#because I have very similar symptoms
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I’m glad I was able to get an appointment with the cardiologist tomorrow because even as I type this, my heart is fluttering and I can’t breathe right.
#I just want to figure out what's wrong#I mentioned it in a previous post but my mom has problems with her mitral valve#I think I have the same thing#because I have very similar symptoms#like not being able to take a deep enough breath#and fatigue#and my heart fluttering#it's not life threatening#but I want to see if there's a way I can treat it#flamey's personal crap#in summary being an adult is FUN /sar
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Non-ADHD and non-autistic disabled people whose only idea of ADHD and autistic people is shaped by media depictions of a nerdy white boy or a quirky goth girl with low support needs: "Yeah ADHD and autism are destigmatized and we should ignore people with ADHD and autism in favor of real disabilities. I am very smart and progressive."
Lateral prejudice towards other disabled people will get us nowhere.
#actually disabled#ableism#lateral ableism#autistic people face disproportional police violence#especially if they're not white#I know people who have been severely hurt socially financially and mentally because of their adhd and/or autism#there's a literal anti-vax movement of people who think autism is worse than polio and measles and shit#adhd and autism are not destigmatized#just because a handfull of privileged adhd and/or autistic people managed to succeed and mask very well#doesn't mean that's the majority of the adhd and/or autistic experience#there's a reason autism was classed as a schizophrenic disorder for a long time#because the outward symptoms of autism and schizophrenia can be very similar#parents of adhd and autistic kids talk openly about wanting to murder their children and some even succeed in doing so#and people sympathize with them#autism and adhd can manifest in auditory processing disorders and communication disorders#which to a non-professional appear indistinguishable from physical hearing impairements and neurological disabilities#adhd symptoms can be so similar to brain cancer that I know someone who died because his cancer was caught so late#actually autistic
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I think I accidentally made Wriothesley AuDHD. fuck
#ingital#did you know there's a bit in ingital i cut out where he tells Neuvillette they have to go get their kids tested. it's cut out of the carol#and vautrin scene. because I wanted to recontextualise carole's canon story as like about her social ostracisation because she's#a weird little girl with a very strong sense of justice (autistic like her dad lol). and I wanted it to just be a family moment where#wriothesley just very casually suggests getting their kids tested to see if they need additional support. and its just because i wanted it#to be seen as a very normal. even slightly positive moment (carole you're just like your papa!). because . you dont often see an autism#diagnosis as a Normal thing. much less a silly fun thing. and Ingital is silly fun the fic#the thing is. I specifically sat down and told myself. I'm gonna write a neurotypical man because not every single guy in my fic has to be#neurodivergent. when I write wriothesley it's usually more about trauma cptsd and high functioning depression anyway.#but I am autistic. even my trauma/depression/mentally ill experience is viewed through autistic lens. which is why im like#I should learn how to write a neurotypical man right. this is so dire. because what if i CANT. GOD#severe trauma does things to your neurotype anyway so he's Not Neurotypical but GODDDDDDDDDDD I made the fucking. disorganised#basement dwelling tech nerd gag in the latest chapter. and I FORGOT THAT THAT'S TIPPING INTO AUDHD TROPES/STEREOTYPES.#I know this had potential to go into audhd territory from Day 1 when I decided he fucking dwells on stack exchange#but i told myself. well. just because he's a nerd and highly intelligent doesn't mean he's audhd. right. because if he still#has relatively normal sensory experiences (outside of ptsd/other mental illness symptoms) and is still within normal range of organisation#then he's not audhd. because the difference between audhd disorganisation/dysregulation and similar symptoms in depression/other illnesses#IS THAT HE'S STILL GONNA BE DISORGANISED WHEN HE'S NOT DEPRESSED!!!!!!! And he's not depressed in his little basement enclosure.#that . level of happy chaos. is exactly how he naturally operates when he's allowed to do what he wants. I fucking made him audhd AGAIN#and he even has his own extremely strange way of naming files.
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having an idea for a game but it's miles above your skill level
#personal#elevator pitch: point and click 2d art-heavy narrative driven game. mc is a scientist in a closed off laboratory in a post apocalyptic worl#player plays as the mc going through a daily routine consisting of taking care of a few patients that are dying of#the zombie plant esque disease that has wiped out humanity. working towards breakthrough day. on which they should#hopefully have managed to recreate the exact circumstances in which patient zero got turned#in hopes to reverse engineer it into a cure#solving puzzles along the way to open up new locations within the labs to piece together what exactly went wrong in the first place#and like!!!!!!!! i know i could do this. realistically i know i could put a game like this together but it's just#the dev heavy stuff that is stopping me because well i am just a game artist JHDGJFDKGJDFGKFDG#all the patients are in different stages of infection and it's all affecting them differently because of different variables#only one of the patients is actually fully lucid and can be spoken to on the daily#but then on breakthrough day they end up taking their own life JUST like patient zero did exactly a year ago#and it turns out that despite showing little symptoms on the outside the plants were taking root inside of them#which has been foreshadowed through earlier gameplay with the patient feeling itchy but not being able to scratch the itch#and on breakthrough day the flowers inside of them bloomed... and it was unbearable so they used the gun that they took#a year ago from patient zero's body (their colleague) to end it all. and THAT is what ends up turning them into a plant zombie#and the player has been working towards getting into the labs where it all started to find patient zero's body and like#get access to the logs of their last few days. and after the patient in the present has passed they listen to the logs#while the credits roll. and patient zero describes very similar symptoms in the logs. and they also couldn't have been saved#ig the patients in this could be some sort of metaphor for like. how illness doesn't always come with (the same) symptoms for everyone#and how even if it's not visible on the outside someone might be struggling a lot etc etc. something in that direction#anyway hi does anyone here see my vision. do you understand what i'm going for. anyway yes i hope i can make it reality one day
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so uhh… i might have covid ¯\_(ツ)_/¯
probably not gonna post anything super-high-effort but if you wanna ask me stuff i’ll probably be paying attention to my askbox more til i get better.
#personal stuff#updates#i say might because if it’s not covid it’s something very similar with a lot of overlapping symptoms#probably gonna reblog this to my other sideblog leg-made-a-thing so i don’t have to post the same thing twice#even though i’m pretty sure everyone that follows that blog follows this one too#eh whatever ¯\_(ツ)_/¯
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I’m so curious about your way of communicating your DID. I heavily relate and have PTSD too but that’s what’s most surprising because I haven’t seen or heard anyone talk about plurality like you have which i feel is a lot closer to my experience with it… please continue posting about it… the resources and experiences I’ve read have been disorientating. Have you heard of “Dissociation Made Simple” by Jamie Marich?
i have not! i can put it on the reading list.
the way i talk about my DID is sort of directly influenced by how much jargon and mysticism there is in the community that makes it feel totally impenetrable and incomprehensible to outsiders. im not about that. i want to be understood. so i keep my language accessible and prefer using common terms to DID-specific jargon. its just a personal choice and im glad it sits well with certain people
#ask#i want my posts about DID to be understood by people with DID and with CPTSD or BPD or any other dissociative or posttraumatic disorder#because we are all sisters and we can all have very similar experiences and a lot of symptom overlap#i dont want to gate myself in and be exclusive only to people with alters. i also want to connect over flashbacks and dysregulation. etc.#DID is much more than alters and i find a lot of kinship and support and understanding in the wider PTSD community#so i wanna situate myself firmly there. and not just on the edges with the people blogging exclusively to DID#im like all of you and i am human and i can be understood. is what my language choice is trying to communicate
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feeling chilled to the bone when you have a fever is one of the human body’s dumbest features
#My temperature is 100+ F. Why am I shivering?#I don’t think I have COVID (my at-home test came back negative)#but I might test again tomorrow to be sure#I was certain I would test positive because my symptoms are very similar to the symptoms I’ve had after getting vaccinated
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shoutout to disabled and chronically people with symptoms that are seen as "gross" by the wider world. shoutout to people with digestive issues and illnesses. to people with problems with their stomachs or intestines or bladders or anything else. to people who struggle with vomiting, diarrhea, constipation, or anything else. to people who use diapers. to people with ostomy bags. to people who use the bathroom in other atypical ways. to people who have to collect stool samples for tests/labs. to people on rectally administrated medication. shoutout to people on liquid diets or other specific medical diets, to those with feeding tubes, to anyone with different needs regarding nutrition and hydration. shoutout to those who only sees their condition represented as something weird or gross, as something only talked about as the punchline of a joke.
shoutout to anyone who is afraid to talk about their lives, symptoms, or treatment to those around them for fear of being labeled "gross" or "weird" or "disgusting".
there is nothing wrong with you and you are just as worthy of existing and sharing your experiences as anyone else.
#this post brought to you by my ulcerative colitis and the fact that these symptoms and difficulties are often ignored or brushed over#in discussions of illness and disability#because they are seen as weird and gross and unpalatable and uncomfortable to talk about#to the point that i and many others are uncomfortable or afraid to talk about everyday parts of our lives because we are called#gross or unseemly or weird or annoying or undesirable for having bodies that don't hold up to an abled standard of how things should be#despite the fact that they are a very real and normal part of many people's lives and deserve to be treated as such#txt#disability tag#chronic illness#chronically ill#disability positivity#i do not have every single one of these symptoms so i can't speak more on all of them but i wanted to be as inclusive as possible#to everyone who shares similar experiences#also this post especially brought to you by me telling people im having an unspecified hospital thing in a few weeks#bc i have no idea how they would react to me saying 'oh yeah im having another colonoscopy to make sure my illness is still under control'#which is like. normal! its a normal thing! sometimes people are sick and have 'weird' procedures about it! its normal!
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I've noticed that because of all the medical shit we've dealt with this year and the sheer amount of stress from how triggering some of it is, we've reached a point where I start to feel anxious and get an overwhelming sense of dread anytime I have to take a medication, no matter which medication it is.
this is obviously not great when we take multiple meds per day and will probably be prescribed more to take after the dental surgery, but I don't really know what to do about it, especially since the extremely triggering medical stuff is still an ongoing situation and this specific stuff is probably the reason any medical stuff makes us panic, along with us getting a similar sense of panic and dread when we encounter various stuff to do with teeth and dentistry.
I don't know what I'm meant to do when taking our meds and brushing our teeth is enough to give us a sense of impending doom so strong we get nauseous from it.
also I'm fine while I'm drawing, but the minute I'm not distracted I start getting intrusive thoughts and our brain will not stop giving me flashbacks on top of bringing up the current situation that's fucking me up and I'm basically writing this while dissociated as hell and relying on that to stop me properly remembering or thinking about the stuff that's going on in any more detail than what I've written here, but even that's enough to still make us anxious and on edge, and the dissociation/amnesia only kicks in this hard after we've panicked hard enough about it.
we've been having multiple panic attacks per day and getting migraines every time we're reminded of the situation. I'm ending up in significantly worse pain because of the sheer amount of stress from this shit
#personal#thoughts#🍬 post#vent post#and this post was made because I went to take my meds and it felt like the world was ending#I think something about growing up traumatised and repeatedly being in traumatic situations#has maybe led to our brain developing in a way where the threshold for what will give us PTSD symptoms is lower than in other people#I have no idea if there's any actual scientific basis for this#but like I guess if your brain is used to being in survival mode then it's gonna keep doing what it's used to doing#and especially when the incredibly overwhelming situation you're in is one that mirrors other situations that have been traumatic#it makes sense that our brain would be freaking out so bad over something with so many similarities to very traumatic experiences#to the point where we're too overwhelmed to cope with it#and being too overwhelmed to cope while not getting enough support and not having any way out or anything to make it better#is the exact kind of thing people develop new triggers and stuff from#but I do hate having to watch in real time as something fucks up our brain in a way where I know I'll have to then deal with that#and figure out how to try and help because it's definitely then going to be an issue in the future#and I especially hate it when the triggers are the exact kind of thing that make people think we're just overly-sensitive or being difficul
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Not trying to armchair psychology you, just speaking from personal experience- it's really, really common to have autism, especially autism that is coupled with ADHD and OCD, be misdiagnosed as BPD for young people. This is most common with verbal autistic people who also suffer from abuse as a minor. The constant mental pressure often manifests as erratic thought and behavior, "strange" patterns of belief and groupings, and just a general feeling of feeling like you are Not The Same and don't know what's wrong but that Something is Wrong. Extreme stress for all of those problems can easily be exasperated into psychosis unfortunately, so a good approach involves being able to ground yourself with knowing how your mind is different, and that it is not broken. Whatever you find out, best of luck man.
thnx means a lot that u typed this out to me anon <3 i think ur def on the right track on what i could b dealing with but at the same time there has been a point where i was quite sure i must be autistic but felt i never had or experienced the same wide or specific and unique variety of stimming/stimulation issues like most autistics do and kindof let that thought slide a bit. because what sources i read had all listed those as being one of the important diagnostic criteria so that is what i understand.
having said that it could be my perception of how stimulation issues present themselves Personally has me feeling like i dont suffer them when i could still be affected in different ways that im not registering as possibly being That
#i did... i.. god i do remeber taking that online autism assesment test a long time ago and i was in the high range but i was like Hm#but its so very hard when theres all these comorbititys and similar symptoms to other things to truelly tell sometimes...#it can feel pretty confusing !#one thing i know with clear certanty is i have absolutly have anxiety wether removed or caused by comorbitities or not#alsogoing back to the online autism assesment test i know online tests arent reliable but how far in th hole of denial due to uncertainty o#myself do i want to dig before i just start doing things to help myself for Something#basically tldr: i take everything with a grain of salt and dont jump in untill i feel quite sure#its hard to feel quite sure when ur brain and behavior is confusing#and i feel like i dont stim.. maybe i do ! but if its anything it might be so subtle that even i dont realize what it is...#i will always still keep my mind open to it because of the individual uniqueness of any thing like that..#but the mood swings oh my god do they fit bpd#But . autism could#i Need to stop ranting on in the tags.#man#ill just let this rest for tonight and mull it over later more#lol#i could definitly go on more i always havea lot to say about my brainworks. my own analyzing . but itd go on forever#need to stop somewhere
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not my irl saying they wanted to have a political debate with me irl when i said that they did not know what the personality disorder they said they selfdxed w from tiktok actually entailed and now people with it are just making it up after I've been researching it for like 4 years. hello
#vwoop.noises#The only tolerable people are on the internet For Realsies#As well as saying that it's actually just a stepping stone to a Wildly Different Disorder#Ack. We're meeting and I need to touch grass and we like. Generally agree about some things#but. mmmmm Bad Vibes#I support selfdxing but not YOU being misinformed so now you make that other people's problems#I immediately regret what I said because they mentioned having similarities to [personality disorder] but decided that symptoms of ocd -#were like. A meaningful desc#And I'm like yeah I totally get that I've been in that midpoint#But. Now. :(#Its ok shes my oldest friend and I have. Very few others#*get that but decided the other way#People just want to SUFFER to be SPECIAL like. mmmmmmmmm wtv#Four is a lowball I have always had something deeply wrong with me
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I'm going to be real that anti-intellectualism as a term reads like reverse oppression to me as a disabled person.
Like as a term it fucking tells you nothing because intellect, the concept of intelligence, isn't under fucking attack aside from people rightfully pointing out its roots in eugenics. No one is Oppressed for being well educated and there's not even really any measurable social consequences one that basis in specific.
The only times it's used in a way that isn't just blatant ableism is when it's critiquing willful ignorance but at the same time the term like.... doesn't at all express that? Just say that bigots are intentionally restricting information that could change their politics because they benefit from that bigotry, just say willful ignorance, intellectualism isn't under fucking attack when people are routinely denied basic freedoms and human rights based on their lack of intelligence.
#it just#god everytime I hear people talking about it it makes less sense to me#I cannot see one argument that it's a real issue that doesn't admit that either#1. you think disabled people are choosing to be disabled and simply lazy#2. you do not consider disabled people a real part of society and think they exist in a vacuum in space somewhere#so you can just go 'well of course this isn't about them [nothing ever is because they don't exist in my brain unless they're demanding#things from me]#like as if y'all will just fucking know who's disabled and who's showing disabled traits/symptoms just cos'#as if people who never read (and I literally mean never even your strawman 'has never read a book in their life' illiterate cause uh. those#are disabled people and/or poor people el em ey oh not some random republican#are the same as people falling into alt-right pipelines or spreading cult ideologies like#these are straight up not the same fucking problem they're not even related so why must we have a term that places the blame of bigotry on#the disabled instead of acknowledging he actual fucking problems?#like imo it's very similar to how ppl call emotional abuse narc abuse because they don't want to acknowledge that abusers just. choose to#be abusive like no bad people aren't anti-intellectual they're pro bigot
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My latest hobby is watching ADHD/Autism diagnostic videos on YouTube and crying
#it's like having the answers to all of your biggest problems hidden behind a paywall#literally#every time i watch these videos i learn another thing that applies directly to my life and i just. sob.#because i was just unlucky enough to have quiet enough symptoms and markers as a kid that it never occurred to anyone to have me tested#instead i got punished and teased for things i didn't understand#and parts of it were supported while other parts went ignored#and now literally all i need is money and insurance coverage to get testing and treatment plans#and even that is fucking avoiding me#the thing that's rocking my fucking world rn is that a lot of adhd traits present very similar to depression symptoms#and not a single one of my fucking doctors or therapists has EVER mentioned this to me??????
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Trying to explain the symptoms of your mental illness to the person responsible for that particular mental illness (it is C-PTSD) without straight up saying or even implicating "yeah, I can't do dishes when other people are around without having a panic attack because of how you used to come up behind me while I was doing dishes and would hit me" is...so fucking difficult. And it is additionally vexing to be told afterwards "maybe you just had low blood sugar." I want to maul.
#fae irl#abuse mention#i am trying to keep things civil and such#but god damn#she is in therapy now (16 months!) and is trying to do something nice for me rn (giving me a handful of groceries!)#and my lovely aunt will be coming down here soon and we will be seeing each other in person when my auntie does so#i do not want to cause waves#i do not#we are both in very similar positions and we both have buckets of trauma so i understand partially why she was Like That while raising me#and she is finally trying to get and be better in some regards#so i will. not. choose this moment. to confront my mother.#i will. withhold. i will not cause needless stress.#we were having a simple conversation about dishes. i will not turn that conversation into something else and cause a fight.#i will not.#even if hearing her be like ''oh hey i get that!!! i also have some of those symptoms (anxiety while doing dishes)''#really really really makes me want to scream ''then why in the FUCK did you come up behind me while I was doing the dishes--#--and start hitting me and screaming at me!!!''#i will simply. let the desperate sense of heartbreak and betrayal go back into the void.#i will let this pass through and over me. peacefully.#and i will do the dishes. alone. while my partner sleeps. and i will not have a panic attack while i do so this time.#because i am no longer living in an abusive household. this is a safe place where the only situation where id be hit is if i asked for it.#and aint that something?#whew.#i am. fine. 😀👍
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god. no one prepares you for the irritation and anger that comes when assistive devices and medical equipment actually fix your problems.
#okay to reblog#i'm in the midst of a super bad flare exacerbated by my menstrual cycle right now#and like so i'm still feeling symptoms even with the socks on but like that's because my uterus is trying to stage a coup#(ooo i hope i picked the right coup to spell... we'll hope)#like so i still can't eat right now because i'm nauseous just being Upright at all#but before i put the socks on and all day yesterday i was feeling *woozy* about it even just sitting up in bed#i feel SIGNIFICANTLY better this morning so far which means it *is* just a flare and i'm not sick or somehow dying faster than normal#but like. it still feels bad and i cannot believe how long i went through life thinking i was just randomly getting sick for a day#i knew my period took me out i didn't realize how much it was taking me out until i gained some sort of reprieve from my symptoms#and now when i take them off i Notice which makes them feel worse#and it's just like...#okay here's my inner capitalist coming out i'm working on him#but like... how many days of work did i miss how much money did i lose because my blood doesn't come back from my legs right?#how much time how many things have i missed out on because my body is like this and i didn't know it could be fixed by putting on a pair#of compression socks#i will probably have a similar breakdown when i eventually acquire a wheelchair#because i 100% need one i can see this now#and that... feels bad to say but also like relieving?#i was right i was right the whole fucking time#since i was Very Fucking Small#i don't understand why no one else saw these things as a problem until i found my new family#i don't understand why this wasn't concerning to anyone until NOW#and now i'm getting it fixed and i'm so glad i'm getting answers and getting things fixed but like#why did it take so long?#why did i waste half my life doing things the hard way? why couldn't it have been easy?#in order to be able to experience the world i cannot be standing for very long i cannot be forced to walk for long periods of time#i HAVE to be able to sit down for most of it and that is limiting and frustrating and#i am losing control over what i can do with my body and that was the ONE THING i had control over for the hardest parts of my life#it's what got me through the fucking abuse and neglect was that i knew what i could do with my body#and now i'm losing those things and it is *terrifying*
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IT CUT OFF HALF OFMY TAGS NOOO
me: *reads over symptoms of autism once again* “see but i don’t get upset over changes in routine, we change the routine all the time and i’m totally okay with it!”
also me since i was a kid: *gets irritated, stressed, angry, aggravated, and depressed for the rest of the day after something is switched to another day* *gets angry, stressed, and depressed, and has a breakdown when i find out we have to cancel plans, even if i didn’t really wanna go to wherever we were planning to go* *gets aggravated and is easily upset and is depressed the whole day after i get to cancel something that i had been planning for but also are relieved that i don’t have to go since i really didn’t want to* *is depressed, angry, irritated, and stressed after we cancel plans that i had zero feelings for up until that point* etc.
#<- I have to say that some of your tags were honestly heart-breaking near the end because I absolutely don't want to ignore you#<<< thank you for being willing to helpme it was not agiven and i'm genuinely sorry they were heartbreaking#and there was the possibility you'd ignore me also because i randomly started telling you things about me without asking if you were okay#with it or giving you a choice whether to listen to me or not in the beginning. i just started saying things so yeah#In fact#If anything#I was terrified that I was being too blunt and that you would hate me for it#<<< no no i wouldn't hate people for being blunt we just communicate differently sometimes but i'm often blunt as well#would never hate people for being blunt instead thank you for the help you're offering me#I am going to try to answer your questions in as much depth as possible and to the extent of my knowledge#Honestly#As I do more research on neurodiversity I will try to keep you updated because I think that might be helpful for you#<<< thank you you're a very kind person genuinely thank you#Also#Apologies for the delay in responding to this but I was trying to answer some of the asks on my main about Greek Mythology and it got late#Not me randomly typing out a whole entire essay on one of my major interests past 11 pm in just slightly more informal English than usual#<<< don't worry i completely understand that i sometimes do similar things as well lol plus people have things to do it wouldn't be right t#ask them to be online constantly. if anything it would most likely be harmful to be online constantly#<- Okay that is absolutely fine#I will try to explain it as much as possible#Masking is common with many neurodivergent people and it essentially involves acting more neurotypical#Ergo hiding some of the person's symptoms which often means that the person would not have to face continuous disrespectful comments#Such as 'you're so loud/annoying' or things more like 'you only ever talk about [your special interest (s)]'#Often#Masking is not even something that someone does on a concious level#Sorry I don't know if I am explaining this very well but masking often does lead to burn out because it tends to take a lot of effort#<<< oh okay thank you for the explanation!#If I were you#I would try and look into examples of (autistic) masking on a platform like Pinterest#This would include things such as forcing eye contact and sometimes ending up staring
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