#congenital heart condition

[jamie-is-out-of-ideas]

shout out to all my fellow folks with congenital heart disease/condition who has to go to those anual appointments at the cardiologist (i had an enlarged right atrium and a funky looking tricuspid valve)

[literalcyborg]

Hey, can everyone start writing more characters with heart conditions so I can stop clinging to fanon Tony Stark and Rufus from Supernatural for dear life? I would really appreciate it :)

[little-lost-lamb]

They’re all ecstatic to have you back with them, now permanently. They like your horns, and they think your puffy sheep tail is adorable.

To clarify: Not which sin you would WANT to be, what sin do you think you ACTUALLY be?

Certified Sloth demon, here. 🐏

[pandoragigip]

me: I'm not disabled enough to say anything about this month :( also me: born with a heart condition, nose blind (0 sense of smell since birth), autistic, adhd, generalized anxiety disorder, nearly paralyzed as well but luckily got that fixed before it became a problem-

[charlottesharlottes]

sunday morning

[northgazaupdates]

CRITICAL EMERGENCY!!! 15 y/o girl needs heart surgery!!!!

Earlier this month, we made a post asking for your support in attaining 15 year-old Nour’s monthly treatment for her congenital heart condition. Unfortunately, the funds raised came too late. Nour’s health took a dramatic downturn yesterday, and the doctor said that because she had gone so long between monthly treatments, several of Nour’s heart valves have closed up. She now requires an urgent operation to save her heart.

NOUR WILL DIE WITHOUT THIS SURGERY!! She is dying right now because her heart is struggling to function! She needs this surgery IMMEDIATELY to save her young life!!

The doctor said the surgery will cost $8000 USD. Nour’s family’s GFM is in Canadian dollars, or CAD, of which the conversion rate to USD is $1 USD=$1.41 CAD. This means we need $11,300 CAD in donations in order to pay the equivalent of $8000 USD for her surgery.

We NEED to raise the funds ASAP so Nour has a chance at survival!! We are breaking this sum up into 2 smaller goals to be more attainable. Our first goal to save Nour’s life is to raise $4000 USD/$5656 CAD.

**Progress: $43,187 CAD out of $49,000 CAD**

(or $30,554 USD out of $34,670 USD)

PLEASE HELP SAVE NOUR’S LIFE!!!

@90-ghost @nabulsi @ibtisams @socalgal @vague-humanoid @neptunerings @chilewithcarnage @frigidwife @diasdelasombra @annevbonny @tamarrud @stuckinapril @king-b0mbastic @dykesbat @lesbianmaxevans @qattdraws @irhabiya @sar-soor @sayruq @gazagfmboost @dlxxv-vetted-donations @vetted-gaza-funds @butchniqabi @butchfeygele @butchfeygela @self-hating-zionist @antizionisttranslations @antifainternational @antizionistprincess @gothhabiba @khanger @userpeggycarter @zamanassad @palhelp @resourcesforradicals @watermotif @rhubarbspring @anneemay @pcketknife @appsa @malcriada @wellwaterhysteria @queernigga @lesbiancalliope @lesbianholster @lesbiannova @queerstudiesnatural @feluka @kordeliiius

[phindia]

Best Congenital Heart Disease Doctor in Andheri, Mumbai

Searching for the best congenital heart disease doctor in Andheri, Mumbai? Dr. Prashant Bobhate, a renowned pediatric cardiology specialist, offers comprehensive care with years of experience and a compassionate approach. His state-of-the-art clinic ensures accurate diagnosis and effective treatment. Trust Dr. Bobhate for exceptional, personalized care for your child's heart health.

[limitlessjourney]

Embracing the Invisible: Navigating Life with a Chronic Illness

Have you ever faced a challenge that seemed insurmountable? For me, living with a congenital heart condition has been the challenge. I was born with a hole in my heart, underdeveloped arteries, and a missing pulmonary valve. As a child, I was diagnosed with tetralogy of Fallot—a fancy term for my heart condition. My first surgery, a Waterston shunt, took place before I started kindergarten. At…

[srirachaz]

one of my favorite stupid things about the shitty c-list cdramas i watch (and tbh it shows up in some of the nicer quality ones too) is when a character has some kind of incurable terminal disease that modern medicine is failing can be easily remedied with...

needles. like acupunture.

i think it's bc authors know jack and shit about medicine and can't be bothered/aren't paid enough by webnovel sites or drama producers to research specific illnesses and their treatments but it takes me out every time.

it makes sense in like...wuxia or xianxia, but when it's a modern drama it fuckin kills me. bonus points if the "modern" doctors are listening to wrist heartbeats to diagnose things like literal cancer or if there are magic chinese medicine pills that are complete cure-alls, OR if the "modern doctors" are surgeons (of all specialities, obviously) as well as general practitioners as well as specialists as well magically being renowned experts in chinese medicine and/or are like...nationally known but anonymous Secret Doctors or Magic Doctors or what-have-you.

[intersex-support]

Help an intersex family in Gaza!

Hi everyone. I'd like to share about a fundraiser that is very important to me. A good friend of mine is in contact with the organizers.

(Described in alt).

Their story:

"Hello, my name is Abeer. I'm organizing this fundraising campaign from Belgium on behalf of my family, who currently live in Gaza. 

Since October 7, all families in Gaza have been subjected to genocide. My family is one of those families that has had to flee its own home several times because of the threat of regular attacks. 

After two months, my family decided to return home and take the risk of being bombed at any moment rather than stay in the street. Our 4-floor building now contains over 100 people who have fled from different parts of Gaza. We always open our hearts for our own people, but we can't do it without your help and support. 

My parents, Kamal (53) and Moukaram (51), are suffering from the war because of their age and health. My brother Suliman, his wife Rawan Abualnaja and their two-year-old daughter Bisan are trying to stay strong, but it's complicated by their little daughter's enormous needs. My other siblings who are not married are Mohammed 25, Inas 22, Ibrahim 17, Abdallah 15.

My family medical condition during the war:

My father suffers from delusional disorders. He can't work or help my family financially. Mohammed and Ibrahim suffer from a chronic disease, congenital adrenal hyperplasia. It is difficult for them to obtain medication in Gaza. One of their medicines has not been available in Gaza for two years. During the war, they couldn't get their medicines because they simply didn't exist anymore. My family members are still suffering. They don't want to be potential victims. They want to escape death and live like other families on the planet.

 On 01/01/2024, they attacked the local mosque and the missile failed to explode and ended up in front of my family's house. My family is in danger and the missile will explode any second.

Since then, my family has decided to be evacuated from Gaza because of the senseless attack on our city. Please help me evacuate my family to Egypt so that they can rebuild their lives in peace.

I've been in Belgium for over five years. I feel useless because I haven't been able to do much except try to help them with their daily living expenses. That's why we created this campaign. We're raising funds to evacuate my family to Egypt, a place that offers a glimmer of hope and stability. However, the cost of the evacuation is high, hence our call for crowdfunding.

Every contribution makes a difference The funds we raise will be used for :

- Evacuation from Gaza for both families (Rafah border crossing fees for 9 people total)  - Two months of temporary living expenses in Egypt, including food, shelter, and transportation  - Passport fees  - Food expences untill they leave Gaza 

No matter how small your contribution, it can make all the difference in breaking the cycle of violence and uncertainty. By supporting our campaign, you are offering a lifeline to our families so that they can rebuild their lives, heal from their trauma and make a fresh start in a safe and secure environment. Please leave a comment and share our campaign with your friends, so we can reach more people and make a bigger impact. Together, we can make a difference!"

They are using a French platform called Papayoux Solidarite instead of GoFundMe. Abeer also has a Paypal account for non European donors.

They are currently at 33 588,78 €/ 50,000 €.

Let's see if we can get them to 34,000 today. Any donation matters, even $1 or $2 donations can add up.

We need to help them meet their goal. Intersex liberation means intersex liberation everywhere--it is so important that we show up in solidarity. Those of us living with CAH know how dangerous salt wasting crises are without medication, and how important it is to urgently help Mohammed and Ibrahim get access to the medications they need to support their CAH. Intersex solidarity means that we need to show up and support intersex people facing genocide.

If you can't donate, please share. Consider doing an art raffle to raise money. Do whatever you can to help this family because it is urgent, and we need to act in solidarity with them now and make sure that the intersex community is here to support them!

[literalcyborg]

Ok so the pacemaker tag is devoid of young people with pacemakers, so let’s aim to change that!

I have a pacemaker myself and it’s so hard to meet people who also have one and aren’t super old, BUT I KNOW YOU EXIST

[sodacowboy]

yeah I don’t think showering should give me chest pain that only goes away once I sit down lmao

[riding-with-the-wild-hunt]

vetted fundraisers from today. please keep engaging, it truly makes such a difference.

july 19th:

Helping Siraj Abudayeh, his wife, and their three young children rebuild their destroyed house ($7,254 CAD/$82,000 CAD) - @siraj2024, #219 on @/nabulsi and @/el-shab-hussein's spreadsheet

Walid Al-Qatrawi and his three little children (€1,884/€50,000) - @waled-family, verified by @/90-ghost

Ibrahim, his wife, and their two young children (£2,614/£30,000) - @ahmedrahaf2023, verified by @/drschnauzer (contact for details)

Reuniting the Helles family (five siblings and their mother in Gaza, father Yousef is abroad) (€6,518/€23,000) - @omarhilles2022, #206 on @/el-shab-hussein and @/nabulsi's spreadsheet

The Al-Habil siblings (their oldest brother was killed), and their widowed mother (two family members need urgent medical treatment, one for shrapnel injuries and one for hepatitis and congenital heart disease) - @abeeribrahim2006, @nohaibrahim-2024, #240 on @/nabulsi and @/el-shab-hussein's spreadsheet

Mohammed Al Manasra (has already lost most of his family), his wife, their three little children, and their cat (Mohammed needs medicine for chronic respiratory illness and urgent treatment to save his leg from amputation) (€31,844/€35,000) - @save-mohamed-family, #192 on @/el-shab-hussein and @/nabulsi's spreadsheet

Ola Ahel, her four siblings, and their parents ($7,343/$20,000) - @olagaza, #205 on @/nabulsi and @/el-shab-hussein's spreadsheet

Nedaa and her parents (her father is elderly and sick) (£4,921/£15,000) - @nedaapalestine, verified by @/90-ghost

Shahd Muhammad and her family, including her young siblings who are very sick with hepatitis and her father, who needs treatment for a heart condition ($17,100/$50,000) - @shahednhall, #224 on @/el-shab-hussein and @/nabulsi's spreadsheet

Salahaldin Hor, his wife Sundus, and their three young daughters (€2,026/€40,000) - @salahaldinhor, verified by @/90-ghost

Safaa, her husband Abed, and their two little children (€9,383/€50,000) - @safaabed8, @abedalazeiz, verified by @/90-ghost

Safaa Jad Al-Hak, her husband, their baby Amir, and Safaa's parents, both of whom need urgent medical care ($1,273/$75,000) - @safaam199, @safaamiroo, verified by @/90-ghost

Helping Tawfik Satoom continue his education ($982/$20,000) - @tawfiksatooom, #238 on the operation olive branch spreadsheet

Amal Ashour, her husband, and their little daughter Maryam (€13,960/€30,000) - @amalashuor, #175 on @/el-shab-hussein and @/nabulsi's spreadsheet

Ahmed Alanqar, his wife Dina, and their four young children, one a newborn (€32,519/€35,000) - @ahmedabuyamin, verified by @/nabulsi

Hanaa Al-Lulu and her family (€2,903/€40,000) - @enghanalulu, verified by @/90-ghost

Wafaa Alnhal's family of 15, including four young children and a newborn (Wafaa's account is getting repeatedly banned) (€35,594/€50,000) - @wafans-blog, #171 on @/nabulsi and @/el-shab-hussein's spreadsheet

Yousef, a toddler who needs lifesaving treatment for a blood disease, and his parents Dima and Samer (€4,145/€25,000) - @dima96yousef, verified by @/90-ghost

not yet vetted:

Aya Mahmoud, her eight siblings, and their parents ($70/$200,000) - @radstudentrunaway

Abdullah and Oday Al-Anqar (needs treatment for hepatitis), their three siblings (sister Farah is pregnant and needs perinatal care, sister Rafif is five years old), and their parents (€60/€50,000) - @abduallhalanqar, @odayalanqar

Mohammed Ayyad and his five young children (€25/€35,000) - @mhammed

with the possibility that the Rafah crossing may open at the end of the month and the situation in Gaza worsening all the time, it is more vital than ever that these families reach their goals as soon as possible. please please continue to donate and share!

[llycaons]

the woman who did my ultrasound was so nice but it was really funny when she saw what kind of surgery I had and was like "oh when did you have this? it's usually only for children" and I was like "well I had it about. twenty-four years ago. as I used to be a child"

[dlxxv-vetted-donations]

Evacuating Families with Children 1

Vetted Palestinian Campaigns. Please donate if you can and share!

Aug 25 - Sep 1. Updated Sep 2. I am no longer focusing on promoting/updating this list, but I encourage you to share and donate. Thanks for everyone's contributions!!!

My other promotions

All these families are trying to evacuate at least 1 child under the age of 12. They live in tents that provide inadequate shelter and are constantly exposed to disease. Children are growing up in an unhealthy environment where they suffer greatly from malnutrition, skin conditions, and psychological challenges with which there are no resources to treat.

Far from goal: Ahmed Omer: @ahmedomer9 (@aya2mohammed's brother). Donations slow

Paypal, credit/debit: € 1,394 1,902 / 55,000

Mohammed Alhabil: @mohammedalhabil2000 (#157 on spreadsheet), @nohaalhabil23, @abeeribrahim2006 , and @ibtisam10 confirmed family here. Daughter Nour suffers from congenital heart disease and is immunocompromised. Stagnating!

Credit/debit: CAD $ 14,480 15,190 / 70,000

Small goal: Ahmad and Eman: @loleta-2021, @leen-gaza, @children-gaza, @zain-leen1993 (vet). Stagnating!

PayPal, credit/debit: € 6,914 7,416 / 15,000

See post: Give the Al-Habil family a better life. Donations slow

PayPal, credit/debit: € 11,015 11,854 / 25,000

Samer Abu Ras: @samerpal (#196 on spreadsheet). Stagnating!

Credit/debit: SEK 125,394 132,967 / 450,000 Note: $10 USD = 105 SEK

Small goal: Aya: @ayaalanqarsblog, @ayanimer1995, @ayaanqarsblog (vet).

PayPal, credit/debit: € 9,809 10,642 / 15,000

Pinned Campaigns

See post: Let's evacuate the Haboub family's most vulnerable members in September. Stagnating!

Credit/debit: SEK 99,313 137,090 / 130,000 234,000 $10 USD = 105 SEK

See post: The Alanqar Family's campaign is almost at its goal. Don't let it stagnate!

Paypal, credit/debit: € 57,760 59,119 / 60,000