#i will probably have a similar breakdown when i eventually acquire a wheelchair
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god. no one prepares you for the irritation and anger that comes when assistive devices and medical equipment actually fix your problems.
#okay to reblog#i'm in the midst of a super bad flare exacerbated by my menstrual cycle right now#and like so i'm still feeling symptoms even with the socks on but like that's because my uterus is trying to stage a coup#(ooo i hope i picked the right coup to spell... we'll hope)#like so i still can't eat right now because i'm nauseous just being Upright at all#but before i put the socks on and all day yesterday i was feeling *woozy* about it even just sitting up in bed#i feel SIGNIFICANTLY better this morning so far which means it *is* just a flare and i'm not sick or somehow dying faster than normal#but like. it still feels bad and i cannot believe how long i went through life thinking i was just randomly getting sick for a day#i knew my period took me out i didn't realize how much it was taking me out until i gained some sort of reprieve from my symptoms#and now when i take them off i Notice which makes them feel worse#and it's just like...#okay here's my inner capitalist coming out i'm working on him#but like... how many days of work did i miss how much money did i lose because my blood doesn't come back from my legs right?#how much time how many things have i missed out on because my body is like this and i didn't know it could be fixed by putting on a pair#of compression socks#i will probably have a similar breakdown when i eventually acquire a wheelchair#because i 100% need one i can see this now#and that... feels bad to say but also like relieving?#i was right i was right the whole fucking time#since i was Very Fucking Small#i don't understand why no one else saw these things as a problem until i found my new family#i don't understand why this wasn't concerning to anyone until NOW#and now i'm getting it fixed and i'm so glad i'm getting answers and getting things fixed but like#why did it take so long?#why did i waste half my life doing things the hard way? why couldn't it have been easy?#in order to be able to experience the world i cannot be standing for very long i cannot be forced to walk for long periods of time#i HAVE to be able to sit down for most of it and that is limiting and frustrating and#i am losing control over what i can do with my body and that was the ONE THING i had control over for the hardest parts of my life#it's what got me through the fucking abuse and neglect was that i knew what i could do with my body#and now i'm losing those things and it is *terrifying*
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