#c punk is cripple punk
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i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary
#cripple punk#cripplepunk#crip punk#cpunk#actually disabled#chronic pain#disability culture#fibromyalgia#disability rights#disability advocacy#physical disability#c punk#angry cripple#queer cripple#cfsme#chronic fatigue syndrome#chronic fatigue#arthritis#diabetes#neurodiverse#neurodiversity#neurodivergent#autism#autistic#adhd#actually autistic#hypermobile eds#hypermobilty syndrome#our writing
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notes for my impostor syndrome:
ā¢ no, it's not painful to walk for abled-bodied people
ā¢ no, healthy people don't usually use every chance they get to lean against walls or sit down
ā¢ no, ableds don't dream about shower stool
ā¢ no, ableds don't celebrate days when they're not in pain. because usually they're not in pain
ā¢ no, ableds don't want to stop walking mid-way, lay down on the ground, curl up and cry and whine from pain
ā¢ no, ableds aren't exhausted by their own bodies 24/7
#cane user#chronic pain#cripple punk#disabled#mobility aid#physical disability#chronically ill#c punk#cpunk
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when the ā10 tips on how to make showering easy for disabled peopleā list doesnāt include a shower chair or a shower/changing table or grab bars etc, i know they donāt care about us physically disabled people.
good for u that turning off the lights and lighting a scented candle instead and listening to music or put on a show and using a bath bomb etc etc helps u but like none of those tips are that beneficial for physically disabled ppl specifically.
itās good that those tips are there but for once weād love to be included.
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
#it feels like i got jumped by seven people but NO#if my body is going to make me feel like ive been stabbed five thousand times i should at least get a sword fight out of it im just saying#fibromyalgia#fibropain#fibro problems#fibro flare#fibro#chronic pain#chronic fatigue#chronic illness#hypermobility#hypermobile#hypermobility syndrome#spoonie#disabled#actually disabled#disability#c punk#cripple punk
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do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?
like honestly. what do you think being disabled means?
#if one more person tells me to take a sick day i'm going to throw something at them#i just honestly cannot anymore#disabilties#disabled#actually disabled#epilepsy#ehlers danlos syndrome#physical disability#neurological disability#actually epileptic#zebra#chronically ill#chronic illness#spoonie#chronic fatigue#chronic pain#c punk#crip punk#cripple punk#fuck capitalism#anti work#disability culture#1k#5k#10k
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idk who popularised the narrative "i don't let my disability stop me" but it needs to be stomped on, pulverised by a meat grinder and then thrown into the depths of the sea never to be seen again.
it is by far the most popular ableist narrative and i see it so much and immediately just think i'm a bad person for not being able to 'get over' my disability despite the fact it's an incurable, permanent and severely disabling disability.
stop stop stop stop pushing the mindset that people have to persevere despite their disabilities in order to be a worthy person
leave me alone and let me be disabled in peace
#physical disability#actually disabled#disability#invisible disability#physically disabled#chronic disability#chronic illness#chronically ill#chronic pain#crip punk#cpunk#c punk#cripplepunk#cripple punk#angry cripple#cripple#multiply disabled#disabled#disabilities#ableist bullshit#ableism
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POV: you are physically disabled
#cripple punk#cripplepunk#cripple#cpunk#c punk#cpunk blog#c punk blog#angry cripple#queer cripple#disability#disabled#cripple posting#cripple problems#physically disabled#physical disability#chronic pain
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What a lot of abled people don't understand is that when you get more sick as someone who was already physically disabled/chronically ill, you don't get the sympathy, you don't get people sending you cards and coming to visit and help you with things. Everyone just kind of assumes that you can handle it, that it's not *really* anything new. Maybe people might acknowledge it for a week or two, but then to them it's just normal. You were already sick, so why would being a little more sick be disruptive to you, right?
#disability#actually disabled#cripple punk#cripplepunk#physical disability#still waiting on that fucking colonoscopy to be approved#if it IS the big C then I'll probably be dead by the time they get around to diagnosing it#1k#2k
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Do you know how many times a day I want to scream at people "THIS ISN'T FOR YOU!" ?
Just yesterday, I was ten minutes late to my tutorial class because for whatever reason, almost every single person in my lecture decided to use the elevator instead of going down one flight of stairs while me and my classmates -- the ones who didn't have that choice -- were stuck waiting for the next elevator.
I constantly have to navigate around people walking up the ramps -- or, worse, standing in the middle of them -- because they couldn't get off their phones for two seconds to use the stairs instead.
At least twice a week I end up in far more pain than usual because people who don't need them take up the accessible seats on the bus and I either have to stand there and wait for somebody to get up (Which is already hard on my body) or just wrap my arm around the pole and try to suffer through a few stops until somebody gets off (Which has already caused several dislocations). As much as people like to brag about how they'd "always give up their seat for a poor handicapped person", they're far more likely to stay right where they are and ignore you in favour of watching Instagram reels on their phone.
And I've tried asking people to move. Directly. Making eye contact and everything. They'll just look down at their phone and ignore me until the bus driver or somebody else says something. And only then can they magically notice me and get up.
Before I get a bunch of people leaping to yell about people with invisible disabilities: I know. I know there are people with invisible disabilities, I spent most of my life with only invisible disabilities. I can guarentee that not every single person in my lecture of 60 people has an invisible disability. This is not the problem.
The problem is that able bodied people see these resources and supports made specifically for physically disabled people and assume they're entitled to them. Most of them see it as something that's put in place just to comply with certain rules or laws or regulations as a 'just in case' thing. Nobody thinks that disabled people are actually out and about. We're an afterthought to them.
And I get it. I do. We all have our blind spots.
But seriously, this is getting ridiculous.
#disability#disabled#ableism#accessibility#accessibility awareness#inaccessibility#cripple shit#cripple problems#cripple punk#crippled#cripple#c punk#physically disabled
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fucking hate the "well it's not technically marriage inequality that disabled people can't get married without losing their benefits because no one's stopping you from getting married" yeah something is stopping us from getting married. Loss of medical care. Homelessness. Hunger. Death. I don't know how to tell you this but SSI is not a thing that you get because you could technically get a job but you don't feel like it. The process is awful, it's dehumanizing and it can take years even if you're clearly disabled. If you can work you do work, and if you can't work you can't afford to lose your "benefits". It's eugenics plain and simple, it came from a time where you could only fuck if you were married and they wanted to de-incentivize disabled people from fucking so we would stop existing.
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Everyone is fine with having a disabled friend until they complain about their disability
Everyone is fine with having a disabled friend until they need to slow down for them
Everyone is fine with having a disabled friend until their mobility aids are loud
Everyone is fine with having a disabled friend until their mobility aids fall
Everyone is fine with having a disabled friend until they cancel plans due to their disability
Everyone is fine with having a disabled friend until they need to hold something for them
Everyone is fine with having a disabled friend until they need to open a door for them
Everyone is fine with having a disabled friend until they can't go somewhere because it's not accessible
Everyone is fine with having a disabled friend until their disability is inconvenient
Everyone is fine with having a disabled friend until their disability impacts them.
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my heart goes out to you if you're a disabled person who has a complicated or negative relationship with sleep. if you need to sleep a lot but can't due to life circumstances, or sleeping extra causing other symptoms to flare up. if you can't sleep enough due to pain, or nightmares, or psychosis, or bipolar, or depression. if you sleep way too much and find it hard to stay awake. if you can't fall or stay asleep. if you need medication in order to be able to sleep. if you don't feel rested from sleep. if you wake up a lot in the night. if you have bladder or bowel accidents while asleep. if you twitch or convulse or move too or get injured in your sleep. if you can't control your sleep schedule no matter what. if you can't sleep during "normal" sleeping hours. if you can't sleep for 8+ hours straight but can sleep for shorter amounts of time. if sleep is what you need but for one reason or another you just can't or refuse to do it.
i care about you. your disabilities deserve to be seen and acknowledged
#actually disabled#chronic pain#cripple punk#fibromyalgia#crip punk#insomnia#troubled sleep#trouble sleeping'#sleep disturbances#sleep disorder#sleep disorders#narcolepsy#depression#bipolary#psychosis#schizophrenia#autism#adhd#ptsd#did#dissociative identity disorder#osdd#mental illness#disability#madpunk#]our writing#cpunk#disability culture#cripplepunk#c punk
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being disabled has an affect on the social life that not many people are willing to discuss . the reality is, being disabled means missing out on a lot. the queer bar you think everyone should go to isnt accessible. nobody in your towns high school was willing to talk to the only kid with down syndrome there. not all autistic people were accepted enough to be social in the first place, much less doing drugs and having sex.
there are so many experiences to miss out on
#c punk#cripplepunk#physical disability#actually disabled#chronic fatigue#cripple punk#actually autistic#down syndrome#disability#disabled
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healthcare places should not be allowed to charge for parking and iāll die on that hill
#ā got a parking ticket at the gps office#fr tho it shouldnāt be legal#cripple punk#crip punk#cripplepunk#physical disability#physically disabled#c punk#cpunk#chronic pain
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a lot of you got a kick out of my service dogās battle jacket, so i thought iād share some more pictures of the man himself.
i know people have a lot of stereotypes about what service dogs and their handlers are āsupposedā to look like, and it confuses people to see a young, seemingly able bodied punk rocker with a service dog.
but i share this to say, that if you as a disabled person donāt see a life for yourself, you can create one. when i started to realize i was disabled almost 10 years ago, i certainly didnāt imagine this is where iād be now. in fact, i didnāt even plan to making it to this point.
but a diagnosis doesnāt have to mean the end of the world. sometimes your world is just beginning. some people are of the belief that everything happens for a reason. me, not so much. iāll never be grateful for the suffering i experienced in this world, but i will always, always be glad i chose to stay in it.
#sorry if this post is like. sappy and more emotional than usual#i know itās kinda unnecessarily long but u guys like that sometimes#lmk if you want more service dog info im always happy to talk about him#punk#punk patches#diy#punk diy#disability#patches#actually autistic#patch inspo#punk subculture#cripple punk#c punk#disabled punk#chronically ill#service dog#disabled positivity#mental health#tw mental health
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breaking news disabled people aren't using their disabilities as an excuse because it turns out it isn't an excuse it's a state of fucking existence
and existence is everywhere all the time no matter what even if you wish it wasn't
.
#i fucking wish it wasnt too for what its worth#disabled#disabilities#actually disabled#physical disability#physical disabilities#neurological disability#epilepsy#ehlers danlos syndrome#hEDS#hypermobile ehlers danlos syndrome#spoonie#chronically ill#chronic illness#chronic pain#chronic fatigue#crip punk#cripple punk#cpunk#c punk#seizures#seizure disorder#actually epileptic#disability culture#1k
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