#disabiity
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If one subscribes to an ideology that views people with cognitive, psychiatric, and other diagnoses as mostly incompetent, ‘child-like’ and unable to care for themselves or make meaningful decisions about their lives, then an idea such as independent living or living in a non-institutional setting is quite radical, which is why it was, and still is, so ferociously resisted. It may be useful to understand what one means by a ‘dependent population’ that cannot live 'independently,’ which is what many proponents of institutional and group home living say of people with significant disabilities. Two dimensions could be affiliated with the term dependency: first, dependency on the state for financial support, health care, and other provisions; second, perceived inability of people to engage in their own self care without assistance of others (Oliver 1990). Some disabled people seem to fit both definitions.
In everyday usage, dependence implies an inability to care for oneself and thus having to rely on other people’s assistance. Conversely, independence implies not relying on anybody and requiring no assistance, a concept tied to an individualistic ethos (Oliver 1990). Disabled people often embody a different definition of independence, as exemplified in the principles of the Independent Living Movement. Under this framework, independence is perceived as the ability to control one’s life, such as hiring one’s own aides, and deciding on daily routines. It is not understood to mean doing things without any help from others. When analyzing daily living in modern societies, it is hard to find situations in which any people are independent from one another. Thus, projecting dependence as a characteristic only of 'fragile’ members of our societies (i.e., elderly, disabled, and children) may seem natural, but it relies on a specific North American framework of rugged individualism (Ben-Moshe, Nocella, and Withers 2013).
If anything, in many cases it is societal attitudes that create dependence amongst elderly and disabled people. Inaccessibility of the built environment, patronizing attitudes, historical exclusion from schooling and the increasingly fast pace of life in modern societies are all contributing factors to the social construction of disability (Wendell 1996) and dependence (Oliver 1990). Dependence is not inevitable or inherent within these populations. Dependence was prescribed to people with disabilities, and the elderly, so it seems detached from 'normal people’s’ existence (Finkelstein 1993). An additional problem of the creation of forced dependence and infantilization is that it is often 'masked by loving care’ (Hockey and James 1993) of family members or professionals.
Liat Ben-Moshe, “Alternatives to (Disability) Incarceration”, Disability Incarcerated: Imprisonment and Disability in the United States and Canada.
#'dependent' is a political category & value judgement under neoliberal capitalism#for as long as independence is considered a perquisite for personhood - one which disabled/young people will always fail#liat ben-moshe#institutionalization#readings#disabiity#autonomy#ableism
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Today I received a text from a friend. He asked me how I was doing. He mentioned he had heard from a mutual friend that I was "still suffering from back problems." A phrase I have heard many times.
It has been over three years since my back pain started. Over two years since I had surgery on it, which saved me from paralysis, but not the pain. (I was not promised freedom from pain. I knew this going in.) This is chronic. I have a disability. And every comment or message I receive from friends and family confirms to me that they do not understand this. That they do not listen. They don't hear it when I say this will be a lifelong issue. That this is forever.
I'm assuming this is partly because my story is a stark reminder that our bodies are vulnerable. Fragile. It must be fear, right? The knowledge that if this could happen to me overnight, so it can to them. Better to imagine that I can get better. But what is lost in all that anxiety is my suffering.
You would think quite the opposite is the case, perhaps. With his text, is my friend not acknowledging my pain? But the problem is with the word 'still'. It betrays that he lives in a world where my back is not a problem to me. It supposes that my back problems ought to be resolved. Resolvable. But they are not. They are here to stay. There should be no 'still' in that sentence.
And perhaps you wonder what would be the right thing to say. I honestly do not know. Recognition, perhaps, that when we plan something together, my back is something to be taken into account. Allowing me to express my pain and frustration when I am with them, maybe, without their discomfort urging them to make these comments. Acceptance, that my body is no longer healthy. Not asking a question that you should already know the answer to.
Because the truth is that I myself am still grappling with it. I am still mourning the loss of my body as it was. I still grieve and yell and cry. For a life seemingly lost. And all the while I can literally feel my back deteriorating further, limiting me further, eating away at my freedom. So I hope you understand that there is no room in my life for the word 'still'. For a question with an answer already provided in the past.
If anyone in your life tells you that their condition is chronic, if you know anyone who is disabled, please listen, understand, accept. Because they have to do it themselves as well, and they are suffering while doing so.
#back problems#chornic pain#chronic illness#disabiity#back pain#pain#physical health#I hope I never did this to anyone else while I was an abled person#maybe it's just an impossible thing to ask because it's an impossible thing to imagine#a story every day#30 august#2024
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Movie Review: Scream of Fear (1961)
Movie Review: Scream of Fear (1961) directed by Seth Holt (British title: “Taste of Fear”) Ten years ago, the Applebys divorced, and Mrs. Appleby got custody of their daughter Penny Appleby (Susan Strasberg). They moved to Italy. Eight years ago, Penny had a riding accident and lost the use of her legs. Three years ago, her mother died, and she was left alone with only her long-time companion.…
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#accessibility#chauffeurs#Christopher Lee#disabiity#disappearing corpse#doctors#drowning#fake accent#fathers#France#gaslighting#Hammer Studios#heiresses#housekeepers#marital infidelity#missing mom#movie#murder#mystery#paraplegia#pianos#Riviera#stepmothers#suicide#villas#wheelchairs#wills
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youtube
#disabiity#writing disability#writing disabled characters#fantasy#scifi#science fiction#writing tips#writing advice#Youtube
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thank you, i really appreciate that, i'm sorry that you understand what it's like. i hope you are able to get treated for what's happening to you after you get the results from your scope. it's horrible, i've been getting nauseous every time i eat for months and somehow that's not a high priority... wtf. if you feel like they are dragging their feet after you get your scope done, don't be afraid to make sure they schedule you some type of follow up. you deserve to know what the hell is going on. best of luck to you
apologies for being quiet for a bit, i've been dealing with random nausea at weird hours and it's been a pain because it's been taking me hours to recover from it... i had an endoscopy done in january of this year and they told me about several problems, the important ones being a hiatal hernia and undigested food in my stomach after 12 hours of fasting... an then nothing ever came of that. guess i have to remind them that neither of those things were good and i can't eat food without feeling like i'm going to get sick
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[ID from alt: natsuyuu matonato fanart of them post canon in a kitchen, with matoba saying a tumblr post. 1: matoba, using a cutting board with a careless and irritating-on-purpose smile, says "babygirl i am going to chop these vegetables so roughly." natori, who is literally just walking by, looks over in pause. 2: natori is now crowded behind him staring at the board in concern with one hand hovering over matoba's shoulder, labeled "thinking about stopping him." matoba looks at him still with a mildly instigative smile, labeled "knows natori is remembering past kitchen incidents," and says "does the diversity of shapes on display in these pieces of onion make you want me"]
in the literal two years it took me to draw this joke it never stopped being funny to me. because i have matobas sense of humor. and depth perception /_^
what else to say. i just literally love and never get tired of thinking about their day to day living together lol bc they would get so comfy familiar sweet and domestic but Never stop being annoying
#art tag#exe#natsume yuujinchou#hexfest2k23#<- /_^#disabi🦎y (prosthetic leg and cane user) 4 disabi/_^y (prosthetic eye)#cold as SHIT today i put natori in so many layers. also cooked for two hours =______= meal prepped#just tickled by my own thing of. if natori didnt catch this and kept walking matoba WOULD be just as entertained saying this to himself.#humors himself lol#exorcist bday bash 2023
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"Personally I have a slightly different relationship with disability pride, because for me, even if the outside world became this accessible, accepting utopia, there would still be days where I just feel too ill to get out of bed, and that sucks and I'm mad about it. But I'm not ashamed, and I'm at a point where i won't make other people make me feel ashamed either. And I am proud of myself. Even if I woke up tomorrow miraculously cured, disability has informed who I am. It will always be a part of me and I am proud of that."
Claude from the Youtube Channel @retroclaude (YouTube Video Link)
#hello everyone! in this episode we talk about bobby's disabiity arc in s5#and I (grey) had a lot of strong and complicated feelings about it#that i feel i was not able to articulate well in the episode#if any of you also had strong feelings about it and wanna talk to me about it feel free to shoot us an ask!#and thank you to all our listeners too who had been very nice and patient with our irregular uploads when im having a flare up#i really appreciate it.#and also claude is really a wonderful content creator and knitter and crocheter. shes one of my fave people in that community!#she truly has inspired me to make many garments and also has had a great contribution to my own journey of self acceptance and all that#with regards to being a chronically ill person#go show her some love! (and prepare to be tempted to start vintage knitting projects)#mentioned#as mentioned in ep 103
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trying to not have a seething raging blind meltdown right now because learning other disabled people write off autism as not a disability and especially downplaying autism wrt intellectual disability
#it's fucking trying to not lose it#the absolute lack of caring and solidarity and only accepting autism as being included in disabilities if as comorbidity w smth else 'more'#ignoring the quality of life of autistic people or the fucking amount of comorbidity with what is classified by psyc bodies as intel disabi#the fact these peoples political liberation only extends to it through other things it has and not the main cause of its intell disability#feeling very much less supported and fought for than it thought it was and more only tentatively now#and seething at how uncaring even disabled people are to OTHER DISABLED PEOPLE#sure some autistics are not actively as disabled as others but fuck what are you on to treat it as not a disability especially intellectual
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(different anon) watching old maxian clips makes me actually insane they were so sick if ian DIDN'T actually molest max at some point i would be surprised
i mean ian did also molest max. that was a pretty significant thing that happened. like i understand where you’re coming from here but ian very much did molest max
#for those curious this is from worlds most disabIed p0kemon go player on max’s old gaming channel#thank you for reminding me of this i’m gonna go have an episode#bunnyaskz
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Okay, I probably don't know how to search for shit but ??? I'm trying to find a fanfic i was sure would exist but apparently not and I'm cranky
As far as I know, the hc about Jigen being gay is fairly popular right ? And nobody wrote a fluffy or hurt/comfort fanfic about teen Jigen coming out at one point to Lupin ?
I saw fanarts of it, and GAAAAAH MY HEART but fanfics ?? I'm probably blind, or too picky, but I'm gonna end up writing my own thing because Lupin Zero's interpretation of the 2 gives me life, and I want to see more young queers getting the support they deserve, even if it's fictional ones.
#lupin iii#LISTENNNNNNNNNNNNNNNNNNNNNNNNN#projecting real ass serious queer or neurodivergent issues on characters helps !!! A lot !!!!!!#like idk fanfics about coming out#complex gen/der dy/sphoria#queer awa/kening#discussion about the aroace spectrum#but also !!! headcanons about mental health#aut/ism joy#talk about disabi/lity#and more complex things !!! I saw someone wrote Lupin as bipolar and went insane#it was so fucking interesting and good and GAH#censoring the tags bc i don't wanna clog serious tags wit fandom talk
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Sprites of the Orchard! We are postponing our Disability Pride Month Open Mic until 29 July - there's still time to sign up!
Attendee: https://eventbrite.com/e/667691241477 Performer: https://forms.gle/WKpKiELPtfpAhKo49
#disability pride#disability pride month#long covid#chronic illness#chronic pain#disability#disabled and proud#writeblr#open mic#poetry tumblr#poets on tumblr#disabled artists#disabied#poetry#writing prompts#poetry community#disabilties#writers on tumblr#creative writing#neurodivergent#neurospicy#neurodiverse artist
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If you want to fight for representation maybe don't fucking antagonize artists/writers who fight for it because "it's not good enough!"
Entitled people with ridiculous bullshit expectations like this hold back representation so much
Like I could throw all that criticism toward Legend Of Korra and Steven Universe back at TOH and other shows like it when it comes to disabled representation- "its only coding! It's not outright stated! Eda's curse turns her into a monster! Wahhh" I've stated I don't like how TOH handled disability but I'm so happy it exists because hopefully we'll open up more story telling that explores disability through the perspective of disabled characters themselves rather than a bunch of able bodied neurotypical people writing/regurgitating the same inspiration porn bullshit
I'm not saying we can't criticize these shows (SU and LoK have issues that deserve to be discussed) but creators working on them fought so hard just to get moments like Korra and Asami getting together, for the first lesbian wedding on a children's show. New shows get to flex that they have these characters because other shows like Legend of Korra punched through barriers to give them space- they didn't have space so they made some! You can criticize SU and LoK like I said- SU has serious issues with Filler and some botched ass morals and LoK could be shallow in some parts but if you try and flex on them because new shows have an easier time with gay representation your a fucking idiot- your new shows wouldn't exist without these ones
But no. It's never blunt/explicit enough, it's too problematic because xyz', it's not representing every single facet of our experiences so it must be bad.
Also the gems being nonbinary/genderless just adds another layer to LGBT representation
Are y'all gonna attack TOH because Raine is nonbinary and their relationship with Eda "doesn't count"
I'm done being polite. You can criticize rep and call out harmful things in fiction without erasing the importance of these stories
Steven Universe: Eh, I don't really feel like saying "girlfriend" or "wife". Maybe they're together. They have a special connection...
(gets violently shoved aside)
The Loud House/Craig of the Creek/The Owl House: Pfft, amateur. "My GIRLFRIEND Sam and I..." "I'm texting my GIRLFRIEND, mind your business." "Luz's new GF showed her..."
#The owl house#loud house#legend of korra#craig of the creek#Steven Universe#With RWBY I love the bees but I admit the ship has issues#But I won't erase it's importance#Especially considering RWBY for all its flaws helped me as a young lesbian#Same goes for the Legion Of Superheroes cartoon#And My Little Pony#I don't criticize the rep in LoSH because it was the best they could do- and I treat SU and LoK the same#I feel lame admitting that these shows helped me#As an autistic person with a family that has dealt with illnesses from lupus to schizophrenia and profound/functional intellectual disabi#-lities I have gripes with TOH#But I also acknowledge it's importance and I don't think it's all bad- I just wish certain things in the show were handled more sensitively#I'm so done being nice when defending these shows#I'm not gonna get mad at LoK for not being perfect with Korrasami because it was the best they could do#Do you not realize how hard it was back then#I'm only 21 but my sister (who is bi) remembers a time before gay marriage and crazy evangelical nonsense because she's older#She doesn't like SU and even she said complaints like this were bull- because the shows people make this complaint about stood against odds#They won. It was hard and it was messy but they won even though they didn't have a horse in the race so you can forgive them for having a-#Few bruises and not being in first place#You have a horse in the race- your still at a disadvantage yes but you have a better chance#Gay#lgbtqia#I'm so done#representation is representation#Unless it's actually super harmful (like how she-hulk represents mental illness) or baiting (like lightyear) then you take it and learn to-#Do better if there was a problem#People are so entitled
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The Penguin 2024 is above all else about grooming.In this essay,I will-
#many many thoughts#ik there's a lot of interesting commentary about disabiity (visible and invisible) power corruption trust etc but I feel like a lot of ppl#are ignoring the grooming#give me a show about how family is hell and I'm happy#the penguin spoilers#the penguin 2024
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I hope whoever is stalking my accounts knows I'm pissed as a left chickens wing right now
I loved you but I can't cause you gossiped about my health conditions there fore I can't apologise. Why relaliate? Why get encouraged? Why take the most popular opinion? Is that.opinon truly yours ? I loved ya cause you were you and I liked taht you weren't perfect and I was happy to take differcult conversations with ya to solve things properly. How silly of me to believe you'd do the same. At last time to move on since the joy won't end with you. There will be someone somewhere that wants me for all of me, the good the bad and the ugly. For the personality disorders and all. The excuses and the responsibility and all
#honestly thoight just cause i wont take responsibility in your messages doesn't mean i havent in my diaries#oh ethonal breath#i feel the shit and thats enough karama#stop relatiating cause all i hear about you is you retaliating#im sorry and i can say that to your irl face properly but all i hear is you trying to prove my disability like you personally have my disabi#ity#son of a doctor innit?#bit embarrassing for ya love#at least i dont have yiur name in my mouth#ugggggghhh ethonal berath smell just like my famalam .
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youtube
caring for disabled son 24 - 7 | deep honest interview with strangers on...
#real talk#inspirational#share your story#thought provoking#shareyourstories#inspiratinalvideo#interview#recovery#strugglesarereal#neurologicalconditions#A married couple caring for their disabled adult son on a beach holiday are interviewed by someone who has also experienced a serious disabi
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God @crystaltoa's post made me think about how Bionicles portrayal of disabilities is so...incredibly messy in a weird way? Like how often disability is correlated with some kind of alteration like mutations or a curse than anything "natural". Not only that, those at the end tend to be if not completely villanous at least somewhat shady. So there is a sort of weird undercurrent of disabiity as karmic punishment which doesn't really sit well with me because it paints it as someting abnormal to be shunned on than a normal thing. But then when disability happens to be natural it's portrayed as a positive thing. Like the Toa being neurodivergent is a sign for them becoming Toa, and being Toa is a good thing because they're the heroes both in-universe and in-narrative. So that just adds weird wrinkle to things.
But yeah I guess what I try to say is that, I wish Bionicle had more disabilities that were just...there. Like not a result of some karmic punishment or sign of a great hero but were just, something the person was "born" with and had to live with. Like god, let us have more characters that are disabled without it being some huge deal and just, something they happen to be. Yes this aplies both heroes and villains since while I understand there bein a lot of bad correlations with making villains disabled I'm cool with it as long as it is treated as a normal thing rather than as a mean to other them and paint them as evil. Like, make the villain just happening to be disabled than having disability be a sign of their villany if that makes sense.
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