#be more ldn
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hey.. so uhh.. there are a few 1080p pro shot streams of ENTIRE tourdust shows on jack edinger’s vimeo…………… ??
⬆️ bristow va - july 19 2023 (best audio out of them)
⬆️ london night 1 - nov 2 2023
⬆️ london night 2 - nov 3 2023
there is some pretty intense flashing/strobe effect editing during calm before the storm for all the vids so just fyi if you're watching
but like haha what the FUCK
#edit: OH you dont have to be logged in THATS COOL THOUGH !!!!!!#fall out boy#media blitz#BUT THIS IS CRAZY? SAY THIS IS CRAZY.....THEYVE BEEN UP FOR MONTHS#the audio for the ldn shows is not great and pretty choppy depending on the camera angle which is sad#cus imo patricks voice was more stable those nights than it was during the bristow one🥹 ITS OK HE IS SOOOO HANDSOMEEEE#and in any case i feel like i kinda maybe wasnt supposed to see those so ILL TAKE WHATEVER I CAN THANK YOU BYEEEEE !!!!!!!!!!!!!!!!!!#omg there are other things like the 2014 love letter to the fans this is so cool#vimeoshows
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last night i got home kind of tipsy and very much in tears and my mother told me the force you exert to keep someone in your life is proportional to the force with which they will leave your life. if you have to fight tooth and claw to keep them, their leaving will be just as hard, just as harsh, and just as definite.
#she said it like a law. its just momentum.#also she told me to get a therapist and start archery ASAP bc i need to get it together#and also she said even granting that this person u were in love w was So Special . as in hot motorcycle-riding iranian masc lesbian in ldn#they arent the only one on earth and that once i start my proper adult life outside of studies etc etc i will probably no longer live in th#UK. she said most non straight iranians u would like have left the country anyway . where do you think they went? theyre out there#and also she asked me to imagine how many hot gay iranians there may be in italy or amsterdam or smth and i was like ok points 😭 maybe#ur right. anyway i was having a feeling of dread bc crying into the arms of ur strict asian mother while buzzed usually results in#death chaos destruction etc in the next few days but actually i think maybe she has genuinely changed as a person and the fear is#unwarranted#anyway i need to eat breakfast and study w the date person i met yesterday#they are so nice ??? genuinely so so sweet i dont feel attracted to them at all omg i genuinely think i have a thing for hot evil ppl 😭#but we could b besties . theyre a lot more romantic than the ex situationship person too like generally . ugh they should be perfect but#alas it appears i am shallow as fuck or potentially a lesbian actually#OH THEY MIGHT ALSO BE POTENTIALLY A LESBIAN BTW#i think i just tend to not date cis ppl entirely by accident#....feel free to rb if u want btw sorry for the rant
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i support women’s wrongs
🖤💛
#let’s be real she’s probs done all of these and more#but it’s okay bc i love her#slick the oil tanker#starlight express#stex#stex ldn 2024
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finished listening to ttpd and its like i could make one whole song out of the parts i liked. the first minute of i hate it here. clara bow excluding the bridge. touch me while your bros play grand theft auto is funny😭 it grew on me. umm also the prophecy also excluding the bridge kind of. nvm the prophecy is good i had a good cry to it lol. florida!!! shouldve been longer .. the manuscript is soo good and sweet in THEORYY but execution feels clunky idk.. i couldnt 100% like any of the songs . everything just blurs into blah blah blah for me.. aaron dessner what happened 😭 i feel like she really wanted to do the lana stream of consciousness and she had the ideas (self-mythologizing + imploding love life duh) but with the ten billion senseless verbose metaphors and the bland instrumentals she shot herself in the foot. why is no one saying this. pitchfork come thru 🤞🏼
#swiftie mutuals SORRYYY i love u xx#the back half is better too#so long ldn and loml are fine ..idkidk im sad i did want to like it. i love music. more new music is always a blessing but in this case#like she wants to sound smart and cool so bad.. and theres nothing wrong w that i guess but like. like#shouldve stayed with the drafts or gotten hacked by an editor#ok done ttpd posting👍🏼 see u for regularly scheduled programming
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fibromyalgia is a hell diagnosis lol no one wants to do anything for it and everyone treats you like an idiot for being hopeful or asking abt a treatment
#please PLEASE let there be something visibly wrong with my back so they can treat it#ketamine looking like a more likely option than ldn unfortunately. and would prob have to go 1½ hrs to get to them#🐇#sick
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i've been pacing myself thanks to living with ri for three months now and i'm. actually getting better
i'm doing the dishes voluntarily while standing up. i'm sitting up in bed instead of constantly needing to be horizontal. i constantly have the craving of going out and doing something (but the three flights of stairs i'd have to conquer are still my enemy). i feel more alive. i'm still in pain and tired as all hell but i'm also craving *going back to work* which i will attempt to do (only part time though don't worry) once i'm all registered here. things aren't and probably never will be like they used to before i got sick, but it's also much much much better than it was three months ago. there's hope again
#once i get my ldn it'll hopefully make me unstoppable#i'm nowhere near letting go of my wheelchair but if they could find me a job i could sit down at#i honestly think i could manage 15 hours a week. maybe even 20 if it's slow paced#i am SO much better than i was#but i'm also so so so scared this is just a good phase bc i'm not doing Anything#and i'm resting bc there's nothing else to do#so pray i don't crash and burn as soon as i start pushing out of this resting zone again#gods i hope it's not a fad#i also never would've gotten here without ri taking care of me for all these months#i also feel So Super Bad now that i can feel being stuck inside rather than desperately needing it 🤠#so that's fun#i'm more depressed now that i don't want to be inside 24/7#but we're getting a new place and moving into it in a month#no stairs and a nice yard#it will help so so much
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ok across the spiderverse thoughts in the tags
#hobie deserved more screen time!! what the hell!!!!#as someone from london. he was the most accurate representation of a guy from london#no super posh accent! no gentleman-ness! no tea and crumpets!#americans always get it wrong BUT THEY GOT HOBIE RIGHT#the ldn slang was !!!!! it’s so funny to hear when it’s not in an actual british show or movie but IT WAS COOL LOL#also! i love gwen so much :(((( she deserves so much better#miguel… listen. he’s pretty. but he pissed me off. homie needs to loosen up a bit#but something about big broody men…🫣#JESS WAS SO HOT BYE#miles!!!! i love mike’s <3 my favourite spiderman ever i think#miles* oops#the cliffhanger lowkey had me like. ?????? I NEED PART 2 RN#ngl. ok i’ll admit i didn’t expect most of the twists. but the one at the end? where miles was the prowler in another dimension? i called it#also a little side note. i went into the cinema literally 15 mins late and missed the beginning. and the cinema was SO FUCKING FULL and—#—some mf decided to finesse my seat😀😀😀😀😀 the only row that had seats was the front row😀#the entire front was EMPTY. not a single person sitting there. AND I HAD TO WALK INTO THE ROOM LATE AND SIT THERE#my neck was killing me. and the screen was too big pls. I COULDNT SEE SHIT#there was so much going on in the movie… every time i’d look to the left of the screen i’d miss what happened on the right. LMFAO#i wish i got in time for my usual back seats so i could fucking see properly 🫠 i hate being so close#ANYWAYS YEAH ok i’m done#ani rambles#that was longer than i expected
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pj harvey tour in september . finally something real to look forward to ig i wont be throwing myself off a bridge this summer after all 💋💋
#at roundhouse in ldn sick venue#also at albert hall in manc which i love as well and more intimate .. i want to go both ……
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When it comes to managing ME/CFS, which includes cases of Long Covid that meet ME/CFS criteria, there is a fine line between making yourself unwell due to lack of activity (human bodies and minds are typically healthiest when living an active lifestyle and getting fresh air and varied stimulation, which is why these things are always recommended) and making yourself unwell due to triggering PEM and worsening ME/CFS.
The issue is that most people, including most medical professionals, only recognize the first issue, the consequences of a lack of activity. What they fail to understand is that the multi-systemic damage caused by over-exertion in those with ME/CFS is a vastly bigger problem than being deconditioned.
There doesn't seem to be a benefit to going vastly below one's energy envelope (such as doing extended bed-rest when the ME/CFS is mild), so in those cases, light exercise (walking, short hikes, yoga, etc) may actually make people feel better. But that is only if that doesn't cause PEM. For people whose ME/CFS is moderate/severe, their energy envelopes are much smaller. Even just basic daily activities are enough to trigger PEM. In those cases, exercise needs to be the first thing to go. It is a huge energy drain, and as said above, people with ME/CFS not having enough energy for what they're doing leads to damage to their cells. The benefits of exercise do not outweigh the harm.
Telling people to ignore their body's signals that there is something very, very wrong is only going to make the problem worse. Based on current research, the only way to be able to do more is to do less. The body needs to be given time to recover and heal the damage. Only then can one's energy envelope have the chance to increase, potentially allowing for people to resume light exercise and other activities (such as more energy-intensive hobbies like gardening, sewing, painting, etc) that can improve their physical and emotional well-being.
(It's very important to note that being able to do light exercise does NOT mean that said exercise should be gradually increased to something more demanding unless there is also an increase in the energy envelope. ME/CFS causes a hard limit on how much energy a person has, and graded exercise therapy often quickly outpaces the energy envelope, thereby inducing PEM. Continuing to push will cause damage and leave people worse off than they started. That is why GET is harmful and should not be done.)
To anyone who notices that they feel significantly worse after physical, cognitive, or emotional exertion, either immediately or delayed 24-48 hours: you need to cut back on what you're doing. Activities of basic living, such as eating, going to the bathroom, and personal hygiene, are the priority. Do not let ignorant doctors force you into doing something that is hurting you and could vastly reduce your quality of life indefinitely.
Full Transcript at the link; 3-minute listen.
Quote:
By taking biopsies from long COVID patients before and after exercising, scientists in the Netherlands constructed a startling picture of widespread abnormalities in muscle tissue that may explain this severe reaction to physical activity.
Among the most striking findings were clear signs that the cellular power plants, the mitochondria, are compromised and the tissue starved for energy.
"We saw this immediately and it's very profound," says Braeden Charlton, one of the study's authors at Vrije University in Amsterdam.
The tissue samples from long COVID patients also revealed severe muscle damage, a disturbed immune response, and a buildup of microclots.
"This is a very real disease," says Charlton. "We see this at basically every parameter that we measure."
#just saw a doctor today and when asked if LDN was helping my fatigue#i said 'i may be feeling a bit better due to the LDN but it also may just be due to reducing my activity level#and they said 'why did you reduce your activity level?'#and I'm just like 'because of the fatigue???'#clearly the doctor is not at all familiar with ME/CFS#but not surprising. i asked if they could check if the person in their network who sees patients with fibromyalgia#is also familiar with me/cfs#hopefully the answer is yes and i can get a referral#i was constantly inducing PEM trying to do basic daily activities#and it very clearly was making me worse and worse#outsourcing more tasks has really helped to reduce PEM#leading to me feeling better overall
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Head still hurts its been 2 days.... wtf
#so maybe i do have migraines#haven't had brain fog and pain like this since ldn started working#need to call neurology to notify them but id rather kill myself after the calls i had today#which made me worse lol cant handle emotions in this state#wish me a very able to sit up in bed for more than 2 hours tomorrow#i want you all to enjoy something mundane tomorrow like a slice of hedonism just for me#on my behalf you could say#my slice of hedonism was to be able to do one fridge excursion and get some cheesecake
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oh my god u rly are everyone you've ever loved !! for better or worse !! a part of you becomes them!
#i had a moment of lucidity idk im in this café the person i went on a few dates w is coming to see me i said come study w me#and they said okay immediately even though im a town over and i dont like them i really dont feel even a little attracted to them that way#but i did let them bite my neck a week ago and it still hurts i let them hold my hand i just#i never start anything#i let them kiss me. why do i do that? i dont feel anything towards them#and i told them ill probably never sleep with them and i thought thats enough but it really isnt is it#they write poetry about people they meet even once#theyre coming a whole town over to study w me but its not a date i feel nothing towards them romantically and i dont want to lose them as#a friend. this was her line of thinking wasnt it? i would take the train and meet her near her place in ldn and wed study together and#shed let me hold her and she would never initiate much and we were just studying together and it wasnt a date#like . fuck. i dont want to do what she djd to me to another person ever#their shared location map went offline at london bridge like ok theyre in the underground they are fr coming a whole town over#its a short distance but the point is i think i should have taken what my friend said more seriously . she told me i was kinda leading#them on bc what i thought to be just meetups dates might entail more for them#anyway im gonna be clear w them this time maybe#....IT JUST NEVER COMES UP IS THE THING#do i have to clarify even if it never comes up#i do in fact hear myself#ok#the parallels r lining up#aaa
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oh ….. :( one of my good friends has decided to move back home to nz by june :( I’m so sad
#b.txt#we met via Instagram LMAO😭#but she came w me to a gig of a person she’d never even heard of the first time we met#n we had so much fun#n then it was nearly two years since we saw each other next#n she invited me to have a sleepover n have a weekend in ldn as a belated bday celebration#bc my birthday last year sucked#and it was so much fun!!! we had such a nice time it was so easy#we get along so well 😭#and are both the same amount of delusional n headass#she’s my only irl skz friend too😭#I’m gonna miss her :((#I hope we will get to hang out a bit before she goes ;-;#I understand why she’s moving though things here aren’t enough to make her stay any more#waaaaa#all my closest friends end up so far from me :(
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I saw the teasers for new tga and then saw its being released this Fri and actually burst into tears just then lmao the hold they have
#Last July I followed the uk tour#Every date except ldn#In my extremely mad just do shit year#I dont talk abt it cos I shoved myself out of things I enjoy a while ago 💀 or started#Idk. Not enjoying things enough to say I like#Did them#Anyway yea distraught xx but anyway#the band like#Told the lady working there to give me the drum head w the drawing on it in Birmingham#All this like love I have for them I just wanted to be there every night those songs r so special#And so when she gave me it I was just like :)#Then loads of people taking pics and like I'll give u a fiver for it and I was like :)#Then more people taking pics and I was like :)#Then I started sobbing and walking away#“Oh darling-” lmfao#SO sweet n cute of them to hand it out#And then I bounced over to like the fav in the fan club basically and was like look!!!!! And he was like#I knew you'd get it lmao#No idea myself#Rly showed up lmao hahahhaha#It was just a rly nice like#Connecting thing#I was sooooo buzzed a lot of people were so serious n cliquey#And I was like I just wanna hear anything am glad they're back#And then they were like it's a bit like when u see a football team for a long time#Start talking strategy (fair it was banter)#And I'm like coming at them w the apparent controversial opinions#I can't rmbr the start slow song maybe mae and they were like it's supposed to be attack attack attack#I'm like#Nah
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truly hilarious
#this is from chris lees post btw#im sorry ik im just making myself more angry#but jesus christ#ldn noise on here...will never say anything positive abt a song they produce ever again#also ten apparently follows chris lee??#cannot imagine what he felt seeing this shit#gonna try to calm down before going to sleep#vinnie talks
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kazoo’d ✷ cl16
genre: mobile au, 2k celebration
Charles can’t lie to save face, and further speculation ensues.
auds here... imy guys! ldn is unkind to me </3 but i love you guys n hope u like it
bellahadid added to their story.
Liked by charles_leclerc, vittoria, and 2,032,109 others
yourusername Hectic weeeks. Amazing time promoting the film with my Irish bestie Paul Mescal, attending to my fans (e.g. sukiwaterhouse lol), and lauding Messi’s victory over my sore loser boyfriend. No pics because I cried so hard I looked like I had buttons for eyes. Thx to my lovely team for this assortment of godly snapshots :*
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sukiwaterhouse Mom i made it
bellahadid where's the sender of the roses? ;)
daisyedgarjones paul is furious he wasnt featured by the way
charles_leclerc added to their story.
#f1#leclsrc2000#charles leclerc#f1 instagram au#charles leclerc smut#charles leclerc x reader#charles leclerc imagines#charles leclerc drabble#f1 x reader
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people on low dose naltrexone: we're not like those guys on high dose naltrexone for addictions. I'm tired of being confused for them
[ID: a blad cat staring in the corner with text saying"[sobbing]"]
.....I am those people
why are people on LDN so obsessed with distancing themselves from us instead of dismantling the stigma around taking naltrexone? why are you guys just abandoning us? why do you think your chronic pain is better than my addiction? why do you think you're better than me? more worthy of support than me? less worth of stigma than me?
you get to explain "oh don't worry, I'm not like them" to doctors and I dont because I am them. instead of realizing that's wrong, that treating people poorly because they have an addiction is wrong, you try to distance yourself and naltrexone from addiction entirely. you don't want to be associated with us. it hurts.
#physical disability#physically disabled#chronic illness#chronically ill#low dose naltrexone#mad pride#neurodivergent#yes I'm putting addiction content in the neurodivergent and mad tags die angry about it#neuro punk#neuropunk
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