#fibromyalgia pain
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Transient Ischemic Attacks (Mini-Strokes) Symptoms in Fibromyalgia
Introduction Fibromyalgia is a chronic disorder characterized by widespread pain, fatigue, cognitive dysfunction (fibro fog), and neurological symptoms. Some individuals with fibromyalgia report experiencing stroke-like symptoms, leading to concerns about transient ischemic attacks (TIAs), also known as mini-strokes. While fibromyalgia does not directly cause TIAs, many symptoms associated with…
#Fibromyalgia#fibromyalgia diagnosis#fibromyalgia pain#fibromyalgia symptoms#fibromyalgia treatment#fibromyalgia warriors
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Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.
#chronic fatigue#chronic illness#chronic pain#chronically ill#disability#disabled#fibromyalgia#lupus#autoimmine disease#pots#pots syndrome#invisible illness#invisible disability#accessibility#cripple punk
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#fibromyalgia#chronic illness#chronic pain#chronic fatigue#fibro#spoonie#chronically ill#invisible illness
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anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me
#My orthostatic tolerance is currently zero#POTS#postural orthostatic tachycardia syndrome#me/cfs#fibromyalgia#chronic illness#disability#migraine#gastroparesis#chronic pain#chronic fatigue#chronic fatigue syndrome#myalgic encephalomyelitis#spoonie#mast cell activation syndrome#MCAS#dysautonomia#chronic migraine#joint pain#hEDS#ehlers danlos syndrome#hypermobility#hypermobile ehlers danlos#interstitial cystitis
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#disability#chronic pain#fibromyalgia#chronic fatigue#chronic illness#long covid#sleep disorder#activism
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Something I want able bodied people to understand is that I don't want a diagnosis cause I wanna be sick so bad; I want a diagnosis because there is already something wrong with my body but I don't know what the fuck it is.
#cripple punk#disability#chronic illness#chronic pain#chronic fatigue#chronically ill#invisible illness#invisible disability#faulty body gang#fibromyalgia#help
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“slut era” i whisper to myself as i rot in my bed, sick like a frail victorian child
#chronic illness#chronically ill#chronic pain#actually chronically ill#pots#pots syndrome#dysautonomia#fibromyalgia#postural orthostatic tachycardia syndrome#supraventricular tachycardia
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Hey, it’s ok to not be a “productive member of society.”
Some people are housebound. Bed bound. Some people physically can’t eat, shower, or use the toilet without the assistance of a caretaker. Some people don’t have the spoons to get out of bed in the morning, let alone work a 9-5 job in this capitalist hellhole.
You’re not lazy. You’re not less than.
And this is coming from a disabled person with chronic pain who can leave the house and walk (with some pain) without mobility aids.
You deserve to take up space. You deserve to cost money. You deserve to be here without feeling guilty just because you can’t give back in the traditional way.
You’re worth it, hun. 🫶🏼
#chronic pain#chronic illness#chronically ill#chronic fatigue#fibromyalgia#fibro#disabled#actually disabled#disability#disability activism#invisible disability#level 2 autism#autism#actually autism#actually autistic#medium support needs autistic#medium support needs#neuropunk#madpunk
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
#it feels like i got jumped by seven people but NO#if my body is going to make me feel like ive been stabbed five thousand times i should at least get a sword fight out of it im just saying#fibromyalgia#fibropain#fibro problems#fibro flare#fibro#chronic pain#chronic fatigue#chronic illness#hypermobility#hypermobile#hypermobility syndrome#spoonie#disabled#actually disabled#disability#c punk#cripple punk
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The mind numbing anger of chronic fatigue is getting irritable because you're so fucking tired but you really feel like you SHOULDNT BE.
You SHOULD be able to sit at a desk and do work. You SHOULD be able to just watch a freaking YouTube video. You SHOULD be able to just eat fucking lunch.
But you can't. Because your eyes are closing and it's like temporary death is taking you.
#chronic fatigue#chronic fаtiguе ѕуndrоmе#tw death#tw disability vent#disability vent#chronic disability#chronic disease#chronically ill#chronic illness#chronic pain#fibromyalgia
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Bursitis in Fibromyalgia: Understanding the Connection
Introduction Bursitis is a condition characterized by the inflammation of the bursae, small fluid-filled sacs that cushion and reduce friction between bones, tendons, and muscles. It commonly affects joints like the hips, shoulders, knees, and elbows, leading to pain, swelling, and limited movement. Fibromyalgia, a chronic pain disorder, is known for its widespread musculoskeletal pain,…
#Fibromyalgia#fibromyalgia diagnosis#fibromyalgia pain#fibromyalgia symptoms#fibromyalgia treatment#fibromyalgia warriors
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Hey, if you’re not as mentally quick as you used to be because of your illness- that’s okay. If you’re can’t think as fast or handle as many tasks that’s okay. You aren’t stupid, you aren’t unintelligent, and you aren’t less worthy of love or respect. It’s okay that your brain won’t or can’t go back to how it used to be. It’s different now, but it’s okay.
#chronically ill#chronic illness#chronic pain#disability#disabled#chronic fatigue#autoimmine disease#lupus#fibromyalgia#pots#brain fog
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Fibromyalgia's complexity often requires a team approach. While a neurologist can be involved, ANF Therapy offers a drug-free option for symptom relief.
#Fibromyalgia#neurologist#anf therapy#anf academy#Fibromyalgia symptoms#chronic pain#neurology#holistic health#pain relief#fibromyalgia pain#fibromyalgia warrior
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Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind
#my body is ouchie#chronic illness#disability#fibromyalgia#me/cfs#migraine#postural orthostatic tachycardia syndrome#chronic fatigue#chronic pain#gastroparesis#pots#hEDS#ehlers danlos syndrome#hypermobile ehlers danlos#hypermobility#the horrors persist but so do I#the horrors#interstitial cystitis#I no longer desire internal organs#or bones#oof ouch my bones#dysautonomia
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I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)
It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
#signal boost#please reblog#I'm so so glad this has gotten the traction that it has!#chronic pain#chronic illness#disability#fibromyalgia#cfs#chronic fаtiguе ѕуndrоmе#actually disabled#spoonie#me/cfs#cfs/me#long covid#important#invisible disability#ehlers danlos syndrome#lyme disease#chronically ill#cpunk#cripplepunk#it's a bummer that it's so US centric but if you're outside of the US you can look into similar programs#I hope that other countries have options like these#the US seems so behind when it comes to medical care and disability resources. and i mean it is#but it's good to know all of your rights as a disabled person or if you ever become disabled
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i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary
#cripple punk#cripplepunk#crip punk#cpunk#actually disabled#chronic pain#disability culture#fibromyalgia#disability rights#disability advocacy#physical disability#c punk#angry cripple#queer cripple#cfsme#chronic fatigue syndrome#chronic fatigue#arthritis#diabetes#neurodiverse#neurodiversity#neurodivergent#autism#autistic#adhd#actually autistic#hypermobile eds#hypermobilty syndrome#our writing
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