#diabetes is stupid

[da-janela-lateral]

Silly boy why are you trying to kiss your boyfriend when you're too drowsy to see him

[hipstersoulgushers-art]

Facecanons for the reds n blues now that I’ve been hyperfixating for over a year

[fetching-sketching]

begging on my hands and knees for medical articles to specify what type of diabetes they're talking about in the headline. please please please

[trek-tracks]

Being a Type 1 diabetic Trekkie means that sometimes your two autocorrect suggestions are “insulin” and “I, Sulu”

[girlthativealwaysbeen]

it's not sinking in that today might be the last day in my house and town for many months to come

[type1diabetesinfandom]

Specifying a type of diabetes when saying crap like 'lol this fic is going to give you type 1 diabetes!' does not, in fact, make you sound smarter

It makes you sound dumb

NO type of diabetes is caused by eating excessive sugar! Get this through your heads please

*type 2 is at least EXACERBATED by high carbohydrate diets, not that that's an excuse to keep using this stupid phrasing. But type 1 has NOTHING to do with dietary sugars at all!

[cometrose]

I'm scared.

me too!!! but i am going to keep hoping for the best! Every day! I am too spiteful to give up before that orange clown and his ugly bug he calls a vp kick the bucket! I am going to keep living my life and keep fighting for what's right.

It's okay to be scared but you're not alone! Don't give up!

[thel1ghtningthief]

if youre not diabetic and make diabetes jokes i want you dead. btw

[remusawoooo]

do you think Sirius likes baking with Harry’s kids?(in AU where he didn’t die ofc)

hii

sometimes the cooking in ootp seems like coping to me but at the same time I don't want to think too much about everything so I love the baker/chef sirius. in a universe where he enjoys baking, he definitely enjoys baking with his grandchildren. it's their favorite activity cause sirius let's them have the weirdest combinations of flavors.

eyeballs ingredients while cooking but precise when baking! he let's the kids do the frosting ofc, nothing is too silly here. will they have classic flour fights? sirius letting lily get away with eating the icing while he told off james just a few moments ago. albus is too focused on getting the shape he wants out of the piping bag. Harry leaning against the door, secretly wanting to join in and then being prodded into mixing the batter under sirius' instructions like hes brewing a potion. (we have to sneak in harry&sirius baking in here, sorry)

I think he likes it a lot :")

thank you for asking, pls tell me more, what do you think??

[sunshine-and-sprinkles]

My blood sugar has been consistently spiking around 8:30-9:00pm for the last week (at least??) and I keep thinking my pump would for sure have recognized and adjusted for that by now but it just keeps happening 😫 I’m doing really well mental-health-wise not having to micro-manage my blood sugar but I was doing a lot better numbers-wise when I was!

[archduke-enver-gortash]

.

[her-no-bivore]

Things that p*ss me off

Technology edition!

So- my parents are both diabetic and have cgm's (Continuous glucose monitors), which are little devices stuck on their arms that measure their blood sugar, then send that data to their phones every five minutes. Useful, right?

Switching topics real quick, I have a pair of over the ear Bluetooth headphones that I wear almost consistently, (ADHD and autism- helps me think clearly, lol).

Now- what upsets me is that my 25 dollar headphones (that don't even have active noise cancelling or touch, or anything fancy), have a range of roughly 100-150 ft before they disconnect. As in, I can leave my phone at one end of my house, go outside, to the other end, and into my neighbors yard, and still be able to hear my non life saving music.

My parents can't even go into an adjacent room without their disconnected alarm going off.

Let me repeat that, my 25 dollar headphones have over triple the range of my parents >100 dollar life saving cgm.

Oh- and don't forget it's not even accurate 70% of the time and that it has to be replaced every few weeks.

[mzhydes-funtimes]

Very frustrated because my stupid dexcom wont connect after i tried it TWICE the first time was using the box at cosco and it failed to connect the second time was here at home so now the transmitter has basically not worked, period. So ive ALSO wasted 2 of the sensors so i have 1 to last me 20 days (they only last 10) and no working transmitter so i HAVE to use a stupid fucking needle even tho it has never failed to connect before.

Unless they just... discontinued g6 without telling anyone

Im just pissed because i onely get 1 transmitter every 3 months and 3 sensors every month (and i had an extra which i had to use) so i dont get any new stuff til like december/january

And i hate needles, period.

[fetching-sketching]

shoutout to that one time in high school i managed to convince one of my classmates that if i bit him and drew blood i would infect him with t1d

[beautyandthebetes]

Magic pill update

In my last post I talked about a drug that’s in the trial phases that aims to allow the beta cells of type one to start producing their own insulin again. At that time I had just signed up for it after speaking with a friend who works at the clinical research center near me.

I went in two weeks ago for the preliminary screening. It was mostly just a bunch of questions to review my medical history, and they also did an ekg and took more blood than I’ve ever given outside of donating blood (22 vials!)

Last week I got a call that my c peptide was “too high” with a result of >0.02 (???) so they needed to bring me in for a test where I’d be fasting, they’d give me food without insulin, and track my response in real time via cgm and blood samples. That was supposed to happen this morning.

Unfortunately I got the call yesterday that I am disqualified from the study because I have Gilbert’s Syndrome - my liver doesn’t properly process bilirubin, so it’s always too high. It doesn’t affect my health, just makes me a touch jaundiced sometimes, but there’s not treatment to bring it down. Because this trial drug may affect liver function, they decided to take me out of the running.

I’d be lying if I said I wasn’t disappointed - I really wanted to be part of what seems to be an amazing research opportunity, regardless of it I got the placebo or if it worked. That being said, if you want to keep track of it, you can find updates at this website as they come out:

[t1d-culture-is]

T1D culture is needing special testing accommodations to take a test with your insulin pump (because it... could... be used to cheat??)

★