#cripple Punk
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Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!
#chronically ill#chronic illness#chronic pain#disability#disabled#chronic fatigue#autoimmine disease#mobility aid#cripple punk
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But the way we perceive health and ability is truly problematic. No, eating protein shakes, avoiding ultra processed food, training everyday, running on the treadmill, etc. don’t put you out of the “dangers” of disability and illness (if we want to call it that).
No one is immune to illness, bad genes, accidents or old age. And becoming disabled or ill isn’t synonym of failure or “bad behaviours”.
Our bodies are fragile. Human beings are fragile. That’s why disability needs to be taken into account more seriously and considered as a social issue. For you, your loved ones and all the people you don’t know of but who deserve to be treated with dignity and respect no matter the state of their health and abilities.
I didn’t get sick at one year of age because I deserved it or because I was morally corrupt. How could I be? I was 1. It just happened. It was an autoimmune disease. That’s it.
#cripple punk#disability#cpunk#cripple#crip punk#crip revolution#disability justice#disability rights#chronic illness#disability pride#chronically ill#actually disabled#physically disabled#just venting#night time thoughts#disabled blogger#spoonie
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it was really frustrating that recently I had to deal with radical leftists violating a wheelchair user's autonomy. a wheelchair user was rolling through a rally and got stuck momentarily on a bump of the tactile strip. immediately a bunch of my comrades rushed over, grabbed this person's push handles, and "helped" him over the bump. I had to tell them, radical leftists, that you can't just grab people and push them without consent. one of them still went to do it again afterwards.
ableism is an every position problem. no political position makes you immune to violating our autonomy and assaulting us.
and sure it shouldn't be surprising blah blah blah don't tell me it shouldn't be surprising because it should be. I should be able to expect better of my comrades. I should be able to feel safe around my comrades.
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^^^^^^
Edit: adding on to this my gp who i trusted since we had gone to many appointments with her and i though she was generally good and supportive asked me for the first time if it was “psychological” AFTER i got a diagnosis and also advised for me to do strength training “just with your own weight” for my joints AFTER we told her about me/cfs. She knows about me/cfs and we have told her about how exercise doesn’t help, ect. She denied sending me to a department for tests my specialist told us to go to and tried to send us back to the hospital that treated me horribly but they denied further tests. Also it was kinda a shock to find out “we forgot to tell you that you have too many blood plates that were clearly show on ALL your blood test for years OOPS”
I'm so extremely serious when I say doctors should be put through an extremely extensive reliscensing process every 10 years. Doctors should have their knowledge scrutinized against current medical research and be de-barred at even the tiniest discrepancy. Too many old doctors absolutely refuse to stay up to date on research and dismiss patients because of their personal experiences. Too many people die every year because doctors don't take us seriously and refuse to listen to people who KNOW something is wrong. Too many people are told their problems are nothing and come back in a year or more with serious illnesses and doctors are just like "lol everyone makes mistakes" but doctors mistakes routinely cost people their lives! I'm tired of medical malpractice being swept away under the guise of "mistakes were made."
#chronic illness#chronic pain#disability#cripple punk#chronically ill#Doctors#myalgic encephalomyelitis#me/cfs#complaining#is this a vent post?#maybe#but Im pissed#I can’t even go to my school next year since the class is on the third floor#And i can’t crawl up that many stairs#So now i have to go to my SIXTH school
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Ideas you can put on your battle jacket/patch pants/crust pants/whatever
patches
- No ethical consumption under capitalism
- human rights aren't a matter of opinion
- make racists afraid again
- punch your local fascist
- girls just wanna have fundamental rights
- dead men cant catcall
- your body my choice my knife your life
- respect existence or expect resistance
- keep your laws off our bodies
- eat the rich
- ableism isnt punk
- no one is illegal
- we are all we really have
- fight war not wars
- we all bleed the same
- compost in training
- life is short smile while you still have teeth
- if youre not angry youre not paying attention
- dont talk to cops
- the wrong amazon is dying
- support local bands
- keep on living keep on fighting
- DIY or die
- mother earth is not for sale
- fight like hell for the living
- lick acid not boots
other stuff
- bottle tabs
- fabric scraps
- spikes/studs
- pouches
- chains
- safety pins
- staples
- lighter hoods
- screws
- bottle tops
#punk#alternative#battle jacket#crust pants#diy punk#punk diy#diy or die#cripple punk#mad punk#baby punk#crust punk#patches#patch pants
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i deserve to rip every ableist apart with my bare hands until theyre a bloody mess of pulp on the ground!
#crow caws#jirai boy#jirai danshi#jiraiblr#landmine boy#lifestyle jirai#landmineblr#lifestyle landmine#bpd#jirai lifestyle#subcul jirai#jirai#jiraiblogging#jirai kei#landmine danshi#landmine#landmineblogging#landmineposting#landmine kei#landmine type#actually borderline#actually bpd#actually disabled#c punk#cripple punk#angry cripple#crip punk
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I was out the other day when this spiritual group approached me. They had this stand set up and were offering “divine healing” and such. One of them saw me and that I had a mobility aid and started questioning me and asking me if I was in pain plus similar shit like that. I wasn’t even walking walking towards the stand, I was walking away from it and one of them went out of their way to chase me down. Can you just fucking leave me alone?!!? Is it that hard?
Grown ass adults approaching me (a minor) on the street so they can take advantage of my pain for the sake of financial gain. In their minds, whether they be Christian, spiritual or any other religion, I am misguided and “cursed”. My entire existence is a story for them to put on their Facebook page, flaunting me about to say “look how nice we are to disabled people!” or manipulate people in pain to think that they can be healed by buying into these scams. A douchebag in a fedora with a crystal isn’t going to heal me of my disabilities.
I’m not your advertisement, not your inspiration and not your money making scheme. Dehumanising me and touching me, giving me unwanted help doesn’t make you an angel just a piece of shit. I’m done letting people treat me like an accessory. If that makes me a “bad disabled” then so fucking be it. If people aren’t going to treat me like a person I don’t think I should be forced to accomodate to them . They are grown ass adults and they are making my life hell.
#morbid midnight#disability#physically disabled#mobility aid user#disabled rights#disabled advocacy#angry cripple#cripple punk#cpunk#tw vent#tw ableism#disability rights#cane user#disability community#living with disability#ableism#ableist
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Please don't take this sentiment and start deciding which disabled folks might fall into such a category. Disabilities, as with the people who have them, are complicated.
If you're reading this, just do it because everyone deserves a place in the revolution. Everyone. There are no qualifiers, there are no categories, there are just people. No one is left behind the movement - we only knock down whoever stands in front of it.
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that's a very good question! i'm making a post about this because i've gotten this question a lot and i feel it may help some people!
i was experiencing a lot of different GI symptoms at the time and trying to figure out what was wrong. i started struggling with food- i lost my ability to digest meat, dairy, and eggs. i started vomiting and having diarrhea often. i lost my ability to digest leafy greens, vegetables with thick skins, and other veggies and fruits. i would feel nauseated and bloated after just a few bites of food. i was experiencing a ton of pain as well
i had an endoscopy at the beginning of the year that showed some inflammation and other problems, as well as a hiatal hernia at the time. i had to pester that hospital to get a follow up appointment and when i met with their provider they ordered a ton of tests to rule out whatever we could. i was ordered a gastric emptying study, endoscopy, colonoscopy, and a CT scan. they did find issues in the colonoscopy (diverticulosis, inflammation without infection), but what became a priority was that they discovered stones in my gallbladder on the CT scan. the thing that helped the most was the CT scan, for sure.
that became the top priority to focus on. at the time i was used to the pain so it was hard to describe. now in retrospect i can. what i was feeling was a very sharp, aching pain under my right breast. it was always there but would get worse during those periods of digestive upset. i could barely keep down food. it was getting harder and harder to eat no matter what i tried. eventually i had to progress to liquids only, then i became lightheaded and it was hard to breathe or stand upright, and that is when i went to the ER and got my emergency surgery
when i was in that much pain it was radiating into other areas of my body like my groin and back. it was so intense it was all i could think about. it feels like a pain in the ribs, but it's not. i was convinced i just had something going on with my ribs or it was a result of bad posture. now that it's removed i can remember the pain quite clearly and i can definitely say that's all gone now.
hopefully this can be of help to someone. if people have more questions i'm happy to answer!
#cripple punk#crip punk#cpunk#disabled#actually disabled#health#punk#punks#punx#our writing#about us#gallstones#gallbladder#gallbladder removal surgery
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*grabs the face of every disabled person* this post isn't for you. You do not need to push yourself into a flare or breakdown or anything else for activism. If we do not nourish ourselves then we will not be able to fight for anything. Online spaces IS enough. Talking and calling out family members and friends when they're being borderline fascist/racist/homophobic IS enough.
You do not need to push yourself for the cause. It will only hurt you and burn you out.
I am so serious when I say that now is the time to take your activism offline. I am not spending the next four years squabbling on social media or getting woke points by reblogging posts that my followers already agree with. There are real places in your offline community where you can do good if you seek them out
#lessons learned from 2016#and 2020#and now#disability#disabled#chronic illness#mental illness#mental health#invisible disability#disabilities#activism#resilience#us politics#tw politics#cripple punk
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No cause I feel the hottest with my mobility aids — at the museum or hospital, idk what you’re talking about
#personal#I was envious of the pelvis on that fake skeleton#arthritis#scoliosis#chronic pain#disabled#ehlers danlos syndrome#chronic illness#cripple punk#pansexual#disabled pansexual#chronically ill#osteoarthritis#so hot and sexy#queer
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Able-bodied neurotypicals and neurodivergents please stop comparing your experiences with physically disabled experiences which you literally cannot speak for challenge.
Those of us who are both neurodivergent and physically disabled are so very tired.
#ableism#actually autistic#cripple punk#mad punk#neuro punk#disabled community#physically disabled#neurodivergent#it's not about you#stay in your lane
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I read on the CDC site that food heated to 165 F internal is safe from listeria.
Kept OP tags for searching.
seeing a lot of discussion of upcoming food safety deregulation that doesn't provide any options beyond "don't eat pre-prepared food and buy from local farms."
therefore, i want this thread to be for tips, advice, resources, etc, for disabled people specifically to get through the upcoming food safety deregulation in the USA. please reblog and add on advice for minimizing upcoming risk when you can only eat pre-prepared and frozen meals, rely solely on SNAP/EBT for groceries, etc.
(i'll admit this is a bit selfish; i don't have any advice to start us off because i am a disabled person who relies almost exclusively on pre-prepared meals to survive and can't buy groceries if they're not SNAP eligible, so i would really, really personally benefit from tips and advice.)
stay safe and take care of each other!
#cripplepunk#dyspunktional#cripple punk#actually autistic#actually disabled#disability#actuallydisabled#crip punk#cpunk#actually hypermobile
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I was very active as a kid. Not active as in organized sports or official training but an active kid as in playing and running around outside. When i was about 13 to 15 i lived in a group home with a huge garden that wasn't all level ground. That made for a lot of very fun games and because i've always been clumsy, a lot of opportunities for injuries.
I taught myself how to fall safely. Not from great heights or anything, just standing height or a step up. I taught myself how to fall if i tripped while running. How to catch myself and how to turn. How to move to avoid injuries.
I have POTS now, ankles that keep twisting, knees that give out and muscles that aren't strong enough. I have a neurological disorder that means i have episodes spasms and dystonia as well as partial paralysis and a lack of motor control.
Learning how to fall safely has kept me safe all these years. It's a skill that i am endlessly grateful i have.
I'm kind of a constant fall risk, but so far i've always been able to avoid any injuries more severe than bruises. I'm always able to get back up. On bad days and when leaving the house I use a wheelchair but even during flare ups i don't need it constantly.
Falling safely is so instinctive now, that even when i can't think during presyncope, i twist and catch myself. Even when my vision and hearing are gone, i land safely.
If there's one skill i recommend learning, especially as a kid, it's this. Learn how to fall safely.
#disability#disabled#chronic illness#chronically ill#fall risk#falling safely#kids#children#tips#idk how to tag this#cripple punk#tumblr#life tips
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The one time I decide to go out without my cane for a 5 minutes walk is the one time I fall over (definitely a coincidence /s)
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