Hsnr day!!!
#hoshinaru#narumi gen#hoshina soshiro#kn8#my art#happy hsnr day to all who celebrate!#me drawing this like -squint emoji- something is missing#it's reno where is he#banished to the cuck chair today#10 is a pain in the ass to draw actually#if i draw one more art of them in their numbers suits i need someone to hit me over the head with a chair#i need a break why do i keep doing this!!!#anyways theyre super cuties!!!
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Okay, for aro awareness week, I need you all to start recognizing that:
NOT EVERYONE IN THE ARO COMMUNITY IS FROM THE UNITED STATES OR EUROPE.
Please, when we're having discussions about aphobia, allonormativity amatonormativity, and other issues for the love of god STOP PRETENDING THAT WE DON'T EXIST AND LISTEN TO US!
We aren't just your token aros that exist in the other side of the world just for you to prove that we are everywhere or whatever point you're trying to make, we are living, breathing human beings and members of the aro community and we deserve respect and to be remembered not as a point in your discourse but as equals.
I am sick and tired of people just assuming that everyone in the community is either from the United States or Europe and only centering those voices in the discussion. We exist too.
#mayaposts#aro#aromatic#aro awareness week#aromantic awareness week#aro awareness week 2024#aroallo#aroace#arospec#filipino aro#asian aro#poc aro#sorry this came about after someone replied to me saying that not everyone can afford necessities with one income and that rent is too#expensive these days with ''just move to less expensive cities like amsterdam or london and get a full time job'' and it PISSED ME OFF#mind you it was a discussion on why aroaces (who may not have partners or roommates) struggle in today's economy#the other person was not only dismissive of the op who was explaining the frustrations of needing to work multiple jobs to stay afloat#but also trying to just dismiss the struggles of single income people (in this case non-partnering aroaces)#and the implication that we should just ''move out of london and amsterdam and get a full time job'' to be able to afford rent#is such a privileged european/american take#sorry im ranting now lol im just peeved off#i dont even know if the other person was aroace at all tbh but whatever
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