#cripple Punk

[painonmars]

Recently I was in a crowded small shop and I apologised for being in the way and a random girl shouted way to loudly “you deserve to be here just as much as everyone else” and now anytime I feel like my existence is in the way I think of that icon

As a wheelchair user I'm trying to reframe my language for "being in the way."

"I'm in the way," "I can't fit," and "I can't go there," is becoming "there's not enough space," "the walkway is too narrow," and "that place isn't accessible."

It's a small change, but to me it feels as if I'm redirecting blame from myself to the people that made these places inaccessible in the first place. I don't want people to just think that they're helping me, I want them to think that they're making up for someone else's wrongdoing. I want them to remember every time I've needed help as something someone else caused.

[chronicallymistreated]

I find that it's so unnecessarily hard to explain that chronic illnesses and pain are... chronic. People seem to not understand the chronic part. Whilst I understand that some people recover, a lot of us never will and people seem unable to grasp that...

[bebsi-cola]

shout out to people considered messy eaters. people who take huge bites of food, who drop food from their mouth, who drool while eating, who make loud mouth eating sounds, who accidentally bite themselves while trying to chew, who choke and spit and splutter while eating and so on and so forth. vague notions about manners aren't more important than your right to eat

[cpunkwitch]

"what do you miss doing as a kid?"

"being active and mobile"

"like playing sports or just running around"

IM FUCKING DISABLED OMFG HOW IS THIS HARD TO UNDERSTAND

I miss being able to FUCKING MOVE without pain. I miss being active without being exhausted and out of breath after a few minutes of being on my feet. I miss having fucking mobility in my limbs and spine.

Wtf about "being active and MOBILE" makes you think I just mean I miss playing sports and running around?!

I'm 21 a normal person at my age can still do that shit!

[tired-cripple-punk]

I’ve been dismissed by doctors many times, so I wanted to know the experiences that other people have had

hate going to the doctors with persistent debilitating symptoms and then then they call you with the results which is just like good news! your blood is red

[ieatratsforbreakfast]

I just joined a punk community on here (with around 2.1K people in it) and I have yet to see a SINGLE post with images that also have image descriptions.

Punk spaces need to be accessible, add ID's to your images.

[crazycatsiren]

I think it's starting to become easier for me to distinguish between the "pushing myself to do this will actually be good for me today" and "pushing myself any further today will make this flare last at least a week longer" times.

[wheelie-sick]

lovvvveee (/sarcasm) the curb cut at my therapy office. literally right in the middle of a parking spot. when people park there I just can't get in or out without jumping a curb because it is the only curb cut

[ID: a curb cut centered in a parking spot]

I need to find a way to complain about it. that spot should be an access aisle (there is no access aisle for the single accessible spot)

[sabine-etc]

I’m coming out with another revised zine tomorrow!

[nondivisable]

I need to say something and I need y'all to be calm

if it isn't actively bad or harmful, no representation should be called "too simple" or "too surface level"

I have a whole argument for this about the barbie movie but today I wanna talk about a show called "the babysitters club" on Netflix

(obligatory disclaimer that I watched only two episodes of this show so if it's super problematic I'm sorry) (yes. I know it's based on a book, this is about the show)

this is a silly 8+ show that my 9 year old sister is watching and it manages to tackle so many complex topics in such an easy way. basic premise is these 13 year old girls have a babysitting agency.

in one episode, a girl babysits this transfem kid. the approach is super simple, with the kid saying stuff like "oh no, those are my old boy clothes, these are my girl clothes". they have to go to the doctor and everyone is calling the kid by her dead name and using he/him and this 13 year old snaps at like a group of doctors and they all listen to her. it's pure fantasy and any person versed in trans theory would point out a bunch of mistakes.

but after watching this episode, my little sister started switching to my name instead of my dead name and intercalating he/him pronouns when talking about me.

one of the 13 years old is a diabetic and sometimes her whole personality is taken over by that. but she has this episode where she pushes herself to her limit and passes out and talks about being in a coma for a while because of not recognizing the limits of her disability.

and this allowed my 9 year old sister to understand me better when I say "I really want to play with you but right now my body physically can't do that" (I'm disabled). she has even asked me why I'm pushing myself, why I'm not using my crutches when I complain about pain.

my mom is 50 years old and watching this show with my sister. she said the episode about the diabetic girl helped her understand me and my disability better. she grew up disabled as well, but she was taught to shut up and power through.

yes, silly simple representation can annoy you if you've read thousands of pages about queer liberation or disability radical thought, but sometimes things are not for you.

[thenervebible]

CONNIE PANZARINO at a pride march in Boston circa 1990

[ID: Connie is marching along in her sip 'n' puff (SNP) wheelchair. She is wearing a patterned poncho and sporting a green felt party crown on her head. She styles a pair of wire-rimmed glasses with her slicked back hair. She is smiling. Attached to the back of her wheelchair is a large green cardboard poster that reads "Trached Dykes Eat Pussy Without Comin' Up For Air!" followed by a pink upside-down triangle with a stick figure person in a wheelchair at the centre (a symbol for disabled women)].

the cyborg & the crip by Alison Kafer

[ID: “Trached dykes eat pussy without coming up for air.” Connie Panzarino, a longtime disability activist and out lesbian, would attach this sign to her wheelchair during Pride marches in Boston in the early 1990s. Shockingly explicit, her sign refuses to cast technology as cold, distancing, or disembodied/disembodying, presenting it instead as a source and site of embodied pleasure. “Trach” is an abbreviation of tracheotomy, a medical procedure in which a breathing tube is inserted directly into the trachea, bypassing the mouth and nose. Someone with a trach, then, can, in effect, breathe through her throat, freeing her mouth for other activities (another version of this sign is “Trached dykes french kiss without coming up for air”). From a cyborgian perspective, this sign is brilliantly provocative and productive. It draws on the pervasive idea that adaptive technologies grant superior abilities,not merely replacing a lost capacity but enhancing it, yet it does so in a highly subversive way. The message here isn’t about blending in, about passing as normal or hypernormal, but about publicly announcing the viability of a queer disabled location. It’s disnormalizing, adamantly refusing compulsory heterosexuality, compulsory able bodiedness, and homonormativity. As Corbett O’Toole argues, it challenges the perceived passivity of disabled women, presenting them as actively pleasuring their partners, thereby graphically refuting stereotypes linking physical disability with nonsexuality.]

[chronicallymistreated]

Stress definitely makes my pain worse and it's so hard trying to navigate that because I started getting stressed out even more which means worse pain and then I'm stuck in a loop

[pleaseletmeexist]

When I say “school should be disability accessible”, I don’t just mean we need handicap rails and EAs. Kids should be able to miss a day without failing out of school. You shouldn’t be dismissed from clubs because your attendance record is “spotty” (true story). I once missed an entire week of school because of a terrible, unending migraine. I was expected to keep up with my studies despite the blinding pain that came with working on my computer. When I heard my teachers say that you couldn’t miss exams, I asked what I would have to do to be excused from them. Their response? “Either get a doctor’s note an hour before the exam or death of an immediate family member.”

I cannot express how rigid this expectation was. First of all, with my condition, I wouldn’t have enough warning about my sickness to go to the doctor and request a note. For many people, this is exceptionally difficult, especially with the current shortage of medical professionals. Next, it ignores the fact that my schedule may not line with theirs because of my medical needs. Once, I had to visit a hospital a province away (which I was on the waiting list of for over a year) on the same day as an exam. I begged my mother not to take me because I was so nervous that I would be marked as an automatic fail. I was lucky enough to make it work, but that’s only because of my spectacular support system consisting of family members and wonderful doctors.

Disabilities aren’t always about needing a bus that can accommodate wheelchairs. It’s already difficult enough for many of us to maintain school attendance without the harsh punishments involved for skipping a day. We need to be able to miss school without being punished. Only than can you claim that the school is “accessible”

[lupusbaby]

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

[smoov-criminal]

we need to stop equating lack of independence with lack of maturity. people that live with their parents or have a caregiver or don't work or need more support than others aren't inherently immature. there's lots of reasons why people would be in this situation, even outside of disability (plenty of cultures out there expect people to live with their parents past what we consider the beginning of adulthood), and regardless of the reason we deserve support and community through what is already likely to be an isolating experience. don't make it worse for us